Need/provision/receipt Description of measure Start year Age range Age from Age to Informant Multiple rater Reporting term Sweep title Standard instrument Question/Data item Response scale Notes Physical health measures Dataset
Provision; Total approved fostering households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of households (at 31 March) – Total approved households

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Foster carers per household - number with 1 carer 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of carers per household (at 31 March) – Number of households with one carer

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Number of non-permanent foster care places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Non-permanent foster care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Number of emergency foster care places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Emergency

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Number of parent and child foster care places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Parent and child

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Number of multi dimensional foster care places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Multi-dimensional treatment

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Number of remand foster care places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Remand

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Number of other foster care places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Other

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Fostering to adopt numbers 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Fostering to adopt

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Shared care numbers 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Shared care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Primary placement offer not known 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Not known

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by no. of placement types offered - 1 type 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by number of placement types offered (at 31 March) – Approved for one type of care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by no. of placement types offered - 2 types 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by number of placement types offered (at 31 March) – Approved for two types of care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by no. of placement types offered - 3 types 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by number of placement types offered (at 31 March) – Approved for three types of care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by no. of placement types offered - 4+ types 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by number of placement types offered (at 31 March) – Approved for four or more types of care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - Permanent 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Permanent foster care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - Non-permanent 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Non-permanent foster care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - Emergency 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Emergency

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Foster carers per household - number with 2 carers 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of carers per household (at 31 March) – Number of households with two carers

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Number of permanent foster care places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Permanent foster care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Short break numbers 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Primary placement offer (at 31 March) – Short breaks

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - Parent & child 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Parent and child

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - multi dimensional 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Multi-dimensional treatment

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - remand 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Remand

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - other 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Other

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - fostering to adopt 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Fostering to adopt

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - short breaks 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Short breaks

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - shared care 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Shared care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Households by all placements offered - not known 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Households by all placements offered (primary and additional) (at 31 March) – Not known

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. of households approved 1 CYP 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Capacity (at 31 March) – Number of households approved for one CYP

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. of households approved 2 CYP 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Capacity (at 31 March) – Number of households approved for two CYP

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. of households approved 3 CYP 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Capacity (at 31 March) – Number of households approved for three CYP

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. of households approved 4+ CYP 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Capacity (at 31 March) – Number of households approved for four or more CYP

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. approved foster places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Fostering places (at 31 March) – Number of approved foster places

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. of filled foster places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Fostering places (at 31 March) – Number of filled places (number of children/young people in placements)

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. vacant foster places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Fostering places (at 31 March) – Number of vacant places

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. not available foster places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Fostering places (at 31 March) – Number of places not available

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places used for short care break 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Fostering places (at 31 March) – Number of places used for short break care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places not available carer break/reg pending 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of ‘not available’ places by reason (31 March) – Carer(s) taking a break/pending resignation

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places not available carer under investigation 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of ‘not available’ places by reason (31 March) – Carer(s) under investigation

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places not available needs of child not otherwise stated 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of ‘not available’ places by reason (31 March) – Needs of child not otherwise stated

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places not available - only with sibling 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of ‘not available’ places by reason (31 March) – Only available if sibling group placed

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places not available - reason unknown 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of ‘not available’ places by reason (31 March) – Reason unknown/other

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places not available - reserved pending placement 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of ‘not available’ places by reason (31 March) – Reserved for pending placement

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Newly approved households - permanent fostering 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Permanent foster care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Newly approved households - non-permanent fostering 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Non-permanent foster care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Newly approved households - emergency fostering 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Emergency

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Newly approved households - parent and child fostering 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Parent and child

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Newly approved households - multi dimensional fostering 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Multi-dimensional treatment

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Newly approved households - remand fostering 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Remand

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Newly approved households - other fostering 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Other

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places not available - reserved for short breaks 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of ‘not available’ places by reason (31 March) – Reserved for short breaks placement

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places not available - staying put 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of ‘not available’ places by reason (31 March) – Staying Put

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places not available - unknown reasons 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of ‘not available’ places by reason (31 March) – Unknown carer reasons

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. households with exemptions to the usual fostering limit 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Exemptions in year – Number of households with exemptions to the usual fostering limit in place at any time during the year

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. initial enquiries from new fostering households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Initial enquiries – Number of initial enquiries from new prospective fostering households

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. prospective fostering household applications 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Applications received in-year – Total number of applications received from prospective fostering households between 1 April and 31 March

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. fostering applications approved 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Applications received in-year – Number of applications approved

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. fostering applications - withdrawn by applicants 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Applications received in-year – Number of applications withdrawn by applicants

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. fostering applications - withdrawn by services 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Applications received in-year – Number of applications withdrawn by services

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. fostering applications - rejected by panel 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Applications received in-year – Number of applications rejected after being presented to panel

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. fostering applications - in progress 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Applications received in-year – Number of applications which remained in progress on 31 March

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. newly approved households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households (in-year) – Total number of households approved in year

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; New approved households - Fostering to adopt 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Fostering to adopt

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; New approved households - Short breaks 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Short breaks

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; New approved households - Shared care 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Shared care

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. new approved foster carers - black/black British 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved foster carers by ethnicity (in-year) – Black/Black British

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. new approved foster carers - other ethnic 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved foster carers by ethnicity (in-year) – Other ethnic groups

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. new approved foster carers - ethnicity unknown 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved foster carers by ethnicity (in-year) – Not known

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; New appointed foster carers by age 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved foster carers by age (in-year)

This is recorded into the age categories of:
20-24
25-29
30-34
35-39
40-44
45-49
50-54
55-59
60-64
65+

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; New approved foster carers by no. of places 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by total number of places (in-year)

This is recorded under:
Approved for one child
Approved for two children
Approved for three children
Approved for four or more children

Statistics are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Deregistrations of foster parents by reason 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Deregistrations

This is recorded under:
Deregistered to facilitate a transfer to a local authority
Deregistered to facilitate a transfer to an independent fostering agency
Deregistration initiated by the fostering service
Deregistration initiated by the foster carer
Deregistered as familiy adopted the child/children
Deregistered as family took out a special guardianship order for the child/children
Deregistration for unknown reason
Total households deregistered between 1 April and 31 March

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. referrals to IRM 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Referrals to the IRM

This is recorded under:
Number of applications for a review to the IRM
Number of which resulted in a recommendation being made to review the decision

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. total approved carers 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of carers (at 31 March) – Total approved carers

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Ethnicity of carers 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Ethnicity of carers (at 31 March)

This is recorded under:
White
Mixed
Asian/Asian British
Black/Black British
Other ethnic groups
Not known

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Age of carers 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Age of carers (at 31 March)

Age is recorded at:
20-24
25-29
30-34
35-39
40-44
45-49
50-54
55-59
60-64
65+

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Training of foster parents 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Training and development (at 31 March)

This is recorded under:
Number of individual foster carers who had completed the TSD Standards
Number of individual foster carers who were awaiting sign-off on the TSD Standards
Number of individual foster carers who were in progress completing the TSD Standards
Number of individual foster carers who had not yet commenced the TSD Standards
Number of individual foster carers with TSD Standards training status unknown

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Total approved fostering households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of households (at 31 March) – Total approved households

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. carers per household - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of carers per household (at 31 March) – family and friends households

This is recorded under:
Number of households with one carer
Number of households with two carers

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Capacity - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Capacity (at 31 March) – family and friends households

This is recorded under:
Number of households approved for one CYP
Number of households approved for two CYP
Number of households approved for three CYP
Number of households approved for four or more CYP

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. places - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Fostering places (at 31 March) – Number of approved foster places – family and friends households

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. carers - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of carers (at 31 March) – Total approved carers – family and friends households

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Ethnicity - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Ethnicity of carers (at 31 March) – family and friends households

This is recorded under:
White
Mixed
Asian/Asian British
Black/Black British
Other ethnic groups
Not known

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Newly approved - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households (in-year) – family and friends households

This is recorded under:
Total number of households approved in year [Note 3]
Total number of households approved in year and still active on 31 March
Total number of households approved and deregistered in year

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Deregistration - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Deregistration – Total number of households deregistered in year – family and friends households

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. allegations of abuse - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Number of allegations of abuse

This is recorded under:
Number of allegations against foster carers by fostered children
Number of allegations against foster carers by other sources
Total number of allegations made
Number of children made allegations against foster carers
Number of foster carers subject to allegations

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Categories allegations of abuse - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Category of alleged abuse

This is recorded under:
Physical abuse
Sexual abuse
Neglect
Emotional abuse

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Abuse investigation outcomes - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Outcome of investigation

This is recorded under:
Concerns resolved, no further action
Continued monitoring for agreed period
Concern remained, refer to fostering panel for review

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; New approved households - Not known 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved households by primary approval type (in-year) – Not known

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. new approved foster carers 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved foster carers (in-year) – Total number of foster carers approved in year

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. new approved foster carers - white 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved foster carers by ethnicity (in-year) – White

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. new approved foster carers - mixed 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved foster carers by ethnicity (in-year) – Mixed

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. new approved foster carers - Asian/Asian British 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Newly approved foster carers by ethnicity (in-year) – Asian/Asian British

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. of people by fostering experience 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Fostering experience

This is recorded under:
New to fostering
Transferring from another fostering agency
Returning to fostering

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Ages of carers - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Age of carers (at 31 March) – family and friends households

This is recorded into the age categories of:
20-24
25-29
30-34
35-39
40-44
45-49
50-54
55-59
60-64
65+

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Training &development - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Training and development (at 31 March) – family and friends households

This is recorded under:
Number of individual foster carers who had completed the TSD Standards
Number of individual foster carers who were awaiting sign-off on the TSD Standards
Number of individual foster carers who were in progress completing the TSD Standards
Number of individual foster carers who had not yet commenced the TSD Standards
Number of individual foster carers with TSD Standards training status unknown

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Investigation timescale - family & friend households 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Timescale for investigation

This is recorded under:
Less than 21 working days
22-30 working days (4-6 weeks)
31-50 working days (6-10 weeks)
More than 50 working days (more than 10 weeks)

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. referrals 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Referrals

This is recorded under:
Number of referrals to the Disclosure and Barring Service (DBS)
Number of referrals to the local authority child protection team
Number of Section 47 enquiries

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; Physical restraint numbers 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Physical restraint

This is recorded under:
Number of recorded incidents of physical restraint by foster carers
Number of CYP subject to restraint
Number of households that restrained CYP

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Provision; No. complains 2021 0-120 0 120 Data manager No Past year Fostering in England: 1 April 2021 to 31 March 2022 No

Complaints

This is recorded under:
CYP (complaints made)
CYP (complaints not upheld)
Foster carers (complaints made)
Foster carers (complaints not upheld)
CYP’s social workers (complaints made)
CYP’s social workers (complaints not upheld)
Other professionals (complaints made)
Other professionals (complaints not upheld)
CYP’s parents (complaints made)
CYP’s parents (complaints not upheld)
Others (complaints made)
Others (complaints not upheld)
Total complaints (complaints made)
Total complaints (complaints not upheld)

Data are given for:
England 2021-22
LA 2021-22
IFA 2021-22

FIE
Receipt; Client location: UA 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Unitary authority of residence (derived)

Details typed/inserted

ASC-CLD
Receipt; Client location: electoral ward 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Electoral ward of residence (derived)

Details typed/inserted

ASC-CLD
Receipt; Client location: LA 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Local authority of residence (derived)

Details typed/inserted

ASC-CLD
Receipt; Client location: CCG 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

CCG of residence (derived)

Details typed/inserted

ASC-CLD
Receipt; Client location: LSOA 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

LSOA of residence (derived)

Details typed/inserted

ASC-CLD
Receipt; Client location: MSOA 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

MSOA of residence (derived)

Details typed/inserted

ASC-CLD
Receipt; Client location: LSOA 2011 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

LSOA of residence (2011 boundaries; derived)

Details typed/inserted

ASC-CLD
Receipt; Client location: MSOA 2011 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

MSOA of residence (2011 boundaries; derived)

Details typed/inserted

ASC-CLD
Receipt; Total Hours Caring per week 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Based on carers’ self-reported hours

1 – 7 hrs
8 – 14 hrs
15 – 21 hrs
22 – 28 hrs
29 – 35 hrs
36 – 42 hrs
43 – 49 hrs
50+ hrs

ASC-CLD
Receipt; Number of adults being cared for 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

The number of adults cared for by the carer. This can include people who are not known to the local authority, to describe the full extent of the caring role

Insert number

ASC-CLD
Receipt; Care recipient ID 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

First adult cared for by the carer, but only where they are known to the local authority (where 1 or more)

Second adult cared for by the carer, but only where they are known to the local authority

Third adult cared for by the carer, but only where they are known to the local authority

Insert IDs

ASC-CLD
Receipt; Informant type 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Description of carer and service user participation during the review

Carer only
Service user only
Service user and carer

ASC-CLD
Receipt; Year of birth of care recipient/carer 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Year of birth

Insert year

ASC-CLD
Receipt; Month of birth of care recipient/carer 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Month of birth

Insert month

ASC-CLD
Receipt; GP ID of care recipient/carer 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

General practitioner practice name

Insert GP info

ASC-CLD
Receipt; Accommodation setting including care homes 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Accommodation status

Owner occupier or shared ownership scheme
Tenant
Tenant – private landlord
Settled mainstream housing with family / friends
Supported accommodation / supported lodgings / supported group home
Shared Lives scheme
Approved premises for offenders released from prison or under probation supervision
Sheltered housing / extra care housing / other sheltered housing
Mobile accommodation for Gypsy / Roma and Traveller communities
Rough sleeper / squatting
Night shelter / emergency hostel / direct access hostel
Refuge
Placed in temporary accommodation by the council (inc. homelessness resettlement)
Staying with family / friends as a short-term guest
Acute / long-term healthcare residential facility or hospital
Registered care home
Registered nursing home
Prison / Young offenders institution / detention centre
Other temporary accommodation
Unknown

ASC-CLD
Receipt; Support from an unpaid carer 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Whether the individual receives support from an unpaid carer

Yes
No
Unknown

ASC-CLD
Need; Visual impairment status 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Visual impairment status

Blind/severely sight impaired
Partial sight/sight impaired
No visual impairment
Visual impairment – severity unknown
Unknown

ASC-CLD
Need; Dementia diagnosis 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Whether the individual has been diagnosed with dementia

Yes
No
Unknown

ASC-CLD
Receipt; Event outcomes 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Event outcome

Progress to Reablement/ST-Max
Progress to Assessment
Admitted to hospital
Progress to Re-assessment / Unplanned Review
Progress to Support Planning / Services
Progress to End of Life Care
No change in package
Service ended as planned
NFA – Moved to another LA
NFA – 100% NHS funded care
NFA – Self-funded client (Inc. 12wk disregard)
NFA – Support declined
NFA – Information & Advice / Signposting only
NFA – Deceased
NFA – No services offered: Other reason
NFA – Support ended: Other reason
Progress to financial assessment
Provision of service
NFA- Other

ASC-CLD
Receipt; Routes of access 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Request route of access

Planned Entry (Transition)
Discharge from Hospital
Diversion from Hospital Services
Community / Other route
Prison
Self-Funder
Discharge from Reablement
Transfer from Other LA

ASC-CLD
Receipt; Assessment types 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Assessment type

Short Term Assessment
Long Term Assessment
Financial Assessment

ASC-CLD
Receipt; Method of assessment 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Whether eligible needs were identified under the Care Act 2014 (long term assessments only)

Eligible needs identified
Non-eligible needs identified
No needs identified

ASC-CLD
Receipt; Service type 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Service type

Short Term Support: ST-Max
Short Term Support: Ongoing Low Level
Short Term Support: Other Short Term
Long Term Support: Nursing Care
Long Term Support: Residential Care
Long Term Support: Community
Long Term Support: Prison
Carer Support: Direct to Carer
Carer Support: Support involving the person cared-for

ASC-CLD
Receipt; Service component 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Additional details of the service provided

Reablement
Short Term Nursing Care
Short Term Residential Care
Long Term Nursing Care
Long Term Residential Care
Home Support
Day Support
Meals
Transport
Equipment
Direct Payment
Shared Lives
Community Supported Living
Professional Support- Social Worker
Professional Support- Other
Learning/Education/Employment Support
End of Life Care
Emergency Support
Other Short Term Support
Other Long Term Support
Carer Respite
Carer Sitting Service
Carer Universal Services
Other Carer Support

ASC-CLD
Receipt; Delivery mechanism (Long term community or prison only) 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Delivery mechanism. This is specific to the service line

Direct Payment
CASSR Managed Personal Budget
CASSR Commissioned Support
Self-Funder Metering Only

ASC-CLD
Receipt; CQC Location Name of provider 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

CQC Location Name of provider

Typed here

ASC-CLD
Receipt; CQC Location ID 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

CQC Location ID

Typed here

ASC-CLD
Receipt; Review reason 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Review reason

Planned
Unplanned – Hospital (Planned and unplanned episodes)
Unplanned – Carer related
Unplanned – Safeguarding concern
Unplanned – Other Reason
Unplanned – Provider Failure
Unplanned – Change in Commissioning arrangements

ASC-CLD
Receipt; Have support services met stated outcomes 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Whether the support services have met the stated outcomes

Fully Met
Partially Met
Not Met

ASC-CLD
Receipt; Unit cost and frequency of care intervention 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Part 1:
Unit cost

Part 2:
The frequency at which the unit cost occurs

Part 3:
Number of planned units per week

Part 1:
Insert unit cost

Part 2:
Per Session
Hourly
Daily
Weekly
Fortnightly
4-weekly
Monthly
Quarterly
Annually
One-off

Part 3:
Insert number of units per week

ASC-CLD
Receipt; Client funding status 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

The client’s most recent funding status

18(3) (full cost client)
Self-Funder – Metering Only
Joint Client and Social Care Funded
Fully Health Funded
Joint Health and Social Care Funded
Fully Social Care Funded
Unknown – System Level
Unknown – Individual Level

ASC-CLD
Receipt; Client age 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Client’s age at event start date (derived)

Insert age

ASC-CLD
Receipt; Client location: postcode 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Postcode sector of residence (derived)

Details typed/inserted

ASC-CLD
Receipt; Client location: constituency 2025 18-120 18 120 Data manager No Current Release 2 Technical Output Specification (mandatory from October 2025) No

Constituency code of residence (derived)

Details typed/inserted

ASC-CLD
Receipt; Anxiety and depression - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Anxiety or depression

I am not anxious or depressed
I am moderately anxious or depressed
I am extremely anxious or depressed

ASCS
Receipt; ADLs and IADLs - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Please place a tick in the box that best describes your abilities for each of the following questions.

For each of the below, the responses are:
I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

Questions:
Do you usually manage to get around indoors (except steps) by yourself?
Do you usually manage to get in and out of a bed (or chair) by yourself?
Do you usually manage to feed yourself?
Do you usually deal with finances and paperwork – for example, paying bills, writing letters – by yourself?

ASCS
Receipt; ADLs - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Please place a tick in the box that best describes your abilities for each of the following questions.

For each of the below, the responses are:
I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

Do you usually manage to wash all over by yourself, using either a bath or shower?
Do you usually manage to get dressed and undressed by yourself?
Do you usually manage to use the WC/toilet by yourself?
Do you usually manage to wash your face and hands by yourself?

ASCS
Receipt; Care home design to meet needs 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

How well do you think your care home is designed to meet your needs?

My care home meets my needs very well
My care home meets most of my needs
My care home meets some of my needs
My care home is totally inappropriate for my needs

ASCS
Receipt; Getting around outside care home 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Thinking about getting around outside of your care home, which of the following statements best describes your present situation?
You can include getting around by yourself or with help from someone else

I can get to all the places in my local area that I want
At times I find it difficult to get to all the places in my local area that I want
I am unable to get to all the places in my local area that I want
I do not leave my care home

ASCS
Receipt; Help from friends/family/neighbours 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Do you receive any practical help on a regular basis from your husband/wife, partner, friends, neighbours or family members?

Yes, from someone living in my household
Yes, from someone living in another household
No

ASCS
Receipt; Topping-up care and support 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Do you buy any additional care or support privately or pay more to ‘top up’ your care and support?

Yes, I buy some more care and support with my own money
Yes, my family pays for some more care and support for me
No

ASCS
Receipt; Help completing questionnaire 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Did you have any help from someone else to complete this questionnaire?

No, I did not have help
I had help from a care worker
I had help from someone living in my household
I had help from someone living outside my household

ASCS
Receipt; Type of help completing questionnaire 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

What type of help did you have?

I didn’t have any help
Someone else read the questions to me
Someone else translated the questions for me
Someone else wrote down the answers for me
I talked through the questions with someone else
Someone answered for me, without asking me the questions

ASCS
Receipt; Free text, other experiences 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Please use the space provided below to describe any other experiences you would like to tell us about, or to write any other comments you would like to make

Free text response

ASCS
Receipt; Taking part follow-up research 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
We may be asking some people to take part in follow-up research for this study in the next year or so.
Would you be happy to be invited to take part in more research?

Yes, I have written my name, address and phone number in the space below
No

ASCS
Receipt; Control over daily life 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Which of the following statements best describes how much control you have over your daily life?

I have as much control over my daily life as I want
I have adequate control over my daily life
I have some control over my daily life but not enough
I have no control over my daily life

ASCS
Receipt; Care services assistance with control daily life 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Do care and support services help you in having control over your daily life?
By ‘care and support services’ we mean any equipment or care provided by staff who are paid to help you. The staff could be from [Social Services], an agency or bought by you using money you receive from [Social Services], using a Direct Payment.

I do not need care and support services to help me have control over my daily life
Yes
No

ASCS
Receipt; Personal appearance 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Thinking about keeping clean and presentable in appearance, which of the following statements best describes your situation?

I feel clean and am able to present myself the way I like
I feel adequately clean and presentable
I feel less than adequately clean or presentable
I don’t feel at all clean or presentable

ASCS
Receipt; Personal appearance care services contribution 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
Do care and support services help you in keeping clean and presentable in appearance?

I do not need care and support services to help me keep clean and presentable
Yes
No

ASCS
Receipt; Adequacy of food and drink 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Thinking about the food and drink you get, which of the following statements best describes your situation?

I get all the food and drink I like when I want
I get adequate food and drink at OK times
I don’t always get adequate or timely food and drink
I don’t always get adequate or timely food and drink, and I think there is a risk to my health

ASCS
Receipt; Adequacy of food and drink - service assistance 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
Do care and support services help you to get food and drink?

I do not need care and support services to help me get food and drink
Yes
No

ASCS
Receipt; How clean/comfortable care home is 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Which of the following statements best describes how clean and comfortable your care home is?

My care home is as clean and comfortable as I want
My care home is adequately clean and comfortable
My care home is not quite clean or comfortable enough
My care home is not at all clean or comfortable

ASCS
Receipt; Support services helping keep care home clean 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
Do care and support services help you in keeping your care home clean and comfortable?

I do not need care and support services to help me keep my home clean and comfortable
Yes
No

ASCS
Receipt; How safe participant feels - care home 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Which of the following statements best describes how safe you feel?
By ‘feeling safe’ we mean how safe you feel both inside and outside the home. This includes fear of abuse, falling or other physical harm.

I feel as safe as I want
Generally I feel adequately safe, but not as safe as I would like
I feel less than adequately safe
I don’t feel at all safe
If you have said you don’t feel safe, can you please tell us why?
-open text response-

ASCS
Receipt; Care and support help feel safe - care home 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Do care and support services help you in feeling safe?

Yes
No

ASCS
Receipt; Social contact - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Thinking about how much contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have adequate social contact with people
I have some social contact with people, but not enough
I have little social contact with people and feel socially isolated

ASCS
Receipt; Social contact - care recipient - services' assistance 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
Do care and support services help you in having social contact with people?

I do not need care and support services to help me have social contact with people
Yes
No

ASCS
Receipt; How spend time - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Which of the following statements best describes how you spend your time?
When you are thinking about how you spend your time, please include anything you value or enjoy including leisure activities, formal employment, voluntary or unpaid work and caring for others.

I’m able to spend my time as I want, doing things I value or enjoy
I’m able to do enough of the things I value or enjoy with my time
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

ASCS
Receipt; I do not need care and support services to help me in the way I spend my time Yes No 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
Do care and support services help you in the way you spend your time?

I do not need care and support services to help me in the way I spend my time
Yes
No

ASCS
Receipt; How participant feels about themselves with help 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Which of these statements best describes how having help to do things makes you think and feel about yourself?

Having help makes me think and feel better about myself
Having help does not affect the way I think or feel about myself
Having help sometimes undermines the way I think and feel about myself
Having help completely undermines the way I think and feel about myself

ASCS
Receipt; How participant feels about themselves - manner of help 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Which of these statements best describes how the way you are helped and treated makes you think and feel about yourself?

The way I’m helped and treated makes me think and feel better about myself
The way I’m helped and treated does not affect the way I think or feel about myself
The way I’m helped and treated sometimes undermines the way I think and feel about myself
The way I’m helped and treated completely undermines the way I think and feel about myself

ASCS
Receipt; Frequency of loneliness 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

How often do you feel lonely?

Often or always
Some of the time
Occasionally
Hardly ever
Never

ASCS
Receipt; Ease of finding info/advice/support 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

In the past year, have you generally found it easy or difficult to find information and advice about support, services or benefits?
Please include information from different sources, such as voluntary organisations, and private agencies as well as [Social Services].

I’ve never tried to find information or advice
Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find
If you found it difficult to find information and advice, please tell us why and what we can do to make it easier for you
-open response-

ASCS
Receipt; General health - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

How is your health in general?

Very good
Good
Fair
Bad
Very bad

ASCS
Receipt; Pain - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

By placing a tick in one box in each group below, please indicate which statements best describe your own health state today.

I have no pain or discomfort
I have moderate pain or discomfort
I have extreme pain or discomfort

ASCS
Receipt; How participant feels about themselves with help 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Which of these statements best describes how having help to do things makes you think and feel about yourself?

Having help makes me think and feel better about myself
Having help does not affect the way I think or feel about myself
Having help sometimes undermines the way I think and feel about myself
Having help completely undermines the way I think and feel about myself

ASCS
Receipt; How participant feels about themselves - manner of help 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Which of these statements best describes how the way you are helped and treated makes you think and feel about yourself?

The way I’m helped and treated makes me think and feel better about myself
The way I’m helped and treated does not affect the way I think or feel about myself
The way I’m helped and treated sometimes undermines the way I think and feel about myself
The way I’m helped and treated completely undermines the way I think and feel about myself

ASCS
Receipt; Frequency of loneliness 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

How often do you feel lonely?

Often or always
Some of the time
Occasionally
Hardly ever
Never

ASCS
Receipt; Ease of finding info/advice/support 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

In the past year, have you generally found it easy or difficult to find information and advice about support, services or benefits?
Please include information from different sources, such as voluntary organisations, and private agencies as well as [Social Services].

I’ve never tried to find information or advice
Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find
If you found it difficult to find information and advice, please tell us why and what we can do to make it easier for you
-open response-

ASCS
Receipt; General health - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

How is your health in general?

Very good
Good
Fair
Bad
Very bad

ASCS
Receipt; Pain - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

By placing a tick in one box in each group below, please indicate which statements best describe your own health state today.

I have no pain or discomfort
I have moderate pain or discomfort
I have extreme pain or discomfort

ASCS
Receipt; Anxiety and depression - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Anxiety or depression

I am not anxious or depressed
I am moderately anxious or depressed
I am extremely anxious or depressed

ASCS
Receipt; ADLs and IADLs - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Please place a tick in the box that best describes your abilities for each of the following questions.

For each of the below, the responses are:
I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

Questions:
Do you usually manage to get around indoors (except steps) by yourself?
Do you usually manage to get in and out of a bed (or chair) by yourself?
Do you usually manage to feed yourself?
Do you usually deal with finances and paperwork – for example, paying bills, writing letters – by yourself?

ASCS
Receipt; ADLs - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Please place a tick in the box that best describes your abilities for each of the following questions.

For each of the below, the responses are:
I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

Do you usually manage to wash all over by yourself, using either a bath or shower?
Do you usually manage to get dressed and undressed by yourself?
Do you usually manage to use the WC/toilet by yourself?
Do you usually manage to wash your face and hands by yourself?

ASCS
Receipt; Home design to meet needs 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

How well do you think your home is designed to meet your needs?

My home meets my needs very well
My home meets most of my needs
My home meets some of my needs
My home is totally inappropriate for my needs

ASCS
Receipt; Getting around outside home 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Thinking about getting around outside of your home, which of the following statements best describes your present situation?
You can include getting around by yourself or with help from someone else

I can get to all the places in my local area that I want
At times I find it difficult to get to all the places in my local area that I want
I am unable to get to all the places in my local area that I want
I do not leave my home

ASCS
Receipt; Help from friends/family/neighbours 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Do you receive any practical help on a regular basis from your husband/wife, partner, friends, neighbours or family members?

Yes, from someone living in my household
Yes, from someone living in another household
No

ASCS
Receipt; Topping-up care and support 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Do you buy any additional care or support privately or pay more to ‘top up’ your care and support?

Yes, I buy some more care and support with my own money
Yes, my family pays for some more care and support for me
No

ASCS
Receipt; Help completing questionnaire 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Did you have any help from someone else to complete this questionnaire?

No, I did not have help
I had help from a care worker
I had help from someone living in my household
I had help from someone living outside my household

ASCS
Receipt; Type of help completing questionnaire 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

What type of help did you have?

I didn’t have any help
Someone else read the questions to me
Someone else translated the questions for me
Someone else wrote down the answers for me
I talked through the questions with someone else
Someone answered for me, without asking me the questions

ASCS
Receipt; Free text, other experiences 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Please use the space provided below to describe any other experiences you would like to tell us about, or to write any other comments you would like to make

Free text response

ASCS
Receipt; Taking part follow-up research 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
We may be asking some people to take part in follow-up research for this study in the next year or so.
Would you be happy to be invited to take part in more research?

Yes, I have written my name, address and phone number in the space below
No

ASCS
Receipt; Satisfaction with care services 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Overall, how satisfied or dissatisfied are you with the care and support services you receive?

I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

ASCS
Receipt; Your quality of life of care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Thinking about the good and bad things that make up your quality of life, how would you rate the quality of your life as a whole?

So good, it could not be better
Very good
Good
Alright
Bad
Very bad
So bad, it could not be worse

ASCS
Receipt; Do care services improve life quality 2024 18-120 18 120 Participant Carer No Current Questionnaire 2a: RESIDENTIAL AND NURSING CARE - Your Social Care and Support Services No

Do care and support services help you to have a better quality of life?

Yes
No

ASCS
Receipt; Gender of care recipient 2024 18-120 18 120 Participant Carer No Current Demographic Questions 24-25 No

Are you male or female?

Male
Female
Other

ASCS
Receipt; Age of care recipient 2024 18-120 18 120 Participant Carer No Current Demographic Questions 24-25 No

How old are you?

________________ years

ASCS
Receipt; Ethnicity of care recipient 2024 18-120 18 120 Participant Carer No Current Demographic Questions 24-25 No

To which of these groups do you consider you belong?

English / Welsh / Scottish / Northern Irish / British
Irish
Gypsy or Irish Traveller
Any other White background
White and Black Caribbean
White and Black African
White and Asian
Any other Mixed / Multiple background
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
African
Caribbean
Any other Black / African / Caribbean background
Arab
Any other background

ASCS
Receipt; Satisfaction with care services 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Overall, how satisfied or dissatisfied are you with the care and support services you receive?

I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

ASCS
Receipt; Your quality of life of care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Thinking about the good and bad things that make up your quality of life, how would you rate the quality of your life as a whole?

So good, it could not be better
Very good
Good
Alright
Bad
Very bad
So bad, it could not be worse

ASCS
Receipt; Do care services improve life quality 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Do care and support services help you to have a better quality of life?

Yes
No

ASCS
Receipt; Level of choice over services 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Which of the following statements best describes how much choice you have over the care and support services you receive?
By ‘choice’ we mean being able to choose from a range of care providers and services and make changes as and when required

I do have enough choice over care and support services
I don’t have enough choice over care and support services
I don’t want or need choice about care and support services

ASCS
Receipt; Control over daily life 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Which of the following statements best describes how much control you have over your daily life?

I have as much control over my daily life as I want
I have adequate control over my daily life
I have some control over my daily life but not enough
I have no control over my daily life

ASCS
Receipt; Care services assistance with control daily life 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Do care and support services help you in having control over your daily life?
By ‘care and support services’ we mean any equipment or care provided by staff who are paid to help you. The staff could be from [Social Services], an agency or bought by you using money you receive from [Social Services], using a Direct Payment.

I do not need care and support services to help me have control over my daily life
Yes
No

ASCS
Receipt; Personal appearance 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Thinking about keeping clean and presentable in appearance, which of the following statements best describes your situation?

I feel clean and am able to present myself the way I like
I feel adequately clean and presentable
I feel less than adequately clean or presentable
I don’t feel at all clean or presentable

ASCS
Receipt; Personal appearance care services contribution 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
Do care and support services help you in keeping clean and presentable in appearance?

I do not need care and support services to help me keep clean and presentable
Yes
No

ASCS
Receipt; Adequacy of food and drink 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Thinking about the food and drink you get, which of the following statements best describes your situation?

I get all the food and drink I like when I want
I get adequate food and drink at OK times
I don’t always get adequate or timely food and drink
I don’t always get adequate or timely food and drink, and I think there is a risk to my health

ASCS
Receipt; Clean and comfortable home 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Which of the following statements best describes how clean and comfortable your home is?

My home is as clean and comfortable as I want
My home is adequately clean and comfortable
My home is not quite clean or comfortable enough
My home is not at all clean or comfortable

ASCS
Receipt; Clean and comfortable home - services contribution 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
Do care and support services help you in keeping your home clean and comfortable?

I do not need care and support services to help me keep my home clean and comfortable
Yes
No

ASCS
Receipt; Feeling of safety inside and outside home 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Which of the following statements best describes how safe you feel?
By feeling safe we mean how safe you feel both inside and outside the home. This includes fear of abuse, falling or other physical harm.

I feel as safe as I want
Generally I feel adequately safe, but not as safe as I would like
I feel less than adequately safe
I don’t feel at all safe
If you have said you don’t feel safe, can you please tell us why?
-open response-

ASCS
Receipt; Feeling safe - services contribution 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Do care and support services help you in feeling safe?

Yes
No

ASCS
Receipt; Social contact - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Thinking about how much contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have adequate social contact with people
I have some social contact with people, but not enough
I have little social contact with people and feel socially isolated

ASCS
Receipt; Social contact - care recipient - services' assistance 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
Do care and support services help you in having social contact with people?

I do not need care and support services to help me have social contact with people
Yes
No

ASCS
Receipt; How spend time - care recipient 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

Which of the following statements best describes how you spend your time?
When you are thinking about how you spend your time, please include anything you value or enjoy including leisure activities, formal employment, voluntary or unpaid work and caring for others.

I’m able to spend my time as I want, doing things I value or enjoy
I’m able to do enough of the things I value or enjoy with my time
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

ASCS
Receipt; I do not need care and support services to help me in the way I spend my time Yes No 2024 18-120 18 120 Participant Carer No Current Questionnaire 1a: COMMUNITY - Your Social Care and Support Services No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
Do care and support services help you in the way you spend your time?

I do not need care and support services to help me in the way I spend my time
Yes
No

ASCS
Provision; Social care worker - impact of conditions 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Do any of your conditions or illnesses reduce your ability to carry out day-to-day activities?

1. Yes, a lot
2. Yes, a little
3. Not at all
4. I would prefer not to say [DO NOT READ OUT]_x000D_

ASCWS
Provision; Social care worker - providing unpaid care 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

The next few questions are asked to help us understand how other responsibilities outside work may impact on experience of adult social care work.
Excluding anything you do as part of your paid employment, do you look after, or give any help or support to, anyone because they have long-term physical or mental health conditions or illnesses, or problems related to old age?
Please think about care for family or friends.

1. No
2. Yes, 9 hours a week or less
3. Yes, 10 to 19 hours a week
4. Yes 20 to 34 hours a week
5. Yes, 35 to 49 hours a week
6. Yes, 50 or more hours a week
7. Don’t know
8. Prefer not to say

ASCWS
Provision; Social care worker - children 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Are there any children or young people under age 18 living in your household?

1. No children under 18 in household [EXCLUSIVE]
2. Yes child(ren) aged 0-4
3. Yes child(ren) aged 5-10
4. Yes child(ren) aged 11-14
5. Yes child(ren) aged 15-17
6. Prefer not to say [EXCLUSIVE]

ASCWS
Provision; Social care worker - income knowledge 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about the total income of your household as a whole from all sources before tax – including benefits, savings and so on, which of the following do you know best?

1. Your household’s weekly income
2. Your household’s monthly income
3. Your household’s annual income
998. Don’t know [DO NOT READ OUT]
999. Prefer not to say [DO NOT READ OUT]

ASCWS
Provision; Social care worker - income 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

What is the total income of your household as a whole (earned by all members of your household), per [year/month/week BASED ON R27_A=1, 2 OR 3; if R27_A IS 998 OR 999, USE MONTH] from all sources before tax – including benefits, savings and so on?
All the data you provide continues to be anonymous and will not be shared with anyone in a way that can identify you.
ONLINE: Please select one option only
TELEPHONE: DO NOT PROMPT. INTERVIEWER TO CODE BASED ON ANSWER PROVIDED. IF THEY DO
NOT WISH TO GIVE PRECISE ANSWER THEN READ OUT BANDS.

WEEKLY
1. Up to £49
2. £50 up to £99
3. £100 up to £199
4. £200 up to £299
5. £300 up to £399
6. £400 up to £499
7. £500 up to £599
8. £600 up to £699
9. £700 up to £799
10. £800 up to £899
11. £900 up to £999
12. £1000 up to £1,439
13. £1,440 up to £1,899
14. £1,900 up to £2,899
15. £2,900 or more

MONTHLY
16. Up to £216
17. £217 up to £432
18. £433 up to £866
19. £867 up to £1,299
20. £1,300 up to £1,732
21. £1,733 up to £2,166
22. £2,167 up to £2,599
23. £2,600 up to £3,032
24. £3,033 up to £3,466
25. £3,467 up to £3,899
26. £3,900 up to £4,332
27. £4,333 up to £6,249
28. £6,250 up to £8,299
29. £8,300 up to £12,499
30. £12,500 or more

ANNUAL
31. Up to £2,599
32. £2,600 up to £5,199
33. £5,200 up to £10,399
34. £10,400 up to £15,599
35. £15,600 up to £20,799
36. £20,800 up to £25,999
37. £26,000 up to £31,199
38. £31,200 up to £36,399
39. £36,400 up to £41,599
40. £41,600 up to £46,799
41. £46,800 up to £51,999
42. £52,000 up to £74,999
43. £75,000 up to £99,999
44. £100,000 up to £149,999
45. £150,000 or more

998. Don’t know [DO NOT READ OUT]
999. Prefer not to say [DO NOT READ OUT]_x000D_

ASCWS
Provision; Social care worker - country of education 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Where did you complete your highest level of education?
ONLINE ONLY: If you completed the same level of education in the United Kingdom and in another country, please select “In the United Kingdom”.

1. In the United Kingdom
2. In another country
999. Prefer not to say

ASCWS
Provision; Social care worker - level of education 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

What is your highest educational qualification completed in the United Kingdom?
This means any educational, professional, vocational or other work-related qualifications for which you received a certificate.

1. Degree level or above, SVQ Level 5
2. Other Higher Education below degree level, SVQ Level 4
3. A levels, Scottish Highers, NVQ level 3 and equivalents; includes AS level, Higher Grade, Advanced Higher,
CSYS, Scottish Baccalaureate, SVQ and GNVQ level 3, BTEC National, SCOTVEC National Diploma, SVQ
Level 3
4. GCSE/O level grade A*-C or 4-9, Scottish O Grade/Standard Grade/National 5/Intermediate 2, NVQ level 2
and equivalents; includes SVQ and GNVQ level 2, BTEC first or general diploma
5. Qualifications at level 1 and below; includes GCSE or O level below grade C or 4, CSE below grade 1, NVQ,
Scottish National 1-4/Intermediate 1, SVQ and GNVQ level 1, BTEC first or general certificate, SCOTVEC
National Certificate
6. Another type of qualification: includes other vocational or professional qualifications
7. No qualification
999. Prefer not to say

ASCWS
Provision; Social care worker - education level in other country 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

What is the highest level of education you completed in another country?
Please select the option that best matches the highest level of education you completed. _x000D_

1. University degree (completed a bachelor/master/PhD degree or equivalent)
2. Vocational qualification specific to a particular occupation or trade (below degree level)
3. Upper secondary that allows access to university
4. Lower secondary education (schooling approximately until the age of 15)
5. Primary education (schooling approximately until the age of 11)
6. No primary education completed
7. Never been in formal education
999. Prefer not to say

HIDDEN VARIABLE
m_all_education
Highest level of education (Inside/Outside UK)
IF (uk_education = 1 OR nonuk_education = 1) – Graduates (Degree/Master/PhD/above)
IF (uk_education = 2 OR nonuk_education = 2) – Other Higher Education below degree level
IF (uk_education = 3 OR nonuk_education = 3) – A-level or equivalent
IF (uk_education = 4-5 OR nonuk_education = 4) – GCSE/O-Level/CSE/NVQ12/equivalent
IF (uk_education = 6) – Another type of qualification (vocational/professional/foreign)
IF (uk_education = 7 OR nonuk_education = 5-6-7) – No formal qualifications

ASCWS
Provision; Social care worker - permission to be contacted 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

To help us understand more about how things in your workplace impact on your experiences, we would
like to link some information about your employer to your survey responses. This would be things like the number of staff and the turnover of staff at your workplace.
It will not be possible to identify you, or your employer or workplace, from any information that is linked.
The answers you have provided in this survey would still be anonymous.
If you agree and tell us the name and address of your employer we will use this to match information about your employer held by Skills for Care in the Adult Social Care Workforce Data Set (ASC-WDS) to your
survey answers. Ipsos would only share information you provide about where you work with Skills for Care for matching on
information they hold about your employer. No other answers you have given would be shared with Skills for Care so they would not know who you are.
Can Ipsos link the answers provided in this survey with information about your employer from the ASC WDS data set held by Skills for Care?

1. Yes
2. No _x000D_

ASCWS
Provision; Social care worker - name of workplace 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

To help us to link your survey responses please
ONLINE: type in the name of your workplace (e.g. care home name), the first line of the address or the
postcode of where you work to look up your workplace.
TELEPHONE:: tell me the name of your workplace (e.g. care home name), the first line of the address or the
postcode of where you work so I can look up your workplace

Workplace name
Workplace address
Workplace postcode

ASCWS
Provision; Social care worker - willingness to take part further research 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

You previously told us you are employed on a Health and Care Worker visa. The Department of Health and Social Care (DHSC) would like to understand how they can further improve the experience of working in the care sector for people holding this visa. Would you be willing to be re-contacted by DHSC or a third party organisation on their behalf to take part in further research about your experience as an international recruit to the social care workforce, within the next 12 months?

Would you be happy to be re-contacted in the following ways?

1. Yes I agree to be contacted to take part in further research
2. No I do not want to contacted

1. By email
2. By telephone
3. Neither of these [EXCLUSIVE CODE]

ASCWS
Provision; Social care worker - bullying/abuse/harassment frequency 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

In the last 12 months, how many times have you personally experienced or witnessed harassment, bullying or abuse while working in adult social care… Please select only one option.

A. From the people you care for or support
B. DO NOT INSERT IF Q.Job_role =4 (PA) OR IF Q Job_role_emp=6 (SELF-EMPLOYED) From managers or team leaders
C. DO NOT INSERT IF Q.Job_role =4 OR IF Q Job_role_emp=6 From other colleagues
D. From family members or friends of people you care for or support
E. From members of the public

1. Never
2. 1-2
3. 3-5
4. 6-10
5. More than 10
6. Don’t know [DO NOT READ OUT]
7. Prefer not to say [DO NOT READ OUT]

ASCWS
Provision; Social care worker - reporting abuse 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

The last time you experienced harassment, bullying or abuse at work did you or a colleague report it? _x000D_

1. Yes, I reported it
2. Yes, a colleague reported it
3. No [EXCLUSIVE]
4. Don’t know [EXCLUSIVE] [DO NOT READ OUT]
5. Prefer not to say [EXCLUSIVE] [DO NOT READ OUT]_x000D_

ASCWS
Provision; Social care worker - retention 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

The next few questions are about retention. As for all questions in this survey, we would like to remind you that your responses will NOT be shared with your employer, workplace or the Department of Health and Social Care (DHSC). No analysis will be conducted at employer or workplace level.
To what extent do you agree or disagree with these statements?

The following questions can be answered as follows:
1. Strongly agree
2. Agree
3. Neither agree nor disagree
4. Disagree
5. Strongly disagree

A. I often think about leaving this [TEXTFILL]
B. I will probably look for a job at a new [TEXTFILL] in the next 12 months
C. As soon as I can find another job, I will leave this [TEXTFILL]

ASCWS
Provision; Social care worker - destination upon leaving employment 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

If you are considering leaving your current job, what would be your most likely destination?

1. DO NOT ASK IF Q.Job_role_emp = 5 I would want to move to another job within this organisation.
2. I would want to move to a job [IF Q.Job_role_emp <> 5 INSERT with a different social care organisation/IF
Q.Job_role_emp = 5 INSERT with a different employer].
3. I would want to move to a job in the NHS or healthcare.
4. I would want to move to a job outside of health and social care.
5. I would retire or take a career break.
6. I am not considering leaving my current job.
7. Don’t know [DO NOT READ OUT]
8. Prefer not to say [DO NOT READ OUT]

ASCWS
Provision; Social care worker - reasons wishing to leave post 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

For which of the following reasons, if any, are you considering leaving your current job?

1. Lack of learning and development offer
2. Lack of career opportunities or progression
3. Income or salary is too low
4. Employment terms and conditions e.g. zero hours contract, lack of paid overtime, lack of sick pay, lack of
maternity pay
5. Impact on health and wellbeing e.g., stress, burnout
6. Working conditions (e.g., equipment for safe working, access to technology and internet, cleanliness)
7. Bullying and harassment
8. Poor relationships with colleagues and/or manager
9. Travel time/difficulties with travel to your workplace
10. Other, please specify
11. Lack of recognition for the adult social care sector
12. None of these [EXCLUSIVE]
13. Don’t know [EXCLUSIVE] [DO NOT READ OUT]
14. Prefer not to say [EXCLUSIVE] [DO NOT READ OUT]

ASCWS
Provision; Social care worker - reasons wishing to leave post 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

You said you are considering leaving your current job for the following reasons. Which one of them is most important in your decision to leave?

1. They are all equally important
2. Don’t know [DO NOT READ OUT]
3. Prefer not to say [DO NOT READ OUT]

ASCWS
Provision; Social care worker - age 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

We would now like to ask some questions about you to help us understand how experience of adult social care
work affects different groups. Your responses will be treated confidentially and will not be shared with your
employer or anyone at your workplace. The Department of Health and Social Care (DHSC) will not know who has
taken part in the survey – they will receive only anonymous results. It will not be possible to identify anyone from
the findings we will provide.

ONLINE: How old are you?
TELEPHONE: What was your age at your last birthday?

1. Under 18
2. 18 – 24
3. 25 – 34
4. 35 – 44
5. 45 – 54
6. 55 – 64
7. 65 or over
8. Prefer not to say

ASCWS
Provision; Social care worker - gender 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which of the following best describes your gender?

1. Man
2. Woman
3. Non-binary
4. My gender is not listed
5. I would prefer not to say [DO NOT READ OUT]

ASCWS
Provision; Social care worker - gender at birth 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

At birth, were you described as…

1. Male
2. Female
3. I would prefer not to say [DO NOT READ OUT]

ASCWS
Provision; Social care worker - sexual orientation 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which of the following best describes your sexual orientation?

1. Straight/Heterosexual
2. Gay or lesbian
3. Bisexual
4. Other sexual orientation
5. I would prefer not to say [DO NOT READ OUT]

ASCWS
Provision; Social care worker - partnership status 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

What is your legal marital or registered civil partnership status?

1. Single, that is, never married and never registered in a civil partnership
2. Married
3. In a registered civil partnership
4. Cohabiting with a partner but not married or in a civil partnership
5. Separated, but still legally married
6. Separated, but still legally in a civil partnership
7. Divorced
8. Formerly in a civil partnership which is now legally dissolved
9. Widowed
10. Surviving partner from a civil partnership
11. Prefer not to say

ASCWS
Provision; Social care worker - ethnicity 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

What is your ethnic group?

WHITE
1. English/ Welsh / Scottish / Northern Irish / British
2. Irish
3. Gypsy or Irish Traveller
4. Another white background
MIXED / MULTIPLE ETHNIC GROUP
5. White and Black Caribbean
6. White and Black African
7. White and Asian
8. Another Mixed / multiple ethnic background – PLEASE WRITE IN [SPECIFY]
ASIAN / ASIAN BRITISH
9. Indian
10. Pakistani
11. Bangladeshi
12. Chinese
13. Another Asian background – PLEASE WRITE IN [SPECIFY]
BLACK / AFRICAN / CARIBBEAN / BLACK BRITISH
14. African
15. Caribbean
16. Another Black / African / Caribbean background – PLEASE WRITE IN [SPECIFY]
OTHER ETHNIC GROUP
17. Arab
18. Another ethnic group – PLEASE WRITE IN [SPECIFY]
19. I would prefer not to say _x000D_

ASCWS
Provision; Social care worker - religion 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

What is your religion?

1. No religion
2. Christian (including Church of England, Catholic, Protestant and other Christian denominations)
3. Buddhist
4. Hindu
5. Jewish
6. Muslim
7. Sikh
8. Any other religion
9. I would prefer not to say

ASCWS
Provision; Social care worker - citizenship 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

The Department of Health and Social Care would like to understand the experience of people who have come from other countries originally and now work in adult social care. To do this we need to know which citizenship(s) you hold.
Which country or countries are you a citizen of?

1. I am a citizen of the United Kingdom
2. I am a citizen of one other country (not UK) [NOT WITH 3]
3. I am a citizen of two other countries (not UK) [NOT WITH 2]
4. Prefer not to say [EXCLUSIVE]

ASCWS
Provision; Social care worker - dual or other citizenship 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which other country apart from the UK are you a citizen of?

SELECT COUNTRIES FROM DROP DOWN MENU

ASCWS
Provision; Social care worker - dual or other citizenship 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which second country apart from the UK are you a citizen of?

SELECT COUNTRIES FROM DROP DOWN MENU

ASCWS
Provision; Social care worker - date arrived in UK 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

When did you most recently arrive in the UK to live and work here?

ENTER MONTH AND YEAR
1. Don’t know
2. Prefer not to say

ASCWS
Provision; Social care worker - visa status 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Are you working in social care on a Health and Care Worker visa?

1. Yes
2. No
3. Don’t know
4. Prefer not to say

ASCWS
Provision; Social care worker - visa status 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which passport is your visa attached to?

INSERT COUNTRIES SELECTED AT Int_Country_1 and Int_Country_2. Prefer not to say

ASCWS
Provision; Social care worker - health conditions 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Do you have any physical or mental health conditions, disabilities or illnesses lasting or expected to last for 12 months or more?

1. Yes
2. No
3. I would prefer not to say

ASCWS
Provision; Social care worker - worrying about work 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which of the following statements best describes how much you worry about work outside of working hours?
If you have multiple jobs, please focus only on your social care job(s). Think about how much you worry about the people you care for or support, and the tasks you need to do in your working hours.
Outside of working hours:

1. I hardly ever worry about work
2. I occasionally worry about work
3. I often worry about work
4. I constantly worry about work

ASCWS
Provision; Social care worker - wellbeing at work 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about looking after yourself at work, which of the following statements best describes how you feel?
By ‘looking after yourself at work’, we mean having comfort breaks and time to eat, drink and rest.

1. I am able to look after myself as well as I want
2. I am able to look after myself well enough
3. Sometimes I am not able to look after myself well enough
4. I am rarely able to look after myself well enough

ASCWS
Provision; Social care worker - safety at work 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which of the following statements best describes how safe you feel at work?
By ‘feeling safe at work’, we mean how safe you feel doing your job. This includes fear of physical harm (e.g., from lifting and handling, risk of infection, physical abuse) and psychological harm (e.g., verbal or emotional abuse).

1. I feel safe
2. Generally, I feel adequately safe
3. I feel less than adequately safe
4. I don’t feel at all safe

ASCWS
Provision; Social care worker - reasons for not feeling safe 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which, if any, of the following risks make you feel unsafe doing your job? Please only select those which make you feel unsafe in your role at the moment.

1. Physical harm from lifting, handling or movement involved in the job or the physical conditions at work
2. Physical abuse or violence from those I care for or support, or from their family members or friends
3. Physical abuse or violence from colleagues
4. Physical abuse or violence from the general public
5. Infection e.g. from COVID or other communicable diseases
6. Verbal or emotional abuse, bullying or harassment from those I care for or support, or from their family
members or friends
7. Verbal or emotional abuse, bullying or harassment from colleagues
8. Verbal or emotional abuse, bullying or harassment from the general public
9. Sexual abuse or sexual harassment
10. Harm to wellbeing from work pressure and stress
11. Risks associated with administering medication
12. Lack of supervision
13. I feel unsafe in other ways
14. None of these [EXCLUSIVE]
15. Don’t know [EXCLUSIVE] [DO NOT READ OUT]
16. Prefer not to say [EXCLUSIVE] [DO NOT READ OUT]

ASCWS
Provision; Social care worker - professional relationships 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about your professional relationships with colleagues or people you work with, which of the following statements best describes how you feel?
Depending on your role, you might regularly interact with family members and other health and social care professionals.
Overall, my professional relationships with the people I work with are:

1. As good as I want them to be
2. Good enough
3. Not as good as I would like
4. Not at all good

ASCWS
Provision; Social care worker - feeling supported 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about how supported you are in your role, which of the following statements best describes how you feel?
By ‘supported’ we mean the extent to which you feel respected and encouraged [IF Q.Job_role_emp <>6 by your [[IF Q.Job_role <>4 INSERT manager(s) /IF Q.Job_role = 4 INSERT: employer]].

1. I feel highly supported [IF Q.Job_role_emp <>6 by my [IF Q.Job_role <>4 INSERT manager(s) /IF Q.Job_role = 4 INSERT: employer]]
2. I feel adequately supported [IFQ.Job_role_emp <>6 by my [IF Q.Job_role <>4 INSERT manager(s) /IF Q.Job_role = 4 INSERT: employer]]
3. I do not feel as supported as I would like [IF Q.Job_role_emp <>6 by my [[IF Q.Job_role <>4 INSERT manager(s) /IF Q.Job_role = 4 INSERT: employer]]
4. I do not feel at all supported [IF Q.Job_role_emp <>6 by my [[IF Q.Job_role <>4 INSERT manager(s) /IF Q.Job_role = 4 INSERT: employer]]

ASCWS
Provision; Social care worker - skills and knowledge 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about the skills and knowledge you need to do your job well, which of the following statements best describes how you feel now?
Skills and knowledge might have been obtained through training, education, personal or life experience and shadowing other people.

1. I have the skills and knowledge I need
2. I have adequate skills and knowledge
3. I have some skills and knowledge but not enough
4. I do not have the skills and knowledge I need

ASCWS
Provision; Social care worker - career progression 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about the opportunities you have to develop and progress in social care, which of the following statements best describes how you feel?

1. I have as many opportunities as I would like
2. I have adequate opportunities
3. I have some opportunities but not enough
4. I have no opportunities

ASCWS
Provision; Social care worker - perception of work valued 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about how your role in social care is valued by other people, which of the following best describes how you feel?
Think about other people ‘overall’, including the public, people you know and views expressed in the media.

1. My role is highly valued by others
2. My role is adequately valued by others
3. My role is not as valued as I would like by others
4. My role is not at all valued by others

ASCWS
Provision; Social care worker - financial security 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about your financial security which of these statements best describes how you feel?
By ‘financial security’, we mean whether your household income meets your and your dependents’ needs. Please think about pay and other benefits (e.g. pension, sick pay).

1. I have as much financial security as I want
2. I have enough financial security
3. I do not have enough financial security
4. I do not have any financial security

ASCWS
Provision; Social care worker - pay satisfaction 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which of these, if any, apply to you?

1. Hourly rate of pay is too low
2. Insufficient or no pay for travel time between visits
3. Insufficient pay for sleep-in or night shifts
4. Number of hours worked is too low or uncertain
5. Uncertainty about job security and future income
6. Lack of sick pay
7. Lack of maternity or paternity pay
8. Lack of paid holiday
9. Employer does not contribute (enough) to pension
10. My financial responsibilities are too large
11. The cost of living is too high
12. My financial security is dependent on someone else’s income
13. None of these [EXCLUSIVE]
14. Don’t know [EXCLUSIVE] [DO NOT READ OUT]
15. Prefer not to say [EXCLUSIVE] [DO NOT READ OUT]_x000D_

ASCWS
Provision; Social care worker - life satisfaction 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

We would like to ask four questions about your feelings on aspects of your life overall. There are no right or wrong answers.
ONLINE: Give an answer on a scale of 0 to 10, where 0 is “not at all” and 10 is “completely”.
TELEPHONE: For each of these questions I’d like you to give an answer on a scale of 0 to 10, where 0 is “not at all” and 10 is “completely”.

ONLINE: Overall, how satisfied are you with your life nowadays?
Scale of 0 to 10, where 0 is “not at all” and 10 is “completely”.
TELEPHONE: On a scale of 0 to 10, overall, how satisfied are you with your life nowadays?

Scale 0-10

ASCWS
Provision; Social care worker - satisfying activities 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

ONLINE: Overall, to what extent do you feel that the things you do in your life are worthwhile?
Scale of 0 to 10, where 0 is “not at all” and 10 is “completely”.
TELEPHONE: On a scale of 0 to 10, overall, to what extent do you feel that the things you do in your life are worthwhile?

Scale 0-10

ASCWS
Provision; Social care worker - happiness 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

ONLINE: Overall, how happy did you feel yesterday?
– Scale of 0 to 10, where 0 is “not at all” and 10 is“completely”.
TELEPHONE: On a scale of 0 to 10, overall, how happy did you feel yesterday?

Scale 0-10

ASCWS
Provision; Social care worker - anxiety 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

ONLINE: Overall, how anxious did you feel yesterday?
– Scale of 0 to 10, where 0 is “not at all” and 10 is “completely”.
TELEPHONE: On a scale of 0 to 10, overall, how anxious did you feel yesterday?

Scale 0-10

ASCWS
Provision; Social care worker - annual appraisal/review 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

In the last 12 months, have you had an appraisal, annual review, or development review?
This is an annual meeting, usually with [TEXTFILL: Q.Job_role_emp =1-4, 7 your line manager or the person who employs you / Q.Job_role_emp =5 individual employer] to discuss your performance and career development. Please only select one option.

1. Yes
2. No
3. Can’t remember
11. Don’t know [DO NOT READ OUT]

ASCWS
Provision; Social care worker - usefulness annual review 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about your most recent appraisal, annual review development review, to what extent would you agree with the below statements?
TELEPHONE ONLY: do you strongly agree, agree, neither agree nor disagree, disagree or strongly disagree? Please select one answer for each statement.

A. It helped me to improve how I do my job
B. It helped me agree clear objectives for my work
C. It left me feeling that my work is valued by my [TEXTFILL: Q.Job_role_emp =1-4, 7 organisation/ Q.Job_role_emp =5 individual employer]
1. Strongly agree
2. Agree
3. Neither agree nor disagree
4. Disagree
5. Strongly disagree
6. Don’t know [DO NOT READ OUT]_x000D_

ASCWS
Provision; Social care worker - views of employing organisation 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

To what extent do these statements reflect your view of your [TEXTFILL: Q.Job_role_emp =1-4, 6 AND 7
organisation as a whole/ Q.Job_role_emp =5 individual employer/ Q.Job_role_emp =6 role?
TELEPHONE ONLY: do you strongly agree, agree, neither agree nor disagree, disagree or strongly
disagree? Please select one answer for each statement.

A. This [TEXTFILL: Q.Job_role_emp =1-4, 7 organisation/ Q.Job_role_emp =5 individual employer/ Q.Job_role_emp =6 role] offers me challenging work
B. There are opportunities for me to develop my career [TEXTFILL: Q.Job_role_emp =1-4, 7 in this organisation/ Q.Job_role_emp =5 with this individual employer/ Q.Job_role_emp =6 no text]
C. I have opportunities to improve my knowledge and skills
D. I feel supported to develop my potential
E. I am able to access the right learning and development opportunities when I need to

1. Strongly agree
2. Agree
3. Neither agree nor disagree
4. Disagree
5. Strongly disagree
6. Don’t know [DO NOT READ OUT]

ASCWS
Provision; Social care worker - bullying and harassment 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

The next few questions ask about your experiences of physical violence, harassment, abuse and bullying
at work. If your work involves travel or being out and about in public places please think about this aspect
of your work, as well as when you are in your main workplace.
In the last 12 months how many times have you personally experienced or witnessed physical violence while working in adult social care…

A. From the people you care for or support
B. DO NOT INSERT IF Q.Job_role =4 OR IF Q Job_role_emp=6 From managers or team leaders
C. DO NOT INSERT IF Q.Job_role =4 OR IF Q Job_role_emp=6 From other colleagues
D. From family members or friends of people you care for or support
E. From members of the public

1. Never
2. 1-2
3. 3-5
4. 6-10
5. More than 10
6. Don’t know [DO NOT READ OUT]
7. Prefer not to say [DO NOT READ OUT]_x000D_

ASCWS
Provision; Social care worker - reporting violence 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

The last time you experienced or witnessed physical violence while working, did you or a colleague report it? _x000D_

1. Yes, I reported it
2. Yes, a colleague reported it
3. No [EXCLUSIVE]
4. Don’t know [EXCLUSIVE] [DO NOT READ OUT]
5. Prefer not to say [EXCLUSIVE] [DO NOT READ OUT]

ASCWS
Provision; Social care worker - current role 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which of the following adult social care roles best describes the role you currently work in?
Please answer in terms of the role you spend most of your time doing.

1. Care worker or assistant care worker
2. Senior care worker
3. Support or outreach worker
4. Personal assistant
5. Social Worker
6. Occupational Therapist
7. Registered Nurse
8. Nursing Associate
9. Registered Manager (e.g. in a care home)
10. Deputy or other manager role, team leader or supervisor
11. Other adult social care role – please write in [SPECIFY]
12. Roles less involved in care e.g. receptionist, cook, cleaner, caretaker, administrative assistant, senior
manager [THANK AND CLOSE] / [THANK AND CLOSE]
13. I do not work in adult social care [THANK AND CLOSE] / [THANK AND CLOSE]

ASCWS
Provision; Social care worker - role 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Do you currently work in either of these adult
social care roles?

1. Registered Nurse [IF Q.Job_role=9]
2. Nursing Associate [IF Q.Job_role=9]
3. Registered Manager/ Assistant Registered Manager (e.g. in a care home) [IF Q.Job_role=7 or 8]
4. [IF Q.Job_role=7 or 8: No /IF Q.Job_role=9: None of these]
5. Don’t know

ASCWS
Provision; Social care worker - service works in 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Which of the following services do you currently work in? If you work in more than one service please select the one you work in most.

1. Care home services with nursing
2. Care home services without nursing
3. Homecare services (Domiciliary care)
4. Live-in care
5. Support and outreach services
6. Extra care housing services
7. Shared lives
8. Supported living services
9. Day care services
10. Hospice
11. Local authority adult social care services
12. Enablement or reablement
13. Short break or respite
14. I work across multiple services
15. Other adult social care service– please write in [SPECIFY]

ASCWS
Provision; Social care worker - employer 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Who are you employed by? _x000D_

1. Local authority or Council
2. Private care provider
3. Care provider (not for profit/ charity)
4. Staffing agency
5. Person cared for or supported (individual employer)
6. Self-employed / Independent
7. NHS
8. Other, please write in [SPECIFY]

ASCWS
Provision; Social care worker - agency details 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

You said you are employed by a staffing agency. Which type(s) of organisation are you currently working with through the agency?

1. Local Authority
2. Care provider
3. NHS
4. Person cared for or supported (individual employer)
5. Other, please write in [SPECIFY]

ASCWS
Provision; Social care worker - job role 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Does your job involve…?

1. Providing care and/or support directly to people with care and support needs
2. Managing other staff who provide direct care and support
3. Conducting assessments, care planning, advising on equipment or helping people access care and support
4. None of these [EXCLUSIVE CODE]
5. Don’t know [EXCLUSIVE CODE] [DO NOT READ OUT]_x000D_

ASCWS
Provision; Social care worker - length of employment 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

How long have you worked as a [INSERT ROLE]? Please include any time spent working for another employer in the same role.

1. Up to six months
2. Six months up to 12 months
3. One year up to five years
4. Five years up to ten years
5. More than ten years
6. Can’t remember

ASCWS
Provision; Social care worker - region on England 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

In which region of England do you work?
If you work in more than one, select the main region.

1. Eastern
2. East Midlands
3. Greater London
4. North East
5. North West
6. South East
7. South West
8. West Midlands
9. Yorkshire and Humber
10. None of these – THANK AND CLOSE _x000D_

ASCWS
Provision; Social care worker - age of clients 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Who do you provide care services for?

1. People who are working age e.g., 18-64 years old
2. People aged 65 or over
3. Don’t know [EXCLUSIVE CODE[ [DO NOT READ OUT]

ASCWS
Provision; Social care worker - types of impairments/disabilities cared for 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about people of working age, who do you provide care for in this service?

1. People with a learning disability and/or autism
2. People with a mental health condition
3. People with a physical disability
4. People with a sensory impairment
5. Other – please write in [SPECIFY]
6. None of these [EXCLUSIVE]

ASCWS
Provision; Social care worker - dementia diagnosed clients? 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about people aged 65 or over, who do you provide care for in this service?

1. Older people with dementia diagnosis
2. Older people without dementia diagnosis
3. Other – please write in [SPECIFY]
4. None of these [EXCLUSIVE]

ASCWS
Provision; Social care worker - hours per week 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

How many hours a week are you contracted to work? Please do not include any overtime you may do.

1. 0 hours
2. 1-10 hours
3. 11-15 hours
4. 16-20 hours
5. 21-30 hours
6. 31-35
7. 36 or more hours
8. Don’t know [EXCLUSIVE]

ASCWS
Provision; Social care worker - standard hours 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

What are your usual standard hours per week? If your hours vary from one week to another please think of a typical week. Please do not include any overtime or extra hours you may do.

1. 0 hours
2. 1-10 hours
3. 11-15 hours
4. 16-20 hours
5. 21-30 hours
6. 31-35
7. 36 or more hours
8. I work on an ad hoc basis without usual hours
9. Don’t know
10. Prefer not to say

ASCWS
Provision; Social care worker - overtime hours 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

On average, how many additional PAID hours do you work per week [IF Q.Job_role_emp <>6 ADD for your employer] over and above your contracted or usual hours?

1. 0 hours
2. 1-10 hours
3. 11-15 hours
4. 16-20 hours
5. 21-30 hours
6. 31-35
7. 36 or more hours
8. I work on an ad hoc basis without usual hours
9. Don’t know
10. Prefer not to say

ASCWS
Provision; Social care worker - unpaid overtime 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

On average, how many additional UNPAID hours do you work per week [IF Q.Job_role_emp <>6 ADD for your employer] over and above your contracted or usual hours?
Please include unpaid overtime and additional unpaid hours on-call.

1. 0 hours
2. 1-10 hours
3. 11-15 hours
4. 16-20 hours
5. 21-30 hours
6. 31-35
7. 36 or more hours
8. I work on an ad hoc basis without usual hours
9. Don’t know [EXCLUSIVE]
10. Prefer not to say [EXCLUSIVE]

ASCWS
Provision; Social care worker - working conditions 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

You may find that the next set of questions cover similar topics as those you have just answered. We would really appreciate if you could answer them despite this as it will help us decide which questions are most suitable for future waves of this survey.
To what extent do you agree with the following? do you strongly agree, agree, neither agree nor disagree, disagree or strongly disagree? Please select one answer for each statement.

For each of the below questions (A-X) participants must choose from the following options:
1. Strongly agree
2. Agree
3. Neither agree nor disagree
4. Disagree
5. Strongly disagree

A. I have a clear set of goals and aims to enable me to do my job
B. I feel able to voice opinions and influence changes in my area of work
C. I have the opportunity to use my abilities at work
D. I feel well at the moment
E. IF Q.Job_role_emp =6 (self-employed) INSERT N1: My client(s) provide(s) adequate facilities and flexibility for me to fit work in around my family life
IF Q.Job_role_emp <>6 INSERT N2: My employer provides adequate facilities and flexibility for me to fit work in around my family life
F. My current working hours / patterns suit my personal circumstances
G. I often feel under pressure at work
H. When I have done a good job it is acknowledged [IF Q.Job_role_emp <>6 by my [IF Q.Job_role <>4 INSERT: line manager / IF Q.Job_role=4 (PA) INSERT employer]]
I. Recently, I have been feeling unhappy and depressed
J. I am satisfied with my life
K. I am encouraged to develop new skills
L. I am involved in decisions that affect me in my own area of work
M. IF Q.Job_role_emp =6 (self-employed) INSERT N1: My client(s) provide(s) me with what I need to do my job effectively
IF Q.Job_role_emp <>6 INSERT N2: My employer provides me with what I need to do my job effectively
N. IF Q.Job_role_emp =6 (self-employed) INSERT N1: My client(s) actively promote(s) flexible working hours / patterns. IF Q.Job_role_emp <>6 INSERT N2: My [IF Q.Job_role <>4 INSERT line manager / IF Q.Job_role=4 (PA) INSERT employer] actively promotes flexible working hours / patterns.
O. In most ways my life is close to ideal
P. I work in a safe environment
Q. Generally things work out well for me
R. I am satisfied with the career opportunities available for me here
S. I often feel excessive levels of stress at work
T. I am satisfied with the training I receive in order to perform my present job
U. Recently, I have been feeling reasonably happy all things considered
V. The working conditions are satisfactory
W. I am involved in decisions that affect members of the public in my own area of work
X. I am satisfied with the overall quality of my working life

ASCWS
Provision; Social care worker - making a difference 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about your current role and the difference you are able to make to people’s lives, which of the following statements best describes how you feel?
By making a difference, we mean how far you are able to support people to lead the lives they want.

1. I am able to make as much of a difference as I’d like.
2. I am able to make some difference.
3. I am able to make some difference but not enough.
4. I am not able to make any difference.

ASCWS
Provision; Social care worker - relationships with people cared for 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about your relationships with people who have care and/or support needs, which of the following statements best describes how you feel?
Please think about the person/people you have contact with and the quality of the relationships.
Overall, my relationships with people who have care and support needs are:

1. As good as I want them to be
2. Good enough
3. Not as good as I would like
4. Not at all good

ASCWS
Provision; Social care worker - freedom and independence 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Think about how much freedom and independence you have to make decisions and carry out tasks as part of your day-to-day work. Which of the following statements best describes how you feel?
Thinking about making decisions and carrying out tasks in my everyday work, I have:

1. As much freedom and independence as I want
2. Adequate freedom and independence
3. Some freedom and independence, but not enough
4. No freedom and independence

ASCWS
Provision; Social care worker - time to do job well 2023 18-120 18 120 Care worker No Current Adult Social Care Workforce Survey - Questions 2023 to 2024 No

Thinking about the time you need to do your job well, which of the following statements best describes how you feel?
Please think about all the tasks you are required to do within your role and your ability to do them well within paid hours. Depending on your role, this might include direct care and support, paperwork, supervision and management.

1. I have the time I need
2. I have adequate time
3. I do not have enough time
4. I do not have time to do my job well and it is having a negative effect on me.

ASCWS
Provision; Source of admission 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Source of Admission Code

Usual place of residence
Temporary place of residence when usually resident elsewhere
Penal establishment
NHS other hospital provider – high security psychiatric accommodation in an NHS hospital
NHS other hospital provider – ward for general patients / A&E
NHS other hospital provider – ward for maternity patients or neonates
NHS other hospital provider – Ward for patients who are mentally ill or have learning disabilities
Care home with nursing
Care home without nursing
Local Authority foster care
Independent sector healthcare provider run hospital
Hospice
Not yet known

AT
Need; Power of attorney etc. 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Does the patient have someone who supports them to manage their affairs?

Appointee (for DWP benefits)
Someone with parental responsibility (for a child)
Local authority (for a Looked After Child (LAC) at point of admission)
Attorney under the Mental Capacity Act
Attorney under last or enduring power of attorney
Deputy appointed by the Court of Protection
No
Don’t Know

AT
Need; Learning disability and/or autism 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Which of the following categories best describes the patient?

Learning disability
Learning disability and autism
Autism

AT
Need; Diagnoses suggesting social care need - admission 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Diagnoses on admission

Autism
Learning Disability
Eating Disorder
Personality Disorder
Physical illness
Mental Disorder
Attention deficit hyperactivity disorder (ADHD)”
Dementia
Other
Not Known
None

AT
Need; Diagnoses suggesting social care need - since admission 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Additional diagnoses since admission

Autism
Learning Disability
Eating Disorder
Personality Disorder
Physical illness
Mental Disorder
Attention deficit hyperactivity disorder (ADHD)
Dementia
Other
Not Different
Not Known

AT
Need; Autism diagnosis date 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Date the patient was diagnosed as autistic (mandatory if post-admission)

DD-MM-CCYY

AT
Need; Learning disability diagnosis date 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Date the patient was diagnosed with a learning disability (mandatory if post-admission)

DD-MM-CCYY

AT
Receipt; Use of social care advocates 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Does the person make use of any other advocates?

Non-statutory / citizen advocate: family member
Non-statutory / citizen advocate: Social Care Advocate
Non-statutory / citizen advocate: friend, independent person or other

AT
Receipt; Use of acute services for respite care 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Was the patient admitted for respite only?

Yes
No

AT
Receipt; Use of Integrated Care Board (ICB) commissioned services 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Point 12 .Discharge

Confirmed that the patient has discharged to Community
Confirm that the patient has Transferred between Integrated Care Board (ICB) commissioned services, or Stepped down from a secure setting to ICB commissioned services
Confirm that the patient has Transferred between secure services, or /Stepped up to secure services

AT
Receipt; Discharge destination including social care services 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Part 1:
Where is the patient’s planned transfer to?
Part 2:
Full postcode of the proposed community setting

Part 1:
Independent Living
Supported Housing
Family home
Residential Care
Residential School or College
Acute hospitals for physical health care
Prison
No transfer planned
Other
Adult Mental Health/Learning Disability Bed
Acute adult mental health care
Acute older adult mental health care (organic and functional)
Adult Psychiatric Intensive Care Unit (acute mental health care)
Adult Eating Disorders
Mother and baby
Acute Mental Health Unit for Adults with a Learning Disability and/or Autism
Adult Low secure
Adult Medium secure
Adult High secure
Adult Neuro-psychiatry / Acquired Brain Injury
Adult Personality disorder
Adult mental health services for the Deaf
Adult Mental Health Rehabilitation (Mainstream Service)
Adult Mental Health Rehabilitation for Adults with a Learning Disability and/or Autism (Specialist Service)
Children and Young people Mental Health/Learning Disability Bed
General Child and young person – Child (including High Dependency)
General Child and young person – young person (including High Dependency)
Eating Disorders Child and young person
Child and Young Person Low Secure Mental Illness
Child and Young Person Medium Secure Mental Illness
Child Mental Health Admitted Patient Services for the Deaf
Child and Young Person Low Secure Learning Disabilities
Child and Young Person Medium Secure Learning Disabilities
Severe Obsessive Compulsive Disorder and Body Dysmorphic Disorder – Young person
Child and Young Person Psychiatric Intensive Care Unit
Child and Young Person Learning Disabilities
Child and Young Person Autism

Part 2:
Enter postcode

AT
Receipt; Local authority awareness of discharge 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Is the originating Local Authority aware of the planned transfer / discharge of this patient to the area?

Yes
No
Don’t know

AT
Receipt; Local authority awareness of discharge 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Where the patient is being placed out of the originating Local Authority, is the receiving Local Authority aware of the planned transfer / discharge of this patient to their area?

Yes
No
Don’t know

AT
Receipt; Integrated care system awareness of discharge 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Is the relevant ICS aware of the planned transfer / discharge of this patient to the area?

Yes
No
Don’t know

AT
Need; Discharge delays - including social care related reasons 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

The primary reason that a patient is not able to be discharged or transferred despite being clinically ready for discharge or suitable for transfer.

Awaiting care coordinator allocation
Awaiting allocation of community psychiatrist
Awaiting allocation of social worker
Lack of agreed health care funding
Lack of agreed social care funding
Awaiting further non-acute (including community and mental health) NHS care (including intermediate care, rehabilitation services, step down service etc.)
Awaiting availability of placement in prison or Immigration Removal Centre
Awaiting availability of placement in care home without nursing
Awaiting availability of placement in care home with nursing
Awaiting commencement of care package in own home
Awaiting provision of community equipment and/or adaptations in own home
Patient or Family choice (any reason)
Disputes about responsible commissioner (including where this relates to funding issues)
Disputes about proposed pathway between clinical teams and/or care panels
Awaiting availability of private rented accommodation
Awaiting availability of social rented housing via council housing waiting list
Lack of suitable housing option – awaiting discharge to an identified supported living vacancy.
Lack of suitable housing option – awaiting discharge to a supported living vacancy, not yet identified.
Lack of suitable housing option – awaiting adaptation of an existing independent property (already purchased or rented; not part of an existing supported living scheme).
Lack of suitable housing option – awaiting sourcing of a suitable independent property through either: purchase / new build / identification of suitable general needs rental property’.
Awaiting availability of residential children’s home
Awaiting availability of secure children’s home (welfare or non-welfare)
Awaiting availability of placement in Youth Offender Institution
Child or young person awaiting family or foster placement
Awaiting Ministry of Justice agreement/permission of proposed placement
Awaiting outcome of legal requirements (mental capacity/mental health legislation)
Awaiting Court of Protection proceedings
Awaiting Deprivation of Liberty Safeguards (DOLS) Application
Delay due to consideration of specific court judgements
Awaiting residential special school or college placement or availability
Lack of local education support
Public safety concern unrelated to clinical treatment need (care team)
Public safety concern unrelated to clinical treatment need (MoJ)
Highly bespoke housing and/or care arrangements not available in the community
No lawful support available in the community (not including social care, see code 34)
Lack of social care support including social care funded placement
Delays to NHS-led assessments
Hospital staff shortages
Delays to assessments from external partners
Lack of health care service provision
No reason and/or other reason given

AT
Need; Discharge delays - including social care related reasons 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

The secondary reason that a patient is not able to be discharged or transferred despite being clinically ready for discharge or suitable for transfer.

Awaiting care coordinator allocation
Awaiting allocation of community psychiatrist
Awaiting allocation of social worker
Lack of agreed health care funding
Lack of agreed social care funding
Awaiting further non-acute (including community and mental health) NHS care (including intermediate care, rehabilitation services, step down service etc.)
Awaiting availability of placement in prison or Immigration Removal Centre
Awaiting availability of placement in care home without nursing
Awaiting availability of placement in care home with nursing
Awaiting commencement of care package in own home
Awaiting provision of community equipment and/or adaptations in own home
Patient or Family choice (any reason)
Disputes about responsible commissioner (including where this relates to funding issues)
Disputes about proposed pathway between clinical teams and/or care panels
Awaiting availability of private rented accommodation
Awaiting availability of social rented housing via council housing waiting list
Lack of suitable housing option – awaiting discharge to an identified supported living vacancy.
Lack of suitable housing option – awaiting discharge to a supported living vacancy, not yet identified.
Lack of suitable housing option – awaiting adaptation of an existing independent property (already purchased or rented; not part of an existing supported living scheme).
Lack of suitable housing option – awaiting sourcing of a suitable independent property through either: purchase / new build / identification of suitable general needs rental property’.
Awaiting availability of residential children’s home
Awaiting availability of secure children’s home (welfare or non-welfare)
Awaiting availability of placement in Youth Offender Institution
Child or young person awaiting family or foster placement
Awaiting Ministry of Justice agreement/permission of proposed placement
Awaiting outcome of legal requirements (mental capacity/mental health legislation)
Awaiting Court of Protection proceedings
Awaiting Deprivation of Liberty Safeguards (DOLS) Application
Delay due to consideration of specific court judgements
Awaiting residential special school or college placement or availability
Lack of local education support
Public safety concern unrelated to clinical treatment need (care team)
Public safety concern unrelated to clinical treatment need (MoJ)
Highly bespoke housing and/or care arrangements not available in the community
No lawful support available in the community (not including social care, see code 34)
Lack of social care support including social care funded placement
Delays to NHS-led assessments
Hospital staff shortages
Delays to assessments from external partners
Lack of health care service provision
No reason and/or other reason given

AT
Need; Discharge delays - including social care related reasons 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Other reason that a patient is not able to be discharged or transferred despite being clinically ready for discharge or suitable for transfer.

Awaiting care coordinator allocation
Awaiting allocation of community psychiatrist
Awaiting allocation of social worker
Lack of agreed health care funding
Lack of agreed social care funding
Awaiting further non-acute (including community and mental health) NHS care (including intermediate care, rehabilitation services, step down service etc.)
Awaiting availability of placement in prison or Immigration Removal Centre
Awaiting availability of placement in care home without nursing
Awaiting availability of placement in care home with nursing
Awaiting commencement of care package in own home
Awaiting provision of community equipment and/or adaptations in own home
Patient or Family choice (any reason)
Disputes about responsible commissioner (including where this relates to funding issues)
Disputes about proposed pathway between clinical teams and/or care panels
Awaiting availability of private rented accommodation
Awaiting availability of social rented housing via council housing waiting list
Lack of suitable housing option – awaiting discharge to an identified supported living vacancy.
Lack of suitable housing option – awaiting discharge to a supported living vacancy, not yet identified.
Lack of suitable housing option – awaiting adaptation of an existing independent property (already purchased or rented; not part of an existing supported living scheme).
Lack of suitable housing option – awaiting sourcing of a suitable independent property through either: purchase / new build / identification of suitable general needs rental property’.
Awaiting availability of residential children’s home
Awaiting availability of secure children’s home (welfare or non-welfare)
Awaiting availability of placement in Youth Offender Institution
Child or young person awaiting family or foster placement
Awaiting Ministry of Justice agreement/permission of proposed placement
Awaiting outcome of legal requirements (mental capacity/mental health legislation)
Awaiting Court of Protection proceedings
Awaiting Deprivation of Liberty Safeguards (DOLS) Application
Delay due to consideration of specific court judgements
Awaiting residential special school or college placement or availability
Lack of local education support
Public safety concern unrelated to clinical treatment need (care team)
Public safety concern unrelated to clinical treatment need (MoJ)
Highly bespoke housing and/or care arrangements not available in the community
No lawful support available in the community (not including social care, see code 34)
Lack of social care support including social care funded placement
Delays to NHS-led assessments
Hospital staff shortages
Delays to assessments from external partners
Lack of health care service provision
No reason and/or other reason given

AT
Need; Reason record close including social care discharge 2023 0-120 0 120 Data manager No Current Data specification - August 2023 onwards No

Record Closed: Discharge destination/Reason for Record Closure

Patient discharged to Independent Living
Patient discharged to Supported Housing
Patient discharged to family home
Patient discharged to care home without nursing
Patient discharged to care home with nursing
Patient discharged to Residential School or College
Patient transferred to acute hospital for physical health care
Patient transferred to other mental health or Learning Disability bed (any transfer with a change of ward type, security, site or provider)
Patient transferred to prison
Patient discharged to local authority foster care
Patient discharged to hospice
Patient discharged to temporary place of residence when usually resident elsewhere (includes hotel)
Patient no longer in scope of transforming care: diagnosis for Learning Disability removed
Patient no longer in scope of transforming care: diagnosis for autism removed
Patient no longer in scope of transforming care: other, e.g. hospital reclassified as no longer a hospital
Patient died
Other

AT
Need; ADLs 2022 12-120 12 120 Participant No Current General Public Breathes Follow-up survey 1.0_ 24.02.22 No

Under each heading, please tick the ONE box that best describes your health TODAY.

MOBILITY
I have no problems in walking about
I have slight problems in walking about
I have moderate problems in walking about
I have severe problems in walking about
I am unable to walk about

SELF-CARE
I have no problems washing or dressing myself
I have slight problems washing or dressing myself
I have moderate problems washing or dressing myself
I have severe problems washing or dressing myself
I am unable to wash or dress myself

USUAL ACTIVITIES (e.g. work, study, housework, family or leisure
activities)
I have no problems doing my usual activities
I have slight problems doing my usual activities
I have moderate problems doing my usual activities
I have severe problems doing my usual activities
I am unable to do my usual activities

General health

BiB
Provision; Mobility problem - referral/care event 2024 0-100 0 100 Data manager No Last month Monthly data collection template March 2025 No

For each English local authority the number of referrals and/or care events (unique care contacts) is recorded for Mobility Problems.

Data is given in age bands of 5 years from 0-100.
Data is given by gender male/female.
Data is given by received date.

Number of events

CSS
Provision; End of life support - referral/care event 2024 0-100 0 100 Data manager No Last month Monthly data collection template March 2025 No

For each English local authority the number of referrals and/or care events (unique care contacts) is recorded for End of Life Support

Data is given in age bands of 5 years from 0-100.
Data is given by gender male/female.
Data is given by received date.

Number of events

CSS
Provision; Reablement - referral/care event 2024 0-100 0 100 Data manager No Last month Monthly data collection template March 2025 No

For each English local authority the number of referrals and/or care events (unique care contacts) is recorded for Reablement Intermediate Care Service

Data is given in age bands of 5 years from 0-100.
Data is given by gender male/female.
Data is given by received date.

Number of events

CSS
Provision; Home-based intermediate care - referral/care event 2024 0-100 0 100 Data manager No Last month Monthly data collection template March 2025 No

For each English local authority the number of referrals and/or care events (unique care contacts) is recorded for Home-based Intermediate Care Service.

Data is given in age bands of 5 years from 0-100.
Data is given by gender male/female.
Data is given by received date.

Number of events

CSS
Provision; Community bed-based intermediate care - referral/care event 2024 0-100 0 100 Data manager No Last month Monthly data collection template March 2025 No

For each English local authority the number of referrals and/or care events (unique care contacts) is recorded for Community Bed-based Intermediate Care Service.

Data is given in age bands of 5 years from 0-100.
Data is given by gender male/female.
Data is given by received date.

Number of events

CSS
Provision; Source of referral including by carer 2024 0-100 0 100 Data manager No Last month Monthly data collection template March 2025 No

For each council the source of referral is recorded which includes:

General Medical Practitioner Practice
Self referral
Carer/Relative
Accident and Emergency Department (including Minor Injuries Units and Walk In Centres)
Acute Hospital Inpatient/Outpatient Department
Community Health Service (same or other Health Care Provider)
Educational Establishment
Local Authority Social Services
Hospice
Care Home
Police
Telephone or Electronic Access Service
Independent Sector
Ambulance Service
Mental Health Service
Source of referral not Known
Missing Value / Value Outside Parameters

CSS
Provision; Status of Deferred Payment Agreement (DPA) 2023 18-64 18 64 Data manager No Yearly Ongoing yearly - update with 2023 onwards data collection file No

DPASTATUS
*Recorded for every local authority

New
Ended
Outstanding
Outstanding – Of which Loan Style

DPAE
Provision; Recovery attempt of Deferred Payment Agreement (DPA) 2023 18-64 18 64 Data manager No Yearly Ongoing yearly - update with 2023 onwards data collection file No

RECOVERYATTEMPT
*Recorded for every local authority

No recovery attempted
Recovery attempted

DPAE
Provision; Recovery amount of Deferred Payment Agreement (DPA) 2023 18-64 18 64 Data manager No Yearly Ongoing yearly - update with 2023 onwards data collection file No

RECOVERYAMOUNTTYPE
*Recorded for every local authority

Partial
None
Full

DPAE
Provision; Debt type of Deferred Payment Agreement (DPA) 2023 18-64 18 64 Data manager No Yearly Ongoing yearly - update with 2023 onwards data collection file No

TABLETYPE
*Recorded for every local authority

Total
Written-off

DPAE
Provision; Eligibility of Deferred Payment Agreement (DPA) 2023 18-64 18 64 Data manager No Yearly Ongoing yearly - update with 2023 onwards data collection file No

ELIGIBILITY
*Recorded for every local authority

Client did not meet statutory eligibility criteria i.e. discretionary
Client met statutory eligibility criteria i.e. mandatory

DPAE
Provision; Status of Deferred Payment Agreement (DPA) 2023 65-120 65 120 Data manager No Yearly Ongoing yearly - update with 2023 onwards data collection file No

DPASTATUS
*Recorded for every local authority

New
Ended
Outstanding
Outstanding – Of which Loan Style

DPAE
Provision; Recovery attempt of Deferred Payment Agreement (DPA) 2023 65-120 65 120 Data manager No Yearly Ongoing yearly - update with 2023 onwards data collection file No

RECOVERYATTEMPT
*Recorded for every local authority

No recovery attempted
Recovery attempted

DPAE
Provision; Recovery amount of Deferred Payment Agreement (DPA) 2023 65-120 65 120 Data manager No Yearly Ongoing yearly - update with 2023 onwards data collection file No

RECOVERYAMOUNTTYPE
*Recorded for every local authority

Partial
None
Full

DPAE
Provision; Debt type of Deferred Payment Agreement (DPA) 2023 65-120 65 120 Data manager No Yearly Ongoing yearly - update with 2023 onwards data collection file No

TABLETYPE
*Recorded for every local authority

Total
Written-off

DPAE
Provision; Eligibility of Deferred Payment Agreement (DPA) 2023 65-120 65 120 Data manager No Yearly Ongoing yearly - update with 2023 onwards data collection file No

ELIGIBILITY
*Recorded for every local authority

Client did not meet statutory eligibility criteria i.e. discretionary
Client met statutory eligibility criteria i.e. mandatory

DPAE
Provision; Number of hours spent caring 65+ 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How many hours did you spend helping the [^person/people aged 65 or over] in the last week?_x000D_

No help in the last week
Less than one hour
1-4 hours
5-9 hours
10-19 hours
20-34 hours
35-49 hours
50-99 hours
100 hours or more

ELSA
Provision; Support from others while caring 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

If [^you/name] wanted a break for a few hours (during the time you would usually look after the [^person aged 0-15 people aged 0-15 person aged 16-64 people aged 16-64 person aged 65 or over people aged 65 or over] would someone else have to look after him/her?

Yes, someone else needed
No

ELSA
Provision; Support from others while caring 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Is there anyone whom you could rely on to look after him/her either at home or elsewhere?_x000D_

Yes
No

ELSA
Provision; Use of carer support services 2023 50-120 50 120 Participant Interviewer No Past year Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

In the last year have you made use of any of the following in order to give you a break?

A sitting service to allow you to go out for a couple of hours
A befriending service – where a volunteer takes the person you care for out for the day
Day-care at a social day centre or hospital
In-home respite where a care worker comes to the home for a few hours
Overnight respite where the person you care for stays elsewhere
Overnight respite where a care worker comes and stays in the home
None of these_x000D_

ELSA
Provision; Use of daytime respite 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How often do you use any of these services that involves daytime respite…

at least once a week,
once or twice a month,
6-11 times a year,
1-5 times a year,
5 or less than once a year?

ELSA
Provision; Satisfaction with caring 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

Strongly agree
Agree
Disagree
Strongly disagree_x000D_

ELSA
Provision; Appreciation from others for caring 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others. (Would you say that you strongly agree, agree, disagree, or strongly disagree?)

Strongly agree
Agree
Disagree
Strongly disagree

ELSA
Receipt; Amount of disability living allowance and other benefits 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

INTERVIEWER: Enter the amount. Round to the nearest pound.[^BLANK / If don’t know amount because received with other benefits, enter total amount received here. Enter 9997 if amount already counted elsewhere.]_x000D_

Range: 0..9997

ELSA
Receipt; Participant estimated chance of moving into nursing home 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

There is a lot of government interest currently in the issue of financing social care and nursing homes.
To help us understand this issue better it is important to understand whether people
are expecting to pay for any future long-term care. We would like to ask you some questions about your expectations regarding future long-term care.
What are the chances that you will ever move to a nursing home?
INTERVIEWER: NURSING HOMES ARE INSTITUTIONS PRIMARILY FOR PEOPLE WHO NEED CONSTANT NURSE SUPERVISION OR ARE UNABLE TO LIVE
INDEPENDENTLY. NURSING SUPERVISION MUST BE PROVIDED ON A CONTINUOUS BASIS FOR AN INSTITUTION TO QUALIFY AS A NURSING HOME. PROBE FOR ANSWER, ASK RESPONDENT TO IGNORE WHETHER THEY
ACTUALLY WANT TO OR ARE PLANNING TO MOVE TO A NURSING HOME.

Range: 0..100

ELSA
Receipt; Participant estimated chance of needing long term care at home 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What are the chances that you will ever need long term care at home which is not provided by family or friends?
INTERVIEWER: LONG TERM CARE AT HOME INCLUDES CARE WITH PERSONAL OR DOMESTIC TASKS PROVIDED IN SOMEONE’S OWN HOME OR CARE PROVIDED AT A DAY CENTRE WHILE THEY ARE LIVING IN THEIR OWN HOME. PROBE FOR ANSWER, ASK RESPONDENT TO IGNORE WHETHER THEY ACTUALLY WANT TO OR ARE PLANNING TO RECEIVE LONG TERM CARE AT HOME._x000D_

Range: 0..100_x000D_

ELSA
Receipt; Participant estimated chance of needing and type of care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

And what are the chances that you will ever have to pay for long term care, either in a nursing home or care received at home?
INTERVIEWER: PROBE FOR ANSWER, ASK RESPONDENT TO IGNORE WHETHER THEY ACTUALLY WANT TO OR ARE PLANNING TO PAY FOR LONG TERM CARE

Range: 0..100

ELSA
Receipt; Participant estimated 5 yr chance of moving into nursing home 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What are the chances that you will move to a nursing home in the next five years?
INTERVIEWER: NURSING HOMES ARE INSTITUTIONS PRIMARILY FOR PEOPLE WHO NEED CONSTANT NURSE SUPERVISION OR ARE UNABLE TO LIVE INDEPENDENTLY. NURSING SUPERVISION MUST BE PROVIDED ON A CONTINUOUS BASIS FOR AN INSTITUTION TO QUALIFY AS A NURSING HOME.
Probe for answer, ask respondent to ignore whether they actually want to or are planning to move to a nursing home.

Range: 0..100

ELSA
Receipt; 5 yr chances needing long term care not provided by family/friends 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What are the chances that you will need long term care at home which is not provided by family or friends in the next five years?
INTERVIEWER: LONG TERM CARE AT HOME INCLUDES CARE WITH PERSONAL OR DOMESTIC TASKS PROVIDED IN SOMEONE’S OWN HOME OR CARE PROVIDED AT A DAY CENTRE WHILE THEY ARE LIVING IN THEIR OWN HOME. PROBE FOR ANSWER, ASK RESPONDENT TO IGNORE WHETHER THEY ACTUALLY WANT TO OR ARE PLANNING TO RECEIVE LONG TERM CARE AT HOME.

Range: 0..100

ELSA
Receipt; 5 yr chances paying for long term care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What are the chances that you will have to pay for long term care, either in a nursing home or care received at home, in the next 5 years?
PROBE FOR ANSWER, ASK RESPONDENT TO IGNORE WHETHER THEY ACTUALLY WANT TO OR ARE PLANNING TO PAY FOR LONG TERM CARE.

Range: 0..100

ELSA
Receipt; Thinking about future social care needs 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

I’d now like you to think about any social care needs you yourself may have in the future. Have you thought about how to pay for your care and support needs?
INTERVIEWER: IF ASKED: You don’t have to have done anything about it yet, we’re interested in whether you’ve thought about it or not.

I’ve thought about it in great detail
I’ve thought about it a little
I know I should have thought about it but haven’t done so yet
I haven’t thought about this at all yet

ELSA
Receipt; Actions to plan for care needs 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Have you done any of the things on this card to plan for your care needs?
INTERVIEWER: CODE ALL THAT APPLY

Taken out insurance, (e.g. to cover illness or inability to work)
Consulted a financial advisor
Started saving with the intention that it could be used for care
Bought property with the intention of using the money for care
Any other financial planning related to planning for care costs
None of these

ELSA
Receipt; How would future care be financed 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

If you needed care and support which could not be provided by family or friends, how would your care be paid for. This could be care in your own home or in a residential or nursing home?
CODE ALL THAT APPLY

Local authority (social services)
NHS
Charity/religious organisation (e.g. Age UK)
Insurance policy (e.g. to cover illness or inability to work)
Private health insurance/health plan
Benefits (e.g. disability living allowance, personal independence payments)
Your own income from work, pensions or interest on investments
Your own savings
Sale of your assets (e.g. your home)
Relatives or friends
Other
SPONTANEOUS: None of these

ELSA
Receipt; How would future care be financed 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Thinking of your current and future care and support needs, how will your care be paid for. This could be care in your own home or in a residential or nursing home?INTERVIEWER: IF ASKED: Please think about care which is not provided by family and friends. CODE ALL THAT APPLY

Local authority (social services)
NHS
Charity/religious organisation (e.g. Age UK)
Insurance policy (e.g. to cover illness or inability to work)
Private health insurance/health plan
Benefits (e.g. disability living allowance, personal independence payments)
Your own income from work, pensions or interest on investments
Your own savings
Sale of your assets (e.g. your home)
Relatives or friends
Other
SPONTANEOUS: None of these

ELSA
Provision; Caring for someone 2023 50-120 50 120 Participant Interviewer No Past week Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Did you look after anyone in the past week. This could be your partner or other people in your household or someone in another household?

Yes
No

ELSA
Provision; Relation of person being cared for 2023 50-120 50 120 Participant Interviewer No Past week Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What relation is this person [participant cared for] or people to you?

Spouse or partner
Child
Grandchild
Parent
Parent in law
Other relative
Friend or neighbour
Other

ELSA
Provision; Number of people participant cares for 2023 50-120 50 120 Participant Interviewer No Past week Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How many [^people[idx]] did you look after in the past week?

Computed: Total number of people looked after in the past week 0..99

ELSA
Provision; Whether person cared for lives with participant 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Does the person / Do any of the people] you care for live with you?

Yes
No

ELSA
Provision; Caring for someone 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

May I check, is there anyone (living with you /not living with you) who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity (for example, a sick or disabled (or elderly) relative/husband/wife/child/friend/parent, etc)?

Yes
No

ELSA
Provision; Number of people participant cares for 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How many people do you provide this kind of help and support to?

Range: 0..20

ELSA
Provision; Age of people provide support to 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How old [^is this person/are these people] who you provide this type of help to?

Aged 0-15 years
Aged 16-64 years
Aged 65 and over

ELSA
Provision; Number of hours spent caring 0-15 2023 50-120 50 120 Participant Interviewer No Past week Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How many hours did you spend helping the [^person/people aged 0 to 15] in the last week?

No help in the last week
Less than one hour
1-4 hours
5-9 hours
10-19 hours
20-34 hours
35-49 hours
50-99 hours
100 hours or more

ELSA
Provision; Number of hours spent caring 16-64 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How many hours did you spend helping the [^person/people aged 16 to 64] in the last week?

No help in the last week
Less than one hour
1-4 hours
5-9 hours
10-19 hours
20-34 hours
35-49 hours
50-99 hours
100 hours or more

ELSA
Receipt; Wait for personal care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How long did you have to wait between first trying to get personal care and receiving care?

Less than 2 weeks
From 2 weeks to 6 months
Over 6 months

ELSA
Receipt; Attendance at a lunch club 2023 50-120 50 120 Participant Interviewer No Last month Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

In the last month [^have/has] [^you/[^name]]… READ OUT …

Attended a lunch club
Attended a day care centre
Had meals on wheels
Had private frozen meals from a provider such as Wiltshire farm foods
Had family, friend or neighbour bring [^you/him/her] ready prepared meals
None of these_x000D_

ELSA
Receipt; Frequency of attending lunch club 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How often [^do/does] [^you/[^Name]] attend a lunch club?

Every day or nearly every day
Two or three times a week
Once a week
Two or three times a month
Once a month or less_x000D_

ELSA
Receipt; Frequency of attending day care centre 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How often [^do/does] [^you/[^Name]] attend a day care centre?

Every day or nearly every day
Two or three times a week
Once a week
Two or three times a month
Once a month or less

ELSA
Receipt; Hours spent in day centre 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Each time that [^you//[^Name]] [^have/has] attended the day centre, including attending classes or groups run by the day centre in the last month about how many hours did [^you/he/she] usually spend there? Was it…READ OUT…_x000D_

1-3 hours
4-6 hours, or
more than 6 hours

ELSA
Receipt; Frequency of meals on wheels provision 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How often [^do/does] [^you/[^Name]] eat a meal provided by Meals on Wheels?

Every day or nearly every day
Two or three times a week
Once a week
Two or three times a month
Once a month or less

ELSA
Receipt; Receipt of LA meals on wheels service 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

In the last three months, [^have/has] [^you/[^Name]] used or received the Local Authority/council’s Handy man’s service This is usually a free service sometimes arranged through Age Concern or Help the Aged.

Yes
No

ELSA
Receipt; Use of personal alarm and other devices 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Do you / Does [^name]] use any of these?

A cane or walking stick
A zimmer frame or walker
A manual wheelchair
An electric wheelchair
A buggy or scooter
Special eating utensils
A personal alarm
Elbow crutches
None of these

ELSA
Receipt; Use of personal alarm and other devices since last interview 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

You mentioned that [^you/name] [^have/has] the aids listed below: cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches >]. Can I check, did [^you/he/she] get any of these aids since [^]?

Yes
No

ELSA
Receipt; Use of personal alarm and other devices since last interview 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Can I check, did [^you/name] get [^this/these] [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches] since [^] INTERVIEWER: Please include any replacements.

Yes
No

ELSA
Receipt; Who paid - personal alarm and other devices since last interview 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?

INTERVIEWER: Read out each in turn and code all that apply.
Health Service (NHS)
Social Services
[^You/Name] or [^your/his/her spouse/partner]
95 or someone else (please specify)?

ELSA
Receipt; Who paid - personal alarm and other devices since last interview 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Can I just check that [^the NHS/Social Services/ you/ your spouse or partner] covered all the costs of the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?

Yes covered all costs
No

ELSA
Provision; Caring for someone 2023 50-120 50 120 Participant Interviewer No Past month Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Did [^you/[^Name]] do any of these activities during the last month, that is since [^date one month ago]?

Paid work
Self-employment
Voluntary work
Cared for someone
Looked after home or family
Attended a formal educational or training course
None of these_x000D_

ELSA
Provision; Stop working due to disability of relative/friend 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What were [^your/[^name]’s] reasons for stopping working?

Own ill health or disability
Working was too tiring/stressful
Ill health or disability of a relative/friend
Company went out of business/site closed down
Made redundant/dismissed/had no choice
Took voluntary redundancy
Could not find another job
Could afford to stop working
To spend more time with partner/family
To enjoy life while still fit and young enough
Fed up with working and wanted a change
To stop working at same time as husband/wife/partner
To give young generation a chance
Moved to a different area
To protect my own health/health of my partner
Other reason

ELSA
Provision; Stop working due to ill health of relative/friend 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What were [^your/name’s] reasons for taking early retirement?

Own ill health
Ill health of a relative/friend
Made redundant/dismissed/had no choice
Offered reasonable financial terms to retire early or take voluntary redundancy
Could not find another job
To spend more time with partner/ family
To enjoy life while still young and fit enough
Fed up with job and wanted a change
To retire at the same time as husband/wife/partner
To retire at a different time to husband/wife/partner
To give the young generation a chance
To protect own health/health of partner
Other (specify)
None of these
Spontaneous: does not consider has retired early

ELSA
Receipt; Receipt of disability living allowance and other benefits 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Which of these health or disability benefits [^are you / is [^name]] receiving at the moment?
PROBE: What others?
CODE ALL THAT APPLY

IF respondent asks about Disabled Persons Tax Credit or Disability Working
Allowance, explain that this benefit was abolished in April 2003 and became part of the Working Tax Credit.
Incapacity Benefit previously Invalidity Benefit
Employment and Support Allowance
Severe Disablement Allowance SDA
Statutory Sick Pay SSP
Attendance Allowance
Personal Independence Payment (including the car allowance known as Motability)
Disability Living Allowance
Industrial Injuries Disablement Benefit
War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme
Carer’s Allowance
Some other benefit for people with disabilities (SPECIFY)
None of these

ELSA
Receipt; Frequency of disability living allowance and other benefits 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How much did [^you / [^name] / [^your / [^name’s]] [^husband / wife / partner]] [^BLANK / usually] receive from [^Incapacity benefit previously named invalidity benefit / Employment and Support Allowance / Severe Disablement Allowance SDA / Statutory sick pay SSP / Attendance Allowance / Disability Living Allowance

One week
Two weeks
Three weeks
Four weeks
Calendar month
Two Calendar months
Eight times a year
Nine times a year
Ten times a year
Three months / 13 weeks
Six months / 26 weeks
One Year / 12 months / 52 weeks
Less than one week
One off / lump sum
None of these (EXPLAIN IN A NOTE)

ELSA
Receipt; Amount of disability living allowance and other benefits 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

INTERVIEWER: Enter the amount. Round to the nearest pound.[^BLANK / If don’t know amount because received with other benefits, enter total amount received here. Enter 9997 if amount already counted elsewhere.]_x000D_

Range: 0..9997

ELSA
Receipt; Receipt of disability living allowance and other benefits 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Which of these health or disability benefits is [^your / his / her] [^husband / wife / partner] receiving at the moment?
PROBE: What others?

Incapacity Benefit previously Invalidity Benefit
Employment and Support Allowance
Severe Disablement Allowance SDA
Statutory sick pay SSP
Attendance Allowance
Personal Independence Payment (including the car allowance known as Motability)
Disability Living Allowance
Industrial Injuries Disablement Benefit
War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme
Carer’s Allowance
Some other benefit for people with disabilities (SPECIFY)

ELSA
Receipt; Frequency of disability living allowance and other benefits 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How much did [^you / [^name] / [^your / [^name’s]] [^husband / wife / partner]] [^BLANK / usually] receive from [^Incapacity benefit previously named invalidity benefit / Employment and Support Allowance / Severe Disablement Allowance SDA / Statutory sick pay SSP / Attendance Allowance / Disability Living Allowance

One week
Two weeks
Three weeks
Four weeks
Calendar month
Two Calendar months
Eight times a year
Nine times a year
Ten times a year
Three months / 13 weeks
Six months / 26 weeks
One Year / 12 months / 52 weeks
Less than one week
One off / lump sum
None of these (EXPLAIN IN A NOTE)

ELSA
Receipt; How care is paid for 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Local authorities/council/social services offer different ways of arranging payment for
│people’s care. This card describes some of these ways. Please look at the card and tell me whether either of these apply for the care [^you/[^name]] receive(s)?

Direct payments
Local authority/council/social services
Neither of these

ELSA
Receipt; Whether person as personal budget 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Do/Does] [^you/[^name]] have a Personal Budget, sometimes known as an Individual Budget? This is when the local authority/ council/social services decides the amount or pot of money necessary to meet social care needs. [^You/He/She] can choose how to spend this money which can be used for a range of services, not just social care.
The money could be paid to [^you/[^name]] as a Direct Payment or the local authority/ council/social services could manage the money for [^you/him/her].

Yes, have Personal Budget/Individual budget
No, do not have Personal Budget/ Individual Budget

ELSA
Receipt; Council income assessment yes/no 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Has the local authority/council made an assessment of what [^you/[^name]] can afford for any of [^your/his/her] care needs? This is sometimes called an income assessment or means testing. INTERVIEWER: EXPLAIN IF NECESSARY: This might have been when the local authority/council was organising care services or arranging a Direct Payment for [^your/his/her] care.

Yes, had income assessment
No

ELSA
Receipt; Who arranged care? 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How was the help from [[^BLANK/your/his/her] [^home care worker/ home help/ personal assistant/ member of the reablement / intermediate care staff team/voluntary helper/ warden / sheltered housing manager/ cleaner/the council’s handyman/the member of staff from the care/nursing home/other helper] arranged?
Please look at this card and tell me which option applies.

Arranged without involvement from the local authority, council or social services,
Local authority, council or social services arranged this help,
Local authority, council or social services told [^you/him/her] about the help but [^you/he/she] arranged it or [^your/his/her] family arranged it
Other

ELSA
Receipt; Payments made for care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Do/Does] [^you/[^name]] [^your/his/her partner] pay or give any money for the help given by [^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Please include any payments made for this care, even if not made directly to the care provider.
^Do not include gifts, treats or occasional payments of expenses such as petrol money or lunch (informal providers only).

Yes,
No,
Don’t know

ELSA
Receipt; Money paid for care per time period 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How much money [^do/does] [^you/[^name]] [^your/his/her partner] pay for the help given by [^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the
care/nursing home/ the other helper]. Please include any payments made for this care, even if not made directly to the care provider?

per hour
per visit
per day
per week
per fortnight
per four weeks
per calendar month
per year

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE

ELSA
Receipt; Do payments cover all/some of care costs? 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

You said [^you/[^Name]] pay(s) [^amount] [^per hour/per visit/per day/per week/per fortnight/ per four weeks/per calendar month/ per year] for the care provided by [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]?
Does this payment cover all the cost of this help or some of the cost of this help?

All
Some

ELSA
Receipt; Source care payment is made from 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How [^do/does] [^you/name] usually pay or give money to [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for helping [^you/him/her]?

Own personal income, savings, pension or benefit (such as Attendance
Allowance), Direct Payment/ Personal or Individual Budget from the Local Authority/ council/ Social Services,
From another source

ELSA
Receipt; Does any other organisation pay for care? 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

And [^in addition to what] [^you/[name]] pay(s)), as far as you are aware does anyone else or any organisation pay or give money to [[^BLANK/your/his/her/[^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for the care [^you/he/she] receive(s) – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

Yes, the local authority /council /social services,
Yes, a family member (with their own money),
Yes, other,
No, nobody else pays

ELSA
Receipt; How are payments from other organisations made for care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

And does the local authority, council or social services pay
[[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other /other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of
staff at the care/nursing home/ the other helper] directly or is it through a Direct Payment or a Personal Budget?_x000D_

Local authority / social services or council pay directly,
Paid through Direct Payments / Personal or Individual Budgets

ELSA
Receipt; Amount paid for care from direct payment/personal budget 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

How much money is [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] paid from the direct payment or personal budget for helping [^you/[name]]?_x000D_

Per hour,
Per visit,
Per day,
Per week,
Per fortnight,
Per four weeks,
Per calendar month,
Per year

NTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE

ELSA
Receipt; Reason payment for care not needed 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

You have told me that no payment was made for [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ brother/other brother / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helping [^you/[name]]. Why was this?

They provided their help for free/ there is no charge for the service,
Sometimes give them money or gifts for the help they give,
Other

ELSA
Receipt; Whether lived in care home since last interview 2023 50-120 50 120 Participant Interviewer No Past 2 years Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^During the last two years/since your last interview] have you lived or stayed in a nursing home or residential care home?_x000D_

Yes
No

ELSA
Receipt; Length of time spent in care home 2023 50-120 50 120 Participant Interviewer No Past 2 years Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Altogether/] how long did you stay in a nursing home or residential care home [^in the last two years/since last interview]? You can tell me your answer in, days/nights weeks or months.

Days/nights
Weeks
Months_x000D_

ELSA
Receipt; Date started current stay in care home 2023 50-120 50 120 Participant Interviewer No Past 2 years Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

When did you start your current stay in this home?

INTERVIEWER: ENTER YEAR

ELSA
Receipt; Amount paid for care home in last two years 2023 50-120 50 120 Participant Interviewer No Past 2 years Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

In total, roughly how much did you have to pay for nursing or residential care home fees [in the last two years/since last interview]? Do not include costs that were paid by the NHS, your local authority or social services, but do include costs that were paid for on your behalf by friends or family, or by private insurance.

INTERVIEWER: ENTER COSTS IN £”: 0..9999997

ELSA
Receipt; Use of personal care in last 3 months 2023 50-120 50 120 Participant Interviewer No Past 3 months Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Have/Has] [^you/name] used any of the services listed on this card in the last three months?_x000D_

Occupational therapist or physiotherapist
Chiropodist or podiatrist
Exercise classes including yoga, Pilates, gym
GP
Dentist
Community nurse
Hospital nurse
Counselling for depression or anxiety
Other mental health care services
Personal care (e.g. bathing, showering, dressing, toileting)
Other [please specify]

ELSA
Receipt; Unable to access personal care 2023 50-120 50 120 Participant Interviewer No Past 3 months Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Have/Has] [^you/name] wanted to use any of the services listed on this card in the last three months but been unable to access them?

01 Occupational therapist or physiotherapist
02 Chiropodist or podiatrist
03 Exercise classes including yoga, Pilates, gym
04 GP
05 Dentist
06 Community nurse
07 Hospital nurse
08 Counselling for depression or anxiety
09 Other mental health care services
10 Personal care (e.g. bathing, showering, dressing, toileting)
95 Other [please specify]
96 None of these_x000D_

ELSA
Receipt; Receipt of personal care last 4 weeks 2023 50-120 50 120 Participant Interviewer No Past 4 weeks Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

During the four weeks ending yesterday, did you receive personal care (for example, help with bathing, showering, dressing, toileting)?_x000D_

Yes
No

ELSA
Receipt; Who paid for personal care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Thinking of the last time you received personal care, was this…

Under Social Services,
Or, paid for privately?_x000D_

ELSA
Receipt; Who helps - ADLs 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

In the last month, who has helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet dressing/ bathing or showering/eating/ shopping for groceries/doing work around the house or garden/taking medications/managing money]?
First, please tell me about all of the people from this list who have helped [^you/[^name]].
Please only think about help received because of a physical, mental, emotional or memory problem.

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 Friend
09 Neighbour
96 None of these

ELSA
Receipt; Receipt of care at home 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

In the last two years [^have/has] [^you/[^name]] received care at home that was not provided by family or friends?_x000D_

Yes
No

ELSA
Receipt; Paying for home care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

In the last two years [^have/has] [^you/[^name]] had to pay for care received at home that was not provided by family or friends?

Yes
No

ELSA
Receipt; Whether care is sufficient 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Thinking about all the help [^you/he/she] receive(s), would you say that the help [^you/he/she] receive(s)…

│01 …Meets [^your/his/her] needs all the time,
│02 usually meets [^your/his/her] needs,
│03 sometimes meets [^your/his/her] needs,
│04 or, hardly ever meets [^your/his/her] needs?

ELSA
Receipt; Whether carer in same household 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

You have told me that [^your/his/her] [^husband /wife /partner /son /other son /daughter /other daughter /grandchild /other grandchild /sister /other sister /brother/other brother / other relative/ friend/ other friend] helped [^you/[^name]].
Can I just check, does this person live in the same household as [^you/[^name]]?_x000D_

Yes
No

ELSA
Receipt; Household member identifier - care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Please enter person number of the person who helps [^you/[^name]]?

Household Member 01 to 16

ELSA
Receipt; Household member identifier - care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^You have told me that [^your /his /her] [^husband /wife /partner /son /other son /daughter /other daughter /grandchild /other grandchild /sister /other sister /brother /other brother / other relative/ friend / other friend/ neighbour /other neighbour] helped [^you/[^name]]. What is [^your /his /her] [^husband’s /wife’s /partner’s /son’s /other son’s /daughter’s /other daughter’s /grandchild’s /other grandchild’s /sister’s / other sister’s /brother’s /other brother’s / other relative’s / friend’s / other friend’s /neighbour’s /other neighbour’s] name?_x000D_

Name entered

ELSA
Receipt; Household member identifier - care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Did another [^son/ daughter/ grandchild/ sister/ brother/ other relative/ friend/neighbour] help [^you/ [^name]]?

Yes
No

ELSA
Receipt; Number of people providing care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

You have told me that a home care worker/home help/personal assistant helped [^you/ [^name]] in the last month.[^Do/Does] [^you/ [^name]] have just one person helping [^you /him /her], or [^do/does] [^you/ [^name]] have more than one?

01 One,
02 More than one

ELSA
Receipt; Caring activities of carers 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Do they all help with the same kinds of things, or [^do/does] [^you/[^name]] have different people helping with different things?_x000D_

All help with same kind of things,
Different people help with different things

ELSA
Receipt; Caring activities of carers 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Thinking of the [^first/second/third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?

Getting up in the morning,
Going to bed,
Washing/ bathing/ personal care (e.g. dressing, toileting),),
Meals/ eating,
Getting out of the house/ shopping,
Cleaning/ laundry,
Other

ELSA
Receipt; Additional care/help 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Are there any more home care workers, home helps or personal assistants who help [^you/[^name]] with different kinds of things?_x000D_

Yes
No

ELSA
Receipt; Caring activities of carers 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Thinking of the [^third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?_x000D_

Getting up in the morning,
Going to bed,
Washing/ bathing/ personal care (e.g. dressing, toileting)
Meals/ eating,
Getting out of the house/ shopping,
Cleaning/ laundry,
Other

ELSA
Receipt; Number of hours of care received 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Thinking about [^the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?
Do not include help over the phone or by internet_x000D_

Enter hours

ELSA
Receipt; Number of hours of care received 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Thinking about [^your/his/her [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

No help in the last week,
Less than one hour,
1-4 hours,
5-9 hours,
10-19 hours,
20-34 hours,
35-49 hours,
50-99 hours,
100 hours or more

ELSA
Receipt; Number of hours of care received 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Can you tell me whether in the last week [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helped [^you/[^name]] in person with these tasks for:

Less than 20 hours,
20-34 hours,
Or, for 35 hours or more?

ELSA
Receipt; How often is care received 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Still thinking only about help received in person, how often does [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden /sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/the other helper] usually help [^you/[^name]]?

Every day
Four to six times a week
Two or three times a week
Once a week
Once a fortnight/ every two weeks
Once a month
Less than once a month

ELSA
Receipt; How often per day is care received 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

On the days [[^BLANK/your/his/her/[^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helps [^you/[^name]], how many times a day does he/she usually help [^you/[^name]]?

once a day
twice a day
three or four times a day
all the time
whenever I need it?

ELSA
Receipt; Time of daycare received 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Still thinking about help received in person, when does [[^BLANK/your/his/her/][^husband/wife/partner/son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] help [^you/[^name]]?

During the day time only, until [^you/[^name]] [^go/goes] to bed,
During the night time only, once [^you/[^name]] [^have/has] gone to bed,
Or both during the day time and at night after [^you/[^name]][^have/has] gone to bed?

ELSA
Receipt; Who deals with care payment 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Do/Does] [^you/[^name]] usually deal with paying for [^your/his/her] care or does a family member or friend manage this for [^you/[^name]]?

Deals with this all [^your/him/herself]
Deals with some of it but not all
Does not deal with this at all

ELSA
Receipt; Whether household member has moved into care 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

May I ask what has happened to [^]?

1 Deceased
2 Living elsewhere – relationship ended
3 Living elsewhere – moved into a nursing/residential home
4 Living elsewhere – other reason
5 Member of the core household
(Note code 5 is only valid for new households)

ELSA
Receipt; Whether household member in care home be interviewed 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

(You told me that [^name] has moved into a nursing home/residential home). We are interested in understanding the changes that happen in people’s lives, so we’d like to invite [^name] to continue to participate in this survey. Do you think that [^he/she] will be able to answer the questions on [^his/her] own behalf if we were to approach in the future?

1 Yes
2 No
3 Don’t know_x000D_

ELSA
Receipt; Whether household member in care home be interviewed 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Is there someone who could answer on [^his/her] behalf in the future? [refers to household member moved to social care].

1 Yes
2 No

ELSA
Need; Visual impairment - indication of care need 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Are/Is] [^you/[^Name]] registered with your local council as partially sighted (also known as sight impaired), or blind (also known as severely sight impaired)?

1. Partially sighted (also known as sight impaired)
2. Blind (also known as severely sight impaired)
3. Not registered as being sight impaired

ELSA
Need; Ability to complete ADLs 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

Because of a health or memory problem, [^do you /does he/does she] have difficulty doing any of the activities on this card?

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognizing when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

ELSA
Need; Ability to complete ADLs - walking 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Have/Has] [^you/[^name]] received help from anyone with walking 100 yards, in the last month?

Yes
No

ELSA
Need; Ability to complete ADLs - climbing stairs 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about climbing several flights of stairs without resting?

Yes
No

ELSA
Need; Ability to complete ADLs - climbing stairs 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about climbing one flight of stairs without resting?_x000D_

Yes
No

ELSA
Need; Ability to complete ADLs - dressing 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about dressing, including putting on shoes and socks?

Yes
No

ELSA
Need; Ability to complete ADLs - walking 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about walking across a room?

Yes
No

ELSA
Need; Ability to complete ADLs - bathing 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about bathing or showering?_x000D_

Yes
No

ELSA
Need; Ability to complete ADLs - cutting food/eating 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about eating, such as cutting up food?

Yes
No

ELSA
Need; Ability to complete ADLs - getting out of bed 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about getting in or out of bed?

Yes
No

ELSA
Need; Ability to complete ADLs - using toilet 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about using the toilet, including getting up or down?

Yes
No

ELSA
Need; Ability to complete IADLs - shopping 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about shopping for groceries?

Yes
No

ELSA
Need; Ability to complete IADLs - taking medication 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about taking medications?_x000D_

Yes
No

ELSA
Need; Ability to complete IADLs - house/garden 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about doing work around the house or garden?_x000D_

Yes
No

ELSA
Need; Ability to complete IADLs - finances 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

What about managing money, such as paying bills and keeping track of expenses?

Yes
No

ELSA
Need; Reason for help with IADLs 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

[^Do/Does] [^you/[^name]] receive this help with [^shopping for groceries/doing work around the house or garden/managing money] because of a physical, mental, emotional or memory problem?:

Yes for some or all
No, none of this help is because of a physical, mental, emotional or memory problem_x000D_

ELSA
Receipt; Who helps - ADLs 2023 50-120 50 120 Participant Interviewer No Current Interviewer Questionnaire Wave 11 – 2023/24 Version 1 (April 2025) No

I am now going to ask you some questions about who helps [^you/[^name]] with different things. I will show you two lists of people who may have helped:

(1) MOBILITY
IF whether has had help walking 100 yards / climbing several flights of stairs without resting / climbing one flight of stairs without resting / walking across a room / getting in or out of bed/ using a toilet = yes

(2) WASHING
IF whether has had help dressing / bathing or showering = yes

(3) EATING
IF whether has had help eating = yes

(4) SHOPPING/ WORK DONE AROUND THE HOUSE
IF whether has had help shopping for groceries/doing work around the house or garden = yes

(5) TAKING MEDICATION
IF whether has had help taking medication(s) = yes

(6) MANAGING MONEY
IF whether has had help shopping for groceries/doing work around house or garden = yes

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 Friend
09 Neighbour
96 None of these

ELSA
Receipt; Care receipt by source of income/gender 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Recipients of care at least once a week by main source of total weekly household income and gender

Main source of income is divided into:
Wages and salaries
Self-employed income
Investments
Universal Credit
Tax Credits
State Pension and PC
Non-state pensions
Disability benefits
Other benefits
Other sources
All
Sample size

This is broken up into:
All people
Male (all)
Female (all)
All receiving care
Male (receiving care)
Female (receiving care)
All not receiving care
Male (not receiving care)
Female (not receiving care)

FRS
Receipt; Benefit units state support/region 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Benefit units by state support receipt and region/country, 2021 to 2022

State support received (including some care related benefits):
All in receipt of state support
All in receipt of benefit
All in receipt of Tax Credits
On any income-related benefit [Note 17]
On any non-income related benefit [Note 18]
Working Tax Credit
Child Tax Credit
Child Benefit
Universal Credit [Note 19]
Income Support
Pension Credit [Note 9]
Housing Benefit
Council Tax Reduction [Note 20]
State Pension [Note 9]
Employment and Support Allowance
Attendance Allowance
Carer’s Allowance
Disability Living Allowance (care component)
Disability Living Allowance (mobility component)
Personal Independence Payment (daily living component)
Personal Independence Payment (mobility component)
Sample size

These are broken down by percentage of benefits units by:
United Kingdom
England
Wales
Scotland
Northern Ireland
Great Britain
North East
North West
Yorkshire and the Humber
East Midlands
West Midlands
East London
Inner London
Outer London
South East
South West

FRS
Receipt; Benefit units by state support/benefit type 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Benefit units by state support receipt and benefit unit type, 2021 to 2022

State support received (including some care related benefits):
All in receipt of state support
All in receipt of benefit
All in receipt of Tax Credits
On any income-related benefit [Note 17]
On any non-income related benefit [Note 18]
Working Tax Credit
Child Tax Credit
Child Benefit
Universal Credit [Note 19]
Income Support
Pension Credit [Note 9]
Housing Benefit
Council Tax Reduction [Note 20]
State Pension [Note 9]
Employment and Support Allowance
Attendance Allowance
Carer’s Allowance
Disability Living Allowance (care component)
Disability Living Allowance (mobility component)
Personal Independence Payment (daily living component)
Personal Independence Payment (mobility component)
Sample size

These are broken down by recipient type:
All benefit units
Pensioner couple
Pensioner couple married or civil partnered
Pensioner couple cohabiting
Single male pensioner
Single female pensioner
Couple with children
Couple with children married or civil partnered Couple with children cohabiting
Couple without children
Couple without children married or civil partnered
Couple without children cohabiting
Single with children
Single male without children
Single female without children

FRS
Receipt; Benefit units by support receipt/ethnic group 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Benefit units by state support receipt and by ethnic group of head, average of 2019 to 2020, 2020 to 2021 and 2021 to 2022

State support received (including some care related benefits):
All in receipt of state support
All in receipt of benefit
All in receipt of Tax Credits
On any income-related benefit [Note 17]
On any non-income related benefit [Note 18]
Working Tax Credit
Child Tax Credit
Child Benefit
Universal Credit [Note 19]
Income Support
Pension Credit [Note 9]
Housing Benefit
Council Tax Reduction [Note 20]
State Pension [Note 9]
Employment and Support Allowance
Attendance Allowance
Carer’s Allowance
Disability Living Allowance (care component)
Disability Living Allowance (mobility component)
Personal Independence Payment (daily living component)
Personal Independence Payment (mobility component)
Sample size

This is broken up by:
All benefit units
White
Mixed and Multiple ethnic groups
Asian and Asian British
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
Black, African
Caribbean and Black British
Arab
Other ethnic group [Note 15]

FRS
Receipt; Benefit units by state support/age of head household 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Benefit units by state support receipt and age of head, 2021 to 2022

State support received (including some care related benefits):
All in receipt of state support
All in receipt of benefit
All in receipt of Tax Credits
On any income-related benefit [Note 17]
On any non-income related benefit [Note 18]
Working Tax Credit
Child Tax Credit
Child Benefit
Universal Credit [Note 19]
Income Support
Pension Credit [Note 9]
Housing Benefit
Council Tax Reduction [Note 20]
State Pension [Note 9]
Employment and Support Allowance
Attendance Allowance
Carer’s Allowance
Disability Living Allowance (care component)
Disability Living Allowance (mobility component)
Personal Independence Payment (daily living component)
Personal Independence Payment (mobility component)
Sample size

Percentage of benefit units age of head of household is broken down into:
All benefit units
16 to 24
25 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 to 84
85 and over

FRS
Receipt; Benefit units state support/tenure 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Benefit units by state support receipt and tenure, 2021 to 2022

State support received (including some care related benefits):
All in receipt of state support
All in receipt of benefit
All in receipt of Tax Credits
On any income-related benefit [Note 17]
On any non-income related benefit [Note 18]
Working Tax Credit
Child Tax Credit
Child Benefit
Universal Credit [Note 19]
Income Support
Pension Credit [Note 9]
Housing Benefit
Council Tax Reduction [Note 20]
State Pension [Note 9]
Employment and Support Allowance
Attendance Allowance
Carer’s Allowance
Disability Living Allowance (care component)
Disability Living Allowance (mobility component)
Personal Independence Payment (daily living component)
Personal Independence Payment (mobility component)
Sample size

This is broken up by:
All benefit units
All owned
Owned outright
Buying with a mortgage
Social renting sector
Private renting sector

FRS
Receipt; Benefit units by state support/economic status 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Benefit units by state support receipt and economic status, 2021 to 2022

State support received (including some care related benefits):
All in receipt of state support
All in receipt of benefit
All in receipt of Tax Credits
On any income-related benefit [Note 17]
On any non-income related benefit [Note 18]
Working Tax Credit
Child Tax Credit
Child Benefit
Universal Credit [Note 19]
Income Support
Pension Credit [Note 9]
Housing Benefit
Council Tax Reduction [Note 20]
State Pension [Note 9]
Employment and Support Allowance
Attendance Allowance
Carer’s Allowance
Disability Living Allowance (care component)
Disability Living Allowance (mobility component)
Personal Independence Payment (daily living component)
Personal Independence Payment (mobility component)
Sample size

This is broken down by economic status percentage of benefit units:
All benefit units
One or more full-time self-employed
Single or couple, all in full-time work
Couple, one in full-time work, one in part-time work
Couple, one in full-time work, one not working
No full-time work, one or more part-time work
Workless, one or more State Pension age
Workless, one or more unemployed
Workless, other inactive

FRS
Need; Disabled people number by impairment type 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Millions of disabled people by impairment types, 2019 to 2020, 2020 to 2021 and 2021 to 2022

Some of these will be indications of likely need for social care support:
Mobility
Stamina/breathing/fatigue
Dexterity
Mental health
Memory
Hearing [Note 6]
Vision
Learning
Social/behavioural
Other
Sample size

This is broken down into:
2019 to 2020
2020 to 2021
2021 to 2022

FRS
Need; Disabled people by impairment type 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Percentage of disabled people by impairment types, 2019 to 2020, 2020 to 2021 and 2021 to 2022

Some of these will be indications of likely need for social care support:
Mobility
Stamina/breathing/fatigue
Dexterity
Mental health
Memory
Hearing [Note 6]
Vision
Learning
Social/behavioural
Other
Sample size

This is broken down into:
2019 to 2020
2020 to 2021
2021 to 2022

FRS
Need; Impairment type by age group 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Impairment types by age group, 2021 to 2022

Some of these will be indications of likely need for social care support:
Mobility
Stamina/breathing/fatigue
Dexterity
Mental health
Memory
Hearing [Note 6]
Vision
Learning
Social/behavioural
Other
Sample size

This is broken down into:
All disabled people
Children
Working-age adults
State Pension age adults

FRS
Receipt; Benefit units by disab status/support receipt 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Benefit units by disability status and state support receipt, 2021 to 2022

State support received (including some care related benefits):
All in receipt of state support
All in receipt of benefit
All in receipt of Tax Credits
On any income-related benefit [Note 17]
On any non-income related benefit [Note 18]
Working Tax Credit
Child Tax Credit
Child Benefit
Universal Credit [Note 19]
Income Support
Pension Credit [Note 9]
Housing Benefit
Council Tax Reduction [Note 20]
State Pension [Note 9]
Employment and Support Allowance
Attendance Allowance
Carer’s Allowance
Disability Living Allowance (care component)
Disability Living Allowance (mobility component)
Personal Independence Payment (daily living component)
Personal Independence Payment (mobility component)
Sample size

This is broken down into:
All benefit units
At least one disabled adult, no disabled children
At least one disabled child, no disabled adults
At least one disabled adult and at least one disabled child
No disabled adults or disabled children

FRS
Receipt; Households by tenure/support receipt 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Households by tenure and state support receipt, 2021 to 2022

State support received (including some care related benefits):
All in receipt of state support
All in receipt of benefit
All in receipt of Tax Credits
On any income-related benefit [Note 17]
On any non-income related benefit [Note 18]
Working Tax Credit
Child Tax Credit
Child Benefit
Universal Credit [Note 19]
Income Support
Pension Credit [Note 9]
Housing Benefit
Council Tax Reduction [Note 20]
State Pension [Note 9]
Employment and Support Allowance
Attendance Allowance
Carer’s Allowance
Disability Living Allowance (care component)
Disability Living Allowance (mobility component)
Personal Independence Payment (daily living component)
Personal Independence Payment (mobility component)
Sample size

This is broken down into:
All households
All Owners
Owned outright
Buying with a mortgage
Social renting sector
Private renting sector

FRS
Receipt; Care recipient by gender 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Informal carers caring for care recipient by gender,

Care recipient can be broken down into:
Inside household
Parent
Spouse, civil partner or cohabitee
Spouse or civil partner
Cohabitee
Son or daughter
Brother, sister or other relative
Brother or sister
Other relative
Non-relative
Outside household
Parent
Spouse or civil partner
Son or daughter
Brother, sister or other relative
Non-relative
Friend or neighbour
Client of Voluntary Group
Other
Sandwich Carer [Note 12]
Sample size

This is recorded against:
All informal carers
Male
Female

FRS
Receipt; Receiving care once per week by age/gender 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

People receiving care at least once a week by age and gender

Age Group
All
15 and under
16 to 24
25 to 34
35 to 44
45 to 54
55 to 64
65 to 74
75 to 84
85 and over

This is recorded against:
All
Sample size (all)
Males
Sample size (males)
Females
Sample size (females)

FRS
Receipt; Recipients of care by age and care freq 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Recipients of care at least once a week by age and frequency of care

Age Group
All
15 and under
16 to 24
25 to 34
35 to 44
45 to 54
55 to 64
65 to 74
75 to 84
85 and over

This is recorded against frequency of care at:
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
All
Sample size

FRS
Receipt; Care receipt by main source of income 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Recipients of care at least once a week by main source of total weekly household income and gender

Main source of income:
Wages and salaries
Self-employed income
Investments
Universal Credit
Tax Credits
State Pension and PC
Non-state pensions
Disability benefits
Other benefits
Other sources
All
Sample size

Recorded against:
All
Male (all)
Female (all)
All receiving care
Male (receiving care)
Female (receiving care)
All not receiving care
Male (not receiving care)
Female (not receiving care)

FRS
Need; Disabled people by impairment type 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Millions of disabled people by impairment types, 2020 to 2021, 2021 to 2022 and 2022 to 2023

Impairment type:
Mobility
Stamina/breathing/fatigue
Dexterity
Mental health
Memory
Hearing [Note 6]
Vision
Learning
Social/behavioural
Other
Sample size

FRS
Need; Percentage disabled people by impairment type 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Percentage of disabled people by impairment types, 2020 to 2021, 2021 to 2022 and 2022 to 2023

Impairment type:
Mobility
Stamina/breathing/fatigue
Dexterity
Mental health
Memory
Hearing [Note 6]
Vision
Learning
Social/behavioural
Other
Sample size

FRS
Need; Impairment types by age group 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Impairment types by age group

All disabled people
Children
Working-age adults
State Pension age adults

FRS
Receipt; Benefit units by disability and state support 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Benefit units by disability status and state support receipt

All in receipt of state support [Note 13]
All in receipt of benefit
All in receipt of Tax Credits
On any income-related benefit [Note 11] [Note 14]
On any non-income-related benefit [Note 8] ]
Working Tax Credit
Child Tax Credit
Child Benefit
Universal Credit [Note 10]
Income Support
Pension Credit [Note 1]
Housing Benefit
Council Tax Reduction [Note 9]
State Pension [Note 1]
Employment and Support Allowance
Attendance Allowance
Carer’s Allowance
Disability Living Allowance (care)
Disability Living Allowance (mobility component)
Personal Independence Payment (daily living component)
“Personal Independence Payment
(mobility component)”
Sample size

This is recorded against:
All benefit units
At least one disabled adult, no disabled children
At least one disabled child, no disabled adults
At least one disabled adult and at least one disabled child
No disabled adults or disabled children

FRS
Receipt; Households by tenure and support receipt 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Households by tenure and state support receipt

All in receipt of state support [Note 15]
All in receipt of benefit
All in receipt of Tax Credits
On any income-related benefit [Note 12] [Note 17]
On any non-income related benefit [Note 8] [Note 18]
Working Tax Credit
Child Tax Credit
Child Benefit
Universal Credit [Note 10]
Income Support
Pension Credit [Note 3]
Housing Benefit
Council Tax Reduction [Note 9]
State Pension [Note 3]
Employment and Support Allowance
Attendance Allowance
Carer’s Allowance
Disability Living Allowance (care component)
Disability Living Allowance (mobility component)
Personal Independence Payment (daily living component)
Personal Independence Payment (mobility component)
Sample size

Measured against:
All households
All Owners
Owned outright
Buying with a mortgage
Social renting sector
Private renting sector

FRS
Provision; Informal care (%) by gender/financial year 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

People providing informal care (percentage) by gender, financial year ending 2012 to financial year ending 2022

Data presented from:
2011/12
2012/13
2013/14
2014/15
2015/16
2016/17
2017/18
2018/19
2019/20
2020/21 [Note 2]
2021/22

This is broken down into:
All people
Sample size (all people)
Males
Sample size (males)
Females Sample size (females)

FRS
Provision; Providing informal care (number) by gender/financial year 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

People providing informal care (number) by gender, financial year ending 2012 to financial year ending 2022

Data presented from:
2011/12
2012/13
2013/14
2014/15
2015/16
2016/17
2017/18
2018/19
2019/20
2020/21 [Note 2]
2021/22

This is broken down into:
All people
Males
Females

FRS
Provision; Providing informal care by age/gender 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

People providing informal care by age and gender, 2021 to 2022

This is categorised into age bands of:
All people
15 and under
16 to 24
25 to 34
35 to 44
45 to 54
55 to 64
65 to 74
75 to 84
85 and over

And broken down by:
All people
Sample size (all people)
Males
Sample size (males)
Females
Sample size (females)

FRS
Provision; Informal carers by gender/age/hours caring 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Adult informal carers by gender, age, and hours caring, 2021 to 2022

Data is collected via age and gender bands of:
All adult carers
16 to 24
25 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 and over
All male carers
16 to 24
25 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 and over
All female carers
16 to 24
25 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 and over

And divided into:
Less than 5
From 5 to 19
From 20 to 34
Varies, less than 35
From 35 to 49
50 or more
Varies, 35 or more
All
Sample Size

FRS
Provision; Informal carers by employment/gender 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Adult informal carers by employment status and gender, 2021 to 2022

Employment status data is categorised under:
Employment status
All in employment
full-time
part-time
All employees
full-time
part-time
All self-employed
full-time
part-time
Unemployed
Retired
Other economically inactive
student
looking after family/home
permanently sick/disabled
temporarily sick/disabled
other inactive
All
Sample size

And broken down into:
All adults
Males (all)
Females (all) All adult informal carers
Males (adult informal carers) Females (adult informal carers)

FRS
Provision; Informal carers by total income/hours caring/gender 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Adult informal carers by main source of total weekly household income, hours caring, and gender, 2021 to 2022

Main source of income is recorded under:
Wages and salaries
Self-employed income
Investments
Universal Credit
Tax Credits
State Pension and PC
Non-state pensions
Disability benefits
Other benefits
Other sources
All
Sample size

And broken down into:
All adult informal carers
Males
Females
Less than 5
From 5 to 19
From 20 to 34
Varies, less than 35
From 35 to 49
50 or more
Varies, 35 or more

FRS
Provision; Informal carers gender/age/income 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Adult informal carers by gender, age, and net individual weekly income, 2021 to 2022

Age groups are divided into:
All adult carers
16 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 and over
All male carers
16 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 and over
All female carers
16 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 and over

And broken down into:
Less than £50
From £50 to £99
From £100 to £149
From £150 to £199
From £200 to £249
From £250 to £299
From £300 to £399
From £400 to £499
£500 or more
All
Sample size

FRS
Provision; Informal carers/recipient number/location/gender 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Informal carers by care recipient number and location and by gender, 2021 to 2022

Care recipient, number and location and recorded under:
Only 1 person
Inside household
Outside household [Note 10]
More than 1 person
At least 1 inside household
Only inside household
At least 1 outside household
Only outside household [Note 10]
Both inside and outside household
All
Sample size

And broken down by:
All informal carers
Male
Female

FRS
Provision; Informal carers care recipient/gender 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Informal carers caring for care recipient by gender, 2021 to 2022

Care recipient is recorded under:
Inside household
Parent
Spouse, civil partner or cohabitee
Spouse or civil partner
Cohabitee
Son or daughter
Brother, sister or other relative
Brother or sister
Other relative
Non-relative
Outside household
Parent
Spouse or civil partner
Son or daughter
Brother, sister or other relative
Non-relative
Friend or neighbour
Client of Voluntary Group
Other

And broken down into:
All informal carers
Male
Female

FRS
Receipt; Care receipt by age/gender 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

People receiving care at least once a week by age and gender, 2021 to 2022

Age categories are divided into:
All receiving care
15 and under
16 to 24
25 to 34
35 to 44
45 to 54
55 to 64
65 to 74
75 to 84
85 and over

This was broken down into:
All people
Sample size (all people)
Males
Sample size (males)
Females
Sample size (females)

FRS
Receipt; Care receipt by age/freq of care 2021 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2021 to 2022 No

Recipients of care at least once a week by age and frequency of care, 2021 to 2022

Age categories are divided into:
All receiving care
15 and under
16 to 24
25 to 34
35 to 44
45 to 54
55 to 64
65 to 74
75 to 84
85 and over

And broken down into:
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
All
Sample size

FRS
Receipt; Receipt of carer's allowance 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Receipt of state support – Carer’s Allowance

Ungrossed percentage
Grossed number
Grossed percentage
Number
Percentage
Percentage difference

FRS
Receipt; Receipt of attendance allowance 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Receipt of state support – Attendance Allowance

Ungrossed percentage
Grossed number
Grossed percentage
Number
Percentage
Percentage difference

FRS
Receipt; Receipt of personal independence payment 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Receipt of state support – Personal Independence Payment

Ungrossed percentage
Grossed number
Grossed percentage
Number
Percentage
Percentage difference

FRS
Receipt; Average weekly receipt of Carer's Allowance 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Average weekly receipt of state support – Carer’s Allowance

Ungrossed percentage
Average weekly amount (£) (FRS 2021 to 2022)
Grossed percentage
Average weekly amount (£) (administrative data)
Percentage
Percentage difference

FRS
Receipt; Average weekly receipt of Attendance Allowance 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Average weekly receipt of state support – Attendance Allowance

Ungrossed percentage
Average weekly amount (£) (FRS 2021 to 2022)
Grossed percentage
Average weekly amount (£) (administrative data)
Percentage
Percentage difference

FRS
Receipt; Percentage respondents receiving DWP benefits - Carer's Allowance 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Percentage of adult FRS respondents in receipt of DWP benefits, FRS and administrative data – Carer’s Allowance

On FRS only
On admin data and FRS
On admin data only

FRS
Receipt; Percentage respondents receiving DWP benefits - Attendance Allowance 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Percentage of adult FRS respondents in receipt of DWP benefits, FRS and administrative data – Attendance Allowance

On FRS only
On admin data and FRS
On admin data only

FRS
Receipt; Percentage respondents receiving DWP benefits - DA care component 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Percentage of adult FRS respondents in receipt of DWP benefits, FRS and administrative data – Disability Living Allowance (care component)

On FRS only
On admin data and FRS
On admin data only

FRS
Receipt; Percentage respondents receiving DWP benefits - DA living component 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Percentage of adult FRS respondents in receipt of DWP benefits, FRS and administrative data – Personal Independence Payment (daily living component)

On FRS only
On admin data and FRS
On admin data only

FRS
Receipt; Benefit units, standard error etc. - attendance allowance 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Benefit units proportion, standard error, design factor, and confidence limits by state support receipt – Attendance Allowance

All
Standard error
Design factor (ratio)
Lower confidence limit
Upper confidence limit

FRS
Receipt; Benefit units, standard error etc. - carer's allowance 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Benefit units proportion, standard error, design factor, and confidence limits by state support receipt – Carer’s Allowance

All
Standard error
Design factor (ratio)
Lower confidence limit
Upper confidence limit

FRS
Receipt; Benefit units, standard error etc - DA care component 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Benefit units proportion, standard error, design factor, and confidence limits by state support receipt – Disability Living Allowance (care component)

All
Standard error
Design factor (ratio)
Lower confidence limit
Upper confidence limit

FRS
Receipt; Benefit units, standard error etc. - DA living component 2021 0-120 0 120 Participant No Past year Family Resources Survey, financial year 2021 to 2022 - C1 methodology No

Benefit units proportion, standard error, design factor, and confidence limits by state support receipt – Personal Independence Payment (daily living component)

All
Standard error
Design factor (ratio)
Lower confidence limit
Upper confidence limit

FRS
Provision; People providing informal care (number) by gender 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

People providing informal care (number) by gender, financial year ending 2013 to financial year ending 2023 – Number of people (millions)

All people
Males
Females

FRS
Provision; Percentage providing informal care by age and gender 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

People providing informal care by age and gender, 2022 to 2023 – Percentage of people:

For each of these age categories:
All
15 and under
16 to 24
25 to 34
35 to 44
45 to 54
55 to 64
65 to 74
75 to 84
85 and over

The following information was recorded:
All
Sample size (all)
Males
Sample size (males)
Females
Sample size (females)

FRS
Provision; Adult informal carers by gender, age, hours caring. 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Adult informal carers by gender, age, and hours caring, 2022 to 2023

From each of the following age groups:
All
16 to 24
25 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 and over

The following data was collected:
Hours providing care per week…
Less than 5
From 5 to 19
From 20 to 34
Varies, less than 35
From 35 to 49
50 or more
Varies, 35 or more
All

Sample Size

FRS
Provision; Adult informal carers by employment status 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Adult informal carers by employment status [Note 3] and gender, 2022 to 2023

Under the following categories:
All in employment
full-time
part-time
All employees
full-time
part-time
All self-employed
full-time
part-time
Unemployed
Retired
Other economically inactive
student
looking after family/home
permanently sick/disabled
temporarily sick/disabled
other inactive
All
Sample size

The following data was collected:
All adults
Males (all)
Females (all)
All adult informal carers
Males (adult informal carers)
Females (adult informal carers)

FRS
Provision; Informal carers by main source of income 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Adult informal carers by main source of total weekly household income, hours caring, and gender

Main source of income are recorded under:
Wages and salaries
Self-employed income
Investments
Universal Credit
Tax Credits
State Pension [Note 6] and PC [Note 7]
Non-state pensions [Note 8]
Disability benefits [Note 9]
Other benefits [Note 17]
Other sources
All
Sample size

For:
All adult informal carers
Males
Females
Less than 5
From 5 to 19
From 20 to 34
Varies, less than 35
From 35 to 49
50 or more
Varies, 35 or more

FRS
Provision; Informal carers by gender, age, and income 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Adult informal carers by gender, age, and net individual weekly income

Data for this measures can be broken down into:
Age Group
All
16 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 and over
All male carers
16 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 and over
All female carers
16 to 34
35 to 44
45 to 54
55 to 59
60 to 64
65 to 74
75 and over

Against these metrics:
Less than £50
From £50 to £99
From £100 to £149
From £150 to £199
From £200 to £249
From £250 to £299
From £300 to £399
From £400 to £499
£500 or more
All
Sample size

FRS
Provision; Informal carers by recipient number, location, gender 2022 0-120 0 120 Participant No Past year Care, Family Resources Survey, financial year 2022 to 2023 No

Informal carers by care recipient number and location and by gender

Care recipient, number and location can be broken down into:
Only 1 person
Inside household
Outside household [Note 10]
More than 1 person
At least 1 inside household
Only inside household
At least 1 outside household
Only outside household [Note 10]
Both inside and outside household
All
Sample size

Against these metrics:
All informal carers
Male
Female

FRS
Provision; Whether young person provides care 2021 17-18 17 18 Participant No Current Birth Cohort 1 Sweep 11 - 2021-2023 - Secondary 6 / age 17-18 Mainstage - Cohort Member/Young Person CAPI Questionnaire No

Do you look after, or give any regular help or support to, family members, friends, neighbours or others because of either a long-term physical or mental health condition or disability or problems related to old age?
This includes both people who live with you and those who live elsewhere. Please do not include caring you may do for others in a professional capacity.
INTERVIEWER: ADD IF NECESSARY: Examples of care include cooking, cleaning, shopping, providing nursing and personal care, and giving emotional support.

Yes
No

GUSBC
Provision; Who young person provides care to 2021 17-18 17 18 Participant No Current Birth Cohort 1 Sweep 11 - 2021-2023 - Secondary 6 / age 17-18 Mainstage - Cohort Member/Young Person CAPI Questionnaire No

Who do you provide care for in this way?

CODE ALL THAT APPLY
1 Your mother
2 Your father
3 Your brother(s)
4 Your sister(s)
5 Your grandmother(s)
6 Your grandfather(s)
7 Somebody else

GUSBC
Provision; How much care young person provides 2021 17-18 17 18 Participant No Current Birth Cohort 1 Sweep 11 - 2021-2023 - Secondary 6 / age 17-18 Mainstage - Cohort Member/Young Person CAPI Questionnaire No

Approximately, how many hours each week do you provide help in this way? Please include any travelling time.

1 Under 3 hours a week
2 3-4 hours a week
3 5-9 hours a week
4 0-19 hours a week
5 20-29 hours per week
6 30 or more hours a week
7 Varies too much to say (spontaneous answer only)

GUSBC
Provision; Identifying who gives help to 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Now I’d like you to think about the three people you provide the most help and support to.

Part 1:
Just so I can refer to them later on, I’d like to take down their first names. What are their names?

Part 2:
Thinking about (name of person respondent helps), what is their relationship to you?

Repeated for each person respondent helps

Part 1:
WRITE IN FIRST NAME OF FIRST PERSON CARED FOR
Text: Maximum 50 characters
WRITE IN FIRST NAME OF SECOND PERSON CARED FOR
Text: Maximum 50 characters
WRITE IN FIRST NAME OF THIRD PERSON CARED FOR
Text: Maximum 50 characters

Part 2:
They are my…
1 Husband/Wife/Partner
2 Mother (including mother-in-law)
3 Father (including father-in-law)
4 Son (including step son, adopted son or son in law)
5 Daughter (including step daughter, adopted daughter or daughter in law)
6 Grandparent
7 Grandchild (including Great Grandchildren)
8 Brother / Sister (including step / adopted / in laws)
9 Other family member
10 Friend
11 Neighbour
12 Somebody I help as a professional carer
13 Somebody I help as a voluntary

HSE
Provision; Person providing care to in same/different household 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Does the person live in the same household or a different household?

1 Same household
2 Different household
Does (name of person respondent helps) live in the same household as you or in a different

HSE
Provision; Age of person providing care to 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

How old is (name of person respondent helps)?
Repeated for each person respondent helps

Range: 1..130

HSE
Provision; Gender of person providing care to 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

INTERVIEWER CODE OR ASK: Is male or female?
Repeated for each person respondent helps

1 Male
2 Female

HSE
Provision; Number of hours providing care - past week 2022 18-120 18 120 Participant No Past week Health Survey for England 2022 - Household Questionnaire No

Thinking only about the types of tasks and activities I showed you, how many hours did you spend helping (name of person respondent helps) in the last week?
INTERVIEWER EXPLAIN IF NECESSARY: not help over the phone or by internet, or doing occasional errands or odd jobs without the respondent
INTERVIEWER EXPLAIN IF NECESSARY: Please exclude travel time
INTERVIEWER: IF YOU THINK THE ANSWER MAY BE A DAILY AMOUNT, CHECK ‘So that is
xx hours in the last week?’, CHANGE ANSWER IF NECESSARY
INTERVIEWER NOTE: ROUND DOWN IF NECESSARY, e.g. IF 4.5 HOURS, CODE 1-4 hours’

1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

HSE
Provision; Number of hours providing care - past week 2022 18-120 18 120 Participant No Past week Health Survey for England 2022 - Household Questionnaire No

Thinking of the same type of help you give can you tell me whether in the last week you helped him/her:….READ OUT…
INTERVIEWER EXPLAIN IF NECESSARY: Please exclude travel time.”

1 Less than 10 hours
2 10-19 hours
3 20-34 hours
4 Or, for 35 hours or more?

HSE
Provision; Number of hours providing care - usual week 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

How many hours do you help (name of person respondent helps) in a usual week?
INTERVIEWER EXPLAIN IF NECESSARY: Please exclude travel time

Repeated for each person respondent helps

1 Less than one hour per week
2 1-4 hour per week
3 5-9 hours per week
4 10-19 hours per week
5 20-34 hours per week
6 35-49 hours per week
7 50-99 hours per week
8 100 hours or more per week

HSE
Provision; Number of hours spent providing care to all people 2022 18-120 18 120 Participant No Past week Health Survey for England 2022 - Household Questionnaire No

Thinking about the total time you spend providing support or help to , , about how many hours altogether did you spend last week helping them?

INTERVIEWER EXPLAIN IF NECESSARY: not help over the phone or by internet, or doing occasional errands/odd jobs without the respondent
INTERVIEWER: IF YOU THINK THE ANSWER MAY BE A DAILY AMOUNT, CHECK ‘So that is xx hours in the last week?’, CHANGE ANSWER IF NECESSARY
INTERVIEWER NOTE: ROUND DOWN IF NECESSARY, e.g. IF 4.5 HOURS, CODE ‘1-4 hours’

ENTER NUMBER

HSE
Provision; Number of hours spent providing care to all people 2022 18-120 18 120 Participant No Past week Health Survey for England 2022 - Household Questionnaire No

Thinking about the total time you spend providing support or help to ,, about how many hours altogether did you spend last week helping them?

1 Less than one hour per week
2 1-4 hour
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Provision; Activities completed when providing care 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Which of the activities do you help or support ? Please think only of help or support given because of long-term physical or mental ill-health, disability or problems relating to old age.

CODE ALL THAT APPLY
1 Getting the person in and out of bed
2 Washing their face and hands
3 Having a bath or a shower, including getting in and out of the bath or shower
4 Dressing or undressing, including putting on shoes and socks
5 Using the toilet
6 Eating, including cutting up food
7 Taking the right amount of medicine at the right times
8 Getting around indoors (please don’t include using the stairs)
9 Getting up and down stairs
10 Getting out of the house, for example to go to the doctors or to visit a friend
11 Shopping for food, including getting to the shops, choosing the items, carrying the items
home and then unpacking and putting the items away
12 Doing routine housework or laundry
13 Doing paperwork or paying bills

HSE
Provision; Receipt of money for care provided 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Do you receive any money for helping [your answer at PrRel]/ [answer from PrName1/2/3]?
INTERVIEWER DO NOT INCLUDE GIFTS, TREATS OR OCCASIONAL PAYMENTS OF
EXPENSES SUCH AS PETROL MONEY OR LUNCH CODE ALL THAT APPLY

How much do you receive per week or per month?

Repeated for up to 3 people respondent helps

1 Yes, this person pays me from their own income, pensions or savings
2 Yes, this person pays me from a personal budget or direct payment
3 Yes, I receive a carer’s allowance
4 Yes, I receive money in another way
5 No, I receive no money for helping this person.

1 Per week
2 Per month

HSE
Provision; Receipt of carer support 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Do you receive any of these types of support in caring for (name of person respondent helps)?
Please think only about help or support given directly to you.
Please read out the numbers that apply from this card

Repeat for one or all people respondent helps

1 Help from GP or nurse
2 Access to respite care
3 Help from professional care staff
4 Help from carers’ organisation or charity
5 Help from other family members
6 Advice from local authority/ social services
7 Help from friends/neighbours
8 No, I don’t receive any of these

HSE
Provision; Health effects from caring 2022 18-120 18 120 Participant No Past 3 months Health Survey for England 2022 - Household Questionnaire No

In the last three months, has your own health been affected, in any of the ways listed on this card, by the help or support that you give {IF HelpNo=1} =2} ^to the people you care for>.
Please read out the numbers that apply from this card?

CODE ALL THAT APPLY
1 Feeling tired
2 Feeling depressed
3 Loss of appetite
4 Disturbed sleep
5 General feeling of stress
6 Physical strain
7 Short tempered
8 Developed my own health condition
9 Made an existing condition worse
10 Other
11 No, none of these

HSE
Provision; Visiting GP due to caring health effects 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Have you seen your GP because your health has been affected by the support you give to {IFHelpNo=1} =2}> the people that you care for?

1 Yes
2 No

HSE
Provision; Impact of caring on employment 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Has your ability to take up or stay in employment been affected, in any of the ways listed on this card, by the help or support that you give to your {IF HelpNo=1} =2} ^the people you care for>.
Please read out the numbers that apply from this card?

CODE ALL THAT APPLY
1 Left employment altogether
2 Took new job
3 Worked fewer hours
4 Reduced responsibility at work
5 Flexible employment agreed
6 Changed to work at home
7 Other
8 Employment not affected

HSE
Provision; Receipt of carer's assessment 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Have the Local Authority (council) carried out a carer’s assessment as a result of the help or support that you provide {IF HelpNo=1} =2} ^to the people you care for>?

1 Yes
2 No

HSE
Receipt; Period of time help has been received for 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

How long have you been receiving any of the kinds of help we have been talking about? Would you say it is for less than a year, or one year or more?

1 Less than one year
2 One year or more

HSE
Receipt; Whether LA has reviewed needs in past year 2022 18-120 18 120 Participant No Past year Health Survey for England 2022 - Household Questionnaire No

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1 Yes
2 No

HSE
Receipt; Receipt of personal budget 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

This card describes a personal budget that your local authority may have allocated for you. Have you been given one of these?

CARD DESCRIPTIONS
Personal budget – When the local authority finds that you are eligible for support for your social care needs, your personal budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it.

1 Yes
2 No

HSE
Receipt; Value of personal budget 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

What is the value of your [Personal budget] per week or per month?
ASK OR RECORD: Is that amount per week or per month?

RECORD AMOUNT £:

1 Per week
2 Per month

HSE
Receipt; Personal budget via direct payments 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Are you taking any of your Personal Budget as a Direct Payment? IF YES, PROBE: Is that all or your Personal Budget or part of it?

CARD DESCRIPTION
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. (This should not be confused with benefits paid directly into a bank account which may also be called direct payments.)

1 Yes, all of personal budget as a Direct Payment
2 Yes, part of personal budget as Direct Payment
3 No, none of personal budget as direct payment
4 SPONTANEOUS: Not being paid my personal budget yet.

HSE
Receipt; Contribution to user charges of personal budget 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

How much do you contribute in user charges for your Personal Budget?

Is that amount per week or per month?

RECORD AMOUNT £:
OR CODE 0.00 for ‘None’

1 Per week
2 Per month

HSE
Receipt; Paying to top up personal budget 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

“In addition to your user charges,”] do you pay to top up
your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1 Yes
2 No

HSE
Receipt; Payment per week/month for personal budget 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

How much do you pay per week or per month to top up your Personal Budget?

Is that amount per week or per month?

RECORD AMOUNT £:

1 Per week
2 Per month

HSE
Receipt; Receipt of care paid for by LA 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Do you receive any care paid for by the council or the Local Authority?

1 Yes
2 No

HSE
Receipt; How much LA pays for care 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Do you know how much the local authority pays for your care, per week or per month?

Is that amount per week or per month?
1 Per week
2 Per month

RECORD AMOUNT £:
OR RECORD: Don’t know

HSE
Receipt; Paying privately for care 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

SHOWCARD C8
Thinking about the things listed on this card, [ [{IF LACare=1} “Apart from any care paid for by the local authority,] Do you pay for any care privately at the moment?

ON SHOWCARD C8:
Include care for things such as:
• Getting in and out of bed on your own
• Washing your face and hands
• Having a bath or a shower, including getting in and out of the bath or shower
• Dressing or undressing, including putting on shoes and socks
• Using the toilet
• Eating, including cutting up food
• Taking the right amount of medicine at the right times
• Getting around indoors
• Getting up and down stairs
• Getting out of the house
• Shopping for food
• Doing routine housework or laundry
• Doing paperwork or paying bills

1 Yes
2 No

HSE
Receipt; Paying privately for care - how much 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

How much do you pay for the care you purchase privately?
Is that amount per week or per month?

RECORD AMOUNT £:
1 Per week
2 Per month

HSE
Receipt; Hours of unpaid care received 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

SHOW CARD C9 card.
Now I’d like to ask you about all the hours of unpaid care that you receive from the people on this

CARD C9:
1 Husband / Wife / Partner
2 Son (incl. stepson, adopted son or son-in-law
3 Daughter (incl. stepdaughter, adopted daughter or daughter-in-law)
4 Grandchild (incl. great-grandchild)
5 Brother / Sister (incl. step / adopted / in-laws)
6 Niece / Nephew
7 Mother or Father (incl. mother-in-law or father-in-law)
8 Other family member
9 Friend
10 Neighbour
11 None of the above

Part 1:
First of all, I’d like you to think about anyone who lives here with you. In a typical week, how many hours of unpaid care do you receive from others living here?

Part 2:
And in a typical week, how many hours of unpaid care do you receive from people who do not live in the same household as you?

Prt 1:
RECORD NO. OF HOURS. ‘IF NONE, ENTER ‘0’

Part 2:
RECORD NO. OF HOURS. ‘IF NONE, ENTER ‘0’

HSE
Receipt; Meals provided for participant 2022 18-120 18 120 Participant No Past month Health Survey for England 2022 - Household Questionnaire No

In the last month, have you regularly had your main meals provided for you?
EXPLAIN IF NECESSARY: Provided by someone who is not living here with you?
INTERVIEWER: Don’t count meals eaten elsewhere.

1 Yes
2 No

HSE
Receipt; Who provided meals to participant 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Who provided your meals? PROBE: Who else?
INTERVIEWER EXPLAIN IF NECESSARY: Meals on Wheels may be provided by the council or another organization

1 Meals on Wheels
2 Private frozen meal provider such as Wiltshire farm foods
3 Family/friend/neighbour brought me ready prepared meals
4 Other
5 None of these

HSE
Receipt; Attendance of lunch club 2022 18-120 18 120 Participant No Past month Health Survey for England 2022 - Household Questionnaire No

In the last month did you attend a lunch club run by the council or a voluntary body?

1 Used in the last month
2 Not used in the last month

HSE
Receipt; Attendance of day centre 2022 18-120 18 120 Participant No Past month Health Survey for England 2022 - Household Questionnaire No

And in the last month did you attend a Day Centre? Please include groups or classes run by a day centre but not necessarily held at the day centre building.

1 Used in the last month
2 Not used in the last month

HSE
Provision; Provision of care 2022 18-120 18 120 Participant No Past month Health Survey for England 2022 - Household Questionnaire No

Have you personally provided help or support to anyone in the last month because they have long-term physical or mental ill-health, a disability or problems relating to old age? Do not include help given in a professional capacity or as part of a job, but include help or support given to your family, friends or neighbours.
INTERVIEWER: Include help for wife/husband/partner

1 Yes
2 No

HSE
Provision; Type of help provided 2022 18-120 18 120 Participant No Past month Health Survey for England 2022 - Household Questionnaire No

Can I just check, are you only including help or support that you give this person/these people because they have long-term physical or mental ill-health, disability or problems relating to old age, or were you thinking about help more generally?

1 Yes, thinking of help/support given because of health/old age
2 No, was thinking about help more generally

HSE
Provision; Number of people providing care to 2022 18-120 18 120 Participant No Past month Health Survey for England 2022 - Household Questionnaire No

How many people do you provide this kind of help and support to?

Range: 0..97

HSE
Receipt; Receipt of care-related benefits 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Can I just check, do you or any of your household receive any of these listed on this card? Please only think about people aged 16+ in your household. Just tell me the number beside the rows that best apply.

1 Attendance Allowance
2 Disability Living Allowance– care component
3 Disability Living Allowance – mobility component
4 Personal Independence Payment – daily living component
5 Personal Independence Payment – mobility component
6 None of these

HSE
Receipt; Who receives care related benefits 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Please could you tell me who receives these allowances in your household?

List people from household grid aged 16+

HSE
Receipt; Who receives care related benefits 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Now looking at this card, which of these rates is <^name of HH member selected at AttDisab> currently receiving? Just tell me the number beside the row that best apply.

Attendance Allowance
1 Higher rate for attendance during day AND night – £89.60
2 Lower rate for day OR night – £60.00
Disability Living Allowance (DLA) – Care Component
3 Highest rate – £89.60
4 Middle rate – £60.00
5 Lowest rate – £23.70
Disability Living Allowance (DLA) – Mobility Component
6 Highest rate – £62.55
7 Lower rate – £23.70
Personal Independence Payments (PIP) – Daily Living Component
8 Enhanced rate – £89.60
9 Standard rate – £60.00
Personal Independence Payments (PIP) – Mobility Component
10 Enhanced rate – £62.55
11 Standard rate – £23.70

HSE
Need; Ability to complete ADLs & IADLs 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Thinking about getting in and out of bed on your own, please look at this card and tell me the option which best applies to you? Just tell me the number beside the row that best applies.
INTERVIEWER: Do not include help from special aids or equipment such as wheelchairs or stair lifts.

Still looking at Showcard C1, what about…
(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home
and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Thinking about (insert shortened task B to M listed above in bold), please look at this card and tell me the option which best applies to you?

For each task the response scale is the same, as below:
1 I can do this without help from anyone
2 I have difficulty doing this but manage on my own
3 I can only do this with help from someone
4 I cannot do this

For the question concerning difficulty doing tasks the responses are as below:
1 I can do this without help from anyone
2 I have difficulty doing this but manage on my own
3 I can only do this with help from someone
4 I cannot do this

HSE
Need; ADL/IADL tasks helped with 2022 18-120 18 120 Participant No Past month Health Survey for England 2022 - Household Questionnaire No

Have you received help from anyone with getting in out of bed on your own, in the last month?
EXPLAIN IF NECESSARY: Include help even if it was for a short time or provided by husband/wife/ another family member

What about
(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home
and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Response scale for all tasks:
1 Yes
2 No

HSE
Need; Help with IADLs 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Do you receive this help with because of long standing physical or mental ill-health, a disability or problems relating to old age?

Tasks K-M are:
(K) shopping for food including getting to the shops, choosing the items, carrying the items home
and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Response scale for all tasks:
1 Yes for some or all
2 No, none of this help is because long standing physical or mental ill-health, disability or problems relating to old age

HSE
Need; Level of help needed with ADLs/IADLs 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Thinking about (insert shortened task B to M listed above in bold), please look at this card and tell me the option which best applies to you?

(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home
and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

1 I can do this without help from anyone
2 I have difficulty doing this but manage on my own
3 I can only do this with help from someone
4 I cannot do this

HSE
Need; Whether received help with ADLs/IADLs in past month 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Have you received help from anyone with getting in out of bed on your own, in the last month?
EXPLAIN IF NECESSARY: Include help even if it was for a short time or provided by husband/wife/ another family member

What about (insert shortened task B to M listed in bold)?
EXPLAIN IF NECESSARY: Include help even if it was for a short time or provided by husband/wife/ another family member
ASK IF NECESSARY: Have you received help from anyone with (insert shortened task B to M
listed in bold), in the last month?
1 Yes
2 No

(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home
and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Response scale for all tasks:
1 Yes
2 No

HSE
Receipt; Who helped with ADLs/IADLs in past month 2022 18-120 18 120 Participant No Past month Health Survey for England 2022 - Household Questionnaire No

In the last month, who has helped you with (insert list of tasks in group)?
First, please tell me about all of the people from this list who have helped you? Please only think about help received because of long-term physical or mental ill-health, disability or problems relating to old age.

Tasks list:
1 (C) Having a bath or a shower
2 Personal tasks (Activities of Daily Living)
(A) getting in and out of bed
(B) washing your face and hands
(D) dressing or undressing
(E) using the toilet
(F) eating, including cutting up food
(G) taking medication
(H) getting around indoors
(I) using stairs)
3 Other tasks (Instrumental Activities of Daily Living) (getting out of the house, shopping for
food, housework or laundry, doing paperwork or paying bills)

You’ve told me that your helped you. Can I just check, does this person live
in this household?

What is your name?

INTERVIEWER CODE OR ASK SEX OF PERSON WHO HELPS

1 Husband/Wife/Partner
2 Son (including step son, adopted son or son in law)
3 Daughter (including step daughter, adopted daughter or daughter in law)
4 Grandchild (including Great Grandchildren)
5 Brother / Sister (including step / adopted / in laws)
6 Niece / Nephew
7 Mother /father (including mother-in-law/ father-in-law)
8 Other family member
9 Friend
10 Neighbour
11 None of the above

For whether person lives in household:
Yes
No

For person who helps’ name:
Text: Maximum 20 characters

For interview coding sex of person who helps:
1 Male
2 Female

HSE
Receipt; Which services helped with ADLs/IADLs 2022 18-120 18 120 Participant No Past month Health Survey for England 2022 - Household Questionnaire No

Now, please tell me about all of the people from this list who have helped you with (insert list of tasks in group) in the last month?

Tasks list:
1 (C) Having a bath or a shower
2 Personal tasks (Activities of Daily Living)
(A) getting in and out of bed
(B) washing your face and hands
(D) dressing or undressing
(E) using the toilet
(F) eating, including cutting up food
(G) taking medication
(H) getting around indoors
(I) using stairs)
3 Other tasks (Instrumental Activities of Daily Living) (getting out of the house, shopping for
food, housework or laundry, doing paperwork or paying bills)

1 Home care worker /home help/personal assistant
2 A member of the reablement / intermediate care staff team
3 Occupational Therapist / Physiotherapist
4 Voluntary helper
5 Warden / Sheltered housing manager
6 Cleaner
7 Council’s handyman
8 Other (please specify)
9 None of the above

HSE
Receipt; How many people help? 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

You have told me that a home care worker/home help/personal assistant helped you in the last month. Do you have just one person helping you, or do you have more than one?

1 One
2 More than one

HSE
Receipt; Whether people help with different/same tasks 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Do they all help with the same kinds of things, or do you have different people helping with different things?

1 All help with same kind of things
2 Different people help with different things

HSE
Receipt; What help is given by care worker 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. Thinking of the first home care worker/ home help/ personal assistant, what sort of thing do they help you with?

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

HSE
Receipt; What second care worker helps with 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Thinking of the second home care worker/ home help/ personal assistant, what sort of thing do they help you with?

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

HSE
Receipt; Additional home care workers 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Are there any more home care workers, home helps or personal assistants who help you with different kinds of things?

1 Yes
2 No

HSE
Receipt; What third care worker helps with 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

Thinking of the third home care worker/ home help/ personal assistant, what sort of thing do they help you with? CODE MAIN TASK

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

HSE
Receipt; Time spent receiving care 2022 18-120 18 120 Participant No Past week Health Survey for England 2022 - Household Questionnaire No

Thinking about [person who helps], in the last week how many hours have they helped you in
person with these kinds of tasks?

ENTER NUMBER OF HOURS AND MINUTES.

HSE
Receipt; Number of hours of care 2022 18-120 18 120 Participant No Past week Health Survey for England 2022 - Household Questionnaire No

Thinking about , in the last week how many hours have they helped you in person with these kinds of tasks?
Please only think about the hours they were helping you with these kinds of tasks and not about the time they were around in the house or there to help you if you needed it]

1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

HSE
Receipt; Number of hours of care 2022 18-120 18 120 Participant No Current Health Survey for England 2022 - Household Questionnaire No

How many hours does help you in a usual week?

1 Less than one hour
2 1-4 hours
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Receipt; Number of hours of care 2022 18-120 18 120 Participant No Past week Health Survey for England 2022 - Household Questionnaire No

Can you tell me whether in the last week your helped you in person with these tasks for:

1 Less than 20 hours
2 20-34 hours
3 Or for 35 hours or more?

HSE
Provision; Providing care to someone 2021 50-120 50 120 Participant No Current HEAF Follow-up 6 No

In an average week, roughly how many hours would you spend doing the following activities? (Please answer each question)_x000D_

a) Working in a paid job (whether employed or self-employed)
b) Giving personal care to someone in your home or family
c) Working in an unpaid job for others outside your home and family (e.g. as a volunteer for a charity)

HEAF
Need; Completion of tasks including ADL 2021 50-120 50 120 Participant No Current HEAF Follow-up 6 No

The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so, please indicate how much?

a) Vigorous activities, such as running, lifting heavy
objects, participating in strenuous sports
b) Moderate activities, such as moving a table,
pushing a vacuum cleaner, bowling or playing golf
c) Lifting or carrying groceries
d) Climbing several flights of stairs
e) Climbing one flight of stairs
f) Bending, kneeling or stooping
g) Walking more than one mile
h) Walking half a mile
i) Walking one hundred yards
j) Bathing or dressing yourself

(One tick for each row)
Yes, limited a lot
Yes, limited a little
No, not limited at all
Not Applicable

HEAF
Provision; Whether child has caring responsibilities 2023 8-16 8 16 Parent No Current Parent Questionnaire (of children aged 8 to 16 years old) No

“{if Age2022=16: “Apart from anything {if NickNameP=RESPONSE: “NicknameP”, else:”first_name”} does as part of paid employment, does {if Gender=1: “he”, Gender=2: “she”}”, if Age2022=7-15: “Does {if NickNameP=RESPONSE: “NicknameP”, else:”first_name”}”} look after, or give any regular help or support to family members, friends, neighbours or others because of either long-term physical ill-health, mental ill-health, disability; or problems related to old age?” ANALYSIS:”Parent: Whether child has any caring responsibilities”_x000D_

1. Yes
2. No

General health

MHCYPS
Provision; How many hours of caring responsibilities child has 2023 8-16 8 16 Parent No Current Parent Questionnaire (of children aged 8 to 16 years old) No

“How many hours a week, on average, does {first_name} spend doing this?” ANALYSIS:”Parent: Average number of hours a week child spends on caring responsibilities”

1. Less than one hour
2. 1-4 hours
3. 5-9 hours
4. 10-19 hours
5. 20-34 hours
6. 35-49 hours
7. 50 hours or more

MHCYPS
Receipt; Using social care services support for mental health issues 2023 8-16 8 16 Parent No Current Parent Questionnaire (of children aged 8 to 16 years old) No

“Since {textfill year ago date}, have you or {if NickNameP=RESPONSE: “NicknameP”, else:”first_name”} been in contact with any of the following people or services because of worries about {if NickNameP=RESPONSE: “NicknameP”, else:”first_name”}’s mental health or emotional, behavioural or concentration problems? G_Multi_II1”ANALYSIS:”Parent: Whether been in contact with services about child’s mental health inpast year

1. A teacher (for example, form teacher, head of year)
2. Someone from school-based mental health support services (for example, school counsellor or someone from a school Mental Health Support Team)
3. Someone working in educational support services (for example, aneducational psychologist or external specialist teacher)
4. Someone from primary health care (for example, a GP, practice nurse or school nurse)
5. Someone from Child and Adolescent Mental Health Services (CAMHS) (for
example, child psychologist or psychiatrist, child mental health nurse, or family therapist)
6. Someone specialising in children’s physical health (for example, a hospital or community paediatrician, or occupational therapist)
7. Someone from social care (for example, a social worker or family support worker)
8. A private, paid for service (for example, a private child psychiatrist, psychologist, therapist or counsellor)
9. Accident and Emergency or an Emergency Department
10. Other (please specify)
11. No contact with any professional/service [EXCLUSIVE CODE]

MHCYPS
Provision; Young carer responsibilities 2023 17-25 17 25 Participant No Current Young Person Questionnaire (17 to 25 years old) No

“Apart from anything you do as part of paid employment, do you look after, or give any regular help or support to family members, friends, neighbours or others because of either long-term physical ill-health, mental ill-health, disability; or problems related to old age?” ANALYSIS:”Young Person: Whether has any caring responsibilities”

1. Yes
2. No

MHCYPS
Provision; Young carer responsibilities - number of hours 2023 17-25 17 25 Participant No Current Young Person Questionnaire (17 to 25 years old) No

How many hours a week, on average, do you spend doing this?” ANALYSIS:”Young Person: Average number of hours a week spends on caring responsibilities

1. Less than one hour
2. 1-4 hours
3. 5-9 hours
4. 10-19 hours
5. 20-34 hours
6. 35-49 hours
7. 50 hours or more

MHCYPS
Receipt; Using social care services support for mental health issues 2023 17-25 17 25 Participant No Current Young Person Questionnaire (17 to 25 years old) No

“Since {textfill year ago date}, have you been in contact with any of the following people or services because of worries about your mental health or emotional, behavioural or concentration problems?

1. A teacher or member of college or university staff (for example, tutor,
lecturer, head of year)
2. Someone from a school, college or university mental health support service
(for example, a college or university counsellor)
3. Someone working in educational support services (for example, an
educational psychologist)
4. Someone from primary health care (for example, your GP, practice nurse)
5. Someone from specialist mental health services such as Child and Adolescent
Mental Health Services (CAMHS) or Adult Mental Health Services (AMHS)
(for
example, psychologist or psychiatrist, or mental health nurse)
6. Someone specialising in physical health (for example, a hospital doctor, a
doctor or nurse in outpatient clinic)
7. Someone from social care (for example, a social worker or family support
worker)
8. A private, paid for service (for example, a private psychiatrist, psychologist,
therapist or counsellor)
9. Accident and Emergency or an Emergency Department
10. Other (please specify)
11. No contact with any service/professional [EXCLUSIVE CODE]_x000D_

MHCYPS
Receipt; Settled accommodation indicator 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

An indication of the type of accommodation that a PATIENT currently has. This should be based on the PATIENT’s main or permanent residence.

*Start and end date at these accommodations is also recorded in the dataset.

Owner occupier
Tenant – Local Authority/Arms Length Management Organisation/registered social housing provider
Tenant – private landlord
Living with family
Living with friends
University or College accommodation
Accommodation tied to job (including Armed Forces)
Mobile accommodation
Care home without nursing
Care home with nursing
Specialist Housing (with suitable adaptations to meet impairment needs and support to live independently)
Rough sleeper
Squatting
Sofa surfing (sleeps on different friends floor each night)
Staying with friends/family as a short term guest
Bed and breakfast accommodation to prevent or relieve homelessness
Sleeping in a night shelter
Hostel to prevent or relieve homelessness
Temporary housing to prevent or relieve homelessness
Admitted patient settings
Criminal justice settings
Other (not listed)
Yes – Settled Accommodation
No – Non-settled Accommodation
Not Stated (PATIENT asked but declined to provide a response)
Not known (Not Recorded)

MHSDS
Provision; Young carer indicator 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

An indication of whether a child or young person (PATIENT) has a caring role for an ill or disabled Parent/Carer/Sibling.

Yes – PATIENT has a caring role for an ill or disabled parent, Carer or sibling
No – PATIENT does not have a caring role for an ill or disabled parent, Carer or sibling
Not Stated (PATIENT asked but declined to provide a response)
Not known whether the PATIENT is a young Carer

MHSDS
Receipt; Looked after child indicator 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

An indication of whether a PATIENT is a Looked After Child.

Yes – is a Looked After Child
No – is not a Looked After Child
Not Known if the PATIENT is a Looked After Child
Section 20 Voluntary Agreement
Section 31 Care Order
Section 38 Interim Care Order
Other (not listed)

MHSDS
Need; Disability and whether it limits day-to-day activities 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

The DISABILITY of a PERSON.

Part 1:
This could be where:
the PERSON has been diagnosed as disabled or
the PERSON considers themself to be disabled.

Part 2:
The patient’s perception of whether their day-to-day activities are limited because of a health problem or disability which has lasted, or is expected to last, at least 12 months

Part 1:
Behaviour and Emotional
Hearing
Manual Dexterity
Memory or ability to concentrate, learn or understand (Learning Disability)
Mobility and Gross Motor
Perception of Physical Danger
Personal, Self Care and Continence
Progressive Conditions and Physical Health (such as HIV, cancer, multiple sclerosis, fits etc)
Sight
Speech
Other (not listed)
No Disability
Not Stated (Person asked but declined to provide a response)

Part 2:
Yes – limited a lot
Yes – limited a little
No – not limited
Prefer not to say (Patient asked but declined to provide a response)

MHSDS
Receipt; Carers approving discharge plans 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

The type of PERSON, SERVICE or ORGANISATION that agreed the content of the Discharge Plan for the PATIENT

Patient or Patient Proxy
Advocate
Clinical Service or Team
Local Community Support Team
Current Commissioner
Commissioner of Planned Discharge Destination
Family member or carer with parental responsibility
Family member or carer without parental responsibility

MHSDS
Receipt; Location of activities including care settings 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

“The type of LOCATION for an ACTIVITY:
• where PATIENTS are seen
• where SERVICES are provided or
• from which requests for SERVICES are sent.”

Patient’s home
Carer’s home
Patient’s workplace
Other patient related location
Primary Care Health Centre
Polyclinic
General Medical Practitioner Practice
Dental Practice
Ophthalmic Medical Practitioner premises
Walk In Centre
Out of Hours Centre
Emergency Community Dental Service
Out-Patient Clinic
Ward
Day Hospital
Emergency Care Department or Minor Injuries Department
Other departments
Hospice
Care Home Without Nursing
Care Home With Nursing
Children’s Home
Integrated Care Home Without Nursing and Care Home With Nursing
Day Centre
Resource Centre
Sure Start Children’s Centre
Child Development Centre
School
Further Education College
University
Nursery Premises
Other Childcare Premises
Training Establishments
Other Educational Premises
Prison
Probation Service Premises
Police Station / Police Custody Suite
Young Offender Institution
Young Offender Institution (15-17)
Young Offender Institution (18-21)
Immigration Removal Centre
Street or other public open space
Other publicly accessible area or building
Voluntary or charitable agency premises
Dispensing Optician premises
Dispensing Pharmacy premises
Other locations not elsewhere classified

MHSDS
Receipt; Care workers in attendance with patient at care 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

The other PERSON in attendance, with the PATIENT, at the CARE CONTACT.

Independent Advocate (Family Member)
Independent Advocate (Independent Person)
Independent Mental Capacity Advocate (IMCA)
Independent Mental Health Advocate (IMHA)
Non-Instructed Advocate
Parent or relative (Non-Advocate)
Friend or neighbour (Non-Advocate)
Care Worker (Non-Advocate)

MHSDS
Receipt; Source of admission to mental health services 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

The source of admission to a Hospital Provider Spell.

*time and date are also recorded in this data set

Usual place of residence unless listed below, for example, a private dwelling whether owner occupied or owned by Local Authority, housing association or other landlord. This includes wardened accommodation but not residential accommodation where health care is provided. It also includes PATIENTS with no fixed abode.
Temporary place of residence when usually resident elsewhere (e.g. hotels, residential Educational Establishments)
Court
Penal establishment
Police Station / Police Custody Suite
NHS other Hospital Provider – high security psychiatric accommodation in an NHS Hospital Provider (NHS Trust or NHS Foundation Trust)
NHS other Hospital Provider – ward for general patients or the younger physically disabled or Emergency Care Department
NHS other Hospital Provider – WARD for maternity PATIENTS or Neonates
NHS other Hospital Provider – WARD for PATIENTS who are mentally ill or have Learning Disabilities
Care Home With Nursing
Care Home Without Nursing
Local Authority foster care
Independent Sector Healthcare Provider run hospital
Hospice
Not applicable
Not Known

MHSDS
Receipt; Planned discharge destination from mental health services. 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

The planned destination of a PATIENT on completion of a Hospital Provider Spell.

*estimated/planned discharge date is also recorded in this data set

Usual place of residence unless listed below, for example, a private dwelling whether owner occupied or owned by Local Authority, housing association or other landlord. This includes wardened accommodation but not residential accommodation where health care is provided. It also includes PATIENTS with no fixed abode.
Temporary place of residence when usually resident elsewhere (includes hotel, residential Educational Establishment)
Repatriation from high security psychiatric accommodation in an NHS Hospital Provider (NHS Trust or NHS Foundation Trust)
Court
Penal establishment
Police Station / Police Custody Suite
High Security Psychiatric Hospital, Scotland
NHS other Hospital Provider – high security psychiatric accommodation
NHS other Hospital Provider – medium secure unit
NHS other Hospital Provider – WARD for general PATIENTS or the younger physically disabled
NHS other Hospital Provider – WARD for maternity PATIENTS or Neonates
NHS other Hospital Provider – WARD for PATIENTS who are mentally ill or have Learning Disabilities
Care Home With Nursing
Care Home Without Nursing
Local Authority foster care
PATIENT died or stillbirth
Independent Sector Healthcare Provider run hospital – medium secure unit
Independent Sector Healthcare Provider run hospital – excluding medium secure unit
Hospice
ORGANISATION responsible for forced repatriation
Not applicable
Not known

MHSDS
Receipt; Discharge destination from mental health services. 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

The destination of a PATIENT on completion of a Hospital Provider Spell, or a note that the PATIENT died.

*time and date are also recorded in this data set

Usual place of residence unless listed below, for example, a private dwelling whether owner occupied or owned by Local Authority, housing association or other landlord. This includes wardened accommodation but not residential accommodation where health care is provided. It also includes PATIENTS with no fixed abode.
Temporary place of residence when usually resident elsewhere (includes hotel, residential Educational Establishment)
Repatriation from high security psychiatric accommodation in an NHS Hospital Provider (NHS Trust or NHS Foundation Trust)
Court
Penal establishment
Police Station / Police Custody Suite
High Security Psychiatric Hospital, Scotland
NHS other Hospital Provider – high security psychiatric accommodation
NHS other Hospital Provider – medium secure unit
NHS other Hospital Provider – WARD for general PATIENTS or the younger physically disabled
NHS other Hospital Provider – WARD for maternity PATIENTS or Neonates
NHS other Hospital Provider – WARD for PATIENTS who are mentally ill or have Learning Disabilities
Care Home With Nursing
Care Home Without Nursing
Local Authority foster care
PATIENT died or stillbirth
Independent Sector Healthcare Provider run hospital – medium secure unit
Independent Sector Healthcare Provider run hospital – excluding medium secure unit
Hospice
ORGANISATION responsible for forced repatriation
Not applicable
Not known

MHSDS
Receipt; Reason unable to discharge patient - inc. social care delays 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

The reason that a patient was not able to be discharged despite being clinically ready for discharge.

Awaiting care coordinator allocation
Awaiting allocation of community psychiatrist
Awaiting allocation of social worker
Awaiting public funding or decision from funding panel
Awaiting further community or mental health NHS Services not delivered in an acute setting including intermediate care, rehabilitation services, step down service
Awaiting availability of placement in prison or Immigration Removal Centre
Awaiting availability of placement in care home without nursing
Awaiting availability of placement in care home with nursing
Awaiting commencement of care package in usual or temporary place of residence
Awaiting provision of community equipment and/or adaptations to own home
Patient or Family choice
Disputes relating to responsible commissioner for post-discharge care
Disputes relating to post-discharge care pathway between clinical teams and/or care panels
Housing – awaiting availability of private rented accommodation
Housing – awaiting availability of social rented housing via council housing waiting list
Housing – awaiting purchase/sourcing of own home
Housing – Patient NOT eligible for funded care or support
Housing – Awaiting supported accommodation
Housing – Awaiting temporary accommodation from the Local Authority under housing legislation
Awaiting availability of residential children’s home (non-secure)
Awaiting availability of secure children’s home (welfare or non-welfare)
Awaiting availability of placement in Youth Offender Institution
Child or young person awaiting foster placement
Awaiting Ministry of Justice agreement to proposed placement
Awaiting outcome of legal proceedings under relevant Mental Health legislation
Awaiting Court of Protection proceedings
Awaiting Deprivation of Liberty Safeguards (DOLS) Application
Delay due to consideration of specific court judgements
Awaiting residential special school or college placement
Lack of local education support
Public safety concern unrelated to clinical treatment need (care team and/or ministry of justice)
Highly bespoke housing and/or care arrangements not available in the community
No lawful support available in the community excluding social care
No social care support including social care funded placement
Delays to NHS-led assessments in the community
Hospital staff shortages
Delays to non-NHS led assessments in the community
Reason not known

MHSDS
Receipt; Which organisation attributable to discharge 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

An indication to which ORGANISATION the Clinically Ready for Discharge Period is attributable.

NHS
Social Care
Both (NHS and Social Care)

MHSDS
Receipt; Location where patients complete a self assessment 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

The type of physical LOCATION where PATIENTS complete the self assessment.

Patient’s home
Carer’s home
Patient’s workplace
Other patient related location
Primary Care Health Centre
Polyclinic
General Medical Practitioner Practice
Dental Practice
Ophthalmic Medical Practitioner premises
Walk In Centre
Out of Hours Centre
Emergency Community Dental Service
Out-Patient Clinic
Ward
Day Hospital
Emergency Care Department or Minor Injuries Department
Other departments
Hospice
Care Home Without Nursing
Care Home With Nursing
Children’s Home
Integrated Care Home Without Nursing and Care Home With Nursing
Day Centre
Resource Centre
Sure Start Children’s Centre
Child Development Centre
School
Further Education College
University
Nursery Premises
Other Childcare Premises
Training Establishments
Other Educational Premises
Prison
Probation Service Premises
Police Station / Police Custody Suite
Young Offender Institution
Young Offender Institution (15-17)
Young Offender Institution (18-21)
Immigration Removal Centre
Street or other public open space
Other publicly accessible area or building
Voluntary or charitable agency premises
Dispensing Optician premises
Dispensing Pharmacy premises
Other locations not elsewhere classified

MHSDS
Receipt; Codes for bosies including Social Work England 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

A code which identifies the PROFESSIONAL REGISTRATION BODY.

General Chiropractic Council
General Dental Council
General Medical Council
General Optical Council
Social Care Wales
Health and Care Professions Council
Nursing and Midwifery Council
General Pharmaceutical Council
General Osteopathic Council
Social Work England

MHSDS
Receipt; Staff group of care professionals 2022 0-120 0 120 Data manager No Current MHSDS 6.0 2022 Data collection template No

The staff group of a CARE PROFESSIONAL working in a Mental Health Service.

Medical
Nursing
Psychology
Primary Mental Health
Child and Adolescent Psychotherapy
Counselling
Family and Systemic Psychotherapy
Occupational Therapy
Social Work
Creative Therapy
Other Therapy (Qualified)
Education
Speech and Language Therapy
Other (Qualified)
Other (Unqualified)

MHSDS
Receipt; Whether current address nursing home 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Part 1:
Is your current address….

Part 2:
Are you living at this with any other members of your family?

Part 1:
1. …a private residence (including one tied to your job)
2. Educational residential accommodation (e.g. a hall of residence)
3. a hotel, boarding house or bed & breakfast
4. a hostel for homeless, refuge, YMCA, YWCA, etc.
5. a barracks, nurses’ hall of residence, teachers’ accommodation, or other accommodation provided by your employer
6. a room only at a workplace
9. or a hospital, nursing home or similar institution?
Valid missing values: None allowed

Part 2:
1. Yes
2. No

MCS
Receipt; Whether child lives with carer 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Who does CM_FirstName live with at home or in the place where they live most of the time?

1 Parent(s) – including step-parent, adoptive parent or foster parent
2 Their own partner, husband or wife
3 Their own children – including step-children, adopted children or foster children
4 Siblings – including half-siblings, step-siblings, adoptive siblings or foster-siblings
5 Other relative (e.g. grandparents, aunts, uncles)
6 Friends / housemates
7 A paid carer or nurse
8 Other non-relative
9 On their own (EXCLUSIVE)

MCS
Need; Conditions which could lead to social care need 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Part 1:
Does this/Do any of these condition(s) or illness(es) affect CM_FirstName in any of the following areas?

Part 2:
Does this/Do any of these condition(s) or illness(es) reduce CM_FirstName’s ability to carry out day-to-day activities?  Would you say…

Part 1:
1 Vision (for example blindness or partial sight)  
2 Hearing (for example deafness or partial hearing)  
3 Mobility (for example walking short distances or climbing stairs)  
4 Dexterity (for example lifting and carrying objects, using a keyboard)  
5 Learning or understanding or concentrating  
6 Memory  
7 Mental health  
8 Stamina or breathing or fatigue  
9 Socially or behaviourally (for example associated with autism, attention deficit disorder or Asperger’s Syndrome)  
10 Other (please write in the box below) {VARNAME PXCLSO 200} 
11 {EXCLUSIVE}: None of these

Part 2:
1 Yes, a lot,  
2 Yes, a little  
3 Not at all

MCS
Receipt; Whether carer is giving proxy interview 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Who is giving the proxy interview?

1. Cohort member’s parent
2. Cohort member’s partner
3. Cohort member’s sibling
4. Another relative
5. A friend or informal carer
6. A paid carer
7. Someone else (Specify [100]) (VARLAB:WHoProxOth)

MCS
Receipt; Whether participant lives with paid carer 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Who does CM_FirstName live with at home or in the place where they live most of the time?

1 Parent(s) – including step-parent, adoptive parent or foster parent
2 Their own partner, husband or wife
3 Their own children – including step-children, adopted children or foster children
4 Siblings – including half-siblings, step-siblings, adoptive siblings or foster-siblings
5 Other relative (e.g. grandparents, aunts, uncles)
6 Friends / housemates
7 A paid carer or nurse
8 Other non-relative
9 On their own (EXCLUSIVE)

MCS
Provision; Stopping education to care for someone 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Why did you stop this course?

1. Transferred to a course which you preferred
2. Did not enjoy the university/college environment
3. Did not enjoy the course
4. Physical or mental health problems
5. To care for a friend or relative that needed your help
6. Did not secure grades to continue
7. Was concerned about debt/ needed money
8. Because of an employment opportunity
9. COVID-related reasons
10. Other reason

MCS
Receipt; Receipt of care-related benefits 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Which, if any, of the following types of payments are you {IF ^DVHHGLPT =1: “or ^RESPARTNERNAME”} currently receiving? {IF UNCR=1: Do not include any benefits that you {IF ^DVHHGLPT =1: “or ^RESPARTNERNAME”} are receiving as part of your Universal Credit}

Multiple response
1. Jobseeker’s Allowance
2. Income Support
3. Sickness, disability or incapacity benefits (including Employment and Support Allowance or Personal Independence Payments)
4. Pension – including private pensions, State Retirement Pension or pension credit (including
guarantee credit, savings credit or housing credit)
5. Child Benefit
6. Tax credits – such as the Working Tax Credit, Disabled Person Tax Credit or Child Tax Credit
7. Any other family related benefit or payment
8. Housing Benefit – including direct payments to your landlord or Council Tax Reduction or relief
9. Carer’s Allowance
10. Income from any other state benefit
11. None of these (EXCLUSIVE)

MCS
Receipt; Child in care 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Please can you tell us why they do not live with you?

1.They live with your partner or another family member.
2.They are in institutional care (including a care home or children’s home)
3.They are in foster care
4.They passed away
5.Another reason – please write in (VARLAB XLBOUTCOMECHK)
-9 – Don’t wish to answer (only show if try to move on)

MCS
Receipt; Receipt of care including foster care 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Since you were {HFAGLS00)”} have you lived in any of the places on this card away from your parents?

1 Local authority children’s or living support home
2 Local authority foster parents
3 Voluntary society children’s or living support home
4 Voluntary society foster parents
5 Living with relatives
6 Prison/Young Offenders Institute/Borstal
7 Children’s home- not sure which type
8 Foster parents – not sure which type
9 None of these places

MCS
Receipt; Lived in care home/with foster parents 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Since you were {HFAGLS00 } have you lived in any of the places on this card away from your parents?

1 Statutory children’s home
2 Foster parents

MCS
Receipt; Time spent in care 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Which best describes the total amount of time you have ever spent in care?

1. Under three months
2. Three months, less than 1 year
3. 1 year, less than 2 years
4. 2 years, less than 5 years
5. 5 years or more

MCS
Receipt; In care at time left school 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Were you in care at the time you left school?

1 Yes
2 No

MCS
Receipt/Provision; Still living at home as provide or require care 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

What is the main reason you are still living your parent(s)?

1. I would like to move into my own home, but I cannot afford to
2. I am saving up for a deposit to move into my own home
3. I do not wish to move into my own home at the moment.
4. My parent(s) or other relative require(s) care
5. I require care
6. I returned home after university
7. I returned home due to the COVID pandemic
8. I need parental help with childcare
9. Another reason (PLEASE WRITE IN) {VARNAME PAHZ 200}

MCS
Provision; Whether provides care 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Some people have extra responsibilities because they look after someone who has long-term physical or mental health difficulties or disability, or problems related to old age. Do you regularly look after anyone who is ill, disabled or elderly and in need of care, without being paid? This includes both people who live with you and those who live elsewhere. Please do not include caring you do for others that you do in a professional capacity (i.e. as a job).

1 Yes
2 No

MCS
Provision; Who participant cares for 2023 18-120 18 120 Participant No Current MCS8 Cohort Member questionnaire June 2023 No

Please tell us who you care for. Select all that apply

1 Mother
2 Father
3 Brother(s)
4 Sister(s)
5 Grandmother(s)
6 Grandfather(s)
7 Spouse/partner
8 Your child
9 Somebody else (PLEASE WRITE IN) {VARNAME CRWZ 200}

MCS
Provision; How much time spent caring 2023 18-120 18 120 Participant No Past week MCS8 Cohort Member questionnaire June 2023 No

Taking account of all the unpaid help you give, including travelling time, about how long did you spend looking after people last week?

1 0-2 hours
2 3-4 hours
3 5-9 hours
4 10-19 hours
5 20-29 hours
6 30 hours or more

MCS
Need; Conditions which could lead to social care need 2023 18-120 18 120 Partner No Current MCS8 Partner questionnaire June 2023 No

Part 1:
Does this/Do any of these condition(s) or illness(es) affect you in any of the following areas?

Part 2:
Does this/Do any of these condition(s) or illness(es) reduce your ability to carry out day-to-day
activities?

Part 1:
1 Vision (for example blindness or partial sight)
2 Hearing (for example deafness or partial hearing)
3 Mobility (for example walking short distances or climbing stairs)
4 Dexterity (for example lifting and carrying objects, using a keyboard)
5 Learning or understanding or concentrating
6 Memory
7 Mental health
8 Stamina or breathing or fatigue
9 Socially or behaviourally (for example associated with autism, attention deficit disorder or
Asperger’s Syndrome)
10 Other (PLEASE SPECIFY) {VARNAME PCLSO 200}
11 {EXCLUSIVE} None of these

Part 2:
1 Yes, a lot
2 Yes, a little
3 Not at all

MCS
Provision; Nursing home resident - hours spent helping 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

In total, how many hours do you spend each week looking after or helping this person/these people?

0-4 hours per week 1
5-9 hours per week 2
10-19 hours per week 3
20-34 hours per week 4
35-49 hours per week 5
50-99 hours per week 6
100 or more hours per week/continuous care 7
Varies under 20 hours 8
Varies 20 hours or more 9
Other 10

MRC
Need; Nursing home resident - who most likely provide help 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

If you (and your spouse) needed help with daily activities because of sickness, frailty or disability, who would be most likely to provide help?

Son (including stepson, adopted son or son in law) 1
Daughter (including stepdaughter, adopted daughter, daughter in law) 2
Other family member 3
Friend or Neighbour (including voluntary helper) 4
Paid/professional help 5
Other, please specify 6

MRC
Need; Nursing home resident - cognitive state 2024 74-76 74 76 Friend/relative No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY – To be asked to a family member or friend

I will now ask you some questions about how {Forenames} performs some day to day activities. Please consider each question in the context of whether there has been a change in {Forenames}’s behaviour over the past several years. Answering “Yes, a change” indicates that there has been a change in the last several years caused by cognitive
(thinking and memory) problems.

1. Problems with judgement (e.g. problems making decisions, bad financial decisions, problems with thinking)?
2. Less interest in hobbies/activities?
3. Repeats the same things over and over (questions, stories, or statements)?
4. Trouble learning how to use a tool, appliance, or gadget (e.g., VCR, computer, microwave, remote control)?
5. Forgets correct month or year?
6. Trouble handling complicated financial affairs (e.g., balancing checkbook, income taxes, paying bills)?
7. Trouble remembering appointments
8. Daily problems with thinking and/or memory?

For each of the 8 questions, the response scale is the same:
1 Yes, a change
2 No, no change
3 Don’t know

MRC
Need; Ability to complete ADLs with or without help 2022 70-72 70 72 Participant No Current Postal Questionnaire 2022 (Version: 10/05/2022) No

These questions relate to your independence to perform daily tasks. Are you able to do the following activities alone or is help required?

Feed myself
Bathing (e.g. shower, bath)
Grooming (e.g. brushing teeth,
shaving)
Dressing (including buttons,
zips)
Toilet use (including managing
personal hygiene)
Stairs (including with aids such
as a walking stick)
Cutting toenails

For each task:
I can do this myself
I can do this myself but with difficulty
I need help with this
I am unable to manage this

MRC
Need; Transferring bed to chair with or without help 2022 70-72 70 72 Participant No Current Postal Questionnaire 2022 (Version: 10/05/2022) No

Are you able to transfer from a bed to a chair and back again independently, or is help required?

Independently
Independently but with difficulty
I need minor help (someone to be with me)
I need major help (people to physically help me), but I can sit unsupported
Unable (5)

MRC
Need; Moving on level surface with or without help 2022 70-72 70 72 Participant No Current Postal Questionnaire 2022 (Version: 10/05/2022) No

Are you able to move on level surfaces alone or is help required?

Independently (but may use any aid, e.g. walking stick or frame), can move more than 5 yards
Independently but with difficulty (including with any aid), can move more than 5 yards
Walk with help of one person (verbal or physical), can move more than 5 yards
Using a wheelchair independently, including corners, can move more than 5 yards
Immobile or can move less than 5 yards

MRC
Need; Ability to complete IADLs with or without help 2022 70-72 70 72 Participant No Current Postal Questionnaire 2022 (Version: 10/05/2022) No

The following questions are about everyday activities. Please record what you have done in the last month. If you have not done an activity in the last month because you are not able to do it, then please put a “x” in “I am unable to manage this”. If you have the ability to do it, but have not done it, for example the weather has been too bad for gardening, please put an “x” in “Not applicable”

Walk around outside?
Climb stairs?
Get in and out of a car?
Walk over uneven ground?
Cross roads?
Travel on public transport?
Manage to feed yourself?
Manage to make yourself a hot drink?
Take hot drinks from one room to
another?
Do the washing up?
Make yourself a hot snack?
Manage your own money when out?
Wash small items of clothing?
Do your own housework?
Do your own shopping?
Do a full clothes wash?
Read newspapers or books?
Use the phone?
Write letters?
Go out socially?
Manage your own garden?
Drive a car?

For each task:
I can do this myself
I can do this myself but with difficulty
I need help with this
I am unable to manage this
Not applicable

MRC
Receipt; Nursing home resident - quality of life, mental physical health 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

HAVE YOU RECENTLY:
1. Been feeling perfectly well and in good health?
2. Been feeling in need of a good tonic?
3. Been feeling run down and out of sorts?
4. Felt that you are ill?
5. Been getting any pains in your head?
6. Been getting a feeling of tightness or pressure in your
7. Been having hot or cold spells?
8. Lost much sleep over worry?
9. Had difficulty staying asleep once you are off?
10. Been managing to keep yourself busy and occupied?
11. Been taking longer over the things you do?
12. Felt on the whole you were doing things well?
13. Been satisfied with the way you’ve carried out your task?
14. Felt that you are playing a useful part in things?
15. Felt capable of making decisions about things?
16. Felt constantly under strain?
17. Been able to enjoy your normal day-to-day activities?
18. Been getting edgy and bad-tempered?
19. Been getting scared or panicky for no good reason?
20. Found everything getting on top of you?
21. Been thinking of yourself as a worthless person?
22. Felt that life is entirely hopeless?
23. Been feeling nervous and strung-up all the time?
24. Felt that life isn’t worth living?
25. Thought of the possibility that you might make away with yourself?
26. Found at times you couldn’t do anything because your nerves were too bad?
27. Found yourself wishing you were dead and away from it all?
28. Found that the idea of taking your life kept coming into your mind?

For all questions the following response scale is used:
Better than usual 1
Same as usual 2
Worse than usual 3
Much worse than usual 4

OR

Not at all 1
No more than usual 2
Rather more than usual 3
Much more than usual 4

DEPENDING ON WHICH IS APPROPRIATE

MRC
Receipt; Nursing home resident - Addenbrookes Cog Exam 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Addenbrooke’s Cognitive Examination
(ACE) (via iPAD)

If willing, participant will complete Addenbrooke’s Cognitive Examination.

MRC
Receipt; Nursing home resident - measurements and weight 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Participant is measured and weighed.

If willing/possible measurements and weight recorded

MRC
Receipt; Nursing home resident - chair raise test 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Chair raise test

Results of chair raise test

MRC
Receipt; Nursing home resident - balance/co-ordination 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Balance and co-ordination tests

Results of balance and co-ordination tests

MRC
Receipt; Nursing home resident - walking speed 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Walking speed test

Results of walking speed test

MRC
Receipt; Nursing home resident - hand grip test 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Hand grip test

Results of hand grip test

MRC
Receipt; Nursing home resident - lung function 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Lung function test

Results of lung function test

MRC
Receipt; Nursing home resident - cognitive tests 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Cognitive tests

Results of cognitive test

MRC
Receipt; Nursing home resident - household net income 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Which of the letters on the SHOWCARD A represents your total net household income? Please include your own and your partner’s earned income (after deduction for income tax and national insurance), any state benefits and any other sources of income such as pension, interest and rental income. Please also include contributions from other members of your household (such as children). Please choose the period (annual, monthly or weekly) that is most convenient for you to use. Then, find the amount in pounds which represents your net household income and state the corresponding letter.

Annual Monthly Weekly
Less than £6,000 A =1 less than £500 Less than £116
£6,000 – £7,999 B = 2 £500 – £666 £116 – £153
£8,000 – £9,999 C = 3 £667 – £833 £154 – £192
£10,000 – £11,999 D= 4 £834- £999 £193 – £230
£12,000 – £14,999 E = 5 £1,000 – £1,249 £231 – £288
£15,000 – £17,999 F = 6 £1,250 – £1,499 £289 – £346
£18,000 – £20,999 G = 7 £1,500 – £1,749 £347 – £403
£21,000 – £23,999 H = 8 £1,750 – £1,999 £404 – £461
£24,000 – £26,999 I = 9 £2,000 – £2,249 £462 – £519
£27,000 – £29,999 J = 10 £2,250 – £2,499 £520 – £576
£30,000 – £39,999 K = 11 £2,500 – £3,333 £577 – £769
£40,000 – £79,999 L = 12 £3,334 – £6,666 £770 – £1,538
£80,000 or more M = 13 £6,667 or more £1,539 or more

MRC
Receipt; Nursing home resident - managing on income 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

On your present household income do you find

That it’s really quite hard to manage?
That you manage fairly well?
That you manage comfortably?

MRC
Receipt; Nursing home resident - going without due to finances 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Have you or your family had to go without things you really needed in the last year because you were short of money?

Yes, often
Yes, sometimes
No

MRC
Receipt; Nursing home resident - unable to pay bills 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Have you found you have been unable to pay the bills in the last year because you were short of money?

Yes, often
Yes, sometimes
No

MRC
Receipt; Nursing home resident - financial security 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Thinking of the next ten years, how financially secure do you feel? READ OUT…

Secure
Fairly secure
Neither secure nor insecure
Fairly insecure
Insecure

MRC
Receipt; Nursing home resident - assets worth 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

If you sold all the assets you own in your household, for example, your house, car, caravan, and jewelry, cashed in your savings and investments, and paid off any debts you have (including your mortgage), how much money do you think you would have? Please find the amount in pounds which represents the total amount and state the corresponding letter

Total wealth
A=1 Less than £12,500
B=2 £12,500 to £39,999
C=3 £40,000 to £99,999
D=4 £100,000 to £199,999
E=5 £200,000 to £299,999
F=6 £300,000 to £399,999
G=7 £400,000 to £499,999
H=8 £500,000 to £599,999
I=9 £600,000 to £699,999
J=10 £700,000 to £799,999
K=11 £800,000 to £899,999
L=12 £900,000 to £999,999
M=13 £1,000,000 or £1,999,999
N=14 £2,000,000 or more
15 Refused to answer

MRC
Receipt; Nursing home resident - living with sick/disabled 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Is there anyone LIVING WITH YOU who is sick, frail, or has a disability whom you look after or give special help to (for example, a sick, disabled, or older relative/husband/wife/ friend, etc.)?

No
Yes

MRC
Provision; Nursing home resident - look after others 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Who do you look after or help that lives with you?

List all that apply
Wife/Husband/Partner
Mother/mother-in-law
Father/father-in-law
Son/daughter (incl. stepchildren)
Grandchild/ren
Friend
Other

MRC
Provision; Nursing home resident - number of hours spend helping people 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

In total, how many hours do you spend each week looking after or helping these people?

0-4 hours per week 1
5-9 hours per week 2
10-19 hours per week 3
20-34 hours per week 4
35-49 hours per week 5
50-99 hours per week 6
100 or more hours per week/continuous care 7
Varies under 20 hours 8
Varies 20 hours or more 9
Other 10

MRC
Provision; Nursing home resident - helping sick/disabled 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Do you provide some regular service or help for any sick, disabled or older person NOT LIVING WITH YOU?

No
Yes

MRC
Provision; Nursing home resident - helping person not living with them 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Who do you help that does not live with you?

Volunteer (e.g. hospice/Samaritans)
Mother/mother-in-law/stepmother
Father/father-in-law/stepfather
Son/daughter/stepson/stepdaughter
Aunt/uncle
Sister/brother
Neighbour/s
Friend/s
Ex-Wife/Ex-Husband/Ex-Partner
Other

MRC
Need; Diagnosis of conditions which might indicate care need 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

Since the age of 60 years, have you ever been told by a doctor that you have any of the following medical conditions? If yes, what year were you diagnosed?
Please only include conditions or events diagnosed by a doctor.

COPD (chronic obstructive pulmonary disease)
Emphysema
Angina
Heart attack (myocardial infarct/coronary thrombosis)
Heart failure
High blood pressure (hypertension)
Orthostatic or postural hypotension (blood pressure too low when you stand up)
Stroke
Diabetes
Atrial fibrillation
Osteoporosis
Osteoarthritis
Eye trouble which requires treatment:
Cataracts
Glaucoma
Age-related macular degeneration
Parkinson’s Disease
Cognitive impairment:
Vascular dementia
Alzheimer’s disease
Mild cognitive impairment
Other – Please specify:

MRC
Need; Ability to complete ADLs with or without help 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

These questions relate to your independence to perform daily tasks. Are you able to do the following activities alone or is help required?

Feed myself
Bathing (e.g. shower, bath)
Grooming (e.g. brushing teeth,
shaving)
Dressing (including buttons,
zips)
Toilet use (including managing
personal hygiene)
Stairs (including with aids such
as a walking stick)
Cutting toenails

For each task:
I can do this myself
I can do this myself but with difficulty
I need help with this
I am unable to manage this

MRC
Need; Transferring bed to chair with or without help 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

Are you able to transfer from a bed to a chair and back again independently, or is help required?

Independently
Independently but with difficulty
I need minor help (someone to be with me)
I need major help (people to physically help me), but I can sit unsupported
Unable (5)

MRC
Need; Moving on level surface with or without help 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

Are you able to move on level surfaces alone or is help required?

Independently (but may use any aid, e.g. walking stick or frame), can move more than 5 yards
Independently but with difficulty (including with any aid), can move more than 5 yards
Walk with help of one person (verbal or physical), can move more than 5 yards
Using a wheelchair independently, including corners, can move more than 5 yards
Immobile or can move less than 5 yards

MRC
Need; Ability to complete IADLs with or without help 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

The following questions are about everyday activities. Please record what you have done in the last month. If you have not done an activity in the last month because you are not able to do it, then please put a “x” in “I am unable to manage this”. If you have the ability to do it, but have not done it, for example the weather has been too bad for gardening, please put an “x” in “Not applicable”

Walk around outside?
Climb stairs?
Get in and out of a car?
Walk over uneven ground?
Cross roads?
Travel on public transport?
Manage to feed yourself?
Manage to make yourself a hot drink?
Take hot drinks from one room to
another?
Do the washing up?
Make yourself a hot snack?
Manage your own money when out?
Wash small items of clothing?
Do your own housework?
Do your own shopping?
Do a full clothes wash?
Read newspapers or books?
Use the phone?
Write letters?
Go out socially?
Manage your own garden?
Drive a car?
Use the internet for shopping?

For each task:
I can do this myself
I can do this myself but with difficulty
I need help with this
I am unable to manage this
Not applicable

MRC
Receipt; Receipt of care help with ADLs 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

Do you receive help with any of the daily tasks and everyday activities listed in questions 18 and 21 [about completion of ADLs/IADLs]?

Yes
No

MRC
Receipt; Who provides care help 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

Thinking about a typical week, who has helped you with the type of activities listed in questions 18 and 21 and how many hours have they helped you with these tasks?

Husband/Wife/Partner
Children
Grandchildren
Sibling
Other relative
Friends or neighbours
Home care worker/ home help/ personal assistant
A member of the reablement / intermediate care staff team
Voluntary helper
Warden / Sheltered housing manager
Cleaner
Council’s handyman
Member of staff at the care/nursing home
Other – please specify

For each type of helper:
No help
Less than one hour
1-4 hours
5-9 hours
10-19 hours
20-49 hours
50+ hours

MRC
Receipt; Whether lives in care home 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

Do you live in a care home?

Yes
No

MRC
Provision; Length of time help given for 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

Thinking about a typical week, who have you helped with the type of activities listed in questions 18 and 21 [list of ADLs/IADLs] and how many hours have you helped others with these tasks? Please do not include occasional errands or odd jobs.

Husband/Wife/Partner
Children
Grandchild
Siblings
Other relative
Friend or neighbours
Other – please specify

For each type of person:
No help
Less than one hour
1-4 hours
5-9 hours
10-19 hours
20-49 hours
50+ hours

MRC
Receipt; Wait time for personal care and other services 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

Have you wanted to use any of the following services in the last 6 months and if so, how long did you have to wait between first trying to get an appointment and getting an appointment or receiving care (personal care)?

GP healthcare
Dentist healthcare
Chiropodist or podiatrist healthcare
Exercise classes including yoga, Pilates, gym
Occupational therapist or physiotherapist
Community nurse
Hospital nurse
Counselling
Other mental health care services
Personal care (e.g. bathing, showering, dressing, toileting)
Other – please specify

For each service listed:
Less than 2 weeks
From 2 weeks to 6 months
Over 6 months
Did not want to use service

MRC
Receipt; Receipt of care-related benefits 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

Are you receiving the following?

Participant ticks the options which apply out of:
Attendance Allowance
Carer’s Allowance
Pension Credit
Council Tax Reduction
State Pension
Housing Benefit
Winter Fuel Payment
Cold Weather Payments
None of these
Prefer not to say

MRC
Need; Lasting power of attorney setup 2025 75-77 75 77 Participant No Current Postal Questionnaire 2025 No

Do you have lasting power of attorney (LPA) in place for?

Select which applies:
Health and care
Financial decisions

MRC
Receipt; Receipt of meals on wheels 2023 73-75 73 75 Participant No Current Cost of Living Questionnaire (Version: 02/03/2023) No

Does your household currently receive any food from any of the following? Please tick all that apply

Food banks
Food provided by community organisations/allotment schemes
Meals on wheels
Food from faith-based organizations
Food from friends/neighbours
Food from family (not living in the home)
Food from another source
No assistance required
Prefer not to say

MRC
Receipt; Receipt of care-related benefits 2023 73-75 73 75 Participant No Current Cost of Living Questionnaire (Version: 02/03/2023) No

Does your household currently receive any of the following?
Please tick all that apply.

Universal credit
Pension credit
Income support or Job Seeker’s Allowance
Working Tax Credit or Child Tax credit
Employment and Support Allowance
Statutory sick pay
Housing benefit
Council tax support or reduction
Carers allowance, Personal independence payments, or Disability Living
Allowance
No assistance received
Prefer not to say

MRC
Receipt; Nursing home resident - medication 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Are you regularly taking any medicines or tablets prescribed by a doctor?

Yes
No

MRC
Receipt; Nursing home resident - medication type 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

NURSE: Enter name of medicine or drug. Ask if you can see the containers for all prescribed medicines currently being taken.

What is the frequency you take this medication?

Have you taken this medication in the last 24 hours?

Enter medication taken

Enter frequency of medication consumption

Yes/No

MRC
Receipt; Nursing home resident - life satisfaction 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Overall, how satisfied are you with your life nowadays, where 0 means ‘not at all’ and 10 means ‘completely’?

Scale: 0-10

MRC
Receipt; Nursing home resident - general health 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

How is your health in general?

1 Excellent
2 Very good
3 Good
4 Fair
5 Poor

MRC
Receipt; Nursing home resident - blood pressure 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Seating and standing blood pressure is taken

Results of seating and standing blood pressure.

MRC
Receipt; Nursing home resident - blood sample 2024 74-76 74 76 Nurse No Current Nurse Home Schedule Version: 30/05/2024 No

*THESE MEASURES ARE SPECIFICALLY TAKEN ABOUT PEOPLE LIVING IN NURSING HOMES ONLY

Blood sample taken

Blood sample taken

OR

Record why blood sample refused.
CODE ALL THAT APPLY.
1. Previous difficulties with venipuncture
2. Dislike / fear of needles
3. Respondent recently had blood test / health check
4. Refused because of current illness
5. Worried about HIV or AIDS
6. Other

MRC
Provision; Count of safeguarding concerns 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Count of safeguarding concerns

Number by year

SAE
Provision; Count of section 42 enquiries 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Count of Section 42 Enquiries

Number by year

SAE
Provision; Count of other safeguarding enquiries 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Count of Other Safeguarding Enquiries

Number by year

SAE
Provision; Counts of safeguarding activity 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Counts of Safeguarding Activity categorised under:

England
County
Inner London
Metropolitan District
Outer London
Unitary Authority
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

Figures are then also given for individual local authorities.

In each location, figures are given for:
Safeguarding Concerns
Section 42
Safeguarding Enquiries
Other Safeguarding Enquiries
Total Enquiries

SAE
Provision; Count of concluded section 42 enquiries 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk categorised under:

England
County
Inner London
Metropolitan District
Outer London
Unitary Authority
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

Figures are then also given for individual local authorities.

In each location, figures are given for:

Total Concluded Section 42 Enquiries

Type of Risk:
Physical Abuse
Sexual Abuse
Psychological Abuse
Financial or Material Abuse
Discriminatory Abuse
Organisational Abuse
Neglect and Acts of Omission
Domestic Abuse
Sexual Exploitation
Modern Slavery
Self-Neglect

Location of risk:
Own Home
In the Community (excluding community services)
In a Community Service
Care Home – Nursing
Care Home – Residential
Hospital – Acute
Hospital – Mental Health
Hospital – Community Other

Source of risk:
Service Provider
Other – Known to Individual
Other – Unknown to Individual

SAE
Provision; Count of concluded section 42 enquiries 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome categorised under:

England
County
Inner London
Metropolitan District
Outer London
Unitary Authority
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

Figures are then also given for individual local authorities.

In each location, figures are given for:

Was a risk identified and was any action taken / planned to be taken?
Risk identified and action taken
Risk identified and no action taken
Risk – Assessment inconclusive and action taken
Risk – Assessment inconclusive and no action taken
No risk identified and action taken
No risk identified and no action taken
Enquiry ceased at individual’s request and no action taken

‘Where a risk was identified, what was the outcome / expected outcome when the case was concluded?
Risk Remained
Risk Reduced
Risk Removed

SAE
Provision; Section 42 safeguarding enquiries - by age 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Individuals Involved in Section 42 Safeguarding Enquiries per 100,000 Adults by Age Group and Age Standardised Rate categorised under:

England
County
Inner London
Metropolitan District
Outer London
Unitary Authority
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London

Figures are then also given for individual local authorities.

In each location, figures are given for:

Age Group:
18-64
65-74
75-84
85+
Age Standardised Rate

ONS Population:
18-64
65-74
75-84
85+

SAE
Provision; Section 42 safeguarding enquiries - by gender/ethnicity 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Individuals Involved in Section 42 Safeguarding Enquiries by Gender and Ethnic Origin categorised under:

England
County
Inner London
Metropolitan District
Outer London
Unitary Authority
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London

Figures are then also given for individual local authorities.

In each location, figures are given for:

Gender:
Male
Female
Not Known

Ethnic Origin:
White
Mixed / Multiple
Asian / Asian British
Black / African / Caribbean / Black British Other Ethnic Group
Refused
Undeclared / Not Known

SAE
Provision; Section 42 safeguarding by support reason/health condition 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Individuals Involved in Section 42 Safeguarding Enquiries by Primary Support Reason and Reported Health Condition categorised under:

England
County
Inner London
Metropolitan District
Outer London
Unitary Authority
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London

Figures are then also given for individual local authorities.

In each location, figures are given for:

Primary Support Reason:
Physical Support
Sensory Support
Support with Memory & Cognition
Learning Disability Support
Mental Health Support
Social Support
No Support Reason
Not Known

SAE
Provision; Mental capacity assess't outcomes - concluded section 42s 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Mental Capacity Assessment Outcomes for Concluded Section 42 Safeguarding Enquiries categorised under:

England
County
Inner London
Metropolitan District
Outer London
Unitary Authority
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London

Figures are then also given for individual local authorities.

In each location, figures are given for:

For each enquiry, was the adult at risk lacking capacity to make decisions related to the safeguarding enquiry?
Yes, they lacked capacity
No, they did not lack capacity
Don’t Know
Not Recorded

Of the enquiries recorded as Yes, in how many of these cases was support provided by an advocate, family or friend?

SAE
Provision; Safeguarding personal responses for concluded section 42s 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Making Safeguarding Personal Responses for Concluded Section 42 Safeguarding Enquiries categorised under:

England
County
Inner London
Metropolitan District
Outer London
Unitary Authority
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London

Figures are then also given for individual local authorities.

In each location, figures are given for:

For each enquiry, was the individual or individual’s representative asked what their desired outcomes were?
Yes, they were asked and outcomes were expressed
Yes, they were asked but no outcomes were expressed
No
Don’t Know
Not Recorded

Of the enquiries recorded as Yes in row 1 of this table, in how many of these cases were the desired outcomes achieved?
Fully Achieved
Partially Achieved
Not Achieved

SAE
Provision; Safeguarding adult reviews 2023 18-120 18 120 Local authority professional No Past year Safeguarding Adults, England 2023-24 No

Safeguarding Adult Reviews categorised under:

England
County
Inner London
Metropolitan District
Outer London
Unitary Authority
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London

Figures are then also given for individual local authorities.

Count of Safeguarding Adult Reviews
One or More Individuals Died
No Individuals Died

SAE
Provision; Youth support services received 2024 0-18 0 18 Education professional Yes Past year School census 2024-2025 No

Youth support services agreement indicator

Data is given for:

Nursery autumn
Nursery spring
Nursery summer
Primary autumn
Primary spring
Primary summer
Middle-deemed primary autumn
Middle-deemed primary spring
Middle-deemed primary summer
Middle-deemed secondary autumn
Middle-deemed secondary spring
Middle-deemed secondary summer Secondary autumn
Secondary spring
Secondary summer
All-through autumn
All-through spring
All-through summer
Special autumn
Special spring
Special summer
Pupil referral unit autumn
Pupil referral unit spring
Pupil referral unit summer

SchC
Provision; Service children in education 2024 0-18 0 18 Education professional Yes Past year School census 2024-2025 No

Service children in education indicator

Data is given for:

Nursery autumn
Nursery spring
Nursery summer
Primary autumn
Primary spring
Primary summer
Middle-deemed primary autumn
Middle-deemed primary spring
Middle-deemed primary summer
Middle-deemed secondary autumn
Middle-deemed secondary spring
Middle-deemed secondary summer Secondary autumn
Secondary spring
Secondary summer
All-through autumn
All-through spring
All-through summer
Special autumn
Special spring
Special summer
Pupil referral unit autumn
Pupil referral unit spring
Pupil referral unit summer

SchC
Provision; Young carer indicator 2024 0-18 0 18 Education professional Yes Past year School census 2024-2025 No

Young carer indicator

Data is given for:

Nursery autumn
Nursery spring
Nursery summer
Primary autumn
Primary spring
Primary summer
Middle-deemed primary autumn
Middle-deemed primary spring
Middle-deemed primary summer
Middle-deemed secondary autumn
Middle-deemed secondary spring
Middle-deemed secondary summer Secondary autumn
Secondary spring
Secondary summer
All-through autumn
All-through spring
All-through summer
Special autumn
Special spring
Special summer
Pupil referral unit autumn
Pupil referral unit spring
Pupil referral unit summer

SchC
Provision; Local authority number 2024 0-18 0 18 Education professional Yes Past year School census 2024-2025 No

Local authority number

Data is given for:

Nursery autumn
Nursery spring
Nursery summer
Primary autumn
Primary spring
Primary summer
Middle-deemed primary autumn
Middle-deemed primary spring
Middle-deemed primary summer
Middle-deemed secondary autumn
Middle-deemed secondary spring
Middle-deemed secondary summer Secondary autumn
Secondary spring
Secondary summer
All-through autumn
All-through spring
All-through summer
Special autumn
Special spring
Special summer
Pupil referral unit autumn
Pupil referral unit spring
Pupil referral unit summer

SchC
Provision; Unit costs for clients - long term support - setting/age 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Unit costs for clients accessing long term support, by support setting and age band, year on year comparison, 2022-23 and 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
Nursing:
2022-23:
18 to 64
65 and Over
Total
2023-24:
18 to 64
65 and Over
Total

Residential:
2022-23:
18 to 64
65 and Over
Total
2023-24:
18 to 64
65 and Over
Total

Residential and nursing:
2022-23:
18 to 64
65 and Over
Total
2023-24:
18 to 64
65 and Over
Total

SALT
Provision; Requests received from new clients - age/route of access 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of requests for support received from new clients, by age band and route of access, 2023-24

18 to 64 age group is divided into:
Planned Entry (Transition)
Discharge from Hospital
Diversion from Hospital Services
Self-funder with depleted funds
Self-funder with depleted funds of which previously provided with 12 week disregard or DP Community / Other Route
Prison
Total

65 and over age group is divided into:
Discharge from Hospital
Diversion from Hospital Services
Self-funder with depleted funds
Self-funder with depleted funds of which previously provided with 12 week disregard or DP Community / Other Route
Prison
Total

A total across all age groups is also recorded.

SALT
Provision; Requests received from new clients - what happened next 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of requests for support received from new clients, by route of access, age band and what happened next, 2023-24:

Planned Entry (Transition)
Discharge from Hospital
Diversion from Hospital Services
Self-funder with depleted funds
Self-funder with depleted funds of which previously provided with 12 week disregard or DP
Community / Other Route
Prison
Total

Data is recorded under:

All ages:
Total

18-64:
Total
Short Term Care: to maximise independence
Long Term Care: Nursing
Long Term Care: Residential
Long Term Care: Community
Long Term Care: Prison
100% NHS Funded Care
End of Life
Ongoing Low Level Support
Short Term Care: other short term
Universal Services/ Signposted to other services
No Services Provided – Deceased
No Services Provided

65 and over:
Total
Short Term Care: to maximise independence
Long Term Care: Nursing
Long Term Care: Residential
Long Term Care: Community
Long Term Care: Prison
100% NHS Funded Care
End of Life
Ongoing Low Level Support
Short Term Care: other short term
Universal Services/ Signposted to other services
No Services Provided – Deceased
No Services Provided

SALT
Provision; Gross current expenditure - care type 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Current Expenditure, by care type, 2023-24. Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

Long Term Support GCE
Long Term Support (as per cent of total)
Short Term Support GCE
Short Term Support (as per cent of total)
Other GCE
Other (as per cent of total)
Total Gross Current Expenditure (GCE)

SALT
Provision; Gross current expenditure - care type - year on year comparison 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Current Expenditure, by care type, year on year comparison, 2022-23 to 2023-24. Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

Long Term Support GCE
Short Term Support GCE
Other
GCE
Total Gross Current Expenditure (GCE)

SALT
Provision; Gross Expenditure on long and short term care 18-64 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Current Expenditure on long and short term care for clients aged 18 to 64, by care type and primary support reason, 2023-24. Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
Long Term Care:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Total

Short Term Care:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Total

Total across all

SALT
Provision; Gross Expenditure on long and short term care 65+ 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Current Expenditure on long and short term care for clients aged 65 and over, by care type and primary support reason, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
Long Term Care:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Total

Short Term Care:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Total

Total across all

SALT
Provision; Completed ST-Max - new clients - what happened next 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of completed episodes of ST-Max for new clients, by what happened next and age band, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
Early Cessation of Service (not leading to long term support) – 100% NHS funded care/end of life/deceased
Early Cessation of Service (not leading to long term support)
Early Cessation of Service (leading to long term support)
Long Term Support
No Services Provided
Needs identified but self funding
Ongoing Low Level Support
Short Term Support
No Services Provided
Needs identified but support declined
No Services Provided
Universal Services/ signposted to other services No Services Provided
No identified needs
Total

SALT
Provision; Completed ST-Max - existing clients - what happened next 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of completed episodes of ST-Max for existing clients, by what happened next and age band, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

Early Cessation of Service (not leading to long term support) – 100% NHS funded care/end of life/deceased
Early Cessation of Service (not leading to long term support)
Early Cessation of Service (leading to long term support)
Move to Nursing Care (from community)
Move to Residential Care (from Community)
Move to Community
Level of Long Term Support Increased
No Change in Long Term Support
Level of Long Term Support Decreased
ALL Long Term Support Ended – no ongoing eligible needs
Total

SALT
Provision; Number of completed ST-Max episodes 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of completed episodes of ST-Max per client, by age band, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

18 to 64
Completed episodes of ST-Max per client Completed episodes of ST-Max Clients

65 and over
Completed episodes of ST-Max per client Completed episodes of ST-Max Clients

Total
Completed episodes of ST-Max per client Completed episodes of ST-Max Clients

SALT
Provision; Gross Expenditure - short term care 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Current Expenditure on short term care, by purpose, age band and primary support reason, 2023-24

Total:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support

18 to 64:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support

65 and Over:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support

This is divided into:
To Maximise Independence
Other Short Term
Total

SALT
Provision; Clients accessing long term support end of year 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of clients accessing long term support during the year, at the end of the year (31 March) and for more than 12 months at the end of the year (31 March), by age band, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided:
In Year:
18 to 64
65 and over
Total

Year End:
18 to 64
65 and over
Total

Over 12 Months (at Year End):
18 to 64
65 and over
Total

SALT
Provision; Clients accessing long term support - support setting 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of clients accessing long term support during the year, by age band and support setting, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

18 to 64:
Nursing
Residential
Community
Direct Payment Only
Community
Part Direct Payment
Community
CASSR Managed Personal Budget
Community
CASSR Commissioned Support Only
Prison
CASSR Managed Personal Budget
Prison
CASSR Commissioned Support Only
Total

65 and over:
Nursing
Residential
Community
Direct Payment Only Community
Part Direct Payment” “Community
CASSR Managed Personal Budget” “Community
CASSR Commissioned Support Only” “Prison
CASSR Managed Personal Budget” “Prison
CASSR Commissioned Support Only” Total

SALT
Provision; Clients accessing long term support - age/support reason 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of clients accessing long term support at the end of the year, by age band and primary support reason, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
18 to 64
Physical Support
Access and Mobility Only
Physical Support
Personal Care Support
Sensory Support
Support for Visual Impairment
Sensory Support
Support for Hearing Impairment
Sensory Support
Support for Dual Impairment
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Social Support
Substance Misuse Support
Social Support
Asylum Seeker Support
Social Support
Support for Social Isolation/Other
Total

65 and over:
Physical Support
Access and Mobility Only
Physical Support
Personal Care Support
Sensory Support
Support for Visual Impairment
Sensory Support
Support for Hearing Impairment
Sensory Support
Support for Dual Impairment
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Social Support
Substance Misuse Support
Social Support
Asylum Seeker Support
Social Support
Support for Social Isolation/Other
Total

SALT
Provision; Clients accessing long term support - age/support setting 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of clients accessing long term support at the end of the year, by age band and support setting, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
18 to 64
Nursing
Residential
Community
Direct Payment Only
Community
Part Direct Payment
Community
CASSR Managed Personal Budget
Community
CASSR Commissioned Support Only
Prison
CASSR Managed Personal Budget
Prison
CASSR Commissioned Support Only
Total

65 and over
Nursing
Residential
Community
Direct Payment Only
Community
Part Direct Payment
Community
CASSR Managed Personal Budget
Community
CASSR Commissioned Support Only
Prison
CASSR Managed Personal Budget
Prison
CASSR Commissioned Support Only
Total

Total for everything:

SALT
Provision; Clients accessing long term support - age/cost status 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of clients accessing long term support at the year end, by age band and cost status, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
18-64
Clients
Full cost clients
Percentage of clients that are full cost

65 and over
Clients
Full cost clients
Percentage of clients that are full cost

Total
Clients
Full cost clients
Percentage of clients that are full cost

SALT
Provision; Gross expenditure LTC - 18-64 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Current Expenditure on long term care for clients aged 18 to 64, by support setting, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

Data is divided into:
Nursing
Residential
Supported Accommodation
Community: Direct Payments
Community: Home Care
Community: Supported Living
Community: Other Long Term Care
Total

SALT
Provision; Gross expenditure LTC - 65+ 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Current Expenditure on long term care for clients aged 65 and over, by support setting, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
Nursing
Residential
Supported Accommodation
Community: Direct Payments
Community: Home Care
Community: Supported Living
Community: Other Long Term Care
Total

SALT
Provision; Gross expenditure not LTC/STC - support reason 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Current Expenditure on other (not long or short term) social care, by primary support reason, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
Social Support: Substance Misuse Support Social Support: Asylum Seeker Support
Social Support: Support to Carer
Social Support: Support for Social Isolation/Other Assistive Equipment and Technology
Social Care Activities
Information and Early Intervention Commissioning and Service Delivery
Total

SALT
Provision; Support provided to carers - type of support provided 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Support provided to carers during the year, by type of support provided, 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

Direct Support:
Direct PaymentPart Direct Payment CASSR Managed Personal Budget
CASSR Commissioned Support Only
Information, Advice and other Universal Services/Signposting
No Direct Support to Carer

No Direct Support

Total
Support Involving Cared for Person
Respite or Other Forms of Carer Support delivered to the cared-for person

SALT
Provision; Unplanned and planned reviews for 12month+ clients 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Unplanned and planned reviews during the year of clients that have been accessing long term support for more than 12 months at the end of the year (31 March), 2023-24

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
Clients receiving planned reviews
Clients receiving unplanned reviews
Clients receiving both planned and unplanned
Total number of clients reviewed
Total
Percentage of clients reviewed

SALT
Provision; No. of request for new clients 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Number of requests for support received from new clients. Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
18 to 64
65 and over

SALT
Provision; New clients with an episode of ST-Max 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

New clients with an episode of ST-Max care and a known sequel
Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
18 to 64
65 and over

SALT
Provision; Long Term Support during the year 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Long Term Support during the year.
Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
18 to 64
65 and over

SALT
Provision; Support provided to carers during the year 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Support provided to carers during the year.
Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
18 to 64
65 and over

SALT
Provision; Expenditure (Including capital) 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Expenditure (Including capital)
Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:

Own Provision
Provision by Others
Grants to Voluntary Organisations
Total

SALT
Provision; Income 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Income
Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:

Client Contributions
Joint Arrangements
Income from NHS
Other Income
Total

SALT
Provision; Capital 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Capital

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
Own Provision
Provision by Others
Total

SALT
Provision; Total net expenditure 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Net Total Expenditure

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-24
Percentage change from 2022-23 to 2023-24

SALT
Provision; Gross Total Expenditure 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Total Expenditure

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-24
Percentage change from 2022-23 to 2023-24

SALT
Provision; Gross Current Expenditure 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Current Expenditure

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-24
Percentage change from 2022-23 to 2023-24

SALT
Provision; Gross Current Expenditure in cash and real terms 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Gross Current Expenditure in cash and real terms, 2005-06 to 2023-24

2005-06
2006-07
2007-08
2008-09
2009-10
2010-11
2011-12
2012-13
2013-14
2014-15
2015-16
2016-17
2017-18
2018-19
2019-20
2020-21
2021-22
2022-23
2023-24
Percentage change from 2022-23 to 2023-24
Percentage change from 2005-06 to 2023-24

This is divided into:
Cash Terms
Real Terms

SALT
Provision; Expenditure, by finance description - Own Provision 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Expenditure, by finance description, year on year comparison, 2022-23 and 2023-24. Own Provision. Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-24

SALT
Provision; Expenditure, by finance description - Provision by Others 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Expenditure, by finance description, year on year comparison, 2022-23 and 2023-24. Provision by Others. Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-24

SALT
Provision; Expenditure, by finance description - Grants to Voluntary Organisations 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Expenditure, by finance description, year on year comparison, 2022-23 and 2023-24. Grants to Voluntary Organisations. Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-24

SALT
Provision; Expenditure, by finance description - Grants to Voluntary Organisations 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Expenditure, by finance description, year on year comparison, 2022-23 and 2023-24. Total. Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-24

SALT
Provision; Expenditure, by finance description - Client Contributions 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Income, by finance description, year on year comparison, 2022-23 and 2023-24. Client Contributions.

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-24

SALT
Provision; Expenditure, by finance description - Joint Arrangements 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Income, by finance description, year on year comparison, 2022-23 and 2023-24. Joint Arrangements.

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-25

SALT
Provision; Income, by finance description - Income from NHS 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Income, by finance description, year on year comparison, 2022-23 and 2023-24. Income from NHS.

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-26

SALT
Provision; Income, by finance description - Other Income 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Income, by finance description, year on year comparison, 2022-23 and 2023-24. Other Income.

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-27

SALT
Provision; Income, by finance description - Total 2023 0-120 0 120 Data manager No Current ASCFR and SALT Data Tables 2023-24 No

Income, by finance description, year on year comparison, 2022-23 and 2023-24. Total.

Data is categorised into:

England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

And then by individual local authorities

This is divided into:
2022-23
2023-29

SALT
Provision; Source of request for EHC assessment 2025 0-18 0 18 Data manager No Current Person level SEN2 return: 2025 Version 1.4 No

Source of request for an EHC needs assessment

1 – Young person or parent
2 – School or other education setting
3 – Health care professionals
4 – Social care professionals
5 – Other – Where a large number of cases are recorded as ‘other’, the local authority will be prompted for further information in COLLECT

SEN2
Provision; Was EHC request made in youth accom 2025 0-18 0 18 Data manager No Current Person level SEN2 return: 2025 Version 1.4 No

Was the initial request for assessment for an EHC plan made when the child or young person was detained in ‘relevant youth accommodation’ (RYA)?

1 – Yes
0 – No

SEN2
Provision; Did initial request proceed to assessment 2025 0-18 0 18 Data manager No Current Person level SEN2 return: 2025 Version 1.4 No

This item records whether the initial request proceeded to the assessment stage:

Y – LA proceeded with an assessment
N – LA decided not to proceed with an assessment
A – Decision yet to be made
W – Request withdrawn or ceased before decision to assess was made
H – Historical – Decision to issue was made before the latest collection period

SEN2
Provision; Plans transferred from other LA 2025 0-18 0 18 Data manager No Current Person level SEN2 return: 2025 Version 1.4 No

Assessment outcome – decision to issue EHC plan

Y – It was decided an EHC plan would be issued
N – It was decided an EHC plan would not be issued
A – Decision has not yet been made
W – Request withdrawn or ceased before decision whether to issue was made
H – Historical – Decision to issue was made before the latest collection period or
plan has been transferred from another local authority

SEN2
Provision; Use of residentinal setting 2025 0-18 0 18 Data manager No Current Person level SEN2 return: 2025 Version 1.4 No

Residential settings – Where a residential setting is named on a plan, please indicate if the placement is…

A – 38 to 51 weeks
B – 52 weeks

SEN2
Provision; Use of social care personal budget 2025 0-18 0 18 Data manager No Current Person level SEN2 return: 2025 Version 1.4 No

Personal budget – direct payments. Direct payments, including payments to nominees and third parties.

E – Education only
S – Social care only
H – Health only
I – Integrated payment for a combination of the above

SEN2
Provision; Use of residential setting 2025 0-18 0 18 Data manager No Current Person level SEN2 return: 2025 Version 1.4 No

Residential settings. If the child or young person is in a residential setting, please indicate if this is for:

A – 38 to 51 weeks
B – 52 weeks

SEN2
Need; Likely need of social care due to some disabilities in list 2025 0-18 0 18 Data manager No Current Person level SEN2 return: 2025 Version 1.4 No

SEN type of need

SPLD Specific learning difficulty
MLD Moderate learning difficulty
SLD Severe learning difficulty
PMLD Profound and multiple learning difficulty
SEMH Social, emotional and mental health
SLCN Speech, language and communication needs
HI Hearing impairment
VI Vision impairment
MSI Multi-sensory impairment
PD Physical disability
ASD Autistic spectrum disorder
DS Down Syndrome
OTH Other difficulty

SEN2
Provision; Designated social care officer for census 2025 0-18 0 18 Data manager No Current Person level SEN2 return: 2025 Version 1.4 No

Designated Social Care Officer: Does your local authority have a Designated Social Care Officer (DSCO) in place on census day?

Y – Yes
N – No
R – Recruitment in progress

SEN2
Provision; Why caring info/advice unhelpful 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

If you found the information and advice you received unhelpful, please tell us why and what we can do to make it more helpful for you
*The “please tell us why” box is optional. Responses obtained should not be returned to NHS England

Open text response

SACE
Provision; Has carer been consulted as much as they want? 2023 18-120 18 120 Participant No Past year Personal Social Services Survey of Adult Carers in England, 2023-24 No

In the last 12 months, do you feel you have been involved or consulted as much as you wanted to be, in discussions about the support or services provided to the person you care for?

There have been no discussions that I am aware of, in the last 12 months
I always felt involved or consulted
I usually felt involved or consulted
I sometimes felt involved or consulted
I never felt involved or consulted

SACE
Provision; Carer employment status 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

In addition to your caring role, please tell us which of the following also applies to you? Please tick [✓ ] all that apply

Retired
Employed full-time
Employed part-time (working 30 hours or less)
Self-employed full-time
Self-employed part-time
Not in paid work
Doing voluntary work
Other

SACE
Provision; Carer employment status 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Thinking about combining your paid work and caring responsibilities, which of the following statements best describes your current situation? Please tick [✓ ] one box

Not in paid work:
I am not in paid employment because of my caring responsibilities
I am not in paid employment for other reasons (e.g. Retired)

In paid employment:
I am in paid employment and I feel supported by my employer
I am in paid employment but I don’t feel supported by my employer
I do not need any support from my employer to combine my work and caring responsibilities

Self-employed:
I am self-employed and I am able to balance my work and caring responsibilities
I am self-employed but I am unable to balance my work and caring responsibilities

SACE
Provision; How long carer has been caring 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

About how long have you been looking after or helping the person you care for? Please tick [✓ ] one box

Less than 6 months
Over 6 months but less than a year
Over 1 year but less than 3 years
Over 3 years but less than 5 years
Over 5 years but less than 10 years
Over 10 years but less than 15 years
Over 15 years but less than 20 years
20 years or more

SACE
Provision; How long spent each week caring 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

About how long do you spend each week looking after or helping the person you care for? Please tick [✓ ] one box

If other please specify:

0-9 hours per week
10-19 hours per week
20-34 hours per week
35-49 hours per week
50-74 hours per week
75-99 hours per week
100 or more hours per week
Varies – Under 20 hours per week
Varies – 20 hours or more per week
Other – free text

SACE
Provision; What kind of caring activities carer does 2023 18-120 18 120 Participant No Past year Personal Social Services Survey of Adult Carers in England, 2023-24 No

Over the last 12 months, what kinds of things did you usually do for the person you care for?

Please tick [✓ ] all that apply
Personal care?
(Things like dressing, bathing, washing, shaving, cutting nails, feeding, using the toilet)
Physical help?
(Such as helping with walking, getting up and down stairs, getting into and out of bed)
Helping with dealing with care services and benefits? (Things like making appointments and phone calls, filling in forms)
Helping with paperwork or financial matters? (Such as writing letters, sending cards, filling in forms, dealing with bills, banking)
Other practical help?
(Things like preparing meals, doing his/her shopping, laundry, housework, gardening, decorating, household repairs, taking to doctor’s or hospital)
Keeping him/her company?
(Things like visiting, sitting with, reading to, talking to, playing cards or games)
Taking him/her out?
(Such as taking out for a walk or drive, taking to see friends or relatives)
Giving medicines?
(Things like making sure he/she takes pills, giving injections, changing dressings)
Keeping an eye on him/her to see he/she is all right?
Giving emotional support?
Other help?

SACE
Provision; Carer's own illnesses/impairments 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Do you have any of the following?

A physical impairment or disability
Sight or hearing loss
A mental health problem or illness
A learning disability or difficulty
A long-standing illness
Other
None of the above

SACE
Provision; How many children carer is responsible for 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

How many children aged 18 or under do you have parental responsibility for?

0
1
2
3
4+

SACE
Provision; Whether someone helped carer complete questionnaire 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Did someone help you to complete this questionnaire? Please tick [✓ ] one box

*Councils may seek further information on the category of person who helped here if they wish – but these should only be categories of person (e.g. relative) and not names. Any expanded categories need to be aggregated back to just an overall ‘yes’ category before entering the results onto the data return.

Yes
No

SACE
Provision; Age of carer 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

How old are you?

________________ years

SACE
Provision; Gender of carer 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Are you male or female? Please tick [✓ ] one box

*Councils may choose to omit the above question if it can be supplied accurately from their current records.

Male
Female
Other

SACE
Provision; Ethnicity of carer 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

To which of these groups do you consider you belong? Please tick (✓ ) one box
*Councils may choose to omit the above question and supply data from their own records if they are confident of the quality and coverage of the information about the
carer’s assessment of their ethnic origin in their current records. Councils including
this question may break down the categories further if they wish to do so.

White:
English / Welsh / Scottish / Northern Irish / British
Irish
Gypsy or Irish Traveller
Any other White background:
Mixed / multiple ethnic groups:
White and Black Caribbean
White and Black African
White and Asian
Any other Mixed / Multiple background:
Asian / Asian British
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
List continued on next page:
Black / African / Caribbean / Black British
African
Caribbean
Any other Black / African / Caribbean background
Other ethnic group
Arab
Any other background
Prefer not to say

SACE
Provision; Carer - any other experiences - open text 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Please use the space provided below to describe any other experiences you would like to tell us about, or to write any other comments you would like to make?

*The question above is for local use and can be omitted. Councils do not need to return the data to NHS England for this question.

Large open text box

SACE
Provision; Would carer like to take part in other research 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

We may be asking some people to take part in follow-up research for this study in the next year or so.

Would you be happy to be invited to take part in more research?

Note that even if you say “yes” there will be no obligation to take part in the future. Please tick (✓) one box

Yes, I have written my name, address and phone number in the space below
No

SACE
Provision; Age of person cared for 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

How old is the person you care for?

_____________years

SACE
Provision; Conditions/diseases of person cared for 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Does the person you care for have….?

Dementia
A physical disability
Sight or hearing loss
A mental health problem
Problems connected to ageing
A learning disability or difficulty
Long-standing illness
Terminal illness
Alcohol or drug dependency

SACE
Provision; Where person cared for lives 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Where does the person you care for usually live?

With me
Somewhere else

SACE
Provision; Satisfaction with carer support 2023 18-120 18 120 Participant No Past year Personal Social Services Survey of Adult Carers in England, 2023-24 No

Overall, how satisfied or dissatisfied are you with the support or services you and the person you care for have received from Social Services in the last 12 months?

We haven’t received any support or services from Social Services in the last 12 months
I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

SACE
Receipt; Person cared for's use of support services 2023 18-120 18 120 Participant No Past year Personal Social Services Survey of Adult Carers in England, 2023-24 No

Has the person you care for used any of the support or services listed below in the last 12 months?
They may be provided by different organisations, such as a voluntary organisation, a private agency or Social Services.

a. Support or services allowing you to take a break from caring at short notice or in an emergency
b. Support or services allowing you to take a break from caring for more than 24 hours
c. Support or services to allow you to have a rest from caring for between 1 and 24 hours (e.g. a sitting service)
d. Personal assistant
e. Home care/home help
f. Day centre or day activities
g. Lunch club
h. Meals Services
i. Equipment or adaptation to their home (such as a
wheelchair or handrails)
j. Lifeline Alarm
k. They are permanently resident in a care home

*It is possible for councils to add options to question 6 above for local use such as advocacy for carers, help with household tasks and gardening and practical help to complete forms. Additional responses for question 6 should be sent to NHS England for their information using the additional question form. Responses to any additional options should not be returned to NHS England.

For each support or service listed:
Yes
No
Don’t know

SACE
Receipt; Use of carer support services 2023 18-120 18 120 Participant No Past year Personal Social Services Survey of Adult Carers in England, 2023-24 No

Have you used any of the support or services listed below, to help you as a carer over the last 12 months?
They may be provided by different organisations, such as a voluntary organisation, a private agency or Social Services. Please do not include any unpaid help from family and friends.

a. Information and advice
b. Support from carers groups or someone to talk to in confidence
c. Training for carers
d. Support to keep you in employment

SACE
Provision; If carer can spend time doing things they want to do 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Which of the following statements best describes how you spend your time?
When you are thinking about what you do with your time, please include anything you value or enjoy, including formal employment, voluntary or unpaid work, caring for others and leisure activities.

I’m able to spend my time as I want, doing things I value or enjoy
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

SACE
Provision; Carer control over daily life 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Which of the following statements best describes how much control you have over your daily life?

I have as much control over my daily life as I want
I have some control over my daily life but not enough
I have no control over my daily life

SACE
Provision; Carer time to look after themselves 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Thinking about how much time you have to look after yourself – in terms of getting enough sleep or eating well – which statement best describes your present situation?

I look after myself
Sometimes I can’t look after myself well enough
I feel I am neglecting myself

SACE
Provision; Carer personal safety 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Thinking about your personal safety, which of the statements best describes your present situation?
By ‘personal safety’ we mean feeling safe from fear of abuse, being attacked or other physical harm.

I have no worries about my personal safety
I have some worries about my personal safety
I am extremely worried about my personal safety

SACE
Provision; Carer personal safety - open text 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

If you have said you are extremely worried about your personal safety, can you please tell us why?

*Responses obtained should not be returned to NHS England

Open text response

SACE
Provision; Carer social contact 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Thinking about how much social contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have some social contact with people but not enough
I have little social contact with people and feel socially isolated

SACE
Provision; Carer encouragement and support 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Thinking about encouragement and support in your caring role, which of the following statements best describes your present situation?

I feel I have encouragement and support
I feel I have some encouragement and support but not enough
I feel I have no encouragement and support

SACE
Provision; If carer has time for caring 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

Thinking about the other people you have caring responsibilities for, which of the following best describes your current situation? Please exclude the person you spend most time helping.

I don’t have caring responsibilities for anyone else
I always have enough time to care for them
I sometimes have enough time to care for them
I never have enough time to care for them

SACE
Provision; Health effects of caring on carer 2023 18-120 18 120 Participant No Past year Personal Social Services Survey of Adult Carers in England, 2023-24 No

In the last 12 months, has your health been affected by your caring role in any of the ways listed below? Please tick [✓ ] all that apply

Feeling tired
Feeling depressed
Loss of appetite
Disturbed sleep
General feeling of stress
Physical strain (e.g. back)
Short tempered/ irritable
Had to see own GP
Developed my own health conditions
Made an existing condition worse
Other
No, none of these

SACE
Provision; Financial difficulties for carer from caring 2023 18-120 18 120 Participant No Past year Personal Social Services Survey of Adult Carers in England, 2023-24 No

In the last 12 months, has caring caused you any financial difficulties?

No, not at all
Yes, to some extent
Yes, a lot

SACE
Provision; How often carer feels lonely 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

How often do you feel lonely?

Often or always
Some of the time
Occasionally
Hardly ever
Never

SACE
Provision; Ease of finding information about caring role 2023 18-120 18 120 Participant No Past year Personal Social Services Survey of Adult Carers in England, 2023-24 No

In the last 12 months, have you found it easy or difficult to find information and advice about support, services or benefits? Please include information and advice from different sources, such as voluntary organisations and private agencies as well as Social Services.

I have not tried to find information or advice in the last 12 months
Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find

SACE
Provision; Why carer info is difficult to find 2023 18-120 18 120 Participant No Current Personal Social Services Survey of Adult Carers in England, 2023-24 No

If you found it difficult to find information and advice, please tell us why and what we can do to make it easier for you

*The “please tell us why” box is optional. Responses obtained should not be returned to NHS England

Open text response

SACE
Provision; How helpful was caring advice/info 2023 18-120 18 120 Participant No Past year Personal Social Services Survey of Adult Carers in England, 2023-24 No

In the last 12 months, how helpful has the information and advice you have received been? Please include information and advice from different organisations, such as voluntary organisations and private agencies as well as Social Services.

I have not received any information or advice in the last 12 months
Very helpful
Quite helpful
Quite unhelpful
Very unhelpful

SACE
Receipt; Other payment providers for care home costs 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

And in addition to what [NAME] pays {if CHRESPAYS2 = 1} As far as you are aware {if CHRESPAYS2 = 2|3|DK|REF} , does anyone else or any organisations pay or give money to [CHMECODEFINAL2] {if CHMEFOUND2 = 1} [their care or nursing home] {if CHMEFOUND2 = 0} for the care that [NAME] receives – for example the council, the NHS or a family member?

Yes, the council, local authority, social services, or NHS/health services
Yes, a relative or friend with their own money
Yes, other
No, nobody else pays

UKHLS
Need; Household member impairments for completing ADLs 2022 16-120 16 120 Participant No Current UK Household Longitudinal StudyMainstage QuestionnaireWave 14, Version 03 No

Even though [NAME] doesn’t have any long-standing health problems, does {if CHHEALTH2 = 2} / Does {if CHHEALTH2 <> 2} [NAME] have any health problems or disabilities that mean they have substantial difficulties with any of the following areas of their life?

1 Mobility (moving around at home and walking)
2 Lifting, carrying or moving objects
3 Manual dexterity (using their hands to carry out everyday tasks)
4 Continence (bladder and bowel control)
5 Hearing (apart from using a standard hearing aid)
6 Sight (apart from wearing standard glasses)
7 Communication or speech problems
8 Memory or ability to concentrate, learn or understand
9 Recognising when they are in physical danger
10 Their physical co-ordination (e.g. balance)
11 Difficulties with own personal care (e.g. getting dressed, taking a bath or shower)
12 Other health problem or disability
96 None of these
Mixed Mode Alternatives

UKHLS
Receipt; Follow-up on previous wave care home mover 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Last time we interviewed at this household, we learned that [ff_forname ff_surname (ff_CHmeMover’s name)] had moved into a care or nursing home. Can we just check, does [ff_forname (ff_CHmeMover’s name)] still live in a care or nursing home?

1 Yes
2 No

UKHLS
Receipt; Previous wave care home mover no longer at care home 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

May we ask what has happened to [ff_forname (ff_CHmeMover’s name)] ?

1 Deceased
2 Living elsewhere

UKHLS
Receipt; Month/year care home leaver died 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

We are sorry to hear about [ff_forname (ff_CHmeMover’s name)] . In which month and year did that happen?

1 January
2 February
3 March
4 April
5 May
6 June
7 July
8 August
9 September
10 October
11 November
12 December

Enter year

UKHLS
Receipt; Care home leaver address/town/area 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

What is [ff_forname ff_surname (ff_CHmeMover’s name)] current address?

And in which town is that?

And the postcode please if you know it.

Could you tell us either the village, town county or region they moved to?

ENTER FIRST LINE OF ADDRESS – HOUSE NUMBER OR NAME AND DETAILS OF ROAD(S). IF NOT KNOWN, CODE DON’T KNOW

ENTER POSTAL TOWN. IF POSTAL TOWN IS NOT KNOWN, CODE DON’T KNOW

ENTER POSTAL CODE. IF COMPLETE POSTAL CODE IS NOT KNOWN, CODE DON’T KNOW

PROBE FOR AREA. IF HOUSE AND ROAD NOT KNOWN, PROBE FOR VILLAGE, TOWN, COUNTY, REGION. ATTEMPT TO GAIN AS FULL
ADDRESS INFORMATION AS POSSIBLE.

UKHLS
Receipt; Fed forward care home name check 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Does [ff_forname ff_surname (ff_CHmeMover’s name)] still live at [ff_CHMECODEFINAL] ?

1 Yes
2 No

UKHLS
Need; Type of impairment or disability 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Even though [NAME] doesn’t have any long-standing health problems, does {if CHHEALTH = 2} / Does {if CHHEALTH <> 2} [NAME] have any health problems or disabilities that mean they have substantial difficulties with any of the following areas of their life?

1 Mobility (moving around at home and walking)
2 Lifting, carrying or moving objects
3 Manual dexterity (using their hands to carry out everyday tasks)
4 Continence (bladder and bowel control)
5 Hearing (apart from using a standard hearing aid)
6 Sight (apart from wearing standard glasses)
7 Communication or speech problems
8 Memory or ability to concentrate, learn or understand
9 Recognising when they are in physical danger
10 Their physical co-ordination (e.g. balance)
11 Difficulties with own personal care (e.g. getting dressed, taking a bath or shower)
12 Other health problem or disability
96 None of these
Mixed Mode Alternatives

UKHLS
Receipt; Receipt of care-related benefits 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Are you currently receiving any of these payments ,either just yourself or jointly {if hhsize > 1 & (livesp = 1 or livewith = 1)} ? Please select all that apply to you.

1 NI Retirement/State Retirement (Old Age) Pension
2 A Pension from a previous employer
3 A Pension from a spouse’s previous employer
4 A Private Pension/Annuity
5 A Widow’s or War Widow’s Pension
6 A Widowed Mother’s Allowance / Widowed Parent’s Allowance / Bereavement Allowance
7 Pension Credit (includes Guarantee Credit & Saving Credit)
8 Severe Disablement Allowance
9 Industrial Injury Disablement Allowance
10 Disability Living Allowance
11 Attendance Allowance
12 Carer’s Allowance (formerly Invalid Care Allowance)
13 War Disablement Pension
14 Incapacity Benefit
15 Income Support
16 Job Seeker’s Allowance
18 Child Benefit (including Lone-Parent Child Benefit payments)
19 Child Tax Credit
20 Working Tax Credit (includes Disabled Person’s Tax Credit)
21 Maternity Allowance
22 Housing Benefit
23 Council Tax Benefit
24 Educational Grant (not Student Loan or Tuition Fee Loan)
25 Trade Union / Friendly Society Payment
26 Maintenance or Alimony
27 Payments from a family member not living here
28 Rent from Boarders or Lodgers (not family members) living here with you
29 Rent from any other property
30 Foster Allowance / Guardian Allowance
31 Rent Rebate
32 Rate Rebate
33 Employment and Support Allowance
35 Sickness and Accident Insurance
37 Other Disability Related Benefit or Payment
38 Any other regular payment
39 Any other state benefit
40 Universal Credit
41 Personal Independence Payments
42 Student Loan and/or Tuition Fee Loan
43 Child Disability Payment
44 Adult Disability Payment
45 Pension Age Disability Payment
46 Scottish Child Payment
98 DON’T KNOW
99 REFUSED

UKHLS
Receipt; If child has been in care 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Who does [NONRESID.NRCNAME] currently live with (for most of the time)?

1 A parent
2 Grandparent
3 Other relative
4 In care
5 Other

UKHLS
Receipt; Moved for care reasons 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

What housing related reason was that? [for moving housing]

1 Wanted somewhere bigger
2 Wanted somewhere smaller/cheaper
3 Wanted own accommodation or to form a household
4 To buy somewhere
5 Health reasons (e.g. house too damp, house not healthy)
6 Wanted bungalow / no stairs / ground floor flat
7 Needed care in sheltered accommodation/care/nursing home
8 Disliked previous house/flat
9 Wanted better accommodation
10 Wanted more privacy/previous accommodation overcrowded
11 Wanted a change
12 Evicted from rented accommodation/repossessed/other forced moves
13 Council offered new accommodation
15 Wanted somewhere with more garden/outdoor space
16 Wanted somewhere with more home office space
14 None of the above/Other reason

UKHLS
Provision; Caring for parents - activities 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Nowadays, do you regularly or frequently do any of these things for your parent(s)?

1 Giving them lifts in your car (if you have one)
2 Shopping for them
3 Providing or cooking meals
4 Helping with basic personal needs like dressing, eating or bathing
5 Washing, ironing or cleaning
6 Dealing with personal affairs e.g. paying bills, writing letters
7 Decorating, gardening or house repairs
8 Financial help
97 Anything else
96 None of these

UKHLS
Receipt; Children assisting with IADLs 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

And do you regularly or frequently receive any of these things from your children aged 16 or older not living here?

1 Getting lifts in their car (if they have one)
2 Shopping for you
3 Providing or cooking meals
4 Help with basic personal needs like dressing, eating or bathing
5 Washing, ironing or cleaning
6 Dealing with personal affairs e.g. paying bills, writing letters
7 Decorating, gardening or house repairs
8 Financial help
97 Anything else
96 None of these

UKHLS
Receipt; Who living with at age 14 - including care 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Please look at this card and tell me the number that describes who you were living with when you were aged 14?

1 Biological mother and father
2 Adoptive mother and father
3 Mother and stepfather
4 Father and stepmother
5 Mother/no father figure
6 Father/no mother figure
7 In Local Authority care/foster home
97 Other

UKHLS
Receipt; Service use in last 12 months 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Which of these services have you used over the last 12 months?

1 Your local doctor
2 A local hospital
3 Social care services
4 A council housing department or housing association
5 Police service
6 Local leisure services, such as swimming pool, tennis courts, keep fit classes
7 Adult education classes
8 A public library
9 A job centre
10 Advice services such as those relating to benefits, employment or money advice
96 None of the above

UKHLS
Need; Type of impairment or disability 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Even though you don’t have any long-standing health problems, do {if HEALTH = 2} / Do {if HEALTH <> 2} you have any health problems or disabilities that mean you have substantial difficulties with any of the following areas of your life?

1 Mobility (moving around at home and walking)
2 Lifting, carrying or moving objects
3 Manual dexterity (using your hands to carry out everyday tasks)
4 Continence (bladder and bowel control)
5 Hearing (apart from using a standard hearing aid)
6 Sight (apart from wearing standard glasses)
7 Communication or speech problems
8 Memory or ability to concentrate, learn or understand
9 Recognising when you are in physical danger
10 Your physical co-ordination (e.g. balance)
11 Difficulties with own personal care (e.g. getting dressed, taking a bath or shower)
12 Other health problem or disability
96 None of these

UKHLS
Receipt; Income: Disability/care related benefits 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Are you currently receiving any of these payments ,either just yourself or jointly {if hhsize > 1 & (livesp = 1 or livewith = 1)} ?

1 Incapacity Benefit
2 Employment and Support Allowance
3 Severe Disablement Allowance
4 Carer’s Allowance
5 Disability Living Allowance
13 Child Disability Payment {if region = 3}
12 Personal Independence Payments
14 Adult Disability Payment {if region = 3}
7 Attendance Allowance
15 Pension Age Disability Payment {if region = 3}
8 Industrial Injury Disablement Benefit
10 Sickness and Accident Insurance
97 Any other disability related benefit or payment
96 None of these

UKHLS
Provision; Cares for handicapped/other in household 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative, husband, wife or friend etc.)?

Occasionally a person may not think of the care they provide as special because they either may have been looking after this person for a longtime or because they view it as a natural obligation to look after a close relative, or because they think it normal to provide special care for the elderly. In some cases you may already know of someone in the household who is infirm or disabled. If you have reason to believe that someone within the household is receiving regular care because of age, infirmity or disability but this is not reported by the respondent you should ask ‘And what about (NAME OF PERSON)? Do you look after them at all?’ If the respondent does not agree, code answer given.

Yes
No

General health

UKHLS
Provision; PNO of (person) cared for 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Who do you look after?
Please select all the people for whom you provide care.

List of aforementioned household members

UKHLS
Provision; Non-residents cared for 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

Exclude any care given in the course of employment (e.g. by social worker or home help) but include if they provide care unpaid outside working hours. Exclude work in drop-in centres, luncheon clubs or meals on wheels. Include any service provided including visiting, sitting with them, keeping company, taking out, checking whether or not they are alright, helping with bills etc, as well as help with housework, cooking and personal care (e.g. washing or dressing). Include only one-to -one caring so that if, for instance, someone helps with meals-on-wheels or driving people to hospital this, in itself, does not count since they may be seeing different people each day. If, on the other hand they are paired off with one specific elderly/disabled person, this would count. Include here cases where person cared for is in the same building as respondent but lives separately (e.g. a ‘granny flat’ or annexe). Some respondents will be caring for people as a voluntary worker rather than as a friend or relative. If caring for two parents living together, count each separately.

Yes
No

UKHLS
Provision; Number of non-residents cared for 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

How many people do you care for?

Number of people

UKHLS
Provision; Caring: relation to 1st non-res dependent 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Who is the first person that you look after or help? (What is their relationship to you?)

Parent/parent-in-law
Grandparent
Aunt/uncle
Other relative
Friend or neighbour
Client(s) of voluntary organisation
Other

UKHLS
Provision; Caring: relation to 2nd non-res dependent 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Who is the second person that you look after or help? (What is their relationship to you?)

Parent/parent-in-law
Grandparent
Aunt/uncle
Other relative
Friend or neighbour
Client(s) of voluntary organisation
Other

UKHLS
Provision; Hours per week spent caring 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Now thinking about everyone who you look after or provide help for, both those living with you and not living with you – in total, how many hours do you spend each week looking after or helping them?

Help
Please note that if respondent spends time caring for people within and outside the household the total time spent on both together should be entered. Include any travelling time or time spent sleeping at dependent’s house if dependent is outside carer’s household. If continuous care is given use code 7

0 – 4 hours per week
5 – 9 hours per week
10 – 19 hours per week
20 – 34 hours per week
35 – 49 hours per week
50 – 99 hours per week
100 or more hours per week/continuous care
Varies under 20 hours
Varies 20 hours or more
Other

UKHLS
Provision; Caring prevents paid employment 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [NAME(S)] prevent you from doing a paid job or as much paid work as you might like to do? Would you say you are…

Unable to work at all
Unable to do as much paid work as you might
Or this doesn’t prevent you from working?

UKHLS
Provision; Misses school to care for someone 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

How often do you have to miss school {if EDUCATIONALASPIRATIONS.EDTYPE = 1} / sixth form college {if EDUCATIONALASPIRATIONS.EDTYPE = 2} / further education college {if EDUCATIONALASPIRATIONS.EDTYPE = 3} to look after [NAME(S)] ?

Never
Once a week or more often
Once or twice a month

UKHLS
Provision; Person moved to household for care 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Why [[are you] / [is NAME]] now in this household?

New baby
2 Cohabitation/marriage/civil partnership
3 Moved from college/university
4 Moved from institution
5 Was resident last wave/never left
6 Moved in with parent/relative
7 Shared accommodation
8 Care/support
97 Other

UKHLS
Receipt; Previously living in care home 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Where [[were you] / [was NAME]] living before joining this household?

Other house/flat
Working away from home
Halls of residence
Boarding school
Prison
Hospital
Care or nursing home
Outside the UK
No fixed abode
Other type of accommodation

UKHLS
Receipt; Household member moved to care home 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Where is [ff_forname {leaver’s name}] living now?

0 Deceased
1 Other house/flat
2 Working away from home
3 Halls of residence
4 Boarding school
5 Prison
8 Hospital
9 Care or nursing home
10 Outside the UK
11 No fixed abode
97 Other type of accommodation

UKHLS
Receipt; Name/address of carehome household member moved to 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

You mentioned that [ff_forname {leaver’s name}] ‘s has moved into a care or nursing home. We are interested in understanding the changes that happen in people’s lives. So that we can use the publicly available information on care and nursing homes, please could you tell me the name of [ff_forname {leaver’s name}] ‘s care or nursing home?

Are the details reported below correct? [CARE/NURSING HOME NAME FROM LOOKUP FILE]

Enter name

Yes/No

UKHLS
Receipt; Currently resident in care home 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Whether respondent is currently resident in a care home

Does not live in a care home
Lives in a care home

UKHLS
Receipt; Satisfaction with care home 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Overall, how satisfied or dissatisfied are you with the care and support [NAME] receives at [CHMECODEFINAL2] {if CHMEFOUND2 = 1} [their care or nursing home] {if CHMEFOUND2 = 0} ?

1 Very dissatisfied
2 Somewhat dissatisfied
3 Neither satisfied nor dissatisfied
4 Somewhat satisfied
5 Very satisfied

UKHLS
Receipt; Satisfaction with care home: proxy 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Overall, how satisfied or dissatisfied do you think [NAME] is with the care and support they receive at [CHMECODEFINAL2] {if CHMEFOUND2 = 1} [their care or nursing home] {if CHMEFOUND2 = 0} ?

1 Very dissatisfied
2 Somewhat dissatisfied
3 Neither satisfied nor dissatisfied
4 Somewhat satisfied
5 Very satisfied

UKHLS
Receipt; Care Home: who deals with care payments 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Now a few questions about paying for the care [NAME] receives at [CHMECODEFINAL2] {if CHMEFOUND2 = 1} [their care or nursing home] {if CHMEFOUND2 = 0} . Does [NAME] usually deal with paying for their care or does a family member or friend manage this for them?

[NAME] deals with this all him/herself
[NAME] knows about some of it but not all
[NAME] does not deal with this at all

UKHLS
Receipt; Other person who manages care payments 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Who else deals with paying for [NAME’s] care?

Non-household member
Select from list of household members

UKHLS
Receipt; Care home: income assessment for care 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Has the local authority or council made an assessment of what [NAME] can afford for any of their care needs? This is sometimes called an income assessment or means testing.

1 Yes, had an income assessment
2 No

UKHLS
Receipt; Care home resident covers care costs 2022 16-120 16 120 Participant No Current UK Household Longitudinal Study Mainstage Questionnaire Wave 14, Version 03 No

Does [NAME] pay or give any money for the care and support provided by [CHMECODEFINAL2] {if CHMEFOUND2 = 1} [their care or nursing home] {if CHMEFOUND2 = 0} ? Please include any contributions made from income, savings, pensions or assets.

Yes, they cover all the cost
Yes, they cover some of the cost
No

UKHLS
Provision; New guardianship cases opened during year 2023 0-120 0 120 Data manager No Yearly Guardianship under the Mental Health Act 1983, England 2021-22, 2022-23 and 2023-24 No

Total new cases opened during the year

Yearly data is available from 2003/4 until most recent year

Data is broken down by region:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West
And then by each English Local Authority.

It is also broken down by:
Gender
Section of Act (Section 7 or 37)

GMHA
Provision; Continuing guardianship cases at end of year 2023 0-120 0 120 Data manager No Yearly Guardianship under the Mental Health Act 1983, England 2021-22, 2022-23 and 2023-24 No

Total number of cases continuing at the end of the year

Yearly data is available from 2003/4 until most recent year

Data is broken down by region:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West
And then by each English Local Authority.

It is also broken down by:
Gender
Section of Act (Section 7 or 37)

GMHA
Provision; Guardianship cases closed during year 2023 0-120 0 120 Data manager No Yearly Guardianship under the Mental Health Act 1983, England 2021-22, 2022-23 and 2023-24 No

Total number of cases closed during the year

Yearly data is available from 2003/4 until most recent year

Data is broken down by region:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West
And then by each English Local Authority.

It is also broken down by:
Gender
Section of Act (Section 7 or 37)

GMHA
Provision; No. of non-responding LAs 2023 0-120 0 120 Data manager No Yearly Guardianship under the Mental Health Act 1983, England 2021-22, 2022-23 and 2023-24 No

No. of non-responding LAs

Yearly data is available from 2003/4 until most recent year

GMHA
Provision; Median length guardianship closed cases 2022-23 2023 0-120 0 120 Data manager No Yearly Guardianship under the Mental Health Act 1983, England 2021-22, 2022-23 and 2023-24 No

Median length of closed cases (months) 2022-23

Data is broken down by region:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West
And then by each English Local Authority.

GMHA
Provision; Median length guardianship closed cases 2023-24 2023 0-120 0 120 Data manager No Yearly Guardianship under the Mental Health Act 1983, England 2021-22, 2022-23 and 2023-24 No

Median length of closed cases (months) 2023-24

Data is broken down by region:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West
And then by each English Local Authority.

GMHA
Provision; Has worker completed control & restraint training 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Has the worker completed training in category – Control and restraint

Not recorded
No
Yes
Not known

ASC-WDS
Provision; Date worker completed control & restraint training 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Most recent date the worker completed training in category – Control and restraint

Date

ASC-WDS
Provision; No. instances training in control and restraint 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of instances of training completed in category – Control and restraint

Number

ASC-WDS
Provision; No. instances training in control and restraint - accredited 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of accredited instances of training completed in category – Control and restraint

Number

ASC-WDS
Provision; No. instances training in control and restraint - non-accredited 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of non-accredited instances of training completed in category – Control and restraint

Number

ASC-WDS
Provision; No. instances training in control and restraint - unknown accreditation 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of unknown accreditation instances of training completed in category – Control and restraint

Number

ASC-WDS
Provision; Does worker get paid hourly or annual salary? 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Does the worker get paid an hourly rate or annual salary?

Not known
Not recorded
Annual
Hourly

ASC-WDS
Provision; Worker's annual salary 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The workers annual salary. Dependent on salaryint.

Salary in £

ASC-WDS
Provision; Worker's hourly rate 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The workers hourly rate. Dependent on salaryint.

Rate in £

ASC-WDS
Provision; Date hourly rate changed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Date when hrlyrate was last changed.

Date

ASC-WDS
Provision; FTE equivalent rate of worker - hourly rate 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The full-time equivalent hourly rate of the worker. Dependent on salaryint and conthrs/averagehours.

Rate in £

ASC-WDS
Provision; FTE equivalent rate of worker - annual salary 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The full-time equivalent annual salary of the worker. Dependent on salaryint and conthrs/averagehours.

Salary in £

ASC-WDS
Provision; Is worker doing apprenticeship 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Is the worker doing training as part of an apprenticeship.

Not recorded
No
Yes
Not known

ASC-WDS
Provision; Date apprentice status last changed 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Date when apprentice was last changed.

Date

ASC-WDS
Provision; Social care qualifications of worker 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Does the worker hold a qualification relevant to adult social care?

Not recorded
No
Yes
Not known

ASC-WDS
Provision; Date qualifications last changed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Date when scqheld was last changed.

Date

ASC-WDS
Provision; Highest level adult social care qualification held 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Highest level of adult social care relevant qualification held. Dependent on scqheld.

Missing
Entry
Level 1
Level 2
Level 3
Level 4
Level 5
Level 6
Level 7
Level 8 or above

ASC-WDS
Provision; Worker qualification not relevant to adult social care? 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Does the worker hold a qualification not relevant to adult social care?

Not recorded
No
Yes
Not known

ASC-WDS
Provision; Date non-ASC qualification last changed 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Date when nonscqheld was last changed.

Date

ASC-WDS
Provision; Highest non-relevant adult social care qualification held 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Highest level of non-relevant adult social care qualification held. Dependent on nonscqheld.

Missing
Entry
Level 1
Level 2
Level 3
Level 4
Level 5
Level 6
Level 7
Level 8 or above

ASC-WDS
Provision; Does worker hold listed qualifications? 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Does the worker hold one or more of the listed qualifications?
[unable to retrieve list from dataset documentation]

Health and Social Care NVQ
Health and Social Care NVQ
Health and Social Care NVQ
Care NVQ
Care NVQ
Care NVQ
Any Learning Disabled Awards Framework (LDAF) award
Other health and care-related NVQ(s)
Registered Manager’s (Adults) NVQ
Other management awards
A1, A2 or other Assessor NVQ
V1 or other Internal Verifier NVQ
L20 or other Mentoring NVQ
Social Work degree (UK)
Social Work diploma or other approved UK or non-UK social work qualification
Combined Nursing & Social Work degree
Post-Qualifying Award in Social Work (PQSW) Part 1
Advanced Award in Social Work (AASW)
Mental Health Social Work Award (MHSWA)
Mentor Award
Other Post-Qualifying Social Work Award
Any professional Occupational Therapy qualification
Any Registered Nursing qualification
Any qualification in assessment of work-based learning other than social work
Any other relevant professional qualification
A Basic Skills qualification
A Basic Skills qualification
A Basic Skills qualification
Any other qualification relevant to social care
Any other qualification relevant to the job role
Any other qualifications held
Supporting Activity Provision in Social Care
Activity Provision in Social Care
Awareness of Dementia
Awareness of Dementia
Dementia Care
Dementia Care
Emergency First Aid at Work
Health and Social Care – Generic pathway
Health and Social Care – Generic pathway
Health and Social Care – Dementia
Health and Social Care – Dementia
Health and Social Care – Learning disabilities
Health and Social Care – Learning disabilities
Leadership in Health and Social Care and Children and Young People’s Services – Adults’ Residential Management
Leadership in Health and Social Care and Children and Young People’s Services – Adults’ Management
Leadership in Health and Social Care and Children and Young People’s Services – Adults’ Advanced Practice
Supporting Individuals with Learning Disabilities
Supporting Individuals with Learning Disabilities
Understanding Working with People with Mental Health Issues
Assisting and Moving Individuals in Social Care
Providing an Induction in to Assisting & Moving Individuals in Adult Social Care
Preparing to work in Adult Social Care
Preparing to work in Adult Social Care
Any Assessor qualification
Any Internal Verifier qualification
Any Mentoring qualification
Preparing to Work in Adult Social Care
Award in Stroke Awareness
Certificate in Stroke Care Management
Basic awareness of Diabetes
Working with individuals with Diabetes
Food safety in health and social care and early years and childcare settings
Promoting food safety and nutrition in health and social care or early years and childcare settings
Introduction to Health, Social Care and Children’s and Young People’s Settings
Introduction to Health, Social Care and Children’s and Young People’s Settings
Supporting Individuals with Learning Disabilities
Supporting Individuals with Learning Disabilities
Employment Responsibilities and Rights in Health, Social Care, Children and Young People’s Settings
Delivering Chair-Based Exercise with Frailer Older Adults and Adults with Disabilities in Care and Community Settings
Awareness of End of Life Care
Awareness of End of Life Care
Working in End of Life care
Leading and Managing Services to Support End of Life and Significant Life Events
Awareness of the Mental Capacity Act 2005
Approved Mental Health Practitioner
Approved Social Worker
Award in Supporting Individuals on the Autistic Spectrum
Certificate in Supporting Individuals on the Autistic Spectrum
Adult Care
Adult Care
Any other social care relevant award
Any other non-social care relevant award
Any other social care relevant certificate
Any other non-social care relevant certificate
Any other social care relevant diploma
Any other non-social care relevant diploma
Any children’s/young people’s qualification
Certificate in Independent Advocacy
Certificate in Assisting and Moving Individuals for a Social care Setting
Certificate in Understanding Autism
Certificate in Autism Support
Certificate in Understanding Autism
Certificate in Clinical Skills
Certificate in Clinical Skills
Certificate in Fundamental Knowledge in Commissioning for Wellbeing
Certificate in Understanding Care and Management of Diabetes
Certificate in Understanding Diabetes
Certificate in Understanding Care and Management of Diabetes
Diploma in Care (RQF)
Diploma in Care (RQF)
Certificate in Principles of Leadership and Management in Adult Care
Diploma in Leadership and Management for Adult Care (RQF)
Certificate in Understanding the Safe Handling of Medication
Certificate in Principles of Safe Handling of Medication in Health and Social Care (RQF)
Certificate in Understanding the Safe Handling of Medication in Health and Social Care
Certificate in Awareness of Mental Health Problems
Certificate in Mental Health Awareness
Certificate in Principles of Working with People with Mental Health Needs
Certificate in Understanding Working in Mental Health
Certificate in Understanding Working with People with Mental Health Needs
Certificate in Understanding Mental Health Care
Certificate in Understanding Mental Health Care
Certificate in Social Prescribing
Intermediate Apprenticeship in Health and Social Care (framework)
Adult Care Worker (standard)
Advance Apprenticeships in Health and Social Care (framework)
Adult Care Worker (standard)
Lead Practitioner in Adult Care (standard)
Higher Apprenticeship in Care Leadership and Management (framework)
Leader in Adult Care (standard)
Degree Social Worker (standard)
Nursing Associate (standard)
Degree Registered Nurse (standard)
Any other apprenticeship framework or standard
Occupational Therapist
Physiotherapist

ASC-WDS
Provision; Does worker hold Health and Social Care NVQ level 2 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Does the worker hold the qualification – Health and Social Care NVQ at level 2

Not recorded
No
Yes
Not known

ASC-WDS
Provision; Year worker achieved Health and Social Care NVQ level 2 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Year the worker achieved – Health and Social Care NVQ at level 2

Year

ASC-WDS
Provision; Source of the recruitment. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The source of the recruitment.

Not recorded
Adult care sector: local authority
Adult care sector: private or voluntary sector
Health sector
Other sector
Internal promotion or transfer or career development
Not previously employed
Agency
Other sources
Not known
Children’s/young people’s social care
First role after education

ASC-WDS
Provision; Sick days worker had in past year 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The number of sickness days the worker had in the previous 12 months.

Number

ASC-WDS
Provision; Has worker completed listed training? 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Has the worker completed any of the listed training?
[unable to retrieve list from dataset documentation]

Control and restraint
Dementia care
Emergency Aid awareness
Fire Safety
First Aid
Food safety and catering
Health and Safety
Infection Control
Leadership & Management
Learning disability
Medication safe handling and awareness
Mental capacity and deprivation of liberty
Moving and handling
Nutrition and hydration
Palliative or end of life care
Physical Disability
Positive Behaviour and support
Safeguarding Adults
Dignity, Respect, Person Centred care
Equality, Diversity and Human Rights training
Any other not in the above categories
Children’s / young people’s related training
Confidentiality/GDPR
Epilepsy
Communication Skills
Diabetes
COSHH
Mental Health
Autism
Continence Care
Duty of Care
Supervision / Performance management
Stroke
Complaints handling/conflict resolution
Personal Care
Activity provision/Well-being
Sensory disability

ASC-WDS
Provision; Date nationality last changed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Date when nationality was last changed.

Date

ASC-WDS
Provision; Worker country of birth 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Data quality filter – Country of birth

Afghanistan
Albania
Antarctica
Algeria
American Samoa
Andorra
Angola
Antigua and Barbuda
Azerbaijan
Argentina
Australia
Austria
Bahamas
Bahrain
Bangladesh
Armenia
Barbados
Belgium
Bermuda
Bhutan
Bolivia
Bosnia and Herzegovina
Botswana
Bouvet Island
Brazil
Belize
British Indian Ocean Territory
Solomon Islands
Virgin Islands British
Brunei Darussalam
Bulgaria
Myanmar
Burundi
Belarus
Cambodia
Cameroon
Canada
Cape Verde
Cayman Islands
Central African Republic
Sri Lanka
Chad
Chile
China
Taiwan Province of China
Christmas Island
Cocos (Keeling) Islands
Colombia
Comoros
Mayotte
Congo
Congo Democratic Republic of the
Cook Islands
Costa Rica
Croatia
Cuba
Cyprus
Czech Republic
Benin
Denmark
Dominica
Dominican Republic
Ecuador
El Salvador
Equatorial Guinea
Ethiopia
Eritrea
Estonia
Faroe Islands
Falkland Islands (Malvinas)
South Georgia and the South Sandwich Islands
Fiji
Finland
Aland Islands
France
French Guiana
French Polynesia
French Southern Territories
Djibouti
Gabon
Georgia
Gambia
Palestine, State of
Germany
Ghana
Gibraltar
Kiribati
Greece
Greenland
Grenada
Guadeloupe
Guam
Guatemala
Guinea
Guyana
Haiti
Heard Island and McDonald Islands
Holy See (Vatican City State)
Honduras
Hong Kong
Hungary
Iceland
India
Indonesia
Iran Islamic Republic of
Iraq
Ireland
Israel
Italy
Cote d’Ivoire
Jamaica
Japan
Kazakhstan
Jordan
Kenya
Korea Democratic People’s Republic of
Korea Republic of
Kuwait
Kyrgyzstan
Laos
Lebanon
Lesotho
Latvia
Liberia
Libya
Liechtenstein
Lithuania
Luxembourg
Macao
Madagascar
Malawi
Malaysia
Maldives
Mali
Malta
Martinique
Mauritania
Mauritius
Mexico
Monaco
Mongolia
Moldova
Montenegro
Montserrat
Morocco
Mozambique
Oman
Namibia
Nauru
Nepal
Netherlands
Curacao (Formerly Netherlands Antilles)
Aruba
Sint Maarten (Dutch part) (Formerly Netherlands Antilles)
Bonaire, Sint Eustatius and Saba
New Caledonia
Vanuatu
New Zealand
Nicaragua
Niger
Nigeria
Niue
Norfolk Island
Norway
Northern Mariana Islands
US Minor Outlying Islands
Micronesia Federated States of
Marshall Islands
Palau
Pakistan
Panama
Papua New Guinea
Paraguay
Peru
Philippines
Pitcairn
Poland
Portugal
Guinea-Bissau
Timor-Leste
Puerto Rico
Qatar
Reunion
Romania
Russian Federation
Rwanda
Saint Barthelemy
St Helena Ascension & Tristan da Cunha
Saint Kitts and Nevis
Anguilla
Saint Lucia
Saint Martin (French part)
Saint Pierre and Miquelon
St Vincent and the Grenadines
San Marino
Sao Tome and Principe
Saudi Arabia
Senegal
Serbia
Seychelles
Sierra Leone
Singapore
Slovakia
Viet Nam
Slovenia
Somalia
South Africa
Zimbabwe
Spain
South Sudan
Western Sahara
Sudan
Suriname
Svalbard and Jan Mayen
Swaziland
Sweden
Switzerland
Syrian Arab Republic
Tajikistan
Thailand
Togo
Tokelau
Tonga
Trinidad and Tobago
United Arab Emirates
Tunisia
Turkey
Turkmenistan
Turks and Caicos Islands
Tuvalu
Uganda
Ukraine
Macedonia the former Yugoslav Republic of
Egypt
United Kingdom
Guernsey
Jersey
Tanzania Untd Republic of
United States
Virgin Islands U.S.
Burkina Faso
Uruguay
Uzbekistan
Venezuela
Wallis and Futuna
Samoa
Yemen
Zambia
Kosovo
Unknown

ASC-WDS
Provision; Reason excluding worker country of birth 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Reason for excluding worker from country of birth

Included
No COB data supplied
All workers non-UK (not known)
50+ workers and all non-UK born
100+ workers and 99%+ are non-UK born (org)
100+ workers and 99%+ are non-UK born (est)
500+ workers and 99% are UK born (org)
500+ workers and 99% are UK born (est)
100+ workers and all are UK born (org) – E/EM/L/SE/SW/WM only
100+ workers and all are UK born (est) – E/EM/L/SE/SW/WM only
200+ workers and 99%+ are UK born (org) – LDN & SE only
200+ workers and 99%+ are UK born (est) – LDN & SE only
50%+ of non-UK born are non-UK-not known (org)

ASC-WDS
Provision; Was worker born in the UK? 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Was the worker born in the UK?

ASC-WDS
Provision; Worker's country of birth. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The workers country of birth.

Afghanistan
Albania
Antarctica
Algeria
American Samoa
Andorra
Angola
Antigua and Barbuda
Azerbaijan
Argentina
Australia
Austria
Bahamas
Bahrain
Bangladesh
Armenia
Barbados
Belgium
Bermuda
Bhutan
Bolivia
Bosnia and Herzegovina
Botswana
Bouvet Island
Brazil
Belize
British Indian Ocean Territory
Solomon Islands
Virgin Islands British
Brunei Darussalam
Bulgaria
Myanmar
Burundi
Belarus
Cambodia
Cameroon
Canada
Cape Verde
Cayman Islands
Central African Republic
Sri Lanka
Chad
Chile
China
Taiwan Province of China
Christmas Island
Cocos (Keeling) Islands
Colombia
Comoros
Mayotte
Congo
Congo Democratic Republic of the
Cook Islands
Costa Rica
Croatia
Cuba
Cyprus
Czech Republic
Benin
Denmark
Dominica
Dominican Republic
Ecuador
El Salvador
Equatorial Guinea
Ethiopia
Eritrea
Estonia
Faroe Islands
Falkland Islands (Malvinas)
South Georgia and the South Sandwich Islands
Fiji
Finland
Aland Islands
France
French Guiana
French Polynesia
French Southern Territories
Djibouti
Gabon
Georgia
Gambia
Palestine, State of
Germany
Ghana
Gibraltar
Kiribati
Greece
Greenland
Grenada
Guadeloupe
Guam
Guatemala
Guinea
Guyana
Haiti
Heard Island and McDonald Islands
Holy See (Vatican City State)
Honduras
Hong Kong
Hungary
Iceland
India
Indonesia
Iran Islamic Republic of
Iraq
Ireland
Israel
Italy
Cote d’Ivoire
Jamaica
Japan
Kazakhstan
Jordan
Kenya
Korea Democratic People’s Republic of
Korea Republic of
Kuwait
Kyrgyzstan
Laos
Lebanon
Lesotho
Latvia
Liberia
Libya
Liechtenstein
Lithuania
Luxembourg
Macao
Madagascar
Malawi
Malaysia
Maldives
Mali
Malta
Martinique
Mauritania
Mauritius
Mexico
Monaco
Mongolia
Moldova
Montenegro
Montserrat
Morocco
Mozambique
Oman
Namibia
Nauru
Nepal
Netherlands
Curacao (Formerly Netherlands Antilles)
Aruba
Sint Maarten (Dutch part) (Formerly Netherlands Antilles)
Bonaire, Sint Eustatius and Saba
New Caledonia
Vanuatu
New Zealand
Nicaragua
Niger
Nigeria
Niue
Norfolk Island
Norway
Northern Mariana Islands
US Minor Outlying Islands
Micronesia Federated States of
Marshall Islands
Palau
Pakistan
Panama
Papua New Guinea
Paraguay
Peru
Philippines
Pitcairn
Poland
Portugal
Guinea-Bissau
Timor-Leste
Puerto Rico
Qatar
Reunion
Romania
Russian Federation
Rwanda
Saint Barthelemy
St Helena Ascension & Tristan da Cunha
Saint Kitts and Nevis
Anguilla
Saint Lucia
Saint Martin (French part)
Saint Pierre and Miquelon
St Vincent and the Grenadines
San Marino
Sao Tome and Principe
Saudi Arabia
Senegal
Serbia
Seychelles
Sierra Leone
Singapore
Slovakia
Viet Nam
Slovenia
Somalia
South Africa
Zimbabwe
Spain
South Sudan
Western Sahara
Sudan
Suriname
Svalbard and Jan Mayen
Swaziland
Sweden
Switzerland
Syrian Arab Republic
Tajikistan
Thailand
Togo
Tokelau
Tonga
Trinidad and Tobago
United Arab Emirates
Tunisia
Turkey
Turkmenistan
Turks and Caicos Islands
Tuvalu
Uganda
Ukraine
Macedonia the former Yugoslav Republic of
Egypt
United Kingdom
Guernsey
Jersey
Tanzania Untd Republic of
United States
Virgin Islands U.S.
Burkina Faso
Uruguay
Uzbekistan
Venezuela
Wallis and Futuna
Samoa
Yemen
Zambia
Kosovo
Unknown

ASC-WDS
Provision; Year worker arrived in the UK 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

If the worker was not born in the UK, the year the worker arrive in the UK?

Not recorded
No
Yes
Not known

ASC-WDS
Provision; Employment status of staff record. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The employment status of staff record.

Not recorded
Permanent
Temporary
Bank or pool
Agency
Student
Other

ASC-WDS
Provision; Worker's main job role. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The workers main job role.

Senior Management
Middle Management
First Line Manager
Registered Manager
Supervisor
Social Worker
Senior Care Worker
Care Worker
Community Support and Outreach Work
Employment Support
Advice Guidance and Advocacy
Occupational Therapist
Registered Nurse
Allied Health Professional
Technician
Other care-providing job role
Managers and staff in care-related but not care-providing roles
Administrative or office staff not care-providing
Ancillary staff not care-providing
Other non-care-providing job roles
Activities worker or co-ordinator
Safeguarding and reviewing officer
Occupational therapist assistant
Nursing Associate
Nursing Assistant
Assessment officer
Care co-ordinator
Care navigator
Any Children’s/young peoples job role

ASC-WDS
Provision; If worker employed on zero-hours contract 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Is the worker employed on a zero-hours contract?

Not recorded
No
Yes
Not known

ASC-WDS
Provision; Average hours worked in previous week. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The average hours worked in the previous week. Dependent on employment status and zero-hours contract.

Average hours

ASC-WDS
Provision; Contracted weekly hours of worker. Dependent on employment status and zero-hours contract. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The contracted weekly hours of the worker. Dependent on employment status and zero-hours contract.

Weekly hours

ASC-WDS
Provision; Is worker Senior Management 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Is the worker employed in the role – Senior Management

Not recorded
No
Yes
Not known

ASC-WDS
Provision; Is worker employed as Approved Mental Health Professional 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Is the social worker employed as a Approved Mental Health Professional. Dependent on jr06flag.

Not recorded
No
Yes
Not known

ASC-WDS
Provision; Worker's start date in current role. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The workers start date in their current role.

Date

ASC-WDS
Provision; Year worker started current role. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The year the worker started in their current role.

Year

ASC-WDS
Provision; Year worker started working in adult social care. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The year the worker started working in adult social care.

Year

ASC-WDS
Provision; LA area of workplace 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The local authority area of the workplace. Based on local authority district, unitary authority, metropolitan district or London borough.

Eastern
East Midlands
London
North East
North West
South East
South West
West Midlands
Yorkshire and the Humber

ASC-WDS
Provision; Workplace CCG area 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The clinical commissioning group area.

NHS Airedale, Wharfedale and Craven
NHS Ashford
NHS Aylesbury Vale
NHS Barking and Dagenham
NHS Barnet
NHS Barnsley
NHS Basildon and Brentwood
NHS Bassetlaw
NHS Bath and North East Somerset
NHS Bedfordshire
NHS Bexley
NHS Birmingham CrossCity
NHS Birmingham South and Central
NHS Blackburn with Darwen
NHS Blackpool
NHS Bolton
NHS Bracknell and Ascot
NHS Bradford City
NHS Bradford Districts
NHS Brent
NHS Brighton and Hove
NHS Bristol
NHS Bromley
NHS Bury
NHS Calderdale
NHS Cambridgeshire and Peterborough
NHS Camden
NHS Cannock Chase
NHS Canterbury and Coastal
NHS Castle Point and Rochford
NHS Central London (Westminster)
NHS Central Manchester
NHS Chiltern
NHS Chorley and South Ribble
NHS City and Hackney
NHS Corby
NHS Coventry and Rugby
NHS Crawley
NHS Croydon
NHS Cumbria
NHS Darlington
NHS Dartford, Gravesham and Swanley
NHS Doncaster
NHS Dorset
NHS Dudley
NHS Durham Dales, Easington and Sedgefield
NHS Ealing
NHS East and North Hertfordshire
NHS East Lancashire
NHS East Leicestershire and Rutland
NHS East Riding of Yorkshire
NHS East Staffordshire
NHS East Surrey
NHS Eastbourne, Hailsham and Seaford
NHS Eastern Cheshire
NHS Enfield
NHS Erewash
NHS Fareham and Gosport
NHS Gloucestershire
NHS Great Yarmouth and Waveney
NHS Greater Huddersfield
NHS Greenwich
NHS Halton
NHS Hambleton, Richmond shire and Whitby
NHS Hammersmith and Fulham
NHS Hardwick
NHS Haringey
NHS Harrogate and Rural District
NHS Harrow
NHS Hartlepool and Stockton-on-Tees
NHS Hastings and Rother
NHS Havering
NHS Herefordshire
NHS Herts Valleys
NHS Heywood, Middleton and Rochdale
NHS High Weald Lewes Havens
NHS Hillingdon
NHS Horsham and Mid Sussex
NHS Hounslow
NHS Hull
NHS Ipswich and East Suffolk
NHS Isle of Wight
NHS Islington
NHS Kernow
NHS Kingston
NHS Knowsley
NHS Lambeth
NHS Lancashire North
NHS Leeds North
NHS Leeds South and East
NHS Leeds West
NHS Leicester City
NHS Lewisham
NHS Lincolnshire East
NHS Lincolnshire West
NHS Liverpool
NHS Luton
NHS Mansfield and Ashfield
NHS Medway
NHS Merton
NHS Mid Essex
NHS Milton Keynes
NHS Nene
NHS Newark and Sherwood
NHS Newbury and District
NHS Newham
NHS North & West Reading
NHS North Derbyshire
NHS North Durham
NHS North East Essex
NHS North East Hampshire and Farnham
NHS North East Lincolnshire
NHS North Hampshire
NHS North Kirklees
NHS North Lincolnshire
NHS North Manchester
NHS North Norfolk
NHS North Somerset
NHS North Staffordshire
NHS North Tyneside
NHS North West Surrey
NHS Northern, Eastern and Western Devon
NHS Northumberland
NHS Nottingham City
NHS Nottingham North and East
NHS Nottingham West
NHS Oldham
NHS Oxfordshire
NHS Portsmouth
NHS Redbridge
NHS Redditch and Bromsgrove
NHS Richmond
NHS Rotherham
NHS Rushcliffe
NHS Salford
NHS Sandwell and West Birmingham
NHS Scarborough and Ryedale
NHS Sheffield
NHS Shropshire
NHS Slough
NHS Solihull
NHS Somerset
NHS South Cheshire
NHS South Devon and Torbay
NHS South East Staffordshire and Selsdon Peninsula
NHS South Eastern Hampshire
NHS South Gloucestershire
NHS South Kent Coast
NHS South Lincolnshire
NHS South Manchester
NHS South Reading
NHS South Sefton
NHS South Tees
NHS South Tyneside
NHS South Warwickshire
NHS South West Lincolnshire
NHS South Worcestershire
NHS Southampton
NHS Southend
NHS Southern Derbyshire
NHS Southport and Formby
NHS Southwark
NHS St Helens
NHS Stafford and Surrounds
NHS Stockport
NHS Stoke on Trent
NHS Sunderland
NHS Surrey Downs
NHS Surrey Heath
NHS Sutton
NHS Swale
NHS Swindon
NHS Tameside and Glossop
NHS Telford and Wrekin
NHS Thanet
NHS Thurrock
NHS Tower Hamlets
NHS Trafford
NHS Vale of York
NHS Vale Royal
NHS Wakefield
NHS Walsall
NHS Waltham Forest
NHS Wandsworth
NHS Warrington
NHS Warwickshire North
NHS West Cheshire
NHS West Essex
NHS West Hampshire
NHS West Kent
NHS West Lancashire
NHS West Leicestershire
NHS West London
NHS West Norfolk
NHS West Suffolk
NHS Wigan Borough
NHS Wiltshire
NHS Windsor Ascot and Maidenhead
NHS Wirral
NHS Wokingham
NHS Wolverhampton
NHS Wyre Forest
NHS Newcastle Gateshead
NHS Coastal West Sussex
NHS Guildford and Waverley
NHS North Cumbria
NHS Manchester
NHS Norwich
NHS South Norfolk
NHS Birmingham and Solihull
NHS Berkshire West
NHS Bristol, North Somerset and South Gloucestershire
NHS Buckinghamshire
NHS East Berkshire
NHS Leeds
NHS Fylde and Wyre
NHS Greater Preston
NHS Morecambe Bay
NHS Derby and Derbyshire
NHS Devon
NHS Bath and North East Somerset, Swindon and Wiltshire
NHS Bradford District and Craven
NHS Cheshire
NHS County Durham
NHS East Sussex
NHS Herefordshire and Worcestershire
NHS Kent and Medway
NHS Lincolnshire
NHS Norfolk & Waveney
NHS North Central London
NHS North Yorkshire
NHS Northamptonshire
NHS Nottingham and Nottinghamshire
NHS South East London
NHS South West London
NHS Surrey Heartlands
NHS Tees Valley
NHS West Sussex
NHS Bedfordshire, Luton and Milton Keynes
NHS Black Country and West Birmingham
NHS Coventry and Warwickshire
NHS Frimley
NHS Hampshire, Southampton and Isle of Wight
NHS Kirklees
NHS North East London
NHS North West London
NHS Shropshire, Telford and Wrekin

ASC-WDS
Provision; LA district of workplace 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Local authority district – Unitary authority – Metropolitan district – London borough. Defined by ONS.

Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
Darlington
Halton
Warrington
Blackburn with Darwen
Blackpool
Kingston upon Hull, City of
East Riding of Yorkshire
North East Lincolnshire
North Lincolnshire
York
Derby
Leicester
Rutland
Nottingham
Herefordshire, County of
Telford and Wrekin
Stoke-on-Trent
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Plymouth
Torbay
Swindon
Peterborough
Luton
Southend-on-Sea
Thurrock
Medway
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Milton Keynes
Brighton and Hove
Portsmouth
Southampton
Isle of Wight
County Durham
Cheshire East
Cheshire West and Chester
Shropshire
Cornwall
Isles of Scilly
Wiltshire
Bedford
Central Bedfordshire
Northumberland
Bournemouth, Christchurch and Poole
Dorset
Buckinghamshire
Cambridge
East Cambridgeshire
Fenland
Huntingdonshire
South Cambridgeshire
Allerdale
Barrow-in-Furness
Carlisle
Copeland
Eden
South Lakeland
Amber Valley
Bolsover
Chesterfield
Derbyshire Dales
Erewash
High Peak
North East Derbyshire
South Derbyshire
East Devon
Exeter
Mid Devon
North Devon
South Hams
Teignbridge
Torridge
West Devon
Eastbourne
Hastings
Lewes
Rother
Wealden
Basildon
Braintree
Brentwood
Castle Point
Chelmsford
Colchester
Epping Forest
Harlow
Maldon
Rochford
Tendring
Uttlesford
Cheltenham
Cotswold
Forest of Dean
Gloucester
Stroud
Tewkesbury
Basingstoke and Deane
East Hampshire
Eastleigh
Fareham
Gosport
Hart
Havant
New Forest
Rushmoor
Test Valley
Winchester
Broxbourne
Dacorum
Hertsmere
North Hertfordshire
Three Rivers
Watford
Ashford
Canterbury
Dartford
Dover
Gravesham
Maidstone
Sevenoaks
Folkestone and Hythe
Swale
Thanet
Tonbridge and Malling
Tunbridge Wells
Burnley
Chorley
Fylde
Hyndburn
Lancaster
Pendle
Preston
Ribble Valley
Rossendale
South Ribble
West Lancashire
Wyre
Blaby
Charnwood
Harborough
Hinckley and Bosworth
Melton
North West Leicestershire
Oadby and Wigston
Boston
East Lindsey
Lincoln
North Kesteven
South Holland
South Kesteven
West Lindsey
Breckland
Broadland
Great Yarmouth
King’s Lynn and West Norfolk
North Norfolk
Norwich
South Norfolk
Corby
Daventry
East Northamptonshire
Kettering
Northampton
South Northamptonshire
Wellingborough
Craven
Hambleton
Harrogate
Richmond shire
Ryedale
Scarborough
Selby
Ashfield
Bassetlaw
Broxtowe
Gedling
Mansfield
Newark and Sherwood
Rushcliffe
Cherwell
Oxford
South Oxfordshire
Vale of White Horse
West Oxfordshire
Mendip
Sedgemoor
South Somerset
Cannock Chase
East Staffordshire
Lichfield
Newcastle-under-Lyme
South Staffordshire
Stafford
Staffordshire Moorlands
Tamworth
Babergh
Ipswich
Mid Suffolk
Elmbridge
Epsom and Ewell
Guildford
Mole Valley
Reigate and Banstead
Runnymede
Spelthorne
Surrey Heath
Tandridge
Waverley
Woking
North Warwickshire
Nuneaton and Bedworth
Rugby
Stratford-on-Avon
Warwick
Adur
Arun
Chichester
Crawley
Horsham
Mid Sussex
Worthing
Bromsgrove
Malvern Hills
Redditch
Worcester
Wychavon
Wyre Forest
St Albans
Welwyn Hatfield
East Hertfordshire
Stevenage
East Suffolk
West Suffolk
Somerset West and Taunton
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
St. Helens
Sefton
Wirral
Barnsley
Doncaster
Rotherham
Sheffield
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Bradford
Calderdale
Kirklees
Leeds
Wakefield
Gateshead
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Camden
Croydon
Ealing
Enfield
Greenwich
Hackney
Hammersmith and Fulham
Haringey
Harrow
Havering
Hillingdon
Hounslow
Islington
Kensington and Chelsea
Kingston upon Thames
Lambeth
Lewisham
Merton
Newham
Redbridge
Richmond upon Thames
Southwark
Sutton
Tower Hamlets
Waltham Forest
Wandsworth
Westminster

ASC-WDS
Provision; Straight line distance workers home to workplace 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Straight line distance between workers home and workplace postcode in miles.

Staight line distance between workers home and workplace postcode in miles.

ASC-WDS
Provision; Sector of the workplace. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The sector of the workplace.

Not allocated
Local authority (adult services)
Local authority (generic/other)
Private sector
Voluntary/charity
Other

ASC-WDS
Provision; Total number staff at workplace. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The total number of staff at the workplace.

Number

ASC-WDS
Provision; No. staff records for workplace. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of staff records for the workplace.

Number

ASC-WDS
Provision; Main service provided by workplace. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The main service provided by the workplace.

Care home services with nursing – CQC Regulated
Care home services without nursing – CQC Regulated
Sheltered housing
Other adult residential care service
Day care and day services
Other adult day care services
Domiciliary Care services – CQC Regulated
Live-in Care (can only be used as Other Service) – CQC Regulated
Extra Care housing services – CQC Regulated
Supported living services – CQC Regulated
Domestic services and home help
Other adult domiciliary care services
Shared lives – CQC Regulated
Carers support
Short breaks or respite care
Community support and outreach
Social work and care management
Disability adaptations or assistive technology services
Occupational or employment related services
Information and advice services
Other adult community care services
Community based services for people with a learning disability – CQC Regulated
Community based services for people with mental health needs – CQC Regulated
Community based services for people who misuse substances – CQC Regulated
Community healthcare services – CQC Regulated
Hospice services – CQC Regulated
Long Term conditions services – CQC Regulated
Hospital services for people with mental health needs and/or learning disabilities and/or problems with substance misuse – CQC Regulated
Rehabilitation services – CQC Regulated
Residential substance misuse treatment/rehabilitation services – CQC Regulated
Other healthcare service
Nurses agency – CQC Regulated
Any Other Services
Head Office Services
Any children’s young peoples services
Specialist College Services – SPC

ASC-WDS
Provision; Date when service provided changed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Date when any service provided was last changed.

Date

ASC-WDS
Provision; Capacity of service at workplace. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Capacity of the service at the workplace.

Number

ASC-WDS
Provision; Utilisation [assumed utlisation rate of service] 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Utilisation

Don’t know
Not recorded
No
Yes
Not disclosed

ASC-WDS
Provision; Date when service user type last changed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Date when any service user type was last changed.

Date

ASC-WDS
Provision; Type of people cared for at service. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Type of people cared for at the service.

Older people with dementia
Older people with mental disorders or infirmities, excluding learning disability or dementia
Older people detained under the Mental Health Act
Older people with learning disabilities and/or autism
Older people with physical disabilities
Older people with sensory impairment(s)
Older people who misuse alcohol/drugs
Older people with an eating disorder
Older people others not in above categories
Adults with dementia
Adults with mental disorders or infirmities, excluding learning disability or dementia
Adults detained under the Mental Health Act
Adults with learning disabilities and/or autism
Adults with physical disabilities
Adults with sensory impairments
Adults who misuse alcohol or drugs
Adults with an eating disorder
Adults others not in above categories
Any children and young people
Carers of older people
Carers of adults
Carers of children and young people
Other others not in above categories

ASC-WDS
Provision; Date staff record created. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Date the staff record was created.

Date

ASC-WDS
Provision; Date staff record last changed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Date the staff record was last changed.

Date

ASC-WDS
Provision; Unique identifier for staff record. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Unique identifier for a staff record.

Identifier

ASC-WDS
Provision; Unique identifier for individual (NI number of date of birth) 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Unique identifier for an individual. Based on NI number of date of birth.

Identifier

ASC-WDS
Provision; Worker's age 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The workers age when the dataset was captured.

Age

ASC-WDS
Provision; Worker's gender 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The workers gender.

Not recorded
Male
Female
Unknown
Other

ASC-WDS
Provision; Does worker identify as having disability? 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Does the worker identify as having a disability?

Don’t know
Not recorded
No
Yes
Not disclosed

ASC-WDS
Provision; Worker's ethnicity. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The workers ethnicity.

Not recorded
English / Welsh / Scottish / Northern Irish / British
Irish
Gypsy or Irish Traveller
Any Other White background
White and Black Caribbean
White and Black African
White and Asian
Any Other Mixed / multiple ethnic background
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
African
Caribbean
Any other Black / African / Caribbean background
Arab
Any other ethnic group
Not known

ASC-WDS
Provision; Worker nationality 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Data quality filter – Nationality

Afghan
Albanian
Algerian
American
Andorran
Angolan
Citizen of Antigua and Barbuda
Azerbaijani
Argentine
Australian
Australian
Australian
Australian
Australian
Austrian
Bahamian
Bahraini
Bangladeshi
Armenian
Barbadian
Belgian
Bermudian
Bhutanese
Bolivian
Citizen of Bosnia and Herzegovina
Botswanan
Brazilian
Belizean
Solomon Islander
Bruneian
Bulgarian
Burmese
Burundian
Belarusian
Cambodian
Cameroonian
Canadian
Cape Verdean
Cayman Islander
Central African
Sri Lankan
Chadian
Chilean
Chinese
Taiwanese
Colombian
Comoran
Congolese (Congo)
Congolese (DRC)
Cook Islander
Costa Rican
Croatian
Cuban
Cypriot
Czech
Beninese
Danish
Dominican
Citizen of the Dominican Republic
Ecuadorean
Salvadorean
Equatorial Guinean
Ethiopian
Eritrean
Estonian
Faroese
Fijian
Finnish
Finnish
French
French
French
French
French
French
French
French
French
French
French
Djiboutian
Gabonese
Georgian
Gambian
Palestinian
German
Ghanaian
Gibraltarian
Citizen of Kiribati
Greek
Greenlandic
Grenadian
Guamanian
Guatemalan
Guinean
Guyanese
Haitian
Honduran
Hong Konger
Hungarian
Icelandic
Indian
Indonesian
Iranian
Iraqi
Irish
Israeli
Italian
Italian
Ivorian
Jamaican
Japanese
Kazakh
Jordanian
Kenyan
North Korean
South Korean
Kuwaiti
Kyrgyz
Lao
Lebanese
Mosotho
Latvian
Liberian
Libyan
Liechtenstein citizen
Lithuanian
Luxembourger
Macanese
Malagasy
Malawian
Malaysian
Maldivian
Malian
Maltese
Martiniquais
Mauritanian
Mauritian
Mexican
Monegasque
Mongolian
Moldovan
Montenegrin
Montserratian
Moroccan
Mozambican
Omani
Namibian
Nauruan
Nepalese
Dutch
Dutch
Dutch
Dutch
Dutch
Citizen of Vanuatu
New Zealander
New Zealander
Nicaraguan
Nigerien
Nigerian
Niuean
Norwegian
Norwegian
Norwegian
Micronesian
Marshallese
Palauan
Pakistani
Panamanian
Papua New Guinean
Paraguayan
Peruvian
Filipino
Polish
Portuguese
Guinea-Bissau
East Timorese
Puerto Rican
Qatari
Romanian
Russian
Rwandan
St Helenian
Kittitian
Anguillan
St Lucian
Vincentian
Sammarinese
Sao Tomean
Saudi Arabian
Senegalese
Serbian
Citizen of Seychelles
Sierra Leonean
Singaporean
Slovak
Vietnamese
Slovenian
Somali
South African
Zimbabwean
Spanish
South Sudanese
Moroccan
Sudanese
Surinamese
Swazi
Swedish
Swiss
Syrian
Tajik
Thai
Togolese
Tongan
Trinidadian
Emirati
Tunisian
Turkish
Turkmen
Turks and Caicos Islander
Tuvaluan
Ugandan
Ukrainian
Macedonian
Egyptian
British
British
British
British
British
British
British
British
Tanzanian
American
American
American
American
Burkinan
Uruguayan
Uzbek
Venezuelan
Wallisian
Samoan
Samoan
Yemeni
Zambian
Kosovan
Unknown

ASC-WDS
Provision; Reason excluding worker from nationality record 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Reason for excluding worker from nationality

Included
No COB data supplied
All workers non-UK (not known)
50+ workers and all non-UK born
100+ workers and 99%+ are non-UK born (org)
100+ workers and 99%+ are non-UK born (est)
500+ workers and 99% are UK born (org)
500+ workers and 99% are UK born (est)
100+ workers and all are UK born (org) – E/EM/L/SE/SW/WM only
100+ workers and all are UK born (est) – E/EM/L/SE/SW/WM only
200+ workers and 99%+ are UK born (org) – LDN & SE only
200+ workers and 99%+ are UK born (est) – LDN & SE only
50%+ of non-UK born are non-UK-not known (org)

ASC-WDS
Provision; Does worker have British nationality? 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Does the worker have British nationality?

Not recorded
No
Yes
Not known

ASC-WDS
Provision; Date when workplace first created on dataset 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Date the workplace was created

Year and month

ASC-WDS
Provision; Unique identifier for individual workplace 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Unique identifier for a workplace. Only used within the dataset.

Unique identifier

ASC-WDS
Provision; The postcode of the workplace. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

The postcode of the workplace.

Postcode

ASC-WDS
Provision; Unique identifier for an organisation. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Unique identifier for an organisation. The orgid is the establishment of the parent workplace.

Organisation unique identifier

ASC-WDS
Provision; Whether workplace has reliable starters or leavers data 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Flag to define if a workplace has reliable starters or leavers information.

Include
Exclude

ASC-WDS
Provision; No. of permanent/temporary staff started in previous year 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Total number of permanent and temporary staff that started in the previous 12 months. This shows ‘Don’t know’, not recorded and no starters.

Number

ASC-WDS
Provision; No. of permanent/temporary staff left in previous year 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Total number of permanent and temporary staff that left in the previous 12 months. This shows ‘Don’t know’, not recorded and no leavers.

Number

ASC-WDS
Provision; No. of permanent/temporary vacancies at workplace last update 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Total number of permanent and temporary vacancies at the time of the workplace last update. This shows ‘Don’t know’, not recorded and no vacancies.

Number

ASC-WDS
Provision; Whether workplace has staff records 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Does the workplace have staff records?

Don’t know
Not recorded
No
Yes
Not disclosed

ASC-WDS
Provision; No. permanent staff employed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of permanent staff employed. Based on staff records.

Number

ASC-WDS
Provision; No. temporary staff employed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of temporary staff employed. Based on staff records.

Number

ASC-WDS
Provision; No. pool/bank staff employed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of pool/bank staff employed. Based on staff records.

Number

ASC-WDS
Provision; No. agency staff employed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of agency staff employed. Based on staff records.

Number

ASC-WDS
Provision; No. other staff employed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of other staff employed. Based on staff records.

Number

ASC-WDS
Provision; No. permanent & temporary staff employed. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of permanent and temporary staff (employees). Based on staff records.

Number

ASC-WDS
Provision; No. of staff records. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of staff records.

Number

ASC-WDS
Provision; No. permanent & temporary staff started in year. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of permanent and temporary staff that started in the previous 12 months. If totalstarters is ‘not known’ or not recorded, value is zero.

Number

ASC-WDS
Provision; No. permanent & temporary staff left in year. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of permanent and temporary staff that left in the previous 12 months. If totalleavers is ‘not known’ or not recorded, value is zero.

Number

ASC-WDS
Provision; No. permanent & temporary staff vacancies 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Number of permanent and temporary staff vacancies at the time of last update. If totalvacancies is ‘not known’ or not recorded, value is zero.

Number

ASC-WDS
Provision; Sum of total staff across organisation. 2024 16-120 16 120 Data manager No Current ASC-WDS-User-Guides-September-2024 No

Sum of totalstaff across the organisation.

Number

ASC-WDS
Need; Inability to bathe or dress 2021 51-52 51 52 Participant No Current BCS70 Sweep11 Age51 Self-completion questionnaire No

The following items are about activities you might do during a typical day. Does your health limit you in these activities? If so, how much?

a) Vigorous activities, such as running, lifting heavy objects,
participating in strenuous sports
b) Moderate activities, such as moving a table, pushing a
vacuum cleaner, bowling, or playing golf
c) Lifting or carrying groceries
d) Climbing several flights of stairs
e) Climbing one flight of stairs
f) Bending, kneeling or stooping
g) Walking more than one mile
h) Walking half a mile
i) Walking 100 yards
j) Bathing or dressing yourself

Yes, limited a lot
Yes, limited a little
No, not limited at all

BCS
Receipt; Whether interview carried out by proxy carer 2021 51-52 51 52 Participant No Current BCS70: Questionnaire Documentation Main Stage Age 51 Survey No

What is your relationship to {CMNAME}?

1. Partner/spouse
2. Mother (include adopted/step mother)
3. Father (include adopted/step father)
4. Sister (include half/adopted/step sister)
5. Brother (include half/adopted/step brother)
6. Daughter (include adopted/step daughter)
7. Son (include adopted/step son)
8. Other relative
9. Friend
10. Unrelated carer
11. Other person

BCS
Receipt; Whether lives in care home 2021 51-52 51 52 Participant No Current BCS70: Questionnaire Documentation Main Stage Age 51 Survey No

Which of these best describes the accommodation you are living in at the moment?

1. A private residence
2. Sheltered housing
3. A hotel, boarding house or bed and breakfast
4. A hostel for homeless, refuge, YMCA, YWCA, etc.
5. A barracks, nurses’ hall of residence, or other accommodation provided by your
employer
6. A room only at workplace
7. A prison or remand centre
8. A hospital, nursing, care home or similar institution

BCS
Provision; Left work to care for family member 2021 51-52 51 52 Participant No Current BCS70: Questionnaire Documentation Main Stage Age 51 Survey No

What was the main reason you stopped that period of {DACTIVITY4_QQQ} {IF DACTIVITY4_QQQ = 1, 2: “with that employer”}?

1. Fixed term or temporary job ended
2. Made redundant
3. Voluntary redundancy
4. Dismissed from a job
5. Retired
6. Left job for health reasons
7. Career break
8. More money
9. Better job
10. Firm closed down or business failed
11. Left to care for family member
12. Moved to a different area
13. Just decided to leave
14. For some other reason (SPECIFY)

BCS
Provision; Unemployed to care for family member 2021 51-52 51 52 Participant No Current BCS70: Questionnaire Documentation Main Stage Age 51 Survey No

Thinking about your current period of unemployment, how did you come to be unemployed?

1. Fixed term or temporary job ended
2. Made redundant
3. Voluntary redundancy
4. Dismissed from a job
5. Retired
6. Left job for health reasons
7. Career break
8. More money
9. Better job
10. Firm closed down or business failed
11. Left to care for family member
12. Moved to a different area
13. Just decided to leave
14. For some other reason (SPECIFY)

BCS
Receipt/Provision; Receipt of care related allowances 2021 51-52 51 52 Participant No Current BCS70: Questionnaire Documentation Main Stage Age 51 Survey No

Which, if any, of these types of payments are you {IF CRLIVEPA=1: “or” {PARTNAM}} currently receiving?

1. Jobseeker’s Allowance
2. Income Support
3. Sickness, disability or incapacity benefits (including Employment and Support
Allowance)
4. Pension benefits (including State Pension and Pension Credits)
5. Child Benefit
6. Tax credits, such as the Working Tax Credit, Disabled Person Tax Credit or Child
Tax Credit
7. Any other family related benefit or payment
8. Housing Benefit or Council Tax Reduction (including direct payments to your
landlord)
9. Carer’s Allowance
10. Income from a Coronavirus state benefit (including Self-Employment Income
Support Scheme, Test and Trace Support Payment scheme)
11. Income from any other state benefit
12. None of these [EXCLUSIVE]

BCS
Provision; Help/care for ADLs/IADLs for parents 2021 51-52 51 52 Participant No Current BCS70: Questionnaire Documentation Main Stage Age 51 Survey No

Nowadays, do you regularly or frequently do any of the following things for {IF MALIVE=1 AND PALIVE <> 1: “your mother”; IF PALIVE=1 AND MALIVE <> 1: “your father”; IF MALIVE=1 AND PALIVE=1: “your parents”}?

1. Giving lifts in your car if you have one
2. Shopping
3. Providing or cooking meals
4. Helping with basic personal needs like dressing, eating or bathing
5. Washing, ironing or cleaning
6. Dealing with personal affairs, e.g. paying bills, writing letters
7. Decorating, gardening or house repairs
8. Financial help
9. Any other help
10. None of these (no regular or frequent help given) [EXCLUSIVE CODE]

BCS
Need; Illnesses which affect ability to complete ADLs/IADLs 2021 51-52 51 52 Participant No Current BCS70: Questionnaire Documentation Main Stage Age 51 Survey No

Do any of your conditions or illnesses reduce your ability to carry out day-to-day activities?

INTERVIEWER IF NEEDED: Day to day activities include things like washing and dressing yourself, household cleaning, cooking, using public or private transport, shopping for essentials, walking a defined distance, climbing stairs, remembering to pay bills, lifting objects from the ground or work surface in the kitchen, moderate manual tasks gardening or gripping objects like cutlery and hearing or speaking in a noisy room.

Would you say…
READ OUT…

1. …Yes, a lot
2. Yes, a little
3. or, Not at all?

BCS
Provision; Hours spent caring for partner 2021 51-52 51 52 Participant No Current BCS70: Questionnaire Documentation Main Stage Age 51 Survey No

How many hours do you spend giving help to {PARTNAM} because of a physical, mental, emotional or memory problem, in a typical week?

Types of help might include:
• Basic personal needs like dressing, eating or bathing
• Getting around the house e.g. climbing stairs or walking
• Taking the right amount of medication at the right time
• Dealing with personal affairs e.g. writing letters, managing money
If you help them less often than weekly please enter the average hours per week.
If unsure, enter your best estimate.

Range: 0..168

BCS
Provision; Hours spent caring for child with care need 2021 51-52 51 52 Participant No Current BCS70: Questionnaire Documentation Main Stage Age 51 Survey No

How many hours do you spend giving help to this child/these children because of their physical, mental, behavioural or developmental conditions in a typical week?

Range: 0..168

BCS
Need; Inability to bathe or dress 2020 62-63 62 63 Participant No Current NCDS Sweep1 - Age-62 Your Life-Now self-completion-questionnaire No

The following items are about activities you might do during a typical day. Does your health limit you in these activities? If so, how much?

a) Vigorous activities, such as running, lifting heavy objects,
participating in strenuous sports
b) Moderate activities, such as moving a table, pushing a
vacuum cleaner, bowling, or playing golf
c) Lifting or carrying groceries
d) Climbing several flights of stairs
e) Climbing one flight of stairs
f) Bending, kneeling or stooping
g) Walking more than one mile
h) Walking half a mile
i) Walking 100 yards
j) Bathing or dressing yourself

Yes, limited a lot
Yes, limited a little
No, not limited at all

NCDS
Need; Self-assessed probability of needing long term care 2020 62-63 62 63 Participant No Current NCDS Sweep1 - Age-62 Your Life-Now self-completion-questionnaire No

The last set of questions is about how likely you think it is that various events might happen.
Ona scale from 0% to 100%, where 0% means there is absolutely no chance of it happening, and 100% means that you are absolutely certain that it will happen, what are the chances that each of the following things will happen?

a) You will live to be 75 or more?
b) You will live to be 85 or more?
c) You will be working after you reach age 66? Please think about paid work in general (and not just your present job)?
d) You will be working after you reach age 70? Please think about paid work in general (and not just your present job)?
e) Your health will limit your ability to work before you reach age 66?
f) You will ever move to a nursing home or need long term care at home?
g) You (or your partner) will leave any inheritance? Please include any property and other valuables you (or your partner) might own.
h) You (or your partner) will leave an inheritance totalling
£100,000 or more? Please include any property and other valuables you (or your partner) might own.
i) You (or your partner) will leave an inheritance totalling
£250,000 or more? Please include any property and other valuables you (or your partner) might own.
j) You (or your partner) will receive any inheritance? Please include property and valuables.
k) You (or your partner) will receive an inheritance totalling
£100,000 or more? Please include property and valuables.
l) You (or your partner) will receive an inheritance totalling £250,000 or more? Please include property and valuables.
m) At some point in the future you will not have enough financial resources to meet your needs?
n) Your (and your partner’s) future income will be the same as or more than what you live on now?
o) Your (and your partner’s) future income will be less than half of what you live on now?

0-100%

NCDS
Receipt; Living at a nursing home 2020 62-63 62 63 Participant No Current NCDS: Questionnaire Documentation Main Stage Age 62 Survey No

Which of these best describes the accommodation you are living in at the moment?

1. A private residence
2. Sheltered housing
3. A hotel, boarding house or bed & breakfast
4. A hostel for homeless, refuge, YMCA, YWCA etc.
5. A barracks, nurses’ hall of residence, or other accommodation provided by your employer
6. A room only at work place
7. A prison or remand centre
8. A hospital, nursing, care home or similar institution

NCDS
Provision; Stopping work to be carer 2020 - Participant No Current NCDS: Questionnaire Documentation Main Stage Age 62 Survey No

What was the main reason you stopped that period of {DACTIVITY4_QQQ} {IF DACTIVITY4_QQQ = 1, 2: “with that employer”}?

1. Fixed term or temporary job ended
2. Made redundant
3. Voluntary redundancy
4. Dismissed from a job
5. Retired
6. Left job for health reasons
7. Career break
8. More money
9. Better job
10. Firm closed down or business failed
11. Left to care for family member
12. Moved to a different area
13. Just decided to leave
14. For some other reason (SPECIFY)

NCDS
Provision; Unemployed to be carer 2020 - Participant No Current NCDS:QuestionnaireDocumentationMain StageAge 62 Survey No

Thinking about your current period of unemployment, how did you come to be unemployed?

1. Fixed term or temporary job ended
2. Made redundant
3. Dismissed from a job
4. Left because pregnant
5. Left job for health reasons
6. Just decided to leave
7. Left work to care for family member
8. Firm closed down or business failed
9. Never worked
10. For some other reason (SPECIFY)

NCDS
Receipt; Receipt of care-related benefits 2020 - Participant No Current NCDS: Questionnaire Documentation Main Stage Age 62 Survey No

Which, if any, of these types of payments are you {IF CRLIVEPA=1: “or” {PARTNAM}}
currently receiving?

1. Jobseeker’s Allowance
2. Income Support
3. Sickness, disability or incapacity benefits (including Employment and Support
Allowance)
4. Pension benefits (including State Pension and Pension Credits)
5. Child Benefit
6. Tax credits, such as the Working Tax Credit, Disabled Person Tax Credit or Child
Tax Credit
7. Any other family related benefit or payment
8. Housing Benefit or Council Tax Reduction (including direct payments to your
landlord)
9. Carer’s Allowance
10. Income from a Coronavirus state benefit (including Self-Employment Income
Support Scheme, Test and Trace Support Payment scheme)
11. Income from any other state benefit
12. None of these [EXCLUSIVE]

NCDS
Provision; Helping/caring parents to complete ADLs 2020 - Participant No Current NCDS: Questionnaire Documentation Main Stage Age 62 Survey No

Nowadays, do you regularly or frequently do any of the following things for {IF MALIVE=1
AND PALIVE<>1: “your mother”; IF PALIVE=1 AND MALIVE<>1: “your father”; IF MALIVE=1 AND PALIVE=1: “your parents”}?

1. Giving lifts in your car if you have one
2. Shopping
3. Providing or cooking meals
4. Helping with basic personal needs like dressing, eating or bathing
5. Washing, ironing or cleaning
6. Dealing with personal affairs, e.g. paying bills, writing letters
7. Decorating, gardening or house repairs
8. Financial help
9. Any other help
10. None of these (no regular or frequent help given) [EXCLUSIVE CODE]

NCDS
Provision; If frequently helping/caring parents to complete ADLs 2020 - Participant No Current NCDS: Questionnaire Documentation Main Stage Age 62 Survey No

Nowadays, do you regularly or frequently do any of the following things for {IF
PARTNAM=RESPONSE: {PARTNAM}’s {IF PMALIVE=1 AND PPALIVE=1 “parents”; IF
PMALIVE=1 AND PPALIVE<>1: “mother”; IF PPALIVE=1 AND PMALIVE<>1: “father”?}

1. Giving lifts in your car if you have one
2. Shopping
3. Providing or cooking meals
4. Helping with basic personal needs like dressing, eating or bathing
5. Washing, ironing or cleaning
6. Dealing with personal affairs e.g. paying bills, writing letters
7. Decorating, gardening or house repairs
8. Financial help
9. Any other help
10. None of these (no regular or frequent help given) [EXCLUSIVE CODE]

NCDS
Need; Does illness stop you completing ADLs 2020 - Participant No Current NCDS: Questionnaire Documentation Main Stage Age 62 Survey No

Do any of your conditions or illnesses reduce your ability to carry out day-to-day activities?

INTERVIEWER IF NEEDED: Day to day activities include things like washing and dressing
yourself, household cleaning, cooking, using public or private transport, shopping for
essentials, walking a defined distance, climbing stairs, remembering to pay bills, lifting
objects from the ground or work surface in the kitchen, moderate manual tasks gardening or
gripping objects like cutlery and hearing or speaking in a noisy room.
Would you say… READ OUT…

1. …Yes, a lot
2. Yes, a little
3. Not at all?

NCDS
Need; Conditions stopping partner from completing ADLs 2020 - Participant No Current NCDS:QuestionnaireDocumentationMain StageAge 62 Survey No

Do any of {PARTNAM}’s conditions or illnesses reduce their ability to carry out day-to-day
activities?
Day-to-day activities include:
• washing and dressing
• household cleaning
• cooking
• shopping for essentials
• using public or private transport
• walking a defined distance
• climbing stairs
• remembering to pay bills
• lifting objects from the ground or a work surface in the kitchen
• moderate manual tasks such as gardening
• gripping objects such as cutlery,
• hearing and speaking in a noisy room

1. Yes, a lot,
2. Yes, a little,
3. Not at all?

NCDS
Provision; Helping carer for partner to complete ADLs 2020 - Participant No Current NCDS: Questionnaire Documentation Main Stage Age 62 Survey No

Due to a physical, mental, emotional, or memory problem, do you regularly or frequently help
{PARTNAM} with…

Basic personal needs like dressing, eating or bathing?
Getting around the house e.g. climbing stairs or walking?
Taking the right amount of medication at the right time?
Dealing with personal affairs e.g. writing letters, managing money?
Anything else?

1. Yes
2. No

NCDS
Provision; Hours spent caring for partner 2020 - Participant No Current NCDS: Questionnaire Documentation Main Stage Age 62 Survey No

How many hours do you spend giving help to {PARTNAM} because of a physical, mental,
emotional or memory problem, in a typical week?

Range: 0..168

NCDS
Provision; Receipt of carer's allowance 2017 18-19 18 19 Young Person No Current Wave 6: Young Person No

Are you currently personally receiving any of the following state benefits: that is where you are the named recipient? Please do not include any benefits that your parents or family may receive.

READ OUT
1. Universal Credit
2. Housing Benefit
3. Working Tax Credit (excluding any childcare element of Working Tax Credit)257
4. Child Tax Credit (including any childcare element of Working Tax Credit)258
5. Income Support
6. Jobseeker’s Allowance
7. Employment and Support Allowance
8. Carer’s Allowance259
Don’t want to answer

General health

LSYPE2
Receipt; Receipt of attendance allowance 2017 18-19 18 19 Young Person No Current Wave 6: Young Person No

How about the following state benefits? Are you currently receiving any of these either personally or on behalf of another person? Please do not include any benefits that your parents or family may receive.

READ OUT
1. Personal Independence Payment (including the car allowance known as Motability)
2. Disability Living Allowance (including the car allowance known as Motability)
3. Attendance Allowance
4. Severe Disablement Allowance
5. Incapacity Benefit
6. Industrial Injuries Disablement Benefit
Don’t want to answer

General health

LSYPE2
Provision; Leaving employment in order to care 2018 19-20 19 20 Young Person No Current Wave 7: Questionnaire No

Why do you think you are likely to leave your employer over the coming year?

GRID: FOR EACH ITEM YES/NO/DK
READ OUT
1. To find another job
2. My contract of employment will expire
3. I will be declared redundant/firm is closing down
4. To start my own business
5. To have children
6. To return to education
7. To care for someone
8.. Some other reason
Don’t want to answer

General health

LSYPE2
Provision; Young adult carer caring for others 2018 19-20 19 20 Young Person No Current Wave 7: Questionnaire No

Do you regularly look after any ill, disabled or elderly relatives or friends aged 15 or more and in need of care, without being paid? This includes both people who live with you and those who live elsewhere but should not include any volunteering you may do. (text fill: Please include people you may live with outside of term time)227.

1. Yes
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Receipt; Receipt of carer's allowance 2018 19-20 19 20 Young Person No Current Wave 7: Questionnaire No

Are you currently personally receiving any of the following state benefits: that is where you are the named recipient? Please do not include any benefits that your parents or family may receive.

READ OUT
1. Universal Credit
2. Housing Benefit
3. Working Tax Credit (excluding any childcare element of Working Tax Credit)257
4. Child Tax Credit (including any childcare element of Working Tax Credit)258
5. Income Support
6. Jobseeker’s Allowance
7. Employment and Support Allowance
8. Carer’s Allowance259
Don’t want to answer

General health

LSYPE2
Receipt; Receipt of attendance allowance 2018 19-20 19 20 Young Person No Current Wave 7: Questionnaire No

How about the following state benefits? Are you currently receiving any of these either personally or on behalf of another person? Please do not include any benefits that your parents or family may receive.

READ OUT
1. Personal Independence Payment (including the car allowance known as Motability)
2. Disability Living Allowance (including the car allowance known as Motability)
3. Attendance Allowance
4. Severe Disablement Allowance
5. Incapacity Benefit
6. Industrial Injuries Disablement Benefit
Don’t want to answer

General health

LSYPE2
Provision; Leaving employment in order to care 2019 20-21 20 21 Young Person No Current Wave 8: Questionnaire No

Why do you think you are likely to leave your employer over the coming year?

GRID: FOR EACH ITEM YES/NO/DK
READ OUT
1. To find another job
2. My contract of employment will expire
3. I will be declared redundant/firm is closing down
4. To start my own business
5. To have children
6. To return to education
7. To care for someone
8.. Some other reason
Don’t want to answer

General health

LSYPE2
Provision; Leaving employment in order to care 2020 21-22 21 22 Young Person No Current Wave 9: Questionnaire No

Why do you think you are likely to leave your employer over the coming year?

GRID: FOR EACH ITEM YES/NO/DK
READ OUT
1. To find another job
2. My contract of employment will expire
3. I will be declared redundant/firm is closing down
4. To start my own business
5. To have children
6. To return to education
7. To care for someone
8.. Some other reason
Don’t want to answer

General health

LSYPE2
Receipt; Child living in care 2013 14-15 14 15 Parent No Current Wave 2: INDIVIDUAL PARENT SECTION No

Which, if any, of the benefits on this card do you receive [text fill: either on your own or with your partner/husband/wife]?

CODE ALL THAT APPLY

1. Income Support
2. Jobseekers Allowance
3. Incapacity Benefit
4. Employment and Support Allowance
5. Universal Credit
6. State Pension
7. Pension Credit
8. Carer’s Allowance
9. Attendance Allowance
10. Disability Living Allowance
11. Housing Benefit
12. Tax credits
13. Child benefit
14. Council tax benefit
15. Other (specify)
16. None of these
Refused
Don’t know

General health

LSYPE2
Receipt; Child living in care 2013 14-15 14 15 Parent No Current Wave 2: MAIN PARENT SECTION No

Since we last spoke to you in [wave 1 interview month] last year, have you been in touch with your local council’s social services because of [YP name]’s behavior at home or at school? This includes both you getting in touch with them and them contacting you.

Yes
No
Don’t know
Don’t want to answer

General health

LSYPE2
Receipt; Child living in care 2013 14-15 14 15 Parent No Current Wave 2: MAIN PARENT SECTION No

Please can you tell me why [YP name] no longer lives with [his/her] natural parents?

Parents divorced or separated
Parent(s) unable to cope
Parent(s) too ill to provide care and security for young person
Parent(s) died
Young person temporarily placed into alternative care
Some other reason
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer responsibilities 2014 15-16 15 16 Young Person No Current Wave 3: YOUNG PERSON SECTION No

Some people your age have to provide regular help or support to people they live with who are physically or mentally ill, disabled or misusing drugs or alcohol. This could be a parent, brother, sister, a relative or someone else.

Is there anyone like this who lives here with you that you have to look after on a regular basis?

1. Yes – in this household
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Who young carer looks after 2014 15-16 15 16 Young Person No Current Wave 3: YOUNG PERSON SECTION No

Who do you look after?

1. Father/mother
2. Grandfather/mother
3. Brother/sister
4. Another adult – related
5. Another adult – not related
6. Another child – related
7. Another child – not related
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer hours a week spent caring 2014 15-16 15 16 Young Person No Current Wave 3: YOUNG PERSON SECTION No

About how many hours a week would you say that you usually spend looking after this person (these people) or doing things for them?

ENTER NUMBER OF HOURS
Numeric: 1..168
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer - disruption to schooling 1 2014 15-16 15 16 Young Person No Current Wave 3: YOUNG PERSON SECTION No

Are you ever late for school, or do you ever leave school early, because you have to look after them?

1. Yes
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer - disruption to schooling 2 2014 15-16 15 16 Young Person No Current Wave 3: YOUNG PERSON SECTION No

Do you ever have to miss going to school because you have to look after them?

1. Yes
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer - disruption to schooling 3 2014 15-16 15 16 Young Person No Current Wave 3: YOUNG PERSON SECTION No

How often are you late for school, have to leave school early or miss school altogether to do this?

1. Once a week or more often
2. Once or twice a month
3. Less often than this
Don’t know
Don’t want to answer

General health

LSYPE2
Receipt; Child living in care 2014 15-16 15 16 Parent No Current Wave 3: HOUSEHOLD RESPONDENT SECTION No

INTERVIEWER: RECORD IF YOUNG PERSON LIVING IN:

1. Private household
2. Hotel/B&B
3. Institution
4. Somewhere else (specify)

General health

LSYPE2
Receipt; Child living in care 2014 15-16 15 16 Parent No Current Wave 3: HOUSEHOLD RESPONDENT SECTION No

INTERVIEWER CODE

What kind of institution does the young person live in?

1. Children’s Home or hostel
2. Other type of residential care home
3. NHS/Health trust or other establishment providing nursing care
4. Family centre or mother and baby unit
5. Youth treatment centre
6. Young offender institution or prison
7. Other (specify)
Don’t know

General health

LSYPE2
Receipt; Young person placed into alternative care 2014 15-16 15 16 Parent No Current Wave 3: MAIN PARENT SECTION No

There are a number of reasons why young people may not be able to live at home with their natural parents. Please can you tell me why (text fill: YP name) no longer lives with (text fill: his/her) natural parents?

1. Parents divorced or separated
2. Parent(s) unable to cope
3. Parent(s) too ill to provide care and security for young person
4. Parent(s) died
5. Young person temporarily placed into alternative care
6. Some other reason
Don’t know
Don’t want to answer

General health

LSYPE2
Receipt; Receipt of carer's allowance 2014 15-16 15 16 Parent No Current Wave 3: INDIVIDUAL PARENT SECTION No

Which, if any, of the benefits on this card do you receive [text fill: either on your own or with your partner/husband/wife]?

CODE ALL THAT APPLY

1. Income Support
2. Jobseekers Allowance
3. Incapacity Benefit
4. Employment and Support Allowance
5. Universal Credit
6. State Pension
7. Pension Credit
8. Carer’s Allowance
9. Attendance Allowance
10. Disability Living Allowance
11. Housing Benefit
12. Tax credits
13. Child benefit
14. Council tax benefit
15. Other (specify)
16. None of these
Refused
Don’t know

General health

LSYPE2
Provision; Unpaid caring responsibilities 2015 16-17 16 17 Young Person No Current Wave 4: Young Person main questionnaire No

Do you regularly look after any ill, disabled or elderly relatives or friends aged 15 or more and in need of care, without being paid? This includes both people who live here with you and those who live elsewhere but should not include any volunteering that you may do.

Yes
No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Unpaid caring responsibilities 2016 17-18 17 18 Young Person No Current Wave 5: Young Person No

Do you regularly look after any ill, disabled or elderly relatives or friends aged 15 or more and in need of care, without being paid? This includes both people who live here with you and those who live elsewhere but should not include any volunteering you may do.

Yes
No
Don’t know
Don’t want to answer

General health

LSYPE2
Receipt; Receipt of carer's allowance 2016 17-18 17 18 Young Person No Current Wave 5: Young Person No

Are you currently personally receiving any of the following state benefits: that is where you are the named recipient? Please do not include any benefits that your parents or family may receive.

GRID: FOR EACH ITEM YES/NO/DK

READ OUT256
1. Universal Credit
2. Housing Benefit
3. Working Tax Credit (excluding any childcare element of Working Tax Credit)257
4. Child Tax Credit (including any childcare element of Working Tax Credit)258
5. Income Support
6. Jobseeker’s Allowance
7. Employment and Support Allowance
8. Carer’s Allowance259
Don’t want to answer

General health

LSYPE2
Receipt; Receipt of attendance allowance 2016 17-18 17 18 Young Person No Current Wave 5: Young Person No

How about the following state benefits? Are you currently receiving any of these either personally or on behalf of another person? Please do not include any benefits that your parents or family may receive.

GRID: FOR EACH ITEM YES/NO/DK

READ OUT260
1. Personal Independence Payment (including the car allowance known as Motability)
2. Disability Living Allowance (including the car allowance known as Motability)
3. Attendance Allowance
4. Severe Disablement Allowance
5. Incapacity Benefit
6. Industrial Injuries Disablement Benefit
Don’t want to answer

General health

LSYPE2
Receipt; Receipt of attendance allowance 2016 17-18 17 18 Young Person No Current Wave 5: Young Person No

Do you live in any of the following?

1. Children’s home or hostel
2. Armed Forces’ residential accommodation
3. A college or other educational residential accommodation (e.g. a ‘hall of residence’ or similar)
4. NHS residential accommodation
5. Other employer’s residential accommodation (but not an ordinary flat or house owned by your employer)
6. A hotel, boarding house or hostel
7. Any other kind of communal establishment (e.g. prisons, hospitals etc)
8. No, none of these
Don’t want to answer

General health

LSYPE2
Provision; Leaving employment in order to care 2017 18-19 18 19 Young Person No Current Wave 6: Young Person No

Why do you think you are likely to leave your employer over the coming year?

GRID: FOR EACH ITEM YES/NO/DK
READ OUT
1. To find another job
2. My contract of employment will expire
3. I will be declared redundant/firm is closing down
4. To start my own business
5. To have children
6. To return to education
7. To care for someone
8.. Some other reason

General health

LSYPE2
Provision; Young adult carer caring for others 2017 18-19 18 19 Young Person No Current Wave 6: Young Person No

Do you regularly look after any ill, disabled or elderly relatives or friends aged 15 or more and in need of care, without being paid? This includes both people who live with you and those who live elsewhere but should not include any volunteering you may do. (text fill: Please include people you may live with outside of term time)227.

1. Yes
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Parent providing additional unpaid care to a normal child 2012 13-14 13 14 Parent No Current Wave 1: HISTORY RESPONDENT SECTION No

Do you have to spend more time looking after (text fill: name of sample young person) compared with a fully-fit young person of similar age because of (textfill: his/her) health problems?

1. Yes
2. No
Don’t know

General health

LSYPE2
Receipt; Has child been in care 2012 13-14 13 14 Parent No Current Wave 1: MAIN PARENT SECTION No

Since (text fill: name of sample member) was born, has (text fill: he/she) ever been in care in any of the arrangements shown below?

Please include any arrangements that (text fill: name of sample member) is in now.

PLEASE SELECT ALL THAT APPLY

1. Never been in care
2. With foster parents
3. In a young people’s home
4. In local authority care, but remaining with own parents
5. Placed for adoption
6. In local authority care in some other arrangement
Don’t know
Don’t want to answer

General health

LSYPE2
Receipt; Year when child was in care 2012 13-14 13 14 Parent No Current Wave 1: MAIN PARENT SECTION No

What year was (text fill: name of sample member) last in care?

TYPE IN YEAR
Numeric…1998-2013
Don’t know
Don’t want to answer

General health

LSYPE2
Receipt; Child in care 2012 13-14 13 14 Parent No Current Wave 1: MAIN PARENT SECTION No

There are a number of reasons why young people may not be able to live at home with their natural parents. Please can you tell me why (text fill: name of sample member) no longer lives with (text fill: his/her) natural parents?

1. Parents divorced or separated
2. Parent(s) unable to cope
3. Parent(s) too ill to provide care and security for young person
4. Parent(s) died
5. Young person temporarily placed into alternative care
6. Some other reason
Don’t know
Don’t want to answer

General health

LSYPE2
Receipt; Receipt of carer's allowance 2012 13-14 13 14 Parent No Current Wave 1: MAIN PARENT SECTION No

Which, if any, of the benefits on this card do you receive [text fill: either on your own or with your partner/husband/wife]?

1. Income Support
2. Jobseekers Allowance
3. Incapacity Benefit
4. Employment and Support Allowance
5. Universal Credit
6. State Pension
7. Pension Credit
8. Carer’s Allowance
9. Attendance Allowance
10. Disability Living Allowance
11. Housing Benefit
12. Tax credits
13. Child benefit
14. Council tax benefit
15. Other (specify)
16. None of these
Refused
Don’t know

General health

LSYPE2
Provision; Young carer responsibilities 2012 13-14 13 14 Young Person No Current Wave 1: YOUNG PERSON SECTION No

Some people your age have to provide regular help or support to people they live with who are physically or mentally ill, disabled or misusing drugs or alcohol. This could be a parent, brother, sister, a relative or someone else.

Is there anyone like this who lives here with you that you have to look after on a regular basis?

1. Yes – in this household
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Who young carer looks after 2012 13-14 13 14 Young Person No Current Wave 1: YOUNG PERSON SECTION No

Who do you look after?

1. Father/mother
2. Grandfather/mother
3. Brother/sister
4. Another adult – related
5. Another adult – not related
6. Another child – related
7. Another child – not related
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer hours a week spent caring 2012 13-14 13 14 Young Person No Current Wave 1: YOUNG PERSON SECTION No

About how many hours a week would you say that you usually spend looking after this person (these people) or doing things for them?

ENTER NUMBER OF HOURS
Numeric: 1..168
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer - disruption to schooling 1 2012 13-14 13 14 Young Person No Current Wave 1: YOUNG PERSON SECTION No

Are you ever late for school, or do you ever leave school early, because you have to look after them?

1. Yes
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer - disruption to schooling 2 2012 13-14 13 14 Young Person No Current Wave 1: YOUNG PERSON SECTION No

Do you ever have to miss going to school because you have to look after them?

1. Yes
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer - disruption to schooling 3 2012 13-14 13 14 Young Person No Current Wave 1: YOUNG PERSON SECTION No

How often are you late for school, have to leave school early or miss school altogether to do this?

1. Once a week or more often
2. Once or twice a month
3. Less often than this
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer responsibilities 2013 14-15 14 15 Young Person No Current Wave 2: YOUNG PERSON SECTION No

Some people your age have to provide regular help or support to people they live with who are physically or mentally ill, disabled or misusing drugs or alcohol. This could be a parent, brother, sister, a relative or someone else.

Is there anyone like this who lives here with you that you have to look after on a regular basis?

1. Yes – in this household
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Who young carer looks after 2013 14-15 14 15 Young Person No Current Wave 2: YOUNG PERSON SECTION No

Who do you look after?

1. Father/mother
2. Grandfather/mother
3. Brother/sister
4. Another adult – related
5. Another adult – not related
6. Another child – related
7. Another child – not related
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer hours a week spent caring 2013 14-15 14 15 Young Person No Current Wave 2: YOUNG PERSON SECTION No

About how many hours a week would you say that you usually spend looking after this person (these people) or doing things for them?

ENTER NUMBER OF HOURS
Numeric: 1..168
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer - disruption to schooling 1 2013 14-15 14 15 Young Person No Current Wave 2: YOUNG PERSON SECTION No

Are you ever late for school, or do you ever leave school early, because you have to look after them?

1. Yes
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer - disruption to schooling 2 2013 14-15 14 15 Young Person No Current Wave 2: YOUNG PERSON SECTION No

Do you ever have to miss going to school because you have to look after them?

1. Yes
2. No
Don’t know
Don’t want to answer

General health

LSYPE2
Provision; Young carer - disruption to schooling 3 2013 14-15 14 15 Young Person No Current Wave 2: YOUNG PERSON SECTION No

How often are you late for school, have to leave school early or miss school altogether to do this?

1. Once a week or more often
2. Once or twice a month
3. Less often than this
Don’t know
Don’t want to answer

General health

LSYPE2
Receipt; Child living in care 2013 14-15 14 15 Parent No Current Wave 2: HISTORY SECTION No

Before (text fill: month and year from this iteration of LO1), who was (text fill: name of sample young person) mainly living with?

1. Father/mother WITHOUT new partner
2. Father/mother WITH new partner
3. Other relatives only (e.g. grandparents, uncles/aunts)
4. Foster parents
5. Institution (e.g. children’s home, YOI)
6. Other
Don’t know
Refused

General health

LSYPE2
Receipt; Child living in care 2013 14-15 14 15 Parent No Current Wave 2: HOUSEHOLD RESPONDENT SECTION No

INTERVIEWER: RECORD IF YOUNG PERSON LIVING IN:

1. Private household
2. Hotel/B&B
3. Institution
4. Somewhere else (specify)

General health

LSYPE2
Receipt; Child living in care 2013 14-15 14 15 Parent No Current Wave 2: HOUSEHOLD RESPONDENT SECTION No

INTERVIEWER CODE

What kind of institution does the young person live in?

1. Children’s Home or hostel
2. Other type of residential care home
3. NHS/Health trust or other establishment providing nursing care
4. Family centre or mother and baby unit
5. Youth treatment centre
6. Young offender institution or prison
7. Other (specify)
Don’t know

General health

LSYPE2
Provision; Frequency of use of overnight respite service(s) 2010 50-120 50 120 Participant No Current Wave 5 No

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Satisfaction with caring 2010 50-120 50 120 Participant No Current Wave 5 No

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Provision; Received adequate appreciation for caring from others 2010 50-120 50 120 Participant No Current Wave 5 No

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Receipt; Receipt of carer's allowance 2010 50-120 50 120 Participant No Current Wave 5 No

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

ELSA
Receipt; Carer's Allowance: amount 2010 50-120 50 120 Participant No Current Wave 5 No

How much did you/your spouse receive from Carer’s Allowance?

ELSA
Provision; Provides help to someone who sick, disabled or frail 2012 50-120 50 120 Participant No Last month Wave 6 No

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

ELSA
Provision; Number of people to whom care or help provided 2012 50-120 50 120 Participant No Last month Wave 6 No

How many people do you provide help and support do?

ELSA
Provision; Age(s) of person(s) provided help to 2012 50-120 50 120 Participant No Last month Wave 6 No

How old is/are the person(s) you provide help or support to?

a) Aged 0-15 (child) b) Aged 16-64 (adult) c) Aged 65 and over (Older)

ELSA
Provision; Hours spend helping person aged 0-15 2012 50-120 50 120 Participant No Last week Wave 6 No

How many hours did you spend helping person(s) aged 0-15 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; Hours spend helping person aged 16-64 2012 50-120 50 120 Participant No Last week Wave 6 No

How many hours did you spend helping person(s) aged 16-64 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; Hours spend helping person aged 65 or over 2012 50-120 50 120 Participant No Last week Wave 6 No

How many hours did you spend helping person(s) aged 65 or over in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; If wanted a break from caring responsibilities, would someone else have to look after person helped? 2012 50-120 50 120 Participant No Last month Wave 6 No

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

ELSA
Provision; Anyone you could rely on to provide respite from caring role? 2012 50-120 50 120 Participant No Current Wave 6

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

ELSA
Provision; Used any service(s) in order to have a break from caring responsibilities 2012 50-120 50 120 Participant No Last year Wave 6 No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

ELSA
Provision; Frequency of use of daytime respite service(s) 2012 50-120 50 120 Participant No Current Wave 6 No

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Frequency of use of overnight respite service(s) 2012 50-120 50 120 Participant No Current Wave 6 No

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Satisfaction with caring 2012 50-120 50 120 Participant No Current Wave 6 No

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Provision; Received adequate appreciation for caring from others 2012 50-120 50 120 Participant No Current Wave 6 No

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Receipt; Receipt of carer's allowance 2012 50-120 50 120 Participant No Current Wave 6 No

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

ELSA
Receipt; Carer's Allowance: amount 2012 50-120 50 120 Participant No Current Wave 6 No

How much did you/your spouse receive from Carer’s Allowance?

ELSA
Provision; Provides help to someone who sick, disabled or frail 2010 50-120 50 120 Participant No Last month Wave 5 No

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

ELSA
Provision; If wanted a break from caring responsibilities, would someone else have to look after person helped? 2010 50-120 50 120 Participant No Last month Wave 5 No

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

ELSA
Provision; Anyone you could rely on to provide respite from caring role? 2010 50-120 50 120 Participant No Current Wave 5

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

ELSA
Provision; Used any service(s) in order to have a break from caring responsibilities 2010 50-120 50 120 Participant No Last year Wave 5 No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

ELSA
Provision; Frequency of use of daytime respite service(s) 2010 50-120 50 120 Participant No Current Wave 5 No

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Frequency of use of overnight respite service(s) 2016 50-120 50 120 Participant No Current Wave 8 No

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Satisfaction with caring 2016 50-120 50 120 Participant No Current Wave 8 No

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Provision; Received adequate appreciation for caring from others 2016 50-120 50 120 Participant No Current Wave 8 No

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Receipt; Receipt of carer's allowance 2016 50-120 50 120 Participant No Current Wave 8 No

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

ELSA
Receipt; Carer's Allowance: amount 2016 50-120 50 120 Participant No Current Wave 8 No

How much did you/your spouse receive from Carer’s Allowance?

ELSA
Provision; Provides help to someone who sick, disabled or frail 2014 50-120 50 120 Participant No Last month Wave 7 No

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

ELSA
Provision; Number of people to whom care or help provided 2014 50-120 50 120 Participant No Last month Wave 7 No

How many people do you provide help and support do?

ELSA
Provision; Age(s) of person(s) provided help to 2014 50-120 50 120 Participant No Last month Wave 7 No

How old is/are the person(s) you provide help or support to?

a) Aged 0-15 (child) b) Aged 16-64 (adult) c) Aged 65 and over (Older)

ELSA
Provision; Hours spend helping person aged 0-15 2014 50-120 50 120 Participant No Last week Wave 7 No

How many hours did you spend helping person(s) aged 0-15 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; Hours spend helping person aged 16-64 2014 50-120 50 120 Participant No Last week Wave 7 No

How many hours did you spend helping person(s) aged 16-64 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; Hours spend helping person aged 65 or over 2014 50-120 50 120 Participant No Last week Wave 7 No

How many hours did you spend helping person(s) aged 65 or over in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; If wanted a break from caring responsibilities, would someone else have to look after person helped? 2014 50-120 50 120 Participant No Last month Wave 7 No

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

ELSA
Provision; Anyone you could rely on to provide respite from caring role? 2014 50-120 50 120 Participant No Current Wave 7

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

ELSA
Provision; Used any service(s) in order to have a break from caring responsibilities 2014 50-120 50 120 Participant No Last year Wave 7 No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

ELSA
Provision; Frequency of use of daytime respite service(s) 2014 50-120 50 120 Participant No Current Wave 7 No

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Frequency of use of overnight respite service(s) 2014 50-120 50 120 Participant No Current Wave 7 No

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Satisfaction with caring 2014 50-120 50 120 Participant No Current Wave 7 No

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Provision; Received adequate appreciation for caring from others 2014 50-120 50 120 Participant No Current Wave 7 No

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Receipt; Receipt of carer's allowance 2014 50-120 50 120 Participant No Current Wave 7 No

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

ELSA
Receipt; Carer's Allowance: amount 2014 50-120 50 120 Participant No Current Wave 7 No

How much did you/your spouse receive from Carer’s Allowance?

ELSA
Provision; Hours spend helping person aged 65 or over 2018 50-120 50 120 Participant No Last week Wave 9 No

How many hours did you spend helping person(s) aged 65 or over in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; If wanted a break from caring responsibilities, would someone else have to look after person helped? 2018 50-120 50 120 Participant No Last month Wave 9 No

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

ELSA
Provision; Anyone you could rely on to provide respite from caring role? 2018 50-120 50 120 Participant No Current Wave 9

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

ELSA
Provision; Used any service(s) in order to have a break from caring responsibilities 2018 50-120 50 120 Participant No Last year Wave 9 No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

ELSA
Provision; Frequency of use of daytime respite service(s) 2018 50-120 50 120 Participant No Current Wave 9 No

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Frequency of use of overnight respite service(s) 2018 50-120 50 120 Participant No Current Wave 9 No

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Satisfaction with caring 2018 50-120 50 120 Participant No Current Wave 9 No

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Provision; Received adequate appreciation for caring from others 2018 50-120 50 120 Participant No Current Wave 9 No

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Receipt; Receipt of carer's allowance 2018 50-120 50 120 Participant No Current Wave 9 No

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

ELSA
Receipt; Carer's Allowance: amount 2018 50-120 50 120 Participant No Current Wave 9 No

How much did you/your spouse receive from Carer’s Allowance?

ELSA
Provision; Provides help to someone who sick, disabled or frail 2016 50-120 50 120 Participant No Last month Wave 8 No

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

ELSA
Provision; Number of people to whom care or help provided 2016 50-120 50 120 Participant No Last month Wave 8 No

How many people do you provide help and support do?

ELSA
Provision; Age(s) of person(s) provided help to 2016 50-120 50 120 Participant No Last month Wave 8 No

How old is/are the person(s) you provide help or support to?

a) Aged 0-15 (child) b) Aged 16-64 (adult) c) Aged 65 and over (Older)

ELSA
Provision; Hours spend helping person aged 0-15 2016 50-120 50 120 Participant No Last week Wave 8 No

How many hours did you spend helping person(s) aged 0-15 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; Hours spend helping person aged 16-64 2016 50-120 50 120 Participant No Last week Wave 8 No

How many hours did you spend helping person(s) aged 16-64 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; Hours spend helping person aged 65 or over 2016 50-120 50 120 Participant No Last week Wave 8 No

How many hours did you spend helping person(s) aged 65 or over in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; If wanted a break from caring responsibilities, would someone else have to look after person helped? 2016 50-120 50 120 Participant No Last month Wave 8 No

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

ELSA
Provision; Anyone you could rely on to provide respite from caring role? 2016 50-120 50 120 Participant No Current Wave 8

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

ELSA
Provision; Used any service(s) in order to have a break from caring responsibilities 2016 50-120 50 120 Participant No Last year Wave 8 No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

ELSA
Provision; Frequency of use of daytime respite service(s) 2016 50-120 50 120 Participant No Current Wave 8 No

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Provides help to someone who sick, disabled or frail 2021 50-120 50 120 Participant No Last month Wave 10 No

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

ELSA
Provision; Number of people to whom care or help provided 2021 50-120 50 120 Participant No Last month Wave 10 No

How many people do you provide help and support do?

ELSA
Provision; Age(s) of person(s) provided help to 2021 50-120 50 120 Participant No Last month Wave 10 No

How old is/are the person(s) you provide help or support to?

a) Aged 0-15 (child) b) Aged 16-64 (adult) c) Aged 65 and over (Older)

ELSA
Provision; Hours spend helping person aged 0-15 2021 50-120 50 120 Participant No Last week Wave 10 No

How many hours did you spend helping person(s) aged 0-15 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; Hours spend helping person aged 16-64 2021 50-120 50 120 Participant No Last week Wave 10 No

How many hours did you spend helping person(s) aged 16-64 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; Hours spend helping person aged 65 or over 2021 50-120 50 120 Participant No Last week Wave 10 No

How many hours did you spend helping person(s) aged 65 or over in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; If wanted a break from caring responsibilities, would someone else have to look after person helped? 2021 50-120 50 120 Participant No Last month Wave 10 No

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

ELSA
Provision; Anyone you could rely on to provide respite from caring role? 2021 50-120 50 120 Participant No Current Wave 10

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

ELSA
Provision; Used any service(s) in order to have a break from caring responsibilities 2021 50-120 50 120 Participant No Last year Wave 10 No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

ELSA
Provision; Frequency of use of daytime respite service(s) 2021 50-120 50 120 Participant No Current Wave 10 No

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Frequency of use of overnight respite service(s) 2021 50-120 50 120 Participant No Current Wave 10 No

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

ELSA
Provision; Satisfaction with caring 2021 50-120 50 120 Participant No Current Wave 10 No

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Provision; Received adequate appreciation for caring from others 2021 50-120 50 120 Participant No Current Wave 10 No

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

ELSA
Receipt; Receipt of carer's allowance 2021 50-120 50 120 Participant No Current Wave 10

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

ELSA
Receipt; Carer's Allowance: amount 2021 50-120 50 120 Participant No Current Wave 10

How much did you/your spouse receive from Carer’s Allowance?

ELSA
Provision; Provides help to someone who sick, disabled or frail 2018 50-120 50 120 Participant No Last month Wave 9 No

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

ELSA
Provision; Number of people to whom care or help provided 2018 50-120 50 120 Participant No Last month Wave 9 No

How many people do you provide help and support do?

ELSA
Provision; Age(s) of person(s) provided help to 2018 50-120 50 120 Participant No Last month Wave 9 No

How old is/are the person(s) you provide help or support to?

a) Aged 0-15 (child) b) Aged 16-64 (adult) c) Aged 65 and over (Older)

ELSA
Provision; Hours spend helping person aged 0-15 2018 50-120 50 120 Participant No Last week Wave 9 No

How many hours did you spend helping person(s) aged 0-15 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Provision; Hours spend helping person aged 16-64 2018 50-120 50 120 Participant No Last week Wave 9 No

How many hours did you spend helping person(s) aged 16-64 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

ELSA
Need; Method of assessment - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Assessments only: Method of assessment for service user or carer

Defined List…
Carer only
Service user only
Service user and carer

ASC-CLD
Provision; Total hours caring - carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Total hours caring per week by carer

Defined List
1 – 7 hrs
8 – 14 hrs
15 – 21 hrs
22 – 28 hrs
29 – 35 hrs
36 – 42 hrs
43 – 49 hrs
50+ hrs

ASC-CLD
Provision; No. adults cared for - carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

No. of adults being cared for by carer

Integer

ASC-CLD
Provision; Linked persons to carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Linked person IDs for people carer looks after

Integer or Alpha-numeric (up to 3 linked people)

ASC-CLD
Receipt; Service type - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Services only: Service type for service user or carer

Defined List…
Short Term Support: ST-Max
Short Term Support: Ongoing Low Level
Short Term Support: Other Short Term
Long Term Support: Nursing Care
Long Term Support: Residential Care
Long Term Support: Community
Long Term Support: Prison
Carer Support: Direct to Carer
Carer Support: Support involving the person cared-for

ASC-CLD
Receipt; Service component - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Services only: Service component for service user or carer

Defined List…
Rabblement
Short Term Nursing Care
Short Term Residential Care
Long Term Nursing Care
Long Term Residential Care
Home Support
Day Support
Meals
Transport
Equipment
Direct Payment
Shared Lives
Community Supported Living
Professional Support- Social Worker
Professional Support- Other
Learning/Education/Employment Support
End of Life Care
Emergency Support
Other Short Term Support
Other Long Term Support
Carer Respite
Carer Sitting Service
Carer Universal Services
Other Carer Support

ASC-CLD
Receipt; Delivery mechanism - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Services only: Delivery mechanism for service user or carer

Defined List…
Direct Payment
CASSR Managed Personal Budget
CASSR Commissioned Support
Self-Funder Metering Only

ASC-CLD
Receipt; Provider CQC location - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Services only: Provider CQC location name for service user or carer

Alpha-numeric

ASC-CLD
Receipt; Provider CQC location ID - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Services only: Provider CQC location ID for service user or carer

Alpha-numeric

ASC-CLD
Receipt; Review reason - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Reviews only: Review reason for service user or carer

Defined List…
Planned
Unplanned – Hospital (Planned and unplanned episodes)
Unplanned – Carer related
Unplanned – Safeguarding concern
Unplanned – Other Reason
Unplanned – Provider Failure
Unplanned – Change in Commissioning arrangements

ASC-CLD
Receipt; Review outcomes - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Reviews only: Review outcomes achieved for service user or carer

Defined List…
Fully Met
Partially Met
Not Met

ASC-CLD
Receipt; Review method - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Reviews only: Method of review for service user or carer

Defined List…
Carer only
Service user only
Service user and carer

ASC-CLD
Receipt; Service unit cost - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Services only: Unit cost for service user or carer

Numeric (0.00)

ASC-CLD
Receipt; Service cost freq - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Services only: Cost frequency (unit type) for service user or carer

Defined List…
Per Session
Hourly
Daily
Weekly
Fortnightly
4-weekly
Monthly
Quarterly
Annually
One-off

ASC-CLD
Receipt; Planned units per week - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Services only: Planned units per week for service user or carer

Numeric (0.00)

ASC-CLD
Receipt; Client type - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Client type – service user or carer

Defined List
Service User
Carer
Carer known by association
Unknown

ASC-CLD
Need; Primary support reason - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Primary support reason of service user or carer

Defined List…
Physical Support: Access & mobility only
Physical Support: Personal care support
Sensory Support: Support for visual impairment
Sensory Support: Support for hearing impairment
Sensory Support: Support for dual impairment
Support with Memory & Cognition
Learning Disability Support
Mental Health Support
Social Support: Substance misuse support
Social Support: Asylum seeker support
Social Support: Support for Social Isolation/Other
Social Support: Support to Carer
Unknown

ASC-CLD
Receipt; Postcode - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Postcode of service user or carer

Alpha-numeric
Unknown

ASC-CLD
Receipt; Accom status - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Accommodation status of service user or carer

Defined List…
Owner occupier or shared ownership scheme
Tenant
Tenant – private landlord
Settled mainstream housing with family / friends
Supported accommodation / supported lodgings / supported group home
Shared Lives scheme
Approved premises for offenders released from prison or under probation supervision
Sheltered housing / extra care housing / other sheltered housing
Mobile accommodation for Gypsy / Roma and Traveller communities
Rough sleeper / squatting
Night shelter / emergency hostel / direct access hostel
Refuge
Placed in temporary accommodation by the council (inc. homelessness resettlement)
Staying with family / friends as a short-term guest
Acute / long-term healthcare residential facility or hospital
Registered care home
Registered nursing home
Prison / Young offenders institution / detention centre
Other temporary accommodation
Unknown

ASC-CLD
Receipt; Employment status - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Employment status of service user or carer

Defined List…
Paid: Less than 16 hours a week
Paid: 16 or more hours a week
Not in Paid Employment (seeking work)
Not in Paid Employment (not actively seeking work / retired)
Not in Paid Employment (voluntary work only)
Paid: Hours per week unknown
Unknown

ASC-CLD
Need; Unpaid care receipt - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Has unpaid carer’ for service user or carer

Defined List…
Yes
No
Unknown

ASC-CLD
Receipt; Autism - service user 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Does service user have Autism Spectrum Disorder (ASD)?

Defined List…
Yes
No
Unknown

ASC-CLD
Receipt; Visual impairment - service user 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Does service user have visual impairment?

Defined List
Blind/severely sight impaired
Partial sight/sight impaired
No visual impairment
Visual impairment – severity unknown
Unknown

ASC-CLD
Receipt; Hearing impairment - service user 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Does service user have hearing impairment?

Defined List
Deaf with speech
Deaf without speech
Hard of hearing
No hearing impairment
Hearing impairment – severity unknown
Unknown

ASC-CLD
Receipt; Dementia - service user 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Does service user have dementia?

Defined List…
Yes
No
Unknown

ASC-CLD
Receipt; Funding status - service user 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Client funding status of service user

Defined List…
18(3) (full cost client)
Self-Funder – Metering Only
Joint Client and Social Care Funded
Fully Health Funded
Joint Health and Social Care Funded
Fully Social Care Funded
Unknown – System Level
Unknown – Individual Level

ASC-CLD
Receipt; Event type - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Event type for service user or carer

Defined List…
Request
Assessment
Service
Review

ASC-CLD
Receipt; Event reference - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Event reference for service user or carer

Integer or Alpha-numeric

ASC-CLD
Receipt; Event start date - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Event start date for service user or carer

dd/mm/yyyy

ASC-CLD
Receipt; Event end date - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Event end date for service user or carer

dd/mm/yyyy

ASC-CLD
Receipt; Event description - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Event description for service user or carer

Free text

ASC-CLD
Receipt; Event outcome - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Event outcome for service user or carer

Defined List…
Progress to Rabblement/ST-Max
Progress to Assessment
Admitted to hospital
Progress to Re-assessment / Unplanned Review
Progress to Support Planning / Services
Progress to End of Life Care
No change in package
Service ended as planned
NFA – Moved to another LA
NFA – 100% NHS funded care
NFA – Self-funded client (Inc. 12wk disregard)
NFA – Support declined
NFA – Information & Advice / Signposting only
NFA – Deceased
NFA – No services offered: Other reason
NFA – Support ended: Other reason
Progress to financial assessment
Provision of service
NFA- Other

ASC-CLD
Receipt; Route of access - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Request only: Route of access for service user or carer

Defined List…
Planned Entry (Transition)
Discharge from Hospital
Diversion from Hospital Services
Community / Other route
Prison
Self-Funder
Discharge from Rabblement
Transfer from Other LA

ASC-CLD
Receipt; Assessment type - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Assessments only: Assessment type for service user or carer

Defined List…
Short Term Assessment
Long Term Assessment
Financial Assessment

ASC-CLD
Need; Eligible needs - service user/carer 2024 0-120 0 120 Data manager No Current ASC-CLD Feb v2 No

Assessments only: Eligible needs identified for service user or carer

Defined List…
Eligible needs identified
Non-eligible needs identified
No needs identified

ASC-CLD
Provision; Number of hours spent caring 2016 50-120 50 120 Participant No Current HEAF Follow-up 4 No

In an average week, roughly how many hours would you spend doing the following
activities? (Please answer each question)

a) Working in a paid job (whether employed or self-employed)
b) Giving personal care to someone in your home or family
c) Working in an unpaid job for others outside your home and family (e.g. as a
volunteer for a charity)

HEAF
Need; Limited ADL completion - back & Neck pain 2016 50-120 50 120 Participant No Past year HEAF Follow-up 4 No

During the past 12 months, have you had pain in your BACK or NECK for a month or longer
that made it difficult or impossible to get washed or dressed or do household chores?

Yes
No

HEAF
Need; Limited ADL completion - arm & shoulder pain 2016 50-120 50 120 Participant No Past year HEAF Follow-up 4 No

During the past 12 months, have you had pain in your ARM(S) or SHOULDER(S) for a month or
longer that made it difficult or impossible to get washed or dressed or to do household chores?

Yes
No

HEAF
Need; Limited ADL completion - leg pain 2016 50-120 50 120 Participant No Past year HEAF Follow-up 4 No

During the past 12 months, have you had pain in your LEG(S) for a month or longer that made
it difficult or impossible to get washed or dressed or do household chores?

Yes
No

HEAF
Need; Ability to dress without help 2016 50-120 50 120 Participant No Current HEAF Follow-up 4 No

How do you manage the following activities? (If you do not do any of the activities, try to
estimate how well you would be able to do them. Circle the number that applies; please circle a
number on every line).

Scale from 0 (without difficulty) to 10 (impossible)
a) Dressing (without help)
b) Out-door walks
c) Climbing stairs
d) Sitting for a long time
e) Standing bent over a sink
f) Carrying a bag
h) Making a bed
i) Running
j) Light work
k) Heavy work
l) Lifting heavy objects
m) Participating in exercise/sports

HEAF
Provision; Number of hours spent caring 2019 50-120 50 120 Participant No Current HEAF Follow-up 5 No

In an average week, roughly how many hours would you spend doing the following
activities? (Please answer each question)

a) Working in a paid job (whether employed or self-employed)
b) Giving personal care to someone in your home or family
c) Working in an unpaid job for others outside your home and family (e.g. as a
volunteer for a charity)

HEAF
Receipt; Receipt of care/disability-related benefits 2019 50-120 50 120 Participant No Current HEAF Follow-up 5 No

Do you receive any state benefits?

a) income support
b) Incapacity benefit
c) Jobseeker’s allowance
d) Disability living allowance
e) Housing benefit f) Working tax credit
g) Statutory sick pay h) Employment and support allowance
i) Universal credit
j) Personal Independence payment
k) Carer’s allowance
l) Others (please specify below

HEAF
Need; Ability to bathe/dress 2019 50-120 50 120 Participant No Current HEAF Follow-up 5 No

The following items are about activities you might do during a typical day.

Does your health now limit you in these activities? If so, please indicate how much?
(One tick for each row)

For each response option:
Yes limited a lot
Yes limited a little
No, not limited at al

Response options:
a) Vigorous activities, such as running, lifting heavy objects, participating in strenuous
sports
b) Moderate activities, such as moving a table, pushing a vacuum cleaner, bowling or
playing golf
c) Lifting or carrying groceries
d) Climbing several flights of stairs
e) Climbing one flight of stairs
f) Bending, kneeling or stooping
g) Walking more than one mile
h) Walking half a mile
i) Walking one hundred yards
j) Bathing or dressing yourself

HEAF
Provision; DoL applications - granted/not granted 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Number of completed applications for deprivation of liberty during year and the mean duration (days) from receiving the application to completing for granted and not granted applications by urgent / standard status, and not granted applications by reason not granted (separated by region of country and also by UK councils)

Number of applications:
Granted – Urgent
Granted – Standard
Not Granted – Urgent
Not Granted – Standard

DoLS
Provision; DoL applications - granted/not granted length of time 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Number of completed applications for deprivation of liberty during year and the mean duration (days) from receiving the application to completing for granted and not granted applications by urgent / standard status, and not granted applications by reason not granted (separated by region of country and also by UK councils)

Mean durations of application completion (days):
Granted – Urgent
Granted – Standard
Not Granted – Urgent
Not Granted – Standard

DoLS
Provision; DoL applications - reasons not granted 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Number of completed applications for deprivation of liberty during year and the mean duration (days) from receiving the application to completing for granted and not granted applications by urgent / standard status, and not granted applications by reason not granted (separated by region of country and also by UK councils)

Mean duration from receiving the application to completing (days) – Reason Not Granted:
Assessment Criteria Not Met
Change of Circumstances
Death of Person
Admin Error

DoLS
Provision; DoL applications - gap between completion and authorization 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Number of completed and granted applications for deprivation of liberty during year during year and number of applications by duration (days) from application completion to the start of the authorisation (separated by region of country and also by UK councils)

Duration between application completion and the start of the authorisation (days):
Less than 0
0
1 to 30
31 to 365
366 or more
Blank

DoLS
Provision; DoL applications - number of urgent authorisations 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Number of granted authorisations for deprivation of liberty when urgent authorisation given (separated by region of country and also by UK councils)

Number of granted authorisations

DoLS
Provision; DoL applications - duration of planned authorisation 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Duration of planned authorisation for deprivation of liberty period (days) – when urgent authorisation given (separated by region of country and also by UK councils)

Shortest duration
Longest duration
Mean duration

DoLS
Provision; DoL applications - number of standard authorisations 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Number of granted authorisations for deprivation of liberty from standard applications (separated by region of country and also by UK councils)

Number of granted authorisations

DoLS
Provision; DoL applications - duration of authorisation 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Duration of actual authorisation period (days) – when urgent authorisation for deprivation of liberty given (separated by region of country and also by UK councils)

Shortest duration
Longest duration
Mean duration

DoLS
Provision; DoL applications - duration of standard authorisation 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Duration of actual authorisation for deprivation of liberty period (days) – standard applications (separated by region of country and also by UK councils)

Shortest duration
Longest duration
Mean duration

DoLS
Provision; DoL authorisation - review during year 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Authorisations active during year, where at least one review took place during the authorisation for deprivation of liberty, and outcome of most recent review (separated by region of country and also by UK councils)

Total number of authorisations
Authorisations with at least one review
No review
Mental health requirement not met
Mental capacity requirement not met
No refusals requirement not met
Eligibility requirement not met
Best interests requirement not met
Change of client circumstances
Death of client
No criteria failed, DoLS remains
Not known

DoLS
Provision; Total applications for DoL 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Total applications for deprivation of liberty (separated by region of country and also by UK councils)

Number of applications

DoLS
Provision; Total applications for DoL urgent/standard 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Total applications, urgent and standard, for deprivation of liberty (separated by region of country and also by UK councils)

Number of applications

DoLS
Provision; DoL applications - acute hospitals 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Number of applications for deprivation of liberty from acute hospitals (separated by region of country and also by UK councils)

Number of applications

DoLS
Provision; DoL applications - mental health 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Number of applications for deprviation of liberty from mental health (separated by region of country and also by UK councils)

Number of applications

DoLS
Provision; DoL applications - nursing homes 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Number of applications for deprivation of liberty from care homes – nursing (separated by region of country and also by UK councils)

Number of applications

DoLS
Provision; DoL applications - residential care homes 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Number of applications for deprivation of liberty from care homes – residential (separated by region of country and also by UK councils)

Number of applications

DoLS
Provision; DoL applications - other services 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Number of applications for deprivation of liberty from other services (separated by region of country and also by UK councils)

Number of applications

DoLS
Provision; DoL applications - number per individual 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Number of applications for deprivation of liberty per individual (separated by region of country and also by UK councils)

Number of applications per individual:
1 application
2 applications
3 applications
4+ applications

DoLS
Provision; DoL applications - by age group 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Applications received during year per 100,000 adults by age group and age standardised rate (separated by region of country and also by UK councils)

Number of applications:
18-64 years old
65-74 years old
74-84 years old
85+ years old

DoLS
Provision; DoL applications - not granted 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Total applications for deprivation of liberty not granted (separated by region of country and also by UK councils)

Number of applications

DoLS
Provision; DoL applications - reason not granted 2009 18-120 18 120 Data manager No Past year DLoS - Applications No

Total number of applicatons for deprivation of liberty not granted by reason (separated by region of country and also by UK councils)

Number not granted for:
Assessment criteria not met
Change in circumstances
Death of person
Admin Error
Blank

DoLS
Provision; DoL applications - not completed by duration 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Applications for deprivation of liberty not completed at end of reporting year by duration of application (separated by region of country and also by UK councils)

Total number of applications:
0 to 89 days
90 to 180 days
181 to 270 days
271 to 365 days
366 days or more

DoLS
Provision; DoL applications - not completed urgent/standard 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Applications for deprivation of liberty not completed at end of reporting year by urgent or standard cases (separated by region of country and also by UK councils)

Total number of applications:
Urgent
Standard

DoLS
Provision; DoL applications - not completed by service type 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Applications for deprivation of liberty not completed at end of reporting year by CQC service type (separated by region of country and also by UK councils)

Total number of applications:
Acute hospitals
Mental health
Care homes – nursing
Care home – residential
Other
Blank or invalid

DoLS
Provision; DoL applications - one application min by age 2009 18-120 18 120 Data manager No Past year DLoS - Demographics No

Number of individuals that have had at least one application for deprivation of liberty submitted and received by the council during year by age group (separated by region of country and also by UK councils)

Number of applications:
18-64 years old
65-74 years old
74-84 years old
85+ years old

DoLS
Provision; DoL applications - by gender 2009 18-120 18 120 Data manager No Past year DLoS - Demographics No

Number of individuals that have had at least one application for deprivation of liberty submitted and received by the council during year by gender (separated by region of country and also by UK councils)

Total number of applications:
Male
Female

DoLS
Provision; DoL applications - by ethnicity 2009 18-120 18 120 Data manager No Past year DLoS - Demographics No

Number of individuals that have had at least one application for deprivation of liberty submitted and received by the council during year by ethnicity (separated by region of country and also by UK councils)

Total number of applications:
White
Asian / Asian British
Mixed / Multiple Ethnic Group
Black / Black British
Other ethnic origin
Not stated
Undeclared / Not known

DoLS
Provision; DoL applications - by sexual orientation 2009 18-120 18 120 Data manager No Past year DLoS - Demographics No

Number of individuals that have had at least one application for deprivation of liberty submitted and received by the council during year by sexual orientation (separated by region of country and also by UK councils)

Total number of applications:
Heterosexual
Gay / Lesbian
Bisexual
Other
Prefer not to say
Not known

DoLS
Provision; DoL applications - application duration shortest/longest 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Number of completed applications for deprivation of liberty and the shortest, longest and mean duration (days) from receiving the application to completing during year (separated by region of country and also by UK councils)

Duration in days:
Shortest duration
Longest duration
Mean duration
Standard applications
Completed within 21 days

DoLS
Provision; DoL applications - application duration shortest/longest from last assessment 2009 18-120 18 120 Data manager No Past year DLoS - Timeframes No

Number of completed applications for deprivation of liberty and the shortest, longest and mean duration (days) from receiving the application to completing during year: From the last assessment to application completion (days) (separated by region of country and also by UK councils)

Shortest duration
Longest duration
Mean duration

DoLS
Provision; New guardianship cases in year 2003 16-120 16 120 Data manager No Past year Ongoing - yearly No

Total new cases for guardianship opened during the year (totals and broken down by region of country)

Number of cases

GMHA
Provision; Continuing guardianship cases in year 2003 16-120 16 120 Data manager No Past year Ongoing - yearly No

Total number of cases for guardianship continuing at the end of the year (totals and broken down by region of country)

Number of cases

GMHA
Provision; Closed guardianship cases in year 2003 16-120 16 120 Data manager No Past year Ongoing - yearly No

Total number of cases for guardianship closed during the year (totals and broken down by region of country)

Number of cases

GMHA
Provision; Median length closed guardianship cases in year 2003 16-120 16 120 Data manager No Past year Ongoing - yearly No

Median length of closed cases for guardianship (months) (totals and broken down by region of country and councils)

Length of time in months

GMHA
Provision; New guardianship cases in year - gender and act section 2003 16-120 16 120 Data manager No Past year Ongoing - yearly No

New cases for guardianship opened during the year (totals and broken down by region of country). Broken down by gender and section of act (section 7 or section 37)

Number of cases

GMHA
Provision; Continuing guardianship cases in year - gender and act section 2003 16-120 16 120 Data manager No Past year Ongoing - yearly No

Continuing cases for guardianship during the year (totals and broken down by region of country). Broken down by gender and section of act (section 7 or section 37)

Number of cases

GMHA
Provision; Closed guardianship cases in year - gender and act section 2003 16-120 16 120 Data manager No Past year Ongoing - yearly No

Closed cases for guardianship during the year (totals and broken down by region of country). Broken down by gender and section of act (section 7 or section 37)

Number of cases

GMHA
Provision; Reason for request - lifetime loan 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Reason for request: Lifetime loan
(broken down by the region of the country and councils)

Number of new DPAs agreed during the year

DPAE
Provision; Reason for request - other 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Reason for request: Other
(broken down by the region of the country and councils)

Number of new DPAs agreed during the year

DPAE
Provision; Planned use of property during DPA 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Planned use of property during DPA divided into:
Sale
Rent
Family member
Empty
(broken down by the region of the country and councils)

Number of new DPAs agreed during the year

DPAE
Provision; Security provided for DPA 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Security provided for deferred payment agreements (DPAs) divided into:
Secured with first charge
With second or other charge
By other means
(broken down by the region of the country and councils)

Number of new DPAs agreed during the year

DPAE
Provision; State vs. individual contributions to DPA - full costs care 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

State and individual contributions to the deferred payment agreements (DPAs) – DPA for full cost of residential or nursing home place (broken down by the region of the country and councils)

Number of outstanding DPAs

DPAE
Provision; State vs. individual contributions to DPA - user contributing 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

State and individual contributions to the deferred payment agreements (DPAs) – User contributing from income to cost of care (broken down by the region of the country and councils)

Number of outstanding DPAs

DPAE
Provision; State vs. individual contributions to DPA - means testing 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

State and individual contributions to the deferred payment agreements (DPAs) – LA contributing to cost of care through the means test (broken down by the region of the country and councils)

Number of outstanding DPAs

DPAE
Provision; Distribution of weekly value of DPA 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Distribution of weekly value of the deferred payment agreements (DPAs) (broken down by the region of the country and councils)

Number of outstanding DPAs broken down into:
Less than £300
£300 to £400
£400 to £500
More than £500

DPAE
Provision; DPAs concluded due to death of holder 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Deferred payment agreements (DPAs) concluded due to the death of the holder (broken down by the region of the country and councils)

Number of recovered DPAs during the year

DPAE
Provision; DPAs concluded during lifetime of holder 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Deferred payment agreements (DPAs) concluded during the lifetime of the holder (broken down by the region of the country and councils)

Number of recovered DPAs during the year

DPAE
Provision; DPAs concluded due to death of holder - by length of DPA 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Deferred payment agreements (DPAs) concluded due to the death of the holder (broken down by the region of the country)

Number of recovered DPAs by the length of time the DPA was in place:
6 months or less
more than 6 months but less than 12 months
more than 12 months but less than 24 months
more than 24 months but less than 36 months
More than 36 months
Total

DPAE
Provision; DPAs concluded in lifetime of holder - by length of DPA 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Deferred payment agreements (DPAs) concluded during the lifetime of the holder (broken down by the region of the country)

Number of recovered DPAs by the length of time the DPA was in place:
6 months or less
more than 6 months but less than 12 months
more than 12 months but less than 24 months
more than 24 months but less than 36 months
More than 36 months
Total

DPAE
Provision; Number of DPAS outstanding 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Number of deferred payment agreements (DPAs) outstanding at 31st March
(broken down by the region of the country and councils)

Number of deferred payment agreements (DPAs)

DPAE
Provision; Number of DPAS outstanding - loan style 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Number of deferred payment agreements (DPAs) outstanding at 31st March outstanding – Of which Loan Style
(broken down by the region of the country and councils)

Number of deferred payment agreements (DPAs)

DPAE
Provision; New DPAs agreed during the year 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

New deferred payment agreements (DPAs) agreed during the year
(broken down by the region of the country and councils)

Number of deferred payment agreements (DPAs)

DPAE
Provision; New DPAs - loan style 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

New deferred payment agreements (DPAs) – of which Loan style
(broken down by the region of the country and councils)

Number of deferred payment agreements (DPAs)

DPAE
Provision; Ended DPAs - recovery attempted but no value recovered 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Ended deferred payment agreements (DPAs) where recovery was attempted, but no value was recovered during the year
(broken down by the region of the country and councils)

Number of deferred payment agreements (DPAs)

DPAE
Provision; Ended DPAs - recovery attempted & value recovered 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Ended deferred payment agreements (DPAs) where recovery was attempted, and a partial value was recovered during the year
(broken down by the region of the country and councils)

Number of deferred payment agreements (DPAs)

DPAE
Provision; Ended DPAs - local authority did not attempt recovery 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Ended deferred payment agreements (DPAs) where the Local Authority did not attempt recovery during the year
(broken down by the region of the country and councils)

Number of deferred payment agreements (DPAs)

DPAE
Provision; Ended DPAs - fully recovered 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Ended deferred payment agreements (DPAs) that were fully recovered during the year
(broken down by the region of the country and councils)

Number of deferred payment agreements (DPAs)

DPAE
Provision; Value of DPAs 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Value of deferred payment agreements (DPAs) outstanding at 31st March
(broken down by the region of the country and councils)

Value of deferred payment agreements (DPAs) in £

DPAE
Provision; Value of deferred DPAs 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Value of outstanding deferred payment agreements (DPAs) – Of which Loan Style
(broken down by the region of the country and councils)

Value of deferred payment agreements (DPAs) in £

DPAE
Provision; Value of new DPAs 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Value of new deferred payment agreements (DPAs) agreed during the year
(broken down by the region of the country and councils)

Value of deferred payment agreements (DPAs) in £

DPAE
Provision; Value of new DPAs - loan style 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Value of new deferred payment agreements (DPAs) – Of which Loan Style
(broken down by the region of the country and councils)

Value of deferred payment agreements (DPAs) in £

DPAE
Provision; Value of ended DPAs - recovery attempted but no value recovered 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Value of ended deferred payment agreements (DPAs) where recovery was attempted, but no value was recovered during the year
(broken down by the region of the country and councils)

Value of deferred payment agreements (DPAs) in £

DPAE
Provision; Value of ended DPAS - recovery attempted & partial value recovered 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Value of ended deferred payment agreements (DPAs) where recovery was attempted, and a partial value was recovered during the year. Values provided for ‘recovered’ and ‘written off’
(broken down by the region of the country and councils)

Value of deferred payment agreements (DPAs) in £

DPAE
Provision; Value of ended DPAS - no recovery attempted 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Value of ended deferred payment agreements (DPAs) where the Local Authority did not attempt recovery during the year
(broken down by the region of the country and councils)

Value of deferred payment agreements (DPAs) in £

DPAE
Provision; Value of ended DPAS - fully recovered 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Value of ended deferred payment agreements (DPAs) that were fully recovered during the year
(broken down by the region of the country and councils)

Value of deferred payment agreements (DPAs) in £

DPAE
Provision; Value received against deferred DPAs - outstanding 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Value received during the year against deferred payment agreements (DPAs) that were outstanding at 31st March
(broken down by the region of the country and councils)

Value of deferred payment agreements (DPAs) in £

DPAE
Provision; New DPAs - top-up/no top-up 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

New deferred payment agreements (DPAs) agreed during the year divided into:
Provided with no top up
Provided with top up
(broken down by the region of the country and councils)

Number of new DPA requests, by the sequel to that request

DPAE
Provision; DPAs not provided - local authority vs. client reasons 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Requests for a deferred payment agreements (DPAs) where the DPA was not provided divided into:
Not provided for Local Authority reasons
Not provided for client reasons
(broken down by the region of the country and councils)

Number of new DPA requests, by the sequel to that request

DPAE
Provision; Reason for request - loan before sale of property 2017 0-120 0 120 Data manager No Past year Ongoing - yearly No

Reason for request: Bridging loan to allow sale of the property
(broken down by the region of the country and councils)

Number of new DPAs agreed during the year

DPAE
Provision; Effectiveness - children's social care service 2014 0-18 0 18 Data manager No Current Children’s social care data in England rolling data collection No

Overall effectiveness of children’s social care service

Outstanding
Good
Requires improvement to be good
Inadequate

CSCDE
Provision; Impact - leaders - children's social care service 2014 0-18 0 18 Data manager No Current Children’s social care data in England rolling data collection No

Impact of leaders of children’s social care service

Outstanding
Good
Requires improvement to be good
Inadequate

CSCDE
Provision; Experiences/progress children who need help/protection in services 2014 0-18 0 18 Data manager No Current Children’s social care data in England rolling data collection No

Experiences and progress of children who need help and protection in children’s social care service

Outstanding
Good
Requires improvement to be good
Inadequate

CSCDE
Provision; Experiences/progress - children in social care service 2014 0-18 0 18 Data manager No Current Children’s social care data in England rolling data collection No

Experiences and progress of children in care in children’s social care service

Outstanding
Good
Requires improvement to be good
Inadequate

CSCDE
Provision; Experiences/progress leavers children's services 2014 0-18 0 18 Data manager No Current Children’s social care data in England rolling data collection No

Experiences and progress of care leavers of children’s social care service

Outstanding
Good
Requires improvement to be good
Inadequate

CSCDE
Provision; Inspection/Visit type - children's social care service 2014 0-18 0 18 Data manager No Current Children’s social care data in England rolling data collection No

Inspection/Visit type of children’s social care service

ILACS Focused Visit
ILACS Short Inspection
ILACS Standard Inspection
LA Monitoring visit

CSCDE
Provision; Provision type of children's social care service 2014 0-18 0 18 Data manager No Current Children’s social care data in England rolling data collection No

Provision type of children’s social care service

Boarding School
Residential special school (registered as a children’s home)
Children’s home
Independent Fostering Agency
Voluntary Adoption Agency
Residential Family Centre
Adoption Support Agency
Children’s home
Further Education College with Residential Accommodation
Secure children’s home

CSCDE
Provision; How well children/young people protected - services 2014 0-18 0 18 Data manager No Current Children’s social care data in England rolling data collection No

How well children and young people are helped and protected at children’s social care service

Outstanding
Good
Requires improvement to be good
Inadequate

CSCDE
Provision; Effectiveness - leaders/managers - children's social care services 2014 0-18 0 18 Data manager No Current Children’s social care data in England rolling data collection No

The effectiveness of leaders and managers at children’s social care service

Outstanding
Good
Requires improvement to be good
Inadequate

CSCDE
Provision; Number of community referrals received 2017 0-120 0 120 Data manager Yes Past month Community Services Statistics rolling data collection No

Referrals received (ICB, Local Authority of Residence (Upper), NHS England (Region), Provider):
Referrals broken down into the following categories:
-Total
-Children and young people
-Adults aged 19 to 64
-Adults aged 65 and over

For each group figures obtained for:
Referrals received
Persons needing care

CSS
Provision; Care contacts by age group 2017 0-120 0 120 Data manager Yes Past month Community Services Statistics rolling data collection No

Breakdown of care contacts by age group:
Care contacts broken down into the following categories:
-Total
-Children and young people
-Adults aged 19 to 64
-Adults aged 65 and over

Number of care contacts obtained for each category

CSS
Provision; Referrals to community services by age 2017 0-120 0 120 Data manager Yes Past month Community Services Statistics rolling data collection No

Referrals by age

Number of referrals for the following age groups:
0-4
4-9
10-14
15-19
20-24
25-29
30-34
35-39
40-44
45-49
50-54
55-59
60-64
65-69
70-74
75-79
80-84
85-89
90-94
95-99

CSS
Provision; Sources of community referrals 2017 0-120 0 120 Data manager Yes Past month Community Services Statistics rolling data collection No

Referrals by source of referral

Number of sources recorded under:
General Medical Practiioner Practice
Community Health Service
Acute Hospital Inpatient/Outpatient Department
Self referral
Source of referral no known
Carer/Relative
Missing Value/Value Outside Parameters
Care Home
Educational Establishemnt
Local Authority Social Services
Accident and Emergency Department (including minor injuries units and walk in cenres)
Ambulance Service
Telephone or Electronic Access Service
Hospice
Mental Health Service
Police
Dental Practice
Independent Sector
National Screening Programme
Voluntary Sector
EmployerAsylum Service
Prison Health Service
Courts
Probation Service
Pharmacy
Asylum services

CSS
Provision; Reasons for community referrals 2017 0-120 0 120 Data manager Yes Past month Community Services Statistics rolling data collection No

Referrals by reason for referral

Reasons by reason for referral recorded under:
Reason for referral not known
Missing Value / Value Outside Parameters
Musculoskeletal Problems
Haematology/Phlebotamy
Healthy Child Pathway
Wound Care
Problems with Activities of Daily Living
Rehabilitation
Foot Care/Problems
Continence problems
Catheter problems
End of Life Support
Nutrition and Dietetics
Diabetes
Speech and Language Problems
Mobility Problems
Respiratory Conditions
Antenatal Care
Falls Risk
Cardiac Conditions
Family Support
Pain/Symptom Control
Emotional/Behaviour Problems
Equipment Provision
Safeguard
Neurological Problems
Looked After Children
Bladder Care
Pressure Ulcer
Feeding/Swallowing Problems
Developmental Problems
Leg Ulcer
Blood Pressure
Skin Problems
Bowel Problems
Ear Infections/Problems
Hearing Problems/Loss
Imunisation
Tuberculosis
Over 75 Assessments
Cancer
Accident/Trauma
Other Congenital Conditions
Lymphoedema Management
Blood Disorders
Post Operative Care
Psychological Conditions
Minor Surgery
Complex Social Factors
Ophthalmic Problems
Parkinson’s Disease
Vascular Problems
Structural/Functional Impairment
Cognitive Problems
Deep Vein Thrombosis
Smoking Cessation
Material Mood Problems
Multiple Complex Communication Difficulties
Personal Hygiene
Bereavement
Chronic Allergy/Immunological Problem
Epilepsy
Stoma Care
Sleep Problems
Dizziness/Balance Problems
Gastrostomy/Management/Care
Renal Problems
Vomiting/Nausea
Eating Disorder
Chronic Fatigue Syndrome/Myalgic Encephalophy
Diarrhea and Vomiting
Metabolic/Endocrine Disorders
Head Injruy
Condition(s) Requiring Respite Care
Cerebral Palsy
Genetic Disorders
Alopecia
Failure to Thrive
Colostomy Care
Substance Misuse
Care of Next Infant (CONI) Pathway
Downs Syndrome
Cleft Palate
Low Muscle Tone
Dental Care Problems
Laryngectomy
Eustachia Tube Dysfunction
Neonatal Abstinence Syndrome
Trismus/Restricted Mouth Opening

CSS
Provision; Care contacts by age group 2017 0-120 0 120 Data manager Yes Past month Community Services Statistics rolling data collection No

Care contacts by age

Number of contacts recorded for the following age groups:
0-4
4-9
10-14
15-19
20-24
25-29
30-34
35-39
40-44
45-49
50-54
55-59
60-64
65-69
70-74
75-79
80-84
85-89
90-94
95-99

CSS
Provision; Types of consultations provided 2017 0-120 0 120 Data manager Yes Past month Community Services Statistics rolling data collection No

Consultation Type

Consultation types recorded under:
Follow-up consultation
Initial Consultation
Missing value / Value Outside Parameters

CSS
Provision; Method of contact 2017 0-120 0 120 Data manager Yes Past month Community Services Statistics rolling data collection No

Contact Medium

Number of care contacts recorded under:
Video consultation
Text Message (Asynchronous)
Telephone
Talk type for a person unable to speak
Other
Missing Value / Value Outside Parameters
Message Board (Asynchronous)
Instant messaging (Synchronous)
Face to face communication
Email
Chat Room (Synchronous)

CSS
Provision; Attendance status for community referrals 2017 0-120 0 120 Data manager Yes Past month Community Services Statistics rolling data collection No

Attendance Status

Number of care contacts recorded under:
Attended
Missing Value / Value Outside Parameters
Health care provider cancellation
Patient did not attend or arrived too late to be seen
Patient cancellation

CSS
Provision; Total no. of complaints not upheld about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total complaints (complaints not upheld about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Region where IFA agency located 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Region in which Independent Fostering Agency (IFA) office is located

For each named service whether they are located in:
England
North West
North East
West Midlands
East Midlands
South West
South East
London
Yorkshire and The Humber
East of England

FIE
Provision; No. of approved households by IFA agency 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total approved households

Number for each named agency

FIE
Provision; No. of approved carers by IFA agency 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total approved carers

Number for each named agency

FIE
Provision; No. of allegation investigations < 21 days 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Time taken to investigate allegation less than 21 working days

Timescale for investigation (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of allegation investigations = 22-30 days 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Time taken to investigate allegation 22 to 30 working days (4 to 6 weeks)

Timescale for investigation (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of allegation investigations = 31-50 days 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Time taken to investigate allegation 31 to 50 working days (6 to 10 weeks)

Timescale for investigation (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of allegation investigations 50+ days 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Time taken to investigate allegation more than 50 working days (more than 10 weeks)

Timescale for investigation (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of DBS referrals due to allegations 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of referrals to the Disclosure and Barring Service (DBS) (allegations by foster children and other sources)

Referrals (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of LA child protection referrals due to allegations 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of referrals to the local authority child protection team (allegations by foster children and other sources)

Referrals (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of section 47 enquiries 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of Section 47 enquiries (allegations by foster children and other sources)

Referrals (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of physical restrained incidents by foster carers 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of recorded incidents of physical restraint by foster carers (allegations by foster children and other sources)

Physical restraint (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of physical restrained incidents by foster household 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of households that restrained CYP (allegations by foster children and other sources)

Physical restraint (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of CYP complaints about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

CYP (complaints made about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of CYP complaints about fostering not upheld 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

CYP (complaints not upheld about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carer complaints about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Foster carers (complaints made about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of social workers' complaints made about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

CYP’s social workers (complaints made about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of CYP's social workers' complaints made about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Other professionals (complaints made about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of other professionals' complaints made about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Other professionals (complaints made about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of CYP parents' complaints made about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

CYP’s parents (complaints made about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of CYP parents' complaints not upheld about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

CYP’s parents (complaints not upheld about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of other complaints about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Others (complaints made about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of other complaints not upheld about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Others (complaints not upheld about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Total no. of complaints made about fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total complaints (complaints made about fostering)

Complaints (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of deregistered foster carers - unknown reason 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Deregistration of foster carer for unknown reason

Deregistrations by reason (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. IRM foster carer application reviews 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of foster carer applications for a review to the IRM

Referrals to the IRM (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of reviewed referrals to IRM 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of foster carers which resulted in a recommendation being made to review the decision

Referrals to the IRM (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers completing TSD standards 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of individual foster carers who had completed the TSD Standards (Training, Support
and Development Standards for Foster Care)

Training and development numbers (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers completing TSD standards 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of individual foster carers who were awaiting sign-off on the TSD Standards (Training, Support
and Development Standards for Foster Care)

Training and development numbers (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers in progress TSD standards 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of individual foster carers who were in progress completing the TSD Standards (Training, Support
and Development Standards for Foster Care)

Training and development numbers (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers yet to start TSD standards 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of individual foster carers who had not yet commenced the TSD Standards (Training, Support
and Development Standards for Foster Care)

Training and development numbers (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers unknown TSD standard qualification 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of individual foster carers with TSD Standards training status unknown (Training, Support
and Development Standards for Foster Care)

Training and development numbers (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of allegations against foster carers - by children 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of allegations against foster carers by fostered children

Number of allegations of abuse (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of allegations against foster carers - by other sources 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of allegations against foster carers by other sources

Number of allegations of abuse (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of allegations made 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total number of allegations made

Number of allegations of abuse (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of allegations against foster carers 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of children made allegations against foster carers

Number of allegations of abuse (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers subject to allegations 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of foster carers subject to allegations

Number of allegations of abuse (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers subject to allegations - phyical abuse 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Physical abuse allegations by foster children

Category of alleged abuse (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers subject to allegations - sexual abuse 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Sexual abuse allegations by foster children

Category of alleged abuse (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers subject to allegations - neglect 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Neglect allegations by foster children

Category of alleged abuse (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers subject to allegations - emotional abuse 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Emotional abuse allegations by foster children

Category of alleged abuse (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers subject to allegations - concerns resolved 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Concerns resolved, no further action (allegations by foster children and other sources)

Outcome of investigation (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers subject to allegations - continued monitoring 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Continued monitoring for agreed period (allegations by foster children and other sources)

Outcome of investigation (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of foster carers subject to allegations - concern remained 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Concern remained, refer to fostering panel for review (allegations by foster children and other sources)

Outcome of investigation (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Foster parent ethnicity 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Black/Black British ethnicity foster carers

Newly approved foster carers by ethnicity (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Foster parent ethnicity 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Other ethnic groups foster carers

Newly approved foster carers by ethnicity (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Foster parent ethnicity 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Not known ethnicity of foster carers

Newly approved foster carers by ethnicity (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Age of newly approved foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved foster carer aged 20 to 24

Newly approved foster carers by age (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Age of newly approved foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved foster carer aged 25 to 29

Newly approved foster carers by age (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Age of newly approved foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved foster carer aged 30 to 34

Newly approved foster carers by age (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Age of newly approved foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved foster carer aged 35 to 39

Newly approved foster carers by age (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Age of newly approved foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved foster carer aged 40 to 44

Newly approved foster carers by age (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Age of newly approved foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved foster carer aged 45 to 49

Newly approved foster carers by age (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Age of newly approved foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved foster carer aged 50 to 54

Newly approved foster carers by age (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Age of newly approved foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved foster carer aged 55 to 59

Newly approved foster carers by age (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Age of newly approved foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved foster carer aged 60 to 64

Newly approved foster carers by age (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Age of newly approved foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved foster carer aged 65+

Newly approved foster carers by age (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Total foster households deregistered 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total households deregistered between 1 April and 31 March

Deregistration’s (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of deregistered foster carers to facilitate LA transfer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Deregistered foster carer to facilitate a transfer to a local authority

Deregistration’s by reason (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of deregistered foster carers to facilitate IFA transfer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Deregistered of foster carer to facilitate a transfer to an independent fostering agency

Deregistration’s by reason (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of deregistered foster carers by service 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Deregistration of foster carer initiated by the fostering service

Deregistration’s by reason (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of deregistered foster carers by foster carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Deregistration of foster carer initiated by the foster carer

Deregistration’s by reason (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of deregistered foster carers as they adopted child 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Deregistered of foster carer as family adopted the child/children

Deregistrations by reason (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of deregistered foster carers as they took special guardianship 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Deregistered foster carer as family took out a special guardianship order for the child/children

Deregistrations by reason (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of newly approved emergency foster care 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved emergency foster care

Newly approved households by primary approval type (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of newly approved parent and child placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved parent and child

Newly approved households by primary approval type (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of newly approved multi-dimensional treatment 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved multi-dimensional treatment

Newly approved households by primary approval type (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of newly approved remand placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved remand

Newly approved households by primary approval type (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of newly approved other placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved other

Newly approved households by primary approval type (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of newly approved to adopt placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved fostering to adopt

Newly approved households by primary approval type (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of newly approved short breaks 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved short breaks

Newly approved households by primary approval type (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of newly approved shared care placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved shared care

Newly approved households by primary approval type (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. newly approved to foster 1 child 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved fostering of one child

Newly approved households by total number of places (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. newly approved to foster 2 children 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved fostering of two children

Newly approved households by total number of places (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. newly approved to foster 3 children 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved fostering of three children

Newly approved households by total number of places (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. newly approved to foster 4 children 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved fostering of four or more children

Newly approved households by total number of places (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. newly approved person new to fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved person new to fostering

Newly approved households by fostering experience (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. newly approved transferring agencies 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved transferring from another fostering agency

Newly approved households by fostering experience (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. newly approved return to fostering 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved returning to fostering

Newly approved households by fostering experience (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Total number of foster carers approved in year (still active) 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total number of foster carers approved in year still active at 31 March

Newly approved foster carers (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Total number of foster carers approved in year 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total number of foster carers newly approved between 1 April and 31 March

Newly approved foster carers (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Foster parent ethnicity 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

White ethnicity foster carers

Newly approved foster carers by ethnicity (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Foster parent ethnicity 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Mixed ethnicity foster carers

Newly approved foster carers by ethnicity (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Foster parent ethnicity 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Asian/Asian British ethnicity foster carers

Newly approved foster carers by ethnicity (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of placements used for short break care 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of places used for short break care

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. carer taking break/registration pending 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Carer(s) taking a break/pending resignation

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. carers under investigation 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Carer(s) under investigation

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of unstated child needs 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Needs of child not otherwise stated

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No of sibling group placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Placement only available if sibling group placed

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of pending placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Reserved for pending placement

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of placements reserved for short breaks 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Reserved for short breaks placement

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of children staying put in placement 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of children staying put in placement

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of fostering limit exemption households 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of households approved at 31 March that had exemptions to the usual fostering limit in place at any time during the year

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of new fostering family enquiries 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of initial enquiries from new prospective fostering households

Initial enquiries (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of applications to foster 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total number of applications received from prospective fostering households between 1 April and 31 March

Applications received (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of fostering applications approved 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of applications approved

Applications received (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of fostering applications withdrawn by applicants 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of applications withdrawn by applicants

Applications received (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of fostering applications withdrawn by services 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of applications withdrawn by services

Applications received (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of fostering applications rejected 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of applications rejected after being presented to panel

Applications received (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of fostering applications remaining in progress 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of applications which remained in progress on 31 March

Applications received (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of fostering household approvals in year 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total number of households approved in year still active at 31 March

Newly approved households (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of newly approved fostering households 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total number of households newly approved between 1 April and 31 March

Newly approved households (in-year) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of newly approved permanent foster care placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved permanent foster care

Newly approved households by primary approval type (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; No. of newly approved non-permanent foster care placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Newly approved non-permanent foster care

Newly approved households by primary approval type (at 31 March) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of emergency foster placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Emergency placement offer

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of parent + child placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of parent and child placement offers

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number - multi dimensional treatments 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of multi-dimensional treatment offered

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of remand placements offered 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Remand fostering placement offered

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of other types of placements offered 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of other placement offers

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Numbers - fostering to adopt 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of people fostering to adopt

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Numbers - short breaks 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Short break fostering offers

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Numbers - shared care offers 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Shared care offers

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of unknown placement offers 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Placement offer not known

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of 0-8yr old foster children approvals 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

0 to 8 age range household

Households by approved age range (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of 5-18yr old foster children approvals 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

5 to 18 age range households

Households by approved age range (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Other age range foster children approvals 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Other age range households

Households by approved age range (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of households approved for 1 CYP 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of households approved for one CYP (child or young person)

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of households approved for 2 CYPs 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of households approved for two CYP (child or young person)

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of households approved for 3 CYPs 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of households approved for three CYP (child or young person)

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of households approved for 4+ 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of households approved for four or more CYP (child or young person)

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Total number of approved foster places 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of approved foster places

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of filled foster placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of filled places (number of children/young people in placements)

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of vacant foster placements 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of vacant foster places

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of foster places not available 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of foster places not available

Number of households/other placements (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Total approved fostering households 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Total approved fostering households

Number of approved households (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of fostering households with one carer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of fostering households with one carer

Households by number of carers (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of fostering households with two carers 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of fostering households with two carers

Households by number of carers (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of fostering permanent foster care households 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of fostering permanent foster care households

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of non-permanent foster care households 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of non-permanent foster care households

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Emergency fostering households number 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Number of emergency households

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of parent and child fostering households 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Parent and child fostering households

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Multi-dimensional fostering treatment provision 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Multi-dimensional fostering treatment provision

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Remand fostering placement number 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Remand fostering placement number

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number - other fostering placement offer 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Other fostering placement offers

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of fostering to adopt households 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Fostering to adopt household

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of short break placements offered 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Short breaks placement offer

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of shared care placements offered 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Shared care placement offer

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number of placement where offers not known 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Placement offer not known

Households by primary placement offer (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number - placements approved for 1 care type 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Placement offer approved for one type of care

Households by number of placement types offered (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number - placements approved for 2 care types 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Placement offer approved for two types of care

Households by number of placement types offered (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number - placements approved for 3 care types 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Placement offer approved for three types of care

Households by number of placement types offered (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Number - placements approved for 4+ care types 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Placement offer approved for four or more types of care

Households by number of placement types offered (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Numbers in permanent foster care 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Permanent foster care

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Provision; Numbers in non-permanent foster care 2018 0-18 0 18 Data manager No Past year Fostering in England rolling data collection No

Non-permanent foster care

Households by all placements offered (primary and additional) (figures for whole of England and broken down into Local Authority (LA) and Independent Fostering Agency (IFA) placements)

FIE
Receipt; Contribution to user charges 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

How much do you contribute in user charges for your Personal Budget? Is that amount per week or per month?

RECORD AMOUNT £:
1 Per week
2 Per month

HSE
Receipt; Topping up personal budget 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

“In addition to your user charges,”] do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1 Yes
2 No

HSE
Receipt; Topping up personal budget - amount 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

How much do you pay per week or per month to top up your Personal Budget?
Is that amount per week or per month?

RECORD AMOUNT £:
1 Per week
2 Per month

HSE
Receipt; Care paid for by local authority 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

Do you receive any care paid for by the council or the Local Authority?

1 Yes
2 No

HSE
Receipt; How much local authority pays for care 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

Do you know how much the local authority pays for your care, per week or per month?

RECORD AMOUNT £:
OR RECORD: Don’t know

1 Per week
2 Per month

HSE
Receipt; Paying for care privately - ADLs/IADLs 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

Thinking about the things listed on this card, [ [{IF LACare=1} “Apart from any care paid for by the local authority,] Do you pay for any care privately at the moment?

CARD DESCRIPTION
Include care for things such as:
• Getting in and out of bed on your own
• Washing your face and hands
• Having a bath or a shower, including getting in and out of the bath or shower
• Dressing or undressing, including putting on shoes and socks
• Using the toilet
• Eating, including cutting up food
• Taking the right amount of medicine at the right times
• Getting around indoors
• Getting up and down stairs
• Getting out of the house
• Shopping for food
• Doing routine housework or laundry
• Doing paperwork or paying bills

1 Yes
2 No

HSE
Receipt; Paying for private care - how much 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

How much do you pay for the care you purchase privately?

Is that amount per week or per month?

RECORD AMOUNT £:
1 Per week
2 Per month

HSE
Receipt; Who provides care and no. of hours 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

Now I’d like to ask you about all the hours of unpaid care that you receive from the people on this card.

1 Husband / Wife / Partner
2 Son (incl. stepson, adopted son or son-in-law
3 Daughter (incl. stepdaughter, adopted daughter or daughter-in-law)
4 Grandchild (incl. great-grandchild)
5 Brother / Sister (incl. step / adopted / in-laws)
6 Niece / Nephew
7 Mother or Father (incl. mother-in-law or father-in-law)
8 Other family member
9 Friend
10 Neighbour
11 None of the above

First of all, I’d like you to think about anyone who lives here with you. In a typical week, how many hours of unpaid care do you receive from others living here?

RECORD NO. OF HOURS. ‘IF NONE, ENTER ‘0’

HSE
Receipt; Hours of care from non-household member 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

And in a typical week, how many hours of unpaid care do you receive from people who do not live in the same household as you?

RECORD NO. OF HOURS. ‘IF NONE, ENTER ‘0’

HSE
Receipt; Meals provided 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

In the last month, have you regularly had your main meals provided for you? EXPLAIN IF NECESSARY: Provided by someone who is not living here with you? INTERVIEWER: Don’t count meals eaten elsewhere.

1 Yes
2 No

HSE
Receipt; Who provided meals 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

Who provided your meals?
INTERVIEWER EXPLAIN IF NECESSARY: Meals on Wheels may be provided by the council or another organization

1 Meals on Wheels
2 Private frozen meal provider such as Wiltshire farm foods
3 Family/friend/neighbour brought me ready prepared meals
4 Other
5 None of these

HSE
Receipt; Attending lunch club 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

In the last month did you attend a lunch club run by the council or a voluntary body?

1 Used in the last month
2 Not used in the last month

HSE
Receipt; Attending day centre 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

And in the last month did you attend a Day Centre? Please include groups or classes run by a day centre but not necessarily held at the day centre building.

1 Used in the last month
2 Not used in the last month

HSE
Receipt; Disability Living Allowance– care component 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

Can I just check, do you or any of your household receive any of these listed on this card? Please only think about people aged 16+ in your household. Just tell me the number beside the rows that best appl

1 Attendance Allowance
2 Disability Living Allowance– care component
3 Disability Living Allowance – mobility component
4 Personal Independence Payment – daily living component
5 Personal Independence Payment – mobility component
6 None of these

HSE
Need; Ability to complete ADLs & IADLs 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

SHOW CARD C1
Thinking about getting in and out of bed on your own, please look at this card and tell me the option which best applies to you? Just tell me the number beside the row that best applies. INTERVIEWER: Do not include help from special aids or equipment such as wheelchairs or stair lifts.

Still looking at Showcard C1, what about…
(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Response scale for all ADLs/IADLs listed:
1 I can do this without help from anyone
2 I have difficulty doing this but manage on my own
3 I can only do this with help from someone
4 I cannot do this

HSE
Receipt; Help with ADLs & IADLs 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

Do you receive this help with because of long standing physical or mental ill- health, a disability or problems relating to old age?

1 Yes for some or all
2 No, none of this help is because long standing physical or mental ill-health, disability or
problems relating to old age

HSE
Receipt; Who helped with ADLs/IADLs 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

In the last month, who has helped you with (insert list of tasks in group)?
First, please tell me about all of the people from this list who have helped you? Please only think about help received because of long-term physical or mental ill-health, disability or problems relating to old age.

1 Husband/Wife/Partner
2 Son (including step son, adopted son or son in law)
3 Daughter (including step daughter, adopted daughter or daughter in law)
4 Grandchild (including Great Grandchildren)
5 Brother / Sister (including step / adopted / in laws)
6 Niece / Nephew
7 Mother /father (including mother-in-law/ father-in-law)
8 Other family member
9 Friend
10 Neighbour
11 None of the above

HSE
Receipt; Services which helped with ADLs/IADLs 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

Now, please tell me about all of the people from this list who have helped you with (insert list of tasks in group) in the last month?

Who was the other person that helped you?

Part 1:
1 Home care worker /home help/personal assistant
2 A member of the reablement / intermediate care staff team
3 Occupational Therapist / Physiotherapist
4 Voluntary helper
5 Warden / Sheltered housing manager
6 Cleaner
7 Council’s handyman
8 Other (please specify)
9 None of the above

Part 2:
Text: Maximum 100 characters

HSE
Receipt; Carer in household or not 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

You’ve told me that your helped you. Can I just check, does this person live in this household?

1 Yes
2 No

HSE
Receipt; Sex of carer 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

INTERVIEWER CODE OR ASK SEX OF PERSON WHO HELPS

1 Male
2 Female

HSE
Receipt; How many carers 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

You have told me that a home care worker/home help/personal assistant helped you in the last month. Do you have just one person helping you, or do you have more than one?

1 One
2 More than one

HSE
Receipt; What carers help with 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

Do they all help with the same kinds of things, or do you have different people helping with different things?

1 All help with same kind of things
2 Different people help with different things

HSE
Receipt; What carers help with 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. Thinking of the first home care worker/ home help/ personal assistant, what sort of thing do they help you with?

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

HSE
Receipt; What carer 2 helps with 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

Thinking of the second home care worker/ home help/ personal assistant, what sort of thing do they help you with?

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

HSE
Receipt; Additional carers 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

Are there any more home care workers, home helps or personal assistants who help you with different kinds of things?

1 Yes
2 No

HSE
Receipt; What carer 3 helps with 2021 16-120 16 120 Participant No Past month Health Survey for England, 2021 No

Thinking of the third home care worker/ home help/ personal assistant, what sort of thing do they help you with? CODE MAIN TASK

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

HSE
Receipt; Amount of hours of care received 2021 16-120 16 120 Participant No Past week Health Survey for England, 2021 No

Thinking about , in the last week how many hours have they helped you in person with these kinds of tasks?
(If person who cares for respondent lives in the household)
Please only think about the hours they were helping you with these kinds of tasks and not about the time they were around in the house or there to help you if you needed it]
[Add in alternate years] IF MORE THAN ONE PERSON IN CATEGORY (EG 2 DAUGHTERS), ASK ABOUT THE ONE THAT HELPS FOR THE MOST HOURS

INTERVIEWER EXPLAIN IF NECESSARY: not help over the phone or by internet or doing occasional errands or odd jobs without the respondent

1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

HSE
Receipt; Amount of hours of care received 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

How many hours does help you in a usual week?

1 Less than one hour
2 1-4 hours
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Receipt; Amount of hours of care received 2021 16-120 16 120 Participant No Past week Health Survey for England, 2021 No

Can you tell me whether in the last week your helped you in person with these tasks for:…

1 Less than 20 hours
2 20-34 hours
3 Or for 35 hours or more?

HSE
Receipt; How long care been received 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

How long have you been receiving any of the kinds of help we have been talking about? Would you say it is for less than a year, or one year or more?

1 Less than one year
2 One year or more

HSE
Receipt; Council assessment of care needs 2021 16-120 16 120 Participant No Past year Health Survey for England, 2021 No

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1 Yes
2 No

HSE
Receipt; Receipt of personal budget 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

This card describes a personal budget that your local authority may have allocated for you. Have you been given one of these?

Personal budget – When the local authority finds that you are eligible for support for your social care needs, your personal budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it.

1 Yes
2 No

HSE
Receipt; Value of personal budget 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

What is the value of your [Personal budget] per week or per month?

RECORD AMOUNT £:
1 Per week
2 Per month

HSE
Receipt; Direct payment of personal budget 2021 16-120 16 120 Participant No Current Health Survey for England, 2021 No

Are you taking any of your Personal Budget as a Direct Payment? IF YES, PROBE: Is that all or your Personal Budget or part of it?

CARD DESCRIPTION
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. (This should not be confused with benefits paid directly into a bank account which may also be called direct payments.)

1 Yes, all of personal budget as a Direct Payment
2 Yes, part of personal budget as Direct Payment
3 No, none of personal budget as direct payment
4 SPONTANEOUS: Not being paid my personal budget yet.

HSE
Receipt; Children in local authority care 2022 31-33 31 33 Participant No Current Next Steps Age 32 Sweep No

ASK IF HAVE BIOLOGICAL CHILDREN NOT CURRENTLY LIVING WITH COHORT MEMBER:
Who does {DCHILDNAM} live with now?

1. With other biological parent
2. With step parent
3. With adoptive parents
4. With other relatives
5. In local authority care
6. In foster care
7. In a hostel
8. Other
9. {IF CAPI/CATI: “SPONTANEOUS:”} Child has died

LSYPE 
Provision;Receipt; Giving or receiving care from family 2022 31-33 31 33 Participant No Current Next Steps Age 32 Sweep No

What is the main reason why you currently live in the same household as your {IF FF_H_REL=9-12 or
RELTOKEY=1-4 or NHRELTOKEY=1-4 parent(s)
IF_HH_REL=13 OR NHRELTOKEY=5: parent(s)-in-law}?

1. You would like to move into your own home but you cannot afford to
2. You do not wish to move into own home at the moment
3. Your parent(s) require(s) care
4. You require care
5. Another reason (please describe)

LSYPE 
Provision; Leaving employment to care 2022 31-33 31 33 Participant No Current Next Steps Age 32 Sweep No

What was the main reason you stopped that period of {DACTIVITY4} {IF DACTIVITY4 = 1, 2,11,12:
“with that employer”}?

1. My fixed term or temporary job ended
2. My contract changed (e.g. hours, job position)
3. I was made redundant
4. I was dismissed from a job
5. {IF FF_CMSEX =2} I left because I was pregnant
6. I left for health reasons
7. I left to care for family members
8. The firm closed down
9. I just decided to leave
10. For some other reason

LSYPE 
Provision; Unemployed to care 2022 31-33 31 33 Participant No Current Next Steps Age 32 Sweep No

Thinking about your current period of unemployment, how did you come to be unemployed?

1. I had a fixed term or temporary job that ended
2. I was made redundant
3. I was dismissed from a job
4. {IF FF_CMSEX=2} I left because I was pregnant
5. I left the job for health reasons
6. I left work to care for family members
7. The firm closed down or business failed
8. I just decided to leave
9. I have never worked
10. For some other reason

LSYPE 
Receipt; Time spent in care 2022 31-33 31 33 Participant No Entire life Next Steps Age 32 Sweep No

How much time did you spend {IF CHACE a=1: ‘in a children’s home’}{IF CHACE b=1: ‘in a foster family’}{IF CHACE c=1: ‘being looked after by your grandparents’}{IF CHACE g=1: ‘being homeless’} up to and including age 16?

1 Under three months
2 Three months, less than 6 months
3 Six months, less than 1 year
3 1 year, less than 2 years
4 2 years, less than 5 years
5 5 years, less than 10 years
6 10 years or more
Don’t know/ Can’t remember

LSYPE 
Provision; Not seeking work due to caring role 2022 31-33 31 33 Participant No Current Next Steps Age 32 Sweep No

There are many reasons why people may choose not to look for work. What is the main reason that you are not looking for work?

1. Lack of relevant qualifications
2. Lack of work experience
3. No jobs available that I am prepared to do
4. I don’t know how to look for work
5. Travelling to work is difficult
6. No jobs available with the right hours
7. I am in full-time education {IF in full-time education: ECONACT2=6}
8. I am on a training course
9. My family would lose benefits if I was earning
10. I am caring for an elderly or ill relative or friend
11. A health condition or disability prevents me
12. I prefer not to work
13. I prefer to be at home with the family rather than working
14. I prefer to look after my children myself {IF has children: DEPCHILD=1}
15. I cannot earn enough to pay for childcare {IF has children: DEPCHILD=1}
16. I cannot find suitable childcare {IF has children: DEPCHILD=1}
17. My child has a health condition or disability {IF has children: DEPCHILD=1}
18. I have a new baby {IF has children: DEPCHILD=1}

LSYPE 
Need; Illness affecting ADLs IADLs 2022 31-33 31 33 Participant No Current Next Steps Age 32 Sweep No

Do any of your conditions or illnesses reduce your ability to carry out day-to-day activities?

Day-to-day activities include things like washing and dressing yourself, household cleaning, cooking, travelling, shopping for essentials, walking, climbing stairs, remembering to pay bills, lifting objects, moderate manual tasks, gardening or gripping objects like cutlery and hearing or speaking in a noisy room.

1. Yes, a lot
2. Yes, a little
3. Not at all

LSYPE 
Provision; Providing care to others 2022 6-16 6 16 Participant No Current Wave 3 No

Does {if NickNameP=RESPONSE: “NicknameP”, else:”first_name”}”} look after, or give any regular help or support to family members, friends, neighbours or others because of either long-term physical ill-health, mental ill-health, disability; or problems related to old age?”

Yes
No

MHCYPS
Provision; Hours spent caring 2022 6-16 6 16 Participant No Current Wave 3 No

“How many hours a week, on average, does {first_name} spend doing this?”

1. Less than one hour
2. 1-4 hours
3. 5-9 hours
4. 10-19 hours
5. 20-34 hours
6. 35-49 hours
7. 50 hours or more

MHCYPS
Provision; Hours spent caring 2022 6-16 6 16 Participant No Current Wave 3 No

“Apart from anything you do as part of paid employment, do you look after, or give any regular help or support to family members, friends, neighbours or others because of either long-term physical ill-health, mental ill-health, disability; or problems related to old age?”

“How many hours a week, on average, do you spend doing this?””

Part 1:
1. Yes
2. No

Part 2:
1. Less than one hour
2. 1-4 hours
3. 5-9 hours
4. 10-19 hours
5. 20-34 hours
6. 35-49 hours
7. 50 hours or more

MHCYPS
Provision; Receipt of carer's allowance 2022 6-16 6 16 Participant No Current Wave 3 No

Which, if any, of the following types of payments are you {If CRLIVEPA [LAST ITERATION]=1: “or your partner”} currently receiving?

1. Jobseeker’s Allowance
2. Income Support
3. Sickness, disability or incapacity benefits (including Employment Support
Allowance)
4. Pension – including private pensions, State Retirement Pension or pension credit (including
guarantee credit, savings credit or housing credit).
5. Child Benefit
6. Tax credits – such as the Working Tax Credit, Disabled Person Tax Credit or Child Tax Credit
7. Any other family related benefit or payment
8. Housing Benefit – including direct payments to your landlord or Council Tax Reduction or
relief
9. Carer’s Allowance

MHCYPS
Receipt; Amount paid for care home 2021 50-120 50 120 Participant No Past two years Wave 10 main No

In total, roughly how much did you have to pay for nursing or residential care home fees [in the last two years/since last interview]? Do not include costs that were paid by │the NHS, your local authority or social services, but do include costs that were paid for on your behalf by friends or family, or by private insurance.

Costs in £

ELSA
Receipt; Use of additional care services 2021 50-120 50 120 Participant No Past three months Wave 10 main No

[^Have/Has] [^you/name] used any of the services listed on this card in the last three months?

01 Occupational therapist or physiotherapist
02 Chiropodist or podiatrist
03 Exercise classes including yoga, Pilates, gym
04 GP
05 Dentist
06 Routine healthcare checks
07 Community nurse
08 Counselling for depression or anxiety
09 Personal care
95 Other [please specify]
96 None of these

ELSA
Receipt; Delivered meal receipt 2021 50-120 50 120 Participant No Past month Wave 10 main No

In the last month [^have/has] [^you/name]…

01 Attended a lunch club
02 Attended a day care centre
03 Had meals on wheels
04 Had private frozen meals from a provider such as Wiltshire farm foods
05 Had family, friend or neighbour bring [^you/him/her] ready prepared meals
96 None of these

ELSA
Receipt; Lunch club attendance 2021 50-120 50 120 Participant No Current Wave 10 main No

How often [^do/does] [^you/[^Name]] attend a lunch club?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

ELSA
Receipt; Day centre attendance 2021 50-120 50 120 Participant No Current Wave 10 main No

How often [^do/does] [^you/name] attend a day care centre?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

ELSA
Receipt; Hours spent at day centre 2021 50-120 50 120 Participant No Current Wave 10 main No

Each time that [^you/name] [^have/has] attended the day centre, including attending classes or groups run by the day centre in the last month about how many hours did [^you/he/she] usually spend there? Was it…

1-3 hours
4-6 hours, or
more than 6 hours

ELSA
Receipt; How often meals on wheels used 2021 50-120 50 120 Participant No Current Wave 10 main No

How often [^do/does] [^you/name] eat a meal provided by Meals on Wheels?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

ELSA
Receipt; Use of council handyman 2021 50-120 50 120 Participant No Past three months Wave 10 main No

In the last three months, [^have/has] [^you/name] used or received the Local Authority/council’s Handy man’s service? This is usually a free service sometimes arranged through Age Concern or Help the Aged.

01 Yes
02 No

ELSA
Receipt; Use of assistive equipment 2021 50-120 50 120 Participant No Current Wave 10 main No

[^Do you / Does [^name]] use any of these?
Only include personal alarms used to call for assistance after falls etc.

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

ELSA
Receipt; Use of assistive equipment 2021 50-120 50 120 Participant No Current Wave 10 main No

You mentioned that [^you/name] [^have/has] the aids listed below:
[^ cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches >]. Can I check, did [^you/he/she] get any of these aids since [^]?

01 Yes
02 No

ELSA
Receipt; Replacement of assistive equipment 2021 50-120 50 120 Participant No Current Wave 10 main No

Can I check, did [^you/name] get [^this/these] [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches] since [^] INTERVIEWER: Please include any replacements.

01 Yes
02 No

ELSA
Receipt; Assistive equipment - who paid 2021 50-120 50 120 Participant No Current Wave 10 main No

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?

Health Service (NHS)
Social Services
[^You/Name] or [^your/his/her spouse/partner]
or someone else (please specify)?

ELSA
Receipt; Assistive equipment - who paid 2021 50-120 50 120 Participant No Current Wave 10 main No

Can I just check that [^the NHS/Social Services/ you/ your spouse or partner] covered all the costs of the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?

1 Yes covered all costs
2 No

ELSA
Provision; Providing unpaid care to others 2021 50-120 50 120 Participant No Past year Wave 10 main No

In the last 12 months, that is, since [^date one year ago], have you done any of these things, unpaid, for someone who was not a relative?

1 Keeping in touch with someone who has difficulty getting out and about (visiting in person,
telephoning or emailing)
2 Doing shopping, collecting pension or paying bills
3 Cooking, cleaning, laundry, gardening or other routine household jobs
4 Decorating or doing any kind of home or car repairs
5 Babysitting or caring for children
6 Sitting with or providing personal care (washing, dressing) for someone who is sick or
frail
7 Looking after a property or a pet for someone who is away
8 Writing letters or filling in forms
9 Representing someone (for example talking to a council department, or to a doctor) 10 Transporting or escorting someone (for example to a hospital or to an outing)

ELSA
Receipt; Hours of care received 2021 50-120 50 120 Participant No Past week Wave 10 main No

Can you tell me whether in the last week [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of
staff at the care/nursing home/ the other helper] helped [^you/[^name] with these tasks for:

Less than 20 hours,
in person
20-34 hours,
Or, for 35 hours or more?

ELSA
Receipt; Regularity of care received 2021 50-120 50 120 Participant No Current Wave 10 main No

Still thinking only about help received in person, how often does [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/the other helper] usually help [^you/[^name]]?

01 Every day
02 Four to six times a week
03 Two or three times a week
04 Once a week
05 Once a fortnight/ every two weeks
06 Once a month
07 Less than once a month

ELSA
Receipt; Regularity of care received 2021 50-120 50 120 Participant No Current Wave 10 main No

On the days [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helps [^you/[^name]], how many times a day does he/she usually help [^you/[^name]]?

01 once a day
02 twice a day
03 three or four times a day
04 all the time
05 whenever I need it?

ELSA
Receipt; Time of day care received 2021 50-120 50 120 Participant No Current Wave 10 main No

Still thinking about help received in person, when does [[^BLANK/your/his/her/] [^husband/wife/partner/son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] help [^you/[^name]]?

01 During the day time only, until [^you/[^name]] [^go/goes] to bed,
02 During the night time only, once [^you/[^name]] [^have/has] gone to bed,
03 Or both during the day time and at night after [^you/[^name]][^have/has] gone to bed?

ELSA
Receipt; Who manages care payments 2021 50-120 50 120 Participant No Current Wave 10 main No

[^Do/Does] [^you/[^name]] usually deal with paying for [^your/his/her] care or does a family member or friend manage this for [^you/[^name]]?

01 Deals with this all [^your/him/herself]
02 Deals with some of it but not all
03 Does not deal with this at all

ELSA
Receipt; Care - direct payments or managed by LA 2021 50-120 50 120 Participant No Current Wave 10 main No

Local authorities/council/social services offer different ways of arranging payment for people’s care. This card describes some of these ways. Please look at the card and tell me whether either of these apply for the care [^you/[^name]] receive(s)?

01 Direct payments
02 Local authority/council/social services manages the money
03 Neither of these

ELSA
Receipt; Whether participant has personal budget 2021 50-120 50 120 Participant No Current Wave 10 main No

[^Do/Does] [^you/[^name]] have a Personal Budget, sometimes known as an Individual Budget? This is when the local authority/ council/social services decides the amount or pot of money necessary to meet social care needs. [^You/He/She] can choose how to spend this money which can be used for a range of services, not just social care.

01 Yes, have Personal Budget/Individual budget
02 No, do not have Personal Budget/ Individual Budget

ELSA
Receipt; Whether participant had income assessment 2021 50-120 50 120 Participant No Current Wave 10 main No

Has the local authority/council made an assessment of what [^you/[^name]] can afford for any of [^your/his/her] care needs? This is sometimes called an income assessment or means testing. INTERVIEWER: EXPLAIN IF NECESSARY: This might have been when the local │authority/council was organising care services or arranging a Direct Payment for [^your/his/her] care.

01 Yes, had income assessment
02 No

ELSA
Receipt; How help was arranged 2021 50-120 50 120 Participant No Current Wave 10 main No

How was the help from [[^BLANK/your/his/her] [^home care worker/ home help/personal assistant/ member of the reablement / intermediate care staff team/ voluntary helper/ warden / sheltered housing manager/ cleaner/the council’s handyman/the member of staff from the care/nursing home/other helper] arranged? Please look at this card and tell me which option applies.

01 Arranged without involvement from the local authority, council or social services,
02 Local authority, council or social services arranged this help,
03 Local authority, council or social services told [^you/him/her] about the help but [^you/he/she] arranged it or [^your/his/her] family arranged it
04 Other

ELSA
Receipt; Who pays for care 2021 50-120 50 120 Participant No Current Wave 10 main No

[^Do/Does] [^you/[^name]] [^your/his/her partner] pay or give any money for the help given by [^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Please include any payments made for this care, even if not made directly to the care provider.

^Do not include gifts, treats or occasional payments of expenses such as petrol money or lunch (informal providers only).

01 Yes,
02 No,
03 Don’t know

ELSA
Receipt; How much paid for care 2021 50-120 50 120 Participant No Current Wave 10 main No

How much money [^do/does] [^you/[^name]] [^your/his/her partner] pay for the help given by [^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home
care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]. Please include any payments made for this care, even if not made directly to the care provider?

Amount and then…
01 per hour
02 per visit
03 per day
04 per week
05 per fortnight
06 per four weeks
07 per calendar month
08 per year

ELSA
Receipt; Do payments cover all of care 2021 50-120 50 120 Participant No Current Wave 10 main No

You said [^you/[^Name]] pay(s) [^amount] [^per hour/per visit/per day/per week/per fortnight/ per four weeks/per calendar month/ per year] for the care provided by [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]?
Does this payment cover all the cost of this help or some of the cost of this help? INTERVIEWER: EXPLAIN IF NECESSARY: the payment for [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper].

01 All
02 Some

ELSA
Receipt; Source of payments for care 2021 50-120 50 120 Participant No Current Wave 10 main No

How [^do/does] [^you/name] usually pay or give money to [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for helping [^you/him/her]?

01 Own personal income, savings, pension or benefit (such as Attendance Allowance),
02 Direct Payment/ Personal or Individual Budget from the Local Authority/ council/ Social Services,
03 From another source

ELSA
Receipt; Source of payments for care 2021 50-120 50 120 Participant No Current Wave 10 main No

And [^in addition to what] [^you/[name]] pay(s)), as far as you are aware does anyone else or any organisation pay or give money to [[^BLANK/your/his/her/] ^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for the care [^you/he/she] receive(s) – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

01 Yes, the local authority /council /social services,
02 Yes, a family member (with their own money),
03 Yes, other,
04 No, nobody else pays

ELSA
Receipt; How council payments made 2021 50-120 50 120 Participant No Current Wave 10 main No

And does the local authority, council or social services pay [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other /other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] directly or is it through a Direct Payment or a Personal Budget?

01 Local authority / social services or council pay directly,
02 Paid through Direct Payments / Personal or Individual Budgets

ELSA
Receipt; How much money used from council 2021 50-120 50 120 Participant No Current Wave 10 main No

How much money is [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] paid from the direct payment or personal budget for helping [^you/[name]]?

01 Per hour,
02 Per visit,
03 Per day,
04 Per week,
05 Per fortnight,
06 Per four weeks,
07 Per calendar month,
08 Per year

ELSA
Receipt; Why no payment made for care 2021 50-120 50 120 Participant No Current Wave 10 main No

You have told me that no payment was made for [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ brother/other brother / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helping [^you/[name]]. Why was this?

01 They provided their help for free/ there is no charge for the service,
02 Sometimes give them money or gifts for the help they give,
03 Other

ELSA
Receipt; Staying and/or living in care home 2021 50-120 50 120 Participant No Current Wave 10 main No

[^During the last two years/since your last interview] have you lived or stayed in a nursing home or residential care home?

01 Yes
02 No

ELSA
Receipt; Time spent in care home 2021 50-120 50 120 Participant No Current Wave 10 main No

[^Altogether/] how long did you stay in a nursing home or residential care home [^in the last two years/since last interview]? You can tell me your answer in days/nights, weeks or months.

01 Days/nights
02 Weeks
03 Months

ELSA
Receipt; Date started current stay in care home 2021 50-120 50 120 Participant No Current Wave 10 main No

When did you start your current stay in this home?

Enter year and month

ELSA
Provision; Providing care 2021 50-120 50 120 Participant No Past day Wave 10 Self-completion No

For the next set of questions, please think about the things you did yesterday and how you spent your time. For example, if you spent one and a half hours, write 1 in the hours box and 30 in the minutes boxes. If you spent only half an hour, write 0 in the hour box and 30 in the minute boxes.
How much time did you spend yesterday doing the following things?

Looking after someone – e.g. a sick or disabled relative, a grandchild, or someone else?

Hours/minutes
I did not do this yesterday

ELSA
Receipt; Receipt of carer's allowance 2021 50-120 50 120 Participant No Current Wave 10 Self-completion No

Which of these health or disability benefits [^are you / is [^name]] receiving at the moment?

One response option of the list is:
10 Carer’s Allowance

ELSA
Receipt; Help with ADLs & IADLs 2021 50-120 50 120 Participant No Past month Wave 10 main No

I have just asked about difficulties [^you/[^name]] may have with some activities. I’d │now like to ask about any help [^you/[^name]] [^have/has] received in the last month, │even if [^you/[^name]] [ ^do/does] not usually need any help.
│Please only think about help [^you/[^name]] [^have/has] received because of a physical, mental, emotional or memory problem.

[^Have/Has] [^you/[^name]] received help from anyone with walking 100 yards, in the │last month?

What about climbing several flights of stairs without resting?

What about dressing, including putting on shoes and socks?

What about walking across a room?

What about bathing or showering?

What about eating, such as cutting up food?

What about getting in or out of bed?

What about using the toilet, including getting up or down?

What about shopping for groceries?

What about taking medications?

What about doing work around the house or garden?

What about managing money, such as paying bills and keeping track of expenses?

Response scale for all data items:
Yes
No

ELSA
Receipt; No. of activities helped with 2021 50-120 50 120 Participant No Past month Wave 10 main No

Number of activities respondent has received help within the last month excluding j l m [response options] (shopping, housework, managing money)

Numerical value

ELSA
Receipt; Reason help needed 2021 50-120 50 120 Participant No Past month Wave 10 main No

[^Do/Does] [^you/[^name]] receive this help with [^shopping for groceries/doing work around the house or garden/managing money] because of a physical, mental, emotional or memory problem?:

01 Yes for some or all
02 No, none of this help is because of a physical, mental, emotional or memory problem

ELSA
Receipt; Who helps 2021 50-120 50 120 Participant No Past month Wave 10 main No

In the last month, who has helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/dressing/ bathing or showering/eating/ shopping for groceries/doing work around the house or garden/taking medications/managing money]? First, please tell me about all of the people from this list who have helped [^you/[^name]].
Please only think about help received because of a physical, mental, emotional or memory problem.

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 Friend
09 Neighbour
96 None of these

ELSA
Receipt; Help from professional services 2021 50-120 50 120 Participant No Past month Wave 10 main No

Now, please tell me about all of the people from this list who have helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/ dressing/ bathing or showering/eating/shopping for groceries/doing work around the house or garden/taking medications/managing money] in the last month?INTERVIEWER: PROBE – ‘Does anyone else help with these activities?’

01 Home care worker/ home help/ personal assistant
02 A member of the reablement / intermediate care staff team
03 Voluntary helper
04 Warden / Sheltered housing manager
05 Cleaner
06 Council’s handyman
07 Member of staff at the care/nursing home
95 Other – please specify
96 None of these

ELSA
Receipt; Care other than from family/friends 2021 50-120 50 120 Participant No Past two years Wave 10 main No

In the last two years [^have/has] [^you/[^name]] received care at home that was not provided by family or friends?

Yes
No

ELSA
Receipt; Payment for care 2021 50-120 50 120 Participant No Past two years Wave 10 main No

In the last two years [^have/has] [^you/[^name]] had to pay for care received at home that was not provided by family or friends?

Yes
No

ELSA
Receipt; Does help meet needs 2021 50-120 50 120 Participant No Current Wave 10 main No

Thinking about all the help [^you/he/she] receive(s), would you say that the help [^you/he/she] receive(s)…

01 …Meets [^your/his/her] needs all the time
02 usually meets [^your/his/her] needs,
03 sometimes meets [^your/his/her] needs
04 or, hardly ever meets [^your/his/her] needs?

ELSA
Receipt; Carer living in same household 2021 50-120 50 120 Participant No Current Wave 10 main No

You have told me that [^your/his/her] [^husband /wife /partner /son /other son/daughter /other daughter /grandchild /other grandchild /sister /other sister /brother/other brother /other relative/ friend/ other friend] helped [^you/[^name]]. Can I just check, does this person live in the same household as [^you/[^name]]?

Yes
No

ELSA
Receipt; Identifying carer 2021 50-120 50 120 Participant No Current Wave 10 main No

Please enter person number of the person who helps [^you/[^name]]?

Household Member 01 to 16 [previously identified]

ELSA
Receipt; Sex of carer 2021 50-120 50 120 Participant No Current Wave 10 main No

INTERVIEWER: CODE OR ASK SEX OF PERSON WHO HELPS

01 Male
02 Female

ELSA
Receipt; Additional carers 2021 50-120 50 120 Participant No Current Wave 10 main No

Did another [^son/ daughter/ grandchild/ sister/ brother/ other relative/ friend/neighbour] help [^you/ [^name]]?

Yes
No

ELSA
Receipt; Additional carers 2021 50-120 50 120 Participant No Past month Wave 10 main No

You have told me that a home care worker/home help/personal assistant helped │[^you/ [^name]] in the last month. [^Do/Does] [^you/ [^name]] have just one person helping [^you /him /her], or [^do/does] [^you/ [^name]] have more than one?

01 One,
02 More than one

ELSA
Receipt; Tasks multiple carers help with 2021 50-120 50 120 Participant No Current Wave 10 main No

Do they [carers] all help with the same kinds of things, or [^do/does] [^you/[^name]] have different people helping with different things?

01 All help with same kind of things,
02 Different people help with different things

ELSA
Receipt; Tasks multiple carers help with 2021 50-120 50 120 Participant No Current Wave 10 main No

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. ^EVERY OTHER TIME IN THE LOOP: BLANK] Thinking of the [^first/second/third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?

01 Getting up in the morning,
02 Going to bed,
03 Washing/ bathing/ personal care,
04 Meals/ eating,
05 Getting out of the house/ shopping,
06 Cleaning/ laundry,
07 Other

ELSA
Receipt; Additional carers 2021 50-120 50 120 Participant No Current Wave 10 main No

Are there any more home care workers, home helps or personal assistants who help [^you/[^name]] with different kinds of things?

01 Yes
02 No

ELSA
Receipt; Hours of care received 2021 50-120 50 120 Participant No Past week Wave 10 main No

Thinking about [^the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

Do not include occasional errands/odd jobs without the respondent such as picking up glasses or returning library books

Number of hours

ELSA
Receipt; Hours of care received 2021 50-120 50 120 Participant No Past week Wave 10 main No

Thinking about [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the ││council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?
[^BLANK/Please only think about the hours they were helping [^you/[^name]] with these kinds of tasks and not about the time they were around in the house or there to help [^you/[^name]] if [^you/he/she] needed it.

Do not include occasional errands/odd jobs without the respondent such as picking up glasses or returning library books

No help in the last week,
Less than one hour,
1-4 hours,
5-9 hours,
10-19 hours,
20-34 hours,
35-49 hours,
50-99 hours,
100 hours or more

ELSA
Provision; Caring preventing education 2021 16-120 16 120 Participant No Current Wave 13 No

How often do you have to miss school {if EDUCATIONALASPIRATIONS.EDTYPE = 1} / sixth form college {if EDUCATIONALASPIRATIONS.EDTYPE = 2} / further education college {if EDUCATIONALASPIRATIONS.EDTYPE = 3} to look after
[NAME(S)] ?

Never
Once a week or more often
Once or twice a month

UKHLS
Provision; Receipt of carer's allowance 2021 16-120 16 120 Participant No Current Wave 13 No

And aside from the types of income we’ve just asked about, are you currently receiving any of these types of payments ,either just yourself or jointly {if hhsize > 1 & (livesp = 1 or livewith = 1)} ? Please select all the answers that apply to you.

Amongst many other options the response scale lists:
Carer’s Allowance (formerly Invalid Care Allowance)

UKHLS
Provision; Young carer indicator 2021 10-15 10 15 Participant No Current Wave 13 - youth self-completion questionnaire No

Some people your age may have to look after other people. This could be a brother or sister, a relative or someone else who is disabled or sick. Is there anyone like this who lives here with you that you have to look after on a regular basis?

Yes – in this household
No

UKHLS
Provision; Young carer - who look after 2021 10-15 10 15 Participant No Current Wave 13 - youth self-completion questionnaire No

Who do you look after? (cross all that apply)

Mother/Father
Grandfather/mother
Brother/Sister
Another adult relative
Another adult who is not a relative
Another child relative
Another child who is not a relative

UKHLS
Provision; Young carer - hours per week 2021 10-15 10 15 Participant No Current Wave 13 - youth self-completion questionnaire No

About how many hours a week would you say that you usually spend looking after or doing things for them?

Please write in hours

UKHLS
Provision; Young carer - missing school to care 2021 10-15 10 15 Participant No Current Wave 13 - youth self-completion questionnaire No

How often do you have to miss school to do this?

Never
Once a week or more often
Once or twice a month

UKHLS
Receipt; Why no payment made for second provider. 2021 16-120 16 120 Participant No Current Wave 13 No

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

They provided their help for free/there is no charge for the service
Sometimes I give them money or gifts for the help they give me
Other

UKHLS
Receipt; Council assessments 2021 16-120 16 120 Participant No Current Wave 13 No

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

Yes
No

UKHLS
Receipt; Personal budget receipt 2021 16-120 16 120 Participant No Current Wave 13 No

Personal Budget – Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it.

This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Yes
No

UKHLS
Receipt; Value of personal budget 2021 16-120 16 120 Participant No Current Wave 13 No

What is the value of your Personal Budget?

What period does that cover?

Amount in £

Per week
Per calendar month
Per year

UKHLS
Receipt; Direct payment methods 2021 16-120 16 120 Participant No Current Wave 13 No

Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Yes, all of Personal Budget as Direct Payment
Yes, part of Personal Budget as Direct Payment
No, none of Personal Budget as Direct Payment
SPONTANEOUS: Not being paid my Personal Budget yet.

UKHLS
Receipt; Personal contributions to care amount 2021 16-120 16 120 Participant No Current Wave 13 No

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

UKHLS
Receipt; Topping up personal budget 2021 16-120 16 120 Participant No Current Wave 13 No

In addition to your user charges, do {if (UserChg > 0) & (UserChg <> (MIS|DK|REF))} / Do {if UserChg =0 | UserChg = (MIS|DK|REF)} you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

Yes
No

UKHLS
Receipt; Topping up personal budget - how much 2021 16-120 16 120 Participant No Current Wave 13 No

How much do you pay to top up your Personal Budget?

What period does that cover?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

UKHLS
Receipt; Receipt of council funded care 2021 16-120 16 120 Participant No Current Wave 13 No

Do you receive any care paid for by the council or the local authority?

Yes
No

UKHLS
Receipt; How much council pays for care 2021 16-120 16 120 Participant No Current Wave 13 No

How much does the council or local authority pay for your care?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

UKHLS
Receipt; Paying for care privately 2021 16-120 16 120 Participant No Current Wave 13 No

Apart from any care paid for by the local authority, do {if LACare = 1} / Do {if LACare <> 1} you pay for any care privately at the moment?

Yes
No

UKHLS
Receipt; Paying for care privately - how much 2021 16-120 16 120 Participant No Current Wave 13 No

How much do you pay for the care you purchase privately?

What period does that cover?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

UKHLS
Provision; Providing care to household members 2021 16-120 16 120 Participant No Current Wave 13 No

Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative, husband, wife or friend etc)?

Yes
No

UKHLS
Provision; Who participant cares for 2021 16-120 16 120 Participant No Current Wave 13 No

Who do you look after?

Identified care recipient

UKHLS
Provision; Providing care outside of households 2021 16-120 16 120 Participant No Current Wave 13 No

Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

Yes
No

UKHLS
Provision; How many people care for 2021 16-120 16 120 Participant No Current Wave 13 No

How many people do you care for?

Number of care recipients

UKHLS
Provision; Who cares for - person 1 2021 16-120 16 120 Participant No Current Wave 13 No

Who is the first person that you look after or help? (What is their relationship to you?)

Parent/parent-in-law
Grandparent
Aunt/uncle
Other relative
Friend or neighbour
Client(s) of voluntary organisation
Other

UKHLS
Provision; Who cares for - person 2 2021 16-120 16 120 Participant No Current Wave 13 No

Who is the second person that you look after or help? (What is their relationship to you?)

Parent/parent-in-law
Grandparent
Aunt/uncle
Other relative
Friend or neighbour
Client(s) of voluntary organisation
Other

UKHLS
Provision; Hours spent caring 2021 16-120 16 120 Participant No Current Wave 13 No

Now thinking about everyone who you look after or provide help for, both those living with you and not living with you – in total, how many hours do you spend each week looking after or helping them?

0 – 4 hours per week
5 – 9 hours per week
10 – 19 hours per week
20 – 34 hours per week
35 – 49 hours per week
50 – 99 hours per week
100 or more hours per week/continuous care
Varies under 20 hours
Varies 20 hours or more
Other

UKHLS
Provision; Caring preventing paid work 2021 16-120 16 120 Participant No Current Wave 13 No

Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [NAME(S)] prevent you from doing a paid job or as much paid work as you might like to do? Would you say you are…

Unable to work at all
Unable to do as much paid work as you might
Or this doesn’t prevent you from working?

UKHLS
Receipt; Hours of help per week 2021 16-120 16 120 Participant No Past week Wave 13 No

Can you tell me whether in the last week [HelpCode] helped you in person with these tasks for…

Less than 20 hours
20 – 34 hours
or for 35 hours or more?

UKHLS
Receipt; Paying for care 2021 16-120 16 120 Participant No Current Wave 13 No

Now a few questions about paying for the care you receive. Do you usually deal with paying for your care or does a family member or friend manage this for you?

Respondent deals with this all him/herself
Respondent knows about some of it but not all
Respondent does not deal with this at all

UKHLS
Receipt; Arranging payment for care 2021 16-120 16 120 Participant No Current Wave 13 No

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Which of these apply to care you receive?

Direct Payments where you get the money to spend on the support you choose
You tell the council how to spend the money
You let the council decide how to spend the money
None of these

UKHLS
Receipt; Council assessments 2021 16-120 16 120 Participant No Current Wave 13 No

Has the local authority or council made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing.

Yes, had an income assessment
No

UKHLS
Receipt; How help was arranged 2021 16-120 16 120 Participant No Current Wave 13 No

How was the help from [HelpCode] arranged?

Arranged without involvement from the local authority, council or social service
Local authority, council or social services arranged this help for me
Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me.
Other

UKHLS
Receipt; Payments for help given. 2021 16-120 16 120 Participant No Current Wave 13 No

Do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay or give any money for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

Yes
No

UKHLS
Receipt; Amount of money paid for help 2021 16-120 16 120 Participant No Current Wave 13 No

How much money do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

UKHLS
Receipt; Propertion of help payments cover 2021 16-120 16 120 Participant No Current Wave 13 No

Does this payment cover all the cost of this help or some of the cost of this help?

All
Some

UKHLS
Receipt; How payment for help is financed 2021 16-120 16 120 Participant No Current Wave 13 No

How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you?

My own personal income, savings, pension or benefit (such as Attendance Allowance)
My Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services
From another source

UKHLS
Receipt; Other organsations financing care 2021 16-120 16 120 Participant No Current Wave 13 No

And in addition to what you pay, as {if AnyPayA = 1} / As {if AnyPayA = 2|DK|REF} far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeA] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

Yes, the council, local authority, or social services
Yes, a family member with their own money
Yes, other
No, nobody else pays

UKHLS
Receipt; Direct payments or personal budgets 2021 16-120 16 120 Participant No Current Wave 13 No

And does the local authority, council or social services pay [SCPayCodeA] directly or is it through your Direct Payment or a Personal Budget?

Social services or council pay directly
Paid through Direct Payments, or Personal or Individual Budgets

UKHLS
Receipt; Direct payments or personal budgets - amount 2021 16-120 16 120 Participant No Current Wave 13 No

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

And what period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

UKHLS
Receipt; Why no payment made for help 2021 16-120 16 120 Participant No Current Wave 13 No

You have told me that no payment was made for [SCPayCodeA] helping you. Why was this?

They provided their help for free/there is no charge for the service
Sometimes I give them money or gifts for the help they give me
Other

UKHLS
Receipt; Payment for care by second provider. 2021 16-120 16 120 Participant No Current Wave 13 No

Do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay or give any money for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

Yes
No

UKHLS
Receipt; Amount paid for second care provider 2021 16-120 16 120 Participant No Current Wave 13 No

How much money do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

UKHLS
Receipt; Propertion of help payments cover 2021 16-120 16 120 Participant No Current Wave 13 No

Does this payment cover all the cost of this help or some of the cost of this help?

All
Some

UKHLS
Receipt; How payment conducted for second provider 2021 16-120 16 120 Participant No Current Wave 13 No

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

My own personal income, savings, pension or benefit (such as Attendance Allowance)
My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
From another source

UKHLS
Receipt; Other organsations financing second provider 2021 16-120 16 120 Participant No Current Wave 13 No

And in addition to what you pay, as {if AnyPayB = 1} / As {if AnyPayB = 2|DK|REF} far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeB] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

Yes, the council, local authority, or social services
Yes, a family member with their own money
Yes, other
No, nobody else pays

UKHLS
Receipt; How second provider paid. 2021 16-120 16 120 Participant No Current Wave 13 No

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

Social services or council pay directly
Paid through Direct Payments, or Personal or Individual Budgets

UKHLS
Receipt; Direct payment / personal budget second provider 2021 16-120 16 120 Participant No Current Wave 13 No

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

UKHLS
Receipt; ADL - Help climbing stairs 2021 16-120 16 120 Participant No Current Wave 13 No

The next few questions are about tasks that some people may need help with and about help that you may have received in the last month. Please think only about help you need because of long-term physical or mental ill-health, disability or problems relating to old age. For each task, I’d like you to tell me which option applies to you.
Do you usually manage to get up and down stairs or steps…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADL - help moving around house 2021 16-120 16 120 Participant No Current Wave 13 No

Do you usually manage to get around the house (except for any stairs)…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADL - help getting in and out of bed 2021 16-120 16 120 Participant No Current Wave 13 No

Do you usually manage to get in and out of bed…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADL - help getting in and out of bed 2021 16-120 16 120 Participant No Current Wave 13 No

Do you usually manage to cut your toenails…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADL - help bathing 2021 16-120 16 120 Participant No Current Wave 13 No

Do you usually manage to bath, shower or wash all over…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADL - help walking down road 2021 16-120 16 120 Participant No Current Wave 13 No

Do you usually manage to go out of doors and walk down the road…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADL - help using toilet 2021 16-120 16 120 Participant No Current Wave 13 No

Do you manage to use the toilet, including getting up and down…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADL - help eating 2021 16-120 16 120 Participant No Current Wave 13 No

Do you manage to eat, including cutting up food…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADL - help washing face and hands 2021 16-120 16 120 Participant No Current Wave 13 No

Do you manage to wash your face and hands…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADL - help dressing 2021 16-120 16 120 Participant No Current Wave 13 No

Do you manage to dress or undress, including putting on shoes and socks…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADL - help taking medicine 2021 16-120 16 120 Participant No Current Wave 13 No

Do you manage to take the right amount of medicine at the right times…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; IADL - help shopping for food 2021 16-120 16 120 Participant No Current Wave 13 No

Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; IADL - help with housework or laundry 2021 16-120 16 120 Participant No Current Wave 13 No

Do you manage to do routine housework or laundry…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

UKHLS
Receipt; ADLs - who helps 2021 16-120 16 120 Participant No Past month Wave 13 No

In the last month, who has helped you with personal things around the home including getting up and down stairs or steps {if ADLA = 2|3} / getting around the house (except for any stairs) {if ADLB = 2|3} / getting in and out of bed {if ADLC = 2|3} / cutting your toenails {if ADLD = 2|3} / bathing, showering or washing all over {if ADLE = 2|3} / using the toilet, including getting up and down {if ADLG = 2|3} / eating, including cutting up food {if ADLH = 2|3} / washing your face and hands {if ADLI = 2|3} / dressing and undressing, including putting on shoes and socks {if ADLJ = 2|3} / taking the right amount of medicine at the right times {if ADLK = 2|3}?

“Please only think about help received because of long-term physical or mental ill-health, disability or problems relating to old age”

Husband / Wife / Partner
Son (including stepson, adopted son or son-in-law)
Daughter (including stepdaughter, adopted daughter or daughter- in-law)
Grandchild (including great grandchildren)
Brother / Sister (including step/adopted/in-laws)
Niece / Nephew
Mother / Father (including mother-in-law/father-in-law)
Other family member
Friend
Neighbour
None of the above

UKHLS
Receipt; Living with carer 2021 16-120 16 120 Participant No Current Wave 13 No

You’ve told me that your [HlpInfA] helped you. Can we just check, does he/she live here with you? If so, who is it?

Identified helper

UKHLS
Receipt; ADLs - professional carers 2021 16-120 16 120 Participant No Current Wave 13 No

And, which of these people helped you with personal things around the home including getting up and down stairs or steps {if ADLA = 2|3} / getting around the house (except for any stairs) {if ADLB = 2|3} / getting in and out of bed {if ADLC = 2|3} / cutting your toenails {if ADLD = 2|3} / bathing, showering or washing all over {if ADLE = 2|3} / using the toilet, including getting up and down {if ADLG = 2|3} / eating, including cutting up food {if ADLH = 2|3} / washing your face and hands {if ADLI = 2|3} / dressing and undressing, including putting on shoes and socks {if ADLJ = 2|3} / taking the right amount of medicine at the right times {if ADLK = 2|3} , in the last month?

Home care worker / Home help / Personal Assistant
A member of the reablement / intermediate care staff team
Occupational Therapist / Physiotherapist / Nurse
Voluntary helper
Warden / Sheltered housing manager
Cleaner
Council’s handyman
Other
None of the above

UKHLS
Receipt; IADLs-who helps 2021 16-120 16 120 Participant No Past month Wave 13 No

In the last month, who has helped you to go outdoors and walk down the road {if ADLF = 2|3} / shop for food, including getting to the shops, choosing items, carrying items home and unpacking them {if ADLL = 2|3} / to do routine housework {if ADLM = 2|3} / to do paperwork or pay bills {if ADLN = 2|3}?

Son (including stepson, adopted son or son-in-law)
Daughter (including stepdaughter, adopted daughter or daughter- in-law)
Grandchild (including great grandchildren)
Brother / Sister (including step/adopted/in-laws)
Niece / Nephew
Mother / Father (including mother-in-law/father-in-law)
Other family member
Friend
Neighbour
None of the above

UKHLS
Receipt; Living with carer 2021 16-120 16 120 Participant No Current Wave 13 No

You’ve told me that your [HlpInfB] helped you. Can I just check, does he/she live here with you? If so, who is it?

Identified helper

UKHLS
Receipt; IADLs Help from professional carers 2021 16-120 16 120 Participant No Current Wave 13 No

And, which of these people helped you to go outdoors and walk down the road {if ADLF = 2|3} / shop for food, including getting to the shops,

Home care worker / Home help / Personal Assistant
A member of the reablement / intermediate care staff team
Occupational Therapist / Physiotherapist / Nurse
Voluntary helper
Warden / Sheltered housing manager
Cleaner
Council’s handyman
Other
None of the above

UKHLS
Receipt; Hours of help per week 2021 16-120 16 120 Participant No Past week Wave 13 No

Thinking about [HelpCode], in the last week, how many hours have they helped you in person with these kinds of tasks? Please only think about the hours they were helping you with these kinds of tasks and not about the time they were around the house or there to help if you needed it. {if HelpCode = 1 thru 10} / If home care worker/personal assistant/other care staff ‘lives in’/’sleeps in’, INCLUDE ALL hours they are on duty. {if HelpCode = 11}

“Not help over the phone or by internet or doing occasional errands or odd jobs without the respondent.”

No help in the last week
Less than one hour
1 – 4 hours
5 – 9 hours
10 – 19 hours
20 – 34 hours
35 – 49 hours
50 – 99 hours
100 hours or more

UKHLS
Receipt; Community - help from others 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Do you receive any practical help on a regular basis from your husband/wife, partner, friends, neighbours or family members?

Yes, from someone living in my care home
Yes, from someone living outside my care home
No

ASCS
Receipt; Community - buying additional services 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Do you buy any additional care or support privately or pay more to ‘top up’ your care and support?

Yes, I buy some more care and support with my own money
Yes, my family pays for some more care and support for me
No

ASCS
Receipt; Community - help completing questionnaire 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Did you have any help from someone else to complete this questionnaire?

No, I did not have help
I had help from a care worker
I had help from someone living in my care home
I had help from someone living outside my care home

ASCS
Receipt; Community - type of help 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

What type of help did you have?

Someone else read the questions to me
Someone else translated the questions for me
Someone else wrote down the answers for me
I talked through the questions with someone else
Someone answered for me, without asking me the questions

ASCS
Receipt; Community - other comments about care 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Please use the space provided below to describe any other experiences you would like to tell us about, or to write any other comments you would like to make?

Open response

ASCS
Receipt; Community - nourishment 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Thinking about the food and drink you get, which of the following statements best describes your situation?

I get all the food and drink I like when I want
I get adequate food and drink at OK times
I don’t always get adequate or timely food and drink
I don’t always get adequate or timely food and drink, and I think there is a risk to my health

ASCS
Receipt; Community - help with nourishment 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
5b. Do care and support services help you to get food and drink?

I do not need care and support services to help me get food and drink
Yes
No

ASCS
Receipt; Community - cleanliness of home 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Which of the following statements best describes how clean and comfortable your care home is?

My care home is as clean and comfortable as I want
My care home is adequately clean and comfortable
My care home is not quite clean or comfortable enough
My care home is not at all clean or comfortable

ASCS
Receipt; Community - help cleanliness home 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
6b. Do care and support services help you in keeping your care home clean and comfortable?

I do not need care and support services to help me keep my home clean and comfortable
Yes
No

ASCS
Receipt; Community - feeling safe 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Which of the following statements best describes how safe you feel?
By ‘feeling safe’ we mean how safe you feel both inside and outside the home. This includes fear of abuse, falling or other physical harm.

If you have said you don’t feel safe, can you please tell us why?

Part 1:
I feel as safe as I want
Generally I feel adequately safe, but not as safe as I would like
I feel less than adequately safe
I don’t feel at all safe

Part 2:
Open response

ASCS
Receipt; Community - help feeling safe 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Do care and support services help you in feeling safe?

Yes
No

ASCS
Receipt; Community - social situation 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Thinking about how much contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have adequate social contact with people
I have some social contact with people, but not enough
I have little social contact with people and feel socially isolated

ASCS
Receipt; Community - help social contact 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
8b. Do care and support services help you in having social contact with people?

I do not need care and support services to help me have social contact with people
Yes
No

ASCS
Receipt; Community - how spend time 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Which of the following statements best describes how you spend your time?
When you are thinking about how you spend your time, please include anything you value or enjoy including leisure activities, formal employment, voluntary or unpaid work and caring for others.

I’m able to spend my time as I want, doing things I value or enjoy
I’m able to do enough of the things I value or enjoy with my time
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

ASCS
Receipt; Community - help spending time well 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
9b. Do care and support services help you in the way you spend your time?

I do not need care and support services to help me in the way I spend my time
Yes
No

ASCS
Receipt; Community - helping with self esteem 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Which of these statements best describes how having help to do things makes you think and feel about yourself?

Having help makes me think and feel better about myself
Having help does not affect the way I think or feel about myself
Having help sometimes undermines the way I think and feel about myself
Having help completely undermines the way I think and feel about myself

ASCS
Receipt; Community - help with self-esteem 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Which of these statements best describes how the way you are helped and treated makes you think and feel about yourself?

The way I’m helped and treated makes me think and feel better about myself
The way I’m helped and treated does not affect the way I think or feel about myself
The way I’m helped and treated sometimes undermines the way I think and feel about myself
The way I’m helped and treated completely undermines the way I think and feel about myself

ASCS
Receipt; Community - feeling lonely 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

How often do you feel lonely?

Often or always
Some of the time
Occasionally
Hardly ever
Never

ASCS
Receipt; Community - finding information 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

In the past year, have you generally found it easy or difficult to find information and advice about support, services or benefits?

Please include information from different sources, such as voluntary organisations, and private agencies as well as [Social Services].

If you found it difficult to find information and advice, please tell us why and what we can do to make it easier for you

Part 1:
I’ve never tried to find information or advice
Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find

Part 2:

ASCS
Receipt; Community - general health 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

How is your health in general?

Very good
Good
Fair
Bad
Very bad

ASCS
Receipt; Community - pain, discomfort, anxiety, depression. 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

By placing a tick in one box in each group below, please indicate which statements best describe your own health state today.

a. Pain or discomfort
b. Anxiety or depression

Responses for a:
I have no pain or discomfort
I have moderate pain or discomfort
I have extreme pain or discomfort

Responses for b:

ASCS
Receipt; Community - ADLs 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Please place a tick () in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to get around indoors (except steps) by yourself?

b. Do you usually manage to get in and out of a bed (or chair) by yourself?

c. Do you usually manage to feed yourself?

d. Do you usually deal with finances and paperwork – for example, paying bills, writing letters – by yourself?

Repeated response scale for all categories:
I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

ASCS
Receipt; Community - help with ADLs 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Please place a tick () in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to wash all over by yourself, using either a bath or shower?

b. Do you usually manage to get dressed and undressed by yourself?

c. Do you usually manage to use the WC/toilet by yourself?

d. Do you usually manage to wash your face and hands by yourself?

Repeated response scale for all categories:
I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

ASCS
Receipt; Community - care home helping with needs 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

How well do you think your care home is designed to meet your needs?

My care home meets my needs very well
My care home meets most of my needs
My care home meets some of my needs
My care home is totally inappropriate for my needs

ASCS
Receipt; Community - getting around outside care home 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Thinking about getting around outside of your care home, which of the following statements best describes your present situation?

I can get to all the places in my local area that I want
At times I find it difficult to get to all the places in my local area that I want
I am unable to get to all the places in my local area that I want
I do not leave my care home

ASCS
Receipt; Residential - finding information 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

In the past year, have you generally found it easy or difficult to find information and advice about support, services or benefits?

Please include information from different sources, such as voluntary organisations, and private agencies as well as [Social Services].

If you found it difficult to find information and advice, please tell us why and what we can do to make it easier for you

Part 1:
I’ve never tried to find information or advice
Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find

Part 2:

ASCS
Receipt; Residential - general health 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

How is your health in general?

Very good
Good
Fair
Bad
Very bad

ASCS
Receipt; Residential - pain, discomfort, anxiety, depression. 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

By placing a tick in one box in each group below, please indicate which statements best describe your own health state today.

a. Pain or discomfort
b. Anxiety or depression

Responses for a:
I have no pain or discomfort
I have moderate pain or discomfort
I have extreme pain or discomfort

Responses for b:

ASCS
Receipt; Residential - ADLs 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Please place a tick () in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to get around indoors (except steps) by yourself?

b. Do you usually manage to get in and out of a bed (or chair) by yourself?

c. Do you usually manage to feed yourself?

d. Do you usually deal with finances and paperwork – for example, paying bills, writing letters – by yourself?

Repeated response scale for all categories:
I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

ASCS
Receipt; Residential - help with ADLs 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Please place a tick () in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to wash all over by yourself, using either a bath or shower?

b. Do you usually manage to get dressed and undressed by yourself?

c. Do you usually manage to use the WC/toilet by yourself?

d. Do you usually manage to wash your face and hands by yourself?

Repeated response scale for all categories:
I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

ASCS
Receipt; Residential - care home helping with needs 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

How well do you think your care home is designed to meet your needs?

My care home meets my needs very well
My care home meets most of my needs
My care home meets some of my needs
My care home is totally inappropriate for my needs

ASCS
Receipt; Residential - getting around outside care home 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Thinking about getting around outside of your care home, which of the following statements best describes your present situation?

I can get to all the places in my local area that I want
At times I find it difficult to get to all the places in my local area that I want
I am unable to get to all the places in my local area that I want
I do not leave my care home

ASCS
Receipt; Residential - help from others 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Do you receive any practical help on a regular basis from your husband/wife, partner, friends, neighbours or family members?

Yes, from someone living in my care home
Yes, from someone living outside my care home
No

ASCS
Receipt; Residential - buying additional services 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Do you buy any additional care or support privately or pay more to ‘top up’ your care and support?

Yes, I buy some more care and support with my own money
Yes, my family pays for some more care and support for me
No

ASCS
Receipt; Residential - help completing questionnaire 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Did you have any help from someone else to complete this questionnaire?

No, I did not have help
I had help from a care worker
I had help from someone living in my care home
I had help from someone living outside my care home

ASCS
Receipt; Residential - type of help 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

What type of help did you have?

Someone else read the questions to me
Someone else translated the questions for me
Someone else wrote down the answers for me
I talked through the questions with someone else
Someone answered for me, without asking me the questions

ASCS
Receipt; Residential - other comments about care 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Please use the space provided below to describe any other experiences you would like to tell us about, or to write any other comments you would like to make?

Open response

ASCS
Receipt; Community - level of satisfaction with care 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Overall, how satisfied or dissatisfied are you with the care and support services you receive?

I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

ASCS
Receipt; Community - quality of life 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Thinking about the good and bad things that make up your quality of life, how would you rate the quality of your life as a whole?

So good, it could not be better
Very good
Good
Alright
Bad
Very bad
So bad, it could not be worse

ASCS
Receipt; Community - help and support services 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Do care and support services help you to have a better quality of life?

Yes
No

ASCS
Receipt; Community - choice about care received 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Which of the following statements best describes how much choice you have over the care and support services you receive?

By ‘choice’ we mean being able to choose from a range of care providers and services and make changes as and when required

I do have enough choice over care and support services
I don’t have enough choice over care and support services
I don’t want or need choice about care and support services

ASCS
Receipt; Community - control over daily life 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Which of the following statements best describes how much control you have over your daily life?

I have as much control over my daily life as I want
I have adequate control over my daily life
I have some control over my daily life but not enough
I have no control over my daily life

ASCS
Receipt; Community - help control over daily life 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Do care and support services help you in having control over your daily life?

I do not need care and support services to help me have control over my daily life
Yes
No

ASCS
Receipt; Community - keeping clean & presentable 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

Thinking about keeping clean and presentable in appearance, which of the following statements best describes your situation?

I feel clean and am able to present myself the way I like
I feel adequately clean and presentable
I feel less than adequately clean or presentable
I don’t feel at all clean or presentable

ASCS
Receipt; Community - help keeping clean & presentable 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - community No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
4b. Do care and support services help you in keeping clean and presentable in appearance?

I do not need care and support services to help me keep clean and presentable
Yes
No

ASCS
Receipt; Residential - level of satisfaction with care 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Overall, how satisfied or dissatisfied are you with the care and support services you receive?

I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

ASCS
Receipt; Residential - quality of life 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Thinking about the good and bad things that make up your quality of life, how would you rate the quality of your life as a whole?

So good, it could not be better
Very good
Good
Alright
Bad
Very bad
So bad, it could not be worse

ASCS
Receipt; Residential - help and support services 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Do care and support services help you to have a better quality of life?

Yes
No

ASCS
Receipt; Residential - control over daily life 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Which of the following statements best describes how much control you have over your daily life?

I have as much control over my daily life as I want
I have adequate control over my daily life
I have some control over my daily life but not enough
I have no control over my daily life

ASCS
Receipt; Residential - help control over daily life 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Do care and support services help you in having control over your daily life?

I do not need care and support services to help me have control over my daily life
Yes
No

ASCS
Receipt; Residential - keeping clean & presentable 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Thinking about keeping clean and presentable in appearance, which of the following statements best describes your situation?

I feel clean and am able to present myself the way I like
I feel adequately clean and presentable
I feel less than adequately clean or presentable
I don’t feel at all clean or presentable

ASCS
Receipt; Residential - help keeping clean & presentable 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
4b. Do care and support services help you in keeping clean and presentable in appearance?

I do not need care and support services to help me keep clean and presentable
Yes
No

ASCS
Receipt; Residential - nourishment 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Thinking about the food and drink you get, which of the following statements best describes your situation?

I get all the food and drink I like when I want
I get adequate food and drink at OK times
I don’t always get adequate or timely food and drink
I don’t always get adequate or timely food and drink, and I think there is a risk to my health

ASCS
Receipt; Residential - help with nourishment 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
5b. Do care and support services help you to get food and drink?

I do not need care and support services to help me get food and drink
Yes
No

ASCS
Receipt; Residential - cleanliness of home 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Which of the following statements best describes how clean and comfortable your care home is?

My care home is as clean and comfortable as I want
My care home is adequately clean and comfortable
My care home is not quite clean or comfortable enough
My care home is not at all clean or comfortable

ASCS
Receipt; Residential - help cleanliness home 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
6b. Do care and support services help you in keeping your care home clean and comfortable?

I do not need care and support services to help me keep my home clean and comfortable
Yes
No

ASCS
Receipt; Residential - feeling safe 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Which of the following statements best describes how safe you feel?
By ‘feeling safe’ we mean how safe you feel both inside and outside the home. This includes fear of abuse, falling or other physical harm.

If you have said you don’t feel safe, can you please tell us why?

Part 1:
I feel as safe as I want
Generally I feel adequately safe, but not as safe as I would like
I feel less than adequately safe
I don’t feel at all safe

Part 2:
Open response

ASCS
Receipt; Residential - help feeling safe 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Do care and support services help you in feeling safe?

Yes
No

ASCS
Receipt; Residential - social situation 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Thinking about how much contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have adequate social contact with people
I have some social contact with people, but not enough
I have little social contact with people and feel socially isolated

ASCS
Receipt; Residential - help social contact 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
8b. Do care and support services help you in having social contact with people?

I do not need care and support services to help me have social contact with people
Yes
No

ASCS
Receipt; Residential - how spend time 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Which of the following statements best describes how you spend your time?
When you are thinking about how you spend your time, please include anything you value or enjoy including leisure activities, formal employment, voluntary or unpaid work and caring for others.

I’m able to spend my time as I want, doing things I value or enjoy
I’m able to do enough of the things I value or enjoy with my time
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

ASCS
Receipt; Residential - help spending time well 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS England.
9b. Do care and support services help you in the way you spend your time?

I do not need care and support services to help me in the way I spend my time
Yes
No

ASCS
Receipt; Residential - helping with self-esteem 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Which of these statements best describes how having help to do things makes you think and feel about yourself?

Having help makes me think and feel better about myself
Having help does not affect the way I think or feel about myself
Having help sometimes undermines the way I think and feel about myself
Having help completely undermines the way I think and feel about myself

ASCS
Receipt; Residential - help with self-esteem 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

Which of these statements best describes how the way you are helped and treated makes you think and feel about yourself?

The way I’m helped and treated makes me think and feel better about myself
The way I’m helped and treated does not affect the way I think or feel about myself
The way I’m helped and treated sometimes undermines the way I think and feel about myself
The way I’m helped and treated completely undermines the way I think and feel about myself

ASCS
Receipt; Residential - feeling lonely 2023 18-120 18 120 Participant No Current ASCS 2023-24 Questions - residential and nursing care No

How often do you feel lonely?

Often or always
Some of the time
Occasionally
Hardly ever
Never

ASCS
Provision; Reason stopped work during COVID-19 pandemic 2020 50-120 50 120 Participant No Pre COVID-19 pandemic NICOLA Wave 2 COVID-19 Questionnaire No

Why did you stop working between the start of the coronavirus outbreak and now?

I was advised to self-isolate
I need to care for others (children or adults)
My employer or business closed
I was worried about my health
I was laid off
I was planning to retire around now anyway
Other reason, please specify:

NICOLA
Provision; Caring responsibilities pre-COVID-19 pandemic 2020 50-120 50 120 Participant No Pre COVID-19 pandemic NICOLA Wave 2 COVID-19 Questionnaire No

Just before the coronavirus outbreak began at the end of February 2020, did you look after anyone once a week or more? This could be your partner or other people in your household or someone in another household.

Yes
No

NICOLA
Provision; Care recipient in household pre-COVID-19 pandemic 2020 50-120 50 120 Participant No Pre COVID-19 pandemic NICOLA Wave 2 COVID-19 Questionnaire No

If yes, did the person (or people) you cared for before the coronavirus outbreak live with you or in another household?

Lived in my household
Lived in another household

NICOLA
Provision; Change in amount of caring post-COVID-19 pandemic 2020 50-120 50 120 Participant No Post COVID-19 pandemic NICOLA Wave 2 COVID-19 Questionnaire No

If yes, has the amount of care you provide for this person/people in your household changed since the coronavirus outbreak?

It has increased
It has stopped
It has decreased
It has stayed the same

NICOLA
Provision; Change in caring outside of household post-COVID-19 pandemic 2020 50-120 50 120 Participant No Post COVID-19 pandemic NICOLA Wave 2 COVID-19 Questionnaire No

Has the amount of care you provide for people outside your household changed since the coronavirus outbreak?

It has increased
It has stopped
It has decreased
It has stayed the same

NICOLA
Provision; New caring role post-COVID-19 pandemic 2020 50-120 50 120 Participant No Post COVID-19 pandemic NICOLA Wave 2 COVID-19 Questionnaire No

Do you provide help for someone outside of your household who you hadn’t previously due to the coronavirus outbreak?

Yes
No

NICOLA
Provision; Caring due to COVID-19 pandemic 2020 50-120 50 120 Participant No Post COVID-19 pandemic NICOLA Wave 2 COVID-19 Questionnaire No

How often have you looked after someone in the past week due to the coronavirus outbreak?

Every day
4 – 5 days per week
2 – 3 days per week
1 day per week
Less often (I did it only once, it was not regular)
Not applicable

NICOLA
Receipt; Receipt of care at home 2020 50-120 50 120 Participant No Past month NICOLA Wave 2 COVID-19 Questionnaire No

Over the past month have you received care at home?

Yes, formal (paid, provided from an agency)
Yes, informal (friend or relative)
No

NICOLA
Receipt; Amount of care received post-COVID-19 pandemic 2020 50-120 50 120 Participant No Post COVID-19 pandemic NICOLA Wave 2 COVID-19 Questionnaire No

Since the coronavirus outbreak started is the amount of care you receive…..

Less than it was
About the same
More than it was
I no longer receive help

NICOLA
Receipt; Care needs met post-COVID-19 pandemic 2020 50-120 50 120 Participant No Post COVID-19 pandemic NICOLA Wave 2 COVID-19 Questionnaire No

Since the coronavirus outbreak started have your care needs been met…

All of the time
Most of the time
Some of the time
Hardly ever

NICOLA
Receipt; Receipt of carers allowance post-COVID-19 pandemic 2020 50-120 50 120 Participant No Post COVID-19 pandemic NICOLA Wave 2 COVID-19 Questionnaire No

Have you made a new claim for any of the following benefits since the start of the coronavirus outbreak (whether or not you have started receiving payments yet)?

Universal Credit
Employment and Support Allowance
Housing Benefit
Personal independence payment (formerly called Disability Living Allowance)
Support for Mortgage Interest (formerly called Help for housing costs)
Widowed parents allowance
Carers allowance or attendance allowance
Job Seeker’s Allowance
Pension Credit
Rates support or reduction
Lone Pensioner Allowance
Statutory Sick Pay
Bereavement allowance (formerly called Widow’s Pension)
None

NICOLA
Provision; Whether care for someone with disability 2017 50-120 50 120 Participant No Current SELF-COMPLETION QUESTIONNAIREWAVE 2 No

Do you care for someone with a disability?

Yes
No

NICOLA
Provision; Detail about person cared for 2017 50-120 50 120 Participant No Current SELF-COMPLETION QUESTIONNAIREWAVE 2 No

Please provide detail of the person you care for in the space below, for example their relationship to you, their age(s), the disability / disabilities they have in the space below.

Open text response

NICOLA
Provision; Caring since start of pandemic 2021 28-30 28 30 Participant No Since pandemic Life @ 29+ No

Since the start of the pandemic:
B35) You took on a caring role

Yes, it affected me alot
Yes, moderately affected
Yes, mildly affected
Yes, but did not affect me at all
No did not happen at all

ALSPAC
Provision; Caring in past year 2021 28-30 28 30 Participant No Past year Life @ 29+ No

In the past year how often have you done the following; whether at work, for a family member or friend, as a volunteer or as a hobby?

d. Nursing or caring

Every day
Most days
About once a week
Less than once a week
Not at all

ALSPAC
Provision; Full or part-time carer 2021 28-30 28 30 Participant No Current Life @ 29+ No

Are you currently: Please cross one circle on each line.

A full/part-time carer

Yes
No

ALSPAC
Provision; Caring since start of pandemic 2021 28-30 28 30 Participant No Since pandemic Parents Questionnaire 2022 No

Since the start of the pandemic:
B35) You took on a caring role

Yes, it affected me alot
Yes, moderately affected
Yes, mildly affected
Yes, but did not affect me at all
No did not happen at all

ALSPAC
Receipt; Receipt of carer's allowance 2007 16-120 16 120 Parent No Current Born in Bradford Mothers’ Baseline Questionnaire No
Can you tell me which of these credits/allowances/benefits you and your
husband/partner receive?
(Please cross ALL that apply)
Child Benefit
Child Tax Credit
Working Tax Credit(Formerly Working Family Tax Credit and Disabled Person’s Tax Credit)
Income Support
Disability Living Allowance (including Disabled Person’s Tax Credit)
Income tested Job Seekers Allowance (Unemployment)
Housing Benefit/Rent Rebate/Council Tax Benefit
Incapacity Benefit (Replaces Invalidity and NI Sickness Benefit)
Pension Credit
Carer’s allowance(was Invalid Care Allowance)
None
Don’tknow
Does not wish to answer
BiB
Need; Caring responsibilities for adults in home 2022 12-15 12 15 Child No Current Age of Wonder- Module 1- Socioeconomics, and Arts and Culture No
Why do the adults in your first home not have a
job? Please tick all that apply.
They are sick, retired or a student
They are looking for a job
They take care of others or are full-time at home
Don’t know
BiB
Need; Limited ability to carry out day to day activities 2022 12-15 12 15 Child No Current Age of Wonder- Module 1- Socioeconomics, and Arts and Culture No
Do you have any physical or mental health conditions or illnesses?
Has this lasted, or is it expected to last, for 12 months or more?
Do any of your illnesses or conditions reduce your ability to carry out day to day activities?
Part 1:
Yes
No
Part 2:
Yes
No
Part 3:
Yes a lot
Yes a little
Not at all
BiB
Provision; Number of control and restraint trainings 2005 16-120 16 120 Data manager No Current ASCWS Dec 2021 No

Number of instances of training completed in category – Control and restraint both accredited and non-accredited

Number of instances

ASC-WDS
Provision; Date of control and restraint training 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Most recent date the worker completed training in category – Control and restraint

Date

ASC-WDS
Provision; Completion of control and restraint training 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Has the worker completed training in category – Control and restraint

Yes
No
ASC-WDS
Provision; Training worker has completed 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Has the worker completed any of the listed training?

Control and restraint
Dementia care
Emergency Aid awareness
Fire Safety
First Aid
Food safety and catering
Health and Safety
Infection Control
Leadership & Management
Learning disability
Medication safe handling and awareness
Mental capacity and deprivation of liberty
Moving and handling
Nutrition and hydration
Palliative or end of life care
Physical Disability
Positive Behaviour and support
Safeguarding Adults
Dignity, Respect, Person Centred care
Equality, Diversity and Human Rights training
Any other not in the above categories
Childrens / young people’s related training
Confidentiality/GDPR
Epilepsy
Communication Skills
Diabetes
COSHH
Mental Health
Autism
Continence Care
Duty of Care
Supervision / Performance management
Stroke
Complaints handling/conflict resolution
Personal Care
Activity provision/Well-being
Sensory disability
ASC-WDS
Provision; Type of people cared for at the service 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Type of people cared for at the service

Type of people

ASC-WDS
Provision; Average hours worked by each worker at provider 2005 16-120 16 120 Data manager No Past week ASC-WDS rolling No

The average hours workers in the previous week. Dependent on employment status and zero-hours contract.

No. of hours.

ASC-WDS
Provision; Gender of each staff member at provider 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

The worker’s gender.

Gender value

ASC-WDS
Provision; Age of each staff member at provider 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

The workers age when the dataset was captured.

Age value

ASC-WDS
Provision; Number of utlisations of services provider provides 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Utilisation (of service at provider)

Number of utilisations

ASC-WDS
Provision; Capacity of service provider 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Capacity of the service at the workplace.

Capacity value

ASC-WDS
Provision; Main service provided by social care provider 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

The main service provided by the workplace.

Service type

ASC-WDS
Provision; Total employed staff in provider 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Sum of total staff across the organisation.

Number of staff. Also shows ‘Don’t know’, not recorded and no starters.

ASC-WDS
Provision; Number of staff records 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Number of staff records.

Number of records.

ASC-WDS
Provision; Number of permanent and temp staff provider employs 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Number of permanent and temporary staff (employees). Based on staff records.

Number of staff. Also shows ‘Don’t know’, not recorded and no starters.

ASC-WDS
Provision; Number of other staff provider employs 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Number of other staff employed. Based on staff records.

Number of staff. Also shows ‘Don’t know’, not recorded and no starters.

ASC-WDS
Provision; Number of agency staff provider employs 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Number of agency staff employed. Based on staff records.

Number of staff. Also shows ‘Don’t know’, not recorded and no starters.

ASC-WDS
Provision; Number of pool/bank staff provider employs 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Number of pool/bank staff employed. Based on staff records.

Number of staff. Also shows ‘Don’t know’, not recorded and no starters.

ASC-WDS
Provision; Number of temporary staff provider employs 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Number of temporary staff employed. Based on staff records.

Number of staff. Also shows ‘Don’t know’, not recorded and no starters.

ASC-WDS
Provision; Number of permanent staff provider employs 2005 16-120 16 120 Data manager No ASC-WDS rolling No

Number of permanent staff employed. Based on staff records.

Number of staff. Also shows ‘Don’t know’, not recorded and no starters.

ASC-WDS
Provision; Number of vacancies in provider 2005 16-120 16 120 Data manager No Current ASC-WDS rolling No

Total number of permanent and temporary vacancies at the time of the workplace last update.

Number of vacancies. Also shows ‘Don’t know’, not recorded and no starters.

ASC-WDS
Provision; Number of leavers in provider (permanent and temporary) 2005 16-120 16 120 Data manager No Past year ASC-WDS rolling No

Total number of permanent and temporary staff that left in the previous 12 months.

Number of staff. Also shows ‘Don’t know’, not recorded and no starters.

ASC-WDS
Provision; Number of new starters in provider (permanent and temporary) 2005 16-120 16 120 Data manager No Past year ASC-WDS rolling No

Total number of permanent and temporary staff that started in the previous 12 months.

Number of staff. Also shows ‘Don’t know’, not recorded and no starters.

ASC-WDS
Provision; Provider views - challenges accessing agency staff 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

Compared to April 2021, how would you describe the current level of workforce challenges in your service or location for Accessing Agency Staff, if/when needed. (tick ONLY ONE response) by region

Much more challenging
More challenging
About the same
Less challenging
Much less challenging
Unsure
N/A (or left blank)
ASCWS
Provision; Provider views - challenges maintaining morale 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

Compared to April 2021, how would you describe the current level of workforce challenges in your service or location for Maintaining Morale? (tick ONLY one response) by region

Much more challenging
More challenging
About the same
Less challenging
Much less challenging
Unsure
N/A (or left blank)
ASCWS
Provision; Provider views - recruiting staff 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

Compared to April 2021, how would you describe the current level of workforce challenges in your service or location for Recruiting Staff? (tick ONLY ONE response) by region

Much more challenging
More challenging
About the same
Less challenging
Much less challenging
Unsure
N/A (or left blank)
ASCWS
Provision; Provider views - challenges retaining staff 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

Compared to April 2021, how would you describe the current level of workforce challenges in your service or location for Retaining Staff (tick ONLY ONE response) by region

Much more challenging
More challenging
About the same
Less challenging
Much less challenging
Unsure
N/A (or left blank)
ASCWS
Provision; Provider views - most useful recruitment help from gov 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

What form of assistance with recruitment or staffing (if any) would you find most useful between now and April 2022 from government? (tick ALL that apply)

Access to travel
Speed up the recruitment process
National recruitment campaign
Role specific recruitment campaign
Extension of workforce/IPC grant
Better recognition for the sector by government
Right to work process improvement
Immigration skills charge reduction/removal
Add all care workers to skills shortage list
Other
N/A (or left blank)
ASCWS
Provision; Provider views - main challenge agency staff 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

If you are using agency staff, compared to April 2021, what is the main challenge you are facing? (tick ONLY ONE response)

More expensive
Having to call multiple agencies
More difficult to block book
Vaccination uncertainty
Don’t know
Other
N/A (or left blank)
ASCWS
Provision; Provider views - challenges booking agency staff 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

If you are using agency staff, compared to April 2021, what challenges are you facing? (tick ALL that apply)

More expensive
Having to call multiple agencies
More difficult to block book
Vaccination uncertainty
Don’t know
Other
N/A (or left blank)
ASCWS
Provision; Frequency of agency staff use 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

If you are using agency staff, compared to April 2021, how frequently are you using them? (tick ONLY ONE response)

More frequently
About the same
Less frequently
Unsure
N/A (or left blank)
ASCWS
Provision; Provider views - accessing agency staff 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

Compared to April 2021, how would you describe the current level of workforce challenges in your service or location for Accessing Agency Staff, if/when needed. (tick ONLY ONE response)

Much more challenging
More challenging
About the same
Less challenging
Much less challenging
Unsure
N/A (or left blank)
ASCWS
Provision; Provider views - main consequence low morale 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

If applicable to you, compared to April 2021, what is the main consequence of a more challenging morale situation? (tick ONLY ONE response)

Staff not able/willing to take on additional hours
Staff less energised/aren’t able to do more
Staff indicating thinking of leaving
Staff not able/willing to take on additional responsibilities
Staff wellbeing worries
Don’t know
Other
N/A (or left blank)
ASCWS
Provision; Provider views - consequences of low morale 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

If applicable to you, compared to April 2021, what are the consequences of a more challenging morale situation? (tick ALL that apply)

Staff not able/willing to take on additional hours
Staff less energised/aren’t able to do more
Staff indicating thinking of leaving
Staff not able/willing to take on additional responsibilities
Staff wellbeing worries
Don’t know
Other
N/A (or left blank)
ASCWS
Provision; Provider views - maintaining morale 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

Compared to April 2021, how would you describe the current level of workforce challenges in your service or location for Maintaining Morale? (tick ONLY one response)

Much more challenging
More challenging
About the same
Less challenging
Much less challenging
Unsure
N/A (or left blank)
ASCWS
Provision; Provider views - hardest roles to fill 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

Are there specific roles that are harder to fill? If so which roles? (tick ALL that apply)

Registered Nurse
Senior Care Worker
Support and Outreach
Personal Assistant/Home Care Worker
Senior Management
Registered Manager
Social Worker
Occupational Therapist
Chef/Catering
General/Nursing Care Worker
Cleaner
Maintenance
Admin
Others
N/A (or left blank)
ASCWS
Provision; Quality of applicants for social care roles 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

If you are recruiting, compared to April 2021, how does the quality or suitability of applications compare? (tick ONLY ONE response)

Much Higher
Higher
About the same
Lower
Much Lower
Don’t Know
N/A (or left blank)
ASCWS
Provision; Number of applications for social care roles 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

If you are recruiting, compared to April 2021, how do the number of applications compare? (tick ONLY ONE response)

Much Higher
Higher
About the same
Lower
Much Lower
Don’t Know
N/A (or left blank)
ASCWS
Provision; Provider views - current level workforce challenges 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

Compared to April 2021, how would you describe the current level of workforce challenges in your service or location for Recruiting Staff? (tick ONLY ONE response)

Much more challenging
More challenging
About the same
Less challenging
Much less challenging
Unsure
N/A (or left blank)
ASCWS
Provision; Provider views - hardest roles to retain 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

Are there specific roles that are harder to retain? If so which roles? (tick ALL that apply)

Registered Nurse
Senior Care Worker
Support and Outreach
Personal Assistant/Home Care Worker
Senior Management
Registered Manager
Social Worker
Occupational Therapist
Chef/Catering
General/Nursing Care Worker
Cleaner
Maintenance
Admin
Others
N/A (or left blank)
ASCWS
Provision; Provider views - main reason staff leave 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

If you have challenges with retaining staff, what do you believe is the main cause for staff leaving? (tick ONLY ONE response)

Better conditions/working hours elsewhere
Better pay elsewhere within care sector
Better pay elsewhere outside of care sector
Better hours/working conditions elsewhere within care sector
Better hours/working conditions elsewhere outside of care sector
Feeling burnt out/stress
Less pressurised role
Do not wish to be vaccinated
Migration issues/leaving UK
Work related health issue
Covid related stress/trauma
Public perception of care
Outside work commitments
Cost/Distance of travel to work is too high
Don’t know
Other
N/A (or left blank)
ASCWS
Provision; Provider views - reasons staff leave 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

If you have challenges with retaining staff what do you believe are the causes for staff leaving? (tick ALL that apply)

Better conditions/working hours elsewhere
Better pay elsewhere within care sector
Better pay elsewhere outside of care sector
Better hours/working conditions elsewhere within care sector
Better hours/working conditions elsewhere outside of care sector
Feeling burnt out/stress
Less pressurised role
Do not wish to be vaccinated
Migration issues/leaving UK
Work related health issue
Covid related stress/trauma
Public perception of care
Outside work commitments
Cost/Distance of travel to work is too high
Don’t know
Other
N/A (or left blank)
ASCWS
Provision; Provider views - workforce challenges 2021 16-120 16 120 Provider manager No Current ASCWS Dec 2021 No

Compared to April 2021, how would you describe the current level of workforce challenges in your service or location for Retaining Staff?

Much more challenging
More challenging
About the same
Less challenging
Much less challenging
Unsure
N/A (or left blank)
ASCWS
Receipt; Age of child admitted to care 1991 33-34 33 34 Parent No Current Age 33 Survey 1991 Annotated Mother Interview No

How old was [child name] when they were admitted to care?

Age [numerical value]

NCDS
Receipt; Whether child has ever been admitted to care 1991 33-34 33 34 Parent No Current Age 33 Survey 1991 Annotated Mother Interview No

Has [child name] ever been in care or a voluntary society?

Yes
No

NCDS
Receipt; Resident in care home 1991 33-34 33 34 Participant No Current Age 33 Survey 1991 Cohort Member Interview Questionnaire No

Part 1:
Can I now check, do you normally live at this address or somewhere else?

Part 2:
Interviewer classify normal address

Part 1:
This address
Somewhere else

Part 2:
Private residence
Hotel/boarding house
Residential hostel
Hostel for homeless/women’s refuge/night shelter
Barracks/room in nursing home
Room (only) at work place
Prison or remand centre
In patient in hospital/home

NCDS
Receipt; IADL 2012 33-55 33 55 Participant No Current Wave 11 No

d) do it yourself

other DIY: household repairs, woodwork, bricklaying

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
½
1-1 ½
2-3
4-5
6-10
11+

Whitehall
Receipt; IADL 2012 33-55 33 55 Participant No Past 12 months Wave 11 No

In your spare time are you involved in any of the following activities? How often have you taken part in these activities in the last 12 months? J) household tasks I) gardening

Weekly
Monthly
Less often
Never

Whitehall
Receipt; ADL 2015 33-55 33 55 Participant No Current Wave 12 No

The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so how much? b) moderate activities, such as moving a table, pushing a vacuum cleaner, bowling or playing golf
c) lifting or carrying groceries
d) climbing several flights of stairs
e) climbing one flight of stairs
f) bending, kneeling, or stooping
g) walking more than one mile
h) walking half a mile
i) walking one hundred yards
j) bathing and dressing yourself

Yes, limited a lot
Yes, limited a little.
No, not limited at all

Whitehall
Receipt; ADL 2015 33-55 33 55 Participant No Current Wave 12 No

Here are a few everyday activities. Please tell us if you have any difficulties with these because of physical, mental or emotional memory problems. Exclude any difficulties you expect to last less than three months a) Dressing, including putting on shoes and socks
b) Walking across a room
c) Bathing or showering
d) Eating such as cutting up your food
e) Getting in or out of bed
f) Using the toilet including getting up or down
g) Using a map to figure out how to get around in a strange place
h) Preparing a hot meal
i) Shopping for groceries
j) Making telephone calls
k) Taking medications
l) Doing work around the house or garden
m) Managing money such as paying bills and keeping track of expenses
n) Controlling bowel and bladder completely by yourself
o) Doing personal laundry
p) Travelling independently on public transport or drive own car

yes
no

Whitehall
Provision; Help with tasks 2015 33-55 33 55 Participant No Current Wave 12 No

a) Do you feel you need help with any of the day to day tasks listed in question 52? c) Does anyone help you with the day to day tasks ?

a) yes
no c) yes
no

Whitehall
Receipt; IADL 2015 33-55 33 55 Participant No Past 4 weeks Wave 12 No

Please indicate the number of occasions and total time spent on each of the activities listed. B) Gardening

Weeding, hoeing, pruning (not mowing)

Manual lawn mowing

Other gardening: digging planting, clearing ground etc…

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
½
1-1 ½
2-3
4-5
6-10
11+

Whitehall
Receipt; IADL 2015 33-55 33 55 Participant No Past 4 weeks Wave 12 No

c) Housework

carrying heavy shopping

cooking

hanging out washing

other housework for example dusting, ironing, hoovering

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
½
1-1 ½
2-3
4-5
6-10
11+

Whitehall
Receipt; IADL 2015 33-55 33 55 Participant No Past 4 weeks Wave 12 No

d) do it yourself

other DIY: household repairs, woodwork, bricklaying

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
½
1-1 ½
2-3
4-5
6-10
11+

Whitehall
Provision; Care 2015 33-55 33 55 Participant No Current Wave 12 No

a) Do you have a carer(s) who visits you regularly or stays in your household?
b) If yes, how many days per week does your carer visit you?
c) If yes how many nights per week does your carer stay with you overnight?

Yes
No

Enter number

Enter number

Whitehall
Provision; Who do you provide care for 2015 33-55 33 55 Participant No Current Wave 12 No

Do you provide regular care for any of the following?
a) Children
b) Grandchildren
c) Disabled or ill partner/spouse
d) Disabled or ill parent
e) Other disables or ill relative
f) Disabled or ill friend

Yes
No

If yes, for how many hours per week

Whitehall
Receipt; IADL 2015 33-55 33 55 Participant No Past 12 months Wave 12 No

In your spare time are you involved in any of the following activities? How often have you taken part in these activities in the last 12 months? J) household tasks I) gardening

Weekly
Monthly
Less often
Never

Whitehall
Receipt; ADL 2019 33-55 33 55 Participant No Wave 13 No

The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so how much? b) moderate activities, such as moving a table, pushing a vacuum cleaner, bowling or playing golf
c) lifting or carrying groceries
d) climbing several flights of stairs
e) climbing one flight of stairs
f) bending, kneeling, or stooping
g) walking more than one mile
h) walking half a mile
i) walking one hundred yards
j) bathing and dressing yourself

Yes, limited a lot
Yes, limited a little.
No, not limited at all

Whitehall
Receipt; ADL 2019 33-55 33 55 Participant No Current Wave 13 No

Here are a few everyday activities. Please tell us if you have any difficulties with these because of physical, mental or emotional memory problems. Exclude any difficulties you expect to last less than three months a) Dressing, including putting on shoes and socks
b) Walking across a room
c) Bathing or showering
d) Eating such as cutting up your food
e) Getting in or out of bed
f) Getting up from chair after sitting long periods
g) Using the toilet including getting up or down
h) Using a map to figure out how to get around in a strange place
i) Recognizing when you are in physical danger
j) Preparing a hot meal
k) Shopping for groceries
l) Making telephone calls
m) Communication (speech, hearing or eyesight)
n) Taking medication
o) Doing work around the house or garden
p) Managing money such as paying bills and keeping track of expenses
q) Controlling bowel and bladder completely by yourself
r) Doing personal laundry
s) Travelling independently on public transport or drive own car
t) Pulling or pushing large objects

yes
no

Whitehall
Provision; Help with tasks 2019 33-55 33 55 Participant No Current Wave 13 No

Do you feel you need help with any of the day to day task listed in question 14?

yes
no

Whitehall
Receipt; IADL 2019 33-55 33 55 Participant No Past 4 weeks Wave 13 No

Please indicate the number of occasions and total time spent on each of the activities listed. B) Gardening

Weeding, hoeing, pruning (not mowing)

Manual lawn mowing

Other gardening: digging planting, clearing ground etc.…

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
½
1-1 ½
2-3
4-5
6-10
11+

Whitehall
Receipt; IADL 2019 33-55 33 55 Participant No Past 4 weeks Wave 13 No

c) Housework

carrying heavy shopping

cooking

hanging out washing

other housework for example dusting, ironing, hoovering

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
½
1-1 ½
2-3
4-5
6-10
11+

Whitehall
Receipt; IADL 2019 33-55 33 55 Participant No Past 4 weeks Wave 13 No

d) do it yourself

other DIY: household repairs, woodwork, bricklaying

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
½
1-1 ½
2-3
4-5
6-10
11+

Whitehall
Provision; Care 2019 33-55 33 55 Participant No Current Wave 13 No

a) Do you have a carer(s) who visits you regularly or stays in your household?
b) If yes, how many days per week does your carer visit you?
c) If yes how many nights per week does your carer stay with you overnight?

Yes
No

Enter number

Enter number

Whitehall
Receipt; ADL 2001 33-55 33 55 Participant No Current Wave 6 No

The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so how much? b) moderate activities, such as moving a table, pushing a vacuum cleaner, bowling or playing golf
c) lifting or carrying groceries
d) climbing several flights of stairs
e) climbing one flight of stairs
f) bending, kneeling, or stooping
g) walking more than one mile
h) walking half a mile
i) walking one hundred yards
j) bathing and dressing yourself

Yes, limited a lot
Yes, limited a little.
No, not limited at all

Whitehall
Receipt; ADL 2002 33-55 33 55 Participant No Current Wave 7 No

The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so how much? b) moderate activities, such as moving a table, pushing a vacuum cleaner, bowling or playing golf
c) lifting or carrying groceries
d) climbing several flights of stairs
e) climbing one flight of stairs
f) bending, kneeling, or stooping
g) walking more than one mile
h) walking half a mile
I) walking one hundred yards
j) bathing and dressing yourself

Yes, limited a lot
Yes, limited a little.
No, not limited at all

Whitehall
Receipt; IADL 2002 33-55 33 55 Participant No Past 4 Weeks Wave 7 No

Please indicate the number of occasions and total time spent on each of the activities listed. B) Gardening

Weeding, hoeing, pruning (not mowing)

Manual lawn mowing

Other gardening: digging planting, clearing ground etc.…

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
? 1/2
1-1 1/2
2-3
4-5
6-10
11+

Whitehall
Receipt; IADL 2002 33-55 33 55 Participant No Past 4 Weeks Wave 7 No

c) Housework

carrying heavy shopping

cooking

hanging out washing

other housework for example dusting, ironing, hoovering

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
? 1/2
1-1 1/2
2-3
4-5
6-10
11+

Whitehall
Receipt; IADL 2002 33-55 33 55 Participant No Past 4 Weeks Wave 7 No

d) do it yourself

other DIY: household repairs, woodwork, bricklaying

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
? 1/2
1-1 1/2
2-3
4-5
6-10
11+

Whitehall
Provision; Care 2002 33-55 33 55 Participant No Current Wave 7 No

Are you providing any personal are or help to one or more aged or disabled person(s)? If yes, how many hours in an average week do you spend looking after this person (these people)

yes
no number of hours in average week

Whitehall
Receipt; ADL 2006 33-55 33 55 Participant No Current Wave 8 No

The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so how much? b) moderate activities, such as moving a table, pushing a vacuum cleaner, bowling or playing golf
c) lifting or carrying groceries
d) climbing several flights of stairs
e) climbing one flight of stairs
f) bending, kneeling, or stooping
g) walking more than one mile
h) walking half a mile
i) walking one hundred yards
j) bathing and dressing yourself

Yes, limited a lot
Yes, limited a little.
No, not limited at all

Whitehall
Receipt; ADL 2006 33-55 33 55 Participant No Current Wave 8 No

Here are a few everyday activities. Please tell us if you have any difficulties with these because of physical, mental or emotional memory problems. Exclude any difficulties you expect to last less than three months a) Dressing, including putting on shoes and socks
b) Walking across a room
c) Bathing or showering
d) Eating such as cutting up your food
e) Getting in or out of bed
f) Using the toilet including getting up or down
g) Using a map to figure out how to get around in a strange place
h) Preparing a hot meal
i) Shopping for groceries
j) Making telephone calls
k) Taking medications
l) Doing work around the house or garden
m) Managing money such as paying bills and keeping track of expenses

yes
no

Whitehall
Provision; Care 2006 33-55 33 55 Participant No Current Wave 8 No

Are you providing any personal are or help to one or more aged or disabled person(s)? If yes, how many hours in an average week do you spend looking after this person (these people)

yes
no number of hours in average week

Whitehall
Receipt; ADL 2007 33-55 33 55 Participant No Current Wave 9 No

The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so how much? b) moderate activities, such as moving a table, pushing a vacuum cleaner, bowling or playing golf
c) lifting or carrying groceries
d) climbing several flights of stairs
e) climbing one flight of stairs
f) bending, kneeling, or stooping
g) walking more than one mile
h) walking half a mile
i) walking one hundred yards
j) bathing and dressing yourself

Yes, limited a lot
Yes, limited a little.
No, not limited at all

Whitehall
Receipt; ADL 2007 33-55 33 55 Participant No Current Wave 9 No

Here are a few everyday activities. Please tell us if you have any difficulties with these because of physical, mental or emotional memory problems. Exclude any difficulties you expect to last less than three months a) Dressing, including putting on shoes and socks
b) Walking across a room
c) Bathing or showering
d) Eating such as cutting up your food
e) Getting in or out of bed
f) Using the toilet including getting up or down
g) Using a map to figure out how to get around in a strange place
h) Preparing a hot meal
i) Shopping for groceries
j) Making telephone calls
k) Taking medications
l) Doing work around the house or garden
m) Managing money such as paying bills and keeping track of expenses

yes
no

Whitehall
Receipt; IADL 2007 33-55 33 55 Participant No Current Wave 9 No

Please indicate the number of occasions and total time spent on each of the activities listed. B) Gardening

Weeding, hoeing, pruning (not mowing)

Manual lawn mowing

Other gardening: digging planting, clearing ground etc.…

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
?
1-1
2-3
4-5
6-10
11+

Whitehall
Receipt; IADL 2007 33-55 33 55 Participant No Current Wave 9 No

c) Housework

carrying heavy shopping

cooking

hanging out washing

other housework for example dusting, ironing, hoovering

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
?
1-1
2-3
4-5
6-10
11+

Whitehall
Receipt; IADL 2007 33-55 33 55 Participant No Current Wave 9 No

d) do it yourself

other DIY: household repairs, woodwork, bricklaying

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
?
1-1
2-3
4-5
6-10
11+

Whitehall
Provision; Who do you provide care for 2007 33-55 33 55 Participant No Current Wave 9 No

Do you provide regular care for any of the following?
a) Children
b) Grandchildren
c) Disabled or ill partner/spouse
d) Disabled or ill parent
e) Other disables or ill relative
f) Disabled or ill friend

Yes
No

If yes, for how many hours per week

Whitehall
Receipt; IADL 2007 33-55 33 55 Participant No Past 12 Months Wave 9 No

In your spare time are you involved in any of the following activities? How often have you taken part in these activities in the last 12 months? J) household tasks I) gardening

Weekly
Monthly
Less often
Never

Whitehall
Receipt; ADL 2012 33-55 33 55 Participant No Current Wave 11 No

The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so how much? b) moderate activities, such as moving a table, pushing a vacuum cleaner, bowling or playing golf
c) lifting or carrying groceries
d) climbing several flights of stairs
e) climbing one flight of stairs
f) bending, kneeling, or stooping
g) walking more than one mile
h) walking half a mile
i) walking one hundred yards
j) bathing and dressing yourself

Yes, limited a lot
Yes, limited a little.
No, not limited at all

Whitehall
Receipt; ADL 2012 33-55 33 55 Participant No Current Wave 11 No

Here are a few everyday activities. Please tell us if you have any difficulties with these because of physical, mental or emotional memory problems. Exclude any difficulties you expect to last less than three months a) Dressing, including putting on shoes and socks
b) Walking across a room
c) Bathing or showering
d) Eating such as cutting up your food
e) Getting in or out of bed
f) Using the toilet including getting up or down
g) Using a map to figure out how to get around in a strange place
h) Preparing a hot meal
i) Shopping for groceries
j) Making telephone calls
k) Taking medications
l) Doing work around the house or garden
m) Managing money such as paying bills and keeping track of expenses
n) Controlling bowel and bladder completely by yourself
o) Doing personal laundry
p) Travelling independently on public transport or drive own car

yes
no

Whitehall
Receipt; IADL 2012 33-55 33 55 Participant No Current Wave 11 No

Please indicate the number of occasions and total time spent on each of the activities listed. B) Gardening

Weeding, hoeing, pruning (not mowing)

Manual lawn mowing

Other gardening: digging planting, clearing ground etc.…

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
½
1-1 ½
2-3
4-5
6-10
11+

Whitehall
Receipt; IADL 2012 33-55 33 55 Participant No Current Wave 11 No

c) Housework

carrying heavy shopping

cooking

hanging out washing

other housework for example dusting, ironing, hoovering

Occasions in the past 4 weeks
None
1-2
3-4
5-10-
11-15
16-20
21+

Total hours in the past 4 weeks
None
½
1-1 ½
2-3
4-5
6-10
11+

Whitehall
Provision; Pre-COVID-19 looking after 'dependents' 2020 18-100 18 100 Participant No Current COVIDLife Survey 1 No

What was your employment status just before COVID-19 measures were introduced (i.e., January 2020)?

Self-employed employing others
Self-employed not employing others
Paid employee supervising others
Paid employee not supervising others
In unpaid employment
Homemaker
Looking after children
Looking after other dependents
Retired
Still in school/studying full-time
Unemployed as sick or disabled
Unemployed
Other
Prefer not to answer

GSSFHS
Provision; Post-COVID-19 looking after 'dependents' 2020 18-100 18 100 Participant No Current COVIDLife Survey 1 No

What is your employment status now?

Self-employed employing others
Self-employed not employing others
Paid employee supervising others
Paid employee not supervising others
In unpaid employment
Homemaker
Looking after children
Looking after other dependents
Retired
Still in school/studying full-time
Unemployed as sick or disabled
Unemployed
Other
Prefer not to answer

GSSFHS
Receipt; Receipt of benefits pre-COVID-19 2020 18-100 18 100 Participant No Current COVIDLife Survey 1 No

Which benefits were you or anyone in your household
receiving before the COVID-19 measures were introduced (i.e., in January 2020)?
Select all that apply

Attendance Allowance Bereavement Allowance Best Start Grant
Best Start Foods
Blue Badge
Carer’s Allowance
Child Benefit
Child Tax Credit
Cold Weather Payment
Constant Attendance Allowance Council Tax Benefit
Crisis Loans
Disability Living Allowance Employment and Support Allowance Free School Meals
Guardian’s Allowance
Housing Benefit
In Work Credit
Incapacity Benefit
Income Support
Industrial Injuries Disablement Benefit Industrial Death Benefit
Jobseeker’s Allowance
Maternity Allowance
Mobility Supplement
National Entitlement Card
Pension Credit
Personal Independence Payment Severe Disablement Allowance
State Pension
Statutory Adoption Pay
Statutory Maternity Pay
Statutory Paternity Pay
Sick Pay
Sure Start Maternity Grant
Tax credits
Universal Credit
War Disablement Pension
War Widow’s/Widower’s Pension Widowed Parent’s Allowance Widow’s Pension
Winter Fuel Payment
Working Tax Credit
Other (please specify)
Don’t know
Prefer not to answer

GSSFHS
Receipt; Receipt of benefits post-COVID-19 2020 18-100 18 100 Participant No Current COVIDLife Survey 1 No

Which benefits are you or anyone in your household receiving now? Select all that apply

Attendance Allowance Bereavement Allowance Best Start Grant
Best Start Foods
Blue Badge
Carer’s Allowance
Child Benefit
Child Tax Credit
Cold Weather Payment
Constant Attendance Allowance Council Tax Benefit
Crisis Loans
Disability Living Allowance Employment and Support Allowance Free School Meals
Guardian’s Allowance
Housing Benefit
In Work Credit
Incapacity Benefit
Income Support
Industrial Injuries Disablement Benefit Industrial Death Benefit
Jobseeker’s Allowance
Maternity Allowance
Mobility Supplement
National Entitlement Card
Pension Credit
Personal Independence Payment Severe Disablement Allowance
State Pension
Statutory Adoption Pay
Statutory Maternity Pay
Statutory Paternity Pay
Sick Pay
Sure Start Maternity Grant
Tax credits
Universal Credit
War Disablement Pension
War Widow’s/Widower’s Pension Widowed Parent’s Allowance Widow’s Pension
Winter Fuel Payment
Working Tax Credit
Other (please specify)
Don’t know
Prefer not to answer

GSSFHS
Provision; Caring responsibilities 2020 18-100 18 100 Participant No Current COVIDLife Survey 1 No

Do you have caring responsibilities for any of the following people who live with you?
Select all that apply, or select None of the above

Children
Adults with a physical or learning disability Elderly relatives
Other elderly persons
Other adults
Prefer not to answer
None of the above

GSSFHS
Provision; Caring responsibilities changing from COVID-19 measures 2020 18-100 18 100 Participant No Current COVIDLife Survey 1 No

Have your caring responsibilities for people you live with changed since COVID-19 measures have been in place?

Caring responsibilities have increased Caring responsibilities have stayed the same Caring responsibilities have decreased

GSSFHS
Provision; Non-household caring responsibilities 2020 18-100 18 100 Participant No Current COVIDLife Survey 1 No

Do you have caring responsibilities for any of the following people who do not live with you?
Select all that apply, or select None of the above

Children
Adults with a physical or learning disability Elderly relatives
Other elderly persons
Other adults
Prefer not to answer
None of the above

GSSFHS
Provision; Non-household caring responsibilities post COVID-19 2020 18-100 18 100 Participant No Current COVIDLife Survey 1 No

Have your caring responsibilities for people you do not live with changed since COVID-19 measures have been in place?

Caring responsibilities have increased Caring responsibilities have stayed the same Caring responsibilities have decreased

GSSFHS
Provision; Looking after dependents 2020 18-100 18 100 Participant No Current COVIDLife Survey 2 No

What is your current employment status?
If you are doing more than one activity, please choose the activity that you spend most time doing.

Self-employed employing others
Self-employed not employing others
Paid employee supervising others
Paid employee not supervising others
In unpaid employment Homemaker
Looking after children
Looking after other dependents
Retired
Still in school/studying full-time
Unemployed as sick or disabled
Unemployed
Other
Prefer not to answer

GSSFHS
Receipt; Receipt of care-related benefits 2020 18-100 18 100 Participant No Current COVIDLife Survey 2 No

Which benefits are you or anyone in your household receiving now? Select all that apply

Attendance Allowance Bereavement Allowance Best Start Grant
Best Start Foods
Blue Badge
Carer’s Allowance
Child Benefit
Child Tax Credit
Cold Weather Payment
Constant Attendance Allowance Council Tax Benefit
Crisis Loans
Disability Living Allowance Employment and Support Allowance Free School Meals
Guardian’s Allowance
Housing Benefit
In Work Credit
Incapacity Benefit
Income Support
Industrial Injuries Disablement Benefit Industrial Death Benefit
Jobseeker’s Allowance
Maternity Allowance
Mobility Supplement
National Entitlement Card
Pension Credit
Personal Independence Payment Severe Disablement Allowance
State Pension
Statutory Adoption Pay
Statutory Maternity Pay
Statutory Paternity Pay
Sick Pay
Sure Start Maternity Grant
Tax credits
Universal Credit
War Disablement Pension
War Widow’s/Widower’s Pension Widowed Parent’s Allowance Widow’s Pension
Winter Fuel Payment
Working Tax Credit
Other (please specify)
Don’t know
Prefer not to answer

GSSFHS
Provision; Looking after dependents 2021 18-100 18 100 Participant No Current COVIDLife Survey 3 No

What is your current employment status?
If you are doing more than one activity, please choose the activity that you spend most time doing.

Self-employed employing others
Self-employed not employing others
Paid employee supervising others
Paid employee not supervising others
In unpaid employment
Homemaker
Looking after children
Looking after other dependents
Retired
Still in school/studying full-time
Unemployed as sick or disabled
Unemployed
Other
Prefer not to answer

GSSFHS
Provision; Receipt of care-related benefits 2021 18-100 18 100 Participant No Current COVIDLife Survey 3 No

Which benefits are you or anyone in your household receiving now? Select all that apply

Attendance Allowance Bereavement Allowance Best Start Grant
Best Start Foods
Blue Badge
Carer’s Allowance
Child Benefit
Child Tax Credit
Cold Weather Payment
Constant Attendance Allowance Council Tax Benefit
Crisis Loans
Disability Living Allowance Employment and Support Allowance Free School Meals
Guardian’s Allowance
Housing Benefit
In Work Credit
Incapacity Benefit
Income Support
Industrial Injuries Disablement Benefit Industrial Death Benefit
Jobseeker’s Allowance
Maternity Allowance
Mobility Supplement
National Entitlement Card
Pension Credit
Personal Independence Payment Severe Disablement Allowance
State Pension
Statutory Adoption Pay
Statutory Maternity Pay
Statutory Paternity Pay
Sick Pay
Sure Start Maternity Grant
Tax credits
Universal Credit
War Disablement Pension
War Widow’s/Widower’s Pension Widowed Parent’s Allowance Widow’s Pension
Winter Fuel Payment
Working Tax Credit
Other (please specify)
Don’t know
Prefer not to answer

GSSFHS
Provision; Caring responsibilities for household members 2020 12-17 12 17 Participant No Current Teen COVIDLife Survey 1 No

Do you have caring responsibilities for any of the following people who live with you?
Select all that apply, or select None of the above

Parent(s)
Stepparent(s)
Parent’s girlfriend or boyfriend Guardian(s) – for example a foster carer
Brother(s) and/or sister(s) Stepbrother(s) and/or stepsister(s)
Grandparent(s)
Other family member(s)
Child/children
Friend(s) or other non-family member(s) Prefer not to answer
None of the above

GSSFHS
Provision; Caring responsibilities for household members 2020 12-17 12 17 Participant No Current Teen COVIDLife Survey 2 No

Do you have caring responsibilities for any of the following people who live with you?
Select all that apply, or select None of the above

Parent(s)
Stepparent(s)
Parent’s girlfriend or boyfriend Guardian(s) – for example a foster carer
Brother(s) and/or sister(s) Stepbrother(s) and/or stepsister(s)
Grandparent(s)
Other family member(s)
Child/children
Friend(s) or other non-family member(s) Prefer not to answer
None of the above

GSSFHS
Provision; Caring responsibilities for household members 2021 12-17 12 17 Participant No Current Teen COVIDLife Survey 3 No

Do you have caring responsibilities for any of the following people who live with you?
Select all that apply, or select None of the above

Parent(s)
Stepparent(s)
Parent’s girlfriend or boyfriend Guardian(s) – for example a foster carer
Brother(s) and/or sister(s) Stepbrother(s) and/or stepsister(s)
Grandparent(s)
Other family member(s)
Child/children
Friend(s) or other non-family member(s) Prefer not to answer
None of the above

GSSFHS
Receipt; Living with paid caregivers 2020 18-100 18 100 Participant No Current Rural COVIDLife No

Who lives in your household with you?
Select all that apply

Spouse/partner
Child/children
Grandchild/grandchildren
Parent(s) or parent(s) in law Grandparent(s) or grandparent(s) in law
Other family member(s)
Paid caregiver(s)
Friend(s) or other non family member(s)

GSSFHS
Receipt; Receipt of care-related benefits 2020 18-100 18 100 Participant No Current Rural COVIDLife No

Which benefits were you or anyone in your household receiving before the COVID-19 measures were introduced?
Select all that apply

“Attendance Allowance Bereavement Allowance Best Start Grant
Best Start Foods
Blue Badge
Carer’s Allowance
Child Benefit
Child Tax Credit
Cold Weather Payment
Constant Attendance Allowance Council Tax Benefit
Crisis Loans
Disability Living Allowance Employment and Support Allowance Free School Meals
Guardian’s Allowance
Housing Benefit
In Work Credit
Incapacity Benefit
Income Support
Industrial Injuries Disablement Benefit Industrial Death Benefit
Jobseeker’s Allowance
Maternity Allowance
Mobility Supplement
National Entitlement Card
Pension Credit
Personal Independence Payment Severe Disablement Allowance
State Pension
Statutory Adoption Pay
Statutory Maternity Pay
Statutory Paternity Pay
Sick Pay
Sure Start Maternity Grant
Tax credits
Universal Credit
War Disablement Pension
War Widow’s/Widower’s Pension Widowed Parent’s Allowance Widow’s Pension
Winter Fuel Payment
Working Tax Credit
Other (please specify)
Don’t know
Prefer not to answer”

GSSFHS
Provision; Looking after dependents 2020 18-100 18 100 Participant No Current Rural COVIDLife No

What is your current employment status?
If you are doing multiple jobs, please select all that apply

“Self-employed employing others
Self-employed not employing others
Paid employee supervising others
Paid employee not supervising others
In unpaid employment
Homemaker
Looking after children
Looking after other dependents
Retired
Still in school/studying full-time
Unemployed as sick or disabled
Unemployed
Other
Prefer not to answer”

GSSFHS
Provision; Looking after dependents post-COVID-19 2020 18-100 18 100 Participant No Current Rural COVIDLife No

What was your employment status just before the COVID-19 measures were introduced (i.e., January 2020)?
If you were doing multiple jobs, please select all that apply.

“Self-employed employing others
Self-employed not employing others
Paid employee supervising others
Paid employee not supervising others
In unpaid employment
Homemaker
Looking after children
Looking after other dependents
Retired
Still in school/studying full-time
Unemployed as sick or disabled
Unemployed
Other
Prefer not to answer”

GSSFHS
Provision; Number of hours spent caring 2012 50-120 50 120 Participant No Current HEAF Baseline No

In an average week, roughly how many hours would you spend doing the following activities? (Please answer
each question)

1 Working in a paid job
2 Doing housework in your own home or for your
family
3 Doing DIY jobs in your own home or for your family
4 Giving personal care to someone in your home or
family
5 Working in an unpaid job for others outside your
home and family (e.g. as a volunteer for a charity)
6 Playing sports
7 Doing hobbies (other than sports and DIY in the
home)
8 Watching television
9 Reading for pleasure
10 Other leisure activities

Number of hours

HEAF
Need; Limited ADL completion - back & Neck pain 2012 50-120 50 120 Participant No Past 12 months HEAF Baseline No

During the past 12 months, have you had pain in your BACK or NECK for a month or longer that made it difficult or impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Need; Limited ADL completion - arm & shoulder pain 2012 50-120 50 120 Participant No Past 12 months HEAF Baseline No

During the past 12 months, have you had pain in your ARM(S) or SHOULDER(S) for a month or longer that
made it difficult or impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Need; Limited ADL completion - leg pain 2012 50-120 50 120 Participant No Past 12 months HEAF Baseline No

During the past 12 months, have you had pain in your LEG(S) for a month or longer that made it difficult or
impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Need; Limited ADL completion - back & Neck pain 2012 50-120 50 120 Participant No Past 12 months HEAF Follow-up 1 No

During the past 12 months, have you had pain in your BACK or NECK for a month or longer that made it difficult or impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Need; Limited ADL completion - arm & shoulder pain 2012 50-120 50 120 Participant No Past 12 months HEAF Follow-up 1 No

During the past 12 months, have you had pain in your ARM(S) or SHOULDER(S) for a month or longer that
made it difficult or impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Need; Limited ADL completion - leg pain 2012 50-120 50 120 Participant No Past 12 months HEAF Follow-up 1 No

During the past 12 months, have you had pain in your LEG(S) for a month or longer that made it difficult or
impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Need; Limited ADL completion - back & Neck pain 2014 50-120 50 120 Participant No Past 12 months HEAF Follow-up 2 No

During the past 12 months, have you had pain in your BACK or NECK for a month or longer that made it difficult or impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Need; Limited ADL completion - arm & shoulder pain 2014 50-120 50 120 Participant No Past 12 months HEAF Follow-up 2 No

During the past 12 months, have you had pain in your ARM(S) or SHOULDER(S) for a month or longer that
made it difficult or impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Need; Limited ADL completion - leg pain 2014 50-120 50 120 Participant No Past 12 months HEAF Follow-up 2 No

During the past 12 months, have you had pain in your LEG(S) for a month or longer that made it difficult or
impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Provision; Hours spent caring 2015 50-120 50 120 Participant No Current HEAF Follow-up 3 No

In an average week, roughly how many hours would you spend doing the following activities? (Please answer
each question)

1 Working in a paid job (whether employed or self-employed)
2 Giving personal care to someone in your home or family
3 Working in an unpaid job for others outside your home and family (e.g. as a volunteer for a charity)
4 Doing hobbies

Number of hours

HEAF
Receipt; Receipt of care/disability-related benefits 2015 50-120 50 120 Participant No Current HEAF Follow-up 3 No

Have you ever received any of the following benefits? (Please tick all that apply)

1 Incapacity benefit
2 Invalidity benefit
3 Disability Living Allowance (DLA)
4 Severe Disablement Allowance
5 Personal Independence Payment (PIP)
6 Employment and Support Allowance (ESA)
7 None of the above

HEAF
Need; Limited ADL completion - back & Neck pain 2015 50-120 50 120 Participant No Past 12 months HEAF Follow-up 3 No

During the past 12 months, have you had pain in your BACK or NECK for a month or longer that made it difficult or impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Need; Limited ADL completion - arm & shoulder pain 2015 50-120 50 120 Participant No Past 12 months HEAF Follow-up 3 No

During the past 12 months, have you had pain in your ARM(S) or SHOULDER(S) for a month or longer that
made it difficult or impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Need; Limited ADL completion - leg pain 2015 50-120 50 120 Participant No Past 12 months HEAF Follow-up 3 No

During the past 12 months, have you had pain in your LEG(S) for a month or longer that made it difficult or
impossible to get washed or dressed or do household chores?

No
Yes

HEAF
Receipt; Who helps 2019 68-70 68 70 Participant No Past month Wave 2 No

In the last four weeks who has provided the person you live with the help they have needed. Please tick all that apply

Me Nobody-needs were not met
Husband/wife/partner
Son or daughter or other family member (include even if not blood related)
Friend or neighbor
Voluntary helper
Paid/professional help
Other

MRC
Need; Frequency of care 2019 68-70 68 70 Participant No Past month Wave 2 No

In the last four weeks how many hours of help has someone you lived with usually received each week?

Up to 4 hours
5-9 hours
10-19 hours
20-34 hours
35 hours or more”

MRC
Need; Help with ADLs & IADLs 2020 68-70 68 70 Participant No Past month Wave 3 No

In the last four weeks have you needed help with personal task (washing, dressing) or domestic tasks (shopping, providing meals) because you could not manage them alone?

Yes I needed help No

MRC
Receipt; Who helps 2020 68-70 68 70 Participant No Past month Wave 3 No

In the last four weeks who has provided you with the help you have needed. Please tick all that apply

Nobody-needs were not met
Husband/wife/partner
Son or daughter or other family member (include even if not blood related)
Friend or neighbor
Voluntary helper
Paid/professional help
Other

MRC
Need; Frequency of care 2020 68-70 68 70 Participant No Past month Wave 3 No

In the last four weeks how many hours of help have you usually received each week?

Up to 4 hours
5-9 hours
10-19 hours
20-34 hours
35 hours or more”

MRC
Provision; Care to someone else 2020 68-70 68 70 Participant No Past month Wave 3 No

In the last four weeks has someone you lived with needed help with personal task (washing, dressing) or domestic tasks (shopping, providing meals) because they could not manage them alone?

Yes-someone I lived with needed help
No
Not applicable-live alone

MRC
Receipt; Who helps 2020 68-70 68 70 Participant No Past month Wave 3 No

In the last four weeks who has provided the person you live with the help they have needed. Please tick all that apply

Nobody-needs were not met
Husband/wife/partner
Son or daughter or other family member (include even if not blood related)
Friend or neighbor
Voluntary helper
Paid/professional help
Other

MRC
Need; Frequency of care 2020 68-70 68 70 Participant No Past month Wave 3 No

In the last four weeks how many hours of help has someone you lived with usually received each week?

Up to 4 hours
5-9 hours
10-19 hours
20-34 hours
35 hours or more”

MRC
Receipt; Frequency of care 2014 68-70 68 70 Participant No Past Week Nurse Home Schedule No

Altogether how many hours help have you received with these tasks in the last week

No help in the past week
Less than 1 hour
1-4 hours
5-9 hours
10-19 hours
20-34 hours
35-49 hours
50-99 hours
1000 hours or more

MRC
Provision; Care to someone else 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Is there anyone living with you who is sick, frail, or has a disability whom you look after or give special help to (for example, a sick, disabled, or older relative/husband/wife/friend etc.)

No
Yes

MRC
Provision; Who you help 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Who do you look after or help that lives with you?

Wife/husband/partner
Mother/mother-in-law
Father/father-in-law
Son/daughter
Grandchildren
Friend
other

MRC
Receipt; Who helps 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

If you (and your spouse) needed help with daily activities because of sickness, frailty or disability, who would be most likely to provide help?

Son (including stepson, adopted son or son in law)
Daughter (including stepdaughter, adopted daughter or daughter in law)
Other family member
Friends or neighbor (including voluntary helper)
Paid/professional help Other

MRC
Need; ADLs, IADLs 2019 68-70 68 70 Participant No Past 12 Months Wave 1 No

Before the Coronavirus outbreak did you or a person you live with usually get help with regular personal tasks (washing, dressing) or domestic tasks (shopping, providing meals) that cannot be managed alone?

No help needed
No help received
Help received for myself
Help received for someone I live with

MRC
Receipt; Who helps 2019 68-70 68 70 Participant No Current Wave 1 No

Who provided this help? Please tick all that apply

Husband/wife/partner/self
Son or daughter or other family member (include even if not blood related)
Friend or neighbor
Voluntary helper
Paid/professional help
Other

MRC
Need; Frequency of care 2019 68-70 68 70 Participant No Past Week Wave 1 No

Altogether how many hours help have you received with these tasks in the last week

Up to 4 hours
5-9 hours
10-19 hours
20-34 hours
35 hours or more

MRC
Provision; Change in care 2019 68-70 68 70 Participant No Past 12 Months Wave 1 No

Since the Coronavirus outbreak have you or someone you live with had a change in help needed and/or received?

Yes, there has been a change to the care needed or received
No change

MRC
Need; Frequency of care 2019 68-70 68 70 Participant No Past Week Wave 1 No

Since the Coronavirus outbreak, how many hours help have you or someone you live with typically received each week?

0 hours. Up to 4 hours
5-9 hours
10-19 hours
20-34 hours
35 hours or more”

MRC
Receipt; Who helps 2019 68-70 68 70 Participant No Current Wave 1 No

Who provided this help? Please tick all that apply

“Husband/wife/partner/self
Son or daughter or other family member (include even if not blood related)
Friend or neighbor
Voluntary helper
Paid/professional help
Other “

MRC
Need; Help with ADLs & IADLs 2019 68-70 68 70 Participant No Past month Wave 2 No

In the past month before the Coronavirus outbreak in March did you need help with personal tasks( washing, dressing) or domestic tasks (shopping, providing meals) because you could not manage them alone?

Yes I needed help No

MRC
Receipt; Who helps 2019 68-70 68 70 Participant No Past month Wave 2 No

In the past month before the Coronavirus outbreak in March, who provided you with the help you needed? Please tick all that apply.

Nobody- needs were not met Husband/wife/partner/self
Son or daughter or other family member (include even if not blood related)
Friend or neighbor
Voluntary helper
Paid/professional help
Other

MRC
Need; Frequency of care 2019 68-70 68 70 Participant No Past Week Wave 2 No

In the month before the Coronavirus outbreak in March how many hours of help did you usually get each week ?

Up to 4 hours
5-9 hours
10-19 hours
20-34 hours
35 hours or more”

MRC
Need; Care to someone else 2019 68-70 68 70 Participant No Past month Wave 2 No

In the month before the Coronavirus outbreak in March did someone you lived with need help with personal tasks (washing, dressing) or domestic tasks (shopping, providing meals) because they could not manage alone?

Yes-someone you lived with needed help
No
Not applicable-live alone

MRC
Receipt; Who helps 2019 68-70 68 70 Participant No Past month Wave 2 No

In the month before the Coronavirus outbreak in March who provided the person you live with the help they needed? Please tick all that apply.

Nobody-needs were not met
Me
My Husband/wife/partner
Son or daughter or other family member (include even if not blood related)
Friend or neighbor
Voluntary helper
Paid/professional help
Other

MRC
Need; Frequency of care 2019 68-70 68 70 Participant No Past month Wave 2 No

In the month before the Coronavirus outbreak in March how many hours of help did the person you live with usually get each week?

Up to 4 hours
5-9 hours
10-19 hours
20-34 hours
35 hours or more”

MRC
Need; Help with ADLs & IADLs 2019 68-70 68 70 Participant No Past month Wave 2 No

In the last four weeks have you needed help with personal task (washing, dressing) or domestic tasks (shopping, providing meals) because you could not manage them alone?

Yes I needed help No

MRC
Receipt; Who helps 2019 68-70 68 70 Participant No Past month Wave 2 No

In the last four weeks who has provided you with the help you have needed. Please tick all that apply

“Nobody-needs were not met
Husband/wife/partner
Son or daughter or other family member (include even if not blood related)
Friend or neighbor
Voluntary helper
Paid/professional help
Other “

MRC
Need; Frequency of care 2019 68-70 68 70 Participant No Past month Wave 2 No

In the last four weeks how many hours of help have you usually received each week?

Up to 4 hours
5-9 hours
10-19 hours
20-34 hours
35 hours or more”

MRC
Provision; Care to someone else 2019 68-70 68 70 Participant No Past month Wave 2 No

In the last four weeks has someone you lived with needed help with personal task (washing, dressing) or domestic tasks (shopping, providing meals) because they could not manage them alone?

Yes-someone I lived with needed help
No
Not applicable-live alone

MRC
Need; ADLs-dressing 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Can you dress and undress yourself, including putting on your shoes and socks, without aids/special items or personal help?

Yes
No, uses aids/special items only
No, uses personal help only
No needs aids and personal help

MRC
Need; ADLs-transferring 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: getting in or out of a chair?

No
Yes

MRC
Need; ADLs-transferring 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Can you get in or out of a chair without aids or personal help?

Yes
No, uses aids only
No, uses personal help only
No needs aids and personal help

MRC
Need; ADLs-transferring 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: getting in or out of bed?

No
Yes

MRC
Need; ADLs-transferring 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Can you get in and out of bed without aids or personal help?

Yes
No, uses aids only
No, uses personal help only
No needs aids and personal help

MRC
Need; ADLs-walking 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: getting around indoors?

No
Yes

MRC
Need; ADLs-walking 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Can you get around indoors without aids or personal help?

Yes
No, uses aids only
No, uses personal help only
No needs aids and personal help

MRC
Need; ADLs-toileting 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: using the toilet?

No
Yes
Not applicable

MRC
Need; ADLs-toileting 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Can you use the toilet without aids or personal help?

Yes
No, uses aids only
No, uses personal help only
No needs aids and personal help

MRC
Need; ADLs-feeding 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: feeding yourself, including cutting up food?

No
Yes

MRC
Need; ADLs-feeding 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Can you feed yourself, including cutting up food, without aids or personal help?

Yes
No, uses aids only
No, uses personal help only
No needs aids and personal help

MRC
Need; ADLs, IADLs - who helps 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Please tell me about all the people on the list who have helped you with these tasks in the last month

No help received in past month
Husband/wife/partner
Son (including stepson, adopted son or son in law)
Daughter (including stepdaughter, adopted daughter or daughter in law)
Other family member
Friends or neighbor
Voluntary helper
Paid/professional help
Home care worker/home help/personal assistant
Member if reablement/intermediate care staff team
Occupational therapist/physiotherapist
Warden/sheltered housing manager
Cleaner
Other

MRC
Receipt; Frequency of care 2014 68-70 68 70 Participant No Past Week Nurse Home Schedule No

Altogether how many hours help have you received with these tasks in the last week

No help in the past week
Less than 1 hour
1-4 hours
5-9 hours
10-19 hours
20-34 hours
35-49 hours
50-99 hours
1000 hours or more

MRC
Need; IADLs-managing medication 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: taking the right amount of medicines at the right time?

No
Yes
Not applicable (don’t take any medications)

MRC
Need; IADLs-home maintenance/housecleaning 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: doing routine housework or laundry?

No
Yes
Not applicable

MRC
Need; IADLs- meal preparation 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: preparing hot meals?

No
Yes
Not applicable

MRC
Need; IADLs-managing finances 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: doing paperwork and paying household bills?

No
Yes
Not applicable

MRC
Need; IADLs- shopping 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: shopping for food including getting to the shops, choosing the items, carrying the items home, and then unpacking and putting the items away?

No
Yes
Not applicable

MRC
Need; IADLs- managing transportation 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: getting out of the home, for example to go to the doctors or to visit a friend?

No
Yes
Not applicable

MRC
Need; IADLs-who helps 2014 68-70 68 70 Participant No Past month Nurse Home Schedule No

Please tell me about all the people on the list who have helped you with these tasks in the last month

No help received in past month
Husband/wife/partner
Son (including stepson, adopted son or son in law)
Daughter (including stepdaughter, adopted daughter or daughter in law)
Other family member
Friends or neighbor
Voluntary helper
Paid/professional help
Home care worker/home help/personal assistant
Member if reablement/intermediate care staff team
Occupational therapist/physiotherapist
Warden/sheltered housing manager
Cleaner
Other

MRC
Need; IADL- managing finances 2008 60-64 60 64 Participant No Current Nurse Clinic Schedule No

On your present household income do you find (as a family)

That it’s really quite hard to manage
That you manage fairly well
That you mange comfortably

MRC
Need; IADLs- meal preparation & home maintenance 2008 60-64 60 64 Participant No Current Nurse Clinic Schedule No

Is it difficult because of long term health problems for you to do any of the following activities? A) go shopping and carry a full bag of shopping in each hand? B) do heavy housework? C) prepare a hot meal

Yes
No

MRC
Need; ADLs-bathing 2008 60-64 60 64 Participant No Current Nurse Clinic Schedule No

Is it difficult because of long term health problems for you to do any of the following activities? A) washing hands and face? If yes can you do it without aids or personal help?

No
Yes

Yes
No, uses aid only but no personal help
No needs personal help

MRC
Need; ADLs-bathing 2008 60-64 60 64 Participant No Current Nurse Clinic Schedule No

b) bathing or showering? If yes can you do it without aids or personal help?

No
Yes

Yes
No, uses aid only but no personal help
No needs personal help

MRC
Need; ADLs-dressing 2008 60-64 60 64 Participant No Current Nurse Clinic Schedule No

c) dressing or undressing? If yes can you do it without aids or personal help?

No
Yes

Yes
No, uses aid only but no personal help
No needs personal help

MRC
Need; ADLs-transferring 2008 60-64 60 64 Participant No Current Nurse Clinic Schedule No

d) getting in or out of a chair ? If yes can you do it without aids or personal help?

No
Yes

Yes
No, uses aid only but no personal help
No needs personal help

MRC
Need; ADLs-transferring 2008 60-64 60 64 Participant No Current Nurse Clinic Schedule No

e) getting to the toilet? If yes can you do it without aids or personal help?

No
Yes

Yes
No, uses aid only but no personal help
No needs personal help

MRC
Need; ADLs-toileting 2008 60-64 60 64 Participant No Current Nurse Clinic Schedule No

f) using the toilet? If yes can you do it without aids or personal help?

No
Yes

Yes
No, uses aid only but no personal help
No needs personal help

MRC
Need; ADLs-feeding 2008 60-64 60 64 Participant No Current Nurse Clinic Schedule No

g) feeding yourself, including cutting up food? If yes can you do it without aids or personal help?

No
Yes

Yes
No, uses aid only but no personal help
No needs personal help

MRC
Need; ADLs, IADLs 2014 68-70 68 70 Participant No Current Postal Questionnaire No

The following question asks you to indicate the level of physical and mental fatigue (i.e., tiredness, exhaustion) you expect or imagine when competing each of the ten listed activities.

Leisurely walk for 30 minutes
Brisk walk for 1 hour
Light household activity for 1 hour (cleaning, cooking, dusting, baking, making beds, watering plants)
Heavy gardening or outdoor work for 1 hour (mowing [push], raking, weeding, planting)

Have you done this activity within the last month?

0 No Fatigue
1
2
3
4
5 Extreme Fatigue

1 YES
0 NO

MRC
Need; ADLs-walking 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty walking for a quarter of a mile on this level?

No
Yes
Not applicable, unable to walk

MRC
Need; ADLs-walking 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty walking up and down stairs?

No
Yes
Not applicable, cannot walk up and down stairs

MRC
Need; ADLs-walking 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

When walking up and down a flight of 12 stairs do you need to
a) Hold on?
b) Stop for a rest?
c) Go sideways or one step at a time?

No
Some of the time
Most/all of the time

MRC
Need; ADLs-grooming 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: Cutting your toenails?

No
Yes, some difficulty
Yes, a lot of difficulty

MRC
Need; ADLs-grooming 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Can you cut your toenails without personal help?

Yes
No

MRC
Need; ADLs-bathing 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: Bathing and/or showering (including getting into and out of the bath or shower)?

No
Yes, difficult to bath but not shower
Yes, difficult to bath and shower

MRC
Need; ADLs-bathing 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Can you bath or shower without aids or personal help?

Yes
No, uses aids only
No, uses personal help only
No needs aids and personal help

MRC
Need; ADLs-bathing 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: Washing your hands and face?

No
Yes

MRC
Need; ADLs-bathing 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Can you wash your hands and face without aids or personal help?

Yes
No, uses aids only
No, uses personal help only
No needs aids and personal help

MRC
Need; ADLs-dressing 2014 68-70 68 70 Participant No Current Nurse Home Schedule No

Do you have difficulty with any of the following activities…: dressing and undressing yourself?

No
Yes

MRC
Receipt; Receipt of care-related benefits 2007 0-1 0 1 Participant No Current Phase 1 No

Are you receiving any benefits?

1 Income Support
2 Disability Living All
3 Carer’s All
4 Incapacity Be
5 New Deal
6 Council Tax Ben
7 Job Seekers All
8 Tax Credits
9 Housing Ben
10 Other (please give details below)

WCHADS
Receipt; Receipt of care-related benefits 2008 1-2 1 2 Participant No Current Phase 7 & 8 No

Are you receiving any benefits now?

1 Income Support
2 Tax Credits
3 Carers Allowance
4 Child Benefit
5 Incapacity Benefit
6 New Deal
7 Council Tax Benefit
8 Other (please give details below) More details
9 Job Seekers Allowance
10 Disability Living Allowance
11 Housing Benefit

WCHADS
Receipt; Receipt of care-related benefits 2010 2-4 2 4 Participant No Current Phase 9 No

Are you receiving any benefits now?

1 Income Support
2 Tax Credits
3 Carers Allowance
4 Child Benefit
5 Incapacity Benefit
6 New Deal
7 Council Tax Benefit
8 Other (please give details below) More details
9 Job Seekers Allowance
10 Disability Living Allowance
11 Housing Benefit

WCHADS
Receipt; Receipt of care-related benefits 2012 4-6 4 6 Participant No Current Phase 12 No

Do you receive the following benefit?

income support 1
disability living allowance DLA 2
carer’s all 3
council tax benefit 6
job seekers all JSA 7
housing benefit 9
child benefit 11
child tax credit 12
attendance allowance 13
working tax credits 14
healthy start 15
Employment and support allowance 16
Incapacity Benefit 17
Statutory Maternity pay 18
Maternity Allowance 19

WCHADS
Receipt; Receipt of care-related benefits 2011 3-4 3 4 Participant No Current Phase 10 No

Are you receiving any benefits?

Income Support 1
Disability Living Allowance DLA 2
Carer’s Allowance 3
Council Tax Benefit 6
Job seekers all JSA 7
Housing Benefit 9
Child Benefit 11
Child Tax Credit 12
Attendance Allowance 13
Working Tax Credits 14

WCHADS
Receipt; Receipt of care-related benefits 2015 7-8 7 8 Participant No Current Phase 13 No

Are you receiving Carer’s Allowance?

Yes
No

WCHADS
Receipt; Receipt of care-related benefits 2015 7-8 7 8 Participant No Current Phase 13 No

Are you receiving Personal Independence Payment (PIP) (Previously Disability Living Allowance)?

Yes
No

WCHADS
Receipt; Receipt of care-related benefits 2016 9-10 9 10 Participant No Current Phase 14 No

Are you receiving Carer’s Allowance?

Yes
No

WCHADS
Receipt; Receipt of care-related benefits 2016 9-10 9 10 Participant No Current Phase 14 No

Are you receiving Personal Independence Payment (PIP) (Previously Disability Living Allowance)?

Yes
No

WCHADS
Receipt; Receipt of care-related benefits 2016 9-10 9 10 Participant No Current Phase 14 No

Are you receiving Incapacity Benefit?

Yes
No

WCHADS
Receipt; Receipt of care-related benefits 2019 12-13 12 13 Participant No Current Phase 15 No

Are you receiving Carer’s Allowance?

Yes
No

WCHADS
Receipt; Receipt of care-related benefits 2019 12-13 12 13 Participant No Current Phase 15 No

Are you receiving Personal Independence Payment (PIP) (Previously Disability Living Allowance)?

Yes
No

WCHADS
Receipt; Looked after as a child 1997 15-120 15 120 Participant No Current W3-70-R-main No

Throughout your childhood, up to the age of 15, did you ever live in a residential home or institution? (exclude public schools)

b) how old were you when you when that first happened? age

c) for how many years in all did you live in a home or institution?

Part 1:
Yes
No

Part 2:
Age years

Part 3:
No. of years

WOS
Provision; Details about care provided 2000 15-120 15 120 Participant No Current W4-all-R-and-L-main No

Is there anyone who regularly depends on you for help or support?
By that I mean that you do things they couldn’t manage for
themselves because of illness, disability, old age or some other reason? Please don’t include any childcare you have just told me about

What relationship do they have to you?

What do you help with?

How many hours do you spend helping them in
an average week?

Does this person live in the same household as
you?

What relationship do they have to you?
(**if couple add 10 to code**)
spouse ……………………………….. 1
parent ………………………………… 2
parent in law ……………………… 3
brother/sister ………………………. 4
brother in law/sister in law …. 5
own child …………………………… 6
child (step, adopted etc.) …. 7
friend ………………………………….. 8
other (specify) ……………………. 9

What do you help with?
(code in order mentioned)
personal care …………………….. 1
(bathing, taking medicine etc.)
mobility round house …………. 2
household chores ………………. 3
(cleaning cooking etc.)
transportation outside ……….. 4
(take shopping etc.)
dealing with officials,
financial affairs etc. ………….. 5
companionship ………………….. 6
‘everything’ ………………………… 7
other (specify) ……………………. 8

How many hours do you spend helping them in
an average week?
(code hours per week)
col 6 How much of a strain is it?
a great strain ……………………… 1
quite a strain ……………………… 2
a moderate strain ……………… 3
not much of strain ……………… 4
no strain at all …………………….. 5

Does this person live in the same household as
you?
Resident in same household 1
Lives in another household … 2
Lives in an institution ………….. 3

WOS
Provision; How participant feels about being a carer 2000 15-120 15 120 Participant No Current W4-all-R-and-L-main No

Looking at the faces scales, which face shows best how you
feel about doing the caring work that you’ve just told me
about?

Participant picks one face from a range of portrayed emotions

WOS
Provision; How many days spent caring 2000 15-120 15 120 Participant No Current W4-all-R-and-L-main No

Thinking overall about all the help or caring you give,
excluding childcare, in the last four weeks on how many
days have you been involved in this type of caring?

Number of days

WOS
Provision; Time spent caring 2000 15-120 15 120 Participant No Current W4-all-R-and-L-main No

On an average day when you did this type of caring how
long did you spend on it (including travelling)?

Hours and mins

WOS
Provision; Details about care provided 2007 15-120 15 120 Participant No Current W5-all-R-and-L-main No

Is there anyone who regularly depends on you for help or support? By that I mean that you do things they couldn’t manage for themselves because of illness, disability or old age or some other reason? Please don’t include any childcare you have just told me about.

What relationship do they have to you?

What do you help with?

How many hours do you spend helping them in an average week?

How much of a strain is it?

Does the person live in the same household as you?

Part 1:
Yes
No

Part 2:
Spouse
Parent
Parent-in-law
brother/sister
brother-in-law/sister-in-law
own child
child (step, adopted etc.)
Friend other

Part 3:
personal care (bathing, taking medicine etc.)
mobility round house
household chores (cleaning, cooking etc.)
transportation outside (take shopping etc.)
dealing with officials, financial affairs etc.
Companionship
‘everything’
errands (do shopping, get pension, post letters etc.)
Other

Part 4:
Number of hours

Part 5:
a great strain
quite a strain
a moderate strain
not much of a strain
no strain at all

Part 6:
resident in same household
lives in another household
lives in an institution

WOS
Provision; Number of days and hours spent caring 2007 15-120 15 120 Participant No Current W5-all-R-and-L-main No

Thinking overall about the help or caring you give, excluding childcare, in the last four weeks on how many days have you been involved in this type of caring?

On an average day when you did this type of caring, how long did you spend on it (including travelling)?

Part 1:
Number of days

Part 2:
Number of hours

WOS
Receipt; Partner living in care home 2007 15-120 15 120 Participant No Current W5-all-R-and-L-main No

Why do you not live together [with partner]?

What kind of institution does he/she live in?

Part 1:
Separated
Husband/wife/partner living in an institution
Respondent living in an institution
Husband/wife/partner working away from home
Respondent working away from home

Part 2:
Nursing home/ other care home
Hospital/hospice
Prison
Other

WOS
Provision; Providing care to relatives 1987 15-120 15 120 Participant No Current W1-30-R-and-L-social No

a) What is the main reason that you are not looking for work? Are there any other reasons?

illness/disability
looking after relative
too old to get job
lack of skills
out of work too long
too much competition
never worked
looking after home
in education
financially not worth while
other (specify)

WOS
Provision; Details about care provided 1987 15-120 15 120 Participant No Current W1-30-R-and-L-social No

Part 1:
Is there anyone who regularly depends on you for help
or support? By that I mean that you do things they
couldn’t manage for themselves?

Part 2:
what relationship do they have to you?

Part 3:
how many hours do you spend helping them in an average week?

Part 4:
how much of a strain is it?

Part 5:
what do you help with?….

Part 1:
yes
no

Part 2:
(**if couple add 10 to code**) them in an average week?….
spouse
parent
parent in law
brother/sister
child
friend
neighbour
other (specify)…

Part 3:
code hours per week

Part 4:
a great strain
quite a strain
a moderate strain
not much of a strain
no strain at all

Part 5:
(code in order mentioned)
personal care (bathing, taking medicine etc.)….1
mobility round house…………………………. 2
household chores (cleaning, cooking etc.)……. 3
transportation outside (take shopping etc.)……. 4
dealing with officials, financial affairs etc.……. 5
companionship…………………………………6
child minding…………………………………. 7
other (specify)………………………………… 8

WOS
Receipt; Receipt of care-related benefits 1987 15-120 15 120 Participant No Current W1-30-R-and-L-social No

Part 1:
There are a lot of different ways in which people get income. Looking at the list can you tell me which of these your husband/wife/partner and yourself gets income from?

Part 2:
Which of these provides the largest part of your income?

Part 1:
disability pension
industrial injury benefit
attendance allowance
mobility allowance
invalid care allowance

Part 2:
Select benefit which applies.

WOS
Need; Member of household needing care 1987 15-120 15 120 Participant No Current W1-50-R-and-L-nurse No

Part 1:
Does anyone in your household suffer from any longstanding
illness, disability or infirmity?

Part 2:
Which member(s) of your household is this?

Part 3:
Does [household member name] have trouble with:
a) getting out on his / her own?
b) getting around inside the house?
c) washing or dressing him/herself?
d) going to the toilet?
e) bathing him/herself?
f) feeding him/herself?

Part 4:
Who is most involved in looking after [household member name]?

Part 1:
Yes
No
Don’t know

Part 2: Open response.

Part3:
Yes
No
DK

Part 4: Open response.

WOS
Provision; Looking after dependent relative 1987 15-120 15 120 Participant No Current W1-70-R-and-L-youngpersonint No

Everyone has certain things they have to do around the house. How often do you have to do the following?

1 make your bed…
2 the washing up
3 wash/iron clothes
4 food shopping for household
5 help prepare meals
6 look after younger child/dep relative
7 vacuum/hoover house

WOS
Receipt; Participant been in care 1995 15-120 15 120 Participant No Current W2-30-and-50-R-main No

Thinking back to the time of your childhood now, who did you live with for most of the time between ages 5 and 15?

Both parents
Adoptive parent(s)
Live with Mother and other male (name of male
Father and other female (name of female)
Mother alone
Father alone
Mother then father or vice versa
Foster parent(s)
Other relative(s) (name of male head)
Combination of people
Residential care
Don’t know

WOS
Need; Ability to complete IADLs e.g. walk in street 1995 15-120 15 120 Participant No Current W2-30-and-50-R-main No

Does it [previously specified condition] affect your ability to?

walk in the street
climb steps or stairs
bend to pick things up
reach behind, stretch or turn
grip and lift objects

WOS
Receipt; Amount received from benefits 1995 15-120 15 120 Participant No Current W2-30-and-50-R-main No

Can I ask you how much income you personally receive from..(source)?

14..sickness benefit/statutory sick pay
15..invalidity benefit
16..community charge benefit
17..severe disablement allowance
18..industrial injury or disablement allowance
19..attendance allowance
20..invalid care allowance
21..mobility allowance
22..other mobility/disability allowances

WOS
Provision; Details about care provided 1997 15-120 15 120 Participant No Current W3-30-and-50-R-main_2012_08 No

Is there anyone who regularly depends on you for help or support?
By that I mean that you do things they couldn’t manage for
themselves because of illness, disability, old age or some other reason? Please don’t include any childcare you have just told me about

What relationship do they have to you?

What do you help with?

How many hours do you spend helping them in
an average week?

Does this person live in the same household as
you?

What relationship do they have to you?
(**if couple add 10 to code**)
spouse ……………………………….. 1
parent ………………………………… 2
parent in law ……………………… 3
brother/sister ………………………. 4
brother in law/sister in law …. 5
own child …………………………… 6
child (step, adopted etc.) …. 7
friend ………………………………….. 8
other (specify) ……………………. 9

What do you help with?
(code in order mentioned)
personal care …………………….. 1
(bathing, taking medicine etc.)
mobility round house …………. 2
household chores ………………. 3
(cleaning cooking etc.)
transportation outside ……….. 4
(take shopping etc.)
dealing with officials,
financial affairs etc. ………….. 5
companionship ………………….. 6
‘everything’ ………………………… 7
other (specify) ……………………. 8

How many hours do you spend helping them in
an average week?
(code hours per week)
col 6 How much of a strain is it?
a great strain ……………………… 1
quite a strain ……………………… 2
a moderate strain ……………… 3
not much of strain ……………… 4
no strain at all …………………….. 5

Does this person live in the same household as
you?
Resident in same household 1
Lives in another household … 2
Lives in an institution ………….. 3

WOS
Provision; How participant feels about being a carer 1997 15-120 15 120 Participant No Current W3-30-and-50-R-main_2012_08 No

Looking at the faces scales, which face shows best how you
feel about doing the caring work that you’ve just told me
about?

Range of happy to sad faces

WOS
Provision; How many days spent caring 1997 15-120 15 120 Participant No Current W3-30-and-50-R-main_2012_08 No

Thinking overall about all the help or caring you give,
excluding childcare, in the last four weeks on how many
days have you been involved in this type of caring?

Number of days

WOS
Provision; Time spent caring 1997 15-120 15 120 Participant No Current W3-30-and-50-R-main_2012_08 No

On an average day when you did this type of caring how
long did you spend on it (including travelling)?

Hours and mins

WOS
Provision; Impact of caring on caregiver 1997 15-120 15 120 Participant No Current W3-30-and-50-R-main_2012_08 No

I’d like you think in general about all the time you spend on caring for other people, not including children. I am going to show you a card which has on it a set of statements which might describe how you feel about all these activities. I would like you to tell me whether each statement is true for you…

1 makes me feel isolated
7 leaves me plenty of time
for myself
2 is full of stress
8 is too frantic and hurried
3 is interesting and challenging
9 lets me feel important and worth while
4 can be quite lonely 10 allows me to set my own pace of life
5 leaves me mentally tired out at the end of the day
11 causes me a lot of worry
6 lets me make full use of my abilities
12 is too routine

For all data items:
very frequently
quite frequently
only occasionally
never

WOS
Receipt; Income from care-related benefits 1997 15-120 15 120 Participant No Current W3-30-and-50-R-main_2012_08 No

Does your household have any income from
any of these sources?

Sickness benefits
16 …… statutory sick pay (SSP)
17 …… incapacity benefit (previously invalidity benefit))
18 …… severe disablement allowance
19 …… industrial injuries disablement benefit
20 …… attendance allowance
21 …… invalid care allowance
22 …… disability living allowance
23 …… disability working allowance
24 …… reduced earnings allowance
25 …… retirement allowance
26 …… other mobility/disability allowances

For all data items:
yes
no
refused don’t know

WOS
Receipt; Looked after as a child 1997 15-120 15 120 Participant No Current W3-30-and-50-R-main_2012_08 No

Throughout your childhood, up to the age of 15, did you ever live in a residential home or institution?

Yes
No

WOS
Provision; Details about care provided 1997 15-120 15 120 Participant No Current W3-70-R-main No

Is there anyone who regularly depends on you for help or support?
By that I mean that you do things they couldn’t manage for
themselves because of illness, disability, old age or some other reason? Please don’t include any childcare you have just told me about

What relationship do they have to you?

What do you help with?

How many hours do you spend helping them in
an average week?

Does this person live in the same household as
you?

What relationship do they have to you?
(**if couple add 10 to code**)
spouse ……………………………….. 1
parent ………………………………… 2
parent in law ……………………… 3
brother/sister ………………………. 4
brother in law/sister in law …. 5
own child …………………………… 6
child (step, adopted etc.) …. 7
friend ………………………………….. 8
other (specify) ……………………. 9

What do you help with?
(code in order mentioned)
personal care …………………….. 1
(bathing, taking medicine etc.)
mobility round house …………. 2
household chores ………………. 3
(cleaning cooking etc.)
transportation outside ……….. 4
(take shopping etc.)
dealing with officials,
financial affairs etc. ………….. 5
companionship ………………….. 6
‘everything’ ………………………… 7
other (specify) ……………………. 8

How many hours do you spend helping them in
an average week?
(code hours per week)
col 6 How much of a strain is it?
a great strain ……………………… 1
quite a strain ……………………… 2
a moderate strain ……………… 3
not much of strain ……………… 4
no strain at all …………………….. 5

Does this person live in the same household as
you?
Resident in same household 1
Lives in another household … 2
Lives in an institution ………….. 3

WOS
Provision; How many days spent caring 1997 15-120 15 120 Participant No Current W3-70-R-main No

Thinking overall about all the help or caring you give,
excluding childcare, in the last four weeks on how many
days have you been involved in this type of caring?

Number of days

WOS
Provision; Time spent caring 1997 15-120 15 120 Participant No Current W3-70-R-main No

On an average day when you did this type of caring how
long did you spend on it (including travelling)?

Hours and mins

WOS
Provision; Impact of caring on caregiver 1997 15-120 15 120 Participant No Current W3-70-R-main No

I’d like you think in general about all the time you spend on caring for other people, not including children. I am going to show you a card which has on it a set of statements which might describe how you feel about all these activities. I would like you to tell me whether each statement is true for you…

1 makes me feel isolated
7 leaves me plenty of time
for myself
2 is full of stress
8 is too frantic and hurried
3 is interesting and challenging
9 lets me feel important and worth while
4 can be quite lonely 10 allows me to set my own pace of life
5 leaves me mentally tired out at the end of the day
11 causes me a lot of worry
6 lets me make full use of my abilities
12 is too routine

For all data items:
very frequently
quite frequently
only occasionally
never

WOS
Receipt; Receipt of care-related benefits 1997 15-120 15 120 Participant No Current W3-70-R-main No

Does your household have any income from
any of these sources?

Sickness benefits
16 …… statutory sick pay (SSP)
17 …… incapacity benefit (previously invalidity benefit))
18 …… severe disablement allowance
19 …… industrial injuries disablement benefit
20 …… attendance allowance
21 …… invalid care allowance
22 …… disability living allowance
23 …… disability working allowance
24 …… reduced earnings allowance
25 …… retirement allowance
26 …… other mobility/disability allowances

For all data items:
yes
no
refused don’t know

WOS
Provision; Combining paid work and caring 2021 18-120 18 120 Carer No Current Sweep 2021 No

Thinking about combining your paid work and caring responsibilities, which of the following statements best describes your current situation?

Please tick one box:

Not in paid work:
I am not in paid employment because of my caring responsibilities
I am not in paid employment for other reasons (e.g. Retired)

In paid employment:
I am in paid employment and I feel supported by my employer
I am in paid employment but I don’t feel supported by my employer
I do not need any support from my employer to combine my work and caring responsibilities

Self-employed:
I am self-employed and I am able to balance my work and caring
Responsibilities
I am self-employed but I am unable to balance my work and caring
Responsibilities

SACE
Provision; Length of time been a carer 2021 18-120 18 120 Carer No Current Sweep 2021 No

About how long have you been looking after or helping the person you care for?

Less than 6 months
Over 6 months but less than a year
Over 1 year but less than 3 years
Over 3 years but less than 5 years
Over 5 years but less than 10 years
Over 10 years but less than 15 years
Over 15 years but less than 20 years
20 years or more

SACE
Provision; Time each week spent caring 2021 18-120 18 120 Carer No Current Sweep 2021 No

About how long do you spend each week looking after or helping the person you care for?

Please tick one box:
0-9 hours per week
10-19 hours per week
20-34 hours per week
35-49 hours per week
50-74 hours per week
75-99 hours per week
100 or more hours per week
Varies – Under 20 hours per week
Varies – 20 hours or more per week
Other
If other please specify:

SACE
Provision; Caring activities 2021 18-120 18 120 Carer No Past year Sweep 2021 No

Over the last 12 months, what kinds of things did you usually do for the person you care for?

Please tick all that apply:
Personal care?
(Things like dressing, bathing, washing, shaving, cutting nails, feeding, using the toilet)
Physical help?
(Such as helping with walking, getting up and down stairs, getting into and out of bed)
Helping with dealing with care services and benefits?
(Things like making appointments and phone calls, filling in forms)
Helping with paperwork or financial matters?
(Such as writing letters, sending cards, filling in forms, dealing with bills, banking)
Other practical help?
(Things like preparing meals, doing his/her shopping, laundry, housework, gardening, decorating, household repairs, taking to doctor’s or hospital)
Keeping him/her company?
(Things like visiting, sitting with, reading to, talking to, playing cards or games)
Taking him/her out?
(Such as taking out for a walk or drive, taking to see friends or relatives)
Giving medicines?
(Things like making sure he/she takes pills, giving injections, changing dressings)
Keeping an eye on him/her to see he/she is all right?
Giving emotional support?
Other help?

SACE
Provision; Carer's own disabilities/diseases 2021 18-120 18 120 Carer No Current Sweep 2021 No

Do you have any of the following?

A physical impairment or disability
Sight or hearing loss
A mental health problem or illness
A learning disability or difficulty
A long-standing illness
Other
None of the above

SACE
Provision; Age of carer 2021 18-120 18 120 Carer No Current Sweep 2021 No

How old are you?

Age in years

SACE
Provision; Gender of carer 2021 18-120 18 120 Carer No Current Sweep 2021 No

Are you male or female?

Male
Female

SACE
Provision; Number of children carer has aged 18 or under 2021 18-120 18 120 Carer No Current Sweep 2021 No

How many children aged 18 or under do you have parental responsibility for?

0
1
2
3
4+

SACE
Provision; Carer ethnicity 2021 18-120 18 120 Carer No Current Sweep 2021 No

To which of these groups do you consider you belong?

Please tick one box:

White:
English / Welsh / Scottish / Northern Irish / British
Irish
Gypsy or Irish Traveller
Any other White background

Mixed / multiple ethnic groups:
White and Black Caribbean
White and Black African
White and Asian
Any other Mixed / Multiple background

Asian / Asian British:
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background

Black / African / Caribbean / Black British:
African
Caribbean
Any other Black / African / Caribbean background

Other ethnic group:
Arab
Any other background

Prefer not to say

SACE
Receipt; Help completing questionnaire 2021 18-120 18 120 Carer No Current Sweep 2021 No

Did someone help you to complete this questionnaire?

Please tick one box:
Yes
No

SACE
Receipt; Carer's support during the COVID-19 pandemic 2021 18-120 18 120 Carer No Current Sweep 2021 No

Thinking about your experiences during the Coronavirus (COVID-19) pandemic, how satisfied or dissatisfied are you with the support or services you and the person you care for have received from Social Services?

Please tick one box:
We didn’t receive any support or services from Social Services during the Coronavirus (COVID-19) pandemic
I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

SACE
Provision; Carer's social contact during COVID-19 pandemic 2021 18-120 18 120 Carer No Current Sweep 2021 No

Thinking about how much social contact you had with people you like during the Coronavirus (COVID-19) pandemic, which of the following statements best describes your social situation during this time?

I had as much social contact as I want with people I like
I had some social contact with people but not enough
I had little social contact with people and felt socially isolated

SACE
Provision; Carer's personal safety during COVID-19 pandemic 2021 18-120 18 120 Carer No Current Sweep 2021 No

Thinking about your personal safety during the Coronavirus (COVID-19) pandemic, which of the statements best describes how you felt during this time?

By ‘personal safety’ we mean feeling safe from fear of abuse, being attacked or other physical harm. We do not mean feeling safe from fear of contracting coronavirus.

I had no worries about my personal safety
I had some worries about my personal safety
I was extremely worried about my personal safety

SACE
Provision; Was carer consulted during COVID-19 pandemic 2021 18-120 18 120 Carer No Current Sweep 2021 No

Thinking about your experiences during the Coronavirus (COVID-19) pandemic, did you feel you were involved or consulted as much as you wanted to be, in discussions about the support or services provided to the person you care for?

There were no discussions that I am aware of, during the Coronavirus (COVID-19) pandemic
I always felt involved or consulted
I usually felt involved or consulted
I sometimes felt involved or consulted
I never felt involved or consulted

SACE
Provision; Opportunity for carer to share other experiences 2021 18-120 18 120 Carer No Current Sweep 2021 No

Please use the space provided below to describe any other experiences you would like to tell us about, or to write any other comments you would like to make?

[The question above is for local use and can be omitted. Councils do not need to return the data to NHS Digital for this question.]

Open response question

SACE
Provision; Diseases/disabilities of person being cared for 2021 18-120 18 120 Carer No Current Sweep 2021 No

Does the person you care for have….?

Dementia
A physical disability
Sight or hearing loss
A mental health problem
Problems connected to ageing
A learning disability or difficulty
Long-standing illness
Terminal illness
Alcohol or drug dependency

SACE
Provision; Does person being cared for live with carer 2021 18-120 18 120 Carer No Current Sweep 2021 No

Where does the person you care for usually live?

With me
Somewhere else

SACE
Receipt; Carer satisfaction with services received 2021 18-120 18 120 Carer No Current Sweep 2021 No

Overall, how satisfied or dissatisfied are you with the support or services you and the person you care for have received from Social Services in the last 12 months?

We haven’t received any support or services from Social Services in the last 12 months
I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

SACE
Provision;Receipt; Use of services by person being cared for 2021 18-120 18 120 Carer No Current Sweep 2021 No

Has the person you care for used any of the support or services listed below in the last 12 months?

They may be provided by different organisations, such as a voluntary organisation, a private agency or Social Services.

a. Support or services allowing you to take a break from caring at short notice or in an emergency

b. Support or services allowing you to take a break from caring for more than 24 hours

c. Support or services to allow you to have a rest from caring for between 1 and 24 hours (eg. a sitting service)

d. Personal assistant

e. Home care/home help

f. Day centre or day activities

g. Lunch club

h. Meals Services

i. Equipment or adaptation to their home (such as a wheelchair or handrails)

j. Lifeline Alarm

k. They are permanently resident in a care home

[It is possible for councils to add options to question 5 above for local use such as supported employment or special college. Responses to any additional options should not be returned to NHS Digital]

For each data item:
Yes
No
Don’t know

SACE
Receipt; Carer's use of support services 2021 18-120 18 120 Carer No Current Sweep 2021 No

Have you used any of the support or services listed below, to help you as a carer over the last 12 months?

They may be provided by different organisations, such as a voluntary organisation, a private agency or Social Services. Please do not include any unpaid help from family and friends.

a. Information and advice
b. Support from carers groups or someone to talk to in confidence
c. Training for carers
d. Support to keep you in employment

[It is possible for councils to add options to question 6 above for local use such as advocacy for carers, help with household tasks and gardening and practical help to complete forms. Responses to any additional options should not be returned to NHS Digital]

Yes
No
Don’t know

SACE
Provision; How carer spends time 2021 18-120 18 120 Carer No Current Sweep 2021 No

Which of the following statements best describes how you spend your time?

When you are thinking about what you do with your time, please include anything you value or enjoy, including formal employment, voluntary or unpaid work, caring for others and leisure activities.

I’m able to spend my time as I want, doing things I value or enjoy
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

SACE
Provision; Carer's control over own life 2021 18-120 18 120 Carer No Current Sweep 2021 No

Which of the following statements best describes how much control you have over your daily life?

I have as much control over my daily life as I want
I have some control over my daily life but not enough
I have no control over my daily life

SACE
Provision; Whether carer looks after themselves 2021 18-120 18 120 Carer No Current Sweep 2021 No

Thinking about how much time you have to look after yourself – in terms of getting enough sleep or eating well – which statement best describes your present situation?

I look after myself
Sometimes I can’t look after myself well enough
I feel I am neglecting myself

SACE
Provision; Carer's own personal safety 2021 18-120 18 120 Carer No Current Sweep 2021 No

Thinking about your personal safety, which of the statements best describes your present situation?
By ‘personal safety’ we mean feeling safe from fear of abuse, being attacked or other physical harm.

I have no worries about my personal safety
I have some worries about my personal safety
I am extremely worried about my personal safety

SACE
Provision; Carers' level of social contact 2021 18-120 18 120 Carer No Current Sweep 2021 No

Thinking about how much social contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have some social contact with people but not enough
I have little social contact with people and feel socially isolated

SACE
Receipt; Carers' encouragement and support 2021 18-120 18 120 Carer No Current Sweep 2021 No

Thinking about encouragement and support in your caring role, which of the following statements best describes your present situation?

I feel I have encouragement and support
I feel I have some encouragement and support but not enough
I feel I have no encouragement and support

SACE
Provision; Caring responsibilities for multiple people 2021 18-120 18 120 Carer No Current Sweep 2021 No

Thinking about the other people you have caring responsibilities for, which of the following best describes your current situation? Please exclude the person you spend most time helping.

I don’t have caring responsibilities for anyone else
I always have enough time to care for them
I sometimes have enough time to care for them
I never have enough time to care for them

SACE
Provision; How carer health is affected by caring role 2021 18-120 18 120 Carer No Past year Sweep 2021 No

In the last 12 months, has your health been affected by your caring role in any of the ways listed below?

Please tick all that apply:
Feeling tired
Feeling depressed
Loss of appetite
Disturbed sleep
General feeling of stress
Physical strain (e.g. back)
Short tempered/ irritable
Had to see own GP
Developed my own health conditions
Made an existing condition worse
Other
No, none of these

SACE
Provision; Has caring role caused financial difficulties 2021 18-120 18 120 Carer No Past year Sweep 2021 No

In the last 12 months, has caring caused you any financial difficulties?

No, not at all
Yes, to some extent
Yes, a lot

SACE
Receipt; How easy support information is to obtain 2021 18-120 18 120 Carer No Past year Sweep 2021 No

In the last 12 months, have you found it easy or difficult to find information and advice about support, services or benefits? Please include information and advice from different sources, such as voluntary organisations and private agencies as well as Social Services.

I have not tried to find information or advice in the last 12 months
Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find

SACE
Receipt; Why it is hard to find support information 2021 18-120 18 120 Carer No Current Sweep 2021 No

If you found it difficult to find information and advice, please tell us why and what we can do to make it easier for you.

[The “please tell us why” box is optional. Responses obtained should not be returned to NHS Digital]

Open response question

SACE
Receipt; How helpful has information been in the last year 2021 18-120 18 120 Carer No Past year Sweep 2021 No

In the last 12 months, how helpful has the information and advice you have received been? Please include information and advice from different organisations, such as voluntary organisations and private agencies as well as Social Services.

I have not received any information or advice in the last 12 months
Very helpful
Quite helpful
Quite unhelpful
Very unhelpful

SACE
Receipt; How to improve carer's help and advice 2021 18-120 18 120 Carer No Current Sweep 2021 No

If you found the information and advice you received unhelpful, please tell us why and what we can do to make it more helpful for you

[The “please tell us why” box is optional. Responses obtained should not be returned to NHS Digital]

Open response question

SACE
Receipt; Has carer been consulted as much as they wanted to be 2021 18-120 18 120 Carer No Current Sweep 2021 No

In the last 12 months, do you feel you have been involved or consulted as much as you wanted to be, in discussions about the support or services provided to the person you care for?

There have been no discussions that I am aware of, in the last 12 months
I always felt involved or consulted
I usually felt involved or consulted
I sometimes felt involved or consulted
I never felt involved or consulted

SACE
Provision; Carer's employment status 2021 18-120 18 120 Carer No Current Sweep 2021 No

In addition to your caring role, please tell us which of the following also applies to you?

Please tick all that apply:
Retired
Employed full-time
Employed part-time (working 30 hours or less)
Self-employed full-time
Self-employed part-time
Not in paid work
Doing voluntary work
Other

SACE
Provision; Age of person being cared for 2021 18-120 18 120 Carer No Current Sweep 2021 No

How old is the person you care for?

Age in years
(If you don’t know the exact age, please give an approximate one – the person cared for should be aged 18 or over)

SACE
Provision; Care/Care for others 2008 18-19 18 19 Participant No Current Wave 5 No

Do you regularly look after any ill, disabled, or elderly relatives or friends aged 15 or more and in need of care without being paid. This includes both people who live here with you and those who live elsewhere.

1. Yes
2. No
Don’t Know Refused

LSYPE 
Provision; Care/Care for others 2009 19-20 19 20 Participant No Current Wave 6 No

Do you regularly look after any ill, disabled, or elderly relatives or friends aged 15 or more and in need of care without being paid. This includes both people who live here with you and those who live elsewhere.

1. Yes
2. No
Don’t Know Don’t want to answer

LSYPE 
Provision; Care/Care for others 2010 20-21 20 21 Participant No Current Wave 7 No

Do you regularly look after any ill, disabled, or elderly relatives or friends aged 15 or more and in need of care without being paid. This includes both people who live here with you and those who live elsewhere.

1. Yes
2. No
Don’t Know Don’t want to answer

LSYPE 
Provision; Care/Care for others 2015 24-25 24 25 Participant No Current Wave 8 No

Do you regularly look after any ill, disabled, or elderly relatives or friends aged 15 or more and in need of care without being paid. This includes both people who live here with you and those who live elsewhere.

1. Yes
2. No
Don’t Know Don’t want to answer

LSYPE 
Provision; Care 2004 14-15 14 15 Participant No Current Wave 1 No

Some people your age may have to look after people. This could be a brother or sister, a relative or someone else who is disabled or sick. Is there anyone like this who lives here with you that you have to look after on a regular basis?

1. Yes- in this household
2. No
Don’t Know

LSYPE 
Provision; Who you care for 2004 14-15 14 15 Participant No Current Wave 1 No

Who do you look after?

1. Father/mother
2. Grandfather/mother
3. Brother/sister
4. Another adult- related
5. Another adult-not related
6. Another child-related
7. Another child-not related
Don’t know

LSYPE 
Provision; Frequency of care 2004 14-15 14 15 Participant No Current Wave 1 No

About how many hours a week would you say that you usually spend looking after this person (these people) or doing things for them?

Enter the number of hours Don’t Know

LSYPE 
Provision; ADL/IADL- frequency of care 2004 14-15 14 15 Participant No Current Wave 1 No

How many hours a week would you say that you spend doing household chores such as cooking, cleaning, washing up and gardening?

Enter the number of hours Don’t Know

LSYPE 
Provision; Care 2004 14-15 14 15 Participant No Current Wave 1 No

Is there anyone living with you who is sick, disabled or elderly who you look after or give special help to other than in a professional capacity. For example, a sick or disabled or elderly relative/husband/wife/child/friend/parent etc..?

1. Yes
2. No
Don’t Know

LSYPE 
Provision; Frequency of care 2004 14-15 14 15 Participant No Current Wave 1 No

About how long do you spend each week looking after or helping this person/these people who lives/live with you?

1. 1. 0-19 hours per week
2. 20-34 hours per week
3. 35-49 hours per week
4. 50-99 hours per week
5. 100 or more hours per week
6. Varies-under 20 hours
7. Varies- 20 hours or more
Don’t know

LSYPE 
Provision; Care for others 2004 14-15 14 15 Participant No Current Wave 1 No

Is there anyone not living with you who is sick, disabled or elderly who you look after or give special help to other than in a professional capacity. For example, a sick or disabled or elderly relative/husband/wife/child/friend/parent etc..?

1. Yes
2. No
Don’t Know

LSYPE 
Provision; Frequency of care 2004 14-15 14 15 Participant No Current Wave 1 No

About how long do you spend each week looking after or helping this person/these people who does not /do not live with you?

1. 1. 0-19 hours per week
2. 20-34 hours per week
3. 35-49 hours per week
4. 50-99 hours per week
5. 100 or more hours per week
6. Varies-under 20 hours
7. Varies- 20 hours or more
Don’t know

LSYPE 
Provision; Care 2005 15-16 15 16 Participant No Current Wave 2 No

Some people your age may have to look after people. This could be a brother or sister, a relative or someone else who is disabled or sick. Is there anyone like this who lives here with you that you have to look after on a regular basis?

1. Yes- in this household
2. No
Don’t Know

LSYPE 
Provision; Who you care for 2005 15-16 15 16 Participant No Current Wave 2 No

Who do you look after?

1. Father/mother
2. Grandfather/mother
3. Brother/sister
4. Another adult- related
5. Another adult-not related
6. Another child-related
7. Another child-not related
Don’t know

LSYPE 
Provision; Frequency of care 2005 15-16 15 16 Participant No Current Wave 2 No

About how many hours a week would you say that you usually spend looking after this person (these people) or doing things for them?

Enter the number of hours Don’t Know

LSYPE 
Provision; ADL/IADL- frequency of care 2005 15-16 15 16 Participant No Current Wave 2 No

How many hours a week would you say that you spend doing household chores such as cooking, cleaning, washing up and gardening?

Enter the number of hours Don’t Know

LSYPE 
Provision; Care 2005 15-16 15 16 Participant No Current Wave 2 No

Is there anyone living with you who is sick, disabled or elderly who you look after or give special help to other than in a professional capacity. For example, a sick or disabled or elderly relative/husband/wife/child/friend/parent etc..?

1. Yes
2. No
Don’t Know

LSYPE 
Provision; Frequency of care 2005 15-16 15 16 Participant No Current Wave 2 No

About how long do you spend each week looking after or helping this person/these people who lives/live with you?

1. 1. 0-19 hours per week
2. 20-34 hours per week
3. 35-49 hours per week
4. 50-99 hours per week
5. 100 or more hours per week
6. Varies-under 20 hours
7. Varies- 20 hours or more
Don’t know

LSYPE 
Provision; Care for others 2005 15-16 15 16 Participant No Current Wave 2 No

Is there anyone not living with you who is sick, disabled or elderly who you look after or give special help to other than in a professional capacity. For example, a sick or disabled or elderly relative/husband/wife/child/friend/parent etc..?

1. Yes
2. No
Don’t Know

LSYPE 
Provision; Frequency of care 2005 15-16 15 16 Participant No Current Wave 2 No

About how long do you spend each week looking after or helping this person/these people who does not /do not live with you?

1. 1. 0-19 hours per week
2. 20-34 hours per week
3. 35-49 hours per week
4. 50-99 hours per week
5. 100 or more hours per week
6. Varies-under 20 hours
7. Varies- 20 hours or more
Don’t know

LSYPE 
Provision; Care for others 2006 16-17 16 17 Participant No Current Wave 3 No

Some people your age may have to look after people. This could be a brother or sister, a relative or someone else who is disabled or sick. Is there anyone like this who lives here with you that you have to look after on a regular basis?

1. Yes- in this household
2. No
Don’t Know

LSYPE 
Provision; Who you care for 2006 16-17 16 17 Participant No Current Wave 3 No

Who do you look after?

1. Father/mother
2. Grandfather/mother
3. Brother/sister
4. Another adult- related
5. Another adult-not related
6. Another child-related
7. Another child-not related
Don’t know

LSYPE 
Provision; Frequency of care 2006 16-17 16 17 Participant No Current Wave 3 No

About how many hours a week would you say that you usually spend looking after this person (these people) or doing things for them?

Enter the number of hours Don’t Know

LSYPE 
Provision; Care/Care for others 2007 17-18 17 18 Participant No Current Wave 4 No

Do you regularly look after any ill, disabled, or elderly relatives or friends aged 15 or more and in need of care without being paid. This includes both people who live here with you and those who live elsewhere.

1. Yes
2. No
Don’t Know

LSYPE 
Need; Difficulty with ADLs & receipt of allowances 2006 66-82 66 82 Participant No Current 8yr Re-survey No

Do you:
-have difficulty bathing or dressing yourself?
-have difficulty walking up a flight of stairs?
-receive a disability living allowance,
-attendance allowance or blue badge?
-receive a carer’s allowance?

Yes
No

MWS
Need; Difficulty with ADLs & receipt of allowances 2010 70-86 70 86 Participant No Current 12yr Re-survey No

Do you:
-have difficulty bathing or dressing yourself?
-have difficulty walking up a flight of stairs?
-have a disability allowance, attendance
allowance or blue badge?

Yes
No

MWS
Need, Receipt; Difficulty with ADLs & receipt of help 2013 73-89 73 89 Participant No Current 15 yr Re-survey No

Do you find any of the following tasks difficult?

Do you need help with any of the above tasks?

Part 1:
walking
climbing stairs
dressing
washing
shopping
preparing meals

Part 2:
Yes
No

MWS
Provision; Provision of care for others & hours caring 2013 73-89 73 89 Participant No Current 15 yr Re-survey No

Do you regularly care for family members or others because of their health, disability or other problems?

If Yes, how many days a week?

Part 1:
Yes
No

Part 2:
Days per week.

MWS
Need, Receipt; Difficulty with ADLs 2018 78-92 78 92 Participant No Current 20 yr Re-survey No

Do you find any of the following tasks difficult?

Walking?
Climbing stairs?
Dressing?
Washing?
Shopping?
Preparing meals?

MWS
Need; Housebound/Bedbound 2018 78-92 78 92 Participant No Current 20 yr Re-survey No

Are you now:

Housebound
Bedbound
Neither

MWS
Provision; Caring for others & how much 2018 78-92 78 92 Participant No Current 20 yr Re-survey No

Do you regularly care for family members or others because of their health, disability or other problems?

How much caring do you do?

Part 1:
Yes
No

Part 2:
Hours a day
Days a week

MWS
Provision; Who does person care for? 2018 78-92 78 92 Participant No Current 20 yr Re-survey No

Is the person you provide most care for

Husband/partner
Parent
Child
Other

MWS
Provision; What problem does care recipient have? 2018 78-92 78 92 Participant No Current 20 yr Re-survey No

What health, disability or other problem do they [person participant cares for] have?

Dementia
Cancer
Other

MWS
Provision; How long spent caring 2018 78-92 78 92 Participant No Current 20 yr Re-survey No

How long have you been caring for them?

Years (0 if less than 1)

MWS
Receipt; Adults with learning disabilities who live/don't live with carer 2014 0-120 0 120 Participant No Past year 2014 No

Data item collected as:
Lives with family carer
This item will record whether an individual lives with a family carer.
It is intended to capture where people are living with a family member who may or may not be providing care,

Person does not live with a family carer
Person lives with a family carer, relationship not known
Parent
Sibling
Son/Daughter
Other relative
The family carer is not related
Partner/spouse
Not Known

LDSS
Receipt; Receipt of day centre or alternative 2014 0-120 0 120 Participant No Past year 2014 No

Data item collected as:
Day Centre and Alternative Opportunities
These items will record the day opportunities including centre and non-centre based opportunities that the person is currently engaged in.

Attends a day centre:
Enter number of hours per week which person attends a day centre (in 15 minute increments)
Person does not attend a day centre
Person attends a day centre, amount of time not specified
Not known

Has alternative opportunities:
Enter number of hours per week which person has alternative opportunities (in 15 minute increments)
Person does not have alternative opportunities
Person has alternative opportunities, amount of time not specified
Not known

LDSS
Receipt; Person service status 2013 0-120 0 120 Participant No Past year 2013 No

Data item collected as:
Person Service Status
This item will record the current service status of the person i.e. whether or not the Council is currently funding a service. This information will assist the LDSS team with time series analysis.

01 Person is receiving a Council-funded service
02 Person is not receiving a Council-funded service
03 Person deceased
-99 Not Known

LDSS
Receipt; Accomodation type - adults with learning disabilities 2013 0-120 0 120 Participant No Past year 2013 No

Data item collected as:
Accommodation Type:
This item will record the type of accommodation in which the person is normally resident.

01 Homeless
02 Mainstream housing without support
03 Mainstream housing with support
04 Mainstream housing support status unknown
05 Special Housing
06 Sheltered Housing
07 Supported accommodation
08 Specialist Rehabilitation Units
09 Registered adult care homes
10 Registered child care accommodation
11 NHS Facilities/hospitals
12 Penal institutions
13 Independent hospitals
14 Independent hospices
15 Mobile accommodation
-99 Not Known

LDSS
Receipt; Adults with learning disabilities who live/don't live with carer 2013 0-120 0 120 Participant No Past year 2013 No

Data item collected as:
Lives with family carer
This item will record whether an individual lives with a family carer.
It is intended to capture where people are living with a family member who may or may not be providing care,

Person does not live with a family carer
Person lives with a family carer, relationship not known
Parent
Sibling
Son/Daughter
Other relative
The family carer is not related
Partner/spouse
Not Known

LDSS
Receipt; Receipt of day centre or alternative 2013 0-120 0 120 Participant No Past year 2013 No

Data item collected as:
Day Centre and Alternative Opportunities
These items will record the day opportunities including centre and non-centre based opportunities that the person is currently engaged in.

Attends a day centre:
Enter number of hours per week which person attends a day centre (in 15 minute increments)
Person does not attend a day centre
Person attends a day centre, amount of time not specified
Not known

Has alternative opportunities:
Enter number of hours per week which person has alternative opportunities (in 15 minute increments)
Person does not have alternative opportunities
Person has alternative opportunities, amount of time not specified
Not known

LDSS
Receipt; Person service status 2012 0-120 0 120 Participant No Past year 2012 No

Data item collected as:
Person Service Status
This item will record the current service status of the person i.e. whether or not the Council is currently funding a service. This information will assist the LDSS team with time series analysis.

01 Person is receiving a Council-funded service
02 Person is not receiving a Council-funded service
03 Person deceased
-99 Not Known

LDSS
Receipt; Accommodation type - adults with learning disabilities 2012 0-120 0 120 Participant No Past year 2012 No

Data item collected as:
Accommodation Type:
This item will record the type of accommodation in which the person is normally resident.

01 Homeless
02 Mainstream housing without support
03 Mainstream housing with support
04 Mainstream housing support status unknown
05 Special Housing
06 Sheltered Housing
07 Supported accommodation
08 Specialist Rehabilitation Units
09 Registered adult care homes
10 Registered child care accommodation
11 NHS Facilities/hospitals
12 Penal institutions
13 Independent hospitals
14 Independent hospices
15 Mobile accommodation
-99 Not Known

LDSS
Receipt; Adults with learning disabilities who live/don't live with carer 2012 0-120 0 120 Participant No Past year 2012 No

Data item collected as:
Lives with family carer
This item will record whether an individual lives with a family carer.
It is intended to capture where people are living with a family member who may or may not be providing care,

Person does not live with a family carer
Person lives with a family carer, relationship not known
Parent
Sibling
Son/Daughter
Other relative
The family carer is not related
Partner/spouse
Not Known

LDSS
Receipt; Receipt of day centre or alternative 2012 0-120 0 120 Participant No Past year 2012 No

Data item collected as:
Day Centre and Alternative Opportunities
These items will record the day opportunities including centre and non-centre based opportunities that the person is currently engaged in.

Attends a day centre:
Enter number of hours per week which person attends a day centre (in 15 minute increments)
Person does not attend a day centre
Person attends a day centre, amount of time not specified
Not known

Has alternative opportunities:
Enter number of hours per week which person has alternative opportunities (in 15 minute increments)
Person does not have alternative opportunities
Person has alternative opportunities, amount of time not specified
Not known

LDSS
Receipt; Adults with learning disabilities who live/don't live with carer 2019 0-120 0 120 Participant No Past year 2019 No

Data item collected as:
Number of adults with learning disabilities known to local authorities who do/do not live with a family carer

Lives with a family carer
Does not live with a family carer
Not known

LDSS
Provision; Types of family carer 2019 0-120 0 120 Participant No Past year 2019 No

Data item collected as:
Types of family carer with whom adults with learning disabilities known to local authorities live

Parent
Sibling
Son/daughter
Partner/spouse
Other relative
Not related

LDSS
Receipt; Adults with learning disabilities who live/don't live with carer - age 2019 0-120 0 120 Participant No Past year 2019 No

Data item collected as:
Adults with learning disabilities known to local authorities who do/do not live with a family carer by age (does not include Glasgow City)

Do live with
Don’t live with

Responses for all data items:
Lives with a parent carer
Lives with other family carer
Lives with a family carer not specified
Does not live with family carer
Not recorded
Age range as recorded

LDSS
Receipt; Accommodation type - adults with learning disabilities 2019 0-120 0 120 Participant No Past year 2019 No

Data item collected as:
Accommodation type for adults with learning disabilities known to local authorities

Mainstream accommodation – no support
Mainstream accommodation – with support
Mainstream – support unknown
Supported accommodation
Registered adult care home
Other

LDSS
Need; No. of adults with learning disabilities known to local authority 2018 0-120 0 120 Participant No Past year 2018 No

Data item collected as:
Number of adults with learning disabilities known to local authorities who do/do not live with a family carer

Lives with a family carer
Does not live with a family carer
Not known

LDSS
Receipt; Adults with learning disabilities who live/don't live with carer - age 2018 0-120 0 120 Participant No Past year 2018 No

Data item collected as:
Adults with learning disabilities known to local authorities who do/do not live with a family carer by age

Do live with
Don’t live with

Responses for all data items:
Lives with a parent carer
Lives with other family carer
Lives with a family carer not specified
Does not live with family carer
Not recorded
Age range as recorded

LDSS
Need; No. of adults with learning disability known to local authority 2018 0-120 0 120 Participant No Past year 2018 No

Data item collected as:
Types of family carer with whom adults with learning disabilities known to local authorities live

Parent
Sibling
Son/daughter
Partner/spouse
Other relative
Not related

LDSS
Receipt; No. of adults living in accommodation by carer status 2018 0-120 0 120 Participant No Past year 2018 No

Number of adults living in the same accommodation by family carer status

Adults who live with a family carer – number of
Adults who do not live with a family carer – number of
Not recorded – number of
All adults – number of

LDSS
Receipt; Accommodation type - adults with learning disabilities 2018 0-120 0 120 Participant No Past year 2018 No

Data item collected as:
Accommodation type for adults with learning disabilities known to local authorities

Mainstream accommodation – no support
Mainstream accommodation – with support
Mainstream – support unknown
Supported accommodation
Registered adult care home
Other

LDSS
Receipt; Day centre attendance - hours 2018 0-120 0 120 Participant No Past year 2018 No

Day centre attendance hours and alternative opportunity use by adults with learning disabilities known to local authorities

Attends a day centre fewer than 30 hours
Attends a day centre 30 hours or more
Attends a day centre 30 hours or more
Does not attend day centre
Not recorded
Fewer than 10 hours
10-19.75 hours
20-29.75 hours
30+ hours
Time not specified
Does not attend a day centre
Not recorded
Uses alternative opportunities

LDSS
Receipt; Adults with learning disabilities who live/don't live with carer 2017 0-120 0 120 Participant No Past year 2017 No

Data item collected as:
Lives with family carer
The data provided should only include individuals you have had contact with within the last year (since April 2016). The data provided should be the latest available information you have for this person.

Person does not live with a family carer
Person lives with a family carer, relationship not known
Parent
Sibling
Son/Daughter
Other relative
The family carer is not related
Partner/spouse
Not Known

LDSS
Receipt; Accommodation type - adults with learning disabilities 2017 0-120 0 120 Participant No Past year 2017 No

Data item collected as:
Accommodation Type
The data provided should only include individuals you have had contact with within the last year (since April 2016). The data provided should be the latest available information you have for this person.

01 Homeless
02 Mainstream housing without support
03 Mainstream housing with support
04 Mainstream housing support status unknown
05 Special Housing
06 Sheltered Housing
07 Supported accommodation
08 Specialist Rehabilitation Units
09 Registered adult care homes
10 Registered child care accommodation
11 NHS Facilities/hospitals
12 Penal institutions
13 Independent hospitals
14 Independent hospices
15 Mobile accommodation
-99 Not Known

LDSS
Receipt; Person service status 2017 0-120 0 120 Participant No Past year 2017 No

Data item collected as:
Person Service Status
This item will record the current service status of the person i.e. whether or not the Council is currently funding a service. This information will assist the LDSS team with time series analysis.

01 Person is receiving a Council-funded service
02 Person is not receiving a Council-funded service
03 Person deceased
-99 Not Known

LDSS
Receipt; Receipt of day centre or alternative 2017 0-120 0 120 Participant No Past year 2017 No

Data item collected as:
Day Centre and Alternative Opportunities
These items will record the day opportunities including centre and non-centre based opportunities that the person is currently engaged in.

Attends a day centre:
Enter number of hours per week which person attends a day centre (in 15 minute increments)
Person does not attend a day centre
Person attends a day centre, amount of time not specified
Not known

Has alternative opportunities:
Enter number of hours per week which person has alternative opportunities (in 15 minute increments)
Person does not have alternative opportunities
Person has alternative opportunities, amount of time not specified
Not known

LDSS
Receipt; Person service status 2015 0-120 0 120 Participant No Past year 2015 No

Data item collected as:
Person Service Status
This item will record the current service status of the person i.e. whether or not the Council is currently funding a service. This information will assist the LDSS team with time series analysis.

01 Person is receiving a Council-funded service
02 Person is not receiving a Council-funded service
03 Person deceased
-99 Not Known

LDSS
Receipt; Accommodation type - adults with learning disabilities 2015 0-120 0 120 Participant No Past year 2015 No

Data item collected as:
Accommodation Type:
This item will record the type of accommodation in which the person is normally resident.

01 Homeless
02 Mainstream housing without support
03 Mainstream housing with support
04 Mainstream housing support status unknown
05 Special Housing
06 Sheltered Housing
07 Supported accommodation
08 Specialist Rehabilitation Units
09 Registered adult care homes
10 Registered child care accommodation
11 NHS Facilities/hospitals
12 Penal institutions
13 Independent hospitals
14 Independent hospices
15 Mobile accommodation
-99 Not Known

LDSS
Receipt; Adults with learning disabilities who live/don't live with carer 2015 0-120 0 120 Participant No Past year 2015 No

Data item collected as:
Lives with family carer
This item will record whether an individual lives with a family carer.
It is intended to capture where people are living with a family member who may or may not be providing care,

Person does not live with a family carer
Person lives with a family carer, relationship not known
Parent
Sibling
Son/Daughter
Other relative
The family carer is not related
Partner/spouse
Not Known

LDSS
Receipt; Receipt of day centre or alternative 2015 0-120 0 120 Participant No Past year 2015 No

Data item collected as:
Day Centre and Alternative Opportunities
These items will record the day opportunities including centre and non-centre based opportunities that the person is currently engaged in.

Attends a day centre:
Enter number of hours per week which person attends a day centre (in 15 minute increments)
Person does not attend a day centre
Person attends a day centre, amount of time not specified
Not known

Has alternative opportunities:
Enter number of hours per week which person has alternative opportunities (in 15 minute increments)
Person does not have alternative opportunities
Person has alternative opportunities, amount of time not specified
Not known

LDSS
Receipt; Person service status 2014 0-120 0 120 Participant No Past year 2014 No

Data item collected as:
Person Service Status
This item will record the current service status of the person i.e. whether or not the Council is currently funding a service. This information will assist the LDSS team with time series analysis.

01 Person is receiving a Council-funded service
02 Person is not receiving a Council-funded service
03 Person deceased
-99 Not Known

LDSS
Receipt; Accommodation type - adults with learning disabilities 2014 0-120 0 120 Participant No Past year 2014 No

Data item collected as:
Accommodation Type:
This item will record the type of accommodation in which the person is normally resident.

01 Homeless
02 Mainstream housing without support
03 Mainstream housing with support
04 Mainstream housing support status unknown
05 Special Housing
06 Sheltered Housing
07 Supported accommodation
08 Specialist Rehabilitation Units
09 Registered adult care homes
10 Registered child care accommodation
11 NHS Facilities/hospitals
12 Penal institutions
13 Independent hospitals
14 Independent hospices
15 Mobile accommodation
-99 Not Known

LDSS
Need; ADL-moving 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Are you able to get on a bus? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL- transferring 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Are you able to go up and down stairs? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; IADL - light housework 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Are you able to do the light housework? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; IADL - heavy housework 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Are you able to do the heavy housework? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; IADL- shopping 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Are you able to shop and carry heavy bags (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL-moving 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Are you able to reach an overhead shelf (If YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL-moving 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Are you able to tie a good knot in a piece of string (If YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL- dressing 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Are you able to put on your shoes and socks or stockings? (If YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Do you have difficulty with household tasks such as making yourself a cup of tea?

0. No
1. Yes
2. Impossible
8. No answer
9. Not asked

CFAS_MRC
Need; IADL- managing finances 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Have you needed any help recently to check your change after spending small amounts of money?

0. No
1. Yes
8. No answer
9. Not asked

CFAS_MRC
Need; ADL-toileting 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Are you able to get to or use the toilet? (If YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Provision; Who helps 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Does anyone help you with any of the day to day tasks I’ve just asked about?

0. No
1. Yes
8. No answer
9. Not asked

CFAS_MRC
Provision; Who helps 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Who usually helps?

A No-one
B Spouse
C Daughter
D Daughter-in-law E Son
F Son-in-law G Brother
H Sister I Other relative
J Friend or Neighbour K Home help
L Care worker
M Meals on wheels
N Community worker O Community nurse P Warden
Q Paid help
R Other (specify)
S Not applicable

CFAS_MRC
Provision; Day to day activities 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Do they help every day, most days or less often?

0. Every day
1. Most days
2. Less often
8. No answer
9. Not asked

CFAS_MRC
Provision; Who else helps 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Does anyone else help?

A No-one
B Spouse
C Daughter
D Daughter-in-law E Son
F Son-in-law G Brother
H Sister I Other relative
J Friend or Neighbour K Home help
L Care worker
M Meals on wheels
N Community worker O Community nurse P Warden
Q Paid help
R Other (specify)
S Not applicable

CFAS_MRC
Need; ADL-(all) 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Establish a degree of mobility of subject

1. Usually ambulant non house bound
2. Usually ambulant house bound
3. Chairfast permanently
4. Bedfast permanently
7. Unable to establish mobility

CFAS_MRC
Receipt; Accommodation 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Establish type of accommodation

1. House/Flat
2. Granny Flat
3. Warden Controlled Flat
4. Council Residential Home
5. Private Residential Home
6. Private/Charity Nursing Home
7. Long Stay Hospital
8. Not established

CFAS_MRC
Need; ADL- grooming 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

I would like to know if you are able, or if you have any difficulty with the following activities:

Are you able to cut your own toenails? (IF YES: Do you have difficulty cutting your own toenails?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL-bathing 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to wash all over or bathe? (IF YES: Do you have difficulty washing all over or bathing?)

0. Needs help
1. Yes, some difficulty
2. Yes, no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL-moving 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to get on a bus? (IF YES: Do you have difficulty?)

0. Needs help
1. Yes, some difficulty
2. Yes, no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL- transferring 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to go up and down stairs? (IF YES: Do you have difficulty?)

0. Needs help
1. Yes, some difficulty
2. Yes, no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; IADL - heavy housework 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to do the heavy housework? (IF YES: Do you have difficulty?)

0. Needs help
1. Yes, some difficulty
2. Yes, no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; IADL- shopping 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to shop and carry heavy bags (IF YES: Do you have difficulty?)

0. Needs help
1. Yes, some difficulty
2. Yes, no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; IADL- meal preparation 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to prepare and cook a hot meal? (IF YES: Do you have difficulty?)

0. Needs help
1. Yes, some difficulty
2. Yes, no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL-moving 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to reach an overhead shelf (If YES: Do you have difficulty?)

0. Needs help
1. Yes, some difficulty
2. Yes, no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL-moving 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to tie a good knot in a piece of string (If YES: Do you have difficulty?)

0. Needs help
1. Yes, some difficulty
2. Yes, no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL- dressing 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to put on your shoes and socks or stockings? (If YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL-toileting 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to get to or use the toilet? (If YES: Do you have difficulty?)

0. Needs help
1. Yes, some difficulty
2. Yes, no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; IADL - light housework 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Are you able to do the light housework? (If YES: Do you have difficulty?)

0. Needs help
1. Yes, some difficulty
2. Yes, no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Provision; Who helps 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Does anyone help you with any of the day to day tasks I’ve just asked about?

0. No
1. Yes
8. No answer
9. Not asked

CFAS_MRC
Provision; Who helps 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Who usually helps?

A No-one
B Spouse
C Daughter
D Daughter-in-law E Son
F Son-in-law G Brother
H Sister I Other relative
J Friend or Neighbour K Home help
L Care worker
M Meals on wheels
N Community worker O Community nurse P Warden
Q Paid help
R Other (specify)
S Not applicable

CFAS_MRC
Provision; Day to day activities 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Do they help every day, most days or less often?

0. Every day
1. Most days
2. Less often
8. No answer
9. Not asked

CFAS_MRC
Need; ADL-(all) 1999 65-84 65 84 Participant No Current MRC- Prevalence Screen Questionnaire No

Establish a degree of mobility

1. Usually ambulant non house bound
2. Usually ambulant house bound
3. Chairfast permanently
4. Bedfast permanently
7. Unable to establish mobility

CFAS_MRC
Need; IADL- managing finances 1999 65-84 65 84 Participant No Current MRC- Assessment Questionnaire No

Needs help with money

0. No
1. Yes

CFAS_MRC
Need; ADL- grooming 2000 65-84 65 84 Participant No Current MRC Questionnaire No

I would like to know if you are able, or if you have any difficulty with the following activities:

Are you able to cut your own toenails? (IF YES: Do you have difficulty cutting your own toenails?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Need; ADL-bathing 2000 65-84 65 84 Participant No Current MRC Questionnaire No

Are you able to wash all over or bathe? (IF YES: Do you have difficulty washing all over or bathing?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_MRC
Provision; Caring responsibilities 2018 17-17 17 17 Participant No Currently MCS7 (Age 17 Survey) No

Taking account of all the unpaid help you give, including travelling time, about how long did you spend looking after people last week?

1 0-2 hours
2 3-4 hours
3 5-9 hours
4 10-19 hours
5 20-29 hours
6 30 hours or more

None

MCS
Provision; Caring responsibilities 2018 17-17 17 17 Participant No Currently MCS7 (Age 17 Survey) No

Please tell us who you care for.

1 Your mother
2 Your father
3 Your brother(s)
4 Your sister(s)
5 Your grandmother(s)
6 Your grandfather(s)
7 Somebody else (PLEASE WRITE IN)

None

MCS
Provision; Caring responsibilities 2018 17-17 17 17 Participant No Currently MCS7 (Age 17 Survey) No

Some people have extra responsibilities because they look after someone who has long- term physical or mental health difficulties or disability, or problems related to old age. ADD INFO BUTTON: “For example: cooking, cleaning, shopping, providing nursing and personal care, and giving emotional support.”
Do you regularly look after anyone who is ill, disabled or elderly and in need of care, without being paid? This includes both people who live with you and those who live elsewhere. Please do not include caring you do for others that you do in a professional capacity (i.e. as a job).

1 Yes
2 No

None

MCS
Provision; Contacts received by local authority and source of contact 2003 0-120 0 120 Data manager No Past year StatsWales No

Contacts received during the year, by local authority and source of contact

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CA/003a: Self
CA/003b: Relative
CA/003c: Friend or neighbour
CA/003d: Early intervention prevention service (Step-up)
CA/003e: Health
CA/003f: Education
CA/003g: Housing
CA/003h: Police CA/003i: Probation
CA/003j: Third Sector Organisation
CA/003k: Local Authority

StatsWales
Provision; New assessments completed for children by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

New assessments completed for children during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CH/006: The total number of new assessments completed for children during the year

StatsWales
Provision; Assessments completed for children completed within statutory timescales 2003 0-120 0 120 Data manager No Past year StatsWales No

New assessments completed for children during the year that were completed within statutory timescales, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CH/012: The number of new assessments completed for children during the year that were completed within statutory timescales

StatsWales
Provision; New assessments completed for children undertaken in secure estate 2003 0-120 0 120 Data manager No Past year StatsWales No

Data Provider: Welsh GovernmentExperimental StatisticsNew assessments completed for children during the year undertaken in secure estate, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CH/010: The number of new assessments completed for children during the year undertaken in secure estate

StatsWales
Provision; Children placed on protection register by local authority, category of abuse & age 2003 0-120 0 120 Data manager No Past year StatsWales No

Children placed on the child protection register during the year, by local authority, category of abuse and age

This measure is divided into the fillowing data items:
CH/023a: Neglect
CH/023b: Physical abuse
CH/023c: Sexual abuse
CH/023d: Emotional abuse
CH/023e: Financial abuse
CH/023f: Neglect and physical abuse
CH/023g: Physical and sexual abuse
CH/023h: Neglect and sexual abuse
CH/023i: Neglect, physical and sexual Abuse

Response scale for all data items:
Aged under 1
Aged 1-4
Aged 5-9
Aged 10-15
Aged 16-18
Age Total

StatsWales
Provision; Strategy Meetings and Section 47 enquiries by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Strategy Meetings and Section 47 enquiries completed during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CH/020: The number of Initial Strategy Meetings for children concluded during the collection year
CH/021: The number of Strategy Meetings held during the year that progressed to Section 47 enquiries
CH/022: The total number of Section 47 Enquiries completed during the year that progressed to Initial Child Protection Conference

StatsWales
Provision; Children placed on & removed from child protection register by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Children placed on and removed from the child protection register during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CH/024: Of those children who were placed on the child protection register during the year, the number that has been previously registered under any category, at any time during the previous 12 months
CH/025: The number of initial child protection conferences held during the collection year that were held within statutory timescales
CH/027: The total number of initial core group meetings held during the year
CH/028: The total number of initial core group meetings held during the year that were held within statutory timescales
CH/035: The total number of days on the child protection register for children who were removed from the register during the year
CH/036: The total number of children removed (de-registered) from the child protection register during the year

StatsWales
Need; Children not deemed at risk of significant harm at child protection conference 2003 0-120 0 120 Data manager No Past year StatsWales No

Children during the year not deemed to be at risk of significant harm at child protection conference, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Responsd scale for all local authorities:
CH/023j: The number of children during the year not deemed to be at risk of significant harm at child protection conference but still have need for Care and Support
CH/023k: The number of children during the year not deemed to be at risk of significant harm at child protection conference and no additional eligible needs were identified

StatsWales
Need; Number of pre-birth child protection conferences convened by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of pre-birth child protection conferences convened during the year by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CA3/002: Number of pre-birth child protection conferences convened during the year

StatsWales
Need; Children on child protection register per 10,000 population aged under 18 2003 0-120 0 120 Data manager No Past year StatsWales No

Children on the child protection register at 31 March per 10,000 population aged under 18 by local authority and year

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CH/026: Children on the child protection register at 31 March
Population aged under 18
Children on the child protection register at 31 March per 10,000 population aged under 18

StatsWales
Provision; Children with a care and support plan by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Children with a care and support plan at 31 March, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for local authorities:
CH/015: The total number of children with a care and support plan at 31 March
CH/016: The total number of children with a care and support plan where needs a met through a Direct Payment at 31 March

StatsWales
Provision; Staff of local authority social services departments by post title (pre 2014-15) 2003 0-120 0 120 Data manager No Past year StatsWales No

Staff of local authority social services departments by local authority and post title (pre 2014-15)

Data collected from 2004-2014 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
Total central management and support services (CMSS)
Total social work services for adults (SWSA)
Total social work services for children and young people (SWSCYP)
Total hospital/clinic settings (H/CS)
Total domiciliary services for adults (DSA)
Total domiciliary services for children (DSC)
Total Central management and support, social work and domiciliary services (STF1)
Total residential services for elderly and elderly mentally infirm people (RSEEMIP)
Total residential services for adults with physical or sensory disabilities (RSAPSD)
Total residential services for adults with learning disabilities (RSALD)
Total residential services for adults with mental health problems (RSAMHP)
Total residential services for children and young people (RSCYP)
Total residential family centres
Total residential services (STF2)
Total Day/Community Services for elderly and elderly mentally infirm people (D/CSEEMIP)
Total Day/Community Services for adults with physical and sensory disabilities (D/CSAPSD)
Total Day/Community Services for adults with learning disabilities (D/CSALD)
Total Day/Community Services for adults with mental health problems (D/CSAMHP)
Total Day/Community Services for children and families – family care centres (D/CSCFFCS)
Total Day/community services (STF3)
Total staff (STF)

StatsWales
Provision; Staff of local authority social services depts by post title (2014-15 onwards) 2003 0-120 0 120 Data manager No Past year StatsWales No

Staff of local authority social services departments by local authority and post title (2014-15 onwards)

Data collected from 2014-2019 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
Total central management and support services (CMSS)
Total social work services for adults (SWSA)
Total social work services for children and young people (SWSCYP)
Total hospital/clinic settings (H/CS)
Total domiciliary services for adults (DSA)
Total domiciliary services for children (DSC)
Total Central management and support, social work and domiciliary services (STF1)
Total residential services for elderly and elderly mentally infirm people (RSEEMIP)
Total residential services for adults with physical or sensory disabilities (RSAPSD)
Total residential services for adults with learning disabilities (RSALD)
Total residential services for adults with mental health problems (RSAMHP)
Total residential services for children and young people (RSCYP)
Total residential family centres
Total residential services (STF2)
Total Day/Community Services for elderly and elderly mentally infirm people (D/CSEEMIP)
Total Day/Community Services for adults with physical and sensory disabilities (D/CSAPSD)
Total Day/Community Services for adults with learning disabilities (D/CSALD)
Total Day/Community Services for adults with mental health problems (D/CSAMHP)
Total Day/Community Services for children and families – family care centres (D/CSCFFCS)
Total Day/community services (STF3)
Total staff (STF)

StatsWales
Provision; Whole time equivalent staff of social services departments 2003 0-120 0 120 Data manager No Past year StatsWales No

Whole time equivalent staff of local authority social services departments (all years)

From 2004 to 2019 this measure is divided into a considerable amount of data items. These are:
Total Central management and support, social work and domiciliary services (STF1)
Total central management and support services (CMSS)
Total social work services for adults (SWSA)
Total social work services for children and young people (SWSCYP)
Total hospital/clinic settings (H/CS)
Total domiciliary services for adults (DSA)
Total domiciliary services for children (DSC)
Total residential services (STF2)
Total residential services for elderly and elderly mentally infirm people (RSEEMIP)
Total residential services for adults with physical or sensory disabilities (RSAPSD)
Total residential services for adults with learning disabilities (RSALD)
Total residential services for adults with mental health problems (RSAMHP)
Total residential services for children and young people (RSCYP)
Total residential family centres
Total Day/Community Services for elderly and elderly mentally infirm people (D/CSEEMIP)
Total Day/Community Services for adults with physical and sensory disabilities (D/CSAPSD)
Total Day/Community Services for adults with learning disabilities (D/CSALD)
Total Day/Community Services for adults with mental health problems (D/CSAMHP)
Total Day/Community Services for children and families – family care centres (D/CSCFFCS)

Number of staff for each data item is recorded for each year

StatsWales
Provision; School attendance of children receiving care by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

School attendance of children receiving care and support by measure and year

Data collected from 2017-2020 under the following data items:
Attendance rate
Authorised absence rate
Unauthorised absence rate

Each year data is given for all local authorites as:
Numerator
Denominator
Percentage / average

StatsWales
Need; Eligibility for free school meals and SENs of children receiving care 2003 0-120 0 120 Data manager No Past year StatsWales No

Eligibility for free school meals and special educational needs of children receiving care and support by measure and year

Data collected from 2017-2020 under the following data items:
Percentage of children with eligibilty for free school meals
Percentage of children with special educational needs subject to school action or school action plus
Percentage of children with a statement of special educational needs

Each year data is given for all local authorites as:
Numerator
Denominator
Percentage / average

StatsWales
Provision; Educational attainment of children receiving care by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Educational attainment of children receiving care and support by measure and year

Data collected from 2017-2020 under the following data items:
Percentage of children achieving the foundation phase indicator
Percentage of children achieving the core subject indicator at key stage 2
Percentage of children achieving the core subject indicator at key stage 3
Percentage of children achieving the level 1 threshold at key stage 4
Percentage of children achieving the level 2 threshold at key stage 4
Percentage of children achieving the level 2 threshold including English/Welsh and Mathematics at key stage 4
Percentage of children achieving the core subject indicator at key stage 4
Average wider points score at key stage 4
Average capped points score at key stage 4

Each year data is given for all local authorites as:
Numerator
Denominator
Percentage / average

StatsWales
Provision; Assessments by local authority and measure 2003 0-120 0 120 Data manager No Past year StatsWales No

Assessments by local authority and measure

Data collected from 2016-2019 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
Number of children and families who received advice or assistance from the information advice and assistance service during the year
Number of assessments of need for care and support undertaken during the year
Of those, the number that led to a care and support plan
Number of assessments of need for support for young carers undertaken during the year
Of those, the number that led to a support plan
Number of assessments of need for care and support for children undertaken during the year whilst in the secure estate
Of those, the number that led to a care and support plan
Number of requests for repeat assessment of need for care and support and need for support made by a child, young carer or person with parental responsibility during the year
Of those, the number of repeat assessments undertaken
Of those, the number of repeat assessments that led to a care and support plan or support plan
Number of care and support plans and support plans for young carers that were reviewed during the year
Of those, the number that were reviewed within agreed timescales

StatsWales
Provision; Quantitative social services performance measures - Adults 2003 0-120 0 120 Data manager No Past year StatsWales No

Quantitative social services performance measures – Adults

Data collected from 2016-2019 under the following data items:
PM18. The percentage of adult protection enquiries completed within 7 days
PM19. The rate of delayed transfers of care for social care reasons per 1,000 population aged 75 or over
PM20a. The percentage of adults who completed a period of reablement and have a reduced package of care and support 6 months later
PM20b. The percentage of adults who completed a period of reablement and have no package of care and support 6 months later
PM21. The average length of time adults (aged 65 or over) are supported in residential care homes (days)
PM22. Average age of adults entering residential care homes
PM23. The percentage of adults who have received advice and assistance from the information, advice and assistance service and have not contacted the service for 6 months

Response scale for all data items:
Numerator
Denominator
Performance Measure
Lower Quartile
Upper Quartile

StatsWales
Provision; Quantitative social services performance measures - Children and Care Leavers 2003 0-120 0 120 Data manager No Past year StatsWales No

Quantitative social services performance measures – Children and Care Leavers

Data collected from 2016-2019 under the following data items:
PM24. The percentage of assessments completed for children within statutory timescales
PM25. The percentage of children supported to remain living within their family at 31 March
PM26. The percentage of looked after children returned home from care during the year
PM27. The percentage of re-registrations of children on local authority Child Protection Registers
PM28. The average length of time for all children who were on Child Protection Registers during the year (days)
PM29a. Percentage of children achieving the core subject indicator at Key Stage 2
PM29b. Percentage of children achieving the core subject indicator at Key Stage 4
PM30. The percentage of children seen by a registered dentist within 3 months of becoming looked after
PM31. The percentage of children looked after at 31 March who were registered with a GP within 10 working days of the start of their placement
PM32. The percentage of looked after children who have experienced 1 or more changes of school, during a period or periods of being looked after, which were not due to transitional arrangements, in the year to 31 March
PM33. The percentage of looked after children on 31 March who have had three or more placements during the year
PM34a. The percentage of all care leavers who are in education, training or employment at 12 months after leaving care
PM34b. The percentage of all care leavers who are in education, training or employment at 24 months after leaving care
PM35. The percentage of care leavers who have experienced homelessness during the year

Response scale for all data items:
Numerator
Denominator
Performance Measure
Lower Quartile
Upper Quartile

StatsWales
Provision; Contacts received for adults by social services by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Contacts received for adults by statutory social services during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all locsal authorities:
AD/001: The number of contacts for adults received by statutory Social Services during the year
AD/002: The number of contacts for adults received by statutory Social Services during the year where advice or assistance was provided

StatsWales
Provision; New assessments completed for adults during the year, by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

New assessments completed for adults during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all locsal authorities:
AD/004: The number of new assessments completed for adults during the year

StatsWales
Provision; Services for adults started during the year, by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Services for adults started during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
AD/015a: Residential Care
AD/015b: Domiciliary Care
AD/015c: Day Care
AD/015d: Short Breaks

StatsWales
Need; Adults suspected of being at risk by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Adults suspected of being at risk, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
AS/001: Number of adults suspected of being at risk of abuse or neglect reported during the year
AS/002: Number of adults reported more than once for the same category of abuse or neglect during the year
AS/003: Number of adults reported for different categories of abuse or neglect during the year

StatsWales
Need; Reports of adult suspected of being at risk during year, by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Reports of an adult suspected of being at risk received during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
AD/020: The total number of reports of an adult suspected of being at risk received during the year

StatsWales
Need; Reports received during year, by local authority, age and category of abuse 2003 0-120 0 120 Data manager No Past year StatsWales No

Reports received during the year, by local authority, age and primary category of abuse

AD/022a: Neglect
AD/022b: Physical abuse
AD/022c: Sexual abuse
AD/022d: Emotional or Psychological abuse
AD/022e: Financial abuse

Response scale for all local atuhrities:
Aged 18-24
Aged 25-34
Aged 35-44
Aged 45-54
Aged 55-64
Aged 65-74
Aged 75-84
Aged 85 and over

StatsWales
Need; Ethnicity of the adult suspected of being at risk, by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Ethnicity of the adult suspected of being at risk, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
AS/004.3a: White
AS/004.3b: Mixed ethnic group
AS/004.3c: Asian or Asian British
AS/004.3d: Black, African, Caribbean or Black British
AS/004.3e: Other Ethnic Group
AS/004.3f: Information not obtained
AS/004.3g: Information refused
AS/004.3: Total

StatsWales
Need; Enquiries concluded during year, by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Enquiries concluded during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
AD/023: The total number of reports of an adult suspected of being at risk where it is necessary for enquires to be made
AD/024: The total number of enquiries completed within 7 working days from the receipt of the reported alleged abuse
AD/026: The total number of enquiries where it was determined that additional action should be taken
AD/027: The total number of enquiries where the individual refused to participate in the identified action

StatsWales
Provision; Contacts received for adult carers by social services by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Contacts received for adult carers by statutory social services during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
CA/001: The total number of contacts to statutory social services by adult carers or professionals contacting the service on their behalf received during the year
CA/002: The number of contacts by adult carers received by statutory Social Services during the year where advice or assistance was provided

StatsWales
Provision; Contacts received for adult carers by local authority and source of contact 2003 0-120 0 120 Data manager No Past year StatsWales No

Contacts received for adult carers during the year, by local authority and source of contact

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
CA/003a: Self
CA/003b: Relative
CA/003c: Friend or neighbour
CA/003d: Early intervention prevention service (Step-up)
CA/003e: Health
CA/003f: Education
CA/003g: Housing
CA/003h: Police CA/003i: Probation
CA/003j: Third Sector Organisation
CA/003k: Local Authority

StatsWales
Need; Carers needs assessments for adults undertaken by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Carers needs assessments for adults undertaken during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CA/004: The total number of carers needs assessments for adults undertaken during the year

StatsWales
Provision; Contacts received for adults during year by local authority and source of contact 2003 0-120 0 120 Data manager No Past year StatsWales No

Contacts received for adults during the year, by local authority and source of contact

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CA/003a: Self
CA/003b: Relative
CA/003c: Friend or neighbour
CA/003d: Early intervention prevention service (Step-up)
CA/003e: Health
CA/003f: Education
CA/003g: Housing
CA/003h: Police CA/003i: Probation
CA/003j: Third Sector Organisation
CA/003k: Local Authority

StatsWales
Provision; Adults with a care and support plan by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Adults with a care and support plan at 31 March, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
AD/012: The number of adults with a care and support plans at 31 March
AD/013: The total number of adults with a care and support plan where needs a met through a Direct Payment at 31 March

StatsWales
Provision; Contacts received for children by social services by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Contacts received for children by statutory social services during the year, by local authority

Data collected from 2020-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
CH/001: The number of contacts for children received by statutory Social Services during the year
CH/002: The number of contacts for children received by statutory Social Services during the year where advice or assistance was provided

StatsWales
Provision; Children receiving care and support by local authority and age group 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support by local authority and age group

Data collected from 2017-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Resonse scale for all local authorities:
Under 1 year
1 to 4 years
5 to 9 years
10 to 15 years
16 years and over
All Ages

StatsWales
Provision; Children receiving care and support by local authority and gender 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support by local authority and gender

Data collected from 2017-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities (number of children):
Male
Female
All children receiving care and support

StatsWales
Provision; Children receiving care and support by local authority and looked after status 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support by local authority and looked after status

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Respojnse scale for all local authorities (number of childre):
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children receiving care and support, but not looked after, and not on the child protection register at 31st March
All children receiving care and support

StatsWales
Provision; Children receiving care and support by local authority and disability 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support by local authority and disability

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities (number of children):
Children with a disability
Children with no disability
All children receiving care and support

StatsWales
Provision; Children receiving care and support by age group and looked after status 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support by age group and looked after status

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all children:
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children receiving care and support, but not looked after, and not on the child protection register at 31st March
All children receiving care and support

StatsWales
Provision; Children receiving care and support by ethnicity and looked after status 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support by ethnicity and looked after status

Data collected from 2017-2020 for all local authorities.

This measure was collected under the following data items:
White
Mixed ethnic groups
Asian or Asian BritishIncludes Chinese and Chinese British
Black, African, Caribbean or Black British
Other ethnic groups
Information Refused
Information not obtained

Response scale for all local authorities (number of children):
Children looked after at 31 MarchChildren looked after may also have been on the child protection register at 31st March.
Children on the child protection register, but not looked after at 31st March
Children receiving care and support, but not looked after, and not on the child protection register at 31st March
All children receiving care and support

StatsWales
Provision; Children receiving care and support by local authority and category of need 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support by local authority and category of need

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authrities (number of children):
Abuse or neglect
Child’s disability or illness
Parental disability or illness
Family in acute stress
Family dysfunction
Socially unacceptable behaviour
Absent parenting
Adoption disruption
All children receiving care and support

StatsWales
Provision; Children receiving care and support by looked after status and disability 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support by looked after status and disability

Data collected from 2017-2020 for all local authorities.

This measure was collected under the following data items:
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children receiving care and support, but not looked after, and not on the child protection register at 31st March

Response scale for all data items (number of children)
Children with a disability
Children with no disability
All children receiving care and support

StatsWales
Provision; Children receiving care and support by category of need and disability 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support by category of need and disability

Data collected from 2017-2020 for all local authorities.

This measure was collected under the following data items:
Abuse or neglect
Child’s disability or illness
Parental disability or illness
Family in acute stress
Family dysfunction
Socially unacceptable behaviour
Absent parenting
Adoption disruption

Response scale for all data items (number of children):
Children with a disability
Children with no disability
All children receiving care and support

StatsWales
Provision; Dental checks of children receiving care by local authority & looked after status 2003 0-120 0 120 Data manager No Past year StatsWales No

Dental checks of children receiving care and support by local authority, looked after status and measure

Children receiving care and support by local authority and category of need

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
Dental checks up to date
Dental checks not up to date
Children for whom dental check information was available
Dental check information not available
All children receiving care and support

StatsWales
Provision; Child health surveillance checks by local authority, looked after status and measure 2003 0-120 0 120 Data manager No Past year StatsWales No

Child health surveillance checks by local authority, looked after status and measure

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities (number of children):
Child health checks up to date
Child health checks not up to date
Children for whom child health check information was available
Child health check information not available
All children receiving care and support

StatsWales
Provision; Disabilities of children receiving care and support by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Disabilities of children receiving care and support by measure and year

Data collected from 2017-2020 for all local authorities.

This measure was collected under the following data items:
Percentage of children with a disability
Percentage of children with a mobility disability
Percentage of children with a manual dexterity disability
Percentage of children with a physical co-ordination disability
Percentage of children with a continence disability
Percentage of children unable to lift, carry or otherwise move everyday objects
Percentage of children with a speech, hearing and eye sight disability
Percentage of children with a memory disability
Percentage of children unable to perceive the risk of physical danger

Each year data is given for all data items as:
Numerator
Denominator
Percentage / average

StatsWales
Need; Health of children receiving care and support by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Health of children receiving care and support by measure and year

Data collected from 2017-2020 for all local authorities.

This measure was collected under the following data items:
Percentage of children with up-to-date immunisationsChildren with immunisations up to date are recorded as having received all the immunisations that a child of their age should have received by the census date.
Percentage of children with up-to-date dental checks (for children aged 5 and over)Children with up to date dental checks are defined as those who have had their teeth checked by a dentist during the twelve months to 31st March
Percentage of children with substance misuse problems (for children aged 10 and over).
Percentage of children with mental health problems (for children aged 10 and over
Percentage of children with up-to-date child health surveillance checks (for children aged 0 to 5)
Percentage of children with autistic spectrum disorder

Each year data is given for all data items as:
Numerator
Denominator
Percentage / average

StatsWales
Provision; Parental factors of children receiving care and support by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Parental factors of children receiving care and support by measure and year

Data collected from 2017-2020 for all local authorities.

This measure was collected under the following data items:
Parental substance of alcohol misuse
Parental learning disabilities
Parental mental ill health
Parental physical ill health
Domestic abuse

Each year data is given for all data items as:
Numerator
Denominator
Percentage / average

StatsWales
Provision; Youth offending of children receiving care and support by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Youth offending of children receiving care and support by measure and year

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Each year data is given for all local authorites as:
Numerator
Denominator
Percentage / average

StatsWales
Provision; Children receiving care per 10,000 population by local authority & year 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support per 10,000 population by local authority and year

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Each year data is given for all local authorites per 10,000 of the population.

StatsWales
Provision; Children receiving care and support on the Child Protection Register 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support on the Child Protection Register by local authority, category of abuse and gender

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities (number of children):
Children on the child protection register, but not looked after at 31st March
-Male
-Female
Children on the child protection register, but not looked after at 31st March

StatsWales
Provision; Immunisation status of children receiving care and support by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Immunisation status of children receiving care and support by local authority and measure

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
Immunisations up to date
Immunisations not up to date
Children for whom immunisations information was available
Immunisations information not available
All children receiving care and support

StatsWales
Need; Mental health status of children receiving care and support by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Mental health status of children receiving care and support by local authority and measure

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities:
Child mental ill health at 31st March
No child mental ill health at 31st March
Children for whom mental health information was available
Mental health information not available
All children receiving care and support

StatsWales
Provision; Substance misuse status of children receiving care by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Substance misuse status of children receiving care and support by local authority and measure

Data collected from 2017-2020 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Response scale for all local authorities (number of children):
Child substance misuse at 31st March
No child substance misuse at 31st March
Children for whom substance misuse information was available
Substance misuse information not available
All children receiving care and support

StatsWales
Provision; Children looked after by local authority and ethnicity (Prior to April 2016) 2003 0-120 0 120 Data manager No Past year StatsWales No

Children looked after at 31 March by local authority and ethnicity (Prior to April 2016)

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all local authorities:
White (number of children)
Mixed (number of children)
Asian or Asian British (number of children)
Black or Black British (number of children)
Other ethnic groups (number of children)
Unknown (number of children)
Total looked after children (number of children)

StatsWales
Provision; Children looked after during year to 31 March by local authority and need 2003 0-120 0 120 Data manager No Past year StatsWales No

Children starting to be looked after during year to 31 March by local authority and need for care

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all local authorities:
Disability (number of children)
Parental illness or disability (number of children)
Abuse or neglect (number of children)
Family in acute stress (number of children)
Family dysfunction (number of children)
Socially Unacceptable Behaviour (number of children)
Absent Parenting (including child given up for adoption) (number of children)
Adoption disruption (number of children)
Total children starting to be looked after by need for care (number of children)

StatsWales
Provision; Episodes finishing for children looked after during year by local authority and reason 2003 0-120 0 120 Data manager No Past year StatsWales No

Episodes finishing for children looked after during year to 31 March by local authority and reason for finishing

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all local authorities (number of episodes):
Episode ceases and new episode begins on same or next day
Adopted (adoption order granted by court on date episode ceased) is subdivided into
– Adopted, application unopposed
– Adopted, consent dispensed with
Died
Care taken over by another LA in the UK
Returned home to live with parents, relatives or other person with parental responsibility
Special guardianship order made to former foster carers
Special guardianship order made to carers other than former foster carers
Moved into independent living arrangement and no longer looked after: supportive accommodation providing formalised advice/support arrangements (e.g. most hostels, YMCAs, foyers, and care leavers projects)
Moved into independent living arrangement and no longer looked after: accommodation providing no formalised advice/support arrangements (e.g. B&B, bedsit, own flat, living with friends)
Transferred to care of adult social services
Sentenced to custody
Period of being looked after ceased for any other reason
Turned 18 years old and continuing to live with former foster parent(s) in a When I Am Ready arrangement
Total

StatsWales
Provision; Short breaks for children looked after by local authority and placement 2003 0-120 0 120 Data manager No Past year StatsWales No

Short breaks for children looked after by local authority and placement

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport”

Response scale for all local authorities:
Total looked after children (number of children)
Foster placements (number of children)
Placements in residential settings (number of children)

StatsWales
Provision; Short breaks for children looked after by local authority and placement 2003 0-120 0 120 Data manager No Past year StatsWales No

Short breaks for children looked after by local authority and placement

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport”

Response scale for all local authorities:
Total children starting to be looked after by need for care is subdivided into
-Family in acute stress or family dysfunction (number of children)
-Disability (number of children)
-Parental illness or disability (number of children)
-Other need for care (number of children)
Total children starting to be looked after by need for care (number of children)

StatsWales
Provision; Children looked after per 10,000 population under 18 by local authority and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Children looked after at 31 March per 10,000 population aged under 18 by local authority and year

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport”

For each year number is given per 10,000 for each local authority.

StatsWales
Provision; Children looked after by local authority and ethnicity 2003 0-120 0 120 Data manager No Past year StatsWales No

Children looked after at 31 March by local authority and ethnicity

Data collected from 2017-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport”

Response scale for all local authorities:
White
Black, African, Caribbean or Black British
Asian or Asian British
Mixed ethnic groups
Other ethnic group
Information not obtained
Total looked after children

StatsWales
Provision; Children looked after by local authority and location of placement 2003 0-120 0 120 Data manager No Past year StatsWales No

Children looked after at 31 March by local authority and location of placement

Data collected from 2007-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport”

Response scale for all local authorities:
Inside local authority in Wales (number of children)
Outside local authority in Wales (number of children)
Placed outside of Wales (number of children)
No Postcode (number of children)
Total (number of children)

StatsWales
Provision; Children looked after in foster care by local authority and location 2003 0-120 0 120 Data manager No Past year StatsWales No

Children looked after in foster care at 31 March by local authority and location of placement

Data collected from 2007-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport”

Response scale for all local authorities:
Inside local authority in Wales (number of children)
Outside local authority in Wales (number of children)
Placed outside of Wales (number of children)
No Postcode (number of children)
Total (number of children)

StatsWales
Provision; Unaccompanied asylum-seeking children looked after by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Unaccompanied asylum-seeking children being looked after at the 31 March by local authority

Data collected from 2007-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport”

For each year number of children is given.

StatsWales
Provision; Children looked after in foster placements by local authority and placement 2003 0-120 0 120 Data manager No Past year StatsWales No

Children looked after in foster placements at 31 March by local authority and placement type

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport”

Response scale for all local authrities (number of children):
Foster placement with relative or friend inside LAData has been rounded to the nearest 5 for disclosure reasons
Placement with other foster carers, provided by LA inside LAData has been rounded to the nearest 5 for disclosure reasons
Placement with other foster carer, arranged through agency inside LA Boundary
Foster placement with relative or friend outside LA Boundary
Placement with other foster carers, provided by LA outside LA Boundary
Placement with other foster carer, arranged through agency outside LA Boundary
Foster placements

StatsWales
Provision; Adoptions of looked after children by age and gender 2003 0-120 0 120 Data manager No Past year StatsWales No

Adoptions of looked after children during year ending 31 March by age and gender

It is broken down into the following data items:
Under 1 year
1 to 4 years
5 to 9 years
10 to 15 years
16 years and over

Data collected from 2003-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport”

Response scale for all local authorities:
Boys
Girls
Total

StatsWales
Provision; Average age, in months, at adoption of looked after children by local authority and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Average age, in months, at adoption of looked after children during year ending 31 March by local authority and year

Data collected from 2003-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport”

For each year number of children is given.

StatsWales
Provision; Foster care adopters by duration of final period of care and measure 2003 0-120 0 120 Data manager No Past year StatsWales No

Foster care adopters by duration of final period of care and measure

Data collected from 2003-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Reponse scale for all local authrities:
Adopted by foster carer (number of adoptions)
Not adopted by foster carer (number of adoptions)
Unknown (number of adoptions)
All adoptions (number of adoptions)

StatsWales
Provision; Adoptions by age of child at start of last care period & length of time until adopted 2003 0-120 0 120 Data manager No Past year StatsWales No

Adoptions of looked after children during year ending 31 March by age of child at start of last period of care and the length of time until adoption

Durations are broken down into:
Under 1 year
1 to 2 years
2 to 3 years
3 to 4 years
4 to 5 years
5 to 6 years
6 to 7 years
7 years and over

Data collected from 2003-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Age is broken down into:
Under 1 year
1 to 2 years
2 to 3 years
3 to 4 years
4 to 5 years
5 to 6 years
6 to 7 years
7 years and over

StatsWales
Provision; Adoptions of looked after children by time in days & age at start of care 2003 0-120 0 120 Data manager No Past year StatsWales No

Adoptions of looked after children during year ending 31 March by time in days between the different stages of the adoption process and age at start of period of care

This is broken down into the following ages:
Under 1 year
1 to 2 years
2 to 3 years
3 to 4 years
4 to 5 years
5 to 6 years
6 to 7 years
7 years and over

Data collected from 2003-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
Entry into care to best interest decision
Best interest decision to matching of child and adopters
Matching of child and adopters to placed for adoption
Placed for adoption to adoption
Entry into care to adoption

StatsWales
Provision; Adoptions of looked after children by gender and marital status of adopters 2003 0-120 0 120 Data manager No Past year StatsWales No

Adoptions of looked after children during year ending 31 March by gender and marital status of adopters (Prior to April 2016)

Data is collected under the following data items:
All single adopters
-single male
-single female
All couple adopters
-male female
-male/male
-female/female

Data collected from 2003-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all local authorities:
Married or in civil partnership
Unmarried or not in civil partnership
Single adopter
All adopter legal statuses

StatsWales
Provision; Adoptions of looked after children by ethnicity of adopters and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Adoptions of looked after children year ending 31 March by ethnicity of adopters and year (Prior to April 2016)

Data items for the measure as as follows:
Single white adopter
Single non-white adopter
Single adopter: unknown ethnicity
Two adopters: both of white ethnicity
Two adopters: one of white and one of non-white ethnicity
Two adopters: one of white and one of unknown ethnicity
Two adopters: both of non-white ethnicity
Two adopters: one of non-white and one of unknown ethnicity
Two adopters: both of unknown ethnicity

Data collected from 2007-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

For each year number of adopters is given.

StatsWales
Provision; Adoptions of looked after children by gender and marital status of adopters 2003 0-120 0 120 Data manager No Past year StatsWales No

Adoptions of looked after children during year ending 31 March by gender and marital status of adopters

Data is collected under the following data items:
All single adopters
-single male
-single female
All couple adopters
-male female
-male/male
-female/female

Data collected from 2017-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire

Response scale for all
Married or in civil partnership
Unmarried or not in civil partnership
Single adopter
All adopter legal statuses

StatsWales
Provision; Children receiving care by asylum seeker status, gender and looked after status 2003 0-120 0 120 Data manager No Past year StatsWales No

Children receiving care and support by asylum seeker status, gender and looked after status

Data collected from 2017-2021 under the following data items:
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children receiving care and support, but not looked after, and not on the child protection register at 31st March

Data collected from 2017-2021 for all local authorities. This includes:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire”

Not asylum seekers
Unaccompanied asylum seekers
Members of asylum-seeking families
All children receiving care and support

StatsWales
Need; Children in need by local authority and category of need 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by local authority and category of need

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need
Children with a disability
Children with no disability
Not applicable

Response scale for all data items (number of children):
Abuse or neglect
Child’s disability or illness
Parental disability or illness
Family in acute stress
Family dysfunction
Socially unacceptable behaviour
Low income
Absent parenting
Adoption disruption
All children in need

StatsWales
Need; Children in need by looked after status and disability 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by looked after status and disability

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:
All children in need
Abuse or neglect
Child’s disability or illness
Parental disability or illness
Family in acute stress
Family dysfunction
Socially unacceptable behaviour
Low income
Absent parenting
Adoption disruption
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need

Response scale for all data items (number of children):
Children with a disability
Children with no disability
Not applicable
All children in need

StatsWales
Need; Children in need by category of need and disability 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by category of need and disability

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March

Response scale for all data items (number of children):
Children with a disability
Children with no disability
Not applicable
All children in need

StatsWales
Need; Mental health status of children in need by local authority and measure 2003 0-120 0 120 Data manager No Past year StatsWales No

Mental health status of children in need by local authority and measure

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:

All Ages
Unborn
Under 1 year
1 to 4 years
5 to 9 years
10 to 15 years
16 to 17 years
18 to 20 years
21 and over
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st Marc
All children in need
Children for whom immunisations information was available
Immunisations up to date
Immunisations information not applicable
Immunisations information not applicable
Immunisations information not available
Immunisations information not available
All children in need
Children for whom substance misuse information was available
Child substance misuse at 31st March
No child substance misuse at 31st March
Substance misuse information not available
Substance misuse information not available

Response scale for all data items (number of children):
All children in need
Children for whom mental health information was available
– Child mental ill health at 31st March
– No child mental ill health at 31st March
Children for whom mental health information was available
Mental health information not available

StatsWales
Need; Substance misuse status of children in need by local authority and measure 2003 0-120 0 120 Data manager No Past year StatsWales No

Substance misuse status of children in need by local authority and measure

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:
All Ages
Unborn
Under 1 year
1 to 4 years
5 to 9 years
10 to 15 years
16 to 17 years
18 to 20 years
21 and over
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need
Children for whom immunisations information was available
Immunisations up to date
Immunisations information not applicable
Immunisations information not applicable
Immunisations information not available
Immunisations information not available
All children in need
Children for whom mental health information was available
Child mental ill health at 31st March
No child mental ill health at 31st March
Mental health information not available
Mental health information not available

Response scale for all data items (number of children):
Children for whom substance misuse information was available
Substance misuse information not available
All children in need

StatsWales
Provision; Child health surveillance checks by measure and looked after status 2003 0-120 0 120 Data manager No Past year StatsWales No

Child health surveillance checks by measure and looked after status

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:
Children for whom child health check information was available
Child health check information not available

Response scale for all data items (number of children):
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need

StatsWales
Need; Disabilities of children in need by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Disabilities of children in need by measure and year

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
Percentage / average
Numerator
Denominator
All children in need
Male
Female
Indeterminate gender (i.e. unable to be classed as either male or female)

Response scale for all data items:
Percentage of children with a disabilityExcludes unborn children. 2013 disability data for Neath Port Talbot was revised on 25 February 2015.
Percentage of children with a mobility disabilityExcludes unborn children. 2013 disability data for Neath Port Talbot was revised on 25 February 2015.
Percentage of children with a manual dexterity disabilityExcludes unborn children. 2013 disability data for Neath Port Talbot was revised on 25 February 2015.
Percentage of children with a physical co-ordination disabilityExcludes unborn children. 2013 disability data for Neath Port Talbot was revised on 25 February 2015.
Percentage of children with a continence disabilityExcludes unborn children. 2013 disability data for Neath Port Talbot was revised on 25 February 2015.
Percentage of children unable to lift, carry or otherwise move everyday objectsExcludes unborn children. 2013 disability data for Neath Port Talbot was revised on 25 February 2015.
Percentage of children with a speech, hearing and eye sight disabilityExcludes unborn children. 2013 disability data for Neath Port Talbot was revised on 25 February 2015.
Percentage of children with a memory disabilityExcludes unborn children. 2013 disability data for Neath Port Talbot was revised on 25 February 2015.
Percentage of children unable to perceive the risk of physical dange

StatsWales
Provision; Healthcare data collected from 2010-2016 for all local authoritie 2003 0-120 0 120 Data manager No Past year StatsWales No

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:

All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
Percentage / average
Numerator
Denominator
All children in need
Male
Female
Indeterminate gender (i.e. unable to be classed as either male or female)

Response scale for all data items:
Percentage of children with up-to-date immunisations
Percentage of children with up-to-date dental checks (for children aged 5 and over)
Percentage of children with substance misuse problems
Percentage of children with mental health problemsIncludes mental health problems diagnosed by a medical practitioner and children receiving C
Percentage of children with up-to-date child health surveillance checks (for children aged 0 to 5)
Percentage of children with autistic spectrum disorder

StatsWales
Need; Parental factors of children in need by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Parental factors of children in need by measure and year

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:

All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
Percentage / average
Numerator
Denominator
All children in need
Male
Female
Indeterminate gender (i.e. unable to be classed as either male or female)

Response scale for all data items:
Percentage of children with parental substance or alcohol misuse
Percentage of children with parental learning disabilities
Percentage of children with parental mental ill health
Percentage of children with parental physical ill health
Percentage of children subject to domestic abuse

StatsWales
Need; Referral factors of children in need by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Referral factors of children in need by measure and year

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
Percentage / average
Numerator
Denominator
All children in need
Male
Female
Indeterminate gender (i.e. unable to be classed as either male or female)

Response scale for all data items:

Percentage of children who were on the Child Protection Register in the 12 months prior to referral
Percentage of children who were looked after in the 12 months prior to referral
Percentage of children where a factor in the referral was parental substance or alcohol misuse
Percentage of children where a factor in the referral was parental learning disabilities
Percentage of children where a factor in the referral was parental mental ill health
Percentage of children where a factor in the referral was parental physical ill health
Percentage of children where a factor in the referral was domestic abuse

StatsWales
Need; School exclusions of children in need by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

School exclusions of children in need by measure and year

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:

All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
Percentage / average
Numerator
Denominator
All children in need
Male
Female
Indeterminate gender (i.e. unable to be classed as either male or female)

Response scale for all data items:
Percentage of children with no permanent exclusions from school
Percentage of children with 1 or more permanent exclusions from school
Percentage of children with no fixed term exclusions from school
Percentage of children with 1 or more fixed term exclusions from school
Average length of fixed term exclusions from school in days

StatsWales
Need; Youth offending of children in need by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Youth offending of children in need by measure and year

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:

All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
Percentage / average
Numerator
Denominator
All children in need
Male
Female
Indeterminate gender (i.e. unable to be classed as either male or female)

Response scale for all data items:

Percentage of children with a case open to the Youth Offending Team

StatsWales
Need; Educational attainment of children in need by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Educational attainment of children in need by measure and year

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
Percentage / average
Numerator
Denominator

Response scale for all data items:
Percentage of children achieving the foundation phase indicator

Percentage of children achieving the core subject indicator at key stage 2.

Percentage of children achieving the core subject indicator at key stage 3It is statutory to assess pupils in Year 9 at Key Stage 3. The core subject indicator represents the percentage of pupils achieving the expected level or above in English or Welsh (first language), Mathematics and Science in combination. Children who were new to the English or Welsh based education system are included in the Wales total but some are excluded at Local Authority level.
Percentage of children achieving the level 1 threshold at key stage 4
Percentage of children achieving 5 or more GCSE passes at A*-GIncludes all pupils aged 15 at the start of the academic year. Children who were new to the English or Welsh based education system are included in the Wales total but some are excluded at Local Authority level.

Percentage of children achieving the level 2 threshold at key stage 4Includes all pupils aged 15 at the start of the academic year. Level 2: a volume of qualifications at Level 2 is equivalent to the volume of 5 GCSEs at grade A*-C. Children who were new to the English or Welsh based education system are included in the Wales total but some are excluded at Local Authority level.

Percentage of children achieving the level 2 threshold including English/Welsh and Mathematics at key stage 4Includes all pupils aged 15 at the start of the academic year. Level 2: a volume of qualifications at Level 2 is equivalent to the volume of 5 GCSEs at grade A*-C. Children who were new to the English or Welsh based education system are included in the Wales total but some are excluded at Local Authority level.

Percentage of children achieving 5 or more GCSE passes at A*-CIncludes all pupils aged 15 at the start of the academic year. Children who were new to the English or Welsh based education system are included in the Wales total but some are excluded at Local Authority level.

Percentage of children achieving the core subject indicator at key stage 4Includes all pupils aged 15 at the start of the academic year. The core subject indicator represents the percentage of pupils achieving the expected level or above in English or Welsh (first language), Mathematics and Science in combination. Children who were new to the English or Welsh based education system are included in the Wales total but some are excluded at Local Authority level.

Average wider points score at key stage 4The average wider points score for 15 year olds includes all qualifications approved for pre-16 use in Wales. The average wider points score is calculated by dividing the total number of points achieved by pupils aged 15 by the number of pupils aged 15 at the start of the academic year. Children who were new to the English or Welsh based education system are included in the Wales total but some are excluded at Local Authority level.
Average capped points score at key stage 4

StatsWales
Need; Eligibility for free school meals and SEN of children in need by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Eligibility for free school meals and special educational needs of children in need by measure and year

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:

All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
Percentage / average
Numerator
Denominator

Percentage of children with eligibilty for free school mealsAged 5-15 at the start of the academic year. Pupils are entitled to free school meals if their families receive Income Support or Income Based Job Seekers Allowance or Support under Part VI of the Immigration and Asylum Act 1999 or the guarantee element of State Pension Credit. They are also eligible if their parents are in receipt of Income Related Employment and Support Allowance (IR). Employment and Support Allowance is an integrated contributory and income related allowance and replaced, for new claimants, Incapacity and Income Support, where it is paid on the grounds of incapacity and sickness. Children who receive Income Support or Income Based Job Seekers Allowance in their own right are also eligible to receive free school meals. Children whose families are in receipt of Child Tax Credit, providing they are not entitled to Working Tax Credit, and have an annual income, as assessed by HM Revenue & Customs that does

Percentage of children with no special educational needsAged 5-15 at the start of the academic year.

Percentage of children with special educational needs subject to school action or school action plusAged 5-15 at the start of the academic year.

School Action: When a class or subject teacher identifies that a pupil has SEN they provide interventions that are additional to or different from those provided as part of the school’s usual curriculum.

School Action Plus: When the class or subject teacher and the SEN Co-ordinator are provided with advice or support from outside specialists, so that alternative interventions additional or different to those provided for the pupil through School Action can be put in place. The SEN Co-ordinator usually takes the lead although day-to-day provision continues to be the responsibility of the class or subject teacher.

Percentage of children with a statement of special educational needsAged 5-15 at the start of the academic year. Pupils for whom the LA maintains a statement of SEN under Part IV of the Education Act 1996. A statement may be issued by the LA after assessment of a child’s needs.

StatsWales
Need; School attendance of children in need by measure and year 2003 0-120 0 120 Data manager No Past year StatsWales No

School attendance of children in need by measure and year

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:

All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
Percentage / average
Numerator
Denominator

Percentage of children achieving the level 1 threshold at key stage 4Includes all pupils aged 15 at the start of the academic year. Level 1: a volume of qualifications at Level 1 is equivalent to the volume of 5 GCSEs at grade D-G. Children who were new to the English or Welsh based education system are included in the Wales total but some are excluded at Local Authority level.

Percentage of children achieving the level 2 threshold at key stage 4Includes all pupils aged 15 at the start of the academic year. Level 2: a volume of qualifications at Level 2 is equivalent to the volume of 5 GCSEs at grade A*-C. Children who were new to the English or Welsh based education system are included in the Wales total but some are excluded at Local Authority level.

Percentage of children achieving the level 2 threshold including English/Welsh and Mathematics at key stage 4Includes all pupils aged 15 at the start of the academic year. Level 2: a volume of qualifications at Level 2 is equivalent to the volume of 5 GCSEs at grade A*-C. Children who were new to the English or Welsh based education system are included in the Wales total but some are excluded at Local Authority level.

Attendance rate

Authorised absence rate

Unauthorised absence rate

StatsWales
Need; Children in need per 10,000 population by local authority and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need per 10,000 population by local authority and year

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

For each local authority:
Children in need at 31 March per 10,000 population aged under 18

StatsWales
Provision; Children looked after at 31 March by local authority, gender and age 2003 0-120 0 120 Data manager No Past year StatsWales No

Children looked after at 31 March by local authority, gender and age

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Data is collected for both boys and girls seperately:
Under 1 yearData has been rounded to the nearest 5 for disclosure reasons
1 to 4 yearsData has been rounded to the nearest 5 for disclosure reasons
5 to 9 yearsData has been rounded to the nearest 5 for disclosure reasons
10 to 15 yearsData has been rounded to the nearest 5 for disclosure reasons
16 to 17 yearsData has been rounded to the nearest 5 for disclosure reasons
18 and overData has been rounded to the nearest 5 for disclosure reasons
Total for boys and girls

StatsWales
Provision; Children looked after at 31 March by local authority and legal status 2003 0-120 0 120 Data manager No Past year StatsWales No

Children looked after at 31 March by local authority and legal status

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all local authorities:
Care orders
Remand, detained or other compulsory order
Other legal status
Single period of accommodation
Total looked after children

StatsWales
Provision; Children looked after at 31 March by local authority and placement type 2003 0-120 0 120 Data manager No Past year StatsWales No

Children looked after at 31 March by local authority and placement type

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all local authorities:
Placed for adoption
Foster placements
Placements in residential settings
Placed with own parents or other person with parental responsibility
Living independently
Absent from placement or other
Total looked after children

StatsWales
Provision; Children looked after by local authority, number of placements 2003 0-120 0 120 Data manager No Past year StatsWales No

Children looked after at 31 March by local authority, number of placements during year and measure

Data collected from 2003-2021 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all local authorities:
Children with 1 placement during year (number of children)
Children with 2 placements during year (number of children)
Children with 3 or more placements during year (number of children)
Children with 1 placement during year (percentageof children)
Children with 2 placements during year (percentageof children)
Children with 3 or more placements during year (percentageof children)

StatsWales
Need; No. of safeguarding reports received by local authority and ethnicity. 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of reports received during the year by local authority and ethnicity.

This measure is avaialbe from 2016 to 2019.

Data is collected for local authorities:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
White (number of reports)
Mixed ethnic group (number of reports)
Asian or Asian British (number of reports)
Black, African, Caribbean or Black British (number of reports)
Other Ethnic Group (number of reports)
Information not obtained (number of reports)
Information refused (number of reports)
Total (number of reports)

StatsWales
Need; No. abuse reports received by local authority and source of first contact. 2003 0-120 0 120 Data manager No Past year StatsWales No

Number reports received during the year by local authority and source of first contact.

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Self reported (number of reports)
Relative / friend (number of reports)
Local authority (number of reports)
Police (number of reports)
Local health board (number of reports)
Independent hospital (number of reports)
Ambulance service (number of reports)
Care regulator (number of reports)
Provider agency (number of reports)
Probation (number of reports)
Third sector (number of reports)
Advocate (number of reports)
Other (number of reports)
Total (number of reports)

StatsWales
Need; No. of enquiries that concluded action was required by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of enquiries during the year that concluded that action was required by local authority

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Number of equirires

StatsWales
Need; No. of enquiries concluding action required by local authority & place of abuse 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of enquiries that concluded action was required by local authority and place of alleged abuse

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Own home (number of enquiries)
Community (number of enquiries)
Care home setting (number of enquiries)
Health setting (number of enquiries)
Total (number of enquiries)

StatsWales
Need; No. of enquiries concluding action required by local authority & person alleged responsible 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of enquiries that concluded action was required by local authority and person alleged responsible for abuse

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Paid employee
Relative/friend
Volunteer/Upaid employee
Other service user
Other
Total

StatsWales
Need; No. of adults who refused to participate in action identified by an enquiry 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of adults who refused to participate in action identified by an enquiry by local authority

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Number of adults

StatsWales
Need; No. of investigations that concluded during the year by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of investigations that concluded during the year by local authority

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Number of criminal investigations that concluded during the year
Number of non-criminal investigations that concluded during the year
Total

StatsWales
Provision; Adults receiving services by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Adults receiving services by local authority and measure

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Number of adults who received a service provided through a social enterprise, co-operative, user-led service or third sector organisation during the year
Number of adults who received care and support who were in employment during the year

StatsWales
Provision; Adults receiving services by local authority and age group 2003 0-120 0 120 Data manager No Past year StatsWales No

Adults receiving services by local authority and age group

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Information was given for the following data items for each of the above authorities:

Total of services (volume)
Domiciliary care
Day Care
Respite Care
Reablement
Equipment
Adaptations
Direct Payments
Supported Accommodation
Sheltered Accommodation
Adult Placements
Adult care home (without nursing)
Adult care homes with nursing
Telecare
Advocacy
Recreational, leisure and lifelong learning opportunities
Other
Total number of adults supported (count)

Response scale for all data items (number of adults):
Total aged 18-24
Total aged 25-64
Total aged 65-74
Total aged 75-84
Total aged 85+
Total aged 65+
Total aged 18+

StatsWales
Provision; Adults charged for care and support by local authority and measure 2003 0-120 0 120 Data manager No Past year StatsWales No

Adults charged for care and support by local authority and measure

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items (number of adults):
Number of adults who paid the maximum weekly charge towards the cost of care and support or support for carers during the year
Number of adults who paid a flat rate charge for care and support or support for carers during the year

StatsWales
Provision; Adults assessed by local authority and measure 2003 0-120 0 120 Data manager No Past year StatsWales No

Adults assessed by local authority and measure

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items (number of adults):
1. Number of adults who received advice or assistance from the information, advice and assistance service during the year
2. Number of assessments of need for care and support undertaken during the year
2.1 Of those, the number that led to a care and support plan
3. Number of assessments of need for support for carers undertaken during the year
3.1 Of those, the number that led to a support plan
4. Number of carer assessments that were refused by carers during the year
5. Number of assessments of need for care and support for adults undertaken during the year whilst in the secure estate
5.1 Of those, the number that led to a care and support plan
6. Number of requests for repeat assessment of need for care and support and need for support made by an adult during the year
6.1 Of those, the number of repeat assessments undertaken
6.2 The number of repeat assessments in 6.1 that led to a care and support plan or support plan
7. Number of care and support plans and support plans that were reviewed during the year
7.1 Of those, the number of plans that were reviewed within agreed timescales
8. Number of requests for review of care and support plans and support plans for carers before agreed timescales made by an adult during the year
8.1 Of those, the number of reviews undertaken

StatsWales
Provision; Hillside Secure Unit, Neath Port Talbot by year and measure 2003 0-120 0 120 Data manager No Past year StatsWales No

Hillside Secure Unit, Neath Port Talbot by year and measure

Data items avaialble from 2001-2012

Number of approved places in unit at 31 March
Number of places available in the secure unit
Total number of children accommodated at 31 March
Total admissions during the year
Total discharges during the year

StatsWales
Need; Children in need by local authority and age group 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by local authority and age group

Data collected from 2016-2019 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Data items for the measure were as follows:
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need
Children with a disability
Children with no disability
Not applicable
All children in need
White
Mixed ethnic groups
Asian or Asian British
Black, African, Caribbean or Black British
Other ethnic groups
Information Refused
Information not obtained
All children in need
Male
Female
Indeterminate gender (i.e. unable to be classed as either male or female)

Response scale for all data items (number of children):
Unborn
Under 1 year
1 to 4 years
5 to 9 years
10 to 15 years
16 to 17 years
18 to 20 years
21 and over
All Ages

StatsWales
Need; Children in need by local authority and gender 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by local authority and gender

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Data items listed for the measure were as follows:
All Ages
Unborn
Under 1 year
1 to 4 years
5 to 9 years
10 to 15 years
16 to 17 years
18 to 20 years
21 and over
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need
Children with a disability
Children with no disability
Not applicable
All children in need
White
Mixed ethnic groups
Asian or Asian British
Black, African, Caribbean or Black British
Other ethnic groups
Information Refused
Information not obtained

Response scale for all data items (number of children):
Male
Female
Indeterminate gender (i.e. unable to be classed as either male or female)
All children in need

StatsWales
Need; Children in need by local authority and looked after status 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by local authority and looked after status

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Data items listed for the measure were as follows:
All Ages
Unborn
Under 1 year
1 to 4 years
5 to 9 years
10 to 15 years
16 to 17 years
18 to 20 years
21 and over
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need
Children with a disability
Children with no disability
Not applicable
All children in need
White
Mixed ethnic groups
Asian or Asian British
Black, African, Caribbean or Black British
Other ethnic groups
Information Refused
Information not obtained

Response scale for all data items (number of children):
Children looked after at 31 MarchChildren looked after may also have been on the child protection register at 31st March.
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need

StatsWales
Need; Children in need by age group and looked after status 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by age group and looked after status

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Data items listed for the measure were as follows:
All Ages
Unborn
Under 1 year
1 to 4 years
5 to 9 years
10 to 15 years
16 to 17 years
18 to 20 years
21 and over
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need
Children with a disability
Children with no disability
Not applicable
All children in need
White
Mixed ethnic groups
Asian or Asian British
Black, African, Caribbean or Black British
Other ethnic groups
Information Refused
Information not obtained

Response scale for all data items (number of children):
Children looked after at 31 MarchChildren looked after may also have been on the child protection register at 31st March.
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need

StatsWales
Need; Children in need by local authority and disability 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by local authority and disability

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Data items listed for the measure were as follows:
All Ages
Unborn
Under 1 year
1 to 4 years
5 to 9 years
10 to 15 years
16 to 17 years
18 to 20 years
21 and over
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need
Children with a disability
Children with no disability
Not applicable
All children in need
White
Mixed ethnic groups
Asian or Asian British
Black, African, Caribbean or Black British
Other ethnic groups
Information Refused
Information not obtained

Response scale for all data items (number of children):
Children with a disability
Children with no disability
Not applicable
All children in need

StatsWales
Need; Children in need by ethnicity and looked after status 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by ethnicity and looked after status

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Data items listed for the measure were as follows:
All Ages
Unborn
Under 1 year
1 to 4 years
5 to 9 years
10 to 15 years
16 to 17 years
18 to 20 years
21 and over
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need
Children with a disability
Children with no disability
Not applicable
All children in need
White
Mixed ethnic groups
Asian or Asian British
Black, African, Caribbean or Black British
Other ethnic groups
Information Refused
Information not obtained

Response scale for all data items (number of children):
Children looked after at 31 March
Children looked after may also have been on the child protection register at 31st March.
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March

StatsWales
Need; Children in need by local authority and source of most recent referral 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by local authority and source of most recent referral

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down into the following data items for each local authority:
All children in need
Children looked after at 31 March
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March

Response scale for all data items (number of children):
Other departments of own or other LA Click here to sortPrimary health / Community health
Self referral
Central government agency
LA housing department or housing association
Other individual
Police Click here to sortOther agency
Local authority’s own social services department
Secondary health
Family, friend or neighbour
Independent provider agency

StatsWales
Need; Children in need by source of most recent referral and looked after status 2003 0-120 0 120 Data manager No Past year StatsWales No

Children in need by source of most recent referral and looked after status

Data collected from 2010-2016 for all local authorities. This includes:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

This is broken down for each local authority in the following data items:
Self referral *The data item is disclosive or not sufficiently robust for publication
Secondary health
Primary health / Community health
Police
Other individual
Other departments of own or other LA
Other agency
Local authority’s own social services department
LA housing department or housing association
Independent provider agency
Family, friend or neighbour
Central government agency

Response scale for all data items (number of children):
Children looked after at 31 MarchChildren looked after may also have been on the child protection register at 31st March.
Children on the child protection register, but not looked after at 31st March
Children in need, but not looked after, and not on the child protection register at 31st March
All children in need

StatsWales
Provision; Record of services and places 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales (CIW) Services and Places by Setting Type and Year

Measure has been collected annually 2017 to 2021 under the following data items:

Total – Adult and Children Service
– Non-residential services
– Residential services

Total – Children’s Day Care
– Childminders
– Children’s Day Care – Not Known
– Creches
– Full Day Care
– Open Access Play Provision
– Out of School Care
– Sessional Day Care

Response scale for all data items:
Number of places
Total settings

StatsWales
Provision; Record of services and concerns 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales CIW Services and Concerns by Setting Type and Year

Measure has been collected annually 2017 to 2021 under the following data items:

Total – Adult and Children Service
– Non-residential services
– Residential services

Total – Children’s Day Care
– Childminders
– Children’s Day Care – Not Known
– Creches
– Full Day Care
– Open Access Play Provision
– Out of School Care
– Sessional Day Care

Response scale for all data items:
Number of concerns recorded

StatsWales
Provision; Noncompliance by setting and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales (CIW) Services and Noncompliance by Setting Type and Year

Measure has been collected annually 2017 to 2021 under the following data items:

Total – Adult and Children Service
– Non-residential services
– Residential services

Total – Children’s Day Care
– Childminders
– Children’s Day Care – Not Known
– Creches
– Full Day Care
– Open Access Play Provision
– Out of School Care
– Sessional Day Care

Response scale for all data items:
Total No. of Noncompliance issued and/or closed 1st of April

StatsWales
Provision; Places for new registrations by setting and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales (CIW) Services and Places for New Registrations by Setting Type and Year

Measure has been collected annually 2018 to 2021 under the following data items:

Total – Adult and Children Service
– Non-residential services
– Residential services

Total – Children’s Day Care
– Childminders
– Children’s Day Care – Not Known
– Creches
– Full Day Care
– Open Access Play Provision
– Out of School Care
– Sessional Day Care

Response scale for all data items:
Total No. of Cancelled Places in year to 01 April

StatsWales
Provision; Cancellations by setting type and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales (CIW) Services and Places for Cancellations by Setting Type and Year

Measure has been collected annually 2018 to 2021 under the following data items:

Total – Adult and Children Service
– Non-residential services
– Residential services

Total – Children’s Day Care
– Childminders
– Children’s Day Care – Not Known
– Creches
– Full Day Care
– Open Access Play Provision
– Out of School Care
– Sessional Day Care

Response scale for all data items:
Total No. of Newly Registered Services in year to 01 April

StatsWales
Provision; Services and places by local authority and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales (CIW) Services and Places by Local Authority and Year

Measure has been collected annually 2016 to 2021 under the following data items:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all data items:
Total Settings
Number of Places

StatsWales
Provision; Services and concerns by local authority and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales (CIW) Services and Concerns by Local Authority and Year

Measure has been collected annually 2017 to 2021 under the following data items:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all data items:
No. of Concerns recorded

StatsWales
Provision; Noncompliance by local authority and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales (CIW) Services and Noncompliance by Local Authority and Year

Measure has been collected annually 2017 to 2021 under the following data items:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all data items:
Total No. of Noncompliance issued and/or closed 1st of April

StatsWales
Provision; New registrations by local authority and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales (CIW) Services and Places for New Registrations by Local Authority and Year

Measure has been collected annually 2018 to 2021 under the following data items:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all data items:
Total No. of Newly Registered Places in year to 01 April

StatsWales
Provision; New registrations by local authority and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales (CIW) Services and Places for New Registrations by Local Authority and Year

Measure has been collected annually 2018 to 2021 under the following data items:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all data items:
Total No. of Newly Registered Services in year to 01 April
Total No. of Newly Registered Places in year to 01 April

StatsWales
Provision; Cancellations by local authority and year 2003 0-120 0 120 Data manager No Past year StatsWales No

Care Inspectorate Wales (CIW) CIW Services and Places for Cancellations by Local Authority and Year

Measure has been collected annually 2018 to 2021 under the following data items:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen
Monmouthshire
Newport

Response scale for all data items:
Total No. of Cancelled Services in year to 01 April
Total No. of Cancelled Places in year to 01 April

StatsWales
Provision; No. of COVID-19 cases in care homes by local authority and date 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of adult care homes which have notified Care Inspectorate Wales (CIW) of one or more confirmed cases of COVID-19, in staff or residents, by local authority and date.

Data is collected on a daily basis from 16th December 2020 onwards via an online form developed and maintained by Care Inspectorate Wales.

Lowest level of geographical disaggregation is local authorities, which are:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Number of adult care homes

StatsWales
Provision; Cases of COVID-19 in care homes by date 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of adult care homes which have notified Care Inspectorate Wales (CIW) of one or more confirmed cases of COVID-19, in staff or residents, by date.

A weekly measure since July 2021.

Lowest level of geographical disaggregation is local authorities, which are:
Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Adult care homes Total in the last 7 days
Adult Care homes Total in the last 20 days

StatsWales
Provision; Notifications of deaths in care homes by date and cause. 2003 0-120 0 120 Data manager No Past year StatsWales No

Notifications of deaths of residents from adult care homes by date of notification and cause.

Collected since 2018. Measure is collected for all local authorities which are:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

The location of the death is also recorded under the following categories:

Ambulance
At the service
Hospice
Hospital
Other
Person’s own home
Unknown

Response scale for all data items:
Non COVID19 related (number of deaths)
COVID19 related (number of deaths

StatsWales
Provision; Notifications of deaths in care homes by location and date. 2003 0-120 0 120 Data manager No Past year StatsWales No

Notifications of deaths of adult care home residents by location of death and date of notification.

Since 2918 this measure is recorded monthly via the following data items:

Non COVID19 related

COVID19 related
-suspected COVID19
-confirmed COVID19

Ambulance (number of deaths)
At the service (number of deaths)
Hospice (number of deaths)
Hospital (number of deaths)
Other (number of deaths)
Person’s own home (number of deaths)
Unknown (number of deaths)

StatsWales
Provision; No. of deaths of care home residents with and without care by date 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of daily notifications of deaths of adult care home residents with and without care provided, by date of notification

Since 2018 this measure has been collected, giving the daily number of deaths.

With nursing (total deaths)
Without nursing (total deaths)

StatsWales
Provision; No. of registered adult care homes, by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of registered adult care homes, by local authority

This measures gives the number of datasets by local authority. Local authorities are:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Number of care homes (each month)

StatsWales
Need; Adults suspected of being at risk by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Adults suspected of being at risk by local authority and measure

This measure is avaialbe from 2016 to 2019. It collects data for all Welsh local authorities, which are:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Number of adults suspected of being at risk of abuse or neglect reported during the year
Number of adults reported more than once for the same category of abuse or neglect during the year
Number of adults reported for different categories of abuse or neglect during the year

StatsWales
Need; No. of reports of adult suspected of being at risk received by local authority 2003 0-120 0 120 Data manager No Past year StatsWales No

Number of reports of an adult suspected of being at risk received by local authority and measure

This measure is avaialbe from 2016 to 2019. It collects data for all Welsh local authorities, which are:

Isle of Anglesey
Gwynedd
Conwy
Denbighshire
Flintshire
Wrexham
Powys
Ceredigion
Pembrokeshire
Carmarthenshire
Swansea
Neath Port Talbot
Bridgend
Vale of Glamorgan
Cardiff
Rhondda Cynon Taf
Merthyr Tydfil
Caerphilly
Blaenau Gwent
Torfaen

Response scale for all data items:
Number of reports of an adult suspected of being at risk received during the year
Number of reports received during the year that proceeded to an enquiry

StatsWales
Provision; Types of alleged abuse by local authority, and age of victim 2003 0-120 0 120 Data manager No Past year StatsWales No

Types of alleged abuse by local authority, measure and age of alleged victim

This measure is avaialbe from 2016 to 2019.

Each of the following data items are recorded for males and for females seperately:

Physical – total
Sexual – total
Emotional/psychological – total
Financial – total
Neglect – total
Of which: racial – total
Of which: domestic – total

Response scale for all data items:
Aged 18-64
Aged 65 and over
Aged 18 and over

StatsWales
Receipt; Receipt of direct payments for social care 2017 0-25 0 25 Local authority professional No Current 2017 Survey No

When listing data items collected:

Of those in Item 5.1, please give the number of personal budgets that have:

a) Organised arrangements where the local authority or partner retains the funding and commissions the support specified in the plan (sometimes called notional arrangements);

b) Direct payments (including payments to nominees and third parties) and whether these are for

For part b):
(i) education,
(ii) social care,
(iii) health, or
(iv)integrated payment for a combination of the above.

SEN2
Receipt; Receipt of direct payments for social care 2018 0-25 0 25 Local authority professional No Current 2018 Survey No

When listing data items collected:

Of those in Item 5.1, please give the number of personal budgets that have:

a) Organised arrangements where the local authority or partner retains the funding and commissions the support specified in the plan (sometimes called notional arrangements);

b) Direct payments (including payments to nominees and third parties) and whether these are for

For part b):
(i) education,
(ii) social care,
(iii) health, or
(iv)integrated payment for a combination of the above.

SEN2
Receipt; Placement in residential special school 2018 0-25 0 25 Local authority professional No Current 2018 Survey No

When listing data items collected:

Of the children and young people entered in Item 1.1, please state the number placed in residential special schools or colleges:

a) For 38-51 weeks:
The age breakdown refers to age as at 31 August 2018. The age categories are:
(a) Under age 5 (b) Aged 5 to 10
(c) Aged 11 to 15
(d) Aged 16 to 19
(e) Aged 20 to 25
(f) Total (sum of (a) to (e)).
b) For 52 weeks:

The age breakdown refers to age as at 31 August 2018. The age categories are:
(a) Under age 5
(b) Aged 5 to 10
(c) Aged 11 to 15
(d) Aged 16 to 19
(e) Aged 20 to 25
(f) Total (sum of (a) to (e)).

SEN2
Receipt; Placement in residential special school 2019 0-25 0 25 Local authority professional No Current 2019 Survey No

When listing data items collected:

Of the children and young people entered in Item 1.1, please state the number placed in residential special schools or colleges:

a) For 38-51 weeks:
The age breakdown refers to age as at 31 August 2018. The age categories are:
(a) Under age 5 (b) Aged 5 to 10
(c) Aged 11 to 15
(d) Aged 16 to 19
(e) Aged 20 to 25
(f) Total (sum of (a) to (e)).
b) For 52 weeks:

The age breakdown refers to age as at 31 August 2018. The age categories are:
(a) Under age 5
(b) Aged 5 to 10
(c) Aged 11 to 15
(d) Aged 16 to 19
(e) Aged 20 to 25
(f) Total (sum of (a) to (e)).

SEN2
Receipt; Receipt of direct payments for social care 2019 0-25 0 25 Local authority professional No Current 2019 Survey No

When listing data items collected:

Of those in Item 5.1, please give the number of personal budgets that have:

a) Organised arrangements where the local authority or partner retains the funding and commissions the support specified in the plan (sometimes called notional arrangements);

b) Direct payments (including payments to nominees and third parties) and whether these are for

For section b)
(i) education,
(ii) social care,
(iii) health, or
(iv)integrated payment for a combination of the above.

SEN2
Receipt; Receipt of direct payments for social care 2021 0-25 0 25 Local authority professional No Current 2022 Survey No

When listing data items collected:

Item 3.9c Personal budget – direct payments
Direct payments, including payments to nominees and third parties.

E – Education only
S – Social care only
H – Health only
I – integrated payment for a combination of the above

SEN2
Need; Factors likely to cause requirement for help completing ADLs/IADLs 2021 0-25 0 25 Local authority professional No Current 2022 Survey No

When listing data items collected:

Please record the nature of the individual’s special educational need. These options are consistent with those collected within the spring term school census. Where multiple types of need are recorded and ranked, the primary type of need should be ranked 1 under Type of need rank (Item 4.8), and if applicable a secondary type of need should be ranked 2.

SPLD Specific learning difficulty
MLD Moderate learning difficulty
SLD Severe learning difficulty
PMLD Profound and multiple learning difficulty SEMH Social, emotional and mental health
SLCN Speech, language and communication needs HI Hearing impairment
VI Vision impairment
MSI Multi-sensory impairment
PD Physical disability
ASD Autistic spectrum disorder
OTH Other difficulty

SEN2
Provision; Unpaid care provided 2011 0-120 0 120 Participant Yes Current 2011 Census No

Do you look after, or give any help or support to family members, friends, neighbours or others because of either:
• long-term physical / mental ill-health / disability; or
• problems related to old age?
Do not count anything you do as part of your paid employment

No
Yes, 1 – 19 hours a week
Yes, 20 – 34 hours a week
Yes, 35 – 49 hours a week
Yes, 50 or more hours a week

General health

ScoC
Provision; Unpaid care provided 2021 0-120 0 120 Participant Yes Current 2022 Census No

Do you look after, or give any help or support to family members, friends, neighbours or others because of either:
• long-term physical / mental ill-health / disability; or
• problems related to old age?
Do not count anything you do as part of your paid employment

No
Yes, 1 – 19 hours a week
Yes, 20 – 34 hours a week
Yes, 35 – 49 hours a week
Yes, 50 or more hours a week

General health

ScoC
Receipt; Basis for 2-year-old funding inc. being looked after in care 2022 2-16 2 16 Education professional No Academic year 2022-23 Sweep No

2 year old basis for funding [ALL schools]

The basis for funding data item (N00178), records the basis under which a 2 year old (within the date of birth range 2020-01-01 to 2020-12-31 inclusive) has been funded whilst taking up a place in the school. This data item is not required for 3 and 4 year olds.

2 year old children may meet more than one criterion in the codeset shown below and each relevant criterion is returned in the census.

ECO Economic criteria
HSD High-level SEN or disability
LAA Looked after or adopted from care

SchC
Receipt; Was pupil adopted from care 2016 2-16 2 16 Education professional No Academic year 2014-15 Sweep No

4.3.12 Adopted from care [collected for: ALL schools]
Guidance for the January school census 2014 asked schools to include, for the first time, children adopted from care on or after 30 December 2005 as well as those who left care under a special guardianship order or residence order (now known as a child arrangements order4) so that they attract the pupil premium worth £1900 per pupil this financial year.

Schools are now asked to include in this data return all children adopted from care and not just who were adopted from care after 30 December 2005. All are now eligible to attract the pupil premium this financial year. This data item will therefore identify all eligible children on census day who will attract £1900 this financial year.

It will be up to those who have parental responsibility (adoptive parents, special guardians and carers of former looked after children on residence/child arrangements orders) to decide if they wish to self-declare their children’s status to schools. Parents should be asked to provide supporting evidence, for example, a photocopy of the adoption order, and asked to confirm that their child was adopted from care. Parents may conceal sensitive information (eg the name of the birth parents) if they wish.

Schools are reminded that this is a particularly sensitive data item, and of the need for confidentiality. Schools should ensure that, as for other pupil level data items, they comply with their responsibilities with respect to the data protection act when processing this data.
Schools will be able to record the information using the following codeset. Only one of the values will apply to each pupil and a school’s MIS should provide a default value of N – not declared.

Data item recorded in:
Nursery
Primary
Middle-deemed primary
Middle-deemed secondary
Secondary
All-through
Special
Pupil referral unit

Response scale for all data items:
Not declared
Ceased to be looked after through adoption
Ceased to be looked after through a special guardianship order (SGO) R Ceased to be looked after through a residence order (RO)
Ceased to be looked after through a child arrangement order (CAO)

SchC
Receipt; In care when excluded measure 2016 2-16 2 16 Education professional No Academic year 2014-15 Sweep No

For exclusions – the pupil status (excluding pupil enrolment status) and pupil identifiers modules will be collected together with the in care indicator and SEN provision at the time of exclusion.

Data item recorded in:
Primary
Middle-deemed primary
Middle-deemed secondary
Secondary
All-through
Special
Pupil referral unit

Presumed two responses would be (at time of exclusion):
In care
Not in care

SchC
Receipt; Was pupil adopted from care 2016 2-16 2 16 Education professional No Academic year 2015-16 Sweep No

Adopted from care
This data item (100549) identifies those children on roll on census day who were looked after immediately before adoption or prior to being subject of a residence or special guardianship order. Those who have parental responsibility (adoptive parents, special guardians and carers) choose if they wish schools to know whether children have been adopted, or are under a special guardianship order or a residence order. Schools will be able to record the information using the following codeset; only one of the values will apply to each pupil:

Data item recorded in:
Nursery
Primary
Middle-deemed primary
Middle-deemed secondary
Secondary
All-through
Special
Pupil referral unit

Response scale for all data items:
Not declared
Ceased to be looked after through adoption
Ceased to be looked after through a special guardianship order (SGO) R Ceased to be looked after through a residence order (RO)
Ceased to be looked after through a child arrangement order (CAO)

SchC
Receipt; In care when excluded measure 2016 2-16 2 16 Education professional No Academic year 2015-16 Sweep No

For exclusions – the pupil status (excluding pupil enrolment status) and pupil identifiers modules will be collected together with the in care indicator and SEN provision at the time of exclusion.

Data item recorded in:
Primary
Middle-deemed primary
Middle-deemed secondary
Secondary
All-through
Special
Pupil referral unit

Presumed two responses would be (at time of exclusion):
In care
Not in care

SchC
Receipt; Pupil premium data linked to care status 2016 2-16 2 16 Education professional No Academic year 2015-16 Sweep No

As early years pupil premium data is only collected in the spring (January) census, the age range for 3 year olds is not restricted to the academic year (as is the usual practice with age ranges).
Children will be eligible for EYPP (100559) if they are receiving any hours of funded early education and:

• meet the benefits related criteria for free school meals (please note: meals delivered as part of the universal entitlement are not FSM)
• are in the care of the local authority (in England or Wales)
• have left care (in England or Wales) through:
– adoption
– specialguardianship
– a child arrangement order (formally known as a residence order)

In receipt through eligibility for economic reasons: where they are in receipt via eligibility for the benefits related criteria for FSM
In receipt through eligibility for both reasons: where they are in receipt through eligibility for both economic and other reasons
In receipt through eligibility for other reasons: where they are in receipt due to eligibility for being in care or due to leaving care through adoption, a special guardianship order or a child arrangement order
In receipt through eligibility for unknown basis: where the school or AP provider knows the child is in receipt of EYPP (due to receiving funding from the local authority) but does not necessarily know the reason why

SchC
Receipt; Post looked after arrangements 2016 2-16 2 16 Education professional No Academic year 2016-17 Sweep No

(p) Post looked after arrangements [used for funding]

This data item (100587) identifies those children on roll on census day who were looked after immediately before adoption or prior to being subject of a residence or special guardianship order. Those who have parental responsibility (adoptive parents, special guardians and carers) choose if they wish schools to know whether children have been adopted, or are under a special guardianship order, residence order or a child arrangement order. Schools will be able to record the information using the following codeset; only one of the values will apply to each pupil:

Not declared
Ceased to be looked after through adoption
Ceased to be looked after through a special guardianship order (SGO) R Ceased to be looked after through a residence order (RO)
Ceased to be looked after through a child arrangement order (CAO)

SchC
Receipt; Pupil premium data linked to care status 2016 2-16 2 16 Education professional No Academic year 2016-17 Sweep No

As early years pupil premium data is only collected in the spring (January) census, the age range for 3 year olds is not restricted to the academic year (as is the usual practice with age ranges).
Children will be eligible for EYPP (100559) if they are receiving any hours of funded early education and:

• meet the benefits related criteria for free school meals (please note: meals delivered as part of the universal entitlement are not FSM)
• are in the care of the local authority (in England or Wales)
• have left care (in England or Wales) through:
– adoption
– specialguardianship
– a child arrangement order (formally known as a residence order)

In receipt through eligibility for economic reasons: where they are in receipt via eligibility for the benefits related criteria for FSM
In receipt through eligibility for both reasons: where they are in receipt through eligibility for both economic and other reasons
In receipt through eligibility for other reasons: where they are in receipt due to eligibility for being in care or due to leaving care through adoption, a special guardianship order or a child arrangement order
In receipt through eligibility for unknown basis: where the school or AP provider knows the child is in receipt of EYPP (due to receiving funding from the local authority) but does not necessarily know the reason why

SchC
Receipt; Post looked after arrangements 2017 2-16 2 16 Education professional No Academic year 2017-18 Sweep No

Post looked after arrangements [used for funding]
This data item (100587) identifies those children on roll on census day who were looked after immediately before adoption or prior to being subject of a residence or special guardianship order. Those who have parental responsibility (adoptive parents, special guardians and carers) choose if they wish schools to know whether children have been adopted, or are under a special guardianship order, residence order or a child arrangement order. Schools will be able to record the information using the following codeset; only one of the values will apply to each pupil:

Data item recorded in:
Nursery
Primary
Middle-deemed primary
Middle-deemed secondary
Secondary
All-through
Special
Pupil referral unit

Response scale for all data items:
Not declared
Ceased to be looked after through adoption
Ceased to be looked after through a special guardianship order (SGO) R Ceased to be looked after through a residence order (RO)
Ceased to be looked after through a child arrangement order (CAO)

SchC
Receipt; Basis for 2-year-old funding inc. being looked after in care 2017 2-16 2 16 Education professional No Academic year 2017-18 Sweep No

2-year-old basis for funding [ALL schools]
The basis for funding data item (100576), records the basis under which a 2-year-old (within the date of birth range 1 January 2015 to 31 December 2015 inclusive) has been funded whilst taking up a place in the school. This data item is not required for 3 and 4-year-olds.
46
2-year-old children may meet more than one criterion in the codeset shown below and each relevant criterion is returned in the census.

Response scale for all data items:
Economic criteria
High-level SEN or disability
Looked after or adopted from care

SchC
Receipt; Pupil premium data linked to care status 2017 2-16 2 16 Education professional No Academic year 2017-18 Sweep No

Early years pupil premium (EYPP) (100559) is for disadvantaged three and four year olds. All three and four year olds are entitled to up to 15 hours per week of government funded early education for 38 weeks of the year.

(As early years pupil premium data is only collected in the spring (January) census, the age range for 3 year olds is not restricted to the academic year (as is the usual practice with age ranges).)

Children are eligible to receive EYPP (N00639) if they receive the universal 15 hours entitlement and either:

• meet the benefits related criteria for free school meals (please note: meals delivered as part of the universal entitlement are not FSM)
• are in the care of the local authority (in England or Wales)
• have left care (in England or Wales) through:
– adoption
– specialguardianship
– a child arrangement order (formally known as a residence order)

In receipt through eligibility for economic reasons: where they are in receipt via eligibility for the benefits related criteria for FSM
In receipt through eligibility for both reasons: where they are in receipt through eligibility for both economic and other reasons
In receipt through eligibility for other reasons: where they are in receipt due to eligibility for being in care or due to leaving care through adoption, a special guardianship order or a child arrangement order
In receipt through eligibility for unknown basis: where the school or AP provider knows the child is in receipt of EYPP (due to receiving funding from the local authority) but does not necessarily know the reason why

SchC
Receipt; Basis for 2-year-old funding inc. being looked after in care 2018 2-16 2 16 Education professional No Academic year 2018-19 Sweep No

2-year-old basis for funding [ALL schools]
The basis for funding data item (N00178), records the basis under which a 2-year-old (within the date of birth range 2016-01-01 to 2016-12-31 inclusive) has been funded whilst taking up a place in the school. This data item is not required for 3 and 4-year-olds.
2-year-old children may meet more than one criterion in the codeset shown below and each relevant criterion is returned in the census.

Data item recorded in:
Nursery
Primary
Middle-deemed primary
Middle-deemed secondary
Secondary
All-through
Special
Pupil referral unit

Response scale for all data items:
Economic criteria
High-level SEN or disability
Looked after or adopted from care

SchC
Receipt; Post looked after arrangements 2018 2-16 2 16 Education professional No Academic year 2018-19 Sweep No

Post looked after arrangements [used for funding]
This data item (N00186) identifies those children on roll on census day who were looked after immediately before adoption or prior to being subject of a residence or special guardianship order. Those who have parental responsibility (adoptive parents, special guardians and carers) choose if they wish schools to know whether children have been adopted, or are under a special guardianship order, residence order or a child arrangements order. Schools will be able to record the information using the following codeset; only one of the values will apply to each pupil:

Not declared
Ceased to be looked after through adoption
Ceased to be looked after through a special guardianship order (SGO) R Ceased to be looked after through a residence order (RO)
Ceased to be looked after through a child arrangements order (CAO)

SchC
Receipt; Post looked after arrangements 2020 2-16 2 16 Education professional No Academic year 2020-2021 Sweep No

Post looked after arrangements [used for funding]
This data item (N00186) identifies those children on roll on census day who were looked after immediately before adoption or prior to being subject of a residence or special guardianship order. Those who have parental responsibility (adoptive parents, special guardians and carers) choose if they wish schools to know whether children have been adopted, or are under a special guardianship order, residence order or a child arrangements order. Schools will be able to record the information using the following codeset; only one of the values will apply to each pupil:

Data item recorded in:
Nursery
Primary
Middle-deemed primary
Middle-deemed secondary
Secondary
All-through
Special
Pupil referral unit

Response scale for all data items:
Not declared
Ceased to be looked after through adoption
Ceased to be looked after through a special guardianship order (SGO) R Ceased to be looked after through a residence order (RO)
Ceased to be looked after through a child arrangements order (CAO)

SchC
Receipt; Basis for 2-year-old funding inc. being looked after in care 2020 2-16 2 16 Education professional No Academic year 2020-2021 Sweep No

2 year old basis for funding [ALL schools]
The basis for funding data item (N00178), records the basis under which a 2 year old (within the date of birth range 2018-01-01 to 2018-12-31 inclusive) has been funded whilst taking up a place in the school. This data item is not required for 3 and 4 year olds.
2 year old children may meet more than one criterion in the codeset shown below and each relevant criterion is returned in the census.

ECO Economic criteria
HSD High-level SEN or disability
LAA Looked after or adopted from care

SchC
Receipt; Pupil premium data linked to care status 2020 2-16 2 16 Education professional No Academic year 2020-2021 Sweep No

Early years pupil premium [ALL Schools] [used for funding]
Early years pupil premium (EYPP) (N00639) is for disadvantaged three and four year olds (all three and four year olds are entitled to up to 15 hours per week of government funded free entitlement early education for 38 weeks of the year).

Children are eligible to receive EYPP (N00639) if they receive the universal 15 hours entitlement and either:

• meet benefits related criteria equivalent to those for free school meals (please note: meals delivered as part of the universal entitlement are not ‘FSM’; receipt of FSM does not automatically qualify a child for EYPP)1
• are in the care of the local authority (in England or Wales)
• have left care (in England or Wales) through:
– adoption
– special guardianship
– a child arrangements order (formally known as a residence order)

As early years pupil premium data is only collected in the spring (January) census, the age range for 3 year olds is not restricted to the academic year (as is the usual practice with age ranges).

In receipt through eligibility for economic reasons: where they are in receipt via eligibility for the benefits related criteria for FSM
In receipt through eligibility for both reasons: where they are in receipt through eligibility for both economic and other reasons
In receipt through eligibility for other reasons: where they are in receipt due to eligibility for being in care or due to leaving care through adoption, a special guardianship order or a child arrangement order
In receipt through eligibility for unknown basis: where the school or AP provider knows the child is in receipt of EYPP (due to receiving funding from the local authority) but does not necessarily know the reason why

SchC
Receipt; Post looked after arrangements 2021 2-16 2 16 Education professional No Academic year 2021-22 Sweep No

Post looked after arrangements [used for funding]
This data item (N00186) identifies those children on roll on census day who were looked after immediately before adoption or prior to being subject of a residence or special guardianship order. Those who have parental responsibility (adoptive parents, special guardians and carers) choose if they wish schools to know whether children have been adopted, or are under a special guardianship order, residence order or a child arrangements order. Schools will be able to record the information using the following codeset; only one of the values will apply to each pupil:

Data item recorded in:
Nursery
Primary
Middle-deemed primary
Middle-deemed secondary
Secondary
All-through
Special
Pupil referral unit

Response scale for all data items:
Not declared
Ceased to be looked after through adoption
Ceased to be looked after through a special guardianship order (SGO) R Ceased to be looked after through a residence order (RO)
Ceased to be looked after through a child arrangements order (CAO)

SchC
Receipt; Pupil premium data linked to care status 2021 2-16 2 16 Education professional No Academic year 2021-22 Sweep No

Early years pupil premium [ALL Schools] [used for funding]
Early years pupil premium (EYPP) (N00639) is for disadvantaged three and four year olds (all three and four year olds are entitled to up to 15 hours per week of government funded free entitlement early education for 38 weeks of the year).

Children are eligible to receive EYPP (N00639) if they receive the universal 15 hours entitlement and either:

• meet benefits related criteria equivalent to those for free school meals (please note: meals delivered as part of the universal entitlement are not ‘FSM’; receipt of FSM does not automatically qualify a child for EYPP)1
• are in the care of the local authority (in England or Wales)
• have left care (in England or Wales) through:
– adoption
– special guardianship
– a child arrangements order (formally known as a residence order)

As early years pupil premium data is only collected in the spring (January) census, the age range for 3 year olds is not restricted to the academic year (as is the usual practice with age ranges).

In receipt through eligibility for economic reasons: where they are in receipt via eligibility for the benefits related criteria for FSM
In receipt through eligibility for both reasons: where they are in receipt through eligibility for both economic and other reasons
In receipt through eligibility for other reasons: where they are in receipt due to eligibility for being in care or due to leaving care through adoption, a special guardianship order or a child arrangement order
In receipt through eligibility for unknown basis: where the school or AP provider knows the child is in receipt of EYPP (due to receiving funding from the local authority) but does not necessarily know the reason why

SchC
Receipt; Basis for 2-year-old funding inc. being looked after in care 2021 2-16 2 16 Education professional No Academic year 2021-22 Sweep No

2 year old basis for funding [ALL schools]
The basis for funding data item (N00178), records the basis under which a 2 year old (within the date of birth range 2019-01-01 to 2019-12-31 inclusive) has been funded whilst taking up a place in the school. This data item is not required for 3 and 4 year olds.
2 year old children may meet more than one criterion in the codeset shown below and each relevant criterion is returned in the census.

Response scale for all data items:
ECO Economic criteria
HSD High-level SEN or disability
LAA Looked after or adopted from care

SchC
Receipt; Young carer indicator 2022 2-16 2 16 Education professional No Academic year 2022-23 Sweep No

Young carer indicator

Data item (N00766) records whether the pupil has been identified as a young carer and by whom. This new item is to be collected from all schools except nursery from Spring 2023.

Data item recorded in:
Primary
Middle-deemed primary
Middle-deemed secondary
Secondary
All-through
Special
Pupil referral unit

Response scale for all data items:
Not declared
Identified as a young carer by parent or guardian
Identified as a young carer by school

SchC
Receipt; Post looked after arrangements 2022 2-16 2 16 Education professional No Academic year 2022-23 Sweep No

Post looked after arrangements [used for funding]

This data item (N00186) identifies those children on roll on census day who were looked after immediately before adoption or prior to being subject of a residence or special guardianship order. Those who have parental responsibility (adoptive parents, special guardians and carers) choose if they wish schools to know whether children have been adopted, or are under a special guardianship order, residence order or a child arrangements order.

Not declared
Ceased to be looked after through adoption from England and Wales
Ceased to be looked after through a special guardianship order (SGO) from England and Wales
Ceased to be looked after through a residence order (RO) from England and Wales
Ceased to be looked after through a child arrangements order (CAO) from England and Wales
Ceased to be looked after through adoption from state care outside of England and Wales

SchC
Provision; Effect of caring on carer's employment 2010 0-120 0 120 Carer No Current 2010 - Carers No

Has your ability to take up, or stay in, EMPLOYMENT been affected by the assistance you give to (NAME OF PERSON(S) CARED FOR) in any of the ways on this card? (FOR ALL RESPONSES, THESE SHOULD BE AS A RESULT OF THE CARING AND NOT FOR OTHER REASONS. IF CHANGED JOB, INCLUDE ALL REASONS FOR THE CHANGE, FOR EXAMPLE, NEW JOB WITH LESS RESPONSIBILITY)

Left employment altogether (due to caring responsibilities)
Took new job
Reduced employment hours
Reduced responsibility at work
Flexible employment agreed
Changed to work at home Other
No, employment not affected because of caring responsibilities

SCH
Provision; Effect of caring on carer's education 2010 0-120 0 120 Carer No Current 2010 - Carers No

Has your ability to take up, or stay in, EDUCATION been affected by the assistance you give to (NAME OF PERSON(S) CARED FOR) in any of the ways on this card? (FOR ALL RESPONSES, THESE SHOULD BE AS A RESULT OF THE CARING AND NOT FOR OTHER REASONS)

Unable to study (due to caring responsibilities) Reduced study hours
Flexible study time agreed .
Changed to study at home Other
No, none of these

SCH
Provision; Effect of caring on carer's leisure activities 2010 0-120 0 120 Carer No Current 2010 - Carers No

Has your ability to spend time doing leisure or social activities been affected by the assistance you give to (NAME OF PERSON(S) CARED FOR) in any of the ways on this card? This includes seeing friends and family, spending time with a spouse or partner. (FOR ALL RESPONSES, THESE SHOULD BE AS A RESULT OF THE CARING AND NOT FOR OTHER REASONS)

Unable to socialise or take part in social or leisure activities at all (due to caring responsibilities).
Reduced time with spouse or partner.
Reduced time with other family members
Reduced time with friends
Difficulties making new friends
Reduced time spent doing sport or physical activity
Reduced time spent doing pastime or hobby Other
None of these

SCH
Provision; Patterns of caring 2010 0-120 0 120 Carer No Current 2010 - Carers No

Which of these best describes the special help you provide to …(NAME)?

There is a regular pattern
Regular pattern some minor variation
Irregular pattern – changes from week to week >
Irregular pattern changes from day to day

SCH
Provision; Predicted future care burden 2010 0-120 0 120 Carer No Current 2010 - Carers No

And do you think that over the next 5 years the amount of time that you spend looking after or helping [NAME] will … ?

Increase significantly
Increase slightly
Remain the same
Decrease slightly
Decrease significantly
Don’t know

SCH
Provision; Distance travelled for caring role 2010 0-120 0 120 Carer No Current 2010 - Carers No

ASK IF MAIN CARED FOR PERSON LIVES IN ANOTHER HOUSEHOLD
How far do you travel to look after or help [NAME]?

Short walking distance
Under a mile
Over 1 mile under 5 miles
Over 5 miles under 10 miles
Over 10 miles under 15 miles
Over 15 miles under 20 miles
Over 20 miles

SCH
Provision; Carer's interest in taking-up paid work 2010 0-120 0 120 Carer No Current 2010 - Carers No

ASK ALL WHO ARE NOT IN EMPLOYMENTAND ARE OF WORKING AGE (
Do you have any interest in taking up paid employment?

Yes, in the near future
Yes, when my caring responsibilities are reduced
No plans to return to work
Don’t know

SCH
Provision; Carer's interest in full time/part time work 2010 0-120 0 120 Carer No Current 2010 - Carers No

ASK ALL WHO ARE INTERESTED IN TAKING UP PAID EMPLOYMENT
(You mentioned earlier that you are currently Going to school or college full-time / On a government scheme for employment training / Waiting to take up paid work already obtained / Looking for paid work on a government training scheme / Intending to look for paid work but prevented by temporary sickness or disability)

Would you like to go into a full or part-time job?

Full-time
Part-time
Don’t know

SCH
Provision; Help in taking-up paid employment 2010 0-120 0 120 Carer No Current 2010 - Carers No

ASK ALL WHO ARE INTERESTED IN TAKING UP PAID EMPLOYMENT
Which of the following things would help you to take up paid employment?

The ability to work from home
Having some flexibility in the hours you want to work
Access to affordable childcare
Access to affordable care for the person you care for
Better public transport
Other (SPECIFY)

SCH
Provision; Carer's barriers to paid employment 2010 0-120 0 120 Carer No Current 2010 - Carers No

To what extent do you either agree or disagree with the following
statements about potential barriers you might face in taking up paid employment.

Options:
Agree strongly
Tend to agree
Neither agree nor disagree Tend to disagree
Disagree strongly
Don’t know
Not applicable

Statements:
• I cannot work because of my disability or health condition
• I cannot work because of my caring responsibilities.
• I am not sure I would be able to work regularly
• At my age it is unlikely that I would find a suitable job
• I don’t feel confident about working
• I haven’t got enough qualifications and experience to find the right work
• There aren’t enough suitable job opportunities locally
• I’m not sure I would be better off in work than on benefits
• I cannot work because of my childcare responsibilities
• My family/dependent/s don’t want me to work

SCH
Provision; Carer's awareness of carer working rights 2010 0-120 0 120 Carer No Current 2010 - Carers No

Were you aware that if you look after or give special help to sick, disabled or elderly people and you have worked for the same employer for at least 26 weeks you are now legally entitled to request flexible working (e.g. flexitime or working from home), and that all employers are required to give consideration to any such requests?

And have you made a request to work flexibly?

For first part of question:
Yes
No
Don’t know

For second part of question:
Yes
No
Don’t know

SCH
Provision; Carer's occupancy status 2010 0-120 0 120 Carer No Current 2010 - Carers No

In which of these ways do you occupy this accommodation?

Own outright
Buying it with the help of a mortgage or loan
Pay part rent and part mortgage (shared ownership)
Rent it
Live here rent-free (including rent-free in relative’s/friend’s property; excluding squatting).
Squatting

SCH
Provision; Carer's household income - sources of income 2010 0-120 0 120 Carer No Current 2010 - Carers No

I would like to get some idea of your household’s income. This card
shows various possible sources of income. Can you please tell me which kinds of income your household receives?

Earnings from employment or self-employment .
State retirement pension
Pension from former employer
Personal Pensions
Child Benefit
Job-Seekers Allowance
Pension Credit
Income Support
Working Tax Credit
Child Tax Credit
Housing Benefit
Carers Allowance
Disability Living Allowance/ Attendance Allowance.
Other state benefits .
Interest from savings and investments (e.g. stocks & shares)
Other kinds of regular allowance from outside your household (e.g. maintenance, student’s grants, rent).
No source of income
Don’t know

SCH
Provision; Carer's household income - amount of income 2010 0-120 0 120 Carer No Current 2010 - Carers No

This card shows incomes in weekly, monthly and annual amounts.
Which of the groups on this card represents your household’s total income from all these sources, before any deductions for income tax, National Insurance, etc? Just tell me the letter beside the row that applies to (you/your joint incomes).

Weekly
H Less than £50
D £51 less than £100
J £100 less than £200
B £200 less than £300
F £300 less than £400
E £400 less than £650
I £650 less than £788
A £788 less than £885
K £885 less than £1,154
G £1,154 less than £1,538
C £1,538 or more

Monthly
Less than £216
£216 less than £433 £433 less than £866 £866 less than £1,300 £1,300 less than £1,733 £1,733 less than £2,816 £2,816 less than £3,417 £3,4167 less than £3,833 £3,833 less than £5,000 £5,000 less than £6,667 £6,667 or more

Annual
Less than £2600
£2600 less than £5200 £5,200 less than £10,400 £10,400 less than £15,600 £15,600 less than £20,800 £20,800 less than £33,800 £33,800 less than £41,000 £41,000 less than £46,000 £46,000 less than £60,000 £60,000 less than £80,000 £80,000 or more

Don’t know
Prefer not to say

SCH
Provision; Carer's household income - amount of income 2010 0-120 0 120 Carer No Current 2010 - Carers No

Thinking generally, which of the phrases on the card best describes
how your household are getting along financially nowadays?

I/we manage very well
I/we manage quite well
I/we get by alright
I/we have some financial difficulties
I/we have severe financial difficulties
Don’t know
Prefer not to answer

SCH
Provision; Carer's qualifications 2010 0-120 0 120 Carer No Current 2010 - Carers No

Do you have any of the qualifications listed on this card? Please look
down the whole list before telling me. IF YES: Which of the qualifications on this card do you have? Just tell me the number written beside each one. RECORD ALL THAT APPLY. PROBE: Any others?

Degree/degree level qualification (including higher degree)
Teaching qualification
Nursing qualifications SRN, SCM, SEN, RGN, RM, RHV, Midwife
HNC/HND, BEC/TEC Higher, BTEC Higher/SCOTECH Higher
ONC/OND/BEC/TEC/BTEC not higher
City and Guilds Full Technological Certificate
City and Guilds Advanced/Final Level
City and Guilds Craft/Ordinary Level
A-levels/Higher School Certificate
AS level
SLC/SCE/SUPE at Higher Grade or Certificate of Sixth Year Studies.
O-level passes taken in 1975 or earlier
O-level passes taken after 1975 GRADES A-C
O-level passes taken after 1975 GRADES D-E
GCSE GRADES A-C
GCSE GRADES D-G
CSE GRADE 1/SCE BANDS A-C/Standard Grade LEVEL 1-3
CSE GRADES 2-5/SCE Ordinary BANDS D-E
CSE Ungraded
SLC Lower
SUPE Lower or Ordinary
School Certificate or Matric
NVQ Level 5 .
NVQ Level 4
NVQ Level 3/Advanced level GNVQ
NVQ Level 2/Intermediate level GNVQ
NVQ Level 1/Foundation level GNVQ
Recognised Trade Apprenticeship completed
Clerical or Commercial Qualification (e.g. typing/book-keeping/commerce)
Other (SPECIFY)
No qualifications

SCH
Provision; Carer's health - general health 2010 0-120 0 120 Carer No Current 2010 - Carers No

How is your health in general; would you say it is…

Very good
Good
Fair
Bad
Very bad

SCH
Provision; Carer's health - illness or disability 2010 0-120 0 120 Carer No Current 2010 - Carers No

Do you have any long-standing illness, disability or infirmity – by long-standing I mean anything that has troubled you over a period of time or that is likely to affect you over a period of time?

Yes
No

SCH
Provision; Carer's health - illness or disability 2010 0-120 0 120 Carer No Current 2010 - Carers No

ASK ALL WITH A LONG-STANDING ILLNESS, DISABILITY OR INFIRMITY
Does this illness or disability (Do any of these illnesses or disabilities) limit your activities in any way?

Yes
No

SCH
Provision; Breaks from caring - time since last break 2010 0-120 0 120 Carer No Current 2010 - Carers No

About how long is it since you last had a break for 2 days or longer? Was it less than or more than 1 year ago?

IF LESS THAN I YEAR AGO
About how many months is it since you last had a break for 2 days or longer?

Less than 1 year ago
1 year or more ago

For second part of question:
Number of months

SCH
Provision; Breaks from caring - time since last break 2010 0-120 0 120 Carer No Current 2010 - Carers No

About how many years is it since you last had a break for 2 days or longer?

Number of years

SCH
Receipt; Breaks from caring - respite services used 2010 0-120 0 120 Carer No Current 2010 - Carers No

What sort of arrangements did you use for ….. (NAME OF PERSON CARED FOR) when you last had a break for 2 days or more?

Nursing or residential home
NHS hospital
Local authority hostel
Arranged holiday (cared for person only)
Arranged holiday (cared for person and carer)
Stay with a volunteer family.
Stay with relatives or friends .
Friend or relative staying with cared for person .
Other (SPECIFY)

SCH
Need; Breaks from caring inside one day - need for replacement carer 2010 0-120 0 120 Carer No Current 2010 - Carers No

If you wanted to go out for a couple of hours (during the time when you usually look after ….. (NAME OF PERSON CARED FOR), would someone else have to look after him/her?

Yes, someone else needed
No, could be left alone

SCH
Receipt; Breaks from caring inside one day - sitting service 2010 0-120 0 120 Carer No Past year 2010 - Carers No

In the last year, have you made use of a sitting service for …. (NAME OF PERSON CARED FOR) in order to go out for a couple of hours?

Yes
No
Not available /DK about service

SCH
Receipt; Breaks from caring - befriending service 2010 0-120 0 120 Carer No Past year 2010 - Carers No

In the last year, have you made use of a befriending service for …… (DEPNAME) (that’s where a volunteer takes him/her out for the day?)

Yes
No
Not available /DK about service

SCH
Receipt; Breaks from caring - temporary care and holiday availability 2010 0-120 0 120 Carer No Current 2010 - Carers No

The card shows various types of temporary care or holidays which may be available. Are any of these services available if you wanted a break?

Help provided in the home (eg sitting/befriending service)
Help provided in a residential setting (volunteer family/adult placement, residential/nursing home or hospital)
Holiday together
SPONTANEOUS – None of these available/possible
SPONTANEOUS – Don’t know
Other

SCH
Receipt; Carer's assessment - offer 2010 0-120 0 120 Carer No Current 2010 - Carers No

Have you ever been offered a carer’s assessment of your own needs by your local social services or health authority?

Yes
No
Don’t know

SCH
Receipt; Carer's assessment - completion 2010 0-120 0 120 Carer No Current 2010 - Carers No

And have you ever had a carer’s assessment?

Yes
No

SCH
Receipt; Review of carer's needs - offer 2010 0-120 0 120 Carer No Current 2010 - Carers No

Have you ever been offered a review of your own needs by your local social services or health authority?

Yes
No
Don’t know

SCH
Receipt; Review of carer's needs - completion 2010 0-120 0 120 Carer No Current 2010 - Carers No

Have you had a review of your own needs by your local social services or health authority in the last year?

Yes
No

SCH
Receipt; Carer's assessment - resulting provision of services 2010 0-120 0 120 Carer No Current 2010 - Carers No

Did you receive any services or help as a result of the assessment or review?

No Services .
Information about the condition of the person you care for
Information about other organisation providing services
Information on support to remain in paid work or return to paid work
Information about benefits
Information about support group
Break in own home.
Break away from home
Information about direct payments
Assessment of the person you care for
Services for the cared for person .
Equipment (e.g. mobility aids) .
Received a direct payment
Other

SCH
Receipt; Carer's assessment - own wish to do paid work 2010 0-120 0 120 Carer No Current 2010 - Carers No

When you had your assessment, did social services take into account your wish to do paid work as well as care for someone?

Yes
No
Not applicable

SCH
Receipt; Carer's assessment - own wish to study 2010 0-120 0 120 Carer No Current 2010 - Carers No

When you had your assessment, did social services take into account your wish to study . do a course as well as care for someone?

Yes
No
Not applicable

SCH
Receipt; Carer's assessment - own wish to pursue leisure interests 2010 0-120 0 120 Carer No Current 2010 - Carers No

When you had your assessment, did social services take into account your wish to pursue any leisure interests as well as care for someone?

Yes
No
Not applicable

SCH
Receipt; Carer's assessment - rating usefulness of service 2010 0-120 0 120 Carer No Current 2010 - Carers No

How useful was the [NAME OF SERVICE]?

Very useful
Fairly useful
Not very useful
Not at all useful
Don’t know

SCH
Provision; Reason for becoming carer 2010 0-120 0 120 Carer No Current 2010 - Carers No

Why did you start looking after or giving special help to [NAME]?

No one else available
I was willing / I wanted to help out
I had the time because I was not working
I had the time because I was working part time
I have particular skills / ability to care
Social Services ( local Authority ) suggested I should provide care
It was expected of me (It’s what families do)
He/she wouldn’t want anyone else caring for them
Cared for person requested my help/care
I took over caring responsibilities from someone else
Other (SPECIFY)

SCH
Provision; Effect of caring on personal life 2010 0-120 0 120 Carer No Current 2010 - Carers No

Have your personal relationships, social life or leisure been affected by the assistance you give to (NAME OF PERSON BEING CARED FOR)?

In what way have you been affected?

Yes
No

Too tired to go out
Less time for leisure activities
Unable to go on holiday
Providing care has affected my own health
I am more aware of disabled people’s needs
Other (SPECIFY)

SCH
Provision; Carer's quality of life 2010 0-120 0 120 Carer No Current 2010 - Carers No

If we were to define “quality of life” as how you feel overall about your life, including your standard of living, your surroundings, friendships and how you feel day-to- day, how would you rate your quality of life?

Very good
Fairly good
Neither good nor bad
Fairly bad
Very bad
(Don’t know)

SCH
Provision; Effect of caring on carer's health 2010 0-120 0 120 Carer No Current 2010 - Carers No

Has your own health been affected by the care you provide in any of the ways on this card? (FOR ALL RESPONSES, THESE SHOULD BE AS A RESULT OF THE CARING AND NOT FOR OTHER REASONS)

Feeling tired
Feeling depressed.
Loss of appetite
Disturbed sleep
General feeling of stress .
Physical strain (e.g. back)
Short tempered/irritable
Had to see own GP
Developed my own health condition
Made an existing condition worse
Other
No, none of these

SCH
Provision; Carer giving financial help 2010 0-120 0 120 Carer No Current 2010 - Carers No

Does the carer give financial help only?

Yes
No

SCH
Provision; Amount of hours spent caring 2010 0-120 0 120 Carer No Current 2010 - Carers No

About how long do you spend EACH WEEK looking after or helping (NAME OF PERSON CARED FOR) – that is doing the things you’ve mentioned and including time when you just need to be there (apart from when you are asleep/ including time travelling to and from his/her home)?

0-9 hours per week
10-19 hours per week.
20-34 hours per week
35-49 hours per week
50-99 hours per week
100 or more hours per week
Varies – Under 20 hours
Varies – 20 hours or more
Other

SCH
Provision; Length of time spent caring 2010 0-120 0 120 Carer No Current 2010 - Carers No

About how long have you been looking after or helping (NAME OF PERSON CARED FOR) IF PERSON CARED FOR IS IN HOUSEHOLD (that is doing things for him/her over and above what you would normally do for someone living with you/a child of that age)?

Less than 6 months
6 months, less than 1 year
1 year, less than 3 years
3 years, less than 5 years
5 years, less than 10 years
10 years, less than 15 years
15 years, less than 20 years
20 years or more

SCH
Provision; Other/joint carers 2010 0-120 0 120 Carer No Current 2010 - Carers No

Apart from any professional people, such as nurses or care workers (i.e. home help), who may regularly visit (NAME OF PERSON CARED FOR), is there anyone else who also looks after him/her – for example, another member of your household, another member of the family, a relative or friend?

Yes
No
Other person(s) spend equal time
Don’t know

SCH
Provision; Other/joint carers - amount of time 2010 0-120 0 120 Carer No Current 2010 - Carers No

Can I just check, do any of these people (including anyone in your household) spend more time looking after (NAME OF PERSON CARED FOR) than you do?

Yes
No
Other person(s) spend equal time
Don’t know

SCH
Provision; Caring for multiple people - total time 2010 0-120 0 120 Carer No Current 2010 - Carers No

If more than one person is cared for (excluding clients of a voluntary organisation) (TotDep>1), others Q39
May I check; thinking about the total time you spend assisting (SPECIFY ALL PERSONS CARED FOR), about how long altogether do you spend each WEEK looking after or helping them?

0-9 hours per week
10-19 hours per week.
20-34 hours per week
35-49 hours per week
50-99 hours per week
100 or more hours per week
Varies – Under 20 hours
Varies – 20 hours or more
Other

SCH
Provision; Caring for multiple people - share of time 2010 0-120 0 120 Carer No Current 2010 - Carers No

You mentioned earlier that you spend a similar amount of time per week looking after or helping (NAME ALL ‘EQUAL’ PERSONS CARED FOR) Can you say which one you spend most time helping on average, or is there no difference?

IF RESPONDENT SAYS NO DIFFERENCE SELECT THE FIRST ELIGIBLE PERSON CARED FOR

SCH
Receipt; Care given by other services 2010 0-120 0 120 Carer No Current 2010 - Carers No

Does (NAME OF PERSON CARED FOR) receive regular visits at least once a month from any of these people?

Does (NAME OF PERSON CARED FOR) have regular contact, at least once a month from any of these [other] people? Please think about face-to- face contact where (NAME OF PERSON CARED FOR) visits any of these people.

Doctor
Community/district nurse / Community Matron
Health visitor
Social worker/care manager
Home help/care worker
Meals on wheels.
Voluntary worker
Occupational therapist
Educational Professional
Specialist / nursing care / palliative care.
Community mental health services
Other professional visitor.
No, none
Don’t know

Same selection for second part of question.

SCH
Receipt; Reasons for not receiving care from other services 2010 0-120 0 120 Carer No Current 2010 - Carers No

What are the reasons for (NAME OF PERSON CARED FOR) not receiving regular visits at least once a month from any of the above? Please choose your answers from the card. CODE ALL THAT APPLY

Not available/not offered
Not needed
Tried, but not helpful.
Not wanted by you.
Not wanted by the person you care for
Not at a convenient time
Too expensive.
Not eligible.
Don’t know who to ask
Other

SCH
Receipt; Cared-for person visiting places/joining activities 2010 0-120 0 120 Carer No Current 2010 - Carers No

Does (NAME OF PERSON CARED FOR) regularly go to any of the places or activities listed on this card?

Work
Day centre
School or college.
Day hospital.
Social club, support group or other club
None of these

SCH
Receipt; Number of hours cared-for person spends outside of home. 2010 0-120 0 120 Carer No Current 2010 - Carers No

Thinking about the places that [NAME] goes to, about how many hours a week in total does he/she usually spend without you and outside the home?

IF VARIES ASK FOR AVERAGE NUMBER OF HOURS PER MONTH AND CALCULATE AVERAGE NUMBER PER WEEK IF HOURS VARY AND CANNOT GIVE AVERAGE

SCH
Need; Number of hours cared-for person spends at work 2010 0-120 0 120 Carer No Current 2010 - Carers No

IF PERSON CARED FOR REGULARLY GOES TO WORK
About how many of these hours a week does [NAME] usually spend at work?

IF VARIES ASK FOR AVERAGE NUMBER OF HOURS PER MONTH AND CALCULATE AVERAGE NUMBER PER WEEK
IF HOURS VARY AND CANNOT GIVE AVERAGE

SCH
Receipt; Reasons care-for person does not go to outside activities 2010 0-120 0 120 Carer No Current 2010 - Carers No

What are the reasons that (NAME OF PERSON CARED FOR) does not go to any outside activities ?

Not available/not offered
Not needed
Tried, but not helpful.
Not wanted by you.
Not wanted by the person you care for
Not at a convenient time
Too expensive.
Not eligible.
Don’t know who to ask
Other

SCH
Receipt; Community/voluntary transport schemes 2010 0-120 0 120 Carer No Current 2010 - Carers No

Does (NAME OF PERSON CARED FOR) regularly make use of a community or voluntary transport scheme?

Yes
No
Don’t know

SCH
Receipt; Community/voluntary transport schemes - reasons not to use 2010 0-120 0 120 Carer No Current 2010 - Carers No

And what are the reasons that (NAME OF PERSON CARED FOR) does not make use of a community or voluntary transport scheme? Please choose your answers from the card.

Not available/not offered
Not needed
Tried, but not helpful.
Not wanted by you.
Not wanted by the person you care for
Not at a convenient time
Too expensive.
No need for it
Prefer to use own transport
Prefer to use other transport
Unaware of any schemes in this area
Other
Don’t know

SCH
Need; Breaks from caring - need of replacement carer 2010 0-120 0 120 Carer No Current 2010 - Carers No

You’ve told me about the things you do for …. (NAME OF PERSON CARED FOR). If you wanted a break for a couple of days (during the time when you usually look after him/her), would someone else have to look after him/ her?

Yes, need someone else.
No

SCH
Provision; Breaks from caring - trust in replacement carer 2010 0-120 0 120 Carer No Current 2010 - Carers No

Is there anyone whom you could rely on to look after him/ her either at home or elsewhere?

Yes
No

SCH
Provision; Breaks from caring - who is replacement carer 2010 0-120 0 120 Carer No Current 2010 - Carers No

Who could you rely on to look after him/her? CODE ALL THAT APPLY

Relative
Friend or neighbour
Paid helper (professional or voluntary)
Other

SCH
Provision; Breaks from caring - availability of respite services 2010 0-120 0 120 Carer No Current 2010 - Carers No

The card shows various types of temporary care or holidays which may be available in some parts of the country. Are any of these services available if you wanted a break for a couple of days?

Help provided in the home (eg sitting)
Nursing or residential home
NHS hospital
Holiday for person cared for.
Holiday together
Stay with a volunteer family
None of these

SCH
Provision; Breaks from caring - has carer had break 2010 0-120 0 120 Carer No Current 2010 - Carers No

Have you had a break for 2 days or more since you started to look after …….. (NAME OF PERSON CARED FOR)?

Yes
No

SCH
Provision; Whether participant is a carer 2010 0-120 0 120 Carer No Current 2010 - Screening No

Can I just ask one question, is there anyone, (either living with you) or not living with you who is sick, disabled or elderly whom you look after or give special help to, other than in a professional capacity?

Yes
No
Refused

SCH
Provision; Whether carer lives with recipient of care 2010 0-120 0 120 Carer No Current 2010 - Screening No

May I check, is there anyone living with you who is sick, disabled or elderly whom you look
after or give special help to, other than in a professional capacity (for example, a sick or disabled (or elderly) relative/husband/wife/child/friend/parent, etc)?

Yes
No
Refused

SCH
Provision; Whether there are multiple carers in household 2010 0-120 0 120 Carer No Current 2010 - Screening No

And does anyone else in your household aged 16 or older look after or give special help to someone who is sick, disabled or elderly in this household?

Yes
No
Refused

SCH
Provision; Whether carer does not live with recipient of care 2010 0-120 0 120 Carer No Current 2010 - Screening No

Is there anyone not living with you who is sick, disabled or elderly whom you look after or
give special help to, other than in a professional capacity, (for example, a sick or disabled (or elderly) relative/husband/wife/child/friend/parent, etc)?

Yes, in another hosuehold
No
Don’t know

SCH
Provision; Whether multiple people in household give care outside of household 2010 0-120 0 120 Carer No Current 2010 - Screening No

And does anyone else in your household aged 16 or older look after or give special help to someone not living with you who is sick, disabled or elderly?

Yes, in another hosuehold
No
Don’t know

SCH
Provision; Unpaid care inside household 2010 0-120 0 120 Carer No Current 2010 - Carers No

May I check, is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to, other than in a professional capacity (for example, a sick or disabled (or elderly) relative/husband/ wife/child/friend/parent, etc)?

Yes
No
Not sure

SCH
Provision; Unpaid care outside of household 2010 0-120 0 120 Carer No Current 2010 - Carers No

Is there anyone, not living with you who is sick, disabled or elderly whom you look after or give special help to, other than in a professional capacity, (for example, a sick or disabled (or elderly) relative/husband/wife/child/friend/parent, etc)?

Yes, in another hosuehold
No
Not sure

SCH
Provision; Number of people inside carers household receiving care 2010 0-120 0 120 Carer No Current 2010 - Carers No

Do you look after or help one sick, disabled or elderly person living with you, or is it more than one?

IF MORE THAN 6 CODE AS 6

SCH
Provision; Number of people outside of carers household receiving care 2010 0-120 0 120 Carer No Current 2010 - Carers No

Do you look after or help one sick, disabled or elderly person living elsewhere, or is it more than one?

IF MORE THAN 6 CODE AS 6

SCH
Provision; Person who carer helps inside household 2010 0-120 0 120 Carer No Current 2010 - Carers No

Who is it (in your household/ not living with you) that you look after or help?

Spouse/partner
Own/adopted/step child
Foster child
Parent
Parent-in-law
Grand-parent
Other relative
Friend or neighbour
Client of voluntary organisation
Other

SCH
Provision; Age of care recipient 2010 0-120 0 120 Carer No Current 2010 - Carers No

Age of (NAME OF PERSON CARED FOR)

Age

SCH
Provision; Sex of care recipient 2010 0-120 0 120 Carer No Current 2010 - Carers No

Sex of person cared for

Male
Female

SCH
Receipt; Residence of care recipient 2010 0-120 0 120 Carer No Current 2010 - Carers No

May I check, does (NAME OF PERSON CARED FOR) usually live in a hospital, residential or nursing home?

Yes
No

SCH
Receipt; Residence of care recipient - multiple locations 2010 0-120 0 120 Carer No Current 2010 - Carers No

May I just check, does (NAME OF PERSON CARED FOR) usually live here all the time or does he/she sometimes go to live somewhere else?

Lives here all the time
Sometimes lives somewhere else

SCH
Receipt; Residence of care recipient - second location 2010 0-120 0 120 Carer No Current 2010 - Carers No

Where does (NAME OF PERSON CARED FOR) live when he/she is not living with you? Is it in another household or somewhere else?

In another private household
Boarding school/residential college
Residential home
Nursing or care home
Hospital
Other institution
Other

SCH
Need; Reason care is needed 2010 0-120 0 120 Carer No Current 2010 - Carers No

May I check, why does (NAME OF PERSON CARED FOR) need care? Just call out the letters that apply.

B Dementia
G A physical disability
D Sight or hearing loss
A A mental health problem
F A learning disability or difficulty
C Long-standing illness
E Terminal illness
H Alcohol or drug dependency
I Other
Problems connected to ageing (SPONTANEOUS ONLY)

SCH
Need; Reason care is needed 2010 0-120 0 120 Carer No Current 2010 - Carers No

Could I just check, how is [NAME OF PERSON CARED FOR] affected?

1 Physically >Q30
2 Mentally >Q30
3 Both physically and mentally >Q30
4 SPONTANEOUS ONLY – Old age >Q30
5 Other >Q30

SCH
Need; Reason care is needed 2010 0-120 0 120 Carer No Current 2010 - Carers No

Is the condition/illness/disability permanent or temporary?

Permanent
Temporary

SCH
Provision; Provision of assistance with ADLs/IADLs 2010 0-120 0 120 Carer No Current 2010 - Carers No

What kinds of things do you usually do for (NAME OF PERSON CARED FOR)? IF IS IN HOUSEHOLD (over and above what you would normally do for someone living with you/a child of his/her age?)

Personal care ?
(e.g. dressing, bathing, washing, shaving, cutting nails, feeding, using the toilet)
Physical help?
(e.g. with walking, getting up and down stairs, getting into and out of bed)
Helping with dealing with care services and benefits? (e.g. making appointments and phone calls, filling in forms)
Helping with other paperwork or financial matters? (e.g. writing letters, sending cards, filling in forms, dealing with bills, banking)
Other practical help?
(e.g. preparing meals, doing his/her shopping, laundry, housework, gardening, decorating, household repairs, taking to doctor’s or hospital)
Keeping him/her company?
(e.g. visiting, sitting with, reading to, talking to, playing cards or games)
Taking him/her out?
(e.g. taking out for a walk or drive, taking to see friends or relatives)
Giving medicines?
(e.g. making sure he/she takes pills giving injections, changing dressings)
Keeping an eye on him/her to see he/she is all right?
Other help?

SCH
Provision; Frequency of provision of assistance with ADLs/IADLs 2010 0-120 0 120 Carer No Current 2010 - Carers No

And how often do you help [NAME OF PERSON CARED FOR] with … ?

Personal care? Physical help? Helping with dealing with care services and benefits?
Helping with other paperwork or financial matters? Other practical help?
Keeping him/her company? Taking him/her out?
Giving medicines? Keeping an eye on
him/her to see he/she is all right

For all of the above subjects participants rate with the following:

More than once a day
Once a day
Most days
2-3 times a week
Once a week
Less than once a week, but at least once a month
Less often

SCH
Receipt; Carer support provided during the year - new carer age bands 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS003 is a measure of carer support provided during the year, broken down by the age of the carer, Primary Support Reason of the client (cared-for) and the type of support provided.

One set of data items divides Support provided to new carers by age bands of carers. This is broken down into the following data items:

– Support direct to carer – Direct Payment only
– Support direct to carer – Part Direct Payment
– Support direct to carer – CASSR Managed Personal Budget
– Support direct to carer – CASSR Commissioned Support only
– Support direct to carer – Information, Advice and Other Universal Services / Signposting
– No Direct Support Provided to Carer
– Respite or Other Forms of Carer Support delivered to the cared-for person – Respite or Other Forms of Carer Support delivered to the cared-for person
– Respite or Other Forms of Carer Support delivered to the cared-for person – Where support was also provided direct to carer
– Respite or Other Forms of Carer Support delivered to the cared-for person – Where Information, advice and other universal services or signposting or No direct support was provided to carer

Response scale for all data items:
Carer aged under 18 (no. of clients)
Carer aged 18-25 (no. of clients)
Carer aged 26-64 (no. of clients)
Carer aged 65-84 (no. of clients)
Carer aged 85+ (no. of clients)

SALT
Receipt; Carer support provided during the year - primary support reason 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS003 is a measure of carer support provided during the year, broken down by the age of the carer, Primary Support Reason of the client (cared-for) and the type of support provided.

One set of data items divides support provided to carers by primary support reason of cared for person: (most recent). This is broken down into the following data items:

– Support direct to carer – Direct Payment only
– Support direct to carer – Part Direct Payment
– Support direct to carer – CASSR Managed Personal Budget
– Support direct to carer – CASSR Commissioned Support only
– Support direct to carer – Information, Advice and Other Universal Services / Signposting
– No Direct Support Provided to Carer
– Respite or Other Forms of Carer Support delivered to the cared-for person – Respite or Other Forms of Carer Support delivered to the cared-for person
– Respite or Other Forms of Carer Support delivered to the cared-for person – Where support was also provided direct to carer
– Respite or Other Forms of Carer Support delivered to the cared-for person – Where Information, advice and other universal services or signposting or No direct support was provided to carer

Response scale for all data items:
Physical Support: Access & mobility only (no. of clients)
Physical Support: Personal care support (no. of clients)
Sensory Support: Support for visual impairment (no. of clients)
Sensory Support: Support for hearing impairment (no. of clients)
Sensory Support: Support for dual impairment (no. of clients)
Support with Memory & Cognition (no. of clients)
Learning Disability Support (no. of clients)
Mental Health Support (no. of clients)
Social Support: Substance misuse support (no. of clients)
Social Support: Asylum seeker support (no. of clients)
Social Support: Support for Social Isolation / Other (no. of clients)

SALT
Receipt; Carer support provided during the year - method of assessment or review 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS003 is a measure of carer support provided during the year, broken down by the age of the carer, Primary Support Reason of the client (cared-for) and the type of support provided.

One set of data items divides Support provided to carers by method of assessment or review. This is broken down into the following data items:

– Support direct to carer – Direct Payment only
– Support direct to carer – Part Direct Payment
– Support direct to carer – CASSR Managed Personal Budget
– Support direct to carer – CASSR Commissioned Support only
– Support direct to carer – Information, Advice and Other Universal Services / Signposting
– No Direct Support Provided to Carer
– Respite or Other Forms of Carer Support delivered to the cared-for person – Respite or Other Forms of Carer Support delivered to the cared-for person
– Respite or Other Forms of Carer Support delivered to the cared-for person – Where support was also provided direct to carer
– Respite or Other Forms of Carer Support delivered to the cared-for person – Where Information, advice and other universal services or signposting or No direct support was provided to carer

Response scale for all data items:
Jointly with the cared-for person (no. of clients)
Separately from the cared-for person (no. of clients)
No review or assessment during year (no. of clients)

SALT
Receipt; Carer support provided during the year - method of assessment or review 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS004 Is a measure of the accommodation and employment status of working age clients with a Learning Disability.

One measure divides Long term support during the year (Clients aged 18 to 64 with a PSR of learning disability) by gender. It does this using the following data items:

-Paid – less than 16 hours a week
-Paid – 16 hours or more a week)
-Not in Paid Employment (seeking work)
-Not in Paid Employment (not actively seeking work / retired)
-Unknown

Response scale for all data items:
Male (no. of clients)
Female (no. of clients)

SALT
Receipt; Accommodation and employment status of clients (working age) -settled accommodation - gender 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS004 Is a measure of the accommodation and employment status of working age clients with a Learning Disability.

One measure divides Long term support during the year (clients aged 18 to 64 with a PSR of learning disability, living on their own or with their family) by gender using the following data items:

– Owner occupier or shared ownership scheme
– Tenant (including local authority, arm’s length management organisations, registered social landlord, housing association)
– Tenant – private landlord
– Settled mainstream housing with family / friends (including flat-sharing)
– Supported accommodation / supported lodgings / supported group home (i.e. accommodation supported by staff or resident care taker)
– Shared lives scheme
– Approved premises for offenders released from prison or under probation supervision (e.g. probation hostel)
– Sheltered housing / extra care housing / other sheltered housing
– Mobile accommodation for Gypsy / Roma and Traveller communities

Response scale for all data items:
Male (no. of clients)
Female (no. of clients)

SALT
Receipt; Accommodation and employment status of clients (working age)- unsettled accommodation - gender 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS004 Is a measure of the accommodation and employment status of working age clients with a Learning Disability.

One measure divides Long term support during the year (clients aged 18 to 64 with a PSR of learning disability, living in unsettled accommodation) by gender using the following data items:

– Rough sleeper / squatting
– Night shelter / emergency hostel / direct access hostel (temporary accommodation accepting self-referrals)
– Refuge
– Placed in temporary accommodation by the council (including homelessness resettlement)
– Staying with family / friends as a short term guest
– Acute / long term healthcare residential facility or hospital (e.g. NHS Independent general hospital / clinic, long stay hospital, specialist rehabilitation / recovery hospital)
– Registered care home
– Registered nursing home
– Young offenders institution / detention centre
– Other temporary accommodation
– Unknown

Response scale for all data items:
Male (no. of clients)
Female (no. of clients)

SALT
Receipt; Requests for social care support 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

STS001 – The intention is to count the sequels of requests for support (contacts from new clients or their representatives, or someone acting on their behalf) being made in relation to the provision of adult social care services. This is done under the following data items (for clients aged 18-65 and again separately for those aged 65+):

-Short Term Support to Maximise Independence (for new requests and for repeat requests)
-Long Term Support (eligible services) – nursing care
-Long Term Support (eligible services) – residential care
-Long Term Support (eligible services) – community
-Long Term Support (eligible services) – prison
-100% NHS Funded Care
-End of Life
-Ongoing Low Level Support
-Short Term Support (other)
-Universal Services/ Signposted to other services
-No Services Provided – Deceased
-No Services Provided – other reason

Response scale for each data item:
Planned Entry (Transition) (no. of clients)
Discharge from Hospital (no. of clients)
Diversion from Hospital services (no. of clients)
Self-funder with depleted funds (no. of clients)
of which previously provided with 12-week disregard or deferred payment (since 1st April 2014) (no. of clients)
Community / Other route (no. of clients)
Prison (no. of clients)

SALT
Receipt; Short term support/maximising independence - completed episodes 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

STS002a – This measure tracks the sequel to a limited period of short term support and will provide some indication of the outcomes of services intended to maximise the independence of new clients, especially when considered in conjunction with measure STS001.

ST-Max = Short term support to maximise independence

Under STS002a, Route of Access for completed episodes of ST-Max New clients are recorded by the following data items:

-Early cessation of service (not leading to long term support) – 100% NHS funded care/End of Life/deceased
-Early cessation of service (not leading to long term support)
– Early Cessation of Service (leading to long term support)
– Long Term Support (any setting)
– No services provided – needs identified but self-funding
– Ongoing Low Level Support
– Short Term Support (other)
– No services provided – needs identified but support declined
– No Services Provided – Universal Services / signposted to other services
-No Services provided – no identified needs

Response scale for each data item:
Planned Entry (Transition) (no. of clients)
Discharge from Hospital (no. of clients)
Diversion from Hospital services (no. of clients)
Self-funder with depleted funds (no. of clients)
of which previously provided with 12-week disregard or deferred payment (since 1st April 2014) (no. of clients)
Community / Other route (no. of clients)
Prison (no. of clients)

SALT
Receipt; Short term support/maximising independence - completed episodes primary support reasons 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

STS002a – This measure tracks the sequel to a limited period of short term support and will provide some indication of the outcomes of services intended to maximise the independence of new clients, especially when considered in conjunction with measure STS001.

ST-Max = Short term support to maximise independence

Under STS002a, Primary Support Reason for Completed episodes of ST-Max New clients (aged 18 to 64 and then separately for those aged 65+) are recorded by the following data items:

-Early cessation of service (not leading to long term support) – 100% NHS funded care/End of Life/deceased
-Early cessation of service (not leading to long term support)
– Early Cessation of Service (leading to long term support)
– Long Term Support (any setting)
– No services provided – needs identified but self-funding
– Ongoing Low Level Support
– Short Term Support (other)
– No services provided – needs identified but support declined
– No Services Provided – Universal Services / signposted to other services
-No Services provided – no identified needs

Response scale for each data item:
Physical Support: Access & mobility only (no. of clients)
Physical Support: Personal care support (no. of clients)
Sensory Support: Support for visual impairment (no. of clients)
Sensory Support: Support for hearing impairment (no. of clients)
Sensory Support: Support for dual impairment (no. of clients)
Support with Memory & Cognition (no. of clients)
Learning Disability Support (no. of clients)
Mental Health Support (no. of clients)
Social Support: Substance misuse support (no. of clients)
Social Support: Asylum seeker support (no. of clients)
Social Support: Support for Social Isolation / Other (no. of clients)

SALT
Receipt; Short term support/maximising independence - client ethnicity for completed episodes 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

STS002a – This measure tracks the sequel to a limited period of short term support and will provide some indication of the outcomes of services intended to maximise the independence of new clients, especially when considered in conjunction with measure STS001.

ST-Max = Short term support to maximise independence

Under STS002a, measures also collect the client ethnicity of completed episodes of ST-Max on the following data items:

-Early cessation of service (not leading to long term support) – 100% NHS funded care/End of Life/deceased
-Early cessation of service (not leading to long term support) – other reason
-Early Cessation of Service (leading to long term support)
-Long Term Support (any setting)
-No services provided – needs identified but self-funding
-Ongoing Low Level Support
-Short Term Support (other)
-No services provided – needs identified but support declined
-No Services Provided – Universal Services / signposted to other services
-No Services provided – no identified needs

Response scale for each data item:
English / Welsh / Scottish / Northern Irish / British (no. of clients)
Irish (no. of clients)
Gypsy or Irish Traveller (no. of clients)
Any other White background (no. of clients)
White and Black Caribbean (no. of clients)
White and Black African (no. of clients)
White and Asian (no. of clients)
Any other mixed / multiple ethnic background (no. of clients)
Indian (no. of clients)
Pakistani (no. of clients)
Bangladeshi (no. of clients)
Chinese (no. of clients)
Any other Asian background (no. of clients)
African (no. of clients)
Caribbean (no. of clients)
Any other Black / African / Caribbean background (no. of clients)
Arab (no. of clients)
Other (no. of clients)
Refused (no. of clients)
Undeclared / Not known (no. of clients)

SALT
Receipt; Short term support/maximising independence - support from carers 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

STS002a – This measure tracks the sequel to a limited period of short term support and will provide some indication of the outcomes of services intended to maximise the independence of new clients, especially when considered in conjunction with measure STS001.

ST-Max = Short term support to maximise independence

Under STS002a, measures collect information on support from carers by completed episodes of ST-Max New clients via the following data items:

-Early cessation of service (not leading to long term support) – 100% NHS funded care/End of Life/deceased
-Early cessation of service (not leading to long term support) – other reason
-Early Cessation of Service (leading to long term support)
-Long Term Support (any setting)
-No services provided – needs identified but self-funding
-Ongoing Low Level Support
-Short Term Support (other)
-No services provided – needs identified but support declined
-No Services Provided – Universal Services / signposted to other services
-No Services provided – no identified needs

Response scale for all data items:
No carer (no. of clients)
Carer (no. of clients)
Not known (no. of clients)

SALT
Receipt; Short term support/maximising independence - age bands of completed episodes. 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

STS002a – This measure tracks the sequel to a limited period of short term support and will provide some indication of the outcomes of services intended to maximise the independence of new clients, especially when considered in conjunction with measure STS001.

ST-Max = Short term support to maximise independence

Finally STS002a, collects information on the age bands of completed episodes of ST-Max resulting in long term support
New clients via the following data items:

-for clients aged 18-64
-of whom had a route of access Self Funder with Depleted Funds and had previously had either 12 week disregard/ DPA
-for clients aged 65+
-of whom had a route of access Self Funder with Depleted Funds and had previously had either 12 week disregard/ DPA

Response scale for all data items:
Community (no. of clients)
Residential (no. of clients)
Nursing (no. of clients)
Prison (no. of clients)

SALT
Receipt; Long term support - existing clients route of access 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

STS002b is a similar measure to STS002a except that only existing clients should be included, i.e. those in receipt of long term support at the point of the decision to provide a period of ST-Max

ST-Max = Short term support to maximise independence

The first set of data items concern Route of Access for completed episodes of ST-Max Existing clients. The data items are:

– Early Cessation of Service (not returning to long term support) – NHS funded care/ end of life / deceased
– Early Cessation of Service (not returning to long term support) – other reason
– Early Cessation of Service (return to long term support) – any setting
-Move to Nursing Care (from community)
– Move to Residential Care (from community)
– Move to Community
– Level of Long-Term Support Increased
– No Change in Long Term Support
– Level of Long Term Support Decreased
– ALL Long Term Support Ended – no ongoing eligible needs

Response scale for all data items:
Discharge from Hospital (no. of clients)
Diversion from Hospital Services (no. of clients)
Community / Other Route (no. of clients)
Prison (no. of clients)

SALT
Receipt; Long term support - existing clients - primary support reasons for completed episodes STC 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

STS002b is a similar measure to STS002a except that only existing clients should be included, i.e. those in receipt of long term support at the point of the decision to provide a period of ST-Max

ST-Max = Short term support to maximise independence

A set of data items concern Primary Support Reasons for completed episodes of Completed episodes of ST-Max
Existing clients (aged 18 to 64 and separate collection for 65+). The data items are:

– Early Cessation of Service (not returning to long term support) – NHS funded care/ end of life / deceased
– Early Cessation of Service (not returning to long term support) – other reason
– Early Cessation of Service (return to long term support) – any setting
-Move to Nursing Care (from community)
– Move to Residential Care (from community)
– Move to Community
– Level of Long-Term Support Increased
– No Change in Long Term Support
– Level of Long Term Support Decreased
– ALL Long Term Support Ended – no ongoing eligible needs

Response scale for each data item:
Physical Support: Access & mobility only (no. of clients)
Physical Support: Personal care support (no. of clients)
Sensory Support: Support for visual impairment (no. of clients)
Sensory Support: Support for hearing impairment (no. of clients)
Sensory Support: Support for dual impairment (no. of clients)
Support with Memory & Cognition (no. of clients)
Learning Disability Support (no. of clients)
Mental Health Support (no. of clients)
Social Support: Substance misuse support (no. of clients)
Social Support: Asylum seeker support (no. of clients)
Social Support: Support for Social Isolation / Other (no. of clients)

SALT
Receipt; Long term support - existing clients - carer support 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

STS002b is a similar measure to STS002a except that only existing clients should be included, i.e. those in receipt of long term support at the point of the decision to provide a period of ST-Max

ST-Max = Short term support to maximise independence

A set of data items concern Carer Support for Completed episodes of ST-Max Existing clients episodes of ST-Max. The data items are:

– Early Cessation of Service (not returning to long term support) – NHS funded care/ end of life / deceased
– Early Cessation of Service (not returning to long term support) – other reason
– Early Cessation of Service (return to long term support) – any setting
-Move to Nursing Care (from community)
– Move to Residential Care (from community)
– Move to Community
– Level of Long-Term Support Increased
– No Change in Long Term Support
– Level of Long Term Support Decreased
– ALL Long Term Support Ended – no ongoing eligible needs

Response scale of all data items:
Carer (no. of clients)
No carer (no. of clients)

SALT
Receipt; Long term support - existing clients - age bands for completed STC 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

STS002b is a similar measure to STS002a except that only existing clients should be included, i.e. those in receipt of long term support at the point of the decision to provide a period of ST-Max

ST-Max = Short term support to maximise independence

A set of data items concern Age bands for Completed episodes of ST-Max resulting in Early Cessation of Service (return to long term support) where there is a move to residential or nursing care. The data items are:

– Move to Nursing Care (from Community)
– Move to Residential Care (from Community)
– No change in setting

Response scale for all data items:
– for those Aged 18-64 (no. of clients)
– for those Aged 65+ (no. of clients)

SALT
Receipt; Hospital discharges into reablement 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

The STS004 measure collects data on the benefit to clients from reablement / rehabilitation services following a hospital episode. It captures the joint work of social services and health staff and services commissioned by joint teams as well those commissioned by social services only.

Data items in this category concern hospital discharges into reablement / rehabilitation services for clients aged 65 and over. The data items collected are:

– 65 to 74 years old
– 75 to 84 years old
– 85 years old and over
– Total – 65 and Over

Response scale for all data items:
Number of discharges in period to rehabilitation where the intention is for the patient to go back home
(1st October – 31st December)
Number of discharges above where person was still at home 91 days later

SALT
Receipt; Supported LTC clients - primary support reasons during year 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS001a is a ‘through the year’ measure of supported clients where the support is ‘long term’. Long Term support encompasses services provided with the intention of maintaining quality of life for an individual on an ongoing basis, and which has been allocated on the basis of eligibility criteria / policies (i.e. an assessment of need has taken place) and are subject to regular review.

Some data items concern Primary support reasons concerning long term support during the year (Separate collections for clients aged 18 to 64 and those aged 65+). Data items collected are:

Nursing
Residential
Direct Payment only
Part Direct Payment
CASSR Managed Personal Budget
CASSR Commissioned Support only
CASSR Managed Personal Budget
CASSR Commissioned Support only

Response scale for each data item:
Physical Support: Access & mobility only (no. of clients)
Physical Support: Personal care support (no. of clients)
Sensory Support: Support for visual impairment (no. of clients)
Sensory Support: Support for hearing impairment (no. of clients)
Sensory Support: Support for dual impairment (no. of clients)
Support with Memory & Cognition (no. of clients)
Learning Disability Support (no. of clients)
Mental Health Support (no. of clients)
Social Support: Substance misuse support (no. of clients)
Social Support: Asylum seeker support (no. of clients)
Social Support: Support for Social Isolation / Other (no. of clients)

SALT
Receipt; Snapshot measure - supported clients at year-end - primary support for LTC 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS001b is a snapshot measure of supported clients at the year-end where the support is ‘long term’. Long Term support encompasses services provided with the intention of maintaining quality of life for an individual on an ongoing basis, and which have been allocated on the basis of eligibility criteria / policies (i.e. an assessment of need has taken place) and are subject to regular review.

Some data items concern Primary support for Long term support at the end of the year (Separate collections for clients aged 18 to 64 and those aged 65+). Data items collected are:

Nursing
Residential
Direct Payment only
Part Direct Payment
CASSR Managed Personal Budget
CASSR Commissioned Support only
CASSR Managed Personal Budget
CASSR Commissioned Support only

Response scale for each data item:
Physical Support: Access & mobility only (no. of clients)
Physical Support: Personal care support (no. of clients)
Sensory Support: Support for visual impairment (no. of clients)
Sensory Support: Support for hearing impairment (no. of clients)
Sensory Support: Support for dual impairment (no. of clients)
Support with Memory & Cognition (no. of clients)
Learning Disability Support (no. of clients)
Mental Health Support (no. of clients)
Social Support: Substance misuse support (no. of clients)
Social Support: Asylum seeker support (no. of clients)
Social Support: Support for Social Isolation / Other (no. of clients)

SALT
Receipt; Snapshot measure - supported clients at year-end - ethnicity LTC support 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS001b is a snapshot measure of supported clients at the year-end where the support is ‘long term’. Long Term support encompasses services provided with the intention of maintaining quality of life for an individual on an ongoing basis, and which have been allocated on the basis of eligibility criteria / policies (i.e. an assessment of need has taken place) and are subject to regular review.

Ethnicity data Long term support at the end of the year is collected for male and female participants separately. The same data items (below) are collected for both groups).

Nursing
Residential
Direct Payment only
Part Direct Payment
CASSR Managed Personal Budget
CASSR Commissioned Support only
CASSR Managed Personal Budget
CASSR Commissioned Support only

Response scale for each data item:
English / Welsh / Scottish / Northern Irish / British (no. of clients)
Irish (no. of clients)
Gypsy or Irish Traveller (no. of clients)
Any other White background (no. of clients)
White and Black Caribbean (no. of clients)
White and Black African (no. of clients)
White and Asian (no. of clients)
Any other mixed / multiple ethnic background (no. of clients)
Indian (no. of clients)
Pakistani (no. of clients)
Bangladeshi (no. of clients)
Chinese (no. of clients)
Any other Asian background (no. of clients)
African (no. of clients)
Caribbean (no. of clients)
Any other Black / African / Caribbean background (no. of clients)
Arab (no. of clients)
Other (no. of clients)
Refused (no. of clients)
Undeclared / Not known (no. of clients)

SALT
Receipt; Snapshot measure - supported clients at year-end after 12+ months of receipt 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS001c is a snapshot measure of supported clients at the year-end where the support is ‘long term’ and has been in place for at least 12 consecutive months.

Some data items concern Primary support reasons for Long term support for 12+ months at the end of the year (Separate collections for clients aged 18 to 64 and those aged 65+). Data items collected are:

Nursing
Residential
Direct Payment only
Part Direct Payment
CASSR Managed Personal Budget
CASSR Commissioned Support only
CASSR Managed Personal Budget
CASSR Commissioned Support only

Response scale for each data item:
Physical Support: Access & mobility only (no. of clients)
Physical Support: Personal care support (no. of clients)
Sensory Support: Support for visual impairment (no. of clients)
Sensory Support: Support for hearing impairment (no. of clients)
Sensory Support: Support for dual impairment (no. of clients)
Support with Memory & Cognition (no. of clients)
Learning Disability Support (no. of clients)
Mental Health Support (no. of clients)
Social Support: Substance misuse support (no. of clients)
Social Support: Asylum seeker support (no. of clients)
Social Support: Support for Social Isolation / Other (no. of clients)

SALT
Receipt; Reviews leading to care home admission - significant events - prison, nursing, residential 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

The LTS002b measure tracks the sequel to an unplanned review of long term support as well as recording planned reviews leading to a care home admission. Measure LTS002b includes a fuller account of planned reviews for those clients who have been receiving long term support for more than 12 months.

Some data items concern Significant Events in unplanned reviews
(Clients aged 18 to 64 and 65+ collected separately) in a prison, nursing or residential setting. Data items collected are:

– prison: All sequels
– Nursing and Residential Setting – Sequel to unplanned review: Change in Setting – Move to Community
– Nursing and Residential Setting – Sequel to unplanned review: Short Term Support to Maximise Independence
– Nursing and Residential Setting – Sequel to unplanned review: No Change in Setting – Move to Nursing Care
– Nursing and Residential Setting – Sequel to unplanned review: No Change in Setting – Move to Residential Care
– Nursing and Residential Setting – Sequel to unplanned review: No Change in Setting – No Change in Long Term Support
– Nursing and Residential Setting – Sequel to unplanned review: No Change in Setting – ALL Long-Term Support Temporarily Suspended
– Nursing and Residential Setting – Sequel to unplanned review: No Change in Setting – ALL Long Term Support Ended

Response scale for all data items:
Hospital (Planned and Unplanned episodes) (no. of clients)
Carer-related (no. of clients)
Safeguarding Concern (no. of clients)
Other Reason (no. of clients)
Provider Failure (no. of clients)

SALT
Receipt; Reviews leading to care home admission - significant events - community setting 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

The LTS002b measure tracks the sequel to an unplanned review of long term support as well as recording planned reviews leading to a care home admission. Measure LTS002b includes a fuller account of planned reviews for those clients who have been receiving long term support for more than 12 months.

Some data items concern Significant Events in unplanned reviews
(Clients aged 18 to 64 and 65+ collected separately) in a community setting. Data items collected are:

– prison: All sequels
– Nursing and Residential Setting – Sequel to unplanned review: Change in Setting – Move to Community
– Nursing and Residential Setting – Sequel to unplanned review: Short Term Support to Maximise Independence
– Nursing and Residential Setting – Sequel to unplanned review: No Change in Setting – Move to Nursing Care
– Nursing and Residential Setting – Sequel to unplanned review: No Change in Setting – Move to Residential Care
– Nursing and Residential Setting – Sequel to unplanned review: No Change in Setting – No Change in Long Term Support
– Nursing and Residential Setting – Sequel to unplanned review: No Change in Setting – ALL Long-Term Support Temporarily Suspended
– Nursing and Residential Setting – Sequel to unplanned review: No Change in Setting – ALL Long Term Support Ended

Response scale for all data items:
Hospital (Planned and Unplanned episodes) (no. of clients)
Carer-related (no. of clients)
Safeguarding Concern (no. of clients)
Other Reason (no. of clients)
Provider Failure (no. of clients)

SALT
Receipt; Planned reviews leading to care home admission - significant events - community setting 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

The LTS002b measure tracks the sequel to an unplanned review of long term support as well as recording planned reviews leading to a care home admission. Measure LTS002b includes a fuller account of planned reviews for those clients who have been receiving long term support for more than 12 months.

Some data items concern age bands for planned reviews where the sequel is a move to residential or nursing care for clients in a community setting. Data items collected are:

– Change in setting – Move to Nursing Care (from community)
– Change in setting – Move to Residential Care (from community)
– Short Term Support to Maximise Independence
– No change in setting – Level of Long-Term Support Increased
– No change in setting – No Change in Long Term Support
– No change in setting – Level of Long Term Support Decreased
– No change in setting – ALL Long-Term Support Temporarily Suspended
– No change in setting – ALL Long Term Support Ended

Response scale:
for those Aged 18-64 (no. of clients)
for those Aged 65+ (no. of clients)

SALT
Receipt; Planned reviews leading to care home admission - age bands 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

The LTS002b measure tracks the sequel to an unplanned review of long term support as well as recording planned reviews leading to a care home admission. Measure LTS002b includes a fuller account of planned reviews for those clients who have been receiving long term support for more than 12 months.

Some data items concern age bands for clients with both a planned and an unplanned review. Data items collected are:

– COUNT OF CLIENTS

Response scale:
for those Aged 18-64 (no. of clients)
for those Aged 65+ (no. of clients)

SALT
Receipt; Carer support provided during the year - carer age bands 2021 18-120 18 120 Local authority professional No Financial year SALT 2021-22 No

LTS003 is a measure of carer support provided during the year, broken down by the age of the carer, Primary Support Reason of the client (cared-for) and the type of support provided.

One set of data items divides Support Provided to carers by age bands of carers. This is broken down into the following data items:

– Support direct to carer – Direct Payment only
– Support direct to carer – Part Direct Payment
– Support direct to carer – CASSR Managed Personal Budget
– Support direct to carer – CASSR Commissioned Support only
– Support direct to carer – Information, Advice and Other Universal Services / Signposting
– No Direct Support Provided to Carer
– Respite or Other Forms of Carer Support delivered to the cared-for person – Respite or Other Forms of Carer Support delivered to the cared-for person
– Respite or Other Forms of Carer Support delivered to the cared-for person – Where support was also provided direct to carer
– Respite or Other Forms of Carer Support delivered to the cared-for person – Where Information, advice and other universal services or signposting or No direct support was provided to carer

Response scale for all data items:
Carer aged under 18 (no. of clients)
Carer aged 18-25 (no. of clients)
Carer aged 26-64 (no. of clients)
Carer aged 65-84 (no. of clients)
Carer aged 85+ (no. of clients)

SALT
Receipt; Ethnic origin breakdown of safeguarding enquiries 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Gender and Ethnic Origin – Ethnic origin – This is broken into seven data items:

White
Mixed / Multiple
Asian / Asian British
Black / African / Caribbean / Black British
Other Ethnic Group
Refused
Undeclared / Not Known

Number of cases by ethnic group given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of primary support reason being physical support 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Primary Support Reason – Physical Support

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of primary support reason being sensory support 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Primary Support Reason – Sensory Support

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of primary support reason being memory and cognition support 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Primary Support Reason – Support with Memory & Cognition

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of primary support reason being learning disability support 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Primary Support Reason – Learning Disability Support

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of primary support reason being mental health support 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Primary Support Reason – Mental Health Support

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of primary support reason being social support 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Primary Support Reason – Social Support

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of primary support reason being no support reason. 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Primary Support Reason – No Support Reason

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of primary support reason not known 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Primary Support Reason – Not Known

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of enquiries by health condition without Asperger's syndrome 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Reported Health Condition – Learning, Developmental or Intellectual Disability (Autism excluding Asperger’s Syndrome/ High Functioning Autism)

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of enquiries by health condition with Asperger's syndrome 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Reported Health Condition – Learning, Developmental or Intellectual Disability (Asperger’s Syndrome/ High Functioning Autism)

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Risk of lacking capacity to make decisions 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Mental Capacity Assessment Outcomes for Concluded Section 42 Safeguarding Enquiries – For each enquiry, was the adult at risk lacking capacity to make decisions related to the safeguarding enquiry?

For this measure, cases were recorded, by region, under the following data categories:

– Yes, they lacked capacity
– No, they did not lack capacity
– Don’t Know
– Not Recorded
– Of the enquiries recorded as Yes, in how many of these cases was support provided by an advocate, family or friend?

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Were users asked about desired outcomes 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Making Safeguarding Personal Responses for Concluded Section 42 Safeguarding Enquiries

For each enquiry, was the individual or individual’s representative asked what their desired outcomes were?

This measure was answered under the following data catagories:

– Yes, they were asked and outcomes were expressed
– Yes, they were asked but no outcomes were expressed
– No
– Don’t know
– Not recorded

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Were desired outcomes achieved 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Making Safeguarding Personal Responses for Concluded Section 42 Safeguarding Enquiries

Of the enquiries recorded as Yes in row 1 of this table, in how many of these cases were the desired outcomes achieved?

This measure was answered for the following data catagories:
– Fully Achieved
– Partially Achieved
– Not Achieved

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of adult safeguarding reviews 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Safeguarding Adult Reviews – Count of Safeguarding Adult Reviews

This measure was answered for the following data catagories:

– One or More Individuals Died
– No Individuals Died

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of abuse in residential care homes 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Location of risk – Care Home – Residential

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of social care user abuse in acute hospitals. 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Location of risk – Hospital – Acute

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of social care user abuse in mental health hospital services 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Location of risk – Hospital – Mental Health

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of social care user abuse in community hospitals 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Location of risk – Hospital – Community

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Other locations of abuse of social care users 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Location of risk – Other

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Counts of abuse where social care provider is source of risk 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Source of risk – Service Provider

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Counts of abuse where individual known to user is source of risk 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Source of risk – Other – Known to Individual

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Counts of abuse where individual unknown to user is source of risk 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Source of risk – Other – Unknown to Individual

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of action taken on identified abuse risk 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome – Risk identified and action taken

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of no action taken on identified abuse risk 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome – Risk identified and no action taken

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of action taken upon inconclusive assessment of identified abuse risk 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome – Risk – Assessment inconclusive and action taken

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of no action taken upon inconclusive assessment of identified abuse risk 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome – Risk – Assessment inconclusive and no action taken

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of action taken after no risk identified for service user 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome – No risk identified and action taken

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of no action taken after no risk identified for service user 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome – No risk identified and no action taken

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of enquiry ceased at user's request and no action taken 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome – Enquiry ceased at individual’s request and no action taken

“””Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of risk remaining to user after risk identified 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome – ‘Where a risk was identified, what was the outcome / expected outcome when the case was concluded? – Risk Remained

“””Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of risk reduced for user after risk identified 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome – ‘Where a risk was identified, what was the outcome / expected outcome when the case was concluded? – Risk Reduced

“””Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Count of risk removed for user after risk identified 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Risk Assessment Outcome and Risk Outcome – ‘Where a risk was identified, what was the outcome / expected outcome when the case was concluded? – Risk Removed

“””Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Age breakdown of safeguarding enquiries 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries per 100,000 Adults by Age Group and Age Standardised Rate:

This measure is split into the following data items:
– Age Group – 18-64
– Age Group – 65-74
– Age Group – 75-84
– Age Group – 85+
– Age Standardised Rate
– ONS Population – 18-64
– ONS Population – 65-74
– ONS Population – 75-84
– ONS Population – 85+

Number of cases by age group given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Gender breakdown of safeguarding enquiries 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Individuals Involved in Section 42 Safeguarding Enquiries by Gender and Ethnic Origin – Gender. This is broken into three data items:

Male
Female
Not known

Number of cases by gender group given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council
“””

SAE
Receipt; Counts of safeguarding concerns 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Counts of Safeguarding Activity – Count of Safeguarding Concerns

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Counts of Section 42 Safeguarding Enquiries 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Counts of Safeguarding Activity – Section 42 Safeguarding Enquiries

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Counts of other safeguarding enquiries 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Counts of Safeguarding Activity – Other Safeguarding Enquiries

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Combined count of Section 42 Safeguarding + Other Safeguarding Enquiries 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Counts of Safeguarding Activity – Total Enquiries (Section 42 Safeguarding Enquiries + Other Safeguarding Enquiries)

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of total concluded section 42 enquiries 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Total Concluded Section 42 Enquiries

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of physical abuse 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Physical Abuse

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of sexual abuse 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Sexual Abuse

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of psychological abuse 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Psychological Abuse

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of financial or material abuse 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Financial or Material Abuse

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of discriminatory abuse 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Discriminatory Abuse

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of organisational abuse 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Organisational Abuse

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of neglect and acts of omission 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Neglect and Acts of Omission

Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of domestic abuse 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Domestic Abuse

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of sexual exploitation 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Sexual Exploitation

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of modern slavery 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Modern Slavery

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of self-neglect 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Type of risk – Self-Neglect

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of abuse in own home 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Location of risk – Own Home

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of abuse in the community 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Location of risk – In the Community (excluding community services)

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of abuse in community service 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Location of risk – In a Community Service

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Receipt; Count of abuse in nursing care homes 2020 16-120 16 120 Local authority professional No Past year 2020-21 Sweep No

Count of Concluded Section 42 Enquiries by Type, Location and Source of Risk – Location of risk – Care Home – Nursing

“Number of cases given for each of the listed regions:

England (TOTAL)
County (TOTAL)
Inner London (TOTAL)
Metropolitan District (TOTAL)
Outer London (TOTAL)
Unitary Authority (TOTAL)
North East (TOTAL)
North West (TOTAL)
Yorkshire and The Humber (TOTAL)
East Midlands (TOTAL)
West Midlands (TOTAL)
East of England (TOTAL)
London (TOTAL)
South East (TOTAL)
South West (TOTAL)
Cumbria County Council
Northumberland County Council
Gateshead Metropolitan Borough Council
Newcastle-upon-Tyne City Council
North Tyneside Council
South Tyneside Metropolitan Borough Council
Sunderland City Council
Hartlepool Borough Council
Middlesbrough Council
Redcar & Cleveland Borough Council
Stockton-on-Tees Borough Council
Durham County Council
Darlington Borough Council
Barnsley Metropolitan Borough Council
Doncaster Council
Rotherham Metropolitan Borough Council
Sheffield City Council
City of Bradford Metropolitan District Council
Calderdale Metropolitan Borough Council
Kirklees Council
Leeds City Council
Wakefield Council
East Riding of Yorkshire Council
Kingston-upon-Hull City Council
North East Lincolnshire Council
North Lincolnshire Council
North Yorkshire County Council
York City Council
Bolton Metropolitan Borough Council
Bury Metropolitan Borough Council
Manchester City Council
Oldham Metropolitan Borough Council
Rochdale Metropolitan Borough Council
Salford City Council
Stockport Metropolitan Borough Council
Tameside Metropolitan Borough Council
Trafford Metropolitan Borough Council
Wigan Metropolitan Borough Council
Knowsley Metropolitan Borough Council
Liverpool City Council
Sefton Council
St Helens Metropolitan Borough Council
Wirral Metropolitan Borough Council
Halton Borough Council
Warrington Borough Council
Lancashire County Council
Blackburn with Darwen Borough Council
Blackpool Borough Council
Cheshire East Council
Cheshire West and Chester Council
Warwickshire County Council
Birmingham City Council
Coventry City Council
Dudley Metropolitan Borough Council
Sandwell Metropolitan Borough Council
Solihull Metropolitan Borough Council
Walsall Metropolitan Borough Council
Wolverhampton City Council
Staffordshire County Council
Stoke-on-Trent City Council
Herefordshire Council
Worcestershire County Council
Shropshire Council
Telford and Wrekin Council
Lincolnshire County Council
Northamptonshire County Council
Derbyshire County Council
Derby City Council
Leicestershire County Council
Leicester City Council
Rutland County Council
Nottinghamshire County Council
Nottingham City Council
Hertfordshire County Council
Norfolk County Council
Oxfordshire County Council
Suffolk County Council
Luton Borough Council
Milton Keynes Council (Unitary)
Bracknell Forest Borough Council
West Berkshire District Council
Reading Borough Council
Slough Borough Council
Royal Borough of Windsor & Maidenhead
Wokingham Borough Council
Essex County Council
Southend-on-Sea Borough Council
Thurrock Council
Cambridgeshire County Council
Peterborough City Council
Bedford Borough Council
Central Bedfordshire Council
London Borough of Camden
London Borough of Greenwich
London Borough of Hackney
London Borough of Hammersmith and Fulham
London Borough of Islington
Royal Borough of Kensington and Chelsea
London Borough of Lambeth Council
London Borough of Lewisham Council
London Borough of Southwark Council
London Borough of Tower Hamlets Council
London Borough of Wandsworth
Westminster City Council
Corporation of The City of London
London Borough of Barking and Dagenham
London Borough of Barnet
London Borough of Bexley
London Borough of Brent
London Borough of Bromley
London Borough of Croydon
London Borough of Ealing
London Borough of Enfield
London Borough of Haringey
London Borough of Harrow
London Borough of Havering
London Borough of Hillingdon
London Borough of Hounslow
Royal Borough of Kingston-upon-Thames Council
London Borough of Merton Council
London Borough of Newham Council
London Borough of Redbridge Council
London Borough of Richmond upon Thames Council
London Borough of Sutton Council
London Borough of Waltham Forest Council
Bournemouth, Christchurch and Poole Council
Isle of Wight Council
Surrey County Council
West Sussex County Council
Dorset Council
Hampshire County Council
Portsmouth City Council
Southampton City Council
East Sussex County Council
Brighton & Hove City Council
Wiltshire Council
Swindon Borough Council
Kent County Council
Medway Council
Cornwall Council
Gloucestershire County Council
Somerset County Council
The Council of The Isles of Scilly
Bath and North East Somerset Council
Bristol City Council
North Somerset District Council
South Gloucestershire Council
Devon County Council
Plymouth City Council
Torbay Council
Buckinghamshire Council

SAE
Provision; Social Support: Support to Carer - 18 to 120 yrs. - Short and long term total expenditure 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Social Support: Asylum Seeker Support – 18 to 120 yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Social Support: Support for Social Isolation / Other - 18 to 120 yrs. - Short and long term total expenditure 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Social Support: Support for Social Isolation / Other – 18 to 120 yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Assistive equipment and technology - 18 to 120 yrs. - Short and long term total expenditure 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Assistive equipment and technology – 18 to 120 yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Social Support: Support for Social Isolation / Other 18-120 yrs. - Short and long term total expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

Social Support: Support for Social Isolation / Other 18-120 yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Social care activities - 18 to 120 yrs. - Short and long term total expenditure 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Social care activities – 18 to 120 yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Information and early intervention - 18 to 120 yrs. - Short and long term total expenditure 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Information and early intervention – 18 to 120 yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Commissioning and service delivery - 18 to 120 yrs. - Short and long term total expenditure 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Commissioning and service delivery – 18 to 120 yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Adult Social Care - 18 to 120 yrs. - Short and long term total expenditure 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Adult Social Care – 18 to 120 yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Adult Social Care 18-120 yrs. - Total Income from Specific and Special Grants 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Adult Social Care – 65+ yrs. – Income from Specific and Special Grants was recorded via the following data item:

Net total expenditure

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Actual total net cost of social care - 18-120 yrs. 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Actual total net cost of social care for all ages was recorded via the following data item:

Net total expenditure

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Non SALT - Social Support: Substance Misuse Support total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Non SALT (Short and Long Term Care) totals for Social Support: Substance Misuse Support expenditures are recorded in the follow data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Non SALT - Social Support: Asylum Seeker Support total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Non SALT (Short and Long Term Care) totals for Social Support: Asylum Seeker Support expenditures are recorded in the follow data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Non SALT - Social Support: Support to Carer total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Non SALT (Short and Long Term Care) totals for Social Support: Support to Carer expenditures are recorded in the follow data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Non SALT -Social Support: Support for Social Isolation / Other total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Non SALT (Short and Long Term Care) totals for social Support: Support for Social Isolation / Other expenditures are recorded in the follow data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Non SALT - Assistive equipment and technology total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Non SALT (Short and Long Term Care) totals for Assistive equipment and technology expenditures are recorded in the follow data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Non SALT - Social care activities total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Non SALT (Short and Long Term Care) totals for Social care activities expenditures are recorded in the follow data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Non SALT - Information and early intervention total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Non SALT (Short and Long Term Care) totals for Information and early intervention expenditures are recorded in the follow data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Non SALT - Commissioning and service delivery total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Non SALT (Short and Long Term Care) totals for Commissioning and service delivery expenditures are recorded in the follow data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Physical support - 18 to 64 - Short and long term total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Physical support – 18 to 64 – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Physical support - 65+ yrs. - Short and long term total expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

Physical support – 65+ yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Sensory support - 18 to 64 - Short and long term total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Sensory support – 18 to 64 – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Sensory support - 65+ yrs. - Short and long term total expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

Sensory support – 65+ yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Support with memory and cognition - 18 to 64 - Short and long term total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Support with memory and cognition – 18 to 64 – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Support with memory and cognition - 65+ yrs. - Short and long term total expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

Support with memory and cognition – 65+ yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Learning disability support - 18 to 64 - Short and long term total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Learning disability support – 18 to 64 – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Learning disability support - 65+ yrs. - Short and long term total expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

Learning disability support – 65+ yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Mental health support - 18 to 64 - Short and long term total expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

Mental health support – 18 to 64 – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Mental health support - 65+ yrs. - Short and long term total expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

Mental health support – 65+ yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Social Support: Substance Misuse Support- 18 to 64 yrs. - Short and long term total expenditure 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Social Support: Substance Misuse Support – 18 to 120 yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Social Support: Asylum Seeker Support - 18 to 120 yrs. - Short and long term total expenditure 2014 18-120 18 120 Local authority professional No Financial year 2015 Sweep No

Social Support: Asylum Seeker Support – 18 to 120 yrs. – Short and long term total expenditure was recorded via the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - mental health support - 18-64yrs - to maximise independence expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For short term mental health support to maximise independence for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - mental health support - 18-64yrs - other short term expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For short term mental health support in terms of ‘other short term expenditures’, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Total short term - mental health support expenditure - 18-64yrs 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total short term mental health support expenditure, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - total - 18-64yrs 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total short term expenditure for those aged 18-64, data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - physical support - 65+ yrs. - to maximise independence expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For short term physical support to maximise independence for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - physical support - 65+ yrs. - other short term expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For short term physical support in terms of ‘other short term expenditures’, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Total short term - physical support expenditure - 65+ yrs. 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total short term physical support expenditure, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - sensory support - 65+ yrs. - to maximise independence expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For short term sensory support to maximise independence for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - sensory support - 65+ yrs. - other short term expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For short term sensory support in terms of ‘other short term expenditures’, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Total short term - sensory support expenditure - 65+ yrs. 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total short term sensory support expenditure, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - support with memory and cognition - 65+ yrs. - to maximise independence expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For short term support with memory and cognition to maximise independence for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - support with memory and cognition - 65+ yrs. - other short term expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For short term support with memory and cognition in terms of ‘other short term expenditures’, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Total short term - support with memory and cognition expenditure - 65+ yrs. 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total short term support with memory and cognition expenditure, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - learning disability support - 65+ yrs. - to maximise independence expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For short term learning disability support to maximise independence for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - learning disability support - 65+ yrs. - other short term expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For short term learning disability support in terms of ‘other short term expenditures’, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Total short term - learning disability support expenditure - 65+ yrs. 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total short term learning disability support expenditure, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - mental health support - 65+ yrs. - to maximise independence expenditure 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For short term mental health support to maximise independence for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - mental health support - 65+ yrs. - other short term expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For short term mental health support in terms of ‘other short term expenditures’, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Total short term - mental health support expenditure - 65+ yrs. 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total short term mental health support expenditure, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - total - 65+ yrs. 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total short term expenditure for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 65+ yrs. - total residential home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total long term residential home expenditure, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 65+ yrs. - total supported accommodation expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total long term care in supported accommodation expenditure, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 65+ yrs. - total community direct payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total long term community direct payment expenditure, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 65+ yrs. - total community home care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total long term care in the form of community home care expenditure, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 65+ yrs. - total community supported living payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total long term community supported living payment expenditure, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 65+ yrs. - total other long term care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total long term ‘other long term care’ in the community expenditure, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 65+ yrs. - total fairer charging income expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total long term ‘fairer charging income’ expenditure for those aged 65+ yrs., data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 65+ yrs. - total expenditures for whole of social care 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures in social care, whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 65+ yrs., the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - physical support - 18-64yrs - to maximise independence expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For short term physical support to maximise independence for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - physical support - 18-64yrs - other short term expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For short term physical support in terms of ‘other short term expenditures’, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Total short term - physical support expenditure - 18-64yrs 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total short term physical support expenditure, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - sensory support - 18-64yrs - to maximise independence expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For short term sensory support to maximise independence for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - sensory support - 18-64yrs - other short term expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For short term sensory support in terms of ‘other short term expenditures’, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Total short term - sensory support expenditure - 18-64yrs 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total short term sensory support expenditure, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - support with memory and cognition - 18-64yrs - to maximise independence expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For short term support with memory and cognition to maximise independence for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - support with memory and cognition - 18-64yrs - other short term expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For short term support with memory and cognition in terms of ‘other short term expenditures’, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Total short term - support with memory and cognition expenditure - 18-64yrs 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total short term support with memory and cognition expenditure, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - learning disability support - 18-64yrs - to maximise independence expenditure 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For short term learning disability support to maximise independence for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Short term - learning disability support - 18-64yrs - other short term expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For short term learning disability support in terms of ‘other short term expenditures’, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Total short term - learning disability support expenditure - 18-64yrs 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total short term learning disability support expenditure, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 65+ yrs. -total expenditures for whole of social care 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures on support with memory and cognition, whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 65+ yrs., the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 65+ yrs. - nursing home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term learning disability support in nursing homes, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 65+ yrs. - residential home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term learning disability support in residential homes, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 65+ yrs. -supported accommodation expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term learning disability support in supported accommodation, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 65+ yrs. -community direct payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with learning disability support in the form of community direct payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 65+ yrs. -community home care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with learning disability support in the form of community home care, payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 65+ yrs. -community supported living payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with learning disability support in the form of community supported living payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 65+ yrs. -other long term care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term learning disability support in the form of ‘other long term care’ in the community, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 65+ yrs. - fairer charging income expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term learning disability support the ‘fairer charging income’ for those aged 65+ yrs., data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 65+ yrs. -total expenditures for whole of social care 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures on learning disability support, whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 65+ yrs., the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 65+ yrs. - nursing home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in nursing homes, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 65+ yrs. - residential home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in residential homes, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 65+ yrs. -supported accommodation expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in supported accommodation, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 65+ yrs. -community direct payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in the form of community direct payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 65+ yrs. -community home care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in the form of community home care, payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 65+ yrs. -community supported living payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in the form of community supported living payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 65+ yrs. -other long term care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in the form of ‘other long term care’ in the community, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 65+ yrs. - fairer charging income expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term mental health support the ‘fairer charging income’ for those aged 65+ yrs., data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 65+ yrs. -total expenditures for whole of social care 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures on mental health support , whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 65+ yrs., the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 65+ yrs. - total nursing home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For total long term nursing home expenditure, for those aged 65+ yrs., data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 65+ yrs. -other long term care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term physical support in the form of ‘other long term care’ in the community, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 65+ yrs. - fairer charging income expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term physical support the ‘fairer charging income’ for those aged 65+ yrs., data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - Physical support - 65+ yrs. -total expenditures for whole of social care 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures on physical support, whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 65+ yrs., the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 65+ yrs. - nursing home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in nursing homes, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 65+ yrs. - residential home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in residential homes, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 18-64yrs -supported accommodation expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in supported accommodation, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 65+ yrs. -community direct payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in the form of community direct payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 65+ yrs. -community home care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in the form of community home care, payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 65+ yrs. -community supported living payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in the form of community supported living payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 65+ yrs. -other long term care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in the form of ‘other long term care’ in the community, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 65+ yrs. - fairer charging income expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term sensory support the ‘fairer charging income’ for those aged 65+ yrs., data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 65+ yrs. -total expenditures for whole of social care 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures on sensory support, whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 65+ yrs., the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 65+ yrs. - nursing home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in nursing homes, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 65+ yrs. - residential home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in residential homes, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 65+ yrs. -supported accommodation expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in supported accommodation, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 65+ yrs. -community direct payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in the form of community direct payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 65+ yrs. -community home care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in the form of community home care, payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 65+ yrs. -community supported living payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in the form of community supported living payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 65+ yrs. -other long term care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in the form of ‘other long term care’ in the community, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 65+ yrs. - fairer charging income expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition the ‘fairer charging income’ for those aged 65+ yrs., data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 18-64yrs -community home care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in the form of community home care, payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 18-64yrs -community supported living payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in the form of community supported living payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 18-64yrs -other long term care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in the form of ‘other long term care’ in the community, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 18-64yrs - fairer charging income expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term mental health support the ‘fairer charging income’ for those aged 18-64, data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 18-64yrs -total expenditures for whole of social care 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures on mental health support , whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 18-64, the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 18-64yrs - total nursing home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total long term nursing home expenditure, for those aged 18-64, data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 18-64yrs - total residential home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total long term residential home expenditure, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 18-64yrs - total supported accommodation expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total long term care in supported accommodation expenditure, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 18-64yrs - total community direct payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total long term community direct payment expenditure, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 18-64yrs - total community home care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total long term care in the form of community home care expenditure, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 18-64yrs - total community supported living payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total long term community supported living payment expenditure, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term -18-64yrs - total other long term care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total long term ‘other long term care’ in the community expenditure, for those aged 18-64, data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 18-64yrs - total fairer charging income expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For total long term ‘fairer charging income’ expenditure for those aged 18-64, data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - 18-64yrs - total expenditures for whole of social care 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures in social care, whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 18-64, the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 65+ yrs. - nursing home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term physical support in nursing homes, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 65+ yrs. - residential home expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term physical support in residential homes, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 65+ yrs. -supported accommodation expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term physical support in supported accommodation, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 65+ yrs. -community direct payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term physical support in the form of community direct payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 65+ yrs. -community home care expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term physical support in the form of community home care, payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 65+ yrs. -community supported living payment expenditures 2014 65-120 65 120 Local authority professional No Financial year 2015 Sweep No

For long term physical support in the form of community supported living payments, for those aged 65+ yrs., expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 18-64yrs -supported accommodation expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in supported accommodation, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 18-64yrs -community direct payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in the form of community direct payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 18-64yrs -community home care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in the form of community home care, payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 18-64yrs -community supported living payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in the form of community supported living payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 18-64yrs -other long term care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in the form of ‘other long term care’ in the community, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 18-64yrs - fairer charging income expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition the ‘fairer charging income’ for those aged 18-64, data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 18-64yrs -total expenditures for whole of social care 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures on support with memory and cognition, whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 18-64, the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 18-64yrs - nursing home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term learning disability support in nursing homes, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 18-64yrs - residential home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term learning disability support in residential homes, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 18-64yrs -supported accommodation expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term learning disability support in supported accommodation, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 18-64yrs -community direct payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with learning disability support in the form of community direct payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 18-64yrs -community home care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with learning disability support in the form of community home care, payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 18-64yrs -community supported living payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with learning disability support in the form of community supported living payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 18-64yrs -other long term care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term learning disability support in the form of ‘other long term care’ in the community, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 18-64yrs - fairer charging income expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term learning disability support the ‘fairer charging income’ for those aged 18-64, data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - learning disability support - 18-64yrs -total expenditures for whole of social care 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures on learning disability support, whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 18-64, the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 18-64yrs - nursing home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in nursing homes, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 18-64yrs - residential home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in residential homes, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 18-64yrs -supported accommodation expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in supported accommodation, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - mental health support - 18-64yrs -community direct payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term mental health support in the form of community direct payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 18-64yrs - nursing home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term physical support in nursing homes, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 18-64yrs - residential home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term physical support in residential homes, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 18-64yrs -supported accommodation expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term physical support in supported accommodation, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 18-64yrs -community direct payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term physical support in the form of community direct payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 18-64yrs -community home care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term physical support in the form of community home care, payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 18-64yrs -community supported living payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term physical support in the form of community supported living payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 18-64yrs -other long term care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term physical support in the form of ‘other long term care’ in the community, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - physical support - 18-64yrs - fairer charging income expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term physical support the ‘fairer charging income’ for those aged 18-64, data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - Physical support - 18-64yrs -total expenditures for whole of social care 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures on physical support, whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 18-64, the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 18-64yrs - nursing home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in nursing homes, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 18-64yrs - residential home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in residential homes, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 18-64yrs -supported accommodation expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in supported accommodation, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 18-64yrs -community direct payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in the form of community direct payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 18-64yrs -community home care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in the form of community home care, payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 18-64yrs -community supported living payment expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in the form of community supported living payments, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 18-64yrs -other long term care expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term sensory support in the form of ‘other long term care’ in the community, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 18-64yrs - fairer charging income expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term sensory support the ‘fairer charging income’ for those aged 18-64, data items are as follows:

“Income: client contributions
Income: total
Net total expenditure
Net current expenditure
Gross SSMSS”

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - sensory support - 18-64yrs -total expenditures for whole of social care 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

In total, for all long term expenditures on sensory support, whether nursing care, residential care, community care, supported accommodation or fairer charging income, for those aged 18-64, the data items are as follow:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 18-64yrs - nursing home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in nursing homes, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Provision; Long term - support with memory and cognition - 18-64yrs - residential home expenditures 2014 18-64 18 64 Local authority professional No Financial year 2015 Sweep No

For long term support with memory and cognition in residential homes, for those aged 18-64, expenditure data is recorded for the following data items:

Gross total cost: own provision
Gross total cost: provision by others
Gross total cost: grants to voluntary org
Gross total cost: total expenditure
Income: client contributions
Income: joint arrangements
Income: Income from NHS
Income: other income
Income: total
Net total expenditure
Gross total expenditure
Capital charges: own provision
Capital charges: provision by others
Net current expenditure
Gross current expenditure
Gross SSMSS

Response scale for all data items:
North West – amount (£)
North East – amount (£)
Yorkshire and Humber – amount (£)
West Midlands – amount (£)
East Midlands – amount (£)
East – amount (£)
South East – amount (£)
South West – amount (£)
London – amount (£)
England – total amount (£)

PSS-EX1
Receipt; Child in care while at particular school 2003 0-16 0 16 Education professional No Current School Census Pupil Level No

Has the child ever been in care while at this school.

1 = True
0 = False

NPD
Receipt; Child in care while at particular school 2005 0-16 0 16 Education professional No Current Absence No

Has the child ever been in care while at this school.

1 = True
0 = False

NPD
Receipt; KS2 child adopted from care 2014 0-16 0 16 Education professional No Current Key Stage 2 No

KS2 Identifies children who have ever been adopted from care

N -Not declared
A -Ceased to be looked after through adoption
G -Ceased to be looked after through a special guardianship order (SGO)
R -Ceased to be looked after through a residence order (RO)
C -Ceased to be looked after through a child arrangement order (CAO)

NPD
Receipt; KS2 child in care while at particular school 2006 0-16 0 16 Education professional No Current Key Stage 2 No

KS2 Has the pupil ever been in care at this school?

0 = No
1 = Yes

NPD
Receipt; KS3 child in care while at particular school 2006 0-16 0 16 Education professional No Current Key Stage 3 No

KS3 Has the pupil ever been in care at this school?

0 = No
1 = Yes

NPD
Receipt; KS4 child adopted from care 2014 0-16 0 16 Education professional No Current Key Stage 4 No

KS4 Identifies children who have ever been adopted from care

0 = No
1 = Yes

NPD
Receipt; PRU code from originating authority. 2009 0-16 0 16 Education professional No Current Pupil Referral Unit (PRU) Census No

PRU Code of the ‘originating’ authority, where the child was originally placed in public care and which looks after the child for the purposes of the Children Act 1989.

Code of the ‘originating’ authority

NPD
Receipt; Child in care while at PRU 2009 0-16 0 16 Education professional No Current Pupil Referral Unit (PRU) Census No

PRU Has the child ever been in care while at this school.

1 = True
0 = False

NPD
Receipt; Start date of child's care 2005 0-16 0 16 Education professional No Current Children looked after No

Start date of child’s period of care. Relates to most recent period of continuous care.

Date

NPD
Receipt; KS2 child looked after continuously for 6 months 2010 0-16 0 16 Education professional No Past 6 months Key Stage 2 No

KS2 Pupil looked after continuously for last 6 months i.e. since 1 October

1 = True
0 = False
Null = child not looked after at 31 March

NPD
Receipt; KS2 child looked after continuously for 6 months (5-15yrs) 2010 0-16 0 16 Education professional No Past 6 months Key Stage 2 No

KS2 Pupil looked after continuously for 6 months during the year and aged 5 – 15.

1 = True
0 = False

NPD
Receipt; KS2 child looked after 1 day or more 2014 0-16 0 16 Education professional No Past year Key Stage 2 No

KS2 Pupil looked after for 1 day or more during the year ending 31 March and aged 4 – 15

1 = True
0 = False

NPD
Receipt; KS2 child looked after continuously for 6 months (4-15 yrs) 2012 0-16 0 16 Education professional No Past year Key Stage 2 No

KS2 Pupil looked after continuously for 6 months during the year and aged 4 – 15.

1 = True
0 = False

NPD
Receipt; KS2 child free schools meals 2011 0-16 0 16 Education professional No Past 6 years Key Stage 2 No

KS2 The pupil is either eligible for free school meals or has been eligible for free school meals at some point in the last 6 years or has been looked after continuously for 6 months during the year + aged 5-15

1 = True
0 = False

NPD
Receipt; KS2 child free schools meals last 6 years 2012 0-16 0 16 Education professional No Past 6 years Key Stage 2 No

KS2 The pupil is either been eligible for free school meals at some point on the last 6 years or has been looked after continuously for 6 months during the year and aged 4 – 15.

1 = True
0 = False

NPD
Receipt; KS2 child free schools meals looked after 1 day or more 2014 0-16 0 16 Education professional No Current Key Stage 2 No

KS2 Pupil ever eligible for free school meals or has been looked after for a day or more or has been adopted from care

1 = True
0 = False

NPD
Receipt; KS2 child ceased to be looked after 2016 0-16 0 16 Education professional No Current Key Stage 2 No

KS2 Indicates whether the pupil was ceased to be looked after through adoption, a guardianship order, child arrangement order or residence order

N -Not declared
A -Ceased to be looked after through adoption
G -Ceased to be looked after through a special guardianship order (SGO)
R -Ceased to be looked after through a residence order (RO)
C -Ceased to be looked after through a child arrangement order (CAO)

NPD
Receipt; KS4 child continuously looked after last year 2011 0-16 0 16 Education professional No Past year Key Stage 4 No

KS4 Pupil looked after continuously for last 12 months up to 31 March i.e. since 1 April

1 = True
0 = False
Null = child not looked after at 31 March

NPD
Receipt; KS4 child continuously looked after last 6 months 2011 0-16 0 16 Education professional No Past 6 months Key Stage 4 No

KS4 Pupil looked after continuously for last 6 months i.e. since 1 Octobe

1 = True
0 = False
Null = child not looked after at 31 March

NPD
Receipt; KS4 child looked after 1 day or more 2014 0-16 0 16 Education professional No Past year Key Stage 4 No

KS4 Pupil looked after for 1 day or more during the year ending 31 March and aged 4 – 15

1 = True
0 = False

NPD
Receipt; KS4 child continuously looked after last 6 months (4-15 yrs) 2010 0-16 0 16 Education professional No Past year Key Stage 4 No

KS4 Pupil looked after continuously for 6 months during the year and aged 4 – 15

1 = True
0 = False

NPD
Receipt; KS4 child free school meals/looked after 2010 0-16 0 16 Education professional No Past 6 months Key Stage 4 No

KS4 The pupil is either eligible for free school meals or has been looked after continuously for 6 months during the year and aged 5 – 15.

1 = True
0 = False

NPD
Receipt; KS4 child free school meals/looked after for 6 months 2011 0-16 0 16 Education professional No Past 6 years Key Stage 4 No

KS4 The pupil has either been eligible for free school meals on Census day at some point in the last 6 years or has been looked after continuously for 6 months during the year or has been adopted from care (from 2015/16) and aged 4 – 15 (5 – 15 up to 2011/12)

1 = True
0 = False

NPD
Receipt; KS4 child free school meals/looked after one day or more 2014 0-16 0 16 Education professional No Current Key Stage 4 No

KS4 Pupil ever eligible for free school meals or has been looked after for a day or more or has been adopted from care and aged 5-15

1 = True
0 = False

NPD
Receipt; KS4 child looked after 2014 0-16 0 16 Education professional No Current Key Stage 4 No

KS4 Looked after at census.

0 = No
1 = Yes

NPD
Receipt; KS5 young person disadvantaged/looked after 2014 0-16 0 16 Education professional No Past 6 years Key Stage 4 No

KS5 Pupil identified as disadvantaged at end of KS4 studies, ie pupil was eligible for FSM at any time during the previous 6 years or was a child looked after continuously for 6 months during their final year of KS4 study.

0 = No
1 = Yes

NPD
Receipt; Post looked after arrangements 2017 0-16 0 16 Education professional No Current Exclusions 2005-06 onwards No

Post looked after arrangements – indicates whether the pupil was ceased to be looked after through adoption, a guardianship order, child arrangement order or residence order

N = Not declared
A = Ever ceased to be looked after through adoption
G = Ever ceased to be looked after through a special guardianship order (SGO)
R = Ever ceased to be looked after through a residence order (RO)
C = Ever ceased to be looked after through a child arrangement order (CAO)

NPD
Receipt; Date care episode finished 2008 0-16 0 16 Education professional No Current Children in need No

This is the date that the care episode finished or closed

Date

NPD
Receipt; Date care episode started 2005 0-16 0 16 Education professional No Past year Children looked after No

The date the episode of care started. Relating to most recent episode during processing year.

Date

NPD
Need; Main need of child in care 2008 0-16 0 16 Education professional No Current Children in need No

Child in Need Primary Need Code – The main need which the episode is taking care of.

N1 = Abuse or neglect
N2 = Child’s disability/illness
N3 = Parental Disability/illness
N4 = Family in acute stress
N5 = Family dysfunction
N6 = Socially unacceptable
N7 = Low income
N8 = Absent parenting
N9 = Cases other than Children in Need
N0 = Not stated

NPD
Need; Reason child in care 2005 0-16 0 16 Education professional No Current Children looked after No

Child’s category of need – main reason child became looked after. Based on need at start of period of care.

N1=Abuse or neglect
N2=Child’s Disability
N3=Parental illness or disability
N4=Family in acute stress
N5=Family dysfunction
N6=Socially Unacceptable Behaviour
N7=Low income
N8=Absent Parenting

NPD
Receipt; Child ceased to be looked after 2014 0-16 0 16 Education professional No Current School Census Pupil Level No

Indicates whether the pupil was ever ceased to be looked after through adoption, a guardianship order or residence order

N = Not declared
A = Ever ceased to be looked after through adoption
G = Ever ceased to be looked after through a special guardianship order (SGO)
R = Ever ceased to be looked after through a residence order (RO)
C = Ever ceased to be looked after through a child arrangement order (CAO)

NPD
Receipt; Child looked after before adoption or prior to being subject to order 2014 0-16 0 16 Education professional No Current Alternative Provision Census No

Indicates those children on roll on census day who were looked after immediately before adoption or prior to being subject of a residence or special guardianship order

N = Not declared
A = Ceased to be looked after through adoption
G = Ceased to be looked after through a special guardianship order (SGO)
R = Ceased to be looked after through a residence order (RO)
C = Ceased to be looked after through a child arrangement order(CAO)

NPD
Receipt; Child ceased to be looked after 2016 0-16 0 16 Education professional No Current Alternative Provision Census No

Indicates whether the pupil was ceased to be looked after through adoption, a guardianship order or residence order

N = Not declared
A = Ceased to be looked after through adoption
G = Ceased to be looked after through special guardianship
R = Ceased to be looked after through a residence order
C = Ceased to be looked after through a child arrangement order

NPD
Receipt; Is looked after child adopted 2008 0-16 0 16 Education professional No Current Children in need No

Used to indicate if a looked after child is adopted

0 = false
1 = true

NPD
Receipt; Child looked after 1 or more days in year 2005 0-16 0 16 Education professional No Past year Children looked after No

Child is looked after for at least 1 day during the year and aged 4-15 as at 31 August. Excludes children looked after under an agreed series of short placements and also those who were on remand/committed for trial or sentence and accommodated by the local authority.

1 = True
0 = False

NPD
Receipt; Child looked after for 6+ months 2005 0-16 0 16 Education professional No Past year Children looked after No

Child looked after continuously for 6 months (>=183 days) during the year and aged 4-15. Excluding children looked after under an agreed series of short term placements.

1 = True
0 = False

NPD
Receipt; Looked after child in OC3 cohort 2005 0-16 0 16 Education professional No Current Children looked after No

Is the child within the OC3 cohort? i.e. looked after on 1st April 20xx and aged 16. Excluding children looked after under an agreed series of short term placements

1 = True
0 = False

NPD
Receipt; Reason care placement changes 2011 0-16 0 16 Education professional No Current Children looked after No

Reason why placement changes for children whose placements end after 1 April 2015, but they remain looked after (collected at end of episode)

CARPL = Change to/Implementation of Care Plan
CLOSE = Resignation/closure of provision
ALLEG = Allegation (s47)
STAND = Standards of Care concern
APPRR = Approval removed
CREQB = Carer requests placement end due to child’s behaviour
CREQO = Carer requests placement end other than due to child’s behaviour
CHILD = Child requests placement end
LAREQ = Responsible/Area authority requests placement end
PLACE = Change in the status of a placement only
CUSTOD = Custody arrangement
OTHER = Other

NPD
Receipt; Child looked after continuously for 12 months 2005 0-16 0 16 Education professional No Past year Children looked after No

If the child is looked after on 31 March – has the child been looked after continuously for the last 12 months, i.e. since at least 1 April?

1 = True
0 = False

NPD
Receipt; Child looked after in current processing year 2005 0-16 0 16 Education professional No Past year Children looked after No

Is child looked after at 31 March in the current processing year?

1 = True
0 = False

NPD
Receipt; Child looked after continuously for 6 months 2005 0-16 0 16 Education professional No Past 6 months Children looked after No

If the child is looked after on 31 March – has the child been looked after continuously for the last 6 months, i.e. since at least 1 October?

1 = True
0 = False

NPD
Receipt; Date episode of care ended 2005 0-16 0 16 Education professional No Past year Children looked after No

The date the episode of care ended. If date is beyond the 31 March in the processing year then the child is looked after at 31 March.

Date

NPD
Receipt; Legal status of looked after child 2005 0-16 0 16 Education professional No Past year Children looked after No

Legal Status of looked after child’s most recent episode during processing year.

C1 = Interim care order
C2 = Full care order
D1 = Freeing order granted
E1 = Placement order granted
V2 = Single period of accommodation under section 20
V3 = Accommodated under an agreed series of short-term breaks, when individual episodes of care are recorded
V4 = Accommodated under an agreed series of short-term breaks, when agreements are recorded (i.e. NOT individual episodes of care)
L1 = Under police protection and in local authority accommodation
L2 = Emergency protection order
L3 = Under child assessment order and in local authority accommodation
J1 = On remand, or committed for trial or sentence, and accommodated by Local Authority
J2 = Detained in Local Authority accommodation under PACE
J3 = Sentenced to CYPA 1969 Supervision Order with residence requirement

NPD
Receipt; Length of time in care 2005 0-16 0 16 Education professional No Past year Children looked after No

Length of period of care in months. If child looked after at 31 March in processing year, length based on end of that financial year.

Length of time in months

NPD
Receipt; Reason episode of care ended 2005 0-16 0 16 Education professional No Past year Children looked after No

The reason why the episode of care ended. Relating to most recent episode during processing year. If reason episode ceased is equal to -10 then the child is looked after at 31 March.

E11 = Adopted – Application unopposed
E12 = Adopted – consent dispensed with by court
E13 – Left care to live with parents, relatives, or other person with no parental responsibility
E14 – Accommodation on remand ended
E15 – Age assessment determined child is aged 18 or over and E5, E6 and E7 do not apply eg an unaccompanied asylum seeking child whose age has been disputed
E16 – Moved abroad
E2 = Died
E3 = Care taken over by another LA
E4 = Returned home to live with parents or relatives or other person with parental responsibility (up to 2014)
E4A = Return home to live with parents, relatives, or other person with parental responsibility as part of the care planning process (not under a special guardianship order or residence order or (from 22 April 2014) a child arrangements order)
E4B = Return home to live with parents, relatives, or other person with parental responsibility which was not part of the current care planning process (not under a special guardianship order or residence order or (from 22 April 2014) a child arrangements order)
E41 = Residence order granted
E43 = Special guardianship made to former foster carers (up to 2018)
E44 = Special guardianship made to carers other than foster carers (up to 2018)
E45 Special guardianship order made to former foster carer(s), who was/are a relative(s) or friend(s) (from 2019) E46 Special guardianship order made to former foster carer(s), other than relative(s) or friend(s) (from 2019) E47 Special guardianship order made to carer(s), other than former foster carer(s), who was/are a relative(s) or friend(s)(from 2019) E48 Special guardianship order made to carer(s), other than former foster carer(s), other than relative(s) or friend(s) (from 2019
E5 = Moved into independent living arrangement and no longer looked after: supportive accommodation providing formalised advice/support arrangements (such aslike most hostels, YMCAs, foyers, and care leavers projects)
E6 = Moved into independent living arrangement and no longer looked after : accommodation providing no formalised advice/support arrangements (such aslike a bedsit, own flat, living with friends)
E7 = Transferred to residential care funded by adult social services
E8 = Period of being looked after ceased for any other reason
E9 = Sentenced to custody
X1 = Episode ceases, and new episode begins on same day, for any other reason
-10 = Child looked after at 31 March

NPD
Receipt; Basis 2 year old funded for early education 2013 0-16 0 16 Education professional No Current Early years census No

The basis on which a 2 year old has been funded for an early education place. LAA = Looked after or adopted from care

LAA or blank

NPD
Receipt; 2 year old looked after or adopted 2017 0-16 0 16 Education professional No Current School Census Pupil Level No

Indicates whether a 2 year old is funded on looked after or adopted basis

0 = No
1 = Yes

NPD
Receipt; KS2 child looked after continuously for 12 months 2010 0-16 0 16 Education professional No Past year Key Stage 2 No

KS2 Pupil looked after continuously for last 12 months up to 31 March i.e. since 1 April

1 = True
0 = False
Null = child not looked after at 31 March

NPD
Receipt; Details of payment for carer 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does HELPER’s NAME receive regular payment from you , your family or from an agency or organisation to help care for you?

1 Yes
2 No

NICOLA
Receipt; Who carer works for 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Is this person [helper’s name]:

1 From a private agency
2 From a non-profit organization (such as the Alzheimer’s Society, etc.)
3 From the government (local health board)
4 Family or Friend who is paid to help
5 Other

NICOLA
Receipt; Percentage of carer costs covered by government 2017 50-120 50 120 Participant Yes Past month NICOLA 2017 Yes

Thinking now about the cost of this paid help in the past month, about what percentage of this cost does the government cover?

Numerical answer

NICOLA
Receipt; Payments to carer by person receiving care 2017 50-120 50 120 Participant Yes Past month NICOLA 2017 Yes

Not counting costs paid by the government, about how much did you (and your [husband/wife/partner]) pay HELPER’s NAME in the last month?

String answer

NICOLA
Receipt; Who helps with paying for care 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does any other person help you (and your [husband/wife/partner]) pay for this cost?

Is that a (child or other) relative of yours (and your [husband/wife/partner]), or is that someone else?

Which child is that?

Any other child?

What is her/his name?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
1 Child/child in-law/grandchild
2 Other relative LOOP FL042
3 Someone else LOOP FL042
98 DK
99 RF

Part 3:
String answer

Part 4:
1 Yes
2 No
98 DK
99 RF

Part 5:
String answer

NICOLA
Receipt; How many paid carers help 2017 50-120 50 120 Participant Yes Past two years NICOLA 2017 Yes

How many different paid helpers in total – have been involved in taking care of you in the last two years? (If all helpers are unpaid relatives or friends code 0)

0-10

NICOLA
Receipt; Receipt of help with getting out of bed 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone ever help you with getting into or out of bed?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help using toilet 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone ever help you with using the toilet, including getting on and off to the toilet?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Who helps with IADLs/ADLs 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Who most often helps you with (getting across a room / dressing / bathing / eating / getting in / out of bed / using the toilet)?

String answer

NICOLA
Receipt; Who helps with IADLs/ADLs - gender 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Is male or female?

1 Male
2 Female

NICOLA
Receipt; Who helps with IADLs/ADLs - relationship to person cared for 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

What is that person’s relationship to you?

1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

NICOLA
Receipt; Details of secondary carer 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone else help you with this activity/these activities?

What is her/his first name?

Is male or female?

What is that person’s relationship to you?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
Name

Part 3:
1 Male
2 Female

Part 4:
1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

NICOLA
Need; Difficulty completing IADLs 2017 50-120 50 120 Participant Yes Past three months NICOLA 2017 Yes

Because of a health or memory problem, do you have difficulty doing any of the activities on this card? Again exclude any difficulties you expect to last less than three months.

1 Preparing a hot meal
2 Doing household chores (laundry, cleaning)
3 Shopping for groceries
4 Making telephone calls
5 Taking medications
6 Managing money, such as paying bills and keeping

NICOLA
Receipt; Receipt of help with IADLs - hot meal 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone help you with preparing a hot meal?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - chores 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone help you with doing household chores?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - shopping 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone help you with shopping for groceries?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - phone calls 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone help you make phone calls?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - medication 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone help you take your medications?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - managing money 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone help you with managing your own money?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - who helps 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Who most often helps you with (preparing meals/doing household chores/shopping for groceries/making telephone calls/your medications)?

String answer

NICOLA
Receipt; Receipt of help with IADLs - gender of helper 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Is male or female?

1 Male
2 Female

NICOLA
Receipt; Receipt of help with IADLs - relationship to care receiver 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

What is that person’s relationship to you?

1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

NICOLA
Receipt; Receipt of help with IADLs - details of secondary carer 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone else help you with this activity/these [caring] activities?

What is her/his first name?

Is male or female?

What is that person’s relationship to you?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
Name

Part 3:
1 Male
2 Female

Part 4:
1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

NICOLA
Receipt; Number of days care received 2017 50-120 50 120 Participant Yes Past month NICOLA 2017 Yes

Let’s think for a moment about the help you receive with the difficulties that we just talked about. During the last month, on about how many days did HELPER’s NAME help you?

String answer

NICOLA
Receipt; Number of hours of caring 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

On the days when HELPER’s NAME helps you, about how many hours per day do they spend helping you?

Numerical answer

NICOLA
Receipt; Receipt of carer's allowance by carer 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does HELPER’s NAME receive Carer’s Allowance?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - gender of helper 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Is male or female?

1 Male
2 Female

NICOLA
Receipt; Receipt of help with IADLs - relationship to care receiver 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

What is that person’s relationship to you?

1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

NICOLA
Receipt; Receipt of help with IADLs - details of secondary carer 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone else help you with this activity/these [caring] activities?

What is her/his first name?

Is male or female?

What is that person’s relationship to you?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
Name

Part 3:
1 Male
2 Female

Part 4:
1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

NICOLA
Receipt; Number of days care received 2014 50-120 50 120 Participant Yes Past month NICOLA 2014 Yes

Let’s think for a moment about the help you receive with the difficulties that we just talked about. During the last month, on about how many days did HELPER’s NAME help you?

String answer

NICOLA
Receipt; Number of hours of caring 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

On the days when HELPER’s NAME helps you, about how many hours per day do they spend helping you?

Numerical answer

NICOLA
Receipt; Receipt of carer's allowance by carer 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does HELPER’s NAME receive Carer’s Allowance?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Details of payment for carer 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does HELPER’s NAME receive regular payment from you , your family or from an agency or organisation to help care for you?

1 Yes
2 No

NICOLA
Receipt; Who carer works for 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Is this person [helper’s name]:

1 From a private agency
2 From a non-profit organization (such as the Alzheimer’s Society, etc.)
3 From the government (local health board)
4 Family or Friend who is paid to help
5 Other

NICOLA
Receipt; Percentage of carer costs covered by government 2014 50-120 50 120 Participant Yes Past month NICOLA 2014 Yes

Thinking now about the cost of this paid help in the past month, about what percentage of this cost does the government cover?

Numerical answer

NICOLA
Receipt; Payments to carer by person receiving care 2014 50-120 50 120 Participant Yes Past month NICOLA 2014 Yes

Not counting costs paid by the government, about how much did you (and your [husband/wife/partner]) pay HELPER’s NAME in the last month?

String answer

NICOLA
Receipt; Who helps with paying for care 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does any other person help you (and your [husband/wife/partner]) pay for this cost?

Is that a (child or other) relative of yours (and your [husband/wife/partner]), or is that someone else?

Which child is that?

Any other child?

What is her/his name?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
1 Child/child in-law/grandchild
2 Other relative LOOP FL042
3 Someone else LOOP FL042
98 DK
99 RF

Part 3:
String answer

Part 4:
1 Yes
2 No
98 DK
99 RF

Part 5:
String answer

NICOLA
Receipt; How many paid carers help 2014 50-120 50 120 Participant Yes Past two years NICOLA 2014 Yes

How many different paid helpers in total – have been involved in taking care of you in the last two years? (If all helpers are unpaid relatives or friends code 0)

0-10

NICOLA
Receipt; Receipt of benefits including carer's allowance 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Which of these health or disability benefits are you personally receiving at the moment?

01 Incapacity Benefit previously Invalidity Benefit
02 Employment and Support Allowance
03 Severe Disablement Allowance SDA
04 Statutory sick pay SSP
05 Attendance Allowance
06 Disability Living Allowance
07 Industrial Injuries Disablement Benefit
08 War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme
09 Carer’s Allowance
95 Some other benefit for people with disabilities (SPECIFY)
96 None of these
98 DK
99 RF

NICOLA
Receipt; Benefits - how much 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

How much did you / your [husband / wife / partner]] [usually] receive from [Incapacity benefit previously named invalidity benefit /Employment and Support Allowance /Severe Disablement Allowance SDA /Statutory sickpay SSP /Attendance Allowance /Disability Living Allowance /Industrial Injuries Disablement Benefit /War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme /Carer’s Allowance.] [last time]?

01 One week
02 Two weeks
03 Three weeks
04 Four weeks
05 Calendar month
07 Two Calendar months
08 Eight times a year
09 Nine times a year
10 Ten times a year
13 Three months / 13 weeks
26 Six months / 26 weeks
52 One Year / 12 months / 52 weeks
90 Less than one week
95 One off / lump sum
96 None of these (EXPLAIN IN A NOTE)
98 DK
99 RF

NICOLA
Need; IADL abilities 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Because of a physical or mental health problem, do you have difficulty doing any of the activities on this card? SHOW CARD FL1 Exclude any difficulties that you expect to last less than three months.

1 Walking 100 meters (100 yards)
2 Running or jogging about 1.5 kilometres (1 mile)
3 Sitting for about two hours
4 Getting up from a chair after sitting for long periods
5 Climbing several flights of stairs without resting
6 Climbing one flight of stairs without resting
7 Stooping, kneeling, or crouching
8 Reaching or extending your arms above shoulder level
9 Pulling or pushing large objects like a living room chair
10 Lifting or carrying weights over 10 pounds/5 kilos, like a heavy bag of groceries
11 Picking up a small coin from a table
96 None of these
99 RF

NICOLA
Need; ADL abilities 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Because of a health or memory problem, do you have difficulty doing any of the activities on this card? Again exclude any difficulties you expect to last less than three months. SHOW CARD FL2

1 Dressing, including putting on shoes and socks
2 Walking across a room
3 Bathing or showering
4 Eating, such as cutting up your food
5 Getting in or out of bed
6 Using the toilet, including getting up or down
96 None of these
98 DK
99 RF

NICOLA
Receipt; Receipt of help putting on shoes and socks 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone ever help you with dressing including putting on shoes and socks?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help walking across room 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone ever help you with walking across a room?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of health help bathing & showering 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone ever help you with bathing or showering?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with eating 2017 50-120 50 120 Participant Yes Current NICOLA 2017 Yes

Does anyone ever help you with eating?

1 Yes
2 No
98 DK
99 RF

NICOLA
Need; IADL abilities 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Because of a physical or mental health problem, do you have difficulty doing any of the activities on this card? SHOW CARD FL1 Exclude any difficulties that you expect to last less than three months.

1 Walking 100 meters (100 yards)
2 Running or jogging about 1.5 kilometres (1 mile)
3 Sitting for about two hours
4 Getting up from a chair after sitting for long periods
5 Climbing several flights of stairs without resting
6 Climbing one flight of stairs without resting
7 Stooping, kneeling, or crouching
8 Reaching or extending your arms above shoulder level
9 Pulling or pushing large objects like a living room chair
10 Lifting or carrying weights over 10 pounds/5 kilos, like a heavy bag of groceries
11 Picking up a small coin from a table
96 None of these
99 RF

NICOLA
Need; ADL abilities 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Because of a health or memory problem, do you have difficulty doing any of the activities on this card? Again exclude any difficulties you expect to last less than three months. SHOW CARD FL2

1 Dressing, including putting on shoes and socks
2 Walking across a room
3 Bathing or showering
4 Eating, such as cutting up your food
5 Getting in or out of bed
6 Using the toilet, including getting up or down
96 None of these
98 DK
99 RF

NICOLA
Receipt; Receipt of help putting on shoes and socks 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone ever help you with dressing including putting on shoes and socks?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help walking across room 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone ever help you with walking across a room?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of health help bathing & showering 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone ever help you with bathing or showering?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with eating 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone ever help you with eating?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with getting out of bed 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone ever help you with getting into or out of bed?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help using toilet 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone ever help you with using the toilet, including getting on and off to the toilet?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Who helps with IADLs/ADLs 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Who most often helps you with (getting across a room / dressing / bathing / eating / getting in / out of bed / using the toilet)?

String answer

NICOLA
Receipt; Who helps with IADLs/ADLs - gender 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Is male or female?

1 Male
2 Female

NICOLA
Receipt; Who helps with IADLs/ADLs - relationship to person cared for 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

What is that person’s relationship to you?

1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

NICOLA
Receipt; Details of secondary carer 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone else help you with this activity/these activities?

What is her/his first name?

Is male or female?

What is that person’s relationship to you?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
Name

Part 3:
1 Male
2 Female

Part 4:
1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

NICOLA
Need; Difficulty completing IADLs 2014 50-120 50 120 Participant Yes Past three months NICOLA 2014 Yes

Because of a health or memory problem, do you have difficulty doing any of the activities on this card? Again exclude any difficulties you expect to last less than three months.

1 Preparing a hot meal
2 Doing household chores (laundry, cleaning)
3 Shopping for groceries
4 Making telephone calls
5 Taking medications
6 Managing money, such as paying bills and keeping

NICOLA
Receipt; Receipt of help with IADLs - hot meal 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone help you with preparing a hot meal?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - chores 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone help you with doing household chores?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - shopping 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone help you with shopping for groceries?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - phone calls 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone help you make phone calls?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - medication 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone help you take your medications?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - managing money 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Does anyone help you with managing your own money?

1 Yes
2 No
98 DK
99 RF

NICOLA
Receipt; Receipt of help with IADLs - who helps 2014 50-120 50 120 Participant Yes Current NICOLA 2014 Yes

Who most often helps you with (preparing meals/doing household chores/shopping for groceries/making telephone calls/your medications)?

String answer

NICOLA
Provision; Provision of unpaid care by child/young person 2019 0-25 0 25 NHS funded care provider manager No Current MHSDS v4.0 No

A data item requested to be collected by NHS funded care providers is:

An indicator for a child or young person who has a caring role for an ill or disabled parent, Carer or sibling. A Carer is a person who is either providing or intending to provide a substantial amount of unpaid care on a regular basis for someone who is disabled, ill or frail.
This data item is applicable to children and young people only.

CAMH services using Current View may capture this information using “Complexity 2. Young carer status”. This factor would be submitted as a CODED FINDING in MHS202CareActivity. This Young Carer Indicator would then be completed/updated and continued to be submitted with the “most recent” status at end of each reporting period.

N/A

MHSDS
Receipt; Looked after child 2019 0-25 0 25 NHS funded care provider manager No Current MHSDS v4.0 No

A data item requested to be collected by NHS funded care providers is:

An indicator for a looked after child. A Looked After Child (also referred to as a Child Looked After) is a PERSON. A Looked After Child is a child in the care of a Local Authority either:
• through a Care Order made by a Court or
• voluntary agreement with their parent(s) to accommodate
them.
They may be looked after: in a Children’s Home, by foster carers, or other family members.
All Unaccompanied Asylum-Seeking Children are also Looked After Children.
This data item is applicable to children and young people only.

N/A

MHSDS
Need; Indicators of lack of ability to complete ADLs 2019 0-120 0 120 NHS funded care provider manager No Current MHSDS v4.0 No

A data item requested to be collected by NHS funded care providers is:

A table to provide information about disabilities where they are present, however providers can choose to submit records for NN or ZZ should they record this locally. Records submitted against either of these codes will be classed as ‘Other’ for the Data Quality Measures.

“[01] Behaviour and Emotional should be used where the patient has times when they lack control over their feelings or actions.

[02] Hearing should be used where the patient has difficulty hearing, or need hearing aids, or need to lip-read what people say.

[03] Manual Dexterity should be used where the patient experiences difficulty performing tasks with their hands.

[04] Memory or ability to concentrate, learn or understand (Learning Disability) should be used where the patient has difficulty with memory or ability to concentrate, learn or understand which began before the age of 18.

[05] Mobility and Gross Motor should be used where the patient has difficulty getting around physically without assistance or needs aids like wheelchairs or walking frames; or where the patient has difficulty controlling how their arms, legs or head move.

[06] Perception of Physical Danger should be used where the patient has difficulty understanding that some things, places or situations can be dangerous and could lead to a risk of injury or harm.

[07] Personal, Self-Care and Continence should be used where the patient has difficulty keeping clean and dressing the way they would like to.

[08] Progressive Conditions and Physical Health (such as HIV, cancer, multiple sclerosis, fits etc.) should be used where the patient has any illness which affects what they can do, or which is making them more ill, which is getting worse, and which is going to continue getting worse.

[09] Sight should be used where the patient has difficulty seeing signs or things printed on paper, or seeing things at a distance.

[10] Speech should be used where the patient has difficulty speaking or using language to communicate or make their needs known.

[XX] Other should be used where the patient has any other important health issue including dementia or autism.”

MHSDS
Receipt; Use of day centres and other care services 2019 0-120 0 120 NHS funded care provider manager No Current MHSDS v4.0 No

A data item requested to be collected by NHS funded care providers is:

To carry details of any contacts with a patient which have taken place as part of a referral. One occurrence of this group is permitted for each Care Contact.

Where contact is not face to face the ACTIVITY LOCATION TYPE of the patient should be used; not the location of the clinician.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Receipt; Use of care homes 2019 0-120 0 120 NHS funded care provider manager No Current MHSDS v4.0 No

A data item requested to be collected by NHS funded care providers is:

A place of safety indicator.

Until new guidance is published, care provider organisations should continue to record care contacts that relate to S.136 events as per current local policy.

A Place of Safety may be:
• a residential ACCOMMODATION provided by a local social services authority under Part III of the National Assistance Act 1948
• a hospital as defined by the Mental Health Act 1983 as amended by
the Mental Health Act 2007
• a police station
• an independent hospital or Care Home for mentally disordered
PERSONS or
• any other suitable place.

MHSDS
Receipt; Use of day centres and other care services 2019 0-120 0 120 NHS funded care provider manager No Current MHSDS v4.0 No

A data item requested to be collected by NHS funded care providers is:

To carry details of any group sessions which have been provided to a group of patients during the reporting period.
One occurrence of this group is permitted for each Group Session activity.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Provision; Provision of unpaid care by child/young person 2020 0-25 0 25 NHS funded care provider manager No Current MHSDS v4.1 No

A data item requested to be collected by NHS funded care providers is:

An indicator for a child or young person who has a caring role for an ill or disabled parent, Carer or sibling. A Carer is a person who is either providing or intending to provide a substantial amount of unpaid care on a regular basis for someone who is disabled, ill or frail.
This data item is applicable to children and young people only.

CAMH services using Current View may capture this information using “Complexity 2. Young carer status”. This factor would be submitted as a CODED FINDING in MHS202CareActivity. This Young Carer Indicator would then be completed/updated and continued to be submitted with the “most recent” status at end of each reporting period.

N/A

MHSDS
Receipt; Looked after child 2020 0-25 0 25 NHS funded care provider manager No Current MHSDS v4.1 No

A data item requested to be collected by NHS funded care providers is:

An indicator for a looked after child. A Looked After Child (also referred to as a Child Looked After) is a PERSON. A Looked After Child is a child in the care of a Local Authority either:
• through a Care Order made by a Court or
• voluntary agreement with their parent(s) to accommodate
them.
They may be looked after: in a Children’s Home, by foster carers, or other family members.
All Unaccompanied Asylum-Seeking Children are also Looked After Children.
This data item is applicable to children and young people only.

N/A

MHSDS
Need; Indicators of lack of ability to complete ADLs 2020 0-120 0 120 NHS funded care provider manager No Current MHSDS v4.1 No

A data item requested to be collected by NHS funded care providers is:

A table to provide information about disabilities where they are present, however providers can choose to submit records for NN or ZZ should they record this locally. Records submitted against either of these codes will be classed as ‘Other’ for the Data Quality Measures.

[01] Behaviour and Emotional should be used where the patient has times when they lack control over their feelings or actions.

[02] Hearing should be used where the patient has difficulty hearing, or need hearing aids, or need to lip-read what people say.

[03] Manual Dexterity should be used where the patient experiences difficulty performing tasks with their hands.

[04] Memory or ability to concentrate, learn or understand (Learning Disability) should be used where the patient has difficulty with memory or ability to concentrate, learn or understand which began before the age of 18.

[05] Mobility and Gross Motor should be used where the patient has difficulty getting around physically without assistance or needs aids like wheelchairs or walking frames; or where the patient has difficulty controlling how their arms, legs or head move.

[06] Perception of Physical Danger should be used where the patient has difficulty understanding that some things, places or situations can be dangerous and could lead to a risk of injury or harm.

[07] Personal, Self-Care and Continence should be used where the patient has difficulty keeping clean and dressing the way they would like to.

[08] Progressive Conditions and Physical Health (such as HIV, cancer, multiple sclerosis, fits etc.) should be used where the patient has any illness which affects what they can do, or which is making them more ill, which is getting worse, and which is going to continue getting worse.

[09] Sight should be used where the patient has difficulty seeing signs or things printed on paper, or seeing things at a distance.

[10] Speech should be used where the patient has difficulty speaking or using language to communicate or make their needs known.

[XX] Other should be used where the patient has any other important health issue including dementia or autism.

MHSDS
Receipt; Use of day centres and other care services 2020 0-120 0 120 NHS funded care provider manager No Current MHSDS v4.1 No

A data item requested to be collected by NHS funded care providers is:

To carry details of any contacts with a patient which have taken place as part of a referral. One occurrence of this group is permitted for each Care Contact.

Where contact is not face to face the ACTIVITY LOCATION TYPE of the patient should be used; not the location of the clinician.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Receipt; Use of care homes 2020 0-120 0 120 NHS funded care provider manager No Current MHSDS v4.1 No

A data item requested to be collected by NHS funded care providers is:

A place of safety indicator.

Until new guidance is published, care provider organisations should continue to record care contacts that relate to S.136 events as per current local policy.

A Place of Safety may be:
• a residential ACCOMMODATION provided by a local social services authority under Part III of the National Assistance Act 1948
• a hospital as defined by the Mental Health Act 1983 as amended by
the Mental Health Act 2007
• a police station
• an independent hospital or Care Home for mentally disordered
PERSONS or
• any other suitable place.

MHSDS
Receipt; Use of day centres and other care services 2020 0-120 0 120 NHS funded care provider manager No Current MHSDS v4.1 No

A data item requested to be collected by NHS funded care providers is:

To carry details of any group sessions which have been provided to a group of patients during the reporting period.
One occurrence of this group is permitted for each Group Session activity.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Receipt; Use of day centres and other care services 2014 0-120 0 120 NHS funded care provider manager No Current MHSDS v1.1 (2014 sweep) No

A data item requested to be collected by NHS funded care providers is:

A record for each separate contact with a healthcare professional for the patient.

In cases where the Health Care Professionals (HCP) are providing service using non face-to-face consultation mediums, the appropriate location codes for where the HCPs are based should be used and not where the patient is located.

[J01] Resource Centre premises: A Mental Health/Learning Disabilities and Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health/learning disabilities and autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health and/or learning disabilities and autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Provision; Provision of unpaid care by child/young person 2015 0-25 0 25 NHS funded care provider manager No Current MHSDS v1.1 (2015 sweep) No

A data item requested to be collected by NHS funded care providers is:

An indicator for a child or young person who has a caring role for an ill or disabled parent, Carer or sibling. A Carer is a person who is either providing or intending to provide a substantial amount of unpaid care on a regular basis for someone who is disabled, ill or frail.
This data item is applicable to children and young people only.

CAMH services using Current View may capture this information using “Complexity 2. Young carer status”. This factor would be submitted as a CODED FINDING in MHS202CareActivity. This Young Carer Indicator would then be completed/updated and continued to be submitted with the “most recent” status at end of each reporting period.

N/A

MHSDS
Receipt; Looked after child 2015 0-25 0 25 NHS funded care provider manager No Current MHSDS v1.1 No

A data item requested to be collected by NHS funded care providers is:

An indicator for a looked after child. A Looked After Child (also referred to as a Child Looked After) is a PERSON. A Looked After Child is a child in the care of a Local Authority either:
• through a Care Order made by a Court or
• voluntary agreement with their parent(s) to accommodate
them.
They may be looked after: in a Children’s Home, by foster carers, or other family members.
All Unaccompanied Asylum-Seeking Children are also Looked After Children.
This data item is applicable to children and young people only.

N/A

MHSDS
Need; Indicators of lack of ability to complete ADLs 2015 0-120 0 120 NHS funded care provider manager No Current MHSDS v1.1 No

A data item requested to be collected by NHS funded care providers is:

To carry details of a person’s disability. This may be determined as a result of formal diagnosis, or as perceived by the patient or patient proxy.

This table is only required to flow where the patient has a disability. Multiple iterations of the disability record can flow where the patient has multiple disabilities, provided the LOCAL PATIENT IDENTIFIER (EXTENDED) and DISABILITY CODE combination is unique.

“[01] Behaviour and Emotional should be used where the patient has times when they lack control over their feelings or actions.

[02] Hearing should be used where the patient has difficulty hearing, or need hearing aids, or need to lip-read what people say.

[03] Manual Dexterity should be used where the patient experiences difficulty performing tasks with their hands.

[04] Memory or ability to concentrate, learn or understand (Learning Disability) should be used where the patient has difficulty with memory or ability to concentrate, learn or understand which began before the age of 18.

[05] Mobility and Gross Motor should be used where the patient has difficulty getting around physically without assistance or needs aids like wheelchairs or walking frames; or where the patient has difficulty controlling how their arms, legs or head move.

[06] Perception of Physical Danger should be used where the patient has difficulty understanding that some things, places or situations can be dangerous and could lead to a risk of injury or harm.

[07] Personal, Self-Care and Continence should be used where the patient has difficulty keeping clean and dressing the way they would like to.

[08] Progressive Conditions and Physical Health (such as HIV, cancer, multiple sclerosis, fits etc.) should be used where the patient has any illness which affects what they can do, or which is making them more ill, which is getting worse, and which is going to continue getting worse.

[09] Sight should be used where the patient has difficulty seeing signs or things printed on paper, or seeing things at a distance.

[10] Speech should be used where the patient has difficulty speaking or using language to communicate or make their needs known.

[XX] Other should be used where the patient has any other important health issue including dementia or autism.”

MHSDS
Receipt; Use of day centres and other care services 2015 0-120 0 120 NHS funded care provider manager No Current MHSDS v1.1 No

A data item requested to be collected by NHS funded care providers is:

To carry details of any contacts with a patient which have taken place as part of a referral. One occurrence of this group is permitted for each Care Contact.

Where contact is not face to face the ACTIVITY LOCATION TYPE of the patient should be used; not the location of the clinician.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Receipt; Group use of day centres and other care services 2015 0-120 0 120 NHS funded care provider manager Yes Current MHSDS v1.1 No

A data item requested to be collected by NHS funded care providers is:

ACTIVITY LOCATION TYPE CODE

The Group Session table is designed to allow flow of data relating to activity that cannot be directly attributable to an individual, and does not link to any other data group either through the local patient identifier or referral. The table includes telephone contact with an individual that incorporates an element of mental health care but the individual remains anonymous.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Receipt; Use of day centres and other care services - anonymous 2015 0-120 0 120 NHS funded care provider manager No Current MHSDS v1.1 No

A data item requested to be collected by NHS funded care providers is:

Anonymous self-assessments that are completed by a patient where the patient is subject of a referral to a Mental Health Service and the service has issued the self-assessment for completion.
This table is not linked to the rest of MHSDS at patient level and included records cannot be linked to specific individuals in any way.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Provision; Provision of unpaid care by child/young person 2022 0-25 0 25 NHS funded care provider manager No Current MHSDS v2.0 No

A data item requested to be collected by NHS funded care providers is:

An indicator for a child or young person who has a caring role for an ill or disabled parent, Carer or sibling. A Carer is a person who is either providing or intending to provide a substantial amount of unpaid care on a regular basis for someone who is disabled, ill or frail.
This data item is applicable to children and young people only.

CAMH services using Current View may capture this information using “Complexity 2. Young carer status”. This factor would be submitted as a CODED FINDING in MHS202CareActivity. This Young Carer Indicator would then be completed/updated and continued to be submitted with the “most recent” status at end of each reporting period.

N/A

MHSDS
Receipt; Looked after child 2022 0-25 0 25 NHS funded care provider manager No Current MHSDS v2.0 No

A data item requested to be collected by NHS funded care providers is:

An indicator for a looked after child. A Looked After Child (also referred to as a Child Looked After) is a PERSON. A Looked After Child is a child in the care of a Local Authority either:
• through a Care Order made by a Court or
• voluntary agreement with their parent(s) to accommodate
them.
They may be looked after: in a Children’s Home, by foster carers, or other family members.
All Unaccompanied Asylum-Seeking Children are also Looked After Children.
This data item is applicable to children and young people only.

N/A

MHSDS
Need; Indicators of lack of ability to complete ADLs 2022 0-120 0 120 NHS funded care provider manager No Current MHSDS v2.0 No

A data item requested to be collected by NHS funded care providers is:

A table to provide information about disabilities where they are present, however providers can choose to submit records for NN or ZZ should they record this locally. Records submitted against either of these codes will be classed as ‘Other’ for the Data Quality Measures.

“[01] Behaviour and Emotional should be used where the patient has times when they lack control over their feelings or actions.

[02] Hearing should be used where the patient has difficulty hearing, or need hearing aids, or need to lip-read what people say.

[03] Manual Dexterity should be used where the patient experiences difficulty performing tasks with their hands.

[04] Memory or ability to concentrate, learn or understand (Learning Disability) should be used where the patient has difficulty with memory or ability to concentrate, learn or understand which began before the age of 18.

[05] Mobility and Gross Motor should be used where the patient has difficulty getting around physically without assistance or needs aids like wheelchairs or walking frames; or where the patient has difficulty controlling how their arms, legs or head move.

[06] Perception of Physical Danger should be used where the patient has difficulty understanding that some things, places or situations can be dangerous and could lead to a risk of injury or harm.

[07] Personal, Self-Care and Continence should be used where the patient has difficulty keeping clean and dressing the way they would like to.

[08] Progressive Conditions and Physical Health (such as HIV, cancer, multiple sclerosis, fits etc.) should be used where the patient has any illness which affects what they can do, or which is making them more ill, which is getting worse, and which is going to continue getting worse.

[09] Sight should be used where the patient has difficulty seeing signs or things printed on paper, or seeing things at a distance.

[10] Speech should be used where the patient has difficulty speaking or using language to communicate or make their needs known.

[XX] Other should be used where the patient has any other important health issue including dementia or autism.”

MHSDS
Receipt; Use of day centres and other care services 2022 0-120 0 120 NHS funded care provider manager No Current MHSDS v2.0 No

A data item requested to be collected by NHS funded care providers is:

To carry details of any contacts with a patient which have taken place as part of a referral. One occurrence of this group is permitted for each Care Contact.

Where contact is not face to face the ACTIVITY LOCATION TYPE of the patient should be used; not the location of the clinician.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Receipt; Use of care homes 2022 0-120 0 120 NHS funded care provider manager No Current MHSDS v2.0 No

A data item requested to be collected by NHS funded care providers is:

A place of safety indicator.

Until new guidance is published, care provider organisations should continue to record care contacts that relate to S.136 events as per current local policy.

A Place of Safety may be:
• a residential ACCOMMODATION provided by a local social services authority under Part III of the National Assistance Act 1948
• a hospital as defined by the Mental Health Act 1983 as amended by
the Mental Health Act 2007
• a police station
• an independent hospital or Care Home for mentally disordered
PERSONS or
• any other suitable place.

MHSDS
Receipt; Use of day centres and other care services 2022 0-120 0 120 NHS funded care provider manager No Current MHSDS v2.0 No

A data item requested to be collected by NHS funded care providers is:

To carry details of any group sessions which have been provided to a group of patients during the reporting period.
One occurrence of this group is permitted for each Group Session activity.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Receipt; Use of day centres and other care services 2022 0-120 0 120 NHS funded care provider manager No Current MHSDS v2.0 No

A data item requested to be collected by NHS funded care providers is:

To carry details of anonymous assessments that are issued and completed as part of a referral to a Mental Health Service.
One occurrence of this Group is permitted for each coded anonymous self-assessment question or dimension captured.
General Table Guidance
This table is not linked to the rest of MHSDS at patient level and included records cannot be linked to specific individuals in any way.

CODE

Where contact is not face to face the ACTIVITY LOCATION TYPE of the patient should be used; not the location of the clinician. Please note: this guidance is amended from MHLDDS and changes the requirement.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Provision; Provision of unpaid care by child/young person 2017 0-25 0 25 NHS funded care provider manager No Current MHSDS v3.0 No

A data item requested to be collected by NHS funded care providers is:

An indicator for a child or young person who has a caring role for an ill or disabled parent, Carer or sibling. A Carer is a person who is either providing or intending to provide a substantial amount of unpaid care on a regular basis for someone who is disabled, ill or frail.
This data item is applicable to children and young people only.

CAMH services using Current View may capture this information using “Complexity 2. Young carer status”. This factor would be submitted as a CODED FINDING in MHS202CareActivity. This Young Carer Indicator would then be completed/updated and continued to be submitted with the “most recent” status at end of each reporting period.

N/A

MHSDS
Receipt; Looked after child 2017 0-25 0 25 NHS funded care provider manager No Current MHSDS v3.0 No

A data item requested to be collected by NHS funded care providers is:

An indicator for a looked after child. A Looked After Child (also referred to as a Child Looked After) is a PERSON. A Looked After Child is a child in the care of a Local Authority either:
• through a Care Order made by a Court or
• voluntary agreement with their parent(s) to accommodate
them.
They may be looked after: in a Children’s Home, by foster carers, or other family members.
All Unaccompanied Asylum-Seeking Children are also Looked After Children.
This data item is applicable to children and young people only.

N/A

MHSDS
Need; Indicators of lack of ability to complete ADLs 2017 0-120 0 120 NHS funded care provider manager No Current MHSDS v3.0 No

A data item requested to be collected by NHS funded care providers is:

A table to provide information about disabilities where they are present, however providers can choose to submit records for NN or ZZ should they record this locally. Records submitted against either of these codes will be classed as ‘Other’ for the Data Quality Measures.

“[01] Behaviour and Emotional should be used where the patient has times when they lack control over their feelings or actions.

[02] Hearing should be used where the patient has difficulty hearing, or need hearing aids, or need to lip-read what people say.

[03] Manual Dexterity should be used where the patient experiences difficulty performing tasks with their hands.

[04] Memory or ability to concentrate, learn or understand (Learning Disability) should be used where the patient has difficulty with memory or ability to concentrate, learn or understand which began before the age of 18.

[05] Mobility and Gross Motor should be used where the patient has difficulty getting around physically without assistance or needs aids like wheelchairs or walking frames; or where the patient has difficulty controlling how their arms, legs or head move.

[06] Perception of Physical Danger should be used where the patient has difficulty understanding that some things, places or situations can be dangerous and could lead to a risk of injury or harm.

[07] Personal, Self-Care and Continence should be used where the patient has difficulty keeping clean and dressing the way they would like to.

[08] Progressive Conditions and Physical Health (such as HIV, cancer, multiple sclerosis, fits etc.) should be used where the patient has any illness which affects what they can do, or which is making them more ill, which is getting worse, and which is going to continue getting worse.

[09] Sight should be used where the patient has difficulty seeing signs or things printed on paper, or seeing things at a distance.

[10] Speech should be used where the patient has difficulty speaking or using language to communicate or make their needs known.

[XX] Other should be used where the patient has any other important health issue including dementia or autism.”

MHSDS
Receipt; Use of day centres and other care services 2017 0-120 0 120 NHS funded care provider manager No Current MHSDS v3.0 No

A data item requested to be collected by NHS funded care providers is:

To carry details of any contacts with a patient which have taken place as part of a referral. One occurrence of this group is permitted for each Care Contact.

Where contact is not face to face the ACTIVITY LOCATION TYPE of the patient should be used; not the location of the clinician.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Receipt; Use of care homes 2017 0-120 0 120 NHS funded care provider manager No Current MHSDS v3.0 No

A data item requested to be collected by NHS funded care providers is:

A place of safety indicator.

Until new guidance is published, care provider organisations should continue to record care contacts that relate to S.136 events as per current local policy.

A Place of Safety may be:
• a residential ACCOMMODATION provided by a local social services authority under Part III of the National Assistance Act 1948
• a hospital as defined by the Mental Health Act 1983 as amended by
the Mental Health Act 2007
• a police station
• an independent hospital or Care Home for mentally disordered
PERSONS or
• any other suitable place.

MHSDS
Receipt; Use of day centres and other care services 2017 0-120 0 120 NHS funded care provider manager No Current MHSDS v3.0 No

A data item requested to be collected by NHS funded care providers is:

To carry details of any group sessions which have been provided to a group of patients during the reporting period.
One occurrence of this group is permitted for each Group Session activity.

[J01] Resource Centre premises: A Mental Health, Learning Disabilities or Autism Spectrum Disorder Resource Centre is the focus for the provision of mental health, learning disabilities or autism spectrum disorder care services to a specific area of the community. It acts as the base of a multi-professional team whose core purpose is to provide community-based care for mental health, learning disabilities or autism spectrum disorder clients of all ages. The care usually comprises assessment, treatment and rehabilitation via domiciliary, consultant and other HCP outpatient, day hospital and outreach services, delivered at the centre, in the client’s home and other suitable venues.

[B01] / [B02] Health Centre premises: A health centre is a facility which is used for the provision of primary care services and a range of community health services. It provides a standard of amenity which it is not easy to provide in a traditional consulting room. Services provided include General Medical services and nursing services and may in addition include AHP services, other primary care services and specialist services.

[H01] Day Centre premises: Daytime care for the needs of people who cannot be fully independent: such as children or the elderly. Day care centres can offer the person you care for an opportunity to take on new hobbies and arrange days out, and they can also provide you with a break from caring. Day care centres are run by social services departments, or voluntary organisations, such as charities

[D01] / D02] / [D03] Walk In Centres, Out of Hours Premises and Emergency Community Dental Services: NHS Walk-in Centres are predominantly nurse–led primary care facilities dealing with illnesses and injuries – including infections and rashes, fractures and lacerations, emergency contraception and advice, stomach upsets, cuts and bruises, or minor burns and strains – without the need to register or make an appointment. They are not designed for treating long-term conditions or immediately life-threatening problems.

MHSDS
Receipt; Child looked after by social care services 2017 16-120 16 120 Parent No Over lifetime 2017 sweep No

Has your child ever spent any time being “looked after” by social services?

Yes
No

MHCYPS
Receipt; Child looked after by social care services - number of times 2017 16-120 16 120 Parent No Over lifetime 2017 sweep No

How many times has your child been looked after?

Enter a numeric value between 0 and 50

MHCYPS
Receipt; Child looked after by social care services - moving schools 2017 16-120 16 120 Parent No Over lifetime 2017 sweep No

Did your child move schools as a result of being looked after?

Yes
No

MHCYPS
Receipt; Child looked after by social care services - number of school moves 2017 16-120 16 120 Parent No Over lifetime 2017 sweep No

How often did they move schools as a result of being looked after?

Enter a numeric value between 0 and 50

MHCYPS
Receipt; Looked after by social care services 2017 0-16 0 16 Child No Over lifetime 2017 sweep No

Have you ever spent any time being “looked after” by social services?

Yes
No

MHCYPS
Receipt; Looked after by social care services - number of times 2017 0-16 0 16 Child No Over lifetime 2017 sweep No

How many times have you been looked after?

Enter a numeric value between 0 and 50

MHCYPS
Receipt; Looked after by social care services - moving schools 2017 0-16 0 16 Child No Over lifetime 2017 sweep No

Did you move schools as a result of being looked after?

Yes
No

MHCYPS
Receipt; Looked after by social care services - number of school moves 2017 0-16 0 16 Child No Over lifetime 2017 sweep No

How often did you move schools as a result of being looked after?

Enter a numeric value between 0 and 50

MHCYPS
Receipt; Contact with professional services or sources of support 2019 5-16 5 16 Parent No Current Wave 1 No

“Between 1st March 2019 and 1st March 2020, have you or (first name) been in contact with any of the following people because of worries about (first name)’s mental health or emotional, behavioural or concentration problems?”

1. Some in your family or a close friend
2. Telephone help line (for example, Samaritans, NHS 111, Mind)
3. Internet website (for example, Every Mind Matters, Young Minds
4. A teacher (for example, form teacher, head of year)
5. Someone from school based mental health support (for example, school counsellor)
6. Someone working in educational support services (for example, an educational psychologist or external specialist teacher)
7. Someone from primary health care (for example, a GP, practice nurse, or school nurse)
8. Someone from Child & Adolescent Mental Health Services (CAMHS) (for example, child psychologist or psychiatrist, child mental health nurse, or family therapist)
9. Someone specialising in children’s physical health (for example, a hospital or community pediatrician, or occupational therapist)
10. Someone from social care (for example, a social worker or family support worker)
11. Contacted or been referred to one of these types of people or services but has not been seen
12. Other (please specify)
13. None of the above

MHCYPS
Receipt; Contact with professional services or sources of support 2019 17-22 17 22 Young Person No Current Wave 1 No

“Between 1st March 2019 and 1st March 2020, have you or (first name) been in contact with any of the following people because of worries about (first name)’s mental health or emotional, behavioural or concentration problems?”

1. Some in your family or a close friend
2. Telephone help line (for example, Samaritans, NHS 111, Mind)
3. Internet website (for example, Every Mind Matters, Young Minds
4. A teacher (for example, form teacher, head of year)
5. Someone from school based mental health support (for example, school counsellor)
6. Someone working in educational support services (for example, an educational psychologist or external specialist teacher)
7. Someone from primary health care (for example, a GP, practice nurse, or school nurse)
8. Someone from Child & Adolescent Mental Health Services (CAMHS) (for example, child psychologist or psychiatrist, child mental health nurse, or family therapist)
9. Someone specialising in children’s physical health (for example, a hospital or community pediatrician, or occupational therapist)
10. Someone from social care (for example, a social worker or family support worker)
11. Contacted or been referred to one of these types of people or services but has not been seen
12. Other (please specify)
13. None of the above

MHCYPS
Receipt; Contact with professional services or sources of support 2020 6-16 6 16 Parent No Current Wave 2 No

“Since 1st August 2020 have you been in contact with any of the following people or services because of worries about mental health or emotional, behavioural or concentration problems?”

1. A teacher (for example, form teacher, head of year)
2. Someone from school based mental health support (for example, school counsellor)
3. Someone working in educational support services (for example, an educational psychologist or external specialist teacher)
4. Someone from primary health care (for example, a GP, practice nurse, or school nurse)
5. Someone from Child & Adolescent Mental Health Services (CAMHS) (for example, child psychologist or psychiatrist, child mental health nurse, or family therapist)
6. Someone specialising in children’s physical health (for example, a hospital or community pediatrician, or occupational therapist)
7. Someone from social care (for example, a social worker or family support worker)
8. Other( please specify)
9. No contact with any professional/service

MHCYPS
Receipt; Contact with professional services or sources of support 2020 17-23 17 23 Young Person No Current Wave 2 No

“Since 1st August 2020 have you been in contact with any of the following people or services because of worries about mental health or emotional, behavioural or concentration problems?”

1. A teacher (for example, form teacher, head of year)
2. Someone from school based mental health support (for example, school counsellor)
3. Someone working in educational support services (for example, an educational psychologist or external specialist teacher)
4. Someone from primary health care (for example, a GP, practice nurse, or school nurse)
5. Someone from Child & Adolescent Mental Health Services (CAMHS) (for example, child psychologist or psychiatrist, child mental health nurse, or family therapist)
6. Someone specialising in children’s physical health (for example, a hospital or community pediatrician, or occupational therapist)
7. Someone from social care (for example, a social worker or family support worker)
8. Other( please specify)
9. No contact with any professional/service

MHCYPS
Provision; Is parent a carer 2020 6-16 6 16 Parent No Current Wave 2 No

“Apart from anything you do as part of paid employment, do you look after, or give any regular help or support to family members, friends, neighbours or others because of either long-term physical ill-health, mental ill-health, disability; or problems related to old age?”

1. Yes
2. No

MHCYPS
Provision; Is child a young carer 2020 6-16 6 16 Parent No Current Wave 2 No

“Does (child’s name) look after, or give any regular help or support to family members, friends, neighbours or others because of either long-term physical ill-health, mental ill-health, disability; or problems related to old age?”

1. Yes
2. No

MHCYPS
Receipt; Receipt of benefits inc. carer's allowance 2015 16-120 16 120 Participant No Current 2015 No

Were you receiving any of these state benefits in your own right;, that is, where you were the named recipient?…

Universal credit?
Housing or Council Tax Reduction?
T ax credits?
Income support?
Job seeker’s allowance (including National Insurance Credits)? Sickness or disability benefits (including Personal Independence Payment or Employment and Support Allowance)?
Child benefit?
Pension benefits (including state pension or pension credit)? Carer’s allowance?
(Spontaneous only) Other?

LFS
Provision; Unemployed due to caring responsibilities 2015 16-120 16 120 Participant No Current 2015 No

What was the main reason why you were not in paid employment or self-employed at that time?

Unemployed/looking for work
Student/training
Looking after family/home/children
Caring for a disabled or elderly person
Temporarily sick or disabled
Long term sick or disabled
Didn’t need employment Retired
Made redundant
Other reason

LFS
Provision; Left work due to caring responsibilities 2015 16-120 16 120 Participant No Current 2015 No

May I just check, is the main reason you left because you were…

Looking after children or an adult in need of care
Some other personal or family reason?

LFS
Receipt; Universal credit due to caring responsibilities 2015 16-120 16 120 Participant No Current 2015 No

(In the week ending Sunday the [date]) was the main reason you were receiving Universal Credit because you were……

Unemployed and looking for work,
Not working because you were sick, injured or disabled,
Not working because of being a lone parent for a child under 5,
Not working because of caring for someone who was sick or disabled, Working but entitled to Universal Credit on top of your earnings,
For some other reason?

LFS
Provision; Unemployed due to caring responsibilities 2015 16-120 16 120 Participant No Current 2015 No

May I just ask, what is the MAIN reason that you are not in employment, education, or training?

in custody
caring for a dependant adult relative
pregnant or caring for own children
disability or ill health
doing unpaid/voluntary work
waiting to start a job that you already obtained, or a course on which you have been accepted
taking a gap year before entering higher education
looking for work or a suitable course
You are a refugee or asylum seeker
any other reason

LFS
Provision; Part time job due to caring responsibilities 2015 16-120 16 120 Participant No Current 2015 No

I would like to ask you why you took a part-time rather than a full-time job. Was it because…

May I just ask, was this because…

Part 1:
You were a student/you were at school?
You were ill or disabled?
You could not find a full-time job?
You did not want a full-time job?

Part 2:
Suitable care services for children are not available or affordable
suitable care services for ill, disabled or elderly adults are not available or affordable
Care facilities do not influence your decision for working part time?

LFS
Provision; Unemployed due to caring responsibilities 2015 16-120 16 120 Participant No Current 2015 No

May I just check, was the main reason that you did not look for work because…

May I just ask, is this because suitable care services…

Part 1:
Were you caring for children below school age Were you caring for other children
Were you caring for a dependent adult relative or some other reason?

Part 2:
for children are not available or affordable?
for ill, disabled or elderly adults are not available or affordable?
Care facilities do not influence your decision to not look for work?

LFS
Provision; Part time job due to caring responsibilities 2014 16-120 16 120 Participant No Current 2014 No

I would like to ask you why you took a part-time rather than a full-time job. Was it because…

May I just ask, was this because…

Part 1:
You were a student/you were at school?
You were ill or disabled?
You could not find a full-time job?
You did not want a full-time job?

Part 2:
Suitable care services for children are not available or affordable
suitable care services for ill, disabled or elderly adults are not available or affordable
Care facilities do not influence your decision for working part time?

LFS
Receipt; Receipt of benefits inc. carer's allowance 2014 16-120 16 120 Participant No Current 2014 No

Were you receiving any of these state benefits in your own right;, that is, where you were the named recipient?…

Universal credit?
Housing or Council Tax Reduction?
T ax credits?
Income support?
Job seeker’s allowance (including National Insurance Credits)? Sickness or disability benefits (including Personal Independence Payment or Employment and Support Allowance)?
Child benefit?
Pension benefits (including state pension or pension credit)? Carer’s allowance?
(Spontaneous only) Other?

LFS
Provision; Unemployed due to caring responsibilities 2014 16-120 16 120 Participant No Current 2014 No

What was the main reason why you were not in paid employment or self-employed at that time?

Unemployed/looking for work
Student/training
Looking after family/home/children
Caring for a disabled or elderly person
Temporarily sick or disabled
Long term sick or disabled
Didn’t need employment Retired
Made redundant
Other reason

LFS
Provision; Left work due to caring responsibilities 2014 16-120 16 120 Participant No Current 2014 No

May I just check, is the main reason you left because you were…

Looking after children or an adult in need of care
Some other personal or family reason?

LFS
Provision; Universal credit due to caring responsibilities 2014 16-120 16 120 Participant No Current 2014 No

(In the week ending Sunday the [date]) was the main reason you were receiving Universal Credit because you were……

Unemployed and looking for work,
Not working because you were sick, injured or disabled,
Not working because of being a lone parent for a child under 5,
Not working because of caring for someone who was sick or disabled, Working but entitled to Universal Credit on top of your earnings,
For some other reason?

LFS
Provision; Unemployed due to caring responsibilities 2014 16-120 16 120 Participant No Current 2014 No

May I just ask, what is the MAIN reason that you are not in employment, education, or training?

in custody
caring for a dependant adult relative
pregnant or caring for own children
disability or ill health
doing unpaid/voluntary work
waiting to start a job that you already obtained, or a course on which you have been accepted
taking a gap year before entering higher education
looking for work or a suitable course
You are a refugee or asylum seeker
any other reason

LFS
Provision; Part time job due to caring responsibilities 2014 16-120 16 120 Participant No Current 2014 No

I would like to ask you why you took a part-time rather than a full-time job. Was it because…

May I just ask, was this because…

Part 1:
You were a student/you were at school?
You were ill or disabled?
You could not find a full-time job?
You did not want a full-time job?

Part 2:
Suitable care services for children are not available or affordable
suitable care services for ill, disabled or elderly adults are not available or affordable
Care facilities do not influence your decision for working part time?

LFS
Provision; Not looking for work due to caring responsibilities 2014 16-120 16 120 Participant No Current 2014 No

May I just check, was the main reason that you did not look for work because…

May I just ask, is this because suitable care services…

Part 1:
Were you caring for children below school age Were you caring for other children
Were you caring for a dependent adult relative or some other reason?

Part 2:
for children are not available or affordable?
for ill, disabled or elderly adults are not available or affordable?
Care facilities do not influence your decision to not look for work?

LFS
Provision; Part time job due to caring responsibilities 2013 16-120 16 120 Participant No Current 2013 No

I would like to ask you why you took a part-time rather than a full-time job.

May I just ask, was this because…

Part 1:
1 You were a student/you were at school?
2 You were ill or disabled? IHS
3 You could not find a full-time job?
4 You did not want a full-time job?

Part 2:
1 Suitable care services for children are not available or affordable
2 suitable care services for ill, disabled or elderly adults are not available or affordable
3 Care facilities do not influence your decision for working part time?

LFS
Provision; Unemployed due to caring responsibilities 2013 16-120 16 120 Participant No Current 2013 No

What was the main reason why you were not in paid employment or self-employed at that time?

1 Unemployed/looking for work
2 Student/training
3 Looking after family/home/children
4 Caring for a disabled or elderly person
5 Temporarily sick or disabled
6 Long term sick or disabled
7 Didn’t need employment
8 Retired
9 Made redundant
10 Other reason

LFS
Provision; Left work due to caring responsibilities 2013 16-120 16 120 Participant No Current 2013 No

May I just check, is the main reason you left because you were…

1 Looking after children or an adult in need of care
2 Some other personal or family reason?

LFS
Provision; Unemployed due to caring responsibilities 2013 16-120 16 120 Participant No Current 2013 No

What was the main reason why you were not in paid employment or self-employed at that time?

1 Unemployed/looking for work
2 Student/training
3 Looking after family/home/children
4 Caring for a disabled or elderly person
5 Temporarily sick or disabled
6 Long term sick or disabled
7 Didn’t need employment
8 Retired
9 Made redundant
10 Other reason

LFS
Provision; Unemployed due to caring responsibilities 2013 16-120 16 120 Participant No Current 2013 No

May I just ask, what is the MAIN reason that you are not in employment, education, or training?

1 in custody
2 caring for a dependant adult relative
3 pregnant or caring for own children
4 disability or ill health
5 doing unpaid/voluntary work
6 waiting to start a job that you already obtained, or a course on which you
have been accepted
7 taking a gap year before entering higher education
8 looking for work or a suitable course
9 You are a refugee or asylum seeker
10 any other reason

LFS
Provision; Part time job due to caring responsibilities 2019 16-120 16 120 Participant No Current 2019 No

I would like to ask you why you took a part-time rather than a full-time job. Was it because…

May I just ask, was this because…

Part 1:
You were a student/you were at school?
You were ill or disabled?
You could not find a full-time job? You did not want a full-time job?

Part 2:
Suitable care services for children are not available or affordable
suitable care services for ill, disabled or elderly adults are not available or affordable
Care facilities do not influence your decision for working part time?

LFS
Provision; Not looking for work due to caring responsibilities 2019 16-120 16 120 Participant No Current 2019 No

May I just check, was the main reason that you did not look for work because…

May I just ask, is this because suitable care services…

Were you caring for children below school age,
Were you caring for other children,,
Were you caring for a dependent adult relative, or some other reason?

Part 2:
for children are not available or affordable?
for ill, disabled or elderly adults are not available or affordable?
Care facilities do not influence your decision to not look for work?

LFS
Provision; Unemployed due to caring responsibilities 2019 16-120 16 120 Participant No Current 2019 No

What was the main reason why you were not in paid employment or self- employed at that time?

Unemployed/looking for work Student/training
Looking after family/home/children Caring for a disabled or elderly person Temporarily sick or disabled
Long term sick or disabled Didn’t need employment Retired
Made redundant
Other reason

LFS
Provision; Left work due to caring responsibilities 2019 16-120 16 120 Participant No Current 2019 No

May I just check, is the main reason you left [job] because you were…

Looking after children or an adult in need of care Some other personal or family reason?

LFS
Receipt; Receipt of benefits inc. carer's allowance 2018 16-120 16 120 Participant No Current 2018 No

Were you receiving any of these state benefits in your own right;, that is, where you were the named recipient?…

Universal credit?
Housing or Council Tax Reduction?
Tax credits?
Income support?
Job seeker’s allowance (including National Insurance Credits)? Sickness or disability benefits (including Personal Independence Payment or Employment and Support Allowance)?
Child benefit?
Pension benefits (including state pension or pension credit)? Carer’s allowance?
(Spontaneous only) Other?

LFS
Provision; Unemployed due to caring responsibilities 2018 16-120 16 120 Participant No Current 2018 No

May I just ask, what is the MAIN reason that you are not in employment, education, or training?

in custody
caring for a dependant adult relative
pregnant or caring for own children
disability or ill health
doing unpaid/voluntary work
waiting to start a job that you already obtained, or a course on which you have been accepted
taking a gap year before entering higher education
looking for work or a suitable course
You are a refugee or asylum seeker

LFS
Provision; Not looking for work due to caring responsibilities 2018 16-120 16 120 Participant No Current 2018 No

May I just check, was the main reason that you did not look for work because…

May I just ask, is this because suitable care services…

Part 1:
Were you caring for children below school age, Were you caring for other children,,
Were you caring for a dependent adult relative, or some other reason?

Part 2:
for children are not available or affordable?
for ill, disabled or elderly adults a

LFS
Provision; Unemployed due to caring responsibilities 2018 16-120 16 120 Participant No Current 2018 No

What was the main reason why you were not in paid employment or self-employed at that time?

Unemployed/looking for work Student/training
Looking after family/home/children Caring for a disabled or elderly person Temporarily sick or disabled
Long term sick or disabled Didn’t need employment Retired
Made redundant
Other reason

LFS
Provision; Reason receiving universal credit 2018 16-120 16 120 Participant No Past week 2018 No

(In the week ending Sunday the [date]) was the main reason you were receiving Universal Credit because you were……

Unemployed and looking for work,
Not working because you were sick, injured or disabled,
Not working because of being a lone parent for a child under 5,
Not working because of caring for someone who was sick or disabled, Working but entitled to Universal Credit on top of your earnings,
For some other reason?

LFS
Receipt; Receipt of benefits inc. carer's allowance 2017 16-120 16 120 Participant No Current 2017 No

Were you receiving any of these state benefits in your own right;, that is, where you were the named recipient?…

Universal credit?
Housing or Council Tax Reduction?
Tax credits?
Income support?
Job seeker’s allowance (including National Insurance Credits)? Sickness or disability benefits (including Personal Independence Payment or Employment and Support Allowance)?
Child benefit?
Pension benefits (including state pension or pension credit)? Carer’s allowance?
(Spontaneous only) Other?

LFS
Provision; Unemployed due to caring responsibilities 2017 16-120 16 120 Participant No Current 2017 No

What was the main reason why you were not in paid employment or self- employed at that time?

Unemployed/looking for work Student/training
Looking after family/home/children
Caring for a disabled or elderly person
Temporarily sick or disabled
Long term sick or disabled Didn’t need employment Retired
Made redundant
Other reason

LFS
Provision; Not looking for work due to caring responsibilities 2017 16-120 16 120 Participant No Past four weeks 2017 No

May I just check, what was the main reason you did not look for work (in the last 4 weeks)

May I just check, was the main reason that you did not look for work because…

May I just ask, is this because suitable care services…

Part 1:
Waiting for the results of an application for a job/being assessed by a training agent
Student
Looking after the family/home
Temporarily sick or injured Long-term sick or disabled Believe(s) no jobs available
Not yet started looking Do(does) not need employment Retired from paid work
Any other reason

Part 2:
Were you caring for children below school age, Were you caring for other children,,
Were you caring for a dependent adult relative, or some other reason?

Part 3:
for children are not available or affordable?
for ill, disabled or elderly adults are not available or affordable?
Care facilities do not influence your decision to not look for work?

LFS
Provision; Part time job due to caring responsibilities 2017 16-120 16 120 Participant No Current 2017 No

I would like to ask you why you took a part-time rather than a full-time job. Was it because…

May I just ask, was this because…

Part 1:
You were a student/you were at school?
You were ill or disabled?
You could not find a full-time job? You did not want a full-time job?

Part 2:
Suitable care services for children are not available or affordable
suitable care services for ill, disabled or elderly adults are not available or affordable
Care facilities do not influence your decision for working part time?

LFS
Provision; Left work due to caring responsibilities 2017 16-120 16 120 Participant No Current 2017 No

May I just check, is the main reason you left [last job] because you were…

Looking after children or an adult in need of care Some other personal or family reason?

LFS
Provision; Receipt of benefits inc. carer's allowance 2016 16-120 16 120 Participant No Current 2016 No

Were you receiving any of these state benefits in your own right;, that is, where you were the named recipient?…

Universal credit?
Housing or Council Tax Reduction?
Tax credits?
Income support?
Job seeker’s allowance (including National Insurance Credits)? Sickness or disability benefits (including Personal Independence Payment or Employment and Support Allowance)?
Child benefit?
Pension benefits (including state pension or pension credit)? Carer’s allowance?
(Spontaneous only) Other?

LFS
Provision; Unemployed due to caring responsibilities 2016 16-120 16 120 Participant No Current 2016 No

What was the main reason why you were not in paid employment or self-employed at that time?

Unemployed/looking for work Student/training
Looking after family/home/children
Caring for a disabled or elderly person
Temporarily sick or disabled
Long term sick or disabled Didn’t need employment Retired
Made redundant
Other reason

LFS
Provision; Left work due to caring responsibilities 2016 16-120 16 120 Participant No Current 2016 No

May I just check, is the main reason you left because you were…

Looking after children or an adult in need of care Some other personal or family reason?

LFS
Receipt; Universal credit due to caring responsibilities 2016 16-120 16 120 Participant No Current 2016 No

(In the week ending Sunday the [date]) was the main reason you were receiving Universal Credit because you were……

Unemployed and looking for work,
Not working because you were sick, injured or disabled,
Not working because of being a lone parent for a child under 5,
Not working because of caring for someone who was sick or disabled, Working but entitled to Universal Credit on top of your earnings,
For some other reason?

LFS
Provision; Unemployed due to caring responsibilities 2016 16-120 16 120 Participant No Current 2016 No

May I just ask, what is the MAIN reason that you are not in employment, education, or training?

in custody
caring for a dependant adult relative
pregnant or caring for own children
disability or ill health
doing unpaid/voluntary work
waiting to start a job that you already obtained, or a course on which you have been accepted
taking a gap year before entering higher education
looking for work or a suitable course
You are a refugee or asylum seeker
any other reason

LFS
Provision; Part time job due to caring responsibilities 2015 16-120 16 120 Participant No Current 2015 No

I would like to ask you why you took a part-time rather than a full-time job. Was it because…

May I just ask, was this because…

Part 1:
You were a student/you were at school?
You were ill or disabled?
You could not find a full-time job?
You did not want a full-time job?

Part 2:
Suitable care services for children are not available or affordable
suitable care services for ill, disabled or elderly adults are not available or affordable
Care facilities do not influence your decision for working part time?

LFS
Receipt; Receipt of carer's allowance 2022 16-120 16 120 Participant No Current 2022 No

Were you receiving any of these state benefits in your own right;, that is, where you were the named recipient?…

Universal credit?
Housing or Council Tax Reduction?
Tax credits?
Income support?
Job seeker’s allowance (including National Insurance Credits)? Sickness or disability benefits (including Personal Independence Payment or Employment and Support Allowance)?
Child benefit?
Pension benefits (including state pension or pension credit)? Carer’s allowance?
(Spontaneous only) Other?

LFS
Receipt; Receipt of disability allowances 2022 16-120 16 120 Participant No Specified time 2022 No

(In the week ending Sunday the [date]) were you claiming …

Employment and Support Allowance? Incapacity Benefit?
Severe Disablement Allowance? Personal Independence Payment? Disability Living Allowance? Attendance Allowance?
Statutory Sick Pay?
Industrial Injuries Disablement Benefit?
None of these?
(SPONTANEOUS) one of these/more than one of these but I don’t know which

LFS
Provision; Caring responsibilities - reasons why not looking for paid employment 2022 16-120 16 120 Participant No Current 2022 No

May I just check, was the main reason that you did not look for work because…

May I just ask, is this because suitable care services…

Responses for first question:
Were you caring for children below school age, Were you caring for other children,,
Were you caring for a dependent adult relative, or some other reason?

Responses for second question:
for children are not available or affordable?
for ill, disabled or elderly adults are not available or affordable?
Care facilities do not influence your decision to not look for work?

LFS
Provision; Caring responsibilities - reason for leaving job 2022 16-120 16 120 Participant No Current 2022 No

May I just check, is the main reason you left [job] because you were…

Looking after children or an adult in need of care Some other personal or family reason?

LFS
Provision; Caring responsibilities - reason for not being in employment 2022 16-120 16 120 Participant No Current 2022 No

What was the main reason why you were not in paid employment or self- employed at that time [if not in paid employment before starting current job]?

Unemployed/looking for work Student/training
Looking after family/home/children Caring for a disabled or elderly person Temporarily sick or disabled
Long term sick or disabled Didn’t need employment Retired
Made redundant
Other reason

LFS
Provision; Caring responsibilities - reason for not being in employment 2022 16-120 16 120 Participant No Current 2022 No

May I just ask, what is the MAIN reason that you are not in employment, education, or training?

in custody
caring for a dependant adult relative
pregnant or caring for own children
disability or ill health
doing unpaid/voluntary work
waiting to start a job that you already obtained, or a course on which you have been accepted
taking a gap year before entering higher education
looking for work or a suitable course
You are a refugee or asylum seeker
any other reason

LFS
Provision;Receipt; Reason receiving universal credit 2022 16-120 16 120 Participant No Specified time 2022 No

(In the week ending Sunday the [date]) was the main reason you were receiving Universal Credit because you were……

Unemployed and looking for work,
Not working because you were sick, injured or disabled,
Not working because of being a lone parent for a child under 5,
Not working because of caring for someone who was sick or disabled, Working but entitled to Universal Credit on top of your earnings,
For some other reason?

LFS
Receipt; Receipt of benefits inc. carer's allowance 2021 16-120 16 120 Participant No Current 2021 No

Were you receiving any of these state benefits in your own right;, that is, where you were the named recipient?…

Universal credit?
Housing or Council Tax Reduction?
Tax credits?
Income support?
Job seeker’s allowance (including National Insurance Credits)? Sickness or disability benefits (including Personal Independence Payment or Employment and Support Allowance)?
Child benefit?
Pension benefits (including state pension or pension credit)?
Carer’s allowance?
(Spontaneous only) Other?

LFS
Provision; Caring responsibilities limiting employment 2021 16-120 16 120 Participant No Current 2022 No

What was the main reason why you were not in paid employment or self- employed at that time?

May I just ask, is this because suitable care services…

Part 1:
Unemployed/looking for work Student/training
Looking after family/home/children
Caring for a disabled or elderly person
Temporarily sick or disabled
Long term sick or disabled Didn’t need employment Retired
Made redundant
Other reason

Part 2:
for children are not available or affordable?
for ill, disabled or elderly adults are not available or affordable
Care facilities do not influence your decision to not look for work?

LFS
Provision; Leaving job due to caring responsibilities 2021 16-120 16 120 Participant No Current 2021 No

May I just check, is the main reason you left [job] because you were…

Looking after children or an adult in need of care
Some other personal or family reason?

LFS
Provision; Caring reason not in paid employment 2021 16-120 16 120 Participant No Current 2021 No

What was the main reason why you were not in paid employment or self- employed at that time?

Unemployed/looking for work Student/training
Looking after family/home/children Caring for a disabled or elderly person Temporarily sick or disabled
Long term sick or disabled Didn’t need employment Retired
Made redundant
Other reason

LFS
Provision; Universal credit due to caring responsibilities 2021 16-120 16 120 Participant No Current 2021 No

(In the week ending Sunday the [date]) was the main reason you were receiving Universal Credit because you were……

Unemployed and looking for work,
Not working because you were sick, injured or disabled,
Not working because of being a lone parent for a child under 5,
Not working because of caring for someone who was sick or disabled, Working but entitled to Universal Credit on top of your earnings,
For some other reason?

LFS
Provision; Not in employment due to caring responsibilities 2021 16-120 16 120 Participant No Current 2021 No

May I just ask, what is the MAIN reason that you are not in employment, education, or training?

in custody
caring for a dependant adult relative
pregnant or caring for own children
disability or ill health
doing unpaid/voluntary work
waiting to start a job that you already obtained, or a course on which you have been accepted
taking a gap year before entering higher education
looking for work or a suitable course
You are a refugee or asylum seeker
any other reason

LFS
Receipt; Receipt of benefits inc. carer's allowance 2020 16-120 16 120 Participant No Current 2020 No

Were you receiving any of these state benefits in your own right;, that is, where you were the named recipient?…

Universal credit?
Housing or Council Tax Reduction?
Tax credits?
Income support?
Job seeker’s allowance (including National Insurance Credits)? Sickness or disability benefits (including Personal Independence Payment or Employment and Support Allowance)?
Child benefit?
Pension benefits (including state pension or pension credit)? Carer’s allowance?
(Spontaneous only) Other?

LFS
Provision; Unemployed due to caring responsibilities 2020 16-120 16 120 Participant No Current 2020 No

What was the main reason why you were not in paid employment or self- employed at that time?

Unemployed/looking for work Student/training
Looking after family/home/children Caring for a disabled or elderly person Temporarily sick or disabled
Long term sick or disabled Didn’t need employment Retired
Made redundant
Other reason

LFS
Provision; Not looking for work due to caring responsibilities 2020 16-120 16 120 Participant No Current 2020 No

May I just check, was the main reason that you did not look for work because…

May I just ask, is this because suitable care services…

Part 1:
Were you caring for children below school age, Were you caring for other children,,
Were you caring for a dependent adult relative, or some other reason?

Part 2:
for children are not available or affordable?
for ill, disabled or elderly adults are not available or affordable?
Care facilities do not influence your decision to not look for work?

LFS
Provision; Leaving job due to caring responsibilities 2020 16-120 16 120 Participant No Current 2020 No

May I just check, is the main reason you left [job] because you were…

Looking after children or an adult in need of care
Some other personal or family reason?

LFS
Provision; Unemployed due to caring responsibilities 2020 16-120 16 120 Participant No Current 2020 No

What was the main reason why you were not in paid employment or self- employed at that time?

Unemployed/looking for work Student/training
Looking after family/home/children Caring for a disabled or elderly person Temporarily sick or disabled
Long term sick or disabled Didn’t need employment Retired
Made redundant
Other reason

LFS
Provision; Unemployed due to caring responsibilities 2020 16-120 16 120 Participant No Current 2020 No

May I just ask, what is the MAIN reason that you are not in employment, education, or training?

in custody
caring for a dependant adult relative
pregnant or caring for own children
disability or ill health
doing unpaid/voluntary work
waiting to start a job that you already obtained, or a course on which you have been accepted
taking a gap year before entering higher education
looking for work or a suitable course
You are a refugee or asylum seeker
any other reason

LFS
Receipt; Receipt of benefits inc. carer's allowance 2019 16-120 16 120 Participant No Current 2019 No

Were you receiving any of these state benefits in your own right;, that is, where you were the named recipient?…

Universal credit?
Housing or Council Tax Reduction?
Tax credits?
Income support?
Job seeker’s allowance (including National Insurance Credits)? Sickness or disability benefits (including Personal Independence Payment or Employment and Support Allowance)?
Child benefit?
Pension benefits (including state pension or pension credit)? Carer’s allowance?
(Spontaneous only) Other?

LFS
Receipt; Receipt of benefits 2005 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 1 No

And are you/both currently receiving any of these? Which ones?

Incapacity Benefit
Disability Living Allowance
Severe Disability Allowance
Stautory Sick Pay
None of the benefits listed
Carers allowance
Other specific

GUSBC
Receipt; Receipt of benefits 2006 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 2 No

And are you (and your partner) currently receiving any of these? Which ones?

Incapacity Benefit
Disability Living Allowance
Severe Disability Allowance
Stautory Sick Pay
Carer’s Allowance
Any other benefit
None of these

GUSBC
Receipt; Receipt of benefits 2007 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 3 No

And are you (and your partner) currently receiving any of these? Which ones?

Incapacity Benefit
Disability Living Allowance
Severe Disability Allowance
Stautory Sick Pay
Carer’s Allowance
Any other benefit
None of these

GUSBC
Receipt; Receipt of benefits 2008 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 4 No

And are you (and your partner) currently receiving any of these? Which ones?

Incapacity Benefit
Disability Living Allowance
Severe Disability Allowance
Stautory Sick Pay
Carer’s Allowance
Any other benefit
None of these

GUSBC
Receipt; Receipt of benefits 2009 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 5 No

And are you (and your partner) currently receiving any of these? Which ones?

Incapacity Benefit
Disability Living Allowance
Severe Disability Allowance
Stautory Sick Pay
Carer’s Allowance
Any other benefit
None of these

GUSBC
Receipt; Receipt of benefits 2010 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 6 No

And are you (and your partner) currently receiving any of these? Which ones?

Incapacity Benefit
Disability Living Allowance
Severe Disability Allowance
Stautory Sick Pay
Carer’s Allowance
Any other benefit
None of these

GUSBC
Receipt; Receipt of benefits 2012 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 7 No

And are you (and your partner) currently receiving any of these? Which ones?

Incapacity Benefit
Disability Living Allowance
Severe Disability Allowance
Stautory Sick Pay
Carer’s Allowance
Any other benefit
None of these

GUSBC
Provision; Reason not in work inc. caring responsiblities 2012 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 7 No

What would you say are the main reasons why you are not currently looking for work?

Looking after family/home
2 Health problems
3 Studying
4 Difficulties with childcare
5 Difficulties finding job to fit around school hours
6 Caring for other family members
94 Other specific

GUSBC
Receipt; Child previously 'looked after' 2012 16-120 16 120 Participant No Past year Birth Cohort 1 & Child Cohort Sweep 7 No

Has ^childname spent any time ‘looked after’, or on a legal supervision requirement, either
whilst living at home or with someone else, as a result of a Children’s Hearing or a Court
proceeding, since ^month_and_year_last_interview?

Yes
No
Don’t know

GUSBC
Receipt; Receipt of benefits 2014 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 8 No

And are you (and your partner) currently receiving any of these? Which ones?

Employment and Support Allowance
Disability Living Allowance
Severe Disability Allowance
Personal Independence Payment
Statutory Sick Pay
Carer’s Allowance
Any other benefit for people with disabilities (PLEASE SPECIFY)
None of these

GUSBC
Receipt; Child previously 'looked after' 2017 16-120 16 120 Participant No Past year Birth Cohort 1 & Child Cohort Sweep 9 No

Has ^childname spent any time ‘looked after’, or on a legal supervision requirement, either whilst living at home or with someone else, as a result of a Children’s Hearing or a Court proceeding, since ^month_and_year_last_interview?

Yes
No
Don’t know

GUSBC
Receipt; Receipt of benefits 2017 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 9 No

And are you (and your partner) currently receiving any of these? Which ones?

Employment and Support Allowance
Disability Living Allowance
Severe Disability Allowance
Personal Independence Payment
Statutory Sick Pay
Carer’s Allowance
Any other benefit for people with disabilities (PLEASE SPECIFY)
None of these

GUSBC
Receipt; Receipt of benefits 2019 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 10 No

And are you and your partner currently receiving any of these? Which ones?

Employment and Support Allowance
Disability Living Allowance
Personal Independence Payment
Statutory Sick Pay
Carer’s Allowance
Attendance allowance
Severe disablement allowance
Incapacity benefit
Industrial Injuries Disablement Benefit
Any other benefit for people with disabilities (PLEASE SPECIFY)
None of these

GUSBC
Receipt; Child previously 'looked after' 2019 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 10 No

{Ask if cohort member has moved house since last interview}

What were the main reasons ^childname moved?

Parent/carer job change/to be nearer work
Parental separation/relationship breakdown
Parent/carer moved in with new partner
Study child previously lived with other parent
Study child was previously in care/looked after (e.g. by foster family or relatives, or local authority)
Parent/carer wanted place of their own (used to live with others) We wanted to buy

GUSBC
Receipt; Child previously 'looked after' 2019 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 10 No

Has ^childname spent any time ‘looked after’, or on a legal supervision requirement, either whilst living at home or with someone else, as a result of a Children’s Hearing or a Court proceeding, since ^month_and_year_last_interview?

Yes
No
Don’t know

GUSBC
Provision; Young carer and hours caring 2019 16-120 16 120 Participant No Current Birth Cohort 1 & Child Cohort Sweep 10 No

Does ^Childname look after, or give any regular help or support to, family members, friends, neighbours or others because of either a long-term physical or mental health condition or disability; or problems related to old age?

Approximately, how many hours each week does ^he provide help?

Part 1:
Yes
No

Part 2:
Under 4 hours a week
4 – 19 hours a week
20 – 34 hours a week
35 – 49 hours a week
50 or more hours a week
Varies too much to say (spontaneous answer only)

GUSBC
Receipt; Receipt of benefits 2011 16-120 16 120 Participant No Current Birth Cohort 2 & Child Cohort Sweep 1 No

And are you (and your partner) currently receiving any of these? Which ones?

Employment and Support Allowance
Disability Living Allowance
Severe Disability Allowance
Personal Independence Payment
Statutory Sick Pay
Carer’s Allowance
Any other benefit for people with disabilities (PLEASE SPECIFY)
None of these

GUSBC
Receipt; Receipt of benefits 2013 16-120 16 120 Participant No Current Birth Cohort 2 & Child Cohort Sweep 2 No

And are you (and your partner) currently receiving any of these? Which ones?

Employment and Support Allowance
Disability Living Allowance
Severe Disability Allowance
Personal Independence Payment
Statutory Sick Pay
Carer’s Allowance
Any other benefit for people with disabilities (PLEASE SPECIFY)
None of these

GUSBC
Receipt; Child previously 'looked after' 2015 16-120 16 120 Participant No Past year Birth Cohort 2 & Child Cohort Sweep 3 No

Finally, has ^childname spent any time ‘looked after’, or on a legal supervision requirement, either whilst living at home or with someone else, as a result of a Children’s Hearing or a Court proceeding, since ^month_year_last_interview?

Yes
No
Don’t know

GUSBC
Receipt; Receipt of benefits 2015 16-120 16 120 Participant No Current Birth Cohort 2 & Child Cohort Sweep 3 No

And are you (and your partner) currently receiving any of these? Which ones?

Employment and Support Allowance
Disability Living Allowance
Severe Disability Allowance
Personal Independence Payment
Statutory Sick Pay
Carer’s Allowance
Any other benefit for people with disabilities (PLEASE SPECIFY)
None of these

GUSBC
Provision; Not working due to looking after dependent 2006 16-120 16 120 Participant Yes Current 2006 Sweep No

The total number of hours you work per week on average is less than 30 hours.
What is your main reason for working less than 30 hours a week?

Undergoing education or training
Personal illness or disability
Want to work more hours but cannot find a job or work for more hours
Do not want to work more hours
Considers number of hours in job(s) as full-time
Housework, looking after children or other dependant
Other reason

GHS
Receipt; Receipt of care component of disability allowance. 2006 16-120 16 120 Participant Yes Current 2006 Sweep No

Ask if receiving CARE component of Disability Living Allowance
(DisBen = 1)

WhoReCar Whom do you receive it for?

IF CURRENT HOUSEHOLD MEMBER, ENTER PERSON NUMBER
OTHERWISE ENTER 97

GHS
Receipt; Receipt of carer's allowance etc. 2006 16-120 16 120 Participant Yes Current 2006 Sweep No

Looking at this card, are you at present receiving any state benefits in your own right: that is, where you are the named recipient?

Child Benefit
Guardian’s Allowance
Carer’s Allowance
Retirement pension (National Insurance), or Old Person’s pension
Widow’s pension, Bereavement Allowance or Widowed Parents (formerly Widowed Mother’s) Allowance
War Disablement Pension or War Widow’s/Widower’s Pension
(and any related allowances)
Severe Disablement Allowance
None of these

GHS
Receipt; Receipt of care component of disability allowance. 2006 16-120 16 120 Participant Yes Current 2006 Sweep No

And looking at this card, are you at present receiving any of the state benefits shown on this card – either in your own right, or on behalf of someone else in the household?

Care component of Disability Living Allowance
Mobility component of Disability Living Allowance
Attendance Allowance
None of these

GHS
Provision; Unpaid help given to non-household members 2006 16-120 16 120 Participant Yes Past year 2006 Sweep No

Now I’d like to talk about any unpaid help you may have given to people who do not live with you. In the past 12 months have you given any unpaid help, such as providing transport or running errands? For example, cooking or shopping. Please do not count any help you gave through a group, club or organisation.

Yes
No

GHS
Provision; Unpaid help given to non-household members - frequency 2006 16-120 16 120 Participant Yes Past year 2006 Sweep No

Thinking about the unpaid help you have mentioned, how often would you say you give this kind of help?

Daily
Every week (not every day)
Several times a month (not every week)
Once a month
At least once a year (less than once a month)
Never

GHS
Provision; Individuals receiving care more than once a week by age & freq. of care 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Individuals receiving care more than once a week by age and frequency of care

Data collected under the following data items:
Age
0-15
16-24
25-34
35-44
45-54
55-59
60-64
65-74
75-84
85+
All individuals receiving care

Response scale for all data items:
Frequency of care received by all individuals
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
All
Sample size

FRS
Provision; Individuals receiving informal care more than once a week by source of income & gender 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Individuals receiving informal care more than once a week by main source of total weekly household income and gender

Data divided into the following data items:
Main source of household income
Wages and salaries
Self-employment income
Investments
Tax Credits
State Pension plus any IS/PC1,2
Private pensions
Disability benefits
Other benefits
Other sources
All
Sample size

Response scale for all data items:
Individuals receiving care:
-Male
-Female
-All

Individuals not receiving care
-Male
-Female
-All

All individuals
-Male
-Female
-All

FRS
Provision; Informal carers by age 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Informal carers by age

Data items collected annually

Response scale for all data items:
Working age
State Pension age
All Adults
Children
All Individuals

FRS
Provision; Informal carers by gender 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Informal carers by gender

Data items collected annually

Response scale for all data items:
Male
Female
All individuals

FRS
Provision; Percentage of individuals providing informal care by age & gender 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Percentage of individuals providing informal care by age and gender

Data collected under the following data items:
Age
Under 16
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+
All

Response scale for all data items:
Male
Female
All

FRS
Provision; Informal carers by relationship to person cared for 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Informal carers by relationship to person being cared for

Data collected under the following data items:
Relationship
Household member
Parent
Spouse/Civil partner
Cohabitee
Son/Daughter
Other relative
Non-relative
Non-household member
Parent
Son/Daughter
Other relative
Other

Response scale for all data items:
Number of carers (thousands)

FRS
Provision; Informal carers & non-carers aged below 65 in work by employment status 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Adult informal carers and non-carers aged below 65 in work by employment status

Data collected under the following data items:
Employment status
Employee – full time
Employee – part time
Self-employed – full time
Self-employed – part time
All

Response scale for all data items:
Number of adults (millions)
-carers
-non-carers
-all adults

Percentage of adults aged below 65 in work
-carers
-non-carers
-all adults

FRS
Provision; Percentage of individuals receiving informal care by age & gender 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Percentage of individuals receiving informal care by age and gender

Data collected under the following data items:
Age
Under 16
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+
All

Response scale for all data items:
-Male
-Female
-All

FRS
Provision; Benefit units by state support receipt & region/country 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Benefit units by state support receipt and region/country

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
North East
North West
Yorkshire and the Humber
East Midlands
West Midlands
East of England

FRS
Provision; Benefit units by state support receipt & benefit unit type 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Benefit units by state support receipt and benefit unit type

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Pensioner couple
Pensioner couple married or civil partnered
Pensioner couple cohabiting
Single male pensioner
Single female pensioner
Couple with children
Couple with children married or civil partnered
Couple with children cohabiting
Couple without children
Couple without children married or civil partnered
Couple without children cohabiting

FRS
Provision; Benefit units by state support receipt & ethnic group 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Benefit units by state support receipt and ethnic group of head, average of 2016/17, 2017/18 and 2018/19

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
White
Mixed/ Multiple ethnic groups
Asian/ Asian British
Indian
Pakistani
Bangladeshi

FRS
Provision; Benefit units by state support receipt & age 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Benefit units by state support receipt and age of head

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Age of head
-16-24
-25-34
-35-44
-45-54
-55-59
-60-64
-65-74
-75-84
-85+

FRS
Provision; Benefit units by state support receipt & tenure 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Benefit units by state support receipt and tenure

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
All Owners
Owned outright
Buying with a mortgage
Social renting sector
Private renting sector

FRS
Provision; Benefit units by state support receipt & economic status 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Benefit units by state support receipt and economic status

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
One or more full-time self-employed
Single or couple, all in full-time work
Couple, one in full-time work, one in part-time work
Couple, one in full-time work, one not working
No full-time work, one or more part-time work
Workless, one or more State Pension age
Workless, one or more unemployed
Workless, other inactive

FRS
Provision; Informal carers by gender, age & no. of hours per week providing care 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Adult informal carers by gender, age and number of hours per week providing care

Data collected under the following data items:
Percentage of male adult carers
Age
16-24
25-34
35-44
45-54
55-59
60-64
65-74
75+
All male carers

Percentage of male adult carers
Age
16-24
25-34
35-44
45-54
55-59
60-64
65-74
75+
All female carers

Response scale for all data items:
“Less than 5 hours”
“5 but less than 20 hours”
“20 but less than 35 hours”
“35 but less than 50 hours”
“50 or more hours ”
“Varies, less than 35 hours”
“Varies, more than 35 hours”
Sample size (=100%)

FRS
Provision; Informal carers by relationship to person cared for & whether living in or outside household 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Informal carers by relationship to person being cared for and whether living in or outside the household

Data collected under the following data items:
Person cared for
Household member
Parent
Spouse/civil partner
Cohabitee
Son/Daughter
Brother/Sister
Other relative
Non-relative

Non-household member
Parent
Spouse/civil partner
Son/Daughter
Other relative
Friend/neighbour
Client of Voluntary Group
Other

More than 1 person cared for
inside of Household
outside of Household
both inside & outside of Household

Sample size (=100%)

Response scale for all data items:
-Male
-Female
-All informal carers

FRS
Provision; Informal carers by employment status & gender 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Adult informal carers by employment status and gender

Data collected under the following data items:
Employment status

All Employees
full time
part time

All Self employed
full time
part time

All in employment
full time
part time

ILO unemployed

Retired
Student
Looking after family/home
Permanently sick/disabled
Temporarily sick/disabled
Other inactive

Sample size (=100%)

Response scale for all data items:
Adult carers
-Male
-Female
-All adult carers

The same is then collected for percentages.

FRS
Provision; Informal carers by gender, main source of income & hours caring 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Informal carers by gender, main source of total weekly household income and hours caring

Data collected under the following data items:
Main source of household income

Wages and salaries
Self employment income
Investments
Tax Credits
Retirement Pension plus any IS/PC
Other pensions
Social Security – disability benefits
Other Social Security benefits
Other sources

Sample size (=100%)

Response scale for all data items:
“Less than 5 hours”
“5 but less than 20 hours”
“20 but less than 35 hours”
“35 but less than 50 hours”
“50 or more hours ”
“Varies, less than 35 hours”
“Varies, more than 35 hours”
All male carers
All female carers
All carers

FRS
Provision; Individuals receiving care by gender, age & freq. of care 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Individuals receiving care by gender, age and frequency of care

Data collected under the following data items:
Age
0-15
16-24
25-34
35-44
45-54
55-59
60-64
65-74
75-84
85+

Response scale for all data items:
Frequency of care received by males
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
Sample size (=100%)

Frequency of care received by females
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
Sample size (=100%)

Percentage of individuals
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
Sample size (=100%)

FRS
Provision; Individuals receiving care by source of household income & gender 2012 0-120 0 120 Data manager No Quarterly FRS 2012/13 No

Individuals receiving care by main source of total weekly household income and gender

Data collected under the following data items:
Main source of household income
Wages and salaries
Self employment income
Investments
Tax Credits
Retirement Pension plus any IS/PC
Other pensions
Social Security – disability benefits
Other Social Security benefits
Other sources

Sample size (=100%)

Response scale for all data items:
Individuals receiving care only
-Male
-Female
-All

All individuals
-Male
-Female
-All

FRS
Provision; Percentage of people providing informal care by age & gender 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Percentage of people providing informal care by age and gender

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all items:
Percentage of people:
-All
-Male
-Female

Millions of informal carers:
-All
-Males
-Females

FRS
Provision; Informal carers by, gender, age & no. of hours providing care 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Adult informal carers by, gender, age and number of hours per week providing care

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
0-4 hours
5-19 hours
20-34 hours
Varies less than 35 hours
35-49 hours
50 or more hours
Varies, 35 or more hours
All
Sample size

FRS
Provision; Informal carers by employment status & gender 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Adult informal carers by employment status and gender

Data items included under this category include:

All in employment
-full-time
-part time

All employees
-full-time
-part time

All self-employed
-full-time
-part time

Unemployed

Retired
Other economically inactive
-student
-looking after family/home
-permanently sick/disabled
-temporarily sick/disabled
-other inactive

All

Sample size

Response scale for all items:
All adult informal carers
-Males
-Females
All adults
-Males
-Females

FRS
Provision; Informal carers by source of weekly income 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Adult informal carers by main source of total weekly household income

Data items included under this category include:
Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC2,3
Non-state pensions
Disability benefits
Other benefits
Other sources

All

Sample size

Response scale for all items:
All adult
-Males
-Females
Number of hours per week
-0-4 hours
-5-19 hours
-20-34
-Varies, less than 35 hours
-35-49 hours
-35-49 hours
-50 or more hours
-Varies, more than 35 hours

FRS
Provision; Informal carers by gender, age & weekly income 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Adult informal carers by gender, age and net individual weekly income

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
Net weekly income
-than £50
-£50-£99
-£100-£149
-£150-£199
-£200-£249
-£250-£299
-£300-£399
-£400-£499
-£500 or more
-All
-Sample size

FRS
Provision; Informal carers by relationship to person cared for & whether living in or outside household 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Informal carers by relationship to person being cared for and whether living in or outside the household

Data items included under this category include:
Person cared for:
Household member
-Parent
-Spouse/civil partner
-Cohabitee
-Son/Daughter
-Brother/Sister
-Other relative
-Non-relative

Non-household member
-Parent
-Spouse/civil partner
-Son/Daughter
-Other relative
-Non-relative
-Friend/neighbour
-Client of Voluntary Group
-Other

More than 1 person cared for (data taken for all informal
-Inside household
-Outside household
-Both inside and outside household

Sample size

All care recipients
-Parent
-Spouse/civil partner/cohabitee
-Son/Daughter
-Other relative
-Non-relative
-More than 1 person

Response scale for first sets of data items:
-All informal carers
-Male
-Female

Response scale for last set of data items:
-inside household
-outside household

FRS
Provision; Percentage of people receiving informal care by age & gender 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Percentage of people receiving informal care by age and gender, 2014/15:

Data items included under this category include:
All people receiving care
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
-All
-Males
-Females

FRS
Provision; People receiving care at least once a week by age & freq. of care 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

People receiving care at least once a week by age and frequency of care

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
All
Sample size

FRS
Provision; People receiving informal care more than once a week by source of income & gender 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

People receiving informal care more than once a week by main source of total household income and gender, 2014/15:

Data items included under this category include:
Main source of income

Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC3,
Non-state pensions
Disability benefits
Other benefits
Other sources
All
Sample size

Response scale for all data items:
All people:
-All
-Male
-Female
People receiving care:
-All
-Male
-Female
People not receiving care:
-All
-Male
-Female

FRS
Provision; Benefit units by state support receipt & region/country 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Benefit units by state support receipt and region/country

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
United Kingdom
England
Wales
Scotland
Northern Ireland
Great
Britain
North East
North West
Yorkshire and the Humber
East Midlands
West Midlands
East
London
Inner London
Outer London
South East
South West

FRS
Provision; Benefit units by state support receipt & benefit unit type 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Benefit units by state support receipt and benefit unit type

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Pensioner couple
Pensioner couple married or civil partnered
Pensioner couple cohabiting
Single male pensioner
Single female pensioner
Couple with children
Couple with children married or civil partnered
Couple with children cohabiting
Couple without children
Couple without children married or civil partnered
Couple without children cohabiting
Single with children
Single male without children
Single female without children

FRS
Provision; Benefit units by state support receipt & ethnic group of head 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Benefit units by state support receipt and ethnic group of head, average of 2016/17, 2017/18 and 2018/19

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
White
Mixed/ Multiple ethnic groups
Asian/ Asian British
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
Black/ African/ Caribbean/ Black British
Other ethnic group

FRS
Provision; Benefit units by state support receipt & age of head 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Benefit units by state support receipt and age of head

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Age of head
-16-24
-25-34
-35-44
-45-54
-55-59
-60-64
-65-74
-75-84
-85+

FRS
Provision; Benefit units by state support receipt & tenure 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Benefit units by state support receipt and tenure

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
All Owners
Owned outright
Buying with a mortgage
Social renting sector
Private renting sector

FRS
Provision; Benefit units by state support receipt & economic status 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Benefit units by state support receipt and economic status

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
One or more full-time self-employed
Single or couple, all in full-time work
Couple, one in full-time work, one in part-time work
Couple, one in full-time work, one not working
No full-time work, one or more part-time work
Workless, one or more State Pension age
Workless, one or more unemployed
Workless, other inactive

FRS
Provision; Informal carers by, gender, age & no. of hours providing care 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Adult informal carers by gender, age and number of hours per week providing care

Data items are as follows:
All male carers:
Age
16-24
25-34
35-44
45-54
55-59
60-64
65-74
75+

All female carers:
Age
16-24
25-34
35-44
45-54
55-59
60-64
65-74
75+

All carers:
Age
16-24
25-34
35-44
45-54
55-59
60-64
65-74
75+

Response scale for all data items:
0-4 hours
5-19 hours
20-34 hours
35-49 hour
50 or more hours
Varies, less than 35 hours
Varies, more than 35 hours
All
Sample size

FRS
Provision; Informal carers by relationship to person cared for & whether living in or outside household 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Informal carers by relationship to person being cared for and whether living in or outside the household United Kingdom, 2013/14

Data recorded under the following data items:
Person cared for
Household member
Parent
Spouse/civil partner
Cohabitee
Son/Daughter
Brother/Sister
Other relative
Non-relative
Non-household member
Parent
Spouse/civil partner
Son/Daughter
Other relative
Friend/neighbour
Client of Voluntary Group
Other
More than 1 person cared for
inside of Household
outside of Household
both inside & outside of Household
All
Sample size

Response scale for all data items:
Male
Female
All informal carers

FRS
Provision; Informal carers by employment status & gender 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Adult informal carers by employment status and gender United Kingdom

Data collected under the following data items:
Employment status
All employees
full-time
part-time
All self-employed
full-time
part-time
All in employment
full-time
part-time
ILO unemployed
Retired
Student
Looking after family/home
Permanently sick/disabled
Temporarily sick/disabled
Other inactive
All
Sample size

Response scale for all data items:
Adult carers
-Male
-Female
-All adult carers

All adults
-Male
-Female
-All adults

FRS
Provision; Informal carers by source of weekly income, hours caring & gender 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Informal carers by main source of total weekly household income, hours caring and gender

Data collected under the following items:
Main source of household income
Wages and salaries
Self-employment income
Investments
Tax Credits
State Pension plus any IS/PC1,2
Private pensions
Disability benefits
Other benefits
Other sources
All
Sample size

Response scale for all data items:
0-4 hours
5-19 hours
20-34 hours
35-49 hour
50 or more hours
Varies, less than 35 hours
Varies, more than 35 hours
All male carers
All female carers
All carers

FRS
Provision; Informal carers by gender, age & weekly income 2013 0-120 0 120 Data manager No Quarterly FRS 2013/14 No

Adult informal carers by gender, age and net individual weekly income

Data collected under the following data items:
Age
16-34
35-44
45-54
55-59
60-64
65-74
75+
All male carers
Age
16-34
35-44
45-54
55-59
60-64
65-74
75+
All female carers
Age
16-34
35-44
45-54
55-59
60-64
65-74
75+
All carers

Response scale for all items:
Net weekly income
-less than £50
-£50-£99
-£100-£149
-£150-£199
-£200-£249
-£250-£299
-£300 or more.
-All
-Sample size”

FRS
Provision; Benefit units by state support receipt & age of head 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Benefit units by state support receipt and age of head

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Age of head
-16-24
-25-34
-35-44
-45-54
-55-59
-60-64
-65-74
-75-84
-85+

FRS
Provision; Benefit units by state support receipt & tenure 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Benefit units by state support receipt and tenure

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
All Owners
Owned outright
Buying with a mortgage
Social renting sector
Private renting sector

FRS
Provision; Benefit units by state support receipt & tenure 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Benefit units by state support receipt and tenure

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
One or more full-time self-employed
Single or couple, all in full-time work
Couple, one in full-time work, one in part-time work
Couple, one in full-time work, one not working
No full-time work, one or more part-time work
Workless, one or more State Pension age
Workless, one or more unemployed
Workless, other inactive

FRS
Provision; Informal carers by gender 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Informal carers by gender

Data items recorder yearly

Response scale for all data items:
-all
-Males
Females

FRS
Provision; Percentage of people providing informal care by age & gender 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Percentage of people providing informal care by age and gender

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all items:
Percentage of people:
-All
-Male
-Female

Millions of informal carers:
-All
-Males
-Females

FRS
Provision; Informal carers by, gender, age & no. of hours providing care 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Adult informal carers by, gender, age and number of hours per week providing care

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
0-4 hours
5-19 hours
20-34 hours
Varies less than 35 hours
35-49 hours
50 or more hours
Varies, 35 or more hours
All
Sample size

FRS
Provision; Informal carers by employment status & gender 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Adult informal carers by employment status and gender

Data items included under this category include:

All in employment
-full-time
-part time

All employees
-full-time
-part time

All self-employed
-full-time
-part time

Unemployed

Retired
Other economically inactive
-student
-looking after family/home
-permanently sick/disabled
-temporarily sick/disabled
-other inactive

All

Sample size

Response scale for all items:
All adult informal carers
-Males
-Females
All adults
-Males
-Females

FRS
Provision; Informal carers by source of weekly income 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Adult informal carers by main source of total weekly household income

Data items included under this category include:
Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC2,3
Non-state pensions
Disability benefits
Other benefits
Other sources

All

Sample size

Response scale for all items:
All adult
-Males
-Females
Number of hours per week
-0-4 hours
-5-19 hours
-20-34
-Varies, less than 35 hours
-35-49 hours
-35-49 hours
-50 or more hours
-Varies, more than 35 hours

FRS
Provision; Informal carers by gender, age & net weekly income 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Adult informal carers by gender, age and net individual weekly income

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
Net weekly income
-than £50
-£50-£99
-£100-£149
-£150-£199
-£200-£249
-£250-£299
-£300-£399
-£400-£499
-£500 or more
-All
-Sample size

FRS
Provision; Informal carers by relationship to person cared for & whether living in or outside household 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Informal carers by relationship to person being cared for and whether living in or outside the household

Data items included under this category include:
Person cared for:
Household member
-Parent
-Spouse/civil partner
-Cohabitee
-Son/Daughter
-Brother/Sister
-Other relative
-Non-relative

Non-household member
-Parent
-Spouse/civil partner
-Son/Daughter
-Other relative
-Non-relative
-Friend/neighbour
-Client of Voluntary Group
-Other

More than 1 person cared for (data taken for all informal
-Inside household
-Outside household
-Both inside and outside household

Sample size

All care recipients
-Parent
-Spouse/civil partner/cohabitee
-Son/Daughter
-Other relative
-Non-relative
-More than 1 person

Response scale for first sets of data items:
-All informal carers
-Male
-Female

Response scale for last set of data items:
-inside household
-outside household

FRS
Provision; Percentage of people receiving informal care by age & gender 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Percentage of people receiving informal care by age and gender, 2015/16:

Data items included under this category include:
All people receiving care
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
-All
-Males
-Females

FRS
Provision; People receiving care at least once a week by age & freq. of care 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

People receiving care at least once a week by age and frequency of care

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
All
Sample size

FRS
Provision; People receiving informal care more than once a week by source of income & gender 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

People receiving informal care more than once a week by main source of total household income and gender, 2015/16:

Data items included under this category include:
Main source of income

Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC3,
Non-state pensions
Disability benefits
Other benefits
Other sources
All
Sample size

Response scale for all data items:
All people:
-All
-Male
-Female
People receiving care:
-All
-Male
-Female
People not receiving care:
-All
-Male
-Female

FRS
Provision; Benefit units by state support receipt & region/country 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Benefit units by state support receipt and region/country

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
United Kingdom
England
Wales
Scotland
Northern Ireland
Great
Britain
North East
North West
Yorkshire and the Humber
East Midlands
West Midlands
East
London
Inner London
Outer London
South East
South West

FRS
Provision; Benefit units by state support receipt & benefit unit type 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Benefit units by state support receipt and benefit unit type

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Pensioner couple
Pensioner couple married or civil partnered
Pensioner couple cohabiting
Single male pensioner
Single female pensioner
Couple with children
Couple with children married or civil partnered
Couple with children cohabiting
Couple without children
Couple without children married or civil partnered
Couple without children cohabiting
Single with children
Single male without children
Single female without children

FRS
Provision; Benefit units by state support receipt & ethnic group of head 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Benefit units by state support receipt and ethnic group of head, average of 2016/17, 2017/18 and 2018/19

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
White
Mixed/ Multiple ethnic groups
Asian/ Asian British
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
Black/ African/ Caribbean/ Black British
Other ethnic group

FRS
Provision; Benefit units by state support receipt & age of head 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Benefit units by state support receipt and age of head

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Age of head
-16-24
-25-34
-35-44
-45-54
-55-59
-60-64
-65-74
-75-84
-85+

FRS
Provision; Benefit units by state support receipt & tenure 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Benefit units by state support receipt and tenure

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
All Owners
Owned outright
Buying with a mortgage
Social renting sector
Private renting sector

FRS
Provision; Benefit units by state support receipt & economic status 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Benefit units by state support receipt and economic status

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
One or more full-time self-employed
Single or couple, all in full-time work
Couple, one in full-time work, one in part-time work
Couple, one in full-time work, one not working
No full-time work, one or more part-time work
Workless, one or more State Pension age
Workless, one or more unemployed
Workless, other inactive

FRS
Provision; Informal carers by gender 2014 0-120 0 120 Data manager No Quarterly FRS 2014/15 No

Informal carers by gender

Data items recorder yearly

Response scale for all data items:
-all
-Males
Females

FRS
Provision; People receiving care by source weekly income & gender 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

People receiving care by main source of total weekly household income and gender, 2017/18:

Data items included under this category include:
Main source of income

Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC3,
Non-state pensions
Disability benefits
Other benefits
Other sources
All
Sample size

Response scale for all data items:
All people:
-All
-Male
-Female
People receiving care:
-All
-Male
-Female
People not receiving care:
-All
-Male
-Female

FRS
Provision; Benefit units by state support receipt & region/country 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Benefit units by state support receipt and region/country

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
United Kingdom
England
Wales
Scotland
Northern Ireland
Great
Britain
North East
North West
Yorkshire and the Humber
East Midlands
West Midlands
East
London
Inner London
Outer London
South East
South West

FRS
Provision; Benefit units by state support receipt & benefit type 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Benefit units by state support receipt and benefit unit type

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Pensioner couple
Pensioner couple married or civil partnered
Pensioner couple cohabiting
Single male pensioner
Single female pensioner
Couple with children
Couple with children married or civil partnered
Couple with children cohabiting
Couple without children
Couple without children married or civil partnered
Couple without children cohabiting
Single with children
Single male without children
Single female without children

FRS
Provision; Benefit units by state support receipt & ethnic group of head 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Benefit units by state support receipt and ethnic group of head, average of 2016/17, 2017/18 and 2018/19

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
White
Mixed/ Multiple ethnic groups
Asian/ Asian British
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
Black/ African/ Caribbean/ Black British
Other ethnic group

FRS
Provision; Benefit units by state support receipt & age of head 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Benefit units by state support receipt and age of head

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Age of head
-16-24
-25-34
-35-44
-45-54
-55-59
-60-64
-65-74
-75-84
-85+

FRS
Provision; Benefit units by state support receipt & tenure 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Benefit units by state support receipt and tenure

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
All Owners
Owned outright
Buying with a mortgage
Social renting sector
Private renting sector

FRS
Provision; Benefit units by state support receipt & economic status 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Benefit units by state support receipt and economic status

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
One or more full-time self-employed
Single or couple, all in full-time work
Couple, one in full-time work, one in part-time work
Couple, one in full-time work, one not working
No full-time work, one or more part-time work
Workless, one or more State Pension age
Workless, one or more unemployed
Workless, other inactive

FRS
Provision; Percentage of people providing informal care by gender 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Percentage of people providing informal care by gender

Data items recorder yearly

Response scale for all data items:
-all
-Males
Females

FRS
Provision; Percentage of people providing informal care by age & gender 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Percentage of people providing informal care by age and gender

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all items:
Percentage of people:
-All
-Male
-Female

Millions of informal carers:
-All
-Males
-Females

FRS
Provision; Informal carers by, age & no. of hours providing care 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Adult informal carers by, age and number of hours per week providing care

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
0-4 hours
5-19 hours
20-34 hours
Varies less than 35 hours
35-49 hours
50 or more hours
Varies, 35 or more hours
All
Sample size

FRS
Provision; Informal carers by employment status & gender 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Adult informal carers by employment status and gender

Data items included under this category include:

All in employment
-full-time
-part time

All employees
-full-time
-part time

All self-employed
-full-time
-part time

Unemployed

Retired
Other economically inactive
-student
-looking after family/home
-permanently sick/disabled
-temporarily sick/disabled
-other inactive

All

Sample size

Response scale for all items:
All adult informal carers
-Males
-Females
All adults
-Males
-Females

FRS
Provision; Informal carers by source of weekly income 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Adult informal carers by main source of total weekly household income

Data items included under this category include:
Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC2,3
Non-state pensions
Disability benefits
Other benefits
Other sources

All

Sample size

Response scale for all items:
All adult
-Males
-Females
Number of hours per week
-0-4 hours
-5-19 hours
-20-34
-Varies, less than 35 hours
-35-49 hours
-35-49 hours
-50 or more hours
-Varies, more than 35 hours

FRS
Provision; Informal carers by gender, age & weekly income 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Adult informal carers by gender, age and net individual weekly income

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
Net weekly income
-than £50
-£50-£99
-£100-£149
-£150-£199
-£200-£249
-£250-£299
-£300-£399
-£400-£499
-£500 or more
-All
-Sample size

FRS
Provision; Who informal carers care for by gender 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

Who informal carers care for by gender, 2016/17:

Data items included under this category include:
Person cared for:
Household member
-Parent
-Spouse/civil partner
-Cohabitee
-Son/Daughter
-Brother/Sister
-Other relative
-Non-relative

Non-household member
-Parent
-Spouse/civil partner
-Son/Daughter
-Other relative
-Non-relative
-Friend/neighbour
-Client of Voluntary Group
-Other

More than 1 person cared for (data taken for all informal
-Inside household
-Outside household
-Both inside and outside household

Sample size

All care recipients
-Parent
-Spouse/civil partner/cohabitee
-Son/Daughter
-Other relative
-Non-relative
-More than 1 person

Response scale for first sets of data items:
-All informal carers
-Male
-Female

Response scale for last set of data items:
-inside household
-outside household

FRS
Provision; People receiving care by age & gender 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

People receiving care by age and gender, 2016/17

Data items included under this category include:
All people receiving care
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
-All
-Males
-Females

FRS
Provision; People receiving care at least once a week by age & freq. of care 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

People receiving care at least once a week by age and frequency of care

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
All
Sample size

FRS
Provision; People receiving care by source of weekly income & gender 2016 0-120 0 120 Data manager No Quarterly FRS 2016/17 No

People receiving care by main source of total weekly household income and gender, 2016/17:

Data items included under this category include:
Main source of income

Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC3,
Non-state pensions
Disability benefits
Other benefits
Other sources
All
Sample size

Response scale for all data items:
All people:
-All
-Male
-Female
People receiving care:
-All
-Male
-Female
People not receiving care:
-All
-Male
-Female

FRS
Provision; Benefit units by state support receipt & region/country 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Benefit units by state support receipt and region/country

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
United Kingdom
England
Wales
Scotland
Northern Ireland
Great
Britain
North East
North West
Yorkshire and the Humber
East Midlands
West Midlands
East
London
Inner London
Outer London
South East
South West

FRS
Provision; Benefit units by state support receipt & benefit unit type 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Benefit units by state support receipt and benefit unit type

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Pensioner couple
Pensioner couple married or civil partnered
Pensioner couple cohabiting
Single male pensioner
Single female pensioner
Couple with children
Couple with children married or civil partnered
Couple with children cohabiting
Couple without children
Couple without children married or civil partnered
Couple without children cohabiting
Single with children
Single male without children
Single female without children

FRS
Provision; Benefit units by state support receipt & ethnic group of head 2015 0-120 0 120 Data manager No Quarterly FRS 2015/16 No

Benefit units by state support receipt and ethnic group of head, average of 2016/17, 2017/18 and 2018/19

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
White
Mixed/ Multiple ethnic groups
Asian/ Asian British
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
Black/ African/ Caribbean/ Black British
Other ethnic group

FRS
Provision; Informal carers by gender, age & weekly income 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Adult informal carers by gender, age and net individual weekly income

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
Net weekly income
-than £50
-£50-£99
-£100-£149
-£150-£199
-£200-£249
-£250-£299
-£300-£399
-£400-£499
-£500 or more
-All
-Sample size

FRS
Provision; Who informal carers care for by gender 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Who informal carers care for by gender, 2018/19:

Data items included under this category include:
Person cared for:
Household member
-Parent
-Spouse/civil partner
-Cohabitee
-Son/Daughter
-Brother/Sister
-Other relative
-Non-relative

Non-household member
-Parent
-Spouse/civil partner
-Son/Daughter
-Other relative
-Non-relative
-Friend/neighbour
-Client of Voluntary Group
-Other

More than 1 person cared for (data taken for all informal
-Inside household
-Outside household
-Both inside and outside household

Sample size

All care recipients
-Parent
-Spouse/civil partner/cohabitee
-Son/Daughter
-Other relative
-Non-relative
-More than 1 person

Response scale for first sets of data items:
-All informal carers
-Male
-Female

Response scale for last set of data items:
-inside household
-outside household

FRS
Provision; People receiving care by age & gender 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

People receiving care by age and gender, 2018/19

Data items included under this category include:
All people receiving care
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
-All
-Males
-Females

FRS
Provision; People receiving care once a week by age & freq. of care 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

People receiving care at least once a week by age and frequency of care

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
All
Sample size

FRS
Provision; People receiving care by source of household income & gender 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

People receiving care by main source of total weekly household income and gender, 2018/19

Data items included under this category include:
Main source of income

Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC3,
Non-state pensions
Disability benefits
Other benefits
Other sources
All
Sample size

Response scale for all data items:
All people:
-All
-Male
-Female
People receiving care:
-All
-Male
-Female
People not receiving care:
-All
-Male
-Female

FRS
Provision; Benefit units by state support receipt & region/country 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Benefit units by state support receipt and region/country

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

United Kingdom
England
Wales
Scotland
Northern Ireland
Great Britain
North East
North West
Yorkshire and the Humber
East Midlands
West Midlands
East
London
Inner London
Outer London
South East
South West

FRS
Provision; Benefit units by state support receipt & benefit unit type 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Benefit units by state support receipt and benefit unit type

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Pensioner couple
Pensioner couple married or civil partnered
Pensioner couple cohabiting
Single male pensioner
Single female pensioner
Couple with children
Couple with children married or civil partnered
Couple with children cohabiting
Couple without children
Couple without children married or civil partnered
Couple without children cohabiting
Single with children
Single male without children
Single female without children

FRS
Provision; Benefit units by state support receipt & ethnic group 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Benefit units by state support receipt and ethnic group of head, average of 2016/17, 2017/18 and 2018/19

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
White
Mixed/ Multiple ethnic groups
Asian/ Asian British
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
Black/ African/ Caribbean/ Black British
Other ethnic group

FRS
Provision; Benefit units by state support receipt & age of head 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Benefit units by state support receipt and age of head

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Age of head
-16-24
-25-34
-35-44
-45-54
-55-59
-60-64
-65-74
-75-84
-85+

FRS
Provision; Benefit units by state support receipt & tenure 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Benefit units by state support receipt and tenure

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
All Owners
Owned outright
Buying with a mortgage
Social renting sector
Private renting sector

FRS
Provision; Benefit units by state support receipt & economic status 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Benefit units by state support receipt and economic status

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
One or more full-time self-employed
Single or couple, all in full-time work
Couple, one in full-time work, one in part-time work
Couple, one in full-time work, one not working
No full-time work, one or more part-time work
Workless, one or more State Pension age
Workless, one or more unemployed
Workless, other inactive

FRS
Provision; Percentage of people providing informal care by gender 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Percentage of people providing informal care by gender

Data items recorder yearly

Response scale for all data items:
-all
-Males
Females

FRS
Provision; Percentage of people providing informal care by age & gender 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Percentage of people providing informal care by age and gender

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all items:
Percentage of people:
-All
-Male
-Female

Millions of informal carers:
-All
-Males
-Females

FRS
Provision; Informal carers by, age & no. of hours providing care 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Adult informal carers by, age and number of hours per week providing care

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
0-4 hours
5-19 hours
20-34 hours
Varies less than 35 hours
35-49 hours
50 or more hours
Varies, 35 or more hours
All
Sample size

FRS
Provision; Informal carers by employment status & gender 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Adult informal carers by employment status and gender

Data items included under this category include:

All in employment
-full-time
-part time

All employees
-full-time
-part time

All self-employed
-full-time
-part time

Unemployed

Retired
Other economically inactive
-student
-looking after family/home
-permanently sick/disabled
-temporarily sick/disabled
-other inactive

All

Sample size

Response scale for all items:
All adult informal carers
-Males
-Females
All adults
-Males
-Females

FRS
Provision; Informal carers by source of weekly income 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Adult informal carers by main source of total weekly household income

Data items included under this category include:
Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC2,3
Non-state pensions
Disability benefits
Other benefits
Other sources

All

Sample size

Response scale for all items:
All adult
-Males
-Females
Number of hours per week
-0-4 hours
-5-19 hours
-20-34
-Varies, less than 35 hours
-35-49 hours
-35-49 hours
-50 or more hours
-Varies, more than 35 hours

FRS
Provision; Informal carers by gender, age & weekly income 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Adult informal carers by gender, age and net individual weekly income

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
Net weekly income
-than £50
-£50-£99
-£100-£149
-£150-£199
-£200-£249
-£250-£299
-£300-£399
-£400-£499
-£500 or more
-All
-Sample size

FRS
Provision; Who informal carers care for by gender 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

Who informal carers care for by gender, 2017/18:

Data items included under this category include:
Person cared for:
Household member
-Parent
-Spouse/civil partner
-Cohabitee
-Son/Daughter
-Brother/Sister
-Other relative
-Non-relative

Non-household member
-Parent
-Spouse/civil partner
-Son/Daughter
-Other relative
-Non-relative
-Friend/neighbour
-Client of Voluntary Group
-Other

More than 1 person cared for (data taken for all informal
-Inside household
-Outside household
-Both inside and outside household

Sample size

All care recipients
-Parent
-Spouse/civil partner/cohabitee
-Son/Daughter
-Other relative
-Non-relative
-More than 1 person

Response scale for first sets of data items:
-All informal carers
-Male
-Female

Response scale for last set of data items:
-inside household
-outside household

FRS
Provision; People receiving care by age & gender 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

People receiving care by age and gender, 2017/18

Data items included under this category include:
All people receiving care
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
-All
-Males
-Females

FRS
Provision; People receiving care by age & freq. of care 2017 0-120 0 120 Data manager No Quarterly FRS 2017/18 No

People receiving care at least once a week by age and frequency of care

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
All
Sample size

FRS
Provision; Informal carers by, age & no. of hours per week providing care 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

Adult informal carers by, age and number of hours per week providing care

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
0-4 hours
5-19 hours
20-34 hours
Varies less than 35 hours
35-49 hours
50 or more hours
Varies, 35 or more hours
All
Sample size

FRS
Provision; Informal carers by employment status & gender 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

Adult informal carers by employment status and gender

Data items included under this category include:

All in employment
-full-time
-part time

All employees
-full-time
-part time

All self-employed
-full-time
-part time

Unemployed

Retired
Other economically inactive
-student
-looking after family/home
-permanently sick/disabled
-temporarily sick/disabled
-other inactive

All

Sample size

Response scale for all items:
All adult informal carers
-Males
-Females
All adults
-Males
-Females

FRS
Provision; Informal carers by source of total weekly income 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

Adult informal carers by main source of total weekly household income

Data items included under this category include:
Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC2,3
Non-state pensions
Disability benefits
Other benefits
Other sources

All

Sample size

Response scale for all items:
All adult
-Males
-Females
Number of hours per week
-0-4 hours
-5-19 hours
-20-34
-Varies, less than 35 hours
-35-49 hours
-35-49 hours
-50 or more hours
-Varies, more than 35 hours

FRS
Provision; Informal carers by gender, age & weekly income 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

Adult informal carers by gender, age and net individual weekly income

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
Net weekly income
-than £50
-£50-£99
-£100-£149
-£150-£199
-£200-£249
-£250-£299
-£300-£399
-£400-£499
-£500 or more
-All
-Sample size

FRS
Provision; Who informal carers care for by gender 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

Who informal carers care for by gender, 2019/20:

Data items included under this category include:
Person cared for:
Household member
-Parent
-Spouse/civil partner
-Cohabitee
-Son/Daughter
-Brother/Sister
-Other relative
-Non-relative

Non-household member
-Parent
-Spouse/civil partner
-Son/Daughter
-Other relative
-Non-relative
-Friend/neighbour
-Client of Voluntary Group
-Other

More than 1 person cared for (data taken for all informal
-Inside household
-Outside household
-Both inside and outside household

Sample size

All care recipients
-Parent
-Spouse/civil partner/cohabitee
-Son/Daughter
-Other relative
-Non-relative
-More than 1 person

Response scale for first sets of data items:
-All informal carers
-Male
-Female

Response scale for last set of data items:
-inside household
-outside household

FRS
Provision; People receiving care by age & gender 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

People receiving care by age and gender, 2019/20

Data items included under this category include:
All people receiving care
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
-All
-Males
-Females

FRS
Provision; People receiving care at least once a week by age & freq. of care 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

People receiving care at least once a week by age and frequency of care

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
All
Sample size

FRS
Provision; People receiving care by source of income & gender 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

People receiving care by main source of total weekly household income and gender, 2019/20

Data items included under this category include:
Main source of income

Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC3,
Non-state pensions
Disability benefits
Other benefits
Other sources
All
Sample size

Response scale for all data items:
All people:
-All
-Male
-Female
People receiving care:
-All
-Male
-Female
People not receiving care:
-All
-Male
-Female

FRS
Provision; Percentage of adults in receipt of DWP benefits 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Percentage of adults shown in receipt of DWP benefits, FRS and administrative data

Data items included under this category include:
Incapacity Benefit
Carer’s Allowance
Attendance Allowance
Severe Disablement
Disability Living Allowance

Response scale for all data items:
On FRS only (percentage)
On admin data and FRS (percentage)
On admin data only (percentage)

FRS
Provision; Benefit units by state support receipt & economic status 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Benefit units by state support receipt and economic status

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
United Kingdom
England
Wales
Scotland
Northern Ireland
Great
Britain
North East
North West
Yorkshire and the Humber
East Midlands
West Midlands
East
London
Inner London
Outer London
South East
South West

FRS
Provision; Benefit units by state support receipt & benefit unit type 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Benefit units by state support receipt and benefit unit type

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Pensioner couple
Pensioner couple married or civil partnered
Pensioner couple cohabiting
Single male pensioner
Single female pensioner
Couple with children
Couple with children married or civil partnered
Couple with children cohabiting
Couple without children
Couple without children married or civil partnered
Couple without children cohabiting
Single with children
Single male without children
Single female without children

FRS
Provision; Benefit units by state support receipt & ethnic group 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Benefit units by state support receipt and ethnic group of head, average of 2016/17, 2017/18 and 2018/19

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
White
Mixed/ Multiple ethnic groups
Asian/ Asian British
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
Black/ African/ Caribbean/ Black British
Other ethnic group

FRS
Provision; Benefit units by state support receipt & age 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Benefit units by state support receipt and age of head

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
Age of head
-16-24
-25-34
-35-44
-45-54
-55-59
-60-64
-65-74
-75-84
-85+

FRS
Provision; Benefit units by state support receipt & tenure 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Benefit units by state support receipt and tenure

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
All Owners
Owned outright
Buying with a mortgage
Social renting sector
Private renting sector

FRS
Provision; Benefit units by state support receipt & economic status 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Benefit units by state support receipt and economic status

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
All benefit units
One or more full-time self-employed
Single or couple, all in full-time work
Couple, one in full-time work, one in part-time work
Couple, one in full-time work, one not working
No full-time work, one or more part-time work
Workless, one or more State Pension age
Workless, one or more unemployed
Workless, other inactive

FRS
Provision; Percentage of people providing informal care by gender 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Percentage of people providing informal care by gender

Data items recorder yearly

Response scale for all data items:
-all
-Males
Females

FRS
Provision; Percentage of people providing informal care by age & gender 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Percentage of people providing informal care by age and gender

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all items:
Percentage of people:
-All
-Male
-Female

Millions of informal carers:
-All
-Males
-Females

FRS
Provision; Informal carers by, age & no. of hours per week providing care 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Adult informal carers by, age and number of hours per week providing care

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
0-4 hours
5-19 hours
20-34 hours
Varies less than 35 hours
35-49 hours
50 or more hours
Varies, 35 or more hours
All
Sample size

FRS
Provision; Informal carers by employment status & gender 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Adult informal carers by employment status and gender

Data items included under this category include:

All in employment
-full-time
-part time

All employees
-full-time
-part time

All self-employed
-full-time
-part time

Unemployed

Retired
Other economically inactive
-student
-looking after family/home
-permanently sick/disabled
-temporarily sick/disabled
-other inactive

All

Sample size

Response scale for all items:
All adult informal carers
-Males
-Females
All adults
-Males
-Females

FRS
Provision; Informal carers by source of total weekly household income 2018 0-120 0 120 Data manager No Quarterly FRS 2018/19 No

Adult informal carers by main source of total weekly household income

Data items included under this category include:
Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC2,3
Non-state pensions
Disability benefits
Other benefits
Other sources

All

Sample size

Response scale for all items:
All adult
-Males
-Females
Number of hours per week
-0-4 hours
-5-19 hours
-20-34
-Varies, less than 35 hours
-35-49 hours
-35-49 hours
-50 or more hours
-Varies, more than 35 hours

FRS
Provision; Average weekly receipt of state support 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

Average weekly receipt of state support, FRS data and administrative data, Great Britain

Data items included under this category include Carer’s Allowance with which administrative data is an average of quarterly data and Attendance Allowance

Response scale for all data items, including Carer’s allowance:
FRS
– Ungrossed percentage
– Average weekly amount (£)
– Grossed percentage
Administrative data
– Average weekly amount (£)
– Percentage
– Percentage difference

FRS
Provision; Receipt of state support 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

Receipt of state support, FRS data and administrative data:

Data items included under this category include:
Attendance Allowance
Carer’s Allowance (with which administrative data is an average of quarterly data)
Disability living allowance
Personal Independence Payments

Response scale for all data items:
FRS
– Ungrossed percentage
– Grossed number (1,000s)
– Grossed percentage
Administrative data
– Number (1,000s)
– Percentage
– Percentage difference

FRS
Provision; Standard errors for state support receipt 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

Standard errors for state support receipt

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
Percentage of all benefit units receiving state support
Standard error
Design factor
Lower confidence limit
Upper confidence limit

FRS
Provision; Percentage of adults shown in receipt of DWP benefits 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

Percentage of adults shown in receipt of DWP benefits: FRS and administrative data

Data items included under this category include:
Carer’s Allowance
Attendance Allowance
Disability Living Allowance (Care)
Disability Living Allowance (Mobility)
Personal Independence Payment (Daily Living)
Personal Independence Payment (Mobility)

Response scale for all data items:
On FRS only (percentage)
On admin and FRS (percentage)
On admin only (percentage)

FRS
Provision; Benefit units by disability status & state support receipt 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

Benefit units by disability status and state support receipt

Data items included under this category include:
Carer’s Allowance
Attendance Allowance
Disability Living Allowance (Care)
Disability Living Allowance (Mobility)
Personal Independence Payment (Daily Living)
Personal Independence Payment (Mobility)

Response scale for all data items:
All benefit units
At least one disabled adult, no disabled children
At least one disabled child, no disabled adults
At least one disabled adult and at least one disabled child
No disabled adults or disabled children

FRS
Provision; People providing informal care by gender 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

People providing informal care by gender

Data items included under this category include:
Percentage of people
Millions of informal carers

Response scale for all items:
All
Male
Female

FRS
Provision; People providing informal care by age & gender 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

People providing informal care by age and gender

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all items:
All
Male
Female

FRS
Provision; Informal carers by gender, age & no. of hours per week providing care 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

Adult informal carers by gender, age and number of hours per week providing care

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
0-4 hours
5-19 hours
20-34 hours
Varies less than 35 hours
35-49 hours
50 or more hours
Varies, 35 or more hours
All
Sample size

FRS
Provision; Adult informal carers by employment status & gender 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

Adult informal carers by employment status and gender

Data items included under this category include:

All in employment
-full-time
-part time

All employees
-full-time
-part time

All self-employed
-full-time
-part time

Unemployed

Retired
Other economically inactive
-student
-looking after family/home
-permanently sick/disabled
-temporarily sick/disabled
-other inactive

All

Sample size

Response scale for all items:
All adult informal carers
-Males
-Females
All adults
-Males
-Females

FRS
Provision; Adult informal carers by main source of total weekly household income 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

Adult informal carers by main source of total weekly household income

Data items included under this category include:
Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC2,3
Non-state pensions
Disability benefits
Other benefits
Other sources

All

Sample size

Response scale for all items:
All adult
-Males
-Females
Number of hours per week
-0-4 hours
-5-19 hours
-20-34
-Varies, less than 35 hours
-35-49 hours
-35-49 hours
-50 or more hours
-Varies, more than 35 hours

FRS
Provision; Adult informal carers by gender, age & net individual weekly income 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

Adult informal carers by gender, age and net individual weekly income

Data items included under this category include:
All adult carers (separated into age categories between 16 to 75+).
All male carers (separated into age categories between 16 to 75+).
All female carers (separated into age categories between 16 to 75+).

Response scale for all items:
Net weekly income
-than £50
-£50-£99
-£100-£149
-£150-£199
-£200-£249
-£250-£299
-£300-£399
-£400-£499
-£500 or more
-All
-Sample size

FRS
Provision; Who informal carers care for by gender 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

Who informal carers care for by gender, 2020/21:

Data items included under this category include:
Person cared for:
Household member
-Parent
-Spouse/civil partner
-Cohabitee
-Son/Daughter
-Brother/Sister
-Other relative
-Non-relative

Non-household member
-Parent
-Spouse/civil partner
-Son/Daughter
-Other relative
-Non-relative
-Friend/neighbour
-Client of Voluntary Group
-Other

More than 1 person cared for (data taken for all informal
-Inside household
-Outside household
-Both inside and outside household

Sample size

All care recipients
-Parent
-Spouse/civil partner/cohabitee
-Son/Daughter
-Other relative
-Non-relative
-More than 1 person

Response scale for first sets of data items:
-All informal carers
-Male
-Female

Response scale for last set of data items:
-inside household
-outside household

FRS
Provision; People receiving care by age & gender 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

People receiving care by age and gender, 2020/21

Data items included under this category include:
All people receiving care
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
-All
-Males
-Females

FRS
Provision; People receiving care at least once a week by age & frequency of care 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

People receiving care at least once a week by age and frequency of care

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all data items:
Continuous
Several times a day
Once or twice a day
Several times a week
Once a week
All
Sample size

FRS
Provision; People receiving care by weekly household income & gender 2020 0-120 0 120 Data manager No Quarterly FRS 2020/21 No

People receiving care by main source of total weekly household income and gender, 2020/21

Data items included under this category include:
Main source of income

Wages and salaries
Self-employed income
Investments
Tax Credits
State Pension plus any IS/PC3,
Non-state pensions
Disability benefits
Other benefits
Other sources
All
Sample size

Response scale for all data items:
All people:
-All
-Male
-Female
People receiving care:
-All
-Male
-Female
People not receiving care:
-All
-Male
-Female

FRS
Provision; Average weekly receipt of state support 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

Average weekly receipt of state support, FRS data and administrative data, Great Britain

Data items included under this category include Carer’s Allowance with which administrative data is an average of quarterly data

Response scale for all data items, including Carer’s allowance:
FRS
– Ungrossed percentage
– Average weekly amount (£)
– Grossed percentage
Administrative data
– Average weekly amount (£)
– Percentage
– Percentage difference

FRS
Provision; Receipt of state support 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

Receipt of state support, FRS data and administrative data:

Data items included under this category include:
Carer’s Allowance (with which administrative data is an average of quarterly data)
Disability living allowance
Personal Independence Payments

Response scale for all data items:
FRS
– Ungrossed percentage
– Grossed number (1,000s)
– Grossed percentage
Administrative data
– Number (1,000s)
– Percentage
– Percentage difference

FRS
Provision; Standard errors for state support receipt 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

Standard errors for state support receipt

Data items included under this category include:
Attendance allowance
Carer’s allowance
Disability living allowance (care component)
Disability living allowance (mobility component)
Personal Independent Payment (daily living component)
Personal Independence Payment (mobility component)

Response scale for all data items:
Percentage of all benefit units receiving state support
Standard error
Design factor
Lower confidence limit
Upper confidence limit

FRS
Provision; Percentage of people providing informal care by gender 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

Percentage of people providing informal care by gender

Data items recorded yearly .

Response scale for all data items:
-all
-Males
Females

FRS
Provision; Percentage of people providing informal care by age & gender 2019 0-120 0 120 Data manager No Quarterly FRS 2019/20 No

Percentage of people providing informal care by age and gender

Data items included under this category include:
Age Group
0-15
16-24
25-34
35-44
45-54
55-64
65-74
75-84
85+

Response scale for all items:
Percentage of people:
-All
-Male
-Female

Millions of informal carers:
-All
-Males
-Females

FRS
Need; ADL- dressing 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to put on your shoes and socks or stockings? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL-managing communications 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Do you have any difficulty using a telephone i.e. looking up numbers, dialing etc?

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL- managing medication 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Do you have any difficulty taking medicine (preparing and taking correct dose)?

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL- managing finances 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Do you have any difficulty managing money (paying bills/writing cheques or using an ATM to remove or deposit money)?

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL- meal preparation 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Do you have difficulty with household tasks such as making yourself a cup of tea?

0. No
1. Yes
2. Impossible
8. No answer
9. Not asked

CFAS_II
Need; IADL- managing finances 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Have you needed any help recently to check your change after spending small amounts of money

0. No
1. Yes
8. No answer
9. Not asked

CFAS_II
Need; ADL-toileting 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to get to and use the toilet? (IF YES: Do you have difficulty?)

“0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked”

CFAS_II
Provision; Day to day activities 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Does anyone help you with any of the day-to-day tasks I’ve just asked about?

0. No
1. Yes
8. No answer
9. Not asked

CFAS_II
Provision; Day to day activities 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Who usually helps? Does anyone else help? Does anyone else help? 2NDHelper. Does anyone else help? 3rd Helper

A No-one
B Spouse
C Daughter
D Daughter-in-law E Son
F Son-in-law G Brother
H Sister
J Friend or neighbour K Home help
L Care worker
M Meals on wheels
N Community worker O Community nurse P Warden
Q Paid help
I Other relative
IF A OR S SKIP TO Q559
R Other
S Not applicable

CFAS_II
Need; ADL-(all) 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Establish degree of mobility of subject.

1. Usually ambulant non house bound 2. Usually ambulant house bound
3. Chairfast permanently
4. Bedfast permanently
7. Unable to establish mobility

CFAS_II
Receipt; Service 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

I’d like to ask you whether you have received various Health or Local Authority Services or any private help in recent weeks.
So in the last 4 weeks, have you seen or had a visit from, or to any of the following Services? IN THE LAST FOUR WEEKS Local authority home help or home care assistant? Social worker? Meals on wheels? Any nursing services?

0. No
1. Yes
8. No answer 9 Not asked.

CFAS_II
Provision; Day to day activities 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Does anyone help with you with any of the day ot day tasks I’ve just asked about?

0. No
1. Yes
8. No answer
9. Not asked

CFAS_II
Provision; Day to day activities 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Who usually helps? Does anyone else help? Does anyone else help? 2NDHelper. Does anyone else help? 3rd Helper

A No-one
B Spouse
C Daughter
D Daughter-in-law E Son
F Son-in-law G Brother
H Sister
J Friend or neighbour K Home help
L Care worker
M Meals on wheels
N Community worker O Community nurse P Warden
Q Paid help
I Other relative
IF A OR S SKIP TO Q559
R Other
S Not applicable

CFAS_II
Need; ADL-(all) 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Establish a degree of mobility

1. Usually ambulant non house bound
2. Usually ambulant house bound
3. Chairfast permanently
4. Bedfast permanently
7. Unable to establish mobility

CFAS_II
Provision; Service usage 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Received various Health or Local Authority Services or any private help in recent weeks So in the last 4 weeks, have you seen or had a visit from, or to any of the following Services? IN THE LAST FOUR WEEKS: Local authority home help or home care assistant? Social worker? Meals on wheels? Any nursing services?

0. No
1. Yes
8. No answer
9. Not asked

CFAS_II
Receipt; Accomodation 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Current accomodation

“1. House/Flat
2. Granny Flat
3. Warden Controlled Flat
4. Council Residential Home
5. Private Residential Home
6. Private/Charity Nursing Home
7. Long Stay Hospital
8. Not established”

CFAS_II
Receipt; Accomodation 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Is the subject living in an instiution?

0. No/uncertain
1. Yes

CFAS_II
Receipt; Accomodation 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Have you moved since we last saw you?

0. No
1. Yes
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Receipt; Accomodation 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

IF YES moved from:

1. House/Flat
2. Granny Flat
3. Warden Controlled Flat
4. Council Residential Home
5. Private Residential Home
6. Private/Charity Nursing Home
7. Long Stay Hospital
8. Not established

CFAS_II
Need; ADL- transferring 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Do you have a tendency to fall?

0. No or rarely
1. More than once per week 8. No answer
9. Not asked

CFAS_II
Need; IADL 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Do you take part in sports or activities that are mildly energetic?
Specify which activity then ask how often R takes part in the activity.
IF RATED NO SKIP TO Q378

0. No
1. Yes

CFAS_II
Need; ADL-walking/transferring 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

In the past 2 yearshave you had any difficulty in starting to move (e.g. starting to walk or getting out of a chair)?

0. No
1. Yes
8. No answer
9. Not asked

CFAS_II
Need; ADL- grooming 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to cut your own toenails? (IF YES: Do you have difficulty cutting your own toenails?

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; ADL-bathing 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to wash all over or bathe? (IF YES: Do you have difficulty washing all over or bathing?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL-managing transportation 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to get on a bus? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; ADL- transferring 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to go up and down stairs? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL - light housework 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to do the light housework? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL - heavy housework 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to do the heavy housework? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL- shopping 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to shop and carry heavy bags? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL-preparing/cooking meals 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to prepare and cook a hot meal? (IF YES: Do you have difficulty?

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL-home maintenance 2009 67-87 67 87 Participant No Current CFAS II Wave 2 No

Are you able to reach an overhead shelf? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Receipt; Accomodation 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Who funds your accommodation within the Nursing Home?

1. Self funded
2. Social Services Funded
3. Health Services Funded

CFAS_II
Receipt; Accomodation 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

IS THE SUBJECT LIVING IN AN INSTITUTION?

Residential homes, nursing homes and long stay hospitals count as institutions; a day hospital or sheltered accommodation does not.

0. No/uncertain
1. Yes

CFAS_II
Need; ADL- transferring 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Do you have a tendency to fall?

0. No or rarely
1. More than once per month
8. No answer
9. Not asked

CFAS_II
Need; ADL-moving 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Have you had any difficulty in starting to move (e.g. starting to walk or getting out of a chair)?

0. No
1. Yes
8. No answer
9. Not asked

CFAS_II
Need; ADL- grooming 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

I would like to know if you are able, or if you have any difficulty with the following activities:

Are you able to cut your own toenails? (IF YES: Do you have difficulty cutting your own toenails?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; ADL-bathing 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Are you able to wash all over or bathe? (IF YES: Do you have difficulty washing all over or bathing?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL-managing transportation 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Are you able to get on a bus? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; ADL- transferring 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Are you able to go up and down stairs? (IF YES: Do you have difficulty?)

“0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL - light housework 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Are you able to do the light housework? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL - heavy housework 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Are you able to do the heavy housework? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL- shopping 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Are you able to shop and carry hevay bags (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL- meal preparation 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Are you able to prepare and cook a hot meal? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL-home maintenance 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Are you able to reach an overhead shelf? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; ADL- dressing 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Are you able to put on your shoes or stockings? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL - mananging communications 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Do you have any difficulty using a telephone i.e. looking up numbers, dialing etc…

0. needs help
1. some difficulty
2. no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL- managing medication 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Do you have any difficulty taking medicine (preparing and taking correct dose)?

0. needs help
1. some difficulty
2. no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL- managing finances 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Do you have any difficulty managing money (paying bills/writing cheques or using an ATM to remove or deposit money)?

0. needs help
1. some difficulty
2. no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL-home maintenance 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Do you have difficulty with household tasks such as making yourself a cup of tea?

0. No
1. Yes
2. Impossible
7. Don’t know
8. No answer 9. Not asked

CFAS_II
Need; IADL- managing finances 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Have you needed any help recently to check your change after spending small amounts of money?

0. No
1. Yes
8. No answer
9. Not asked

CFAS_II
Need; ADL-toileting 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Are you able to get to and use the toilet? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS_II
Need; IADL-managing transportation 2011 67-86 67 86 Participant No Current Wave 2 No

Are you able to get on a bus? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; ADL- transferring 2011 67-86 67 86 Participant No Current Wave 2 No

Are you able to go up and down stairs? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL-home maintenance 2011 67-86 67 86 Participant No Current Wave 2 No

Are you able to do the light housework? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL-home maintenance 2011 67-86 67 86 Participant No Current Wave 2 No

Are you able to do the heavy housework? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL- shopping 2011 67-86 67 86 Participant No Current Wave 2 No

Are you able to shop and carry heavy bags? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL- meal preparation 2011 67-86 67 86 Participant No Current Wave 2 No

Are you able to prepare and cook a hot meal? (IF YES: Do you have difficulty?

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL-home maintenance 2011 67-86 67 86 Participant No Current Wave 2 No

Are you able to reach an overhead shelf? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; ADL- dressing 2011 67-86 67 86 Participant no Current Wave 2 No

Are you able to put on your shoes and socks or stockings? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL-managing communications 2011 67-86 67 86 Participant No Current Wave 2 No

Do you have any difficulty using a telephone i.e. looking up numbers, dialing etc?

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL- managing medication 2011 67-86 67 86 Participant No Current Wave 2 No

Do you have any difficulty taking medicine (preparing and taking correct dose)?

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL- managing finances 2011 67-86 67 86 Participant No Current Wave 2 No

Do you have any difficulty managing money (paying bills/writing cheques or using an ATM to remove or deposit money)?

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL- meal preparation 2011 67-86 67 86 Participant No Current Wave 2 No

Do you have difficulty with household tasks such as making yourself a cup of tea?

0. No
1. Yes
2. Impossible
8. No answer
9. Not asked

CFAS Wales
Need; IADL- managing finances 2011 67-86 67 86 Participant No Current Wave 2 No

Have you needed any help recently to check your change after spending small amounts of money

0. No
1. Yes
8. No answer
9. Not asked

CFAS Wales
Need; ADL-toileting 2011 67-86 67 86 Participant No Current Wave 2 No

Are you able to get to and use the toilet? (IF YES: Do you have difficulty?)

“0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked”

CFAS Wales
Provision; Day to day activities 2011 67-86 67 86 Participant No Current Wave 2 No

Does anyone help you with any of the day-to-day tasks I’ve just asked about?

0. No
1. Yes
8. No answer
9. Not asked

CFAS Wales
Provision; Day to day activities 2011 67-86 67 86 Participant No Current Wave 2 No

Who usually helps? Does anyone else help? Does anyone else help? 2NDHelper. Does anyone else help? 3rd Helper

A No-one
B Spouse
C Daughter
D Daughter-in-law E Son
F Son-in-law G Brother
H Sister
J Friend or neighbour K Home help
L Care worker
M Meals on wheels
N Community worker O Community nurse P Warden
Q Paid help
I Other relative
IF A OR S SKIP TO Q559
R Other
S Not applicable

CFAS Wales
Need; ADL-(all) 2011 67-86 67 86 Participant No Current Wave 2 No

Establish degree of mobility of subject.

1. Usually ambulant non house bound 2. Usually ambulant house bound
3. Chairfast permanently
4. Bedfast permanently
7. Unable to establish mobility

CFAS Wales
Receipt; Service 2011 67-86 67 86 Participant No Current Wave 2 No

I’d like to ask you whether you have received various Health or Local Authority Services or any private help in recent weeks.
So in the last 4 weeks, have you seen or had a visit from, or to any of the following Services? IN THE LAST FOUR WEEKS Local authority home help or home care assistant? Social worker? Meals on wheels? Any nursing services?

0. No
1. Yes
8. No answer 9 Not asked.

CFAS Wales
Receipt; Current accomodation 2007 65-85 65 85 Participant No Current CFAS II Wave 1 No

Current accommodation

1. House/Flat
2. Granny Flat
3. Warden Controlled Flat
4. Council Residential Home
5. Private Residential Home
6. Private/Charity Nursing Home
7. Long Stay Hospital
8. Not established

CFAS_II
Receipt; Accomodation 2007 65-85 65 85 Participant Current CFAS II Wave 1 No

Type of accommodation within the Nursing Home.

1. Residential
2. Nursing
3. EMI
4. Not established.

CFAS_II
Need; IADL-home maintenance 2010 65-84 65 84 Participant No Current Wave 1 No

Are you able to reach an overhead shelf? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; ADL- dressing 2010 65-84 65 84 Participant No Current Wave 1 No

Are you able to put on your shoes or stockings? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL - mananging communications 2010 65-84 65 84 Participant No Current Wave 1 No

Do you have any difficulty using a telephone i.e. looking up numbers, dialing etc…

0. needs help
1. some difficulty
2. no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL-medication 2010 65-84 65 84 Participant No Current Wave 1 No

Do you have any difficulty taking medicine (preparing and taking correct dose)?

0. needs help
1. some difficulty
2. no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL- managing finances 2010 65-84 65 84 Participant No Current Wave 1 No

Do you have any difficulty managing money (paying bills/writing cheques or using an ATM to remove or deposit money)?

0. needs help
1. some difficulty
2. no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL- meal preparation 2010 65-84 65 84 Participant No Current Wave 1 No

Do you have difficulty with household tasks such as making yourself a cup of tea?

0. No
1. Yes
2. Impossible
7. Don’t know
8. No answer 9. Not asked

CFAS Wales
Need; IADL- managing finances 2010 65-84 65 84 Participant No Current Wave 1 No

Have you needed any help recently to check your change after spending small amounts of money?

0. No
1. Yes
8. No answer
9. Not asked

CFAS Wales
Need; ADL-toileting 2010 65-84 65 84 Participant No Current Wave 1 No

Are you able to get to and use the toilet? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Provision; Day to day activities 2010 65-84 65 84 Participant No Current Wave 1 No

Does anyone help with you with any of the day ot day tasks I’ve just asked about?

0. No
1. Yes
8. No answer
9. Not asked

CFAS Wales
Provision; Day to day activities 2010 65-84 65 84 Participant No Current Wave 1 No

Who usually helps? Does anyone else help? Does anyone else help? 2NDHelper. Does anyone else help? 3rd Helper

A No-one
B Spouse
C Daughter
D Daughter-in-law E Son
F Son-in-law G Brother
H Sister
J Friend or neighbour K Home help
L Care worker
M Meals on wheels
N Community worker O Community nurse P Warden
Q Paid help
I Other relative
IF A OR S SKIP TO Q559
R Other
S Not applicable

CFAS Wales
Need; ADL-(all) 2010 65-84 65 84 Participant No Current Wave 1 No

Establish a degree of mobility

1. Usually ambulant non house bound
2. Usually ambulant house bound
3. Chairfast permanently
4. Bedfast permanently
7. Unable to establish mobility

CFAS Wales
Provision; Service usage 2010 65-84 65 84 Participant No Current Wave 1 No

Received various Health or Local Authority Services or any private help in recent weeks So in the last 4 weeks, have you seen or had a visit from, or to any of the following Services? IN THE LAST FOUR WEEKS: Local authority home help or home care assistant? Social worker? Meals on wheels? Any nursing services?

0. No
1. Yes
8. No answer
9. Not asked

CFAS Wales
Receipt; Accomodation 2011 67-86 67 86 Participant No Current Wave 2 No

Current accomodation

“1. House/Flat
2. Granny Flat
3. Warden Controlled Flat
4. Council Residential Home
5. Private Residential Home
6. Private/Charity Nursing Home
7. Long Stay Hospital
8. Not established”

CFAS Wales
Receipt; Accomodation 2011 67-86 67 86 Participant No Current Wave 2 No

Is the subject living in an instiution?

“0. No/uncertain
1. Yes”

CFAS Wales
Receipt; Accomodation 2011 67-86 67 86 Participant No Current Wave 2 No

Have you moved since we last saw you?

0. No
1. Yes
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Receipt; Accomodation 2011 67-86 67 86 Participant No Current Wave 2 No

IF YES moved from:

1. House/Flat
2. Granny Flat
3. Warden Controlled Flat
4. Council Residential Home
5. Private Residential Home
6. Private/Charity Nursing Home
7. Long Stay Hospital
8. Not established

CFAS Wales
Need; ADL- transferring 2011 67-86 67 86 Participant No Current Wave 2 No

Do you have a tendency to fall?

0. No or rarely
1. More than once per week 8. No answer
9. Not asked

CFAS Wales
Need; ADL-walking/transferring 2011 67-86 67 86 Participant No Current Wave 2 No

In the past 2 yearshave you had any difficulty in starting to move (e.g. starting to walk or getting out of a chair)?

0. No
1. Yes
8. No answer
9. Not asked

CFAS Wales
Need; ADL- grooming 2011 67-86 67 86 Participant No Current Wave 2 No

Are you able to cut your own toenails? (IF YES: Do you have difficulty cutting your own toenails?

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; ADL-bathing 2011 67-86 67 86 Participant No Current Wave 2 No

Are you able to wash all over or bathe? (IF YES: Do you have difficulty washing all over or bathing?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Receipt; Accomodation 2010 65-84 65 84 Participant No Current CFAS II Wave 2 No

Current accommodation

1. House/Flat
2. Granny Flat
3. Warden Controlled Flat
4. Council Residential Home
5. Private Residential Home
6. Private/Charity Nursing Home
7. Long Stay Hospital
8. Not established

CFAS_II
Receipt; Accomodation 2010 65-84 65 84 Participant No Current CFAS II Wave 3 No

Type of accommodation within the Nursing Home.

1. Residential
2. Nursing
3. EMI
4. Not established.

CFAS_II
Receipt; Accomodation 2010 65-84 65 84 Participant No Current CFAS II Wave 4 No

Who funds your accommodation within the Nursing Home?

1. Self funded
2. Social Services Funded
3. Health Services Funded

CFAS_II
Receipt; Accomodation 2010 65-84 65 84 Participant No Current CFAS II Wave 5 No

IS THE SUBJECT LIVING IN AN INSTITUTION?

Residential homes, nursing homes and long stay hospitals count as institutions; a day hospital or sheltered accommodation does not.

0. No/uncertain
1. Yes

CFAS_II
Receipt; Accomodation 2010 65-84 65 84 Participant No Current CFAS II Wave 6 No

Have you moved since we last saw you?

MOVED FROM..

Specify if move suggests more or less dependency (within same housing category), e.g. moving in with children
ANY OTHER INFORMATION

Part 1:
0. No
1. Yes
7. Don’t know
8. No answer
9. Not asked

Part 2:
1. House/flat/granny flat
2. Warden controlled flat
3. Council residential home
4. Private residential home
5. Private/charity nursing home
6. Long stay hospital.
7. Not established (specify at Q13

Part 3:
(Textual Answer)

CFAS_II
Provision; Accomodation 2010 65-84 65 84 Participant No Current CFAS II Wave 7 No

Is there anyone who is frail or unwell and needs your help with day to day tasks.

Is your help required due to

Part 1:
0. No
1. Yes
8. Don’t know
9. Not asked

Part 2:
1. Mental frailty
2. Physical frailty
3. Both.

CFAS_II
Receipt; Accomodation 2010 65-84 65 84 Participant No Current Wave 1 No

Current accommodation

1. House/ Flat
2. Granny Flat
3. Warden Controlled Flat
4. Council Residential Home
5. Private Residential Home
6. Private/Charity Nursing Home
7. Long Stay Hospital
8. Not established

CFAS Wales
Receipt; Accomodation 2010 65-84 65 84 Participant No Current Wave 1 No

Type of accommodation within the Nursing Home.

1. Residential
2. Nursing
3. EMI
4. Not established

CFAS Wales
Receipt; Accomodation 2010 65-84 65 84 Participant No Current Wave 1 No

Who funds your accommodation within the Nursing Home?

1. Self-Funded
2. Social Services Funded
3. Health Services Funded

CFAS Wales
Receipt; Accomodation 2010 65-84 65 84 Participant No Current Wave 1 No

Is the subject living in an institution? 

0. No/uncertain
1. Yes

CFAS Wales
Need; Cerebrovascular Function (ADL) * ask 2010 65-84 65 84 Participant No Current Wave 1 No

Do you have a tendency to fall?

0. No or rarely
1. More than once per month
8. No answer
9. Not asked

CFAS Wales
Need; ADL-moving 2010 65-84 65 84 Participant No Current Wave 1 No

Have you had any difficulty in starting to move (e.g. starting to walk to getting out of a chair?

0. No
1. Yes
8. No answer
9. Not asked

CFAS Wales
Need; IADL-grooming 2010 65-84 65 84 Participant No Current Wave 1 No

I would like to know if you are able, or if you have any difficulty with the following activities:

Are you able to cut your own toenails? (IF YES: Do you have difficulty cutting your own toenails?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; ADL-bathing 2010 65-84 65 84 Participant No Current Wave 1 No

Are you able to wash all over or bathe? (IF YES: Do you have difficulty washing all over or bathing?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL-managing transportation 2010 65-84 65 84 Participant No Current Wave 1 No

Are you able to get on a bus? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; ADL- transferring 2010 65-84 65 84 Participant No Current Wave 1 No

Are you able to go up and down stairs? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL - light housework 2010 65-84 65 84 Participant No Current Wave 1 No

Are you able to do the light housework? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer

CFAS Wales
Need; IADL - heavy housework 2010 65-84 65 84 Participant No Current Wave 1 No

Are you able to do the heavy housework? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL- shopping 2010 65-84 65 84 Participant No Current Wave 1 No

Are you able to shop and carry hevay bags (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Need; IADL-cooking 2010 65-84 65 84 Participant No Current Wave 1 No

Are you able to prepare and cook a hot meal? (IF YES: Do you have difficulty?)

0. (No), needs help
1. (Yes), some difficulty
2. (Yes), no difficulty
7. Don’t know
8. No answer
9. Not asked

CFAS Wales
Provision; Unpaid care provided 2011 0-120 0 120 Participant Yes Current 2011 Census No

Do you look after, or give any help or support to family members, friends, neighbours or others because of either:
• long-term physical or mental ill-health/disability?
• problems related to old age?
Do not count anything you do as part of your paid employment

No
Yes, 1 – 19 hours a week
Yes, 20 – 49 hours a week Yes, 50 or more hours a week

General health

Census
Provision; Unpaid care provided 2021 0-120 0 120 Participant Yes Current 2021 Census No

Do you look after, or give any help or support to anyone because they have long term physical or mental health conditions or illnesses, or problems related to old age?
Exclude anything you do as part of your paid employment.

No
Yes, 9 hours a week or less
Yes, 10 to 19 hours a week
Yes, 20 to 34 hours a week
Yes, 35 to 39 hours a week
Yes, 50 or more hours a week

General health

Census
Receipt; Accommodation - inc. institutional accom 2008 16-120 16 120 Participant Yes Current Wave 18 No

What type of accommodation does household live in?

Detachedhouse/bungalow
Semi-detachedhouse/bungalow
End terraced house/bungalow
Terraced house/bungalow
Purpose built flat/maisonette (under 10 dwellings)
Purpose built flat/maisonette (10+ dwellings)
Converted flat/maisonette (under 10 dwellings)
Converted flat/maisonette (10+ dwellings)
Dwelling with business premises
Bedsitter in multiple occupation (under 10 dwellings)
Bedsitter in multiple occupat
Shelteredaccommodation
Institutional accommodation

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Need; ADLs - ability to complete 2008 16-120 16 120 Participant Yes Current Wave 18 No

Please look at this card and tell me which of these activities, if any, you would normally find difficult to manage on your own?

Doing the housework
Climbing stairs
Dressing yourself
Walking for at least 10 minutes.
(None of these) .

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Need; ADLs - stairs 2008 16-120 16 120 Participant Yes Current Wave 18 No

Do you usually manage to get up and down stairs or steps

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else.
or Not at all?

Part 2:
Very easy
Fairly easy
Fairly difficult
or Very difficult?

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Need; ADLs - getting around house 2008 16-120 16 120 Participant Yes Current Wave 18 No

Do you usually manage to get around the house (except for any stairs)

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else.
or Not at all?

Part 2:
Very easy
Fairly easy
Fairly difficult
or Very difficult?

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Need; ADLs - getting in and out of bed 2008 16-120 16 120 Participant Yes Current Wave 18 No

Do you usually manage to get in and out of bed..

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else.
or Not at all?

Part 2:
Very easy
Fairly easy
Fairly difficult
or Very difficult?

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Need; ADLs - cutting toenails 2008 16-120 16 120 Participant Yes Current Wave 18 No

Do you usually manage to cut your toenails

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else.
or Not at all?

Part 2:
Very easy
Fairly easy
Fairly difficult
or Very difficult?

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Need; ADLs - bathing and showering 2008 16-120 16 120 Participant Yes Current Wave 18 No

Do you usually manage to bath, shower or wash all over

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else.
or Not at all?

Part 2:
Very easy
Fairly easy
Fairly difficult
or Very difficult?

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Need; ADLs - walking down road 2008 16-120 16 120 Participant Yes Current Wave 18 No

Do you usually manage to go out of doors and walk down the road

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else.
or Not at all?

Part 2:
Very easy
Fairly easy
Fairly difficult
or Very difficult?

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Need; ADLs - walking down road 2008 16-120 16 120 Participant Yes Past year Wave 18 No

Here is a list of some health and welfare services. Have you yourself made use of any of these services since September 1st 2007?

Health visitor, district nurse.
Home-help.
Meals on wheels ..
Social worker or welfare officer.
Chiropodist
Alternative medical practitioner
(e.g. homeopath, osteopath)
Psychotherapist (including
psychiatrist or analyst) .
Speech therapist or
occupational therapist
Physiotherapist.
Hospital consultant/outpatients..
Family planning clinic.
Any other health or welfare services?

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Receipt; Use of services 2008 16-120 16 120 Participant Yes Current Wave 18 No

Which services have you used?

Health visitor, district nurse.
Home-help.
Meals on wheels ..
Social worker or welfare officer.
Chiropodist
Alternative medical practitioner
(e.g. homeopath, osteopath)
Psychotherapist (including
psychiatrist or analyst) .
Speech therapist or
occupational therapist
Physiotherapist.
Hospital consultant/outpatients..
Family planning clinic.
Any other health or welfare services?

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Receipt; Use of services - service type and payment 2008 16-120 16 120 Participant Yes Current Wave 18 No

Thinking about the (SERVICE AT M29) was this from the NHS or social services, or was it from a private or voluntary agency?

Was it all free or did you have to pay anything for this?

Part 1:
NHS/SSD
Private/Voluntary Both
Don’t know

Part 2:
Free
Paid
Both

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Provision; Giving help to household members 2008 16-120 16 120 Participant Yes Current Wave 18 No

Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend, etc)?

Yes
No
Other (SPECIFY)

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Provision; Giving help to non-household members 2008 16-120 16 120 Participant Yes Current Wave 18 No

Do you provide some regular service or help for any sick, disabled or elderly person not living with you?
EXCLUDE HELP PROVIDED IN COURSE OF EMPLOYMENT

Is that one person or more than one?
IF MORE THAN ONE PROBE HOW MANY

Part 1:
Yes
No

Part 2:
ENTER NUMBER CARED FOR

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Provision; Caring responsibilities - who 2008 16-120 16 120 Participant Yes Current Wave 18 No

Who is it that you look after or help?

Parent/parent-in-law.
Grandparent
Aunt/uncle
Otherrelative(SPECIFY)
Friend or neighbour
Client(s) of voluntary organisation ..
Other (SPECIFY)

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Provision; Caring responsibilities - inside or outside household? 2008 16-120 16 120 Participant Yes Current Wave 18 No

Does respondent look after or provide any regular care for anyone inside or outside the household?

Yes
No

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Provision; Caring responsibilities - hours per week 2008 16-120 16 120 Participant Yes Current Wave 18 No

In total, how many hours do you spend each week looking after or helping (him/her/them)?

0 – 4 hours per week
5 – 9 hours per week .
10-19 hours per week .
20-34 hours per week .
35-49 hours per week .
50-99 hours per week
100 or more hours per week/
continuous care ..
Varies under 20 hours .
Varies 20 hours or more .
Other (SPECIFY)
Don’t know

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Receipt; Disability benefits 2008 16-120 16 120 Participant Yes Current Wave 18 No

Can I just check, do you currently receive disability benefits of any kind?

Which ones do you receive?

Part 1:
Yes
No

Part 2:
Severe Disablement Allowance.
Industrial Injury
Disablement Allowance
Disability Living Allowance /
Care Component
Disability Living Allowance /
Mobility Component
Disability Living Allowance /
Components not known
Attendance Allowance
Carer’s Allowance
(formerly Invalid Care Allowance)
War Disability Pension.
Incapacity Benefit

Problems or disability connected with: arms, legs, hands,
feet back, or neck (including arthritis and rheumatism)
Difficulty in seeing (other than needing
glasses to read normal size print).
Difficulty in hearing
Skin conditions/allergies
Chest/breathing problems, asthma, bronchitis
Heart/high blood pressure or blood circulation problems
Stomach/liver/kidneys or digestive problems
Diabetes
Anxiety, depression or bad nerves, psychiatric problems
Alcohol or drug related problems Epilepsy.
Migraine or frequent headaches
Cancer
Stroke
Other health problems (PLEASE GIVE DETAILS).

BHPS
Provision; Impact of care provision on paid work 2015 16-120 16 120 Participant No Currently Wave 7 No

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on education 2015 16-120 16 120 Participant No Currently Wave 7 No

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Other income 2015 16-120 16 120 Participant No Currently Wave 7 No

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

UKHLS
Receipt; Use of services 2014 16-120 16 120 Participant No Past year Wave 6 No

Which of these services have you used over the last 12 months?
If used, on a scale of 1 to 7 where 1 means completely dissatisfied and 7 means completely satisfied, how satisfied were you with the service?

Q1.
1. Your local doctor
2. A local hospital
3. Social care services
4. A council housing department or housing association
5. Police service
6. Local leisure service
8. A public library
9. A job centre
10. Advice services 11. None of these

Q2.
Value from 1-7

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities at home 2014 16-120 16 120 Participant No Currently Wave 6 No

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities outside of the home 2014 16-120 16 120 Participant No Currently Wave 6 No

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Care hours provided 2014 16-120 16 120 Participant No Currently Wave 6 No

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on paid work 2014 16-120 16 120 Participant No Currently Wave 6 No

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Other income 2014 16-120 16 120 Participant No Currently Wave 6 No

1. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount of personal contribution for carer 2015 16-120 16 120 Participant No Currently Wave 7 No

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - personal contribution for care as proportion of total cost 2015 16-120 16 120 Participant No Currently Wave 7 No

Does this payment cover all the cost of this help or some of the cost of this help?

1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method of payment for care 2015 16-120 16 120 Participant No Currently Wave 7 No

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

1. My own personal income, savings, pension or benefit (such as Attendance Allowance)
2. My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
3. From another source

Web Interview:
1. Use own personal income, savings, pension or benefit (such as Attendance Allowance)
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - contribution from local authority 2015 16-120 16 120 Participant No Currently Wave 7 No

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount paid from direct payment/personal budget 2015 16-120 16 120 Participant No Currently Wave 7 No

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - reason no payment made to carer 2015 16-120 16 120 Participant No Currently Wave 7 No

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Assessments - from council 2015 16-120 16 120 Participant No Currently Wave 7 No

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Personal budget - eligibility local authority 2015 16-120 16 120 Participant No Currently Wave 7 No

Interviewer:
This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Web Interview:
Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it. Have you been allocated a Personal Budget?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Value of personal budget 2015 16-120 16 120 Participant No Currently Wave 7 No

What is the value of your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Methods of personal budget payment 2015 16-120 16 120 Participant No Currently Wave 7 No

Interviewer:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Web Interview:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care.
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these
Are you taking any of your Personal Budget as a Direct Payment?

1. Yes, all of Personal Budget as Direct Payment
2. Yes, part of Personal Budget as Direct Payment
3. No, none of Personal Budget as Direct Payment
4. SPONTANEOUS: Not being paid my Personal Budget yet.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - contribution by care-receiver 2015 16-120 16 120 Participant No Currently Wave 7 No

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - topping up personal budget 2015 16-120 16 120 Participant No Currently Wave 7 No

In addition to your user charges, do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method of topping up personal budget 2015 16-120 16 120 Participant No Currently Wave 7 No

How much do you pay to top up your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Receipt of care from local authority 2015 16-120 16 120 Participant No Currently Wave 7 No

Do you receive any care paid for by the council or the local authority?

1.Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount council pays for care 2015 16-120 16 120 Participant No Currently Wave 7 No

How much does the council or local authority pay for your care?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Purchase of private care 2015 16-120 16 120 Participant No Currently Wave 7 No

Apart from any care paid for by the local authority, do you pay for any care privately at the moment?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Purchase of private care - cost 2015 16-120 16 120 Participant No Currently Wave 7 No

How much do you pay for the care you purchase privately?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities at home and relationship to carer 2015 16-120 16 120 Participant No Currently Wave 7 No

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities outside of the home 2015 16-120 16 120 Participant No Currently Wave 7 No

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Care hours provided 2015 16-120 16 120 Participant No Currently Wave 7 No

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on education 2016 16-120 16 120 Participant No Currently Wave 8 No

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Other income 2016 16-120 16 120 Participant No Currently Wave 8 No

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Need;Receipt; ADL, IADL - assessment 2015 16-120 16 120 Participant No Currently Wave 7 No

1. Do you usually manage to get up and down stairs or steps…
2. Do you usually manage to get around the house (except for any stairs)…
3. Do you usually manage to get in and out of bed…
4. Do you usually manage to cut your toenails..
5. Do you usually manage to bath, shower or wash all over…
6. Do you usually manage to go out of doors and walk down the road…
7. Do you manage to use the toilet, including getting up and down
8. Do you manage to eat, including cutting up food..
9. Do you manage to wash your face and hands..
10. Do you manage to dress or undress, including putting on shoes and socks…
11. Do you manage to take the right amount of medicine at the right times…
12. Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…
12. Do you manage to do routine housework or laundry…
13. Do you manage to do paperwork or paying bills…

For each 1-13 = ‘on your own’,
a. Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Q1-13
1.On your own
2. Only with help from someone else
3. or Not at all?

Qa
1. Very easy
2. Fairly easy
3. Fairly difficult
4. Very difficult

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Unpaid carer - who 2015 16-120 16 120 Participant No Past month Wave 7 No

1. In the last month, who has helped you with personal things around the home?

2. Does the person who helps you the most live with you?

Q1
1. Husband / Wife / Partner
2. Son (including stepson, adopted son or son-in-law)
3. Daughter (including stepdaughter, adopted daughter or daughter-in-law)
4. Grandchild (including great grandchildren)
5. Brother / Sister (including step/adopted/in-laws)
6. Niece / Nephew
7. Mother / Father (including mother-in-law/father-in-law)
8. Other family member
9. Friend
10. Neighbour
11. None of the above

Q2
1. Resident here
2. Not resident here

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Paid carer - who 2015 16-120 16 120 Participant No Past month Wave 7 No

1. And, which of these people helped you with personal things around the home in the last month?

1. Home care worker / Home help / Personal Assistant
2. A member of the reablement / intermediate care staff team
3. Occupational Therapist / Physiotherapist / Nurse
4. Voluntary helper
5. Warden / Sheltered housing manager
6. Cleaner
7. Council’s handyman
8. Other
9. None of the above

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Care hours received 2015 16-120 16 120 Participant No Past week Wave 7 No

1. Thinking about [carer] , in the last week, how many hours have they helped you in person with these kinds of tasks?

1. No help in the last week
2. Less than one hour
3. 1 – 4 hours
4. 5 – 9 hours
5. 10 – 19 hours
6. 20 – 34 hours
7. 35 – 49 hours
8. 50 – 99 hours
9. 100 hours or more

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment for care 2015 16-120 16 120 Participant No Currently Wave 7 No

Now a few questions about paying for the care you receive. Do you usually deal with paying for your care or does a family member or friend manage this for you?

Interviewer Instruction:
1. Respondent deals with this all him/herself
2. Respondent knows about some of it but not all.
3. Respondent doe not deal with this at all

Web Interview:
1. I deal with this all myself.
2. I know about some of it but not all
3. I do not deal with this at all.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Method of paying for care 2015 16-120 16 120 Participant No Currently Wave 7 No

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Which of these apply to care you receive?

1. Direct Payments where you get the money to spend on the support you choose.
2. You tell the council how to spend the money.
3. You let the council decide how to spend the money.
96. None of these

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Need;Receipt; Assessments - care affordability 2015 16-120 16 120 Participant No Currently Wave 7 No

Has the local authority or council made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing.

1. Yes, had an income assessment
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; How care was arranged 2015 16-120 16 120 Participant No Currently Wave 7 No

How was the help from [HelpCode] arranged?

1. Arranged without involvement from the local authority, council or social service.
2. Local authority, council or social services arranged this help for me
3. Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me.
4. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Need;Receipt; Payment - personal contribution details 2015 16-120 16 120 Participant No Currently Wave 7 No

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Does this payment cover all the cost of this help or some of the cost of this help?

For questions 1:
1. Yes
2. No

For question 2:
Amount in £

For question 3:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

For question 4:
1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method of payment 2015 16-120 16 120 Participant No Currently Wave 7 No

Interviewer Instruction:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you?

Web Interview:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you? Please select all the answers that apply to you.

1. My own personal income, savings, pension or benefit (such as Attendance Allowance).
2. My Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. From another source

1. Use own personal income, savings, pension or benefit (such as Attendance Allowance),
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - other organisations financing care 2015 16-120 16 120 Participant No Currently Wave 7 No

And in addition to what you pay, as far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeA] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

1. Yes, the council, local authority, or social services.
2. Yes, a family member with their own money
3. Yes, other
4. No, nobody else pays

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method local authority pays for care 2015 16-120 16 120 Participant No Currently Wave 7 No

And does the local authority, council or social services pay [SCPayCodeA] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount local authority pays 2015 16-120 16 120 Participant No Currently Wave 7 No

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - period of cover from local authority care payments 2015 16-120 16 120 Participant No Currently Wave 7 No

And what period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount paid from direct payment/personal budget 2015 16-120 16 120 Participant No Currently Wave 7 No

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - period of cover from direct payment/personal budget 2015 16-120 16 120 Participant No Currently Wave 7 No

What period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - why not payment made for carer 2015 16-120 16 120 Participant No Currently Wave 7 No

(If participant stated that no payment was made)

You have told me that no payment was made for [SCPayCodeA] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - personal contribution for carer 2015 16-120 16 120 Participant No Currently Wave 7 No

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Personal budget - eligibility local authority 2017 16-120 16 120 Participant No Currently Wave 9 No

Interviewer:
This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Web Interview:
Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it. Have you been allocated a Personal Budget?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Value of personal budget 2017 16-120 16 120 Participant No Currently Wave 9 No

What is the value of your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Methods of personal budget payment 2017 16-120 16 120 Participant No Currently Wave 9 No

Interviewer:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Web Interview:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care.
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these
Are you taking any of your Personal Budget as a Direct Payment?

1. Yes, all of Personal Budget as Direct Payment
2. Yes, part of Personal Budget as Direct Payment
3. No, none of Personal Budget as Direct Payment
4. SPONTANEOUS: Not being paid my Personal Budget yet.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - contribution by care-receiver 2017 16-120 16 120 Participant No Currently Wave 9 No

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - topping up personal budget 2017 16-120 16 120 Participant No Currently Wave 9 No

In addition to your user charges, do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method of topping up personal budget 2017 16-120 16 120 Participant No Currently Wave 9 No

How much do you pay to top up your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Receipt of care from local authority 2017 16-120 16 120 Participant No Currently Wave 9 No

Do you receive any care paid for by the council or the local authority?

1.Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount council pays for care 2017 16-120 16 120 Participant No Currently Wave 9 No

How much does the council or local authority pay for your care?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Purchase of private care 2017 16-120 16 120 Participant No Currently Wave 9 No

Apart from any care paid for by the local authority, do you pay for any care privately at the moment?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Purchase of private care - cost 2017 16-120 16 120 Participant No Currently Wave 9 No

How much do you pay for the care you purchase privately?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities at home and relationship to carer 2017 16-120 16 120 Participant No Currently Wave 9 No

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities outside of the home 2017 16-120 16 120 Participant No Currently Wave 9 No

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Care hours provided 2017 16-120 16 120 Participant No Currently Wave 9 No

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on paid work 2017 16-120 16 120 Participant No Currently Wave 9 No

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on education 2017 16-120 16 120 Participant No Currently Wave 9 No

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Other income 2017 16-120 16 120 Participant No Currently Wave 9 No

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

UKHLS
Provision; Caring responsibilities at home 2016 16-120 16 120 Participant No Currently Wave 8 No

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities outside of the home 2016 16-120 16 120 Participant No Currently Wave 8 No

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Care hours provided 2016 16-120 16 120 Participant No Currently Wave 8 No

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on paid work 2016 16-120 16 120 Participant No Currently Wave 8 No

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Method of paying for care 2017 16-120 16 120 Participant No Currently Wave 9 No

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Which of these apply to care you receive?

1. Direct Payments where you get the money to spend on the support you choose.
2. You tell the council how to spend the money.
3. You let the council decide how to spend the money.
96. None of these

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Need;Receipt; Assessments - care affordability 2017 16-120 16 120 Participant No Currently Wave 9 No

Has the local authority or council made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing.

1. Yes, had an income assessment
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; How care was arranged 2017 16-120 16 120 Participant No Currently Wave 9 No

How was the help from [HelpCode] arranged?

1. Arranged without involvement from the local authority, council or social service.
2. Local authority, council or social services arranged this help for me
3. Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me.
4. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Need;Receipt; Payment - personal contribution details 2017 16-120 16 120 Participant No Currently Wave 9 No

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Does this payment cover all the cost of this help or some of the cost of this help?

For questions 1:
1. Yes
2. No

For question 2:
Amount in £

For question 3:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

For question 4:
1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method of payment 2017 16-120 16 120 Participant No Currently Wave 9 No

Interviewer Instruction:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you?

Web Interview:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you? Please select all the answers that apply to you.

1. My own personal income, savings, pension or benefit (such as Attendance Allowance).
2. My Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. From another source

1. Use own personal income, savings, pension or benefit (such as Attendance Allowance),
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - other organisations financing care 2017 16-120 16 120 Participant No Currently Wave 9 No

And in addition to what you pay, as far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeA] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

1. Yes, the council, local authority, or social services.
2. Yes, a family member with their own money
3. Yes, other
4. No, nobody else pays

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method local authority pays for care 2017 16-120 16 120 Participant No Currently Wave 9 No

And does the local authority, council or social services pay [SCPayCodeA] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount local authority pays 2017 16-120 16 120 Participant No Currently Wave 9 No

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - period of cover from local authority care payments 2017 16-120 16 120 Participant No Currently Wave 9 No

And what period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount paid from direct payment/personal budget 2017 16-120 16 120 Participant No Currently Wave 9 No

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - period of cover from direct payment/personal budget 2017 16-120 16 120 Participant No Currently Wave 9 No

What period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - why not payment made for carer 2017 16-120 16 120 Participant No Currently Wave 9 No

(If participant stated that no payment was made)

You have told me that no payment was made for [SCPayCodeA] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - personal contribution for carer 2017 16-120 16 120 Participant No Currently Wave 9 No

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount of personal contribution for carer 2017 16-120 16 120 Participant No Currently Wave 9 No

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - personal contribution for care as proportion of total cost 2017 16-120 16 120 Participant No Currently Wave 9 No

Does this payment cover all the cost of this help or some of the cost of this help?

1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method of payment for care 2017 16-120 16 120 Participant No Currently Wave 9 No

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

1. My own personal income, savings, pension or benefit (such as Attendance Allowance)
2. My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
3. From another source

Web Interview:
1. Use own personal income, savings, pension or benefit (such as Attendance Allowance)
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - contribution from local authority 2017 16-120 16 120 Participant No Currently Wave 9 No

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount paid from direct payment/personal budget 2017 16-120 16 120 Participant No Currently Wave 9 No

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - reason no payment made to carer 2017 16-120 16 120 Participant No Currently Wave 9 No

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Assessments - from council 2017 16-120 16 120 Participant No Currently Wave 9 No

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Other income 2019 16-120 16 120 Participant No Currently Wave 11 No

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

UKHLS
Receipt; Health and welfare services used 2020 16-120 16 120 Participant No Past year Wave 12 No

Here is a list of some health and welfare services. Which of these services have you yourself made any use of in the last 12 months?

“1. Health visitor, district nurse
2. Home-help
3. Meals on wheels
4. Social worker or welfare officer
5. Chiropodist
6. Alternative medical practitioner
7. Psychotheratist
8. Speech therapist or occupational therapist
9. Physiotherapist
10. Hospital consultant/outpatients
11. Family planning clinic
97. Any other health or welfare services? 96. None of these”

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities at home 2020 16-120 16 120 Participant No Currently Wave 12 No

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities outside of the home 2020 16-120 16 120 Participant No Currently Wave 12 No

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Care hours provided 2020 16-120 16 120 Participant No Currently Wave 12 No

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on paid work 2020 16-120 16 120 Participant No Currently Wave 12 No

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on education 2020 16-120 16 120 Participant No Currently Wave 12 No

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Other income 2020 16-120 16 120 Participant No Currently Wave 12 No

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Use of services 2018 16-120 16 120 Participant No Past year Wave 10 No

Which of these services have you used over the last 12 months?
If used, on a scale of 1 to 7 where 1 means completely dissatisfied and 7 means completely satisfied, how satisfied were you with the service?

Q1.
1. Your local doctor
2. A local hospital
3. Social care services
4. A council housing department or housing association
5. Police service
6. Local leisure service
8. A public library
9. A job centre
10. Advice services 11. None of these

Q2.
Value from 1-7

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities at home 2018 16-120 16 120 Participant No Currently Wave 10 No

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities outside of the home 2018 16-120 16 120 Participant No Currently Wave 10 No

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Care hours provided 2018 16-120 16 120 Participant No Currently Wave 10 No

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on paid work 2018 16-120 16 120 Participant No Currently Wave 10 No

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on education 2018 16-120 16 120 Participant No Currently Wave 10 No

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Other income 2018 16-120 16 120 Participant No Currently Wave 10 No

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Need;Receipt; ADL, IADL - assessment 2017 16-120 16 120 Participant No Currently Wave 9 No

1. Do you usually manage to get up and down stairs or steps…
2. Do you usually manage to get around the house (except for any stairs)…
3. Do you usually manage to get in and out of bed…
4. Do you usually manage to cut your toenails..
5. Do you usually manage to bath, shower or wash all over…
6. Do you usually manage to go out of doors and walk down the road…
7. Do you manage to use the toilet, including getting up and down
8. Do you manage to eat, including cutting up food..
9. Do you manage to wash your face and hands..
10. Do you manage to dress or undress, including putting on shoes and socks…
11. Do you manage to take the right amount of medicine at the right times…
12. Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…
12. Do you manage to do routine housework or laundry…
13. Do you manage to do paperwork or paying bills…

For each 1-13 = ‘on your own’,
a. Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Q1-13
1.On your own
2. Only with help from someone else
3. or Not at all?

Qa
1. Very easy
2. Fairly easy
3. Fairly difficult
4. Very difficult

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Unpaid carer - who 2017 16-120 16 120 Participant No Past month Wave 9 No

1. In the last month, who has helped you with personal things around the home?

2. Does the person who helps you the most live with you?

Q1
1. Husband / Wife / Partner
2. Son (including stepson, adopted son or son-in-law)
3. Daughter (including stepdaughter, adopted daughter or daughter-in-law)
4. Grandchild (including great grandchildren)
5. Brother / Sister (including step/adopted/in-laws)
6. Niece / Nephew
7. Mother / Father (including mother-in-law/father-in-law)
8. Other family member
9. Friend
10. Neighbour
11. None of the above

Q2
1. Resident here
2. Not resident here

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Paid carer - who 2017 16-120 16 120 Participant No Past month Wave 9 No

1. And, which of these people helped you with personal things around the home in the last month?

1. Home care worker / Home help / Personal Assistant
2. A member of the reablement / intermediate care staff team
3. Occupational Therapist / Physiotherapist / Nurse
4. Voluntary helper
5. Warden / Sheltered housing manager
6. Cleaner
7. Council’s handyman
8. Other
9. None of the above

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Care hours received 2017 16-120 16 120 Participant No Past week Wave 9 No

1. Thinking about [carer] , in the last week, how many hours have they helped you in person with these kinds of tasks?

1. No help in the last week
2. Less than one hour
3. 1 – 4 hours
4. 5 – 9 hours
5. 10 – 19 hours
6. 20 – 34 hours
7. 35 – 49 hours
8. 50 – 99 hours
9. 100 hours or more

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment for care 2017 16-120 16 120 Participant No Currently Wave 9 No

Now a few questions about paying for the care you receive. Do you usually deal with paying for your care or does a family member or friend manage this for you?

Interviewer Instruction:
1. Respondent deals with this all him/herself
2. Respondent knows about some of it but not all.
3. Respondent doe not deal with this at all

Web Interview:
1. I deal with this all myself.
2. I know about some of it but not all
3. I do not deal with this at all.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method of payment for care 2019 16-120 16 120 Participant No Currently Wave 11 No

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

1. My own personal income, savings, pension or benefit (such as Attendance Allowance)
2. My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
3. From another source

Web Interview:
1. Use own personal income, savings, pension or benefit (such as Attendance Allowance)
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - contribution from local authority 2019 16-120 16 120 Participant No Currently Wave 11 No

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount paid from direct payment/personal budget 2019 16-120 16 120 Participant No Currently Wave 11 No

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - reason no payment made to carer 2019 16-120 16 120 Participant No Currently Wave 11 No

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Assessments - from council 2019 16-120 16 120 Participant No Currently Wave 11 No

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Personal budget - eligibility local authority 2019 16-120 16 120 Participant No Currently Wave 11 No

Interviewer:
This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Web Interview:
Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it. Have you been allocated a Personal Budget?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Value of personal budget 2019 16-120 16 120 Participant No Currently Wave 11 No

What is the value of your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Methods of personal budget payment 2019 16-120 16 120 Participant No Currently Wave 11 No

Interviewer:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Web Interview:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care.
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these
Are you taking any of your Personal Budget as a Direct Payment?

1. Yes, all of Personal Budget as Direct Payment
2. Yes, part of Personal Budget as Direct Payment
3. No, none of Personal Budget as Direct Payment
4. SPONTANEOUS: Not being paid my Personal Budget yet.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - contribution by care-receiver 2019 16-120 16 120 Participant No Currently Wave 11 No

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - topping up personal budget 2019 16-120 16 120 Participant No Currently Wave 11 No

In addition to your user charges, do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method of topping up personal budget 2019 16-120 16 120 Participant No Currently Wave 11 No

How much do you pay to top up your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Receipt of care from local authority 2019 16-120 16 120 Participant No Currently Wave 11 No

Do you receive any care paid for by the council or the local authority?

1.Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount council pays for care 2019 16-120 16 120 Participant No Currently Wave 11 No

How much does the council or local authority pay for your care?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Purchase of private care 2019 16-120 16 120 Participant No Currently Wave 11 No

Apart from any care paid for by the local authority, do you pay for any care privately at the moment?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Purchase of private care - cost 2019 16-120 16 120 Participant No Currently Wave 11 No

How much do you pay for the care you purchase privately?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities at home and relationship to carer 2019 16-120 16 120 Participant No Currently Wave 11 No

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Caring responsibilities outside of the home 2019 16-120 16 120 Participant No Currently Wave 11 No

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Care hours provided 2019 16-120 16 120 Participant No Currently Wave 11 No

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on paid work 2019 16-120 16 120 Participant No Currently Wave 11 No

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Impact of care provision on education 2019 16-120 16 120 Participant No Currently Wave 11 No

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Need;Receipt; ADL, IADL - assessment 2019 16-120 16 120 Participant No Currently Wave 11 No

1. Do you usually manage to get up and down stairs or steps…
2. Do you usually manage to get around the house (except for any stairs)…
3. Do you usually manage to get in and out of bed…
4. Do you usually manage to cut your toenails..
5. Do you usually manage to bath, shower or wash all over…
6. Do you usually manage to go out of doors and walk down the road…
7. Do you manage to use the toilet, including getting up and down
8. Do you manage to eat, including cutting up food..
9. Do you manage to wash your face and hands..
10. Do you manage to dress or undress, including putting on shoes and socks…
11. Do you manage to take the right amount of medicine at the right times…
12. Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…
12. Do you manage to do routine housework or laundry…
13. Do you manage to do paperwork or paying bills…

For each 1-13 = ‘on your own’,
a. Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Q1-13
1.On your own
2. Only with help from someone else
3. or Not at all?

Qa
1. Very easy
2. Fairly easy
3. Fairly difficult
4. Very difficult

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Unpaid carer - who 2019 16-120 16 120 Participant No Past month Wave 11 No

1. In the last month, who has helped you with personal things around the home?

2. Does the person who helps you the most live with you?

Q1
1. Husband / Wife / Partner
2. Son (including stepson, adopted son or son-in-law)
3. Daughter (including stepdaughter, adopted daughter or daughter-in-law)
4. Grandchild (including great grandchildren)
5. Brother / Sister (including step/adopted/in-laws)
6. Niece / Nephew
7. Mother / Father (including mother-in-law/father-in-law)
8. Other family member
9. Friend
10. Neighbour
11. None of the above

Q2
1. Resident here
2. Not resident here

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Paid carer - who 2019 16-120 16 120 Participant No Past month Wave 11 No

1. And, which of these people helped you with personal things around the home in the last month?

1. Home care worker / Home help / Personal Assistant
2. A member of the reablement / intermediate care staff team
3. Occupational Therapist / Physiotherapist / Nurse
4. Voluntary helper
5. Warden / Sheltered housing manager
6. Cleaner
7. Council’s handyman
8. Other
9. None of the above

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Care hours received 2019 16-120 16 120 Participant No Past week Wave 11 No

1. Thinking about [carer] , in the last week, how many hours have they helped you in person with these kinds of tasks?

1. No help in the last week
2. Less than one hour
3. 1 – 4 hours
4. 5 – 9 hours
5. 10 – 19 hours
6. 20 – 34 hours
7. 35 – 49 hours
8. 50 – 99 hours
9. 100 hours or more

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment for care 2019 16-120 16 120 Participant No Currently Wave 11 No

Now a few questions about paying for the care you receive. Do you usually deal with paying for your care or does a family member or friend manage this for you?

Interviewer Instruction:
1. Respondent deals with this all him/herself
2. Respondent knows about some of it but not all.
3. Respondent doe not deal with this at all

Web Interview:
1. I deal with this all myself.
2. I know about some of it but not all
3. I do not deal with this at all.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Method of paying for care 2019 16-120 16 120 Participant No Currently Wave 11 No

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Which of these apply to care you receive?

1. Direct Payments where you get the money to spend on the support you choose.
2. You tell the council how to spend the money.
3. You let the council decide how to spend the money.
96. None of these

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Need;Receipt; Assessments - care affordability 2019 16-120 16 120 Participant No Currently Wave 11 No

Has the local authority or council made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing.

1. Yes, had an income assessment
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; How care was arranged 2019 16-120 16 120 Participant No Currently Wave 11 No

How was the help from [HelpCode] arranged?

1. Arranged without involvement from the local authority, council or social service.
2. Local authority, council or social services arranged this help for me
3. Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me.
4. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Need;Receipt; Payment - personal contribution details 2019 16-120 16 120 Participant No Currently Wave 11 No

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Does this payment cover all the cost of this help or some of the cost of this help?

For questions 1:
1. Yes
2. No

For question 2:
Amount in £

For question 3:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

For question 4:
1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method of payment 2019 16-120 16 120 Participant No Currently Wave 11 No

Interviewer Instruction:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you?

Web Interview:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you? Please select all the answers that apply to you.

1. My own personal income, savings, pension or benefit (such as Attendance Allowance).
2. My Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. From another source

1. Use own personal income, savings, pension or benefit (such as Attendance Allowance),
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - other organisations financing care 2019 16-120 16 120 Participant No Currently Wave 11 No

And in addition to what you pay, as far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeA] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

1. Yes, the council, local authority, or social services.
2. Yes, a family member with their own money
3. Yes, other
4. No, nobody else pays

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - method local authority pays for care 2019 16-120 16 120 Participant No Currently Wave 11 No

And does the local authority, council or social services pay [SCPayCodeA] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount local authority pays 2019 16-120 16 120 Participant No Currently Wave 11 No

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - period of cover from local authority care payments 2019 16-120 16 120 Participant No Currently Wave 11 No

And what period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount paid from direct payment/personal budget 2019 16-120 16 120 Participant No Currently Wave 11 No

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - period of cover from direct payment/personal budget 2019 16-120 16 120 Participant No Currently Wave 11 No

What period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - why not payment made for carer 2019 16-120 16 120 Participant No Currently Wave 11 No

(If participant stated that no payment was made)

You have told me that no payment was made for [SCPayCodeA] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - personal contribution for carer 2019 16-120 16 120 Participant No Currently Wave 11 No

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - amount of personal contribution for carer 2019 16-120 16 120 Participant No Currently Wave 11 No

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Receipt; Payment - personal contribution for care as proportion of total cost 2019 16-120 16 120 Participant No Currently Wave 11 No

Does this payment cover all the cost of this help or some of the cost of this help?

1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

UKHLS
Provision; Full or part-time carer 2020 16-120 16 120 Participant No Current Parents 2020 No

Are you currently:

a. In full-time paid work (30 or more hours a week)
b. In part-time paid work (less than 30 hours a week)
c. In irregular or occasional work
d. Retired
e. Unemployed and looking for work
f. Unable to work through sickness/disability
g. In full-time education
h. In part-time education
i. Doing voluntary work
j. Self-employed
k. A full/part-time carer
l. Other work or education activity (please describe)

ALSPAC
Provision; Ability to complete IADL/ADLs 2012 16-120 16 120 Participant No Current Your life 2013 No

The following questions are about activities you might do during a typical day. Does your health
limit you in these activities? If so, how much?

a) Vigorous activities, such as running, lifting
heavy objects, participating in strenuous sports
b) Moderate activities, such as moving a table,
pushing a vacuum, bowling or playing golf
c) Lifting or carrying groceries
d) Climbing several flights of stairs
e) Climbing one flight of stairs
f) Bending, kneeling or stooping
g) Walking more than a mile
h) Walking half a mile
i) Walking 100 yards
j) Bathing and dressing yourself

Response scale for all data items:
Yes, limited a lot
Yes, limited a little
No, not limited at all

ALSPAC
Provision; Full or part-time carer 2012 16-120 16 120 Participant No Current Your life 2013 No

Are you/your partner currently?

Employed in a paid job (full or part-time)
Retired
Unemployed and seeking work
Unable to work through sickness/disability
Full/part-time student
Doing voluntary work
Looking after family/home
Self employed
Full/Part time carer
Other, please describe:

ALSPAC
Need; Ability to complete IADL/ADLs 2010 16-120 16 120 Participant No Current You and your life 2010 No

The following questions are about activities you might do during a typical day. Does your health
limit you in these activities? If so, how much?

a) Vigorous activities, such as running, lifting
heavy objects, participating in strenuous sports
b) Moderate activities, such as moving a table,
pushing a vacuum, bowling or playing golf
c) Lifting or carrying groceries
d) Climbing several flights of stairs
e) Climbing one flight of stairs
f) Bending, kneeling or stooping
g) Walking more than a mile
h) Walking half a mile
i) Walking 100 yards
j) Bathing and dressing yourself

Response scale for all data items:
Yes, limited a lot
Yes, limited a little
No, not limited at all

ALSPAC
Provision; Caring responsibilities and hours per week 2002 16-120 16 120 Participant No Current Lifestyle and health of mother (11y) No

How many hours each week approximately do you spend time doing the following:

a) Preparing food, cooking and washing up
b) Shopping for food and groceries
c) Shopping and browsing in shops for other items (e.g. clothes, toys)
d) Cleaning the house
e) Doing the washing and ironing
f) Caring for pre-school children or babies at home (not as paid employment)
g) Caring for handicapped, elderly or disabled people at home (not as paid employment)

Response scale for each data item:
None
Less than 1 hour
Between 1 and 3 hours
Between 3 and 6 hours
Between 6 and 10 hours
Between 10 and 15 hours
More than 15 hours

ALSPAC
Provision; Full or part-time carer 2019 26-28 26 28 Child No Current Life at 27+ No

Are you currently: Please cross one circle on each line.

a. In full-time paid work (30 or more hours a week)
b. In part-time paid work (less than 30 hours a week)
c. In irregular or occasional work
d. Doing a modern apprenticeship or other government
supported training/work-experience scheme
e. Unemployed and looking for work
f. Unable to work through sickness/disability
g. In full-time education
h. In part-time education
i. Doing voluntary work
j. Self-employed
k. A full/part-time carer
l. Other (please specify)

ALSPAC
Receipt; History of being in care 2019 26-28 26 28 Child No Entire life Life at 27+ No

Were you ever ‘in care’ of either a local authority or voluntary agency
(e.g. Barnardo’s)?

Yes
No
Unsure

ALSPAC
Provision; Full or part-time carer 2017 24-26 24 26 Child No Current Life at 25+ No

Are you currently:

a. In full-time paid work (30 or more hours a week)
b. In part-time paid work (less than 30 hours a week)
c. In irregular or occasional work
d. Doing a modern apprenticeship or other government
supported training/work-experience scheme
e. Unemployed and looking for work
f. Unable to work through sickness/disability
g. In full-time education
h. Doing voluntary work
i. Self-employed
j. A full/part-time carer
k. Other (please specify)

ALSPAC
Provision; Full or part-time carer 2014 21-23 21 23 Child No Current Life at 22+ No

Are you currently:

a. In full-time paid work (30 or more hours a week)
b. In part-time paid work (less than 30 hours a week)
c. In irregular or occasional work
d. Doing a modern apprenticeship or other government
supported training/work-experience scheme
e. Unemployed and looking for work
f. Unable to work through sickness/disability
g. In full-time education
h. Doing voluntary work
i. Self-employed
j. A full/part-time carer
k. Other (please specify)

ALSPAC
Need; Ability to complete IADL/ADLs 2013 20-22 20 22 Child No Current Your life now (21 years) No

The following questions are about activities you might do during a typical day. Does your health limit you in
these activities? If so how much?

a) Vigorous activities, such as running, lifting heavy
objects, participating in strenuous sports
b) Moderate activities, such as moving a table, pushing a
vacuum, bowling or playing golf
c) Lifting or carrying groceries 1 2 3
d) Climbing several flights of stairs 1 2 3
e) Climbing one flight of stairs 1 2 3
f) Bending, kneeling or stooping 1 2 3
g) Walking more than a mile 1 2 3
h) Walking several hundred yards 1 2 3
i) Walking one hundred yards 1 2 3
j) Bathing and dressing yourself

ALSPAC
Need; Ability to complete IADL/ADLs 2010 17-19 17 19 Child No Current Your changing life No

The following questions are about activities you might do during a typical day. Does your health limit you in
these activities? If so how much?

a) Vigorous activities, such as running, lifting heavy
objects, participating in strenuous sports
b) Moderate activities, such as moving a table, pushing a
vacuum, bowling or playing golf
c) Lifting or carrying groceries 1 2 3
d) Climbing several flights of stairs 1 2 3
e) Climbing one flight of stairs 1 2 3
f) Bending, kneeling or stooping 1 2 3
g) Walking more than a mile 1 2 3
h) Walking several hundred yards 1 2 3
i) Walking one hundred yards 1 2 3
j) Bathing and dressing yourself

ALSPAC
Provision; Caring responsibilities 2002 16-120 16 120 Partner No Current Lifestyle and health of partner No

How many hours each week approximately do you spend time doing the following:

a) Preparing food, cooking and washing up
b) Shopping for food and groceries
c) Shopping and browsing in shops for other items (e.g. clothes, toys)
d) Cleaning the house
e) Doing the washing and ironing
f) Caring for pre-school children or babies at home (not as paid employment)
g) Caring for handicapped, elderly or disabled people at home (not as paid employment)

ALSPAC
Provision; Full or part-time carer 2020 16-120 16 120 Partner No Current Parents 2020 No

Are you currently: Please cross one box on each line.

a. In full-time paid work (30 or more hours a week)
b. In part-time paid work (less than 30 hours a week)
c. In irregular or occasional work
d. Retired
e. Unemployed and looking for work
f. Unable to work through sickness/disability
g. In full-time education
h. In part-time education
i. Doing voluntary work
j. Self-employed
k. A full/part-time carer
l. Other work or education activity (please describe)

ALSPAC
Receipt; Source of admission to NHS services 2021 0-120 0 120 NHS Comissioner Yes Past month Apr-21 No

Source of Admission Code

19 Usual place of residence
29 Temporary place of residence when usually resident elsewhere
39 Penal establishment
49 NHS other hospital provider – high security psychiatric accommodation in an NHS hospital
51 NHS other hospital provider – ward for general patients / A&E
53 NHS other hospital provider – Ward for patients who are mentally ill or have learning disabilities
54 NHS run care home
65 Local Authority residential accommodation
66 Local Authority foster care 85 Non–NHS run care home 87 Non–NHS run hospital
88 Non–NHS run hospice

AT
Receipt; Support in managing affairs 2021 0-120 0 120 NHS Comissioner Yes Past month Apr-21 No

Does the patient have someone who supports them to manage their affairs?

2 Appointee (for DWP benefits)
11 Someone with parental responsibility (for a child)
12 Local authority (for a Looked After Child (LAC) at point of admission)
13 Attorney under the Mental Capacity Act
14 Attorney under last or enduring power of attorney
15 Deputy appointed by the Court of Protection
8 No
9 Don’t know

AT
Receipt; Respite as reasons of admission to NHS services 2021 0-120 0 120 NHS Comissioner Yes Past month Apr-21 No

Q34: Was the patient admitted for respite only?

Y Yes
N No

AT
Receipt; Use of care coordiantor 2021 0-120 0 120 NHS Comissioner Yes Past month Apr-21 No

Q35 Does the patient have a named locality care coordinator/care manager?

Y Yes
N No

AT
Receipt; Receipt of EHC plan 2021 0-120 0 120 NHS Comissioner Yes Past month Apr-21 No

Q36: Does the young person have an Education Health and Care plan (EHC plan)?

Y Yes
N No
Z Not applicable

AT
Receipt; Transfer destination upon NHS discharge 2021 0-120 0 120 NHS Comissioner Yes Past month Apr-21 No

Q44: Where is the patient’s planned transfer to?

1 Independent Living
2 Supported Housing
3 Family home
4 Residential Care
5 Residential School or College
50 Acute hospitals for physical health care
51 Prison
14 No transfer planned 16 Other
Adult Mental Health/Learning Disability Bed
110 Acute adult mental health care
111 Acute older adult mental health care (organic and functional)
112 Psychiatric Intensive Care Unit (acute mental health care)
113 Eating Disorders
114 Mother and baby
115 Learning Disabilities
116 Low secure/locked rehabilitation
117 High dependency rehabilitation
118 Long term rehabilitation/ Continuing Care
119 Low secure
120 Medium secure
121 High secure
Children and Young people Mental Health/Learning Disability Bed
123 General Child and Adolescent Mental Health (CAMHS) inpatient – Child (including High Dependency)
124 General Child and Adolescent Mental Health (CAMHS) inpatient – Adolescent (including High Dependency)
125 Eating Disorders inpatient – Adolescent (above 12)
126 Eating Disorders inpatient – Child (12 years and under)
127 Low Secure Mental Illness
128 Medium Secure Mental Illness
129 Child Mental Health inpatient services for the Deaf
130 Learning Disabilities / Autistic Spectrum Disorder inpatient
131 Low Secure Learning Disabilities
132 Medium Secure Learning Disabilities 133 Severe Obsessive Compulsive Disorder and Body Dysmorphic Disorder – Adolescent
134 Psychiatric Intensive Care Unit
122 Neuro-psychiatry / Acquired Brain Injury
140 Adult Personality Disorder 141 Adult Deaf

AT
Receipt; Details of care plan and reasons NHS discharge being delayed 2021 0-120 0 120 NHS Comissioner Yes Past month Apr-21 No

Q42 Details of a patient’s care plan

If Q42 is coded 6, what are the reasons for the patient’s planned transfer of care not having an agreed date? If Q42 is code 6, Q48a-s must be answered.

Q48b Lack of agreed social care funding

Q48d Awaiting residential home placement or availability

Q48e Awaiting nursing home placement or availability

Q48f Awaiting care package in own home

Q48g Awaiting community equipment and adaptations

Q48j Lack of social care support

Q48I Awaiting residential special school or college placement or availability

Q48p No lawful community care package available (non– clinical reason including impact of MM/PJ judgements)

Response scale for Q42:
2 Currently receiving active treatment plan, discharge plan not in place
3 Currently receiving active treatment and working towards discharge or with discharge plan in place
6 Delayed transfer of care: no community option or onward placement available or deliverable
7 Unable to discharge due to legal restrictions (e.g. MM judgement)

Response scale for Q49’s social care related measures:
Y Yes
N No

AT
Receipt; Complaining about support received 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Have you ever wanted to complain about the support you get?

Yes
No

AWLDE
Receipt; Accommodation inc. residential care 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Does the respondent live in … – Probe if
necessary

In fully private household – (with support person or independently)
• In supported housing
• In residential care
• Long stay hospital or retained NHS bed

AWLDE
Receipt; Name of residential accommodation 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Who runs (name of residential accommodation)? (Probe if necessary)

• NHS
• Private
• Charity/voluntary organisation

AWLDE
Receipt; Receipt of help at home 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Does someone help you at home? (i.e. support person)

Open response

AWLDE
Need; Need of help at home 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Would you like someone to help you at home?

Open response

AWLDE
Receipt; Person who helps at home 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Who helps you [at home]? Is it a relative or friend or a paid support person?

Relative (parent/partner/other family)
• Friend
• Paid/ professional support person

AWLDE
Receipt; Frequency of help at home 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

How often do you get help from your relatives and (or) friends/paid support person?

• Live in same place
• Every day (not resident)
• Most days
• A few times week
• Once a week
• Less often

AWLDE
Receipt; Place lived before inc. residential accommodation 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Before you moved to where you live now, where did you used to live? (Probe to find out what type of accommodation it was) (if necessary – where did you live before?)

• In fully private household–(with support person/friends or family or independently
• In supported housing
• In residential care
• Long stay hospital or retained NHS bed

AWLDE
Receipt; Help from residential home 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Did you get any help from the people at (XXX – name collected earlier) before you moved there? (SP)

Yes
No

AWLDE
Need; Ability to complete ADLs and IADLs 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

I want you to tell me for each thing whether you can do it on your own, or you need a bit of help, a lot of help or someone to do it for you. So first of all …

• Getting dressed in the morning
• Putting on a pair of shoes
• Having a shower or a bath
• Ordering something to eat or drink at a cafe
• Drinking a cup of tea
• Washing your clothes
• Making a sandwich
• Filling in a form (for example if you were applying for a job)
• Finding out what is on the TV tonight
• Paying money into your bank or Post Office
• Making an appointment (for example to see your doctor)(SP)

AWLDE
Receipt; Help completing ADLs and IADLs 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

And do you get any help with (SP)

• Getting dressed in the morning
• Putting on a pair of shoes
• Having a shower or a bath
• Ordering something to eat or drink at a cafe
• Drinking a cup of tea
• Washing your clothes
• Making a sandwich
• Filling in a form (for example if you were applying for a job)
• Finding out what is on the TV tonight
• Paying money into your bank or Post Office
• Making an appointment (for example to see your doctor) (SP)

AWLDE
Receipt; Unwanted intrusions by carer 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Does anyone come into your room without asking or when you don’t want them to? (CIP)

Who does this?

Part 1:
Yes
No

Part 2:
• Paid support person/carer/staff at residential home
• Someone else you live with
• Family or friend you DON’T live with
• Other (SPECIFY)

AWLDE
Provision; Caring responsibilities 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Does anyone live with you who is old, sick or disabled?
IF YES

Do you have to look after them? (Amended GHS/HSE)

So who is it you look after?

What do you do to help them?

Does anyone help you look after them?

Who helps you?

How happy are you with the help you get?

Would you like (more) help looking after them?

If you needed help, who would you turn to?

Part 1:
Yes
No

Part 2:
Yes
No

Part 3:
• Parent
• Partner
• Child
• Other relative
• Friend

Part 4:
• Cooking
• Washing / ironing
• Cleaning
• Shopping
• Personal care e.g. personal hygiene, taking to the toilet etc

Part 5:
Yes
No

Part 6:
• Parent
• Partner
• Child
• Other relative
• Friend
• Paid help/professional support person/staff at residential home
• Other

Part 7:
• Very happy
• Quite happy
• Not happy

Part 8:
Yes
No

Part 9:
• Parent
• Partner
• Child
• Other relative
• Friend
• Paid help/professional support person/staff at residential home
• Social services
• Other

AWLDE
Provision;Receipt; Support with caring responsibilities - children 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Do you look after your children/ child?

Does anyone help you look after them?

Who?

How happy are you with the help you receive?

Would you like (more) help looking after your child / children?

If you needed help, who would you turn to?

Part 1:
Yes
No

Part 2:
Yes
No

Part 3:
• Parent
• Partner
• Child
• Other relative
• Friend
• Paid help/professional support person/staff at residential home
• Social services
• Other

Part 4:
• Very happy
• Quite happy
• Not happy

Part 5:
Yes
No

Part 6:
• Parent
• Partner
• Child
• Other relative
• Friend
• Paid help/professional support person/staff at residential home
• Social services
• Other

AWLDE
Receipt; IADL- managing money 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Do you choose how much money you can spend each week? (or does someone else decide how much money you can have?)(adapted from CIP)

Do you choose the things you buy with your money? (adapted from CIP)

Does someone help you look after your money?

Who helps you?

Would you like any (more) help with looking after your money?

Who from?

Part 1:
Yes
No

Part 2:
Yes
No

Part 3:
Yes
No

Part 4:
• Parent
• Partner
• Child
• Other relative
• Friend
• Paid help / professional support person/staff at residential home
• Social services
• Other

Part 5:
Yes
No

Part 6:
• Parent
• Partner
• Child
• Other relative
• Friend
• Paid help / professional support person/staff at residential home
• Social services
• Other

AWLDE
Receipt; Receipt of benefits 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Do you receive any benefits?

IF YES

And what benefits do you receive?

Do you receive your benefits yourself or does someone else receive them for you?

Who gets your benefits for you?

Part 1:
Yes
No

Part 2:
• Disability Living Allowance
• Severe disability allowance
• Income Support
• Incapacity Benefit
• Housing benefit
• Other

Part 3:
Yes
No

Part 4:
• Parent
• Partner
• Child
• Other relative
• Friend
• Paid help / professional support person/staff at residential home
• Social services
• Other

AWLDE
Receipt; Receipt of Direct Payments 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Have you heard of Direct Payments? This is where you get money yourself and you buy the services you need with that money. This is instead of other people choosing things for you

Have you applied for Direct Payments

Do you get Direct Payments

Part 1-3:
Yes
No

AWLDE
Receipt; Management of benefits on behalf of participant 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Can I just check whether (name of respondent) does receive all of their own benefits, or whether somebody else receives them and manages them on their behalf?

Open response

AWLDE
Receipt; Use of day centres 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Do you ever go to a day centre?

NOTE – find out the name of the day centre to substitute in the next few questions

How many days a week do you go to XX?

Part 1:
Yes
No

Part 2:
Open response

AWLDE
Receipt; Bullying - including by support worker 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

Have people been rude or nasty to you because of your learning difficulty in the last year?

Who was rude or nasty to you?

Part 1:
Yes
No

Part 2:
• Paid support worker/carer/staff at residential home
• Someone they live with (not support worker)
• Someone at day centre (not support worker)
• Someone they work with
• A stranger/someone they did not know
• Other(specify)

AWLDE
Receipt; Happiness with support received 2003 16-120 16 120 Participant or carer No Current 2003 Sweep No

How happy are you with the support you get?

Who arranges this support for you? (if necessary–who would you go to if you needed support or help with anything)

Part 1:
• Very happy
• Quite happy
• Not happy

Part 2:
• Family member
• Friend (not paid)
• Paid support person/staff at residential home
• Social Worker/Care Manager
• Key Worker/Care worker
• Other(specify)

AWLDE
Provision; Gross expenditure - short term care - 65+ - purpose & support reason 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on short term care for clients aged 65 and over, by purpose and primary support reason

This is divided up into two main data headings (and a total):
To maximise independence
Other short term
Information inside each main data heading, data items are recorded by the following terms:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross expenditure - short term care - independence per 100,000 adults - year on year 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on short term care to maximise independence per 100,000 adults, year on year comparison

This measure is divided up for the two years in question into:
Gross Current Expenditure per 100,000 adults
Gross Current Expenditure
Population

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

For data items 1 and 2:
Amount in £

For data items 3:
Population (number of people)

ASC-FR
Provision; Gross expenditure - long term care - 18 to 64 - support setting 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on long term care for clients aged 18 to 64, by support setting

Data was collected under the following data items:
Nursing
Residential
Supported Accommodation
Community: Direct Payments
Community: Home Care
Community: Supported Living
Community: Supported Living
Community: Other Long Term Care
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross expenditure - long term care - 65+ - support setting 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on long term care for clients aged 65 and over, by support setting

Data was collected under the following data items:
Nursing
Residential
Supported Accommodation
Community: Direct Payments
Community: Home Care
Community: Supported Living
Community: Supported Living
Community: Other Long Term Care
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross expenditure - long term care - setting - age band - support reason 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on long term care, by support setting, age band and primary support reason

Primary support reasons are separated into three groups:
-18-64 years old
-65+ years old
-Total
And inside each group data is recorded into the following data items:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
And then collected for the following categories:
Nursing
Residential
Supported Accommodation
Community: Direct Payments
Community: Home Care
Community: Supported Living
Community: Supported Living
Community: Other Long Term Care
Total

+O27O25O26

Amount in £

ASC-FR
Provision; Gross expenditure - other social care - support reason 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on other (not long or short term) social care, by primary support reason

Information is collected for this measures under the following data items for all councils:
Social Support: Substance Misuse Support
Social Support: Asylum Seeker Support
Social Support: Support to Carer
Social Support: Support for Social Isolation/Other
Assistive Equipment and Technology
Social Care Activities
Information and Early Intervention
Commissioning and Service Delivery
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Unit costs - average standard hourly rate - year on year comparison 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Unit costs, average weighted standard hourly rate for the provision of home care by activity provision, year on year comparison

Unit costs per hour described above are compared between adjacent years under the following data items:
In house
External

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Unit costs - long term support - support setting/age band - year on year comparison: 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Unit costs for clients accessing long term support, by support setting and age band, year on year comparison:

This measure is divided up into nursing, residential and nursing & residential (and a total).
For each category, the data is further divided up into:
18-64 years
65+ years
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Costs - 18 to 64 - residential or nursing - long term support - primary support reason 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Unit costs for clients aged 18 to 64 accessing residential or nursing long term support, by support setting and primary support reason

This measure is divided up into nursing, residential and nursing & residential (and a total). For each category, the data is further divided up into:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Physical Support
Sensory Support
Learning Disability Support (nursing & residential only)
Mental Health Support (nursing & residential only)

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Costs - 65+ - residential or nursing - long term support - primary support reason 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Unit costs for clients aged 65 and over accessing residential or nursing long term support, by support setting and primary support reason

This measure is divided up into nursing, residential and nursing & residential (and a total). For each category, the data is further divided up into:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Physical Support
Sensory Support
Learning Disability Support (nursing & residential only)
Mental Health Support (nursing & residential only)

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Costs - residential long term support - provision type - year on year comparison 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Unit costs for clients accessing residential long term support, by provision type and age band, year on year comparison

This measure is broken down into two large categories: external and in house.
Inside these categories, data is recorded by the following age categories:
18-64 years
65+ years
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Expenditure and income - own provision, provision by others, grants 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Expenditure and income, by finance type and finance description

Expenditure is broken down into the following data items:
Own provision
Provision by others
Grants to voluntary organisations
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Expenditure and income - Contributions, income from NHS, etc. 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Expenditure and income, by finance type and finance description

Income is broken down into:
Client Contributions
Joint Arrangements
Income from NHS
Other Income
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Capital - own Provision/provision by others 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Expenditure and income, by finance type and finance description

Capital is broken down into:
Own Provision
Provision by Others
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Net total expenditure/gross total expenditure/gross current expenditure 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Expenditure and income, by finance type and finance description

Net total expenditure, gross total expenditure and gross current expenditure are all broken down into financial years.

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross Current Expenditure in cash and real terms 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure in cash and real terms

This is recorded each year from 2005-6 financial year under the following two data items:
Cash terms
Real terms

Percentage changes between years are also calculated.

Amount in £

ASC-FR
Provision; Year on year comparison - own Provision/provision by other etc. 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Expenditure, by finance description, year on year comparison

This measure is collected under the following data items:
Own Provision
Provision by Others
Grants to Voluntary Organisations
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Year on year comparison - client contributions, income from NHS etc. 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Income, by finance description, year on year comparison

This measures is recorded by the following data items:
Client Contributions
Joint Arrangements
Income from NHS
Other Income
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Client Contributions - Long Term Care/Short Term Care 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Income, by finance description, care type and age band

Client Contributions are recorded under the following data items:
Long Term Care
Short Term Care
Other

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Joint Arrangements - Long Term Care/Short Term Care 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Income, by finance description, care type and age band

Joint Arrangements are recorded under the following data items:
Long Term Care
Short Term Care
Other

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Income from NHS - Long Term Care/Short Term Care 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Income, by finance description, care type and age band

Income from NHS is recorded under the following data items:
Long Term Care
Short Term Care
Other

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Other income - Long Term Care/Short Term Care 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Income, by finance description, care type and age band

Other income is recorded under the following data items:
Long Term Care
Short Term Care
Other

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross expenditure - Long Term Support GCE, Short Term Support GCE, etc. 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure, by care type

Gross current expenditure is divided into the following care type data items:
Long Term Support GCE
Long Term Support (as per cent of total)
Short Term Support GCE
Short Term Support (as per cent of total)
Other GCE
Other (as per cent of total)
Total Gross Current Expenditure (GCE)

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross expenditure between years - Long Term Support GCE, Short Term Support GCE, etc. 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure, by care type, year on year comparison

Gross current expenditure is compared between adjacent financial years with regard to the following data items:
Long Term Support GCE
Short Term Support GCE
Other GCE
Total Gross Current Expenditure (GCE)

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross Current Expenditure per 100,000 adults - compared between years 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure per 100,000 adults, year on year comparison

Gross Current Expenditure per 100,000 adults is compared between adjacent financial years with regard to the following data items:
Gross Current Expenditure per 100,000 adults
Gross Current Expenditure
Population

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

For data items 1 and 2:
Amount in £

For data items 3:
Population (number of people)

ASC-FR
Provision; Gross expenditure on long and short term care between data sets. 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on long and short term care, by care type and age band, year on year comparison

Gross Current Expenditure on long and short term care, is compared between data sets. This is done for long term care then, separately, for short term care and then finally gives the total for all care under the following age categories:
18 to 64
65 and Over
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross expenditure - long term care - age band and primary support reason 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on long and short term care combined, by age band and primary support reason

Data is collected for 18-64 year olds and then separately for those aged 65+ under the following data items (then there is a final combined total given):
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross expenditure - short term care - age band and primary support reason 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on long and short term care for clients aged 18 to 64, by care type and primary support reason

Data is collected for 18-64 year olds under the following data items for long term care and then, separately, for short term care (then there is a final combined total given):
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross expenditure - short and long term care - age band and primary support reason 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on long and short term care for clients aged 65+, by care type and primary support reason

Data is collected for 65+ year olds under the following data items for long term care and then, separately, for short term care (then there is a final combined total given):
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support
Total

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Gross expenditure - short term care - age band and primary support reason 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on short term care, by purpose, age band and primary support reason.

Primary support reasons are separated into three groups:
-18-64 years old
-65+ years old
-Total
And inside each group data is recorded into the following data items:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support

Response scale for each individual data item:
To Maximise Independence (amount in £)
Other Short Term (amount in £)
Total (amount in £)

ASC-FR
Provision; Gross expenditure - short term care - 18 to 64 - purpose & support reason 2019 18-120 18 120 Local authority professional No Financial year ASC-FR template No

Gross Current Expenditure on short term care for clients aged 18 to 64, by purpose and primary support reason

This is divided up into two main data headings (and a total):
To maximise independence
Other short term
Information inside each main data heading, data items are recorded by the following terms:
Physical Support
Sensory Support
Support with Memory and Cognition
Learning Disability Support
Mental Health Support

Data is collated for the following regions:
England
North East
North West
Yorkshire and The Humber
East Midlands
West Midlands
East of England
London
South East
South West

But primarily collected at local authority level:
Northumberland
Gateshead
Newcastle upon Tyne
North Tyneside
South Tyneside
Sunderland
Hartlepool
Middlesbrough
Redcar and Cleveland
Stockton-on-Tees
County Durham
Darlington
Cumbria
Bolton
Bury
Manchester
Oldham
Rochdale
Salford
Stockport
Tameside
Trafford
Wigan
Knowsley
Liverpool
Sefton
St. Helens
Wirral
Halton
Warrington
Lancashire
Blackburn with Darwen
Blackpool
Cheshire East
Cheshire West and Chester
Barnsley
Doncaster
Rotherham
Sheffield
Bradford
Calderdale
Kirklees
Leeds
Wakefield
East Riding of Yorkshire
Kingston upon Hull, City of
North East Lincolnshire
North Lincolnshire
North Yorkshire
York
Lincolnshire
Northamptonshire
Derbyshire
Derby
Leicestershire
Leicester
Rutland
Nottinghamshire
Nottingham
Warwickshire
Birmingham
Coventry
Dudley
Sandwell
Solihull
Walsall
Wolverhampton
Staffordshire
Stoke-on-Trent
Herefordshire, County of
Worcestershire
Shropshire
Telford and Wrekin
Hertfordshire
Norfolk
Suffolk
Luton
Essex
Southend-on-Sea
Thurrock
Cambridgeshire
Peterborough
Bedford
Central Bedfordshire
Camden
Greenwich
Hackney
Hammersmith and Fulham
Islington
Kensington and Chelsea
Lambeth
Lewisham
Southwark
Tower Hamlets
Wandsworth
Westminster
City of London
Barking and Dagenham
Barnet
Bexley
Brent
Bromley
Croydon
Ealing
Enfield
Haringey
Harrow
Havering
Hillingdon
Hounslow
Kingston upon Thames
Merton
Newham
Redbridge
Richmond upon Thames
Sutton
Waltham Forest
Oxfordshire
Buckinghamshire
Milton Keynes
Bracknell Forest
West Berkshire
Reading
Slough
Windsor and Maidenhead
Wokingham
Isle of Wight
Surrey
West Sussex
Hampshire
Portsmouth
Southampton
East Sussex
Brighton and Hove
Kent
Medway
Buckinghamshire
Bournemouth, Christchurch and Poole
Dorset
Wiltshire
Swindon
Cornwall
Gloucestershire
Somerset
Isles of Scilly
Bath and North East Somerset
Bristol, City of
North Somerset
South Gloucestershire
Devon
Plymouth
Torbay

Amount in £

ASC-FR
Provision; Reason for not seeking employment inc. caring responsibilities. 2012 41-43 41 43 Participant No Current 2012 No

IF not looking for paid work [LOOKJOB = 4]

Why is that? PROBE: What other reasons?

CODE ALL THAT APPLY
01 There are no jobs in the right place for me
02 There are no jobs with the right hours for me
03 There are no jobs available for me
04 I am in full-time education
05 I am on a training course
06 My family would lose benefits if I was earning
07 I am caring for an elderly or ill relative or friend
08 I cannot work because of poor health/disability
09 I prefer not to work
10 Prefer to be at home with the family rather than working
11 I prefer to look after my children myself
12 I cannot earn enough to pay for childcare
13 I cannot find suitable childcare
14 Child has health problems/suffers from a disability
15 My husband/wife/partner disapproves
16 I have a new baby
17 Other reason (specify)

BCS
Receipt; Receipt of benefits including carer's allowance 2012 41-43 41 43 Participant No Current 2012 No

You said that you [or [^partner’s name/your husband/wife/partner] receive some other type of state benefit?

What kind of benefit is this?

Sickness/Disability/Incapacity: Incapacity Benefit, Employment and Support Allowance,
Severe Disablement Allowance,
Carer’s Allowance,
Disability Living Allowance, Return to
Work Credit,
Attendance Allowance,
Industrial Injury
Disablement Benefit,
War Disablement Pension,
Sickness and Accident Insurance,
Any other disability related benefit or payment

BCS
Provision; Providing care to others and time spent caring. 2012 41-43 41 43 Participant No Current 2012 No

Nowadays, do you regularly or frequently do any of the things on this card for your parents/your mother/your father partner’s name’s?

01 Giving them lifts in your car if you have one
02 Shopping for them
03 Providing or cooking meals
04 Helping with basic personal needs like dressing, eating or bathing
05 Washing, ironing or cleaning
06 Dealing with personal affairs e.g. paying bills, writing letters
07 Decorating, gardening or house repairs
08 Any other help

IF cohort member does any tasks for parent(s)
How many hours do you spend doing this/these things for your parents/your mother/your father, partner’s name’s, parents/mother/father, parents/mother/father in a typical week?

Part 1:
Yes
No

Part 2:
Range: 0..997

BCS
Provision; Identity of carer who is answering on behalf of participant 2012 41-43 41 43 Carer No Current 2012 No

INTERVIEWER: Enter carer’s first name.
What is your relationship to [^cohort member’s name]?
INTERVIEWER: The person you are talking to is the cohort member’s…

01 Mother (include adopted/step mother)
02 Father (include adopted/step father)
03 Sister (include half/adopted/step sister)
04 Brother (include half/adopted/step brother)
05 Daughter (include adopted/step daughter)
06 Son (include adopted/step son)
07 Other relative
08 Friend
09 Unrelated carer
10 Other person (SPECIFY)

BCS
Provision; Leaving work to care for family member 2016 45-47 45 47 Participant No Current 2016 No

What was the main reason you stopped that period of activity with that employer”}?

1. Fixed term or temporary job ended
2. Made redundant
3. Voluntary redundancy
4. Dismissed from a job
5. Retired
6. Left job for health reasons
7. Career break
8. More money
9. Better job
10. Firm closed down / business failed
11. Left to care for family member
12. Moved to a different area
13. Just decided to leave

BCS
Provision; Helping parents with ADLs/IADLs 2021 50-52 50 52 Participant No Current 2021 No

*Note: data for this sweep will be available in early 2024.

Nowadays, do you regularly or frequently do any of the following things for your mother, your father, your parents?

1. Giving lifts in your car if you have one
2. Shopping
3. Providing or cooking meals
4. Helping with basic personal needs like dressing, eating or bathing
5. Washing, ironing or cleaning
6. Dealing with personal affairs, e.g. paying bills, writing letters
7. Decorating, gardening or house repairs
8. Financial help
9. Any other help
10. None of these (no regular or frequent help given)

BCS
Provision; Helping partner's parents with ADLs/IADLs 2021 50-52 50 52 Participant No Current 2021 No

*Note: data for this sweep will be available in early 2024.

Nowadays, do you regularly or frequently do any of the following things for your partner’s mother/father/parents?

1. Giving lifts in your car if you have one
2. Shopping
3. Providing or cooking meals
4. Helping with basic personal needs like dressing, eating or bathing
5. Washing, ironing or cleaning
6. Dealing with personal affairs e.g. paying bills, writing letters
7. Decorating, gardening or house repairs
8. Financial help
9. Any other help
10. None of these (no regular or frequent help given)

BCS
Receipt; Living in care home or hospital 2021 50-52 50 52 Participant No Current 2021 No

*Note: data for this sweep will be available in early 2024.

Which of these best describes the accommodation you are living in at the moment?

1. A private residence
2. Sheltered housing
3. A hotel, boarding house or bed and breakfast
4. A hostel for homeless, refuge, YMCA, YWCA, etc.
5. A barracks, nurses’ hall of residence, or other accommodation provided by your employer
6. A room only at workplace
7. A prison or remand centre
8. A hospital, nursing, care home or similar institution

BCS
Provision; Leaving work to care for family member 2021 50-52 50 52 Participant No Current 2021 No

*Note: data for this sweep will be available in early 2024.

What was the main reason you stopped that period of activity with that employer?

1. Fixed term or temporary job ended
2. Made redundant
3. Voluntary redundancy
4. Dismissed from a job
5. Retired
6. Left job for health reasons
7. Career break
8. More money
9. Better job
10. Firm closed down or business failed
11. Left to care for family member
12. Moved to a different area
13. Just decided to leave
14. For some other reason (SPECIFY)

BCS
Provision; Leaving work to care for family member 2021 50-52 50 52 Participant No Current 2021 No

*Note: data for this sweep will be available in early 2024.

Thinking about your current period of unemployment, how did you come to be unemployed?

1. Fixed term or temporary job ended
2. Made redundant
3. Dismissed from a job
4. Left because pregnant
5. Left job for health reasons
6. Just decided to leave
7. Left work to care for family member
8. Firm closed down or business failed
9. Never worked
10. For some other reason (SPECIFY)

BCS
Receipt; Receipt of benefits including carer's allowance 2021 50-52 50 52 Participant No Current 2021 No

*Note: data for this sweep will be available in early 2024.

Which, if any, of these types of payments are you currently receiving?

1. Jobseeker’s Allowance
2. Income Support
3. Sickness, disability or incapacity benefits (including Employment and Support Allowance)
4. Pension benefits (including State Pension and Pension Credits)
5. Child Benefit
6. Tax credits, such as the Working Tax Credit, Disabled Person Tax Credit or Child Tax Credit
7. Any other family related benefit or payment
8. Housing Benefit or Council Tax Reduction (including direct payments to your landlord)
9. Carer’s Allowance
10. Income from a Coronavirus state benefit (including Self-Employment Income Support Scheme, Test and Trace Support Payment scheme)
11. Income from any other state benefit
12. None of these [EXCLUSIVE]

BCS
Need; Ability to complete/not complete ADLs/IADLs 2021 50-52 50 52 Participant No Current 2021 No

*Note: data for this sweep will be available in early 2024.

Do any of your conditions or illnesses reduce your ability to carry out day-to-day activities?

INTERVIEWER IF NEEDED: Day to day activities include things like washing and dressing yourself, household cleaning, cooking, using public or private transport, shopping for essentials, walking a defined distance, climbing stairs, remembering to pay bills, lifting objects from the ground or work surface in the kitchen, moderate manual tasks gardening or gripping objects like cutlery and hearing or speaking in a noisy room.

1. …Yes, a lot
2. Yes, a little
3. or, Not at all?

BCS
Provision; Hours spent giving care to partner 2021 50-52 50 52 Participant No Current 2021 No

*Note: data for this sweep will be available in early 2024.

How many hours do you spend giving help to your partner because of a physical, mental, emotional or memory problem, in a typical week?

Types of help might include:
• Basic personal needs like dressing, eating or bathing
• Getting around the house e.g. climbing stairs or walking
• Taking the right amount of medication at the right time
• Dealing with personal affairs e.g. writing letters, managing money

If you help them less often than weekly please enter the average hours per week.

If unsure, enter your best estimate.

Range: 0..168

BCS
Receipt; Receipt of care for household member- who provides 2019 61-62 61 62 Participant No Specific month COVID-19 Survey Wave 2 No

In the last four weeks, have you or someone you lived with needed help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals) because you (or they) could not manage them alone?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Yes – I needed help
2 Yes – someone I lived with needed help
3 No
-8 Don’t Know
-9 Don’t want to answer

NCDS
Receipt; Receipt of care for household member - number of hours 2019 61-62 61 62 Participant No Current COVID-19 Survey Wave 2 No

Compared to before the Coronavirus outbreak, has the amount of help that you now need changed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Amount of help needed has increased
2 Amount of help needed has decreased
3 Amount of help needed has stayed the same
-8 Don’t Know
-9 Don’t want to answer

NCDS
Need; Need for help with ADLs/IADLs 2019 61-62 61 62 Participant No Past four weeks COVID-19 Survey Wave 2 No

In the last four weeks, who has provided you with the help you have needed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Nobody – needs were not met
2 Husband/ wife/ partner
3 Son or daughter or other family member (include even if not blood related)
4 Friend or neighbour
5 Voluntary helper
6 Paid/ professional help
7 Other
-8 Don’t Know
-9 Don’t want to answer

NCDS
Receipt; Receipt of care for participant - number of hours 2019 61-62 61 62 Participant No Past four weeks COVID-19 Survey Wave 2 No

In the last four weeks, how many hours of help have you usually received each week?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Up to 4 hours
2 5-9 hours
3 10-19 hours
4 20-34 hours
5 35 hours or more
-8 Don’t Know
-9 Don’t want to answer

NCDS
Receipt; Receipt of care for household member - changes post-COVID 19 pandemic 2019 61-62 61 62 Participant No Current COVID-19 Survey Wave 2 No

Compared to before the Coronavirus outbreak, has the amount of help that the person you live with now needs changed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Amount of help needed has increased
2 Amount of help needed has decreased
3 Amount of help needed has stayed the same
-8 Don’t Know
-9 Don’t want to answer

NCDS
Receipt; Receipt of care for participant - who helps 2019 61-62 61 62 Participant No Past four weeks COVID-19 Survey Wave 2 No

In the last four week, who has provided the person you live with the help they have needed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Nobody – needs were not met
2 Me
3 My husband/ wife/ partner
4 Son or daughter or other family member (include even if not blood related)
5 Friend or neighbour
6 Voluntary helper
7 Paid/ professional help
8 Other
-8 Don’t Know
-9 Don’t want to answer

NCDS
Receipt; Receipt of care for household member - who receives 2019 61-62 61 62 Participant No Past four weeks COVID-19 Survey Wave 2 No

In the last four weeks, how many hours of help did the person you live with usually get each week?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Up to 4 hours
2 5-9 hours
3 10-19 hours
4 20-34 hours
5 35 hours or more
-8 Don’t Know
-9 Don’t want to answer

NCDS
Need; Need for help with ADLs/IADLs 2021 62-63 62 63 Participant No Past four weeks COVID-19 Survey Wave 3 No

In the last four weeks, have you or someone you live with needed help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals) because you (or they) could not manage them alone?

1. Yes – I needed help
2. Yes – someone I live with needed help
3. No
-8. Don’t Know
-9. Don’t want to answer

NCDS
Need; Changes in amount of need post-COVID outbreak 2021 62-63 62 63 Participant No Current COVID-19 Survey Wave 3 No

Compared to before the Coronavirus outbreak in March 2020, has the amount of help that you now need changed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Amount of help needed has increased
2. Amount of help needed has decreased
3. Amount of help needed has stayed the same
-8. Don’t Know
-9. Don’t want to answer

NCDS
Receipt; Receipt of care for participant - who provides 2021 62-63 62 63 Participant No Past four weeks COVID-19 Survey Wave 3 No

In the last four weeks, who has provided you with the help you have needed?

From previous question, help = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Nobody – needs were not met [SINGLE CODE]
2. Husband/ wife/ partner
3. Son or daughter or other family member (include even if not blood related)
4. Friend or neighbour
5. Voluntary helper
6. Paid/ professional help
7. Other
-8. Don’t Know
-9. Don’t want to answer

NCDS
Receipt; Receipt of care for participant - number of hours 2021 62-63 62 63 Participant No Past four weeks COVID-19 Survey Wave 3 No

In the last four weeks, how many hours of help have you usually received each week?

From previous question, help = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Up to 4 hours
2. 5-9 hours
3. 10-19 hours
4. 20-34 hours
5. 35 hours or more
-8. Don’t Know
-9. Don’t want to answer

NCDS
Receipt; Changes in amount of help post-COVID outbreak 2021 62-63 62 63 Participant No Current COVID-19 Survey Wave 3 No

Compared to before the Coronavirus outbreak in March 2020, has the amount of help that the person (or people) you live with now needs changed?

From previous question, help = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Amount of help needed has increased
2. Amount of help needed has decreased
3. Amount of help needed has stayed the same
-8. Don’t Know
-9. Don’t want to answer

NCDS
Receipt; Receipt of care for household member- who provides 2021 62-63 62 63 Participant No Past four weeks COVID-19 Survey Wave 3 No

In the last four weeks, who has provided the person (or people) you live with the help they have needed?

From previous question, help = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Nobody – needs were not met [SINGLE CODE]
2. Me
3. My husband/ wife/ partner
4. Son or daughter or other family member (include even if not blood related)
5. Friend or neighbour
6. Voluntary helper
7. Paid/ professional help
8. Other
-8. Don’t Know
-9. Don’t want to answer

NCDS
Receipt; Receipt of care for household member - number of hours 2021 62-63 62 63 Participant No Past four weeks COVID-19 Survey Wave 3 No

In the last four weeks, how many hours of help did the person (or people) you live with usually get each week?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Up to 4 hours
2. 5-9 hours
3. 10-19 hours
4. 20-34 hours
5. 35 hours or more
-8. Don’t Know
-9. Don’t want to answer

NCDS
Need; Residence in care home 2021 62-63 62 63 Participant No Current COVID-19 Survey Wave 3 No

Do you live in a carehome?

1. Yes
2. No
-8. Don’t Know
-9. Don’t want to answer

NCDS
Need; Limits doing housework 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Health limits daily activities – doing housework

0
No
1
Yes
Missing
-9
Refusal
-8
Don’t know
-1
N/a CM did not report health limiting daily activities

NCDS
Need; Limits climbing stairs 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Health limits daily activities – climbing stairs

0
No
1
Yes
Missing
-9
Refusal
-8
Don’t know
-1
N/a CM did not report health limiting daily activities

NCDS
Need; Limits dressing 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Health limits daily activities – dressing yourself

0
No
1
Yes
Missing
-9
Refusal
-8
Don’t know
-1
N/a CM did not report health limiting daily activities

NCDS
Need; Limits walking for 10 minutes 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Health limits daily activities – walking for at least 10 minutes

0
No
1
Yes
Missing
-9
Refusal
-8
Don’t know
-1
N/a CM did not report health limiting daily activities

NCDS
Need; Ability to complete ADLs & IADLs 2008 49-51 49 51 Participant No Current Age 50 Survey 2008 No

The following items are about activities you might do during a typical day. Does your health limit you in these activities? If so, how much?

Vigorous activities, such as running, lifting heavy objects, participating in strenuous sports
Moderate activities, such as moving a table, pushing a vacuum cleaner, bowling, or playing golf
Lifting or carrying groceries Climbing several flights of stairs Climbing one flight of stairs Bending, kneeling or stooping Walking more than one mile Walking half a mile
Walking 100 yards
Bathing or dressing yourself

NCDS
Provision; Providing care to participant's parents 2013 54-56 54 56 Participant No Current Age 55 Survey 2013 No

Nowadays, do you regularly or frequently do any of the following things for [^your parents/your mother/your father]?

How many hours do you spend doing [^this/these things] for [^your parents/your mother/your father] in a typical week? If you do these things less often than weekly then please [tell me] the average hours per week.

Part 1:
1 Giving [^him/her/them] lifts in your car if you have one
2 Shopping for [^him/her/them]
3 Providing or cooking meals
4 Helping with basic personal needs like dressing, eating or bathing
5 Washing, ironing or cleaning
6 Dealing with personal affairs e.g. paying bills, writing letters
7 Decorating, gardening or house repairs
8 Financial help
9 Any other help

Part 2:
Hours per week.

NCDS
Provision; Providing care to partner's parents 2013 54-56 54 56 Participant No Current Age 55 Survey 2013 No

Nowadays, do you regularly or frequently do any of the following things for [^partner’s name’s parents/mother/father]?

How many hours do you spend doing [^this/these things] for [^partners name’s parents/mother/father] in a typical week? If you do these things less often than weekly then please [tell me] the average hours per week.

Part 1:
1 Giving [^him/her/them] lifts in your car if you have one
2 Shopping for [^him/her/them]
3 Providing or cooking meals
4 Helping with basic personal needs like dressing, eating or bathing
5 Washing, ironing or cleaning
6 Dealing with personal affairs e.g. paying bills, writing letters
7 Decorating, gardening or house repairs
8 Financial help
9 Any other help

Part 2:
Hours per week.

NCDS
Provision; Leaving work to care for family member 2013 54-56 54 56 Participant No Current Age 55 Survey 2013 No

What was the main reason you stopped that period of [full-time/part-time] [employment/ self-employment]?

Fixed term or temporary job ended Made redundant
Voluntary redundancy
Dismissed from a job
Retired
Left job for health reasons
Career break
More money
Better job
Firm closed down / business failed
Left to care for family member
Moved to a different area
Just decided to leave
For some other reason (SPECIFY AT NEXT QUESTION)

NCDS
Receipt; Receipt of help with ADLs/IADLs - pre pandemic 2019 61-62 61 62 Participant No Before COVID-19 pandmeic COVID-19 Survey Wave 1 No

Before the Coronavirus outbreak did you or a person you live with usually get help with regular personal tasks (washing, dressing), or domestic tasks (shopping, providing meals) that cannot be managed alone?

Who provided this help?

Part 1:
1 No help received
2 Help received for myself
3 Help received for someone I live with

Part 2:
1 Husband/wife/partner/self
2 Son or daughter or other family member (include even if not blood related)
3 Friend or neighbour
4 Voluntary helper
5 Paid/professional help
6 Other

NCDS
Receipt; Receipt of care - pre COVID pandemic - number of hour 2019 61-62 61 62 Participant No Before COVID-19 pandmeic COVID-19 Survey Wave 1 No

Altogether, how many hours help did you or someone you live with usually get in a week? (Before COVID-19 pandemic)

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Up to 4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35 hours or more

NCDS
Need;Receipt; Receipt/need of care - post COVID pandemic changes 2019 61-62 61 62 Participant No Post COVID-19 pandemic COVID-19 Survey Wave 1 No

Since the Coronavirus outbreak, have you or someone you live with had a change in help needed and/or received?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Yes, there has been a change to the care needed or received
2 No change

NCDS
Need;Receipt; Receipt/need of care - post COVID pandemic changes 2019 61-62 61 62 Participant No Post COVID-19 pandemic COVID-19 Survey Wave 1 No

Which of these statements best describes the change in help needed or received? (Post COVID-19 pandemic)

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Needs remain the same, but regular care reduced due to the Coronavirus outbreak
2 New or more care needed but not received
3 New or more care needed and received

NCDS
Receipt; Receipt of care - post COVID pandemic - number of hours & who provides 2019 61-62 61 62 Participant No Post COVID-19 pandemic COVID-19 Survey Wave 1 No

Since the Coronavirus outbreak, how many hours of help have you or someone you live with typically received each week?

Who provided this help?

Part 1:
2 0 hours
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35 hours or more

Part 2:
Husband/wife/partner/self
Son or daughter or other family member (include even if not blood related)
Friend or neighbour
Voluntary helper
Paid/professional help Other

NCDS
Receipt; Receipt of carers allowance/PIPs/DLA 2019 61-62 61 62 Participant No Three months before COVID-19 pandemic COVID-19 Survey Wave 1 No

In the three months before the Coronavirus outbreak, have you (or your partner if you have one) received any of the following?

1 Free school meals
2 Universal credit
3 Pension credit
4 Income support or Job Seeker’s Allowance
5 Working Tax Credit or Child Tax credit
6 Employment and Support Allowance
8 Statutory sick pay
14 Housing benefit
9 Council tax support or reduction
11 Pension credit
12 Carers allowance, Personal independence payments, or Disability Living Allowance
13 No – none of these

NCDS
Need; Claiming carers allowance/PIPs/DLA 2019 61-62 61 62 Participant No Post COVID-19 pandemic COVID-19 Survey Wave 1 No

Now thinking about the time since the Coronavirus outbreak, have you (or your partner if you have one) made any new claims for the following?

1 Free school meals
2 Universal credit
4 Employment and Support Allowance
5 Statutory sick pay
6 Council tax support or reduction
9 Carers allowance or Personal independence payments
7 New government financial support for self employed people
8 No – none of these

NCDS
Need; Need for help with ADLs/IADLs - pre COVID-19 pandemic 2019 61-62 61 62 Participant No Specific month COVID-19 Survey Wave 2 No

In the month before the Coronavirus outbreak in March, did you or someone you lived with need help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals) because you (or they) could not manage them alone?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Yes – I needed help
2 Yes – someone I lived with needed help
3 No
-8 Don’t Know
-9 Don’t want to answer

NCDS
Receipt; Receipt of care for participant - who provides 2019 61-62 61 62 Participant No Specific month COVID-19 Survey Wave 2 No

In the month before the Coronavirus outbreak in March, who provided you with the help you needed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Nobody – needs were not met
2 Husband/wife/partner
3 Son or daughter or other family member (include even if not blood related)
4 Friend or neighbour
5 Voluntary helper
6 Paid/professional help
7 Other
-8 Don’t Know
-9 Don’t want to answer

NCDS
Receipt; Receipt of care for participant - number of hours 2019 61-62 61 62 Participant No Specific month COVID-19 Survey Wave 2 No

In the month before the Coronavirus outbreak in March, how many hours of help did you usually get each week?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Up to 4 hours
2 5-9 hours
3 10-19 hours
4 20-34 hours
5 35 hours or more
-8 Don’t Know
-9 Don’t want to answer

NCDS
Receipt; Receipt of care for household member- who provides 2019 61-62 61 62 Participant No Specific month COVID-19 Survey Wave 2 No

In the month before the Coronavirus outbreak in March, who provided the person you live with the help they needed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Nobody – needs were not met
2 Me
3 My husband/ wife/ partner
4 Son or daughter or other family member (include
even if not blood related)
5 Friend or neighbour
6 Voluntary helper
7 Paid/ professional help
8 Other
-8 Don’t Know
-9 Don’t want to answer

NCDS
Receipt; Receipt of care for household member - number of hours 2019 61-62 61 62 Participant No Specific month COVID-19 Survey Wave 2 No

In the month before the Coronavirus outbreak in March, how many hours of help did the person you live with usually get each week?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Up to 4 hours
2 5-9 hours
3 10-19 hours
4 20-34 hours
5 35 hours or more
-8 Don’t Know
-9 Don’t want to answer

NCDS
Receipt; In care as a child 1981 22-24 22 24 Participant No Current Age 23 Survey 1981 No

Were you ever, to your knowledge, “in care” as a child?

NOTE: “in care” of a local authority social services/children’s department or voluntary children’s society. Children can be “in care” but live at home or with relatives.

1 Yes
2 No
8 Not sure

NCDS
Receipt; Age admitted to care as a child 1981 22-24 22 24 Participant No Current Age 23 Survey 1981 No

How old were you when you first went into care?

AGE IN YEARS

NCDS
Receipt; Age stopped care as a child 1981 22-24 22 24 Participant No Current Age 23 Survey 1981 No

How old were you when you finally stopped being in care?

AGE IN YEARS

NCDS
Provision; Caring responsibilities 1981 22-24 22 24 Participant No Current Age 23 Survey 1981 No

Are you not working at present because you have to look after children or other people who need day time care, or is it for some other reason?

1 Yes, reasons include day time care
2 No, other reasons only
8 Don’t know

NCDS
Need; Degree of limitation ADLs 1981 22-24 22 24 Participant No Current Age 23 Survey 1981 No

How much does your condition limit your activities? From this card, please tell me how much difficulty, if any, you have in … READ OUT IN TURN …

1 … washing or dressing yourself?
2 … getting about the house?
3 … doing housework?
4 … getting out of the house on your own?
5 … leading your social life?

NCDS
Provision; Not working due to care responsibilities 2000 41-43 41 43 Participant No Current Age 42 Survey 2000 No

MC:CMs reasons for not working at moment

1
Can t get day care
2
Waiting to take up a job
3
Can t get job
4
Get more on benefits than in work
5
Childcare cost more than could earn
6
Children too young to leave
7
Can t find suitable/qualified child care
8
Lack of skills, qualifications
9
Partner disapproves
10
Pregnancy/maternity leave
11
Caring for family members
12
Other reason
13
Irrelevant/unspecific response

NCDS
Receipt; Receipt of social care related benefits 2000 41-43 41 43 Participant No Current Age 42 Survey 2000 No

Other state benefit – who received it

Part 1:
CM only
Husband/wife/partner only
Both

Part 2:
1 Attendance Allowance
2 Guardians Allowance
3 Invalid Care Allowance
4 Severe Disablement Allowance
5 Disability Working Allowance
6 DWA – care component
7 DWA – mobility component
8 Incapacity Benefit
9 Industrial Injury Disablement Benefit
10 Widows Pen/ Widowed Mothers Allow
11 Social Fund grant -funeral expenses
12 Social Fund grant – maternity expenses
13 Social Fund grant – community care
14 NI Credits
15 Back to work bonus
16 Christmas bonus
17 Constant attendance allowance
18 Council Tax Benefit Extended Payment
19 Criminal Injuries Compensation
20 Disabled Persons Tax Credit
21 Earnings Top-Up
22 Education Welfare Benefits
23 Employment Rehabilitation Allowance
24 Home Responsibilities Protection
25 Housing Benefit Extended Payment
26 Independent Living (1993) Fund
27 Industrial Death Benefit
28 Reduced Earnings Allowance
29 Retirement Allowance
30 Retirement Pension
31 Vaccine Damage
32 War Disablement Pension
33 War Pensioners Mobility Supplement
34 War Widows Pension
35 Widows Payment
36 Working Families Tax Credit
37 Some other benefit (other)
38 Irrelevant/unspecific response

NCDS
Provision; Caring responsibilities 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Whether Cohort Member looks after sick / disabled person

1
Yes, in household only
2
Yes, outside household only
3
Yes, both in and outside household
4
No
-9
Refusal
-8
Don’t Know

NCDS
Provision; Caring for spouse/partner 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� spouse / partner

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Provision; Caring for daughter/son 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� daughter / son

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Provision; Caring for parent/patent-in-law 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� parent / parent-in-law

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Provision; Caring for grandparent 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� grandparent

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Provision; Caring for aunt/uncle 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� aunt / uncle

NCDS
Provision; Caring for friend/neighbour 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� friend or neighbour

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Provision; Caring for clients of voluntary organisation 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� client(s) of voluntary organisation

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Provision; Caring for brother/sister 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� brother / sister

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Provision; Caring for other relative 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� other relative

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Provision; Caring for relative of spouse/partner 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� other relative of spouse / partner

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Provision; Caring for unrelated person 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Looks after� other unrelated person

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Provision; Hours per week caring 2004 45-47 45 47 Participant No Current Age 46 Survey 2004 No

Number of hours per week spent looking after person(s)

1
0-9 hours per week
2
10-19 hours per week
3
20-34 hours per week
4
35-49 hours per week
5
50-99 hours per week
6
100 or more hours per week
7
It varies
97
Other
Missing
-9
Refused

-8
Don’t know

-7
Other missing

-1
N/a Does not care for anyone who is sick/disabled/elderly

NCDS
Receipt; Ability to complete ADLs & IADLs 2021 62-63 62 63 Participant No Current COVID-19 Survey Wave 3 No

Do you live in a carehome?

1. Yes
2. No
-8. Don’t Know
-9. Don’t want to answer

NCDS
Receipt; Unpaid carer/paid care -mutlitple IADL- managing money 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Does anyone help you to manage money

Who usually helps you?

Do they help:

Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse
Private Nurse

N85
Receipt; Adequacy of care to help with managing money 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Would you say the help you get with managing your money

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL/ADL- any other particualr needs 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Do you have any other particular needs for which either you don’t receive any help or the help you receive is not enough. You don’t need to include things you’ve already told me about.

Code all that apply
No other needs
Shaving
Decorating
Gardening
Hanging curtains
DIY
Transport
Other (specify)
Don’t know
Refused to answer
Not asked

N85
Receipt; ADL/IADL- actitivites 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

How often do you take part in activities which are MODERATELY energetic e.g. moderate gardening (raking, hoeing, mowing lawn (electric)), cleaning the car, heavy housework (cleaning windows, scrubbing floors), walking at a moderate pace, dancing, floor or stretching exercises?

3 or more times a week
Once or twice a week
Once, twice, or three times a month
Hardly ever or never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; ADL/IADL- actitivites 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

How often do you take part in activities which are MILDLY energetic e.g. light gardening (weeding, pruning), bowls, light housework (vacuuming, washing clothes by hand, mopping floors, ironing, making beds), DIY?

3 or more times a week
Once or twice a week
Once, twice, or three times a month
Hardly ever or never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL/IADL- actitivites 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Activities that cause you to use a lot of effort for a short period of time—for example walking upstairs. How often do you do the following activities

Climbing the stairs/steps (each of avg height)
Climbing stairs/steps (each stair very high)
Lifting moving heavy loads above shoulder height

Several times a day
Daily
Once or several times a week
Occasionally
Never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Visits from services 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

“1 In the last 4 weeks have you seen or had a visit from, or to, any of the following services and if so, how often?

Warden
Home care (social services)
Home care (voluntary agency)
Home care (private help)
Night attendant/sitter (social services)
Night attendant/sitter (voluntary agency)
Night attendant/sitter (private help)
Day sitter (social services)
Day sitter (voluntary agency)
Day sitter (private help)
Meals provision (social services)
Meals provision (voluntary agency)
Meals provision (private help)
Community nurse
Private nurse
Physiotherapist
Occupational therapist
Chiropodist (NHS)
Chiropodist (Private)
Speech therapist
Dietician
Social Worker

Several times a day
Daily
Once or several times a week
Occasionally
Never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Visits from services 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

In the last 4 weeks have you seen or had a visit from, or to, any other formal services and if so, how often? I

open answer

N85
Receipt; Attending day centres or luncheon clubs 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

In the last 4 weeks have you attended a: Luncheon club or day centre

Yes 1-2 days per week
Yes 3-4 days per week
Yes 5 days per week
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Respite care - receipt of short break 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

During the last year have you received “short break” or respite care in a care home or hospital?

Where was this?

Part 1:
Yes
No
Resident in care home / hospital for last 12 months Don’t know
Refused to answer
Not asked

Part 2:
Care home (Residential Home / Nursing home) Hospital
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Respite care - number of days 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

14 On how many days was “short break” /respite care received?

Number of days

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Administrative question - formal care 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Formal care section answered by

Participant alone
Proxy alone
Participant and proxy
Item not completed

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Administrative question - formal care 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

20 If participant and proxy was this

Mainly participant
Mainly proxy
Equal contribution
Not applicable
Item not completed

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL- washing body 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to wash yourself all over

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid care -mutlitple ADL- washing body 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Does anyone help you to wash and dry your whole body

Who usually helps you?

Do they help:

Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse
Private Nurse

N85
Receipt; Adequacy of care to help wash body 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Would you say the help you get with washing your body

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- grooming 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to cut your own toenails

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL - feeding 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to feed yourself

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL- preparing meals 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to prepare and cook a hot meal

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid care -mutlitple IADL- preparing and cooking meals 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Does anyone help you to prepare and cook hot meals

Who usually helps you?

Do they help:

Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse
Private Nurse

N85
Receipt; Adequacy of care to help preapre hot meals 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Would you say the help you get to prepare hot meals

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL- shopping 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to do your shopping for groceries

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid care -mutlitple IADL- shopping 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Does anyone help you to shop for groceries

Who usually helps you?

Do they help:

Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse
Private Nurse

N85
Receipt; Adequacy of care to help with shopping 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Would you say the help you get with shopping

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL - light housework 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to do light housework

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL - heavy housework 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to do heavy housework

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid care -mutlitple IADL- housework 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Does anyone help you to do your housework

Who usually helps you?

Do they help:

Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse
Private Nurse

N85
Receipt; Adequacy of care to help with housework 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Would you say the help you get with housework

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL- taking medication 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able take your medication

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL- managing medication 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Do you use a pill organising box

Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid care -mutlitple IADL- managing medication 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Does anyone help you to do your medication

Who usually helps you?

Do they help:

Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse
Private Nurse

N85
Receipt; Adequacy of care to help with managing medication 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Would you say the help you get with managing your medication

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL- managing money 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to manage money such as paying bills and keeping track of expenses?

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Visits from services 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

“1 In the last 4 weeks have you seen or had a visit from, or to, any of the following services and if so, how often?

Warden
Home care (social services)
Home care (voluntary agency)
Home care (private help)
Night attendant/sitter (social services)
Night attendant/sitter (voluntary agency)
Night attendant/sitter (private help)
Day sitter (social services)
Day sitter (voluntary agency)
Day sitter (private help)
Meals provision (social services)
Meals provision (voluntary agency)
Meals provision (private help)
Community nurse
Private nurse
Physiotherapist
Occupational therapist
Chiropodist (NHS)
Chiropodist (Private)
Speech therapist
Dietician
Social Worker

Several times a day
Daily
Once or several times a week
Occasionally
Never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Visits from services 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

In the last 4 weeks have you seen or had a visit from, or to, any other formal services and if so, how often? I

open answer

N85
Receipt; Attending day centres or luncheon clubs 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

In the last 4 weeks have you attended a: Luncheon club or day centre

Yes 1-2 days per week
Yes 3-4 days per week
Yes 5 days per week
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Respite care - receipt of short break 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

During the last year have you received “short break” or respite care in a care home or hospital?

Where was this?

Part 1:
Yes
No
Resident in care home / hospital for last 12 months Don’t know
Refused to answer
Not asked

Part 2:
Care home (Residential Home / Nursing home) Hospital
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Respite care - number of days 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

14 On how many days was “short break” /respite care received?

Number of days

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Administrative question - formal care 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Formal care section answered by

Participant alone
Proxy alone
Participant and proxy
Item not completed

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Administrative question - formal care 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

20 If participant and proxy was this

Mainly participant
Mainly proxy
Equal contribution
Not applicable
Item not completed

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Living arrangments 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

What best describes your home

Code granny flat as “standard” housing
“Standard” housing
Sheltered housing with warden
Residential home: council
Residential home: private
Nursing home
Long stay hospital
Other (specify) SKIP J1 LINE1 Don’t know
Refused to answer
Not asked

N85
Need; ADL - getting in and out of bed 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to get in and out of bed

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- getting in and out of a chair 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to get in and out of a chair

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- getting on and off the toilet 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to get on and off the toilet

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid care -mutlitple ADL- using toilet 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Does anyone help you to use the toilet

Who usually helps you?

Do they help:

Does any one else help you?

“Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse
Private Nurse

N85
Receipt; Adequacy of care to help use toilet 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Would you say the help you get to use the toilet

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- getting around the house 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to get around in the house

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- going up and down stairs/steps 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to go up and down stairs/steps

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL - walking 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to walk at least 400 yards

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- getting dresses and undressed 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to dress and undress yourself

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid care -mutlitple ADL- getting dressed and undressed 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Does anyone help you to get dressed and undressed

Who usually helps you?

Do they help:

Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse
Private Nurse

N85
Receipt; Adequacy of care to help get dressed and undressed 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Would you say the help you get to dress and undress

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL - washing face and hands 2015 85-120 85 120 Adult (85+) participants No Currently Phase 5 No

Are you able to wash your face and hands

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid carer IADL- meal prep 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Does anyone help you to prepare and cook hot meals

Who usually helps you?

Do they help:

Does any one else help you?”

“Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked”

N85
Receipt; Adequacy of care received to preapre and cook hot meals 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Would you say the help you get to prepare hot meals

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL- shopping 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to do your shopping for groceries

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/Paid carer IADL- shopping 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

“Does anyone help you to shop for groceries

Who usually helps you?

Do they help:

Does any one else help you?”””

“Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked”

N85
Receipt; Adequacy of care to help with shopping 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Would you say the help you get with shopping

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL - light housework 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to do light housework

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL - heavy housework 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to do heavy housework

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid care IADL-housework 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Does anyone help you to do your housework?
Who usually helps you?
Do they help:
Does anyone else help you:

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse
Private Nurse

N85
Receipt; Adequacy of care to help with housework 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Would you say the help you get from housework

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL-managaing medication 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to take your medication

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL-managaing medication 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Do you need a pill organsing box

Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid care IADL-managing medication 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Does anyone help you with your medication
Who usually helps you?
Do they help:
Does anyone else help you:

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse

N85
Receipt; Adequacy of care to help manage medication 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Would you say the help you get with managing your medication

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL- managing finances 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to manage money such as paying bills and keeping track of expenses

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid care IADL-managing finances 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Does anyone help you to manage money?
Who usually helps you?
Do they help:
Does anyone else help you:

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency
Home help/ Home care (private)
Care worker (in residential/nursing home)
Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Receipt; Adequacy of care to help manage money 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Would you say the help you get to manage money

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; IADL - any other particular needs 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Do you have any other particular needs for which either you don’t receive any help or the help you receive is not enough. You don’t need to include things you’ve already told me about

Code all that apply
No other needs
Shaving
Decorating
Gardening
Hanging curtains
DIY
Transport
Other (specify)
Don’t know
Refused to answer
Not asked

N85
Receipt; ADL/IADL- actitivites 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

How often do you take part in activities which are MODERATELY energetic e.g. moderate gardening (raking, hoeing, mowing lawn (electric)), cleaning the car, heavy housework (cleaning windows, scrubbing floors), walking at a moderate pace, dancing, floor or stretching exercises?

3 or more times a week
Once or twice a week
Once, twice, or three times a month
Hardly ever or never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; ADL/IADL- actitivites 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

How often do you take part in activities which are MILDLY energetic e.g. light gardening (weeding, pruning), bowls, light housework (vacuuming, washing clothes by hand, mopping floors, ironing, making beds), DIY?

3 or more times a week
Once or twice a week
Once, twice, or three times a month
Hardly ever or never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL/IADL- actitivites 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Activities that cause you to use a lot of effort for a short period of time—for example walking upstairs. How often do you do the following activities

Climbing the stairs/steps (each of avg height)
Climbing stairs/steps (each stair very high)
Lifting moving heavy loads above shoulder height

Several times a day
Daily
Once or several times a week
Occasionally
Never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Living arrangements 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

1. What best describes your home

Code granny flat as “standard” housing
“Standard” housing
Sheltered housing with warden
Residential home: council
Residential home: private
Nursing home
Long stay hospital
Other (specify) SKIP J1 LINE1 Don’t know
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - getting in and out of bed 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

1. Are you able to get in and out of bed?

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL- getting in and out chairs 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to get in and out of a chair

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL - getting on and off toilet 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to get one and off the toilet

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; IADL- help using the toilet 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Does anyone help you to use the toilet

Who usually helps you?

Do they help:

Does any one else help you?”

“Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked”

N85
Receipt; Adequacy of care received to use the toiet 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Would you say the help you get to use the toilet

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- walking around the house 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to get around the house

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- up/down stairs 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to go up and down stairs/steps

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL - walking 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to ealk at least 400 yards

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- dressing 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to dress and undress yourself

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid carer ADL- help dressing 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Does anyone help you dress/undress

Who usually helps you?

Do they help:

Does any one else help you?”

“Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked”

N85
Receipt; Adequacy of care received to get dresses/undressed 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Would you say the help you get to dress/undress

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- washing hands and face 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to wash your hands and face

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- washing 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to wash yourself all over

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Unpaid carer/paid carer ADL-washing 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Does anyone help you to wash and dry your whole body

Who usually helps you?

Do they help:

Does any one else help you?”

“Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked”

N85
Receipt; Adequacy of care received to wash oneself 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Would you say the help you get with washing yourself

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL- grooming 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to cut your own toenails

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL - feeding 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to feed yourself (including cutting up food)

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL- meal prep 2011 85-120 85 120 Adult (85+) participants No Currently Phase 4 No

Are you able to preapre and cook a hot meal

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; IADL - heavy housework 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

40. Are you able to do heavy housework

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Receipt; Unpaid carer / Paid Carer - multiple 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

41 Does anyone help you to do your housework (light or heavy duties)

42 Who usually helps you?

43 Do they help:

44 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received with housework 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

45. Would you say the help you get with housework

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; IADL- managing medication 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

46. Are you able to take your medication

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Need; IADL- managing medication 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

47. Do you use a pill organizing box

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Receipt; Unpaid carer / Paid Carer - multiple 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

48 Does anyone help you with your medication

49 Who usually helps you?

50 Do they help:

51 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received with managing medication 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

52. Would you say the help you get with managing medication

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; IADL- managing finances 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

53. Are you able to manage money such as paying bills and keeping track of expenses

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Receipt; Unpaid carer / Paid Carer - multiple 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

54 Does anyone help you manage money

55 Who usually helps you?

56 Do they help:

57 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received with managing money 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

58. Would you say the help you get to manage money

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; IADL- any other particualr needs 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

59. Do you have any other particular needs for which you either don’t recieve any help or the help you recieve is not enough

Code all that apply
No other needs
Shaving
Decorating
Gardening
Hanging curtains
DIY
Transport
Other (specify)
Don’t know
Refused to answer
Not asked

N85
Need; ADL/IADL- actitivites 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

How often do you take part in activites which are moderatley energetic eg moderate gardening, cleaning the care, heavy housework, walking at a moderate pace

3 or more times a week
Once or twice a week
Once, twice, or three times a month
Hardly ever or never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL/IADL- actitivites 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

How often do you take part in activites which are mildly energetic eg light gardening, light housework

3 or more times a week
Once or twice a week
Once, twice, or three times a month
Hardly ever or never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL/IADL- actitivites 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

Activities that cause you to use a lot of effort for a short period of time—for example walking upstairs. How often do you do the following activities

Climbing the stairs/steps (each of avg height)
Climbing stairs/steps (each stair very high)
Lifting moving heavy loads above shoulder height

Several times a day
Daily
Once or several times a week
Occasionally
Never
Don’t know
Not applicable
Refused to answer
Not asked

N85
Receipt; Visits from services 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

1 In the last 4 weeks have you seen or had a visit from, or to, any of the following services and if so, how often?

Warden
Home care (social services)
Home care (voluntary agency)
Home care (private help)
Night attendant/sitter (social services)
Night attendant/sitter (voluntary agency)
Night attendant/sitter (private help)
Day sitter (social services)
Day sitter (voluntary agency)
Day sitter (private help)
Meals provision (social services)
Meals provision (voluntary agency)
Meals provision (private help)
Community nurse
Private nurse
Physiotherapist
Occupational therapist
Chiropodist (NHS)
Chiropodist (Private)
Speech therapist
Dietician
Social Worker

Several times a day
Once a day
One or more times a week
Less than once a week
No contact
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Attending clubs and day centres 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

3 In the last 4 weeks have you attended a:

Luncheon club
Day centre

No
Yes, less than once a week
Yes, 1-2 days per week
Yes, 3-4 days per week
Yes, 5 days per week
Don’t know
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Respite care - receipt of short break 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

12 During the last year have you received “short break” or respite care in a care home or hospital?

13 Where was this?

Part 1:
Yes
No
Resident in care home / hospital for last 12 months Don’t know
Refused to answer
Not asked

Part 2:
Care home (Residential Home / Nursing home) Hospital
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Respite care - number of days 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

14 On how many days was “short break” /respite care received?

Number of days

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Administrative question - formal care 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

19 Formal care section answered by

Participant alone
Proxy alone
Participant and proxy
Item not completed

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Administrative question - formal care 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

20 If participant and proxy was this

Mainly participant
Mainly proxy
Equal contribution
Not applicable
Item not completed

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Adequacy of help received using toilet 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

8. Would you say the help you get to use the toilet

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; ADL-transferrring 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

9. Are you able to get around in the house

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Need; ADL- transferring 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

10. Are you able to go up and down stairs/steps

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Need; ADL - walking 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

11. Are you able to walk at lest 400 yards

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Need; ADL- getting dresses/undressed 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

12. Are you abLe to dress and undress yourself

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Receipt; Unpaid carer/paid carers- multiple 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

13 Does anyone help you to dress/undress?

14 Who usually helps you?

15 Do they help:

16 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received to dress/undress 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

17. Would you say the help you get to dress/undress

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; ADL- washing 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

18. Are you able to wash your face and hands

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Need; ADL- washing 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

19. Are you able to wash yourself all over

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Receipt; Unpaid carer/paid carers- multiple 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

20 Does anyone help you wash and dry your whole body

21 Who usually helps you?

22 Do they help:

23 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received to wash oneself 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

24. Would you say the help you get with washing yourself

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; ADL- grooming 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

25. Are you able to cute your own toenails

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Need; ADL - feeding 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

26. Are you able to feed yourself (including cutting up food)

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Need; IADL- cooking and meal prep 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

27. Are you able to prepare and cook a hot meal

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Receipt; Unpaid carer / paid carer 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

28 Does anyone help you prepare and cook hot meals

29 Who usually helps you?

30 Do they help:

31 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received to preapre meals 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

32. Would you say the help you get to prepare hot meals

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; IADL- shopping 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

33. Are you able to do shopping for groceries ( including getting your shopping home

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Receipt; Unpaid carer / Paid Carer - multiple 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

34 Does anyone help you to shop for groceries (including getting your shopping home)

35 Who usually helps you?

36 Do they help:

37 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received to go shopping 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

38. Would you say the help you get with shopping

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; IADL - light housework 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

39. Are you able to do light housework

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Receipt; Adequacy of help received to do housework 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

48. Would you say the help you get with housework

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; IADL- managing medication 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

49. Are you able to take your medication

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Need; IADL- managing medication 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

50. Do you use a pill organising box

Yes
No
Don’t Know Refused to answer Not asked

N85
Need; IADL - help with medication 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

51 Does anyone help you with your medication?

52 Who usually helps you?

53 Do they help:

54 Does any one else help you?

Part 1:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 2:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 3:
(code up to 3)
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of care received - help taking medication 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

55. Would you say the help you get managing your medication

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; IADL- managing finances 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

56. Are you able to manage money such as paying bills and keeping track of expenses

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Receipt; Unpaid care/paid carers- mulitple 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

57 Does anyone help you to manage money

58 Who usually helps you?

59 Do they help:

60 Does any one else help you?

Yes
No
Don’t Know Refused to answer Not asked ”

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
(code up to 3)
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked”

N85
Receipt; Adequacy of care received - managing money 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

61. Would you say the help you get to manage money

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; IADL-any other needs 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

62. Do you have any other particular needs for which you don’t reciece any help or the help you recieve is not enough

Code all that apply
No other needs
Shaving
Decorating
Gardening
Hanging curtains
DIY
Transport
Other (specify)
Don’t know
Refused to answer
Not asked

N85
Receipt; Visits from services 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

1 In the last 4 weeks have you seen or had a visit from, or to, any of the following services and if so, how often?

Warden
Home care (social services)
Home care (voluntary agency)
Home care (private help)
Night attendant/sitter (social services)
Night attendant/sitter (voluntary agency)
Night attendant/sitter (private help)
Day sitter (social services)
Day sitter (voluntary agency)
Day sitter (private help)
Meals provision (social services)
Meals provision (voluntary agency)
Meals provision (private help)
Community nurse
Private nurse
Physiotherapist
Occupational therapist
Chiropodist (NHS)
Chiropodist (Private)
Speech therapist
Dietician
Social Worker

Several times a day
Once a day
One or more times a week
Less than once a week
No contact
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Attending clubs and day centres 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

3 In the last 4 weeks have you attended a:

Luncheon club
Day centre

No
Yes, less than once a week
Yes, 1-2 days per week
Yes, 3-4 days per week
Yes, 5 days per week
Don’t know
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Respite care - receipt of short break 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

12 During the last year have you received “short break” or respite care in a care home or hospital?

13 Where was this?

Part 1:
Yes
No
Resident in care home / hospital for last 12 months Don’t know
Refused to answer
Not asked

Part 2:
Care home (Residential Home / Nursing home) Hospital
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Respite care - number of days 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

14 On how many days was “short break” /respite care received?

Number of days

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Administrative question - formal care 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

18 Formal care section answered by

Participant alone
Proxy alone
Participant and proxy
Item not completed

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Attending clubs and day centres 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

3 In the last 4 weeks have you attended a:

Luncheon club
Day centre

No
Yes, less than once a week
Yes, 1-2 days per week
Yes, 3-4 days per week
Yes, 5 days per week
Don’t know
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Living arrangements 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

13. What best describes your home

Code granny flat as “standard” housing
“Standard” housing
Sheltered housing with warden
Residential home: council
Residential home: private
Nursing home
Long stay hospital
Other (specify) SKIP J1 LINE1 Don’t know
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - getting in and out of bed 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

1. Are you able to get in and out of bed?
(If uses aids or appliances but also needs someone to help them, code as “I am unable to do this myself, I need someone else’s help”

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL- ability to use chair 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

2. Are you able to get in and out of a chair

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Need; ADL- ability to use toilet 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

3. Are you able to get on and off the toilet

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help
Don’t know
Not applicable
Refused to answer
Not asked”

N85
Need; ADL - help using toilet 2010 85-120 85 120 Adult (85+) participants No Currently Phase 3 No

4 Does anyone help you to use the toilet?

5 Who usually helps you?

6 Do they help:

7 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received to get dressed 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

20. Would you say the help you get to dress/undress:

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; ADL - washing face and hands 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

21. Are you able to wash your face and hands

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Need; ADL - help washing and drying body 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

22. Are you able to wash yourself all over

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Receipt; Unpaid carer / paid carer 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

23. Does anyone help you to wash and dry your whole body

Yes
No
Don’t Know Refused to answer Not asked

N85
Receipt; Unpaid carer / Paid Carer - who 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

24. Who usally helps you 25. Do they help 26. Does anyone else help you

Part 1:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 2:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 3:
(code up to 3)
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received to wash 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

27. Would you say the help you get with washing yourself

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; ADL- grooming 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

28. Are you able to cut your own toenails

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Need; ADL - feeding 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

29. Are you able to feed yourself (including cutting up food)

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Need; IADL- meal prep 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

30. Are you able to prepare and cook a hot meal

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Receipt; Unpaid carer / paid carer 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

31. Does anyone help you to prepare

Yes
No
Don’t Know Refused to answer Not asked

N85
Receipt; Unpaid carer / Paid Carer - multiple 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

32. Who usally helps you 33. Do they help 34. Does anyone else help you

Part 1:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 2:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 3:
(code up to 3)
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received to prepare meals 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

35. Would you say the help you get to prepare hot meals

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; IADL- shopping 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

36. Are you able to do your shopping for groceries (including getting your shopping from home)

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Receipt; Unpaid carer / paid carer 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

37. Does anyone help you to shop for your groceries ( including getting your shopping home)

Yes
No
Don’t Know Refused to answer Not asked

N85
Receipt; Unpaid carer / Paid Carer - multiple 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

38. Who usally helps you 39. Do they help 40. Does anyone else help you

Part 1:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 2:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 3:
(code up to 3)
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received to shop 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

41. Would you say the help you get with shopping

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

N85
Need; IADL- housework 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

42. Are you able to do light housework (e.g dusting and tidying up)

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Need; IADL- housework 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

43. Are you able to fo heavy housework (e.g mopping, vaccuming)

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Receipt; Unpaid carer / paid carer 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

44. Does anyone help you to do your housework (light or heavy duties)

Yes
No
Don’t Know Refused to answer Not asked

N85
Receipt; Unpaid carer / Paid Carer - multiple 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

45. Who usally helps you with housework 46. Do they help 47. Does anyone else help you

Part 1:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 2:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 3:
(code up to 3)
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Home adaptations 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

5 Do you have any of the following adaptations to your home?

Ramps
Automatic or easy open doors
Widened doorways or hallways
Handrails / grab rails/extra bannister
Lift
Stair lift
Elevated toilet
Toilet rails/toilet frame
Grab rail beside bath
Adapted bath
Level access shower

No, I don’t have it
Yes, I have it
Don’t know
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Home adaptations 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

6 Do you have any other adaptations to your home?

Open answer

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Visits from services 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

1 In the last 4 weeks have you seen or had a visit from, or to, any of the following services and if so, how often?

Warden
Home care (social services)
Home care (voluntary agency)
Home care (private help)
Night attendant/sitter (social services)
Night attendant/sitter (voluntary agency)
Night attendant/sitter (private help)
Day sitter (social services)
Day sitter (voluntary agency)
Day sitter (private help)
Meals provision (social services)
Meals provision (voluntary agency)
Meals provision (private help)
Community nurse
Private nurse
Physiotherapist
Occupational therapist
Chiropodist (NHS)
Chiropodist (Private)
Speech therapist
Dietician
Social Worker

Several times a day
Once a day
One or more times a week
Less than once a week
No contact
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Attending clubs and day centres 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

3 In the last 4 weeks have you attended a:

Luncheon club
Day centre

No
Yes, less than once a week
Yes, 1-2 days per week
Yes, 3-4 days per week
Yes, 5 days per week
Don’t know
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Respite care - receipt of short break 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

12 During the last year have you received “short break” or respite care in a care home or hospital?

13 Where was this?

Part 1:
Yes
No
Resident in care home / hospital for last 12 months Don’t know
Refused to answer
Not asked

Part 2:
Care home (Residential Home / Nursing home) Hospital
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Respite care - number of days 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

14 On how many days was “short break” /respite care received?

Number of days

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Administrative question - formal care 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

19 Formal care section answered by

Participant alone
Proxy alone
Participant and proxy
Item not completed

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Administrative question - formal care 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

20 If participant and proxy was this

Mainly participant
Mainly proxy
Equal contribution
Not applicable
Item not completed

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Living arrangements 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

1. What best describes your home

Code granny flat as “standard” housing
“Standard” housing
Sheltered housing with warden
Residential home: council
Residential home: private
Nursing home
Long stay hospital
Other (specify) SKIP J1 LINE1 Don’t know
Refused to answer
Not asked

N85
Need; ADL - getting in and out of bed 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

1. Are you able to get in and out of bed (If uses aids or appliances but also needs someone to help them, code as “I am unable to do this myself, I need someone else’s help” )

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Need; ADL - getting in and out of chair 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

3. Are you able to get in and out of a chair (If uses aids or appliances but also needs someone to help them, code as “I am unable to do this myself, I need someone else’s help” )

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Need; ADL - getting on and off toilet 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

4. Are you able to get on and off the toilet (If uses aids or appliances but also needs someone to help them, code as “I am unable to do this myself, I need someone else’s help” )

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Receipt; Unpaid carer / Paid Carer - who 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

5 Does anyone help you to use the toilet?

8 Who usually helps you?

9 Do they help:

10 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of help received using toilet 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

11. Would you say the help you use to get the toilet

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs?
Don’t know
Not applicable
Refused to answer
Not asked

N85
Need; ADL - getting around house 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

12. Are you able to get around the house

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Need; ADL - getting up and down stairs 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

13. Are you able to go up and down stairs/steps

Yes
No Don’t Know Not applicable I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help Refused to answer Not asked

N85
Need; ADL - walking 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

14. Are you able to walk at least 400 yards

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Need; ADL - dressing and undressing 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

15. Are you able to dress and undress yourself

I have no difficulty doing this by myself
I have some difficulty doing this by myself
I can only do this by myself if I use an aid or appliance
I am unable to do this by myself, I need someone else’s help
Don’t Know Refused to answer Not asked

N85
Need; ADL - dressing and undressing 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

16. Does anyone help you dress/undress

Open answer

N85
Receipt; Unpaid carer / Paid Carer - multiple 2007 85-120 85 120 Adult (85+) participants No Currently Phase 2 No

17. Who usally helps you 18. Do they help 19. Does anyone else help you

Part 1:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 2:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 3:
(code up to 3)
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

N85
Receipt; Adequacy of care received preparing hot meals 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

44 Would you say the help you get to prepare hot meals:

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs?
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; IADL - shopping for groceries 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

45 Are you able to do your shopping for groceries? (including getting your shopping home)

46 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(up to 4 reasons may be specified)

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; IADL - help shopping for groceries 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

47 Does anyone help you to shop for groceries (including getting your shopping home)?

Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Unpaid carer / Paid Carer - who 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

48 Who usually helps you?

Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home)
Other (specify)
Shop delivery service (including internet shopping)
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Frequency of care received 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

49 Do they help:

Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Unpaid carer / Paid Carer - multiple carers 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

50 Does any one else help you?

No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home)
Other (specify)
Shop delivery service (including internet shopping)
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Adequacy of care received - shopping 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

51 Would you say the help you get with shopping:

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs?
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; IADL - light housework 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

52 Are you able to do light housework? (E.g. dusting and tidying up)

53 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; IADL - heavy housework 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

54 Are you able to do heavy housework (e.g. mopping, vacuuming)?

55 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(up to 4 reasons may be specified)

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; IADL - help with housework 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

56 Does anyone help you to do your housework (light or heavy duties)?

57 Who usually helps you?

58 Do they help:

59 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home)
Other (specify)
Don’t know
Not applicable
Refused to answer
Not asked

Part 3:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable
Refused to answer
Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home)
Other (specify)
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Adequacy of care received - help with housework 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

60 Would you say the help you get with housework:

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs?
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; IADL - ability to take medication 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

61 Are you able to take your medication?

62 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may be specified)

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; IADL - help with medication 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

64 Does anyone help you with your medication?

65 Who usually helps you?

66 Do they help:

67 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home)
Other (specify)
Don’t know
Not applicable
Refused to answer
Not asked

Part 3:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable
Refused to answer
Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home)
Other (specify)
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Adequacy of care received - help taking medication 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

68 Would you say the help you get with managing your medication:

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs?
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; IADL - ability to manage money 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

69 Are you able to manage money such as paying bills and keeping track of expenses?

70 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may be specified)

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; IADL - help managing money 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

71 Does anyone help you to manage money?

72 Who usually helps you?

73 Do they help:

74 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home)
Other (specify)
Don’t know
Not applicable
Refused to answer
Not asked

Part 3:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable
Refused to answer
Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home)
Other (specify)
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Adequacy of care received - managing money 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

75 Would you say the help you get to manage money:

“Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs?
Don’t know
Not applicable
Refused to answer
Not asked”

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; IADL - any other particular needs 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

76 Do you have any other particular needs for which you don’t receive any help or the help you receive is not enough? You don’t need to include things you’ve already told me about.

Code all that apply
No other needs
Shaving
Decorating
Gardening
Hanging curtains
DIY
Transport
Other (specify)
Don’t know
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Mobility - aids and appliances 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

3 Now I am going to ask you about some other aids/appliances, for each I will ask you whether you have one and, if so, whether you use it.

Walking stick
White stick
Walking frame
Wheeled walker
Manual wheelchair
Electric wheelchair
Mobility scooter
Equipment to help you get in and out of bed
Specialised bed (in and out)
Chair with special features (in and out)
Chair raising equipment
Commode
Dressing equipment (eg shoe horn, stocking aid)
Kitchen equipment (eg jar opener, kettle tipper)
Feeding / drinking equipment (eg special cutlery, 2 handled mugs)
Hoists
Bath equipment (eg seats, bath lifts)
Pressure relieving mattress or cushion

No, I don’t have it
Yes, I have it and I use it
Yes, I have it but I don’t use it`
Don’t know
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Mobility - aids and appliances 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

4 Do you have any other aids/appliances and do you use them?

Open answer

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Living arrangements 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

1. What best describes your home

Code granny flat as “standard” housing
“Standard” housing
Sheltered housing with warden
Residential home: council
Residential home: private
Nursing home
Long stay hospital
Other (specify) SKIP J1 LINE1 Don’t know
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; Standardised mini-mental state examination (SMMSE) 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) Yes

1. What year is this?
2. What season is this?
3. What month of the year is this?
4. What is today’s date?
5. What day of the week is this?
6. What country are we in?
7. What county are we in?
8. What city/town are we in?
9. In the home: What is the street address of this house? In the clinic: What is the name of this hospital/building?
10. In the home: What room are we in? In the clinic: What floor of the building are we on?
11. Registration
I am going to name three objects.
After I have said all 3 objects, I would like you to repeat them.
Try to remember what they are because I am going to ask you to name them again in a few minutes.
So the 3 objects are: ball – car – man
Say them slowly at approximately 1 second intervals
Please repeat the 3 items for me.
Allow 20 seconds for response
First attempt
ball car man
12. Attention and calculation Could you spell the word WORLD
You may help the participant to spell the word correctly
Now spell it backwards please
Allow 30 seconds to spell it backwards DLROW
13 Recall
Now what were the 3 objects that I asked you to remember?
Allow 10 seconds for response.
14. Show wristwatch and ask What is this called?
allow 10 seconds
15. Show pencil and ask What is this called?
16. Repetition of phrase
I would like you to repeat this phrase after me:
“No ifs, ands or buts”.
Allow 10 seconds for response Note participant’s answer
17. ‘Close your eyes’
Read the words on this page and then do what it says
Hand the participant the laminated sheet ‘close your eyes’
Allow 10 seconds
If the participant just reads and does not then close eyes, you may repeat ‘Read the words on this page and then do what it says’ to a maximum of three times. Participant does not have to read out loud. 23
Score
18. Following instructions
Could I just check, are you right or left handed? (Circle which ) Take a piece of paper
hold it up in front of the participant and say
Take this paper in your ………..hand,
(insert left if right handed or right if left handed)
fold the paper in half once with both hands and put the paper down on your lap.
Only give the participant the paper after completing all the instructions Allow 30 seconds
Takes paper in correct hand Folds it in half
Puts it on lap
19. Sentence
Hand participant a pencil and paper
Please could you write any complete sentence on that piece of paper.
allow 30 seconds
Interviewer to copy sentence here:
20. Copy diagram
Place design, pencil, eraser and paper in front of the participant
Please could you copy this design for me.
Allow multiple tries until the participant has finished and hands it back.
Maximum time 1 minute.
26. Were any items ‘not asked’?
27. Reasons why items not asked
Code all that apply
28. Were any items ‘refused’?
29. Reasons why items refused
Code all that apply
30 Was the participant’s performance on attempted questions limited by any problems unrelated to cognitive function?
31. If Yes, what problem(s)
Code all that apply

1-10:
Correct
Incorrect
Not Asked

11:
If the participant could not repeat all 3 words in the first attempt, then reiterate ball – car – man, until the participant can repeat all three, up to 5 attempts.
Note the number of attempts

12-16:
Correct
Incorrect
Not Asked

17:
Did the participant close their eyes?
Yes
No
Item omitted.

18.
Takes paper in correct hand
Folds it in half
Puts it on lap

19-20:
Correct
Incorrect
Not Asked

26:
Yes
No
Not applicable Item not completed

27:
Visual impairment
Hearing impairment
Speech impairment
Language barrier
Unable to comprehend task
Literacy problem (unable to read/write) Reduced manual dexterity
Distress
Fatigue Interviewer error
Other reason (specify)
Not applicable Reason not entered

28.
Yes
No
Not applicable Item not completed

29.
Participant refused – no reason
Participant refused – other reason (specify)
Relative/carer refused – no reason
Relative/carer refused – other reason (specify)
Not applicable Reason not entered
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The linked image cannot be displayed. The file may have been moved, renamed, or deleted. Verify that the link points to the correct file and location.
The linked image cannot be displayed. The file may have been moved, renamed, or deleted. Verify that the link points to the correct file and location.

30.
Yes
No
Not applicable Item not completed

31.
Visual impairment Hearing impairment Speech impairment Language barrier
Literacy problem (unable to read/write) Reduced manual dexterity
Distress
Fatigue
Other reason (specify)
Not applicable Reason not entered

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - getting in and out of bed 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

1. Are you able to get in and out of bed?
(If uses aids or appliances but also needs someone to help them, code as “I am unable to do this myself, I need someone else’s help”

2. What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may be specified)

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - getting in and out of chair 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

3. Are you able to get in and out of a chair?

4 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may be specified)

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - getting on and off toilet 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

5 Are you able to get on and off the toilet?

6 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; ADL - help using toilet 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

7 Does anyone help you to use the toilet?

8 Who usually helps you?

9 Do they help:

10 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Whenever you need the toilet Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Adequacy of help received using toilet 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

11 Would you say the help you get to use the toilet:

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs?
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - getting around house 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

12 Are you able to get around in the house?

13 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - getting up and down stairs 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

14 Are you able to go up and down stairs/steps? (At least 12)

15 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - dressing and undressing 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

18 Are you able to dress and undress yourself?

19 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; ADL - help dressing and undressing 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

20 Does anyone help you to dress/undress?

21 Who usually helps you?

22 Do they help:

23 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
(code up to 3)
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Adequacy of care received to dress/undress 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

24 Would you say the help you get to dress/undress:

Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - washing face and hands 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

25 Are you able to wash your face and hands?

26 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - wash yourself all over 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

27 Are you able to wash yourself all over?

28 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(up to 4 reasons may be specified)

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; ADL - help washing and drying body 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

29 Does anyone help you to wash and dry your whole body?

30 Who usually helps you?

31 Do they help:

32 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Several times a day Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
(code up to 3)
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Adequacy of care received with washing 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

33 Would you say the help you get with washing yourself:

Meets your needs all the time
Usually meets your needs
Sometimes meets your needs
Hardly ever meets your needs?
Don’t know
Not applicable
Refused to answer
Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - cutting own toenails 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

34 Are you able to cut your own toenails?

35 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; ADL - feeding self 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

36 Are you able to feed yourself (including cutting up food)?

37 What is the cause of your difficulty?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Need; IADL - preparing hot meal 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

38 Are you able to prepare and cook a hot meal?

Part 1:
1. I have no difficulty doing this by myself
2. I have some difficulty doing this by myself
3. I can only do this by myself if I use an aid or appliance
4. I am unable to do this by myself, I need someone else’s help

Part 2:
(Up to 4 reasons may

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; IADL - help preparing hot meal 2006 85-120 85 120 Adult (85+) participants No Currently Phase 1 (Baseline) No

40 Does anyone help you to prepare and cook hot meals?

41 Who usually helps you?

42 Do they help:

43 Does any one else help you?

Part 1:
Yes
No
Don’t know
Not applicable
Refused to answer
Not asked

Part 2:
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home) Community nurse
Private Nurse
Other (specify)
Don’t know
Not applicable Refused to answer Not asked

Part 3:
Several times a day
Once a day
Most days
Less often?
Don’t know
Not applicable Refused to answer Not asked

Part 4:
No, no-one else helps
Spouse/Partner
Children
Other relatives
Friend or neighbour
Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private)
Care worker (in residential/nursing home)
Other (specify)
Meals provision service (e.g. Meals on wheels)
Don’t know
Not applicable Refused to answer Not asked

General health
Hearing
Eyesight
Blood pressure – sitting
Smoking
Hand grip strength

N85
Receipt; Additional care services 2010 50-120 50 120 Participant No Ever Wave 5 No

Frequency attended lunch club

1.0 Every day or nearly every day
2.0 Two or three times a week
3.0 Once a week
4.0 Two or three times a month
5.0 Once a month or less
6.0 SPONTANEOUS – do not currently use
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2010 50-120 50 120 Participant No Ever Wave 5 No

Frequency attended day centre

1.0 Every day or nearly every day
2.0 Two or three times a week
3.0 Once a week
4.0 Two or three times a month
5.0 Once a month or less
6.0 SPONTANEOUS – do not currently use
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2010 50-120 50 120 Participant No Ever Wave 5 No

Frequency eat meal provided by Meals on Wheels

1.0 Every day or nearly every day
2.0 Two or three times a week
3.0 Once a week
4.0 Two or three times a month
5.0 Once a month or less
6.0 SPONTANEOUS – do not currently use
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Satisfaction with help received 2010 50-120 50 120 Participant No Current Wave 5 No

Physical functioning: usefulness of help

1.0 Meets his/her/[PNum] needs all of the time
2.0 usually meets his/her/[Pnum] needs
3.0 sometimes meets his/her/[PNum] needs
4.0 hardly ever meets his/her/[PNum] needs
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids 2010 50-120 50 120 Participant No Current Wave 5 No

Aids used:

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids 2010 50-120 50 120 Participant No Current Wave 5 No

Aids acquired since last interview:

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids - who pays 2010 50-120 50 120 Participant No Current Wave 5 No

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?
Covered all costs?

1 NHS paid
2 Social Services paid
3 Spouse of partner
4 Other family member/friend paid
5 Landlord/Care home/Housing Assn paid
6 Charity/voluntary assoc
7 Not paid for, passed on on by other
8 Other person/organisation paid

1.0 Yes covered all costs
2.0 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2012 50-120 50 120 Participant No Current Wave 6 No

How much money is [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] paid from the direct payment or personal budget for helping [^you/[name]]?

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE │││││1.00..9999997.00

01 Per hour,
02 Per visit,
03 Per day,
04 Per week,
05 Per fortnight,
06 Per four weeks,
07 Per calendar month,
08 Per year

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2012 50-120 50 120 Participant No Current Wave 6 No

You have told me that no payment was made for [[^BLANK/your/his/her/] ││││husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ brother/other brother / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helping [^you/[name]]. Why was this?

01 They provided their help for free/ there is no charge for the service,
02 Sometimes give them money or gifts for the help they give,
03 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2012 50-120 50 120 Participant No Past two years Wave 6 No

[During the last two years/since your last interview] have you lived or stayed in a nursing home or residential care home?

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2012 50-120 50 120 Participant No Past two years Wave 6 No

[Altogether/] how long did you stay in a nursing home or residential care home [in the │last two │years/since last interview]? You can tell me your answer in days/nights, │weeks or months.

INTERVIEWER: ENTER NUMBER OF DAYS/NIGHTS, WEEKS OR MONTHS.
Range: 0…40

01 Days/nights
02 Weeks
03 Months

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2012 50-120 50 120 Participant No Past two years Wave 6 No

When did you start your current stay in this home?

INTERVIEWER: ENTER YEAR
Range 2001..9997

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2012 50-120 50 120 Participant No Past two years Wave 6 No

“(When did you start your current stay in this home?)

01 January
02 February
03 March
04 April
05 May
06 June
07 July
08 August
09 September
10 October
11 November
12 December

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Amount of money spent on care home 2012 50-120 50 120 Participant No Past two years Wave 6 No

In total, roughly how much did you have to pay for nursing or residential care home │fees [in the last
│two years/since last interview]? Do not include costs that were paid by │the NHS, your local authority or
│social services, but do include costs that were paid │for on your behalf by friends or family, or by
│private insurance

INTERVIEWER: ENTER COSTS IN £”: 0..9999997

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2012 50-120 50 120 Participant No Past month Wave 6 No

In the last month [^have/has] [^you/name]… READ OUT ..

01 Attended a lunch club
02 Attended a day care centre
03 Had meals on wheels
04 Had private frozen meals from a provider such as Wiltshire farm foods
05 Had family, friend or neighbour bring [^you/him/her] ready prepared meals
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services - frequency of use 2012 50-120 50 120 Participant No Past month Wave 6 No

How often [^do/does] [^you/] attend a lunch club?

How often [^do/does] [^you/name] attend a day care centre?

How often [^do/does] [^you/name] eat a meal provided by Meals on Wheels?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services - length of use 2012 50-120 50 120 Participant No Past month Wave 6 No

Each time that [^you/name] [^have/has] attended the day centre, including attending classes or groups run by the day centre in the last month about how many hours did [^you/he/she] usually spend there?

01 1-3 hours
02 4-6 hours, or
03 more than 6 hours

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2012 50-120 50 120 Participant No Past three months Wave 6 No

In the last three months, [^have/has] [^you/name] used or received the Local Authority/council’s Handy man’s service? This is usually a free service sometimes arranged through Age Concern or Help the Aged

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids 2012 50-120 50 120 Participant No Current Wave 6 No

^Do you / Does [^name]] use any of these?
Only include personal alarms used to call for assistance after falls etc.

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids - who pays 2012 50-120 50 120 Participant No Current Wave 6 No

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?
INTERVIEWER: Read out each in turn and code all that apply.

1 Health Service (NHS)
2 Social Services
3 ^[You / Name] or [ your / his / her spouse/partner]
95 or someone else (please specify)?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids - who pays 2012 50-120 50 120 Participant No Cuurent Wave 6 No

Can I just check that ^[the NHS/Social Services/ you/ your spouse or partner] covered all the costs of the [^cane or walking stick/ zimmer frame or walker/manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/elbow crutches]?

1 Yes covered all costs
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADLs, IADLs 2010 50-120 50 120 Participant No Current Wave 5 No

[^do you /does he /does she] have difficulty doing any of the activities on this card?

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognising when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who helps 2010 50-120 50 120 Participant No Current Wave 5 No

Whether receives help with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/dressing/ bathing or showering/eating/ shopping for groceries/doing work around the house or garden/taking medications/managing money]?

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 privately paid help
09 local authority/social services
10 nurse
11 care staff/nursing home
12 Friend or neighbour
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2010 50-120 50 120 Participant No Ever Wave 5 No

Whether ever used lunch club

0.0 Not mentioned
1.0 Mentioned
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2010 50-120 50 120 Participant No Ever Wave 5 No

Whether ever used day centre

0.0 Not mentioned
1.0 Mentioned
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2010 50-120 50 120 Participant No Ever Wave 5 No

Whether ever used meals on wheels

0.0 Not mentioned
1.0 Mentioned
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2010 50-120 50 120 Participant No Ever Wave 5 No

Said not used any of the listed services

0.0 Not mentioned
1.0 Mentioned
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Tasks caregivers carry out 2012 50-120 50 120 Participant No Past month Wave 6 No

Do they all help with the same kinds of things, or [^do/does] [^you/[^name]] have different people helping with different things?

01 All help with same kind of things,
02 Different people help with different things

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Tasks caregivers carry out 2012 50-120 50 120 Participant No Past month Wave 6 No

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. Thinking of the [^first/second/third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?

01 Getting up in the morning,
02 Going to bed,
03 Washing/ bathing/ personal care,
04 Meals/ eating,
05 Getting out of the house/ shopping,
06 Cleaning/ laundry,
07 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional tasks - who helps 2012 50-120 50 120 Participant No Past month Wave 6 No

Are there any more home care workers, home helps or personal assistants who help [^you/[^name]] with different kinds of things?

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2012 50-120 50 120 Participant No Past week Wave 6 No

Thinking about [^the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

Open response

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2012 50-120 50 120 Participant No Past week Wave 6 No

Thinking about [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff ││team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the ││council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

01 No help in the last week,
02 Less than one hour,
03 1-4 hours,
04 5-9 hours,
05 10-19 hours,
06 20-34 hours,
07 35-49 hours,
08 50-99 hours,
09 100 hours or more

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2012 50-120 50 120 Participant No Past week Wave 6 No

Can you tell me whether in the last week [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other/sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helped [^you/[^name]] in person with these tasks for:

01 Less than 20 hours,
02 20-34 hours,
03 Or, for 35 hours or more?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Frequency of care 2012 50-120 50 120 Participant No Past week Wave 6 No

Still thinking only about help received in person, how often does your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing ││manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/the other helper] usually help [^you/[^name]]?

01 Every day
02 Four to six times a week
03 Two or three times a week
04 Once a week
05 Once a fortnight/ every two weeks
06 Once a month
07 Less than once a month

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Frequency of care 2012 50-120 50 120 Participant No Past week Wave 6 No

On the days [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helps [^you/[^name]], how many times a day does he/she usually help [^you/[^name]]?

01 once a day
02 twice a day
03 three or four times a day
04 all the time
05 whenever I need it?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time of care in the day 2012 50-120 50 120 Participant No Past week Wave 6 No

Still thinking about help received in person, when does [[^BLANK/your/his/her/] husband/wife/partner/son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] help [^you/[^name]]?

01 During the day time only, until [^you/[^name]] [^go/goes] to bed,
02 During the night time only, once [^you/[^name]] [^have/has] gone to bed,
03 Or both during the day time and at night after [^you/[^name]][^have/has] gone to bed?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2012 50-120 50 120 Participant No Past week Wave 6 No

[^Do/Does] [^you/[^name]] usually deal with paying for [^your/his/her] care or does a family member or │friend manage this for [^you/[^name]]?

01 Deals with this all [^your/him/hers]
02 Deals with some of it but not all
03 Does not deal with this at all

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2012 50-120 50 120 Participant No Current Wave 6 No

Local authorities/council/social services offer different ways of arranging payment for people’s care. This card describes some of these ways. Please look at the card and tell me whether either of these apply for the care [^you/[^name]] receive(s)?

01 Direct payments
02 Local authority/council/social services manages the money
03 Neither of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - personal budgets 2012 50-120 50 120 Participant No Current Wave 6 No

[^Do/Does] [^you/[^name]] have a Personal Budget, sometimes known as an Individual Budget? This is when the local authority/ council/social services decides │the amount or pot of money necessary to meet social care needs. [^you/he/she] can │choose how to spend this money which can be used for a range of services, not just social care.

01 Yes, have Personal Budget/Individual budget
02 No, do not have Personal Budget/ Individual Budget

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - local authority assessments 2012 50-120 50 120 Participant No Current Wave 6 No

Has the local authority/council made an assessment of what [^you/[^name]] can afford for any of [^your/his/her] care needs?

01 Yes, had income assessment
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - local authority assessments 2012 50-120 50 120 Participant No Current Wave 6 No

How was the help from [[^BLANK/your/his/her] ^home care worker/ home help/ personal assistant/ member of the reablement / intermediate care staff team/voluntary helper/ warden / sheltered housing manager/ cleaner/the council’s handyman/the member of staff from thecare/nursing home/other helper] arranged? Please look at this card and tell me which option applies.

01 Arranged without involvement from the local authority, council or social services,
02 Local authority, council or social services arranged this help,
03 Local authority, council or social services told [^you/him/her] about the help but ││ [^you/he/she] arranged it or [^your/his/her] family arranged it
04 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2012 50-120 50 120 Participant No Current Wave 6 No

[^Do/Does] [^you/[^name]] [^your/his/her partner] pay or give any money for the help given by [^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Please include any payments made for this care, even if not made directly to the care provider. ^Do not include gifts, treats or occasional payments of expenses such as petrol money or lunch (informal providers only).

01 Yes,
02 No,
03 Don’t know

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2012 50-120 50 120 Participant No Current Wave 6 No

How much money [^do/does] [^you/[^name]] [^your/his/her partner] pay for the help given by [^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]. Please include any payments made for this care, even if not made directly to the care provider?

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE : 1.00..999997.00

01 per hour
02 per visit
03 per day
04 per week
05 per fortnight
06 per four weeks
07 per calendar month
08 per year

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2012 50-120 50 120 Participant No Current Wave 6 No

You said [^you/[^Name]] pay(s) [^amount] [^per hour/per visit/per day/per week/per fortnight/ per four weeks/per calendar month/ per year] for the care provided by [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Does this payment cover all the cost of this help or some of the cost of this help?

01 All
02 Some

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2012 50-120 50 120 Participant No Current Wave 6 No

How [^do/does] [^you/name] usually pay or give money to [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for helping [^you/him/her]?

01 Own personal income, savings, pension or benefit (such as Attendance Allowance),
02 Direct Payment/ Personal or Individual Budget from the Local Authority/council/ Social Services,
03 From another source

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2012 50-120 50 120 Participant No Current Wave 6 No

And [^in addition to what] [^you/[name]] pay(s)), as far as you are aware does anyone else or any organisation pay or give money to [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister//other / other /friend/ other friend/neighbour/other neighbour/ the home care
worker/ home help/ personal assistant/ the member of the reablement /intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for the care [^you/he/she] receive(s) – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

01 Yes, the local authority /council /social services,
02 Yes, a family member (with their own money),
03 Yes, other,
04 No, nobody else pays

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2012 50-120 50 120 Participant No Current Wave 6 No

And does the local authority, council or social services pay [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other /other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] directly or is it through a Direct Payment or a Personal Budget?

01 Local authority / social services or council pay directly,
02 Paid through Direct Payments / Personal or Individual Budgets

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2012 50-120 50 120 Participant No Past month Wave 6 No

What about walking across a room?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2012 50-120 50 120 Participant No Past month Wave 6 No

What about bathing or showering?

2 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2012 50-120 50 120 Participant No Past month Wave 6 No

What about eating, such as cutting up food?

3 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2012 50-120 50 120 Participant No Past month Wave 6 No

What about getting in or out of bed?

4 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2012 50-120 50 120 Participant No Past month Wave 6 No

What about using the toilet, including getting up or down?

5 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2012 50-120 50 120 Participant No Past month Wave 6 No

What about shopping for groceries?

6 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2012 50-120 50 120 Participant No Past month Wave 6 No

What about taking medications?

7 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2012 50-120 50 120 Participant No Past month Wave 6 No

What about doing work around the house or garden?

8 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2012 50-120 50 120 Participant No Past month Wave 6 No

What about managing money, such as paying bills and keeping track of expenses?

9 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - reason for care requirement 2012 50-120 50 120 Participant No Past month Wave 6 No

[^Do/Does] [^you/[^name]] receive this help with [^shopping for groceries/doing work around the house or garden/managing money] because of a physical, mental, emotional or memory problem?:

01 Yes for some or all
02 No, none of this help is because of a physical, mental, emotional or memorY problem

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2012 50-120 50 120 Participant No Past month Wave 6 No

In the last month, who has helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/dressing/ bathing or showering/eating/ shopping for groceries/doing work around the house or garden/taking medications/managing money]?

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 Friend
09 Neighbour
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2012 50-120 50 120 Participant No Past month Wave 6 No

Now, please tell me about all of the people from this list who have helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/ dressing/ bathing or showering/eating/shopping for groceries/doing work around the house or garden/taking medications/managing money] in the last month?

01 Home care worker/ home help/ personal assistant
02 A member of the reablement / intermediate care staff team
03 Voluntary helper
04 Warden / Sheltered housing manager
05 Cleaner
06 Council’s handyman
07 Member of staff at the care/nursing home
95 Other – please specify
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2012 50-120 50 120 Participant No Past month Wave 6 No

Who was the other person that helped [^you/[^name]]?

Open response

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2012 50-120 50 120 Participant No Past two years Wave 6 No

In the last two years have you received care at home that was not provided by family or friends?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2012 50-120 50 120 Participant No Past two years Wave 6 No

In the last two years have you had to pay for care received at home that was not provided by family or friends?

2 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Adequacy of support 2012 50-120 50 120 Participant No Past two years Wave 6 No

Thinking about all the help [^you/he/she] receive(s), would you say that the help │ [^you/he/she] │receive(s)…

01 …Meets [^your/his/her] needs all the time,
02 usually meets [^your/his/her] needs,
03 sometimes meets [^your/his/her] needs,
04 or, hardly ever meets [^your/his/her] needs?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2012 50-120 50 120 Participant No Past two years Wave 6 No

You have told me that [^your/his/her] [^husband /wife /partner /son /other son/daughter /other daughter /grandchild /other grandchild /sister /other sister /brother /other brother / other relative/ friend/ other friend] helped [^you/[^name]].
Can I just check, does this person live in the same household as [^you/[^name]]?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2012 50-120 50 120 Participant No Past two years Wave 6 No

“[You have told me that [^your /his /her] [^husband /wife /partner/son /other son/daughter /other daughter /grandchild /other grandchild /sister /other sister /brother ││ /other brother / other relative/ friend / other friend/ neighbour /other neighbour] helped [^you/[^name]]. What is [^your /his /her] [^husband’s /wife’s /partner’s /son’s /other ││ son’s /daughter’s /other daughter’s /grandchild’s /other grandchild’s /sister’s / other/ sister’s /brother’s /other brother’s / other relative’s / friend’s / other friend’s/neighbour’s /other neighbour’s] name?

INTERVIEWER: CODE OR ASK SEX OF PERSON WHO HELPS”

Open response

01 Male
02 Female

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2012 50-120 50 120 Participant No Past two years Wave 6 No

Did an other [^son/ daughter/ grandchild/ sister/ brother/ other relative/ friend/neighbour] help [^you/ [^name]]?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2012 50-120 50 120 Participant No Past month Wave 6 No

You have told me that a home care worker/home help/personal assistant helped [^you/ [^name]] in the last month. [^Do/Does] [^you/ [^name]] have just one person helping [^you /him /her], or [^do │ /does] │[^you/ [^name]] have more than one?

01 One,
02 More than one

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADLs, IADLs 2012 50-120 50 120 Participant No Current Wave 6 No

Because of a health problem, [^do you /does he /does she] have difficulty doing any of the activities on this card? Exclude any difficulties that you expect to last less than three months

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognising when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADLs, IADLs 2012 50-120 50 120 Participant No Current Wave 6 No

Here are a few more everyday activities. Please tell me if [^you have / [^name] has] any difficulty with these because of a physical, mental, emotional or memory problem. Again exclude any difficulties you expect to last less than three months.
Because of a health or memory problem, [^do you /does he /does she] have difficulty doing any of the activities on this card?

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognising when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2012 50-120 50 120 Participant No Past month Wave 6 No

[^Have/Has] [^you/[^name]] received help from anyone with walking 100 yards, in the last month?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2012 50-120 50 120 Participant No Past month Wave 6 No

What about dressing, including putting on shoes and socks?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2014 50-120 50 120 Participant No Current Wave 7 No

And [^in addition to what] [^you/[name]] pay(s)), as far as you are aware does anyone else or any organisation pay or give money to [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister//other / other /friend/ other friend/neighbour/other neighbour/ the home care
worker/ home help/ personal assistant/ the member of the reablement /intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for the care [^you/he/she] receive(s) – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

01 Yes, the local authority /council /social services,
02 Yes, a family member (with their own money),
03 Yes, other,
04 No, nobody else pays

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2014 50-120 50 120 Participant No Current Wave 7 No

And does the local authority, council or social services pay [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other /other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] directly or is it through a Direct Payment or a Personal Budget?

01 Local authority / social services or council pay directly,
02 Paid through Direct Payments / Personal or Individual Budgets

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2014 50-120 50 120 Participant No Current Wave 7 No

How much money is [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] paid from the direct payment or personal budget for helping [^you/[name]]?

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE │││││1.00..9999997.00

01 Per hour,
02 Per visit,
03 Per day,
04 Per week,
05 Per fortnight,
06 Per four weeks,
07 Per calendar month,
08 Per year

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2014 50-120 50 120 Participant No Current Wave 7 No

You have told me that no payment was made for [[^BLANK/your/his/her/] ││││husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ brother/other brother / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helping [^you/[name]]. Why was this?

01 They provided their help for free/ there is no charge for the service,
02 Sometimes give them money or gifts for the help they give,
03 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2014 50-120 50 120 Participant No Past two years Wave 7 No

[During the last two years/since your last interview] have you lived or stayed in a nursing home or residential care home?

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2014 50-120 50 120 Participant No Past two years Wave 7 No

[Altogether/] how long did you stay in a nursing home or residential care home [in the │last two │years/since last interview]? You can tell me your answer in days/nights, │weeks or months.

INTERVIEWER: ENTER NUMBER OF DAYS/NIGHTS, WEEKS OR MONTHS.
Range: 0…40

01 Days/nights
02 Weeks
03 Months

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2014 50-120 50 120 Participant No Past two years Wave 7 No

When did you start your current stay in this home?

INTERVIEWER: ENTER YEAR
Range 2001..9997

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2014 50-120 50 120 Participant No Past two years Wave 7 No

“(When did you start your current stay in this home?)

01 January
02 February
03 March
04 April
05 May
06 June
07 July
08 August
09 September
10 October
11 November
12 December

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Amount of money spent on care home 2014 50-120 50 120 Participant No Past two years Wave 7 No

In total, roughly how much did you have to pay for nursing or residential care home │fees [in the last
│two years/since last interview]? Do not include costs that were paid by │the NHS, your local authority or
│social services, but do include costs that were paid │for on your behalf by friends or family, or by
│private insurance

INTERVIEWER: ENTER COSTS IN £”: 0..9999997

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2014 50-120 50 120 Participant No Past month Wave 7 No

In the last month [^have/has] [^you/name]… READ OUT ..

01 Attended a lunch club
02 Attended a day care centre
03 Had meals on wheels
04 Had private frozen meals from a provider such as Wiltshire farm foods
05 Had family, friend or neighbour bring [^you/him/her] ready prepared meals
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services - frequency of use 2014 50-120 50 120 Participant No Past month Wave 7 No

How often [^do/does] [^you/] attend a lunch club?

How often [^do/does] [^you/name] attend a day care centre?

How often [^do/does] [^you/name] eat a meal provided by Meals on Wheels?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services - length of use 2014 50-120 50 120 Participant No Past month Wave 7 No

Each time that [^you/name] [^have/has] attended the day centre, including attending classes or groups run by the day centre in the last month about how many hours did [^you/he/she] usually spend there?

01 1-3 hours
02 4-6 hours, or
03 more than 6 hours

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2014 50-120 50 120 Participant No Past three months Wave 7 No

In the last three months, [^have/has] [^you/name] used or received the Local Authority/council’s Handy man’s service? This is usually a free service sometimes arranged through Age Concern or Help the Aged

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids 2014 50-120 50 120 Participant No Current Wave 7 No

^Do you / Does [^name]] use any of these?
Only include personal alarms used to call for assistance after falls etc.

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids - who pays 2014 50-120 50 120 Participant No Current Wave 7 No

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?
INTERVIEWER: Read out each in turn and code all that apply.

1 Health Service (NHS)
2 Social Services
3 ^[You / Name] or [ your / his / her spouse/partner]
95 or someone else (please specify)?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids - who pays 2014 50-120 50 120 Participant No Cuurent Wave 7 No

Can I just check that ^[the NHS/Social Services/ you/ your spouse or partner] covered all the costs of the [^cane or walking stick/ zimmer frame or walker/manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/elbow crutches]?

1 Yes covered all costs
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2014 50-120 50 120 Participant No Past two years Wave 7 No

Did an other [^son/ daughter/ grandchild/ sister/ brother/ other relative/ friend/neighbour] help [^you/ [^name]]?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2014 50-120 50 120 Participant No Past month Wave 7 No

You have told me that a home care worker/home help/personal assistant helped [^you/ [^name]] in the last month. [^Do/Does] [^you/ [^name]] have just one person helping [^you /him /her], or [^do │ /does] │[^you/ [^name]] have more than one?

01 One,
02 More than one

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Tasks caregivers carry out 2014 50-120 50 120 Participant No Past month Wave 7 No

Do they all help with the same kinds of things, or [^do/does] [^you/[^name]] have different people helping with different things?

01 All help with same kind of things,
02 Different people help with different things

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Tasks caregivers carry out 2014 50-120 50 120 Participant No Past month Wave 7 No

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. Thinking of the [^first/second/third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?

01 Getting up in the morning,
02 Going to bed,
03 Washing/ bathing/ personal care,
04 Meals/ eating,
05 Getting out of the house/ shopping,
06 Cleaning/ laundry,
07 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional tasks - who helps 2014 50-120 50 120 Participant No Past month Wave 7 No

Are there any more home care workers, home helps or personal assistants who help [^you/[^name]] with different kinds of things?

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2014 50-120 50 120 Participant No Past week Wave 7 No

Thinking about [^the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

Open response

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2014 50-120 50 120 Participant No Past week Wave 7 No

Thinking about [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff ││team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the ││council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

01 No help in the last week,
02 Less than one hour,
03 1-4 hours,
04 5-9 hours,
05 10-19 hours,
06 20-34 hours,
07 35-49 hours,
08 50-99 hours,
09 100 hours or more

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2014 50-120 50 120 Participant No Past week Wave 7 No

Can you tell me whether in the last week [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other/sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helped [^you/[^name]] in person with these tasks for:

01 Less than 20 hours,
02 20-34 hours,
03 Or, for 35 hours or more?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Frequency of care 2014 50-120 50 120 Participant No Past week Wave 7 No

Still thinking only about help received in person, how often does your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing ││manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/the other helper] usually help [^you/[^name]]?

01 Every day
02 Four to six times a week
03 Two or three times a week
04 Once a week
05 Once a fortnight/ every two weeks
06 Once a month
07 Less than once a month

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Frequency of care 2014 50-120 50 120 Participant No Past week Wave 7 No

On the days [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helps [^you/[^name]], how many times a day does he/she usually help [^you/[^name]]?

01 once a day
02 twice a day
03 three or four times a day
04 all the time
05 whenever I need it?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time of care in the day 2014 50-120 50 120 Participant No Past week Wave 7 No

Still thinking about help received in person, when does [[^BLANK/your/his/her/] husband/wife/partner/son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] help [^you/[^name]]?

01 During the day time only, until [^you/[^name]] [^go/goes] to bed,
02 During the night time only, once [^you/[^name]] [^have/has] gone to bed,
03 Or both during the day time and at night after [^you/[^name]][^have/has] gone to bed?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2014 50-120 50 120 Participant No Past week Wave 7 No

[^Do/Does] [^you/[^name]] usually deal with paying for [^your/his/her] care or does a family member or │friend manage this for [^you/[^name]]?

01 Deals with this all [^your/him/hers]
02 Deals with some of it but not all
03 Does not deal with this at all

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2014 50-120 50 120 Participant No Current Wave 7 No

Local authorities/council/social services offer different ways of arranging payment for people’s care. This card describes some of these ways. Please look at the card and tell me whether either of these apply for the care [^you/[^name]] receive(s)?

01 Direct payments
02 Local authority/council/social services manages the money
03 Neither of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - personal budgets 2014 50-120 50 120 Participant No Current Wave 7 No

[^Do/Does] [^you/[^name]] have a Personal Budget, sometimes known as an Individual Budget? This is when the local authority/ council/social services decides │the amount or pot of money necessary to meet social care needs. [^you/he/she] can │choose how to spend this money which can be used for a range of services, not just social care.

01 Yes, have Personal Budget/Individual budget
02 No, do not have Personal Budget/ Individual Budget

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - local authority assessments 2014 50-120 50 120 Participant No Current Wave 7 No

Has the local authority/council made an assessment of what [^you/[^name]] can afford for any of [^your/his/her] care needs?

01 Yes, had income assessment
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - local authority assessments 2014 50-120 50 120 Participant No Current Wave 7 No

How was the help from [[^BLANK/your/his/her] ^home care worker/ home help/ personal assistant/ member of the reablement / intermediate care staff team/voluntary helper/ warden / sheltered housing manager/ cleaner/the council’s handyman/the member of staff from thecare/nursing home/other helper] arranged? Please look at this card and tell me which option applies.

01 Arranged without involvement from the local authority, council or social services,
02 Local authority, council or social services arranged this help,
03 Local authority, council or social services told [^you/him/her] about the help but ││ [^you/he/she] arranged it or [^your/his/her] family arranged it
04 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2014 50-120 50 120 Participant No Current Wave 7 No

[^Do/Does] [^you/[^name]] [^your/his/her partner] pay or give any money for the help given by [^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Please include any payments made for this care, even if not made directly to the care provider. ^Do not include gifts, treats or occasional payments of expenses such as petrol money or lunch (informal providers only).

01 Yes,
02 No,
03 Don’t know

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2014 50-120 50 120 Participant No Current Wave 7 No

How much money [^do/does] [^you/[^name]] [^your/his/her partner] pay for the help given by [^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]. Please include any payments made for this care, even if not made directly to the care provider?

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE : 1.00..999997.00

01 per hour
02 per visit
03 per day
04 per week
05 per fortnight
06 per four weeks
07 per calendar month
08 per year

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2014 50-120 50 120 Participant No Current Wave 7 No

You said [^you/[^Name]] pay(s) [^amount] [^per hour/per visit/per day/per week/per fortnight/ per four weeks/per calendar month/ per year] for the care provided by [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Does this payment cover all the cost of this help or some of the cost of this help?

01 All
02 Some

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2014 50-120 50 120 Participant No Current Wave 7 No

How [^do/does] [^you/name] usually pay or give money to [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for helping [^you/him/her]?

01 Own personal income, savings, pension or benefit (such as Attendance Allowance),
02 Direct Payment/ Personal or Individual Budget from the Local Authority/council/ Social Services,
03 From another source

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2014 50-120 50 120 Participant No Past month Wave 7 No

[^Have/Has] [^you/[^name]] received help from anyone with walking 100 yards, in the last month?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2014 50-120 50 120 Participant No Past month Wave 7 No

What about dressing, including putting on shoes and socks?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2014 50-120 50 120 Participant No Past month Wave 7 No

What about walking across a room?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2014 50-120 50 120 Participant No Past month Wave 7 No

What about bathing or showering?

2 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2014 50-120 50 120 Participant No Past month Wave 7 No

What about eating, such as cutting up food?

3 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2014 50-120 50 120 Participant No Past month Wave 7 No

What about getting in or out of bed?

4 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2014 50-120 50 120 Participant No Past month Wave 7 No

What about using the toilet, including getting up or down?

5 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2014 50-120 50 120 Participant No Past month Wave 7 No

What about shopping for groceries?

6 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2014 50-120 50 120 Participant No Past month Wave 7 No

What about taking medications?

7 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2014 50-120 50 120 Participant No Past month Wave 7 No

What about doing work around the house or garden?

8 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2014 50-120 50 120 Participant No Past month Wave 7 No

What about managing money, such as paying bills and keeping track of expenses?

9 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - reason for care requirement 2014 50-120 50 120 Participant No Past month Wave 7 No

[^Do/Does] [^you/[^name]] receive this help with [^shopping for groceries/doing work around the house or garden/managing money] because of a physical, mental, emotional or memory problem?:

01 Yes for some or all
02 No, none of this help is because of a physical, mental, emotional or memorY problem

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2014 50-120 50 120 Participant No Past month Wave 7 No

In the last month, who has helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/dressing/ bathing or showering/eating/ shopping for groceries/doing work around the house or garden/taking medications/managing money]?

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 Friend
09 Neighbour
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2014 50-120 50 120 Participant No Past month Wave 7 No

Now, please tell me about all of the people from this list who have helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/ dressing/ bathing or showering/eating/shopping for groceries/doing work around the house or garden/taking medications/managing money] in the last month?

01 Home care worker/ home help/ personal assistant
02 A member of the reablement / intermediate care staff team
03 Voluntary helper
04 Warden / Sheltered housing manager
05 Cleaner
06 Council’s handyman
07 Member of staff at the care/nursing home
95 Other – please specify
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2014 50-120 50 120 Participant No Past month Wave 7 No

Who was the other person that helped [^you/[^name]]?

Open response

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2014 50-120 50 120 Participant No Past two years Wave 7 No

In the last two years have you received care at home that was not provided by family or friends?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2014 50-120 50 120 Participant No Past two years Wave 7 No

In the last two years have you had to pay for care received at home that was not provided by family or friends?

2 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Adequacy of support 2014 50-120 50 120 Participant No Past two years Wave 7 No

Thinking about all the help [^you/he/she] receive(s), would you say that the help │ [^you/he/she] │receive(s)…

01 …Meets [^your/his/her] needs all the time,
02 usually meets [^your/his/her] needs,
03 sometimes meets [^your/his/her] needs,
04 or, hardly ever meets [^your/his/her] needs?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2014 50-120 50 120 Participant No Past two years Wave 7 No

You have told me that [^your/his/her] [^husband /wife /partner /son /other son/daughter /other daughter /grandchild /other grandchild /sister /other sister /brother /other brother / other relative/ friend/ other friend] helped [^you/[^name]].
Can I just check, does this person live in the same household as [^you/[^name]]?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2014 50-120 50 120 Participant No Past two years Wave 7 No

“[You have told me that [^your /his /her] [^husband /wife /partner/son /other son/daughter /other daughter /grandchild /other grandchild /sister /other sister /brother ││ /other brother / other relative/ friend / other friend/ neighbour /other neighbour] helped [^you/[^name]]. What is [^your /his /her] [^husband’s /wife’s /partner’s /son’s /other ││ son’s /daughter’s /other daughter’s /grandchild’s /other grandchild’s /sister’s / other/ sister’s /brother’s /other brother’s / other relative’s / friend’s / other friend’s/neighbour’s /other neighbour’s] name?

INTERVIEWER: CODE OR ASK SEX OF PERSON WHO HELPS”

Open response

01 Male
02 Female

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2016 50-120 50 120 Participant No Current Wave 8 No

How [^do/does] [^you/name] usually pay or give money to [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for helping [^you/him/her]?

01 Own personal income, savings, pension or benefit (such as Attendance Allowance),
02 Direct Payment/ Personal or Individual Budget from the Local Authority/council/ Social Services,
03 From another source

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2016 50-120 50 120 Participant No Current Wave 8 No

And [^in addition to what] [^you/[name]] pay(s)), as far as you are aware does anyone else or any organisation pay or give money to [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister//other / other /friend/ other friend/neighbour/other neighbour/ the home care
worker/ home help/ personal assistant/ the member of the reablement /intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for the care [^you/he/she] receive(s) – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

01 Yes, the local authority /council /social services,
02 Yes, a family member (with their own money),
03 Yes, other,
04 No, nobody else pays

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2016 50-120 50 120 Participant No Current Wave 8 No

And does the local authority, council or social services pay [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other /other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] directly or is it through a Direct Payment or a Personal Budget?

01 Local authority / social services or council pay directly,
02 Paid through Direct Payments / Personal or Individual Budgets

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2016 50-120 50 120 Participant No Current Wave 8 No

How much money is [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] paid from the direct payment or personal budget for helping [^you/[name]]?

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE │││││1.00..9999997.00

01 Per hour,
02 Per visit,
03 Per day,
04 Per week,
05 Per fortnight,
06 Per four weeks,
07 Per calendar month,
08 Per year

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2016 50-120 50 120 Participant No Current Wave 8 No

You have told me that no payment was made for [[^BLANK/your/his/her/] ││││husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ brother/other brother / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helping [^you/[name]]. Why was this?

01 They provided their help for free/ there is no charge for the service,
02 Sometimes give them money or gifts for the help they give,
03 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2016 50-120 50 120 Participant No Past two years Wave 8 No

[During the last two years/since your last interview] have you lived or stayed in a nursing home or residential care home?

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2016 50-120 50 120 Participant No Past two years Wave 8 No

[Altogether/] how long did you stay in a nursing home or residential care home [in the │last two │years/since last interview]? You can tell me your answer in days/nights, │weeks or months.

INTERVIEWER: ENTER NUMBER OF DAYS/NIGHTS, WEEKS OR MONTHS.
Range: 0…40

01 Days/nights
02 Weeks
03 Months

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2016 50-120 50 120 Participant No Past two years Wave 8 No

When did you start your current stay in this home?

INTERVIEWER: ENTER YEAR
Range 2001..9997

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2016 50-120 50 120 Participant No Past two years Wave 8 No

“(When did you start your current stay in this home?)

01 January
02 February
03 March
04 April
05 May
06 June
07 July
08 August
09 September
10 October
11 November
12 December

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Amount of money spent on care home 2016 50-120 50 120 Participant No Past two years Wave 8 No

In total, roughly how much did you have to pay for nursing or residential care home │fees [in the last
│two years/since last interview]? Do not include costs that were paid by │the NHS, your local authority or
│social services, but do include costs that were paid │for on your behalf by friends or family, or by
│private insurance

INTERVIEWER: ENTER COSTS IN £”: 0..9999997

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2016 50-120 50 120 Participant No Past month Wave 8 No

In the last month [^have/has] [^you/name]… READ OUT ..

01 Attended a lunch club
02 Attended a day care centre
03 Had meals on wheels
04 Had private frozen meals from a provider such as Wiltshire farm foods
05 Had family, friend or neighbour bring [^you/him/her] ready prepared meals
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services - frequency of use 2016 50-120 50 120 Participant No Past month Wave 8 No

How often [^do/does] [^you/] attend a lunch club?

How often [^do/does] [^you/name] attend a day care centre?

How often [^do/does] [^you/name] eat a meal provided by Meals on Wheels?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services - length of use 2016 50-120 50 120 Participant No Past month Wave 8 No

Each time that [^you/name] [^have/has] attended the day centre, including attending classes or groups run by the day centre in the last month about how many hours did [^you/he/she] usually spend there?

01 1-3 hours
02 4-6 hours, or
03 more than 6 hours

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2016 50-120 50 120 Participant No Past three months Wave 8 No

In the last three months, [^have/has] [^you/name] used or received the Local Authority/council’s Handy man’s service? This is usually a free service sometimes arranged through Age Concern or Help the Aged

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids 2016 50-120 50 120 Participant No Current Wave 8 No

^Do you / Does [^name]] use any of these?
Only include personal alarms used to call for assistance after falls etc.

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids - who pays 2016 50-120 50 120 Participant No Current Wave 8 No

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?
INTERVIEWER: Read out each in turn and code all that apply.

1 Health Service (NHS)
2 Social Services
3 ^[You / Name] or [ your / his / her spouse/partner]
95 or someone else (please specify)?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids - who pays 2016 50-120 50 120 Participant No Cuurent Wave 8 No

Can I just check that ^[the NHS/Social Services/ you/ your spouse or partner] covered all the costs of the [^cane or walking stick/ zimmer frame or walker/manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/elbow crutches]?

1 Yes covered all costs
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADL - walking 2014 50-120 50 120 Participant No Current Wave 7 No

By [^yourself / himself / herself] and without using any special equipment, how much difficulty [^do you / does [^name]] have walking for a quarter of a mile? [^Do you / Does he / Does she] have…

1 …no difficulty,
2 some difficulty,
3 much difficulty,
4 or, [^are you / is he / is she] unable to do this?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADL - walking 2014 50-120 50 120 Participant No Current Wave 7 No

Because of a health problem, [^do you /does he /does she] have difficulty doing any of the activities on this card? Exclude any difficulties that you expect to last less than three months

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognising when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADLs, IADLs 2014 50-120 50 120 Participant No Current Wave 7 No

Here are a few more everyday activities. Please tell me if [^you have / [^name] has] any difficulty with these because of a physical, mental, emotional or memory problem. Again exclude any difficulties you expect to last less than three months.
Because of a health or memory problem, [^do you /does he /does she] have difficulty doing any of the activities on this card?

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognising when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2016 50-120 50 120 Participant No Past two years Wave 8 No

“[You have told me that [^your /his /her] [^husband /wife /partner/son /other son/daughter /other daughter /grandchild /other grandchild /sister /other sister /brother ││ /other brother / other relative/ friend / other friend/ neighbour /other neighbour] helped [^you/[^name]]. What is [^your /his /her] [^husband’s /wife’s /partner’s /son’s /other ││ son’s /daughter’s /other daughter’s /grandchild’s /other grandchild’s /sister’s / other/ sister’s /brother’s /other brother’s / other relative’s / friend’s / other friend’s/neighbour’s /other neighbour’s] name?

INTERVIEWER: CODE OR ASK SEX OF PERSON WHO HELPS”

Open response

01 Male
02 Female

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2016 50-120 50 120 Participant No Past two years Wave 8 No

Did an other [^son/ daughter/ grandchild/ sister/ brother/ other relative/ friend/neighbour] help [^you/ [^name]]?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2016 50-120 50 120 Participant No Past month Wave 8 No

You have told me that a home care worker/home help/personal assistant helped [^you/ [^name]] in the last month. [^Do/Does] [^you/ [^name]] have just one person helping [^you /him /her], or [^do │ /does] │[^you/ [^name]] have more than one?

01 One,
02 More than one

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Tasks caregivers carry out 2016 50-120 50 120 Participant No Past month Wave 8 No

Do they all help with the same kinds of things, or [^do/does] [^you/[^name]] have different people helping with different things?

01 All help with same kind of things,
02 Different people help with different things

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Tasks caregivers carry out 2016 50-120 50 120 Participant No Past month Wave 8 No

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. Thinking of the [^first/second/third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?

01 Getting up in the morning,
02 Going to bed,
03 Washing/ bathing/ personal care,
04 Meals/ eating,
05 Getting out of the house/ shopping,
06 Cleaning/ laundry,
07 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional tasks - who helps 2016 50-120 50 120 Participant No Past month Wave 8 No

Are there any more home care workers, home helps or personal assistants who help [^you/[^name]] with different kinds of things?

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2016 50-120 50 120 Participant No Past week Wave 8 No

Thinking about [^the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

Open response

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2016 50-120 50 120 Participant No Past week Wave 8 No

Thinking about [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff ││team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the ││council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

01 No help in the last week,
02 Less than one hour,
03 1-4 hours,
04 5-9 hours,
05 10-19 hours,
06 20-34 hours,
07 35-49 hours,
08 50-99 hours,
09 100 hours or more

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2016 50-120 50 120 Participant No Past week Wave 8 No

Can you tell me whether in the last week [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other/sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helped [^you/[^name]] in person with these tasks for:

01 Less than 20 hours,
02 20-34 hours,
03 Or, for 35 hours or more?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Frequency of care 2016 50-120 50 120 Participant No Past week Wave 8 No

Still thinking only about help received in person, how often does your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing ││manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/the other helper] usually help [^you/[^name]]?

01 Every day
02 Four to six times a week
03 Two or three times a week
04 Once a week
05 Once a fortnight/ every two weeks
06 Once a month
07 Less than once a month

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Frequency of care 2016 50-120 50 120 Participant No Past week Wave 8 No

On the days [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helps [^you/[^name]], how many times a day does he/she usually help [^you/[^name]]?

01 once a day
02 twice a day
03 three or four times a day
04 all the time
05 whenever I need it?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time of care in the day 2016 50-120 50 120 Participant No Past week Wave 8 No

Still thinking about help received in person, when does [[^BLANK/your/his/her/] husband/wife/partner/son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] help [^you/[^name]]?

01 During the day time only, until [^you/[^name]] [^go/goes] to bed,
02 During the night time only, once [^you/[^name]] [^have/has] gone to bed,
03 Or both during the day time and at night after [^you/[^name]][^have/has] gone to bed?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2016 50-120 50 120 Participant No Past week Wave 8 No

[^Do/Does] [^you/[^name]] usually deal with paying for [^your/his/her] care or does a family member or │friend manage this for [^you/[^name]]?

01 Deals with this all [^your/him/hers]
02 Deals with some of it but not all
03 Does not deal with this at all

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2016 50-120 50 120 Participant No Current Wave 8 No

Local authorities/council/social services offer different ways of arranging payment for people’s care. This card describes some of these ways. Please look at the card and tell me whether either of these apply for the care [^you/[^name]] receive(s)?

01 Direct payments
02 Local authority/council/social services manages the money
03 Neither of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - personal budgets 2016 50-120 50 120 Participant No Current Wave 8 No

[^Do/Does] [^you/[^name]] have a Personal Budget, sometimes known as an Individual Budget? This is when the local authority/ council/social services decides │the amount or pot of money necessary to meet social care needs. [^you/he/she] can │choose how to spend this money which can be used for a range of services, not just social care.

01 Yes, have Personal Budget/Individual budget
02 No, do not have Personal Budget/ Individual Budget

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - local authority assessments 2016 50-120 50 120 Participant No Current Wave 8 No

Has the local authority/council made an assessment of what [^you/[^name]] can afford for any of [^your/his/her] care needs?

01 Yes, had income assessment
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - local authority assessments 2016 50-120 50 120 Participant No Current Wave 8 No

How was the help from [[^BLANK/your/his/her] ^home care worker/ home help/ personal assistant/ member of the reablement / intermediate care staff team/voluntary helper/ warden / sheltered housing manager/ cleaner/the council’s handyman/the member of staff from thecare/nursing home/other helper] arranged? Please look at this card and tell me which option applies.

01 Arranged without involvement from the local authority, council or social services,
02 Local authority, council or social services arranged this help,
03 Local authority, council or social services told [^you/him/her] about the help but ││ [^you/he/she] arranged it or [^your/his/her] family arranged it
04 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2016 50-120 50 120 Participant No Current Wave 8 No

[^Do/Does] [^you/[^name]] [^your/his/her partner] pay or give any money for the help given by [^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Please include any payments made for this care, even if not made directly to the care provider. ^Do not include gifts, treats or occasional payments of expenses such as petrol money or lunch (informal providers only).

01 Yes,
02 No,
03 Don’t know

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2016 50-120 50 120 Participant No Current Wave 8 No

How much money [^do/does] [^you/[^name]] [^your/his/her partner] pay for the help given by [^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]. Please include any payments made for this care, even if not made directly to the care provider?

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE : 1.00..999997.00

01 per hour
02 per visit
03 per day
04 per week
05 per fortnight
06 per four weeks
07 per calendar month
08 per year

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2016 50-120 50 120 Participant No Current Wave 8 No

You said [^you/[^Name]] pay(s) [^amount] [^per hour/per visit/per day/per week/per fortnight/ per four weeks/per calendar month/ per year] for the care provided by [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Does this payment cover all the cost of this help or some of the cost of this help?

01 All
02 Some

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADLs, IADLs 2016 50-120 50 120 Participant No Current Wave 8 No

Here are a few more everyday activities. Please tell me if [^you have / [^name] has] any difficulty with these because of a physical, mental, emotional or memory problem. Again exclude any difficulties you expect to last less than three months.
Because of a health or memory problem, [^do you /does he /does she] have difficulty doing any of the activities on this card?

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognising when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2016 50-120 50 120 Participant No Past month Wave 8 No

[^Have/Has] [^you/[^name]] received help from anyone with walking 100 yards, in the last month?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2016 50-120 50 120 Participant No Past month Wave 8 No

What about dressing, including putting on shoes and socks?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2016 50-120 50 120 Participant No Past month Wave 8 No

What about walking across a room?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2016 50-120 50 120 Participant No Past month Wave 8 No

What about bathing or showering?

2 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2016 50-120 50 120 Participant No Past month Wave 8 No

What about eating, such as cutting up food?

3 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2016 50-120 50 120 Participant No Past month Wave 8 No

What about getting in or out of bed?

4 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2016 50-120 50 120 Participant No Past month Wave 8 No

What about using the toilet, including getting up or down?

5 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2016 50-120 50 120 Participant No Past month Wave 8 No

What about shopping for groceries?

6 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2016 50-120 50 120 Participant No Past month Wave 8 No

What about taking medications?

7 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2016 50-120 50 120 Participant No Past month Wave 8 No

What about doing work around the house or garden?

8 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2016 50-120 50 120 Participant No Past month Wave 8 No

What about managing money, such as paying bills and keeping track of expenses?

9 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - reason for care requirement 2016 50-120 50 120 Participant No Past month Wave 8 No

[^Do/Does] [^you/[^name]] receive this help with [^shopping for groceries/doing work around the house or garden/managing money] because of a physical, mental, emotional or memory problem?:

01 Yes for some or all
02 No, none of this help is because of a physical, mental, emotional or memorY problem

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2016 50-120 50 120 Participant No Past month Wave 8 No

In the last month, who has helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/dressing/ bathing or showering/eating/ shopping for groceries/doing work around the house or garden/taking medications/managing money]?

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 Friend
09 Neighbour
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2016 50-120 50 120 Participant No Past month Wave 8 No

Now, please tell me about all of the people from this list who have helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/ dressing/ bathing or showering/eating/shopping for groceries/doing work around the house or garden/taking medications/managing money] in the last month?

01 Home care worker/ home help/ personal assistant
02 A member of the reablement / intermediate care staff team
03 Voluntary helper
04 Warden / Sheltered housing manager
05 Cleaner
06 Council’s handyman
07 Member of staff at the care/nursing home
95 Other – please specify
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2016 50-120 50 120 Participant No Past month Wave 8 No

Who was the other person that helped [^you/[^name]]?

Open response

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2016 50-120 50 120 Participant No Past two years Wave 8 No

In the last two years have you received care at home that was not provided by family or friends?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2016 50-120 50 120 Participant No Past two years Wave 8 No

In the last two years have you had to pay for care received at home that was not provided by family or friends?

2 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Adequacy of support 2016 50-120 50 120 Participant No Past two years Wave 8 No

Thinking about all the help [^you/he/she] receive(s), would you say that the help │ [^you/he/she] │receive(s)…

01 …Meets [^your/his/her] needs all the time,
02 usually meets [^your/his/her] needs,
03 sometimes meets [^your/his/her] needs,
04 or, hardly ever meets [^your/his/her] needs?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2016 50-120 50 120 Participant No Past two years Wave 8 No

You have told me that [^your/his/her] [^husband /wife /partner /son /other son/daughter /other daughter /grandchild /other grandchild /sister /other sister /brother /other brother / other relative/ friend/ other friend] helped [^you/[^name]].
Can I just check, does this person live in the same household as [^you/[^name]]?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2018 50-120 50 120 Participant No Current Wave 9 No

You said [^you/[^Name]] pay(s) [^amount] [^per hour/per visit/per day/per week/per fortnight/ per four weeks/per calendar month/ per year] for the care provided by [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Does this payment cover all the cost of this help or some of the cost of this help?

01 All
02 Some

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2018 50-120 50 120 Participant No Current Wave 9 No

How [^do/does] [^you/name] usually pay or give money to [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for helping [^you/him/her]?

01 Own personal income, savings, pension or benefit (such as Attendance Allowance),
02 Direct Payment/ Personal or Individual Budget from the Local Authority/council/ Social Services,
03 From another source

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2018 50-120 50 120 Participant No Current Wave 9 No

And [^in addition to what] [^you/[name]] pay(s)), as far as you are aware does anyone else or any organisation pay or give money to [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister//other / other /friend/ other friend/neighbour/other neighbour/ the home care
worker/ home help/ personal assistant/ the member of the reablement /intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for the care [^you/he/she] receive(s) – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

01 Yes, the local authority /council /social services,
02 Yes, a family member (with their own money),
03 Yes, other,
04 No, nobody else pays

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2018 50-120 50 120 Participant No Current Wave 9 No

And does the local authority, council or social services pay [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other /other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] directly or is it through a Direct Payment or a Personal Budget?

01 Local authority / social services or council pay directly,
02 Paid through Direct Payments / Personal or Individual Budgets

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2018 50-120 50 120 Participant No Current Wave 9 No

How much money is [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] paid from the direct payment or personal budget for helping [^you/[name]]?

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE │││││1.00..9999997.00

01 Per hour,
02 Per visit,
03 Per day,
04 Per week,
05 Per fortnight,
06 Per four weeks,
07 Per calendar month,
08 Per year

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2018 50-120 50 120 Participant No Current Wave 9 No

You have told me that no payment was made for [[^BLANK/your/his/her/] ││││husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ brother/other brother / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helping [^you/[name]]. Why was this?

01 They provided their help for free/ there is no charge for the service,
02 Sometimes give them money or gifts for the help they give,
03 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2018 50-120 50 120 Participant No Past two years Wave 9 No

[During the last two years/since your last interview] have you lived or stayed in a nursing home or residential care home?

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2018 50-120 50 120 Participant No Past two years Wave 9 No

[Altogether/] how long did you stay in a nursing home or residential care home [in the │last two │years/since last interview]? You can tell me your answer in days/nights, │weeks or months.

INTERVIEWER: ENTER NUMBER OF DAYS/NIGHTS, WEEKS OR MONTHS.
Range: 0…40

01 Days/nights
02 Weeks
03 Months

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2018 50-120 50 120 Participant No Past two years Wave 9 No

When did you start your current stay in this home?

INTERVIEWER: ENTER YEAR
Range 2001..9997

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time spent in a care home 2018 50-120 50 120 Participant No Past two years Wave 9 No

“(When did you start your current stay in this home?)

01 January
02 February
03 March
04 April
05 May
06 June
07 July
08 August
09 September
10 October
11 November
12 December

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Amount of money spent on care home 2018 50-120 50 120 Participant No Past two years Wave 9 No

In total, roughly how much did you have to pay for nursing or residential care home │fees [in the last
│two years/since last interview]? Do not include costs that were paid by │the NHS, your local authority or
│social services, but do include costs that were paid │for on your behalf by friends or family, or by
│private insurance

INTERVIEWER: ENTER COSTS IN £”: 0..9999997

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2018 50-120 50 120 Participant No Past month Wave 9 No

In the last month [^have/has] [^you/name]… READ OUT ..

01 Attended a lunch club
02 Attended a day care centre
03 Had meals on wheels
04 Had private frozen meals from a provider such as Wiltshire farm foods
05 Had family, friend or neighbour bring [^you/him/her] ready prepared meals
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services - frequency of use 2018 50-120 50 120 Participant No Past month Wave 9 No

How often [^do/does] [^you/] attend a lunch club?

How often [^do/does] [^you/name] attend a day care centre?

How often [^do/does] [^you/name] eat a meal provided by Meals on Wheels?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services - length of use 2018 50-120 50 120 Participant No Past month Wave 9 No

Each time that [^you/name] [^have/has] attended the day centre, including attending classes or groups run by the day centre in the last month about how many hours did [^you/he/she] usually spend there?

01 1-3 hours
02 4-6 hours, or
03 more than 6 hours

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional care services 2018 50-120 50 120 Participant No Past three months Wave 9 No

In the last three months, [^have/has] [^you/name] used or received the Local Authority/council’s Handy man’s service? This is usually a free service sometimes arranged through Age Concern or Help the Aged

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids 2018 50-120 50 120 Participant No Current Wave 9 No

^Do you / Does [^name]] use any of these?
Only include personal alarms used to call for assistance after falls etc.

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids - who pays 2018 50-120 50 120 Participant No Current Wave 9 No

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?
INTERVIEWER: Read out each in turn and code all that apply.

1 Health Service (NHS)
2 Social Services
3 ^[You / Name] or [ your / his / her spouse/partner]
95 or someone else (please specify)?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Mobility/safety aids - who pays 2018 50-120 50 120 Participant No Cuurent Wave 9 No

Can I just check that ^[the NHS/Social Services/ you/ your spouse or partner] covered all the costs of the [^cane or walking stick/ zimmer frame or walker/manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/elbow crutches]?

1 Yes covered all costs
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADL - walking 2016 50-120 50 120 Participant No Current Wave 8 No

By [^yourself / himself / herself] and without using any special equipment, how much difficulty [^do you / does [^name]] have walking for a quarter of a mile? [^Do you / Does he / Does she] have…

1 …no difficulty,
2 some difficulty,
3 much difficulty,
4 or, [^are you / is he / is she] unable to do this?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADL - walking 2016 50-120 50 120 Participant No Current Wave 8 No

Because of a health problem, [^do you /does he /does she] have difficulty doing any of the activities on this card? Exclude any difficulties that you expect to last less than three months

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognising when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2018 50-120 50 120 Participant No Past two years Wave 9 No

You have told me that [^your/his/her] [^husband /wife /partner /son /other son/daughter /other daughter /grandchild /other grandchild /sister /other sister /brother /other brother / other relative/ friend/ other friend] helped [^you/[^name]].
Can I just check, does this person live in the same household as [^you/[^name]]?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2018 50-120 50 120 Participant No Past two years Wave 9 No

“[You have told me that [^your /his /her] [^husband /wife /partner/son /other son/daughter /other daughter /grandchild /other grandchild /sister /other sister /brother ││ /other brother / other relative/ friend / other friend/ neighbour /other neighbour] helped [^you/[^name]]. What is [^your /his /her] [^husband’s /wife’s /partner’s /son’s /other ││ son’s /daughter’s /other daughter’s /grandchild’s /other grandchild’s /sister’s / other/ sister’s /brother’s /other brother’s / other relative’s / friend’s / other friend’s/neighbour’s /other neighbour’s] name?

INTERVIEWER: CODE OR ASK SEX OF PERSON WHO HELPS”

Open response

01 Male
02 Female

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2018 50-120 50 120 Participant No Past two years Wave 9 No

Did an other [^son/ daughter/ grandchild/ sister/ brother/ other relative/ friend/neighbour] help [^you/ [^name]]?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2018 50-120 50 120 Participant No Past month Wave 9 No

You have told me that a home care worker/home help/personal assistant helped [^you/ [^name]] in the last month. [^Do/Does] [^you/ [^name]] have just one person helping [^you /him /her], or [^do │ /does] │[^you/ [^name]] have more than one?

01 One,
02 More than one

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Tasks caregivers carry out 2018 50-120 50 120 Participant No Past month Wave 9 No

Do they all help with the same kinds of things, or [^do/does] [^you/[^name]] have different people helping with different things?

01 All help with same kind of things,
02 Different people help with different things

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Tasks caregivers carry out 2018 50-120 50 120 Participant No Past month Wave 9 No

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. Thinking of the [^first/second/third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?

01 Getting up in the morning,
02 Going to bed,
03 Washing/ bathing/ personal care,
04 Meals/ eating,
05 Getting out of the house/ shopping,
06 Cleaning/ laundry,
07 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Additional tasks - who helps 2018 50-120 50 120 Participant No Past month Wave 9 No

Are there any more home care workers, home helps or personal assistants who help [^you/[^name]] with different kinds of things?

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2018 50-120 50 120 Participant No Past week Wave 9 No

Thinking about [^the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

Open response

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2018 50-120 50 120 Participant No Past week Wave 9 No

Thinking about [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff ││team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the ││council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

01 No help in the last week,
02 Less than one hour,
03 1-4 hours,
04 5-9 hours,
05 10-19 hours,
06 20-34 hours,
07 35-49 hours,
08 50-99 hours,
09 100 hours or more

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Number of hours of care given 2018 50-120 50 120 Participant No Past week Wave 9 No

Can you tell me whether in the last week [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other/sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helped [^you/[^name]] in person with these tasks for:

01 Less than 20 hours,
02 20-34 hours,
03 Or, for 35 hours or more?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Frequency of care 2018 50-120 50 120 Participant No Past week Wave 9 No

Still thinking only about help received in person, how often does your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing ││manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/the other helper] usually help [^you/[^name]]?

01 Every day
02 Four to six times a week
03 Two or three times a week
04 Once a week
05 Once a fortnight/ every two weeks
06 Once a month
07 Less than once a month

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Frequency of care 2018 50-120 50 120 Participant No Past week Wave 9 No

On the days [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helps [^you/[^name]], how many times a day does he/she usually help [^you/[^name]]?

01 once a day
02 twice a day
03 three or four times a day
04 all the time
05 whenever I need it?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Time of care in the day 2018 50-120 50 120 Participant No Past week Wave 9 No

Still thinking about help received in person, when does [[^BLANK/your/his/her/] husband/wife/partner/son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] help [^you/[^name]]?

01 During the day time only, until [^you/[^name]] [^go/goes] to bed,
02 During the night time only, once [^you/[^name]] [^have/has] gone to bed,
03 Or both during the day time and at night after [^you/[^name]][^have/has] gone to bed?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2018 50-120 50 120 Participant No Past week Wave 9 No

[^Do/Does] [^you/[^name]] usually deal with paying for [^your/his/her] care or does a family member or │friend manage this for [^you/[^name]]?

01 Deals with this all [^your/him/hers]
02 Deals with some of it but not all
03 Does not deal with this at all

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2018 50-120 50 120 Participant No Current Wave 9 No

Local authorities/council/social services offer different ways of arranging payment for people’s care. This card describes some of these ways. Please look at the card and tell me whether either of these apply for the care [^you/[^name]] receive(s)?

01 Direct payments
02 Local authority/council/social services manages the money
03 Neither of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - personal budgets 2018 50-120 50 120 Participant No Current Wave 9 No

[^Do/Does] [^you/[^name]] have a Personal Budget, sometimes known as an Individual Budget? This is when the local authority/ council/social services decides │the amount or pot of money necessary to meet social care needs. [^you/he/she] can │choose how to spend this money which can be used for a range of services, not just social care.

01 Yes, have Personal Budget/Individual budget
02 No, do not have Personal Budget/ Individual Budget

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - local authority assessments 2018 50-120 50 120 Participant No Current Wave 9 No

Has the local authority/council made an assessment of what [^you/[^name]] can afford for any of [^your/his/her] care needs?

01 Yes, had income assessment
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care - local authority assessments 2018 50-120 50 120 Participant No Current Wave 9 No

How was the help from [[^BLANK/your/his/her] ^home care worker/ home help/ personal assistant/ member of the reablement / intermediate care staff team/voluntary helper/ warden / sheltered housing manager/ cleaner/the council’s handyman/the member of staff from thecare/nursing home/other helper] arranged? Please look at this card and tell me which option applies.

01 Arranged without involvement from the local authority, council or social services,
02 Local authority, council or social services arranged this help,
03 Local authority, council or social services told [^you/him/her] about the help but ││ [^you/he/she] arranged it or [^your/his/her] family arranged it
04 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2018 50-120 50 120 Participant No Current Wave 9 No

[^Do/Does] [^you/[^name]] [^your/his/her partner] pay or give any money for the help given by [^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Please include any payments made for this care, even if not made directly to the care provider. ^Do not include gifts, treats or occasional payments of expenses such as petrol money or lunch (informal providers only).

01 Yes,
02 No,
03 Don’t know

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Paying for care 2018 50-120 50 120 Participant No Current Wave 9 No

How much money [^do/does] [^you/[^name]] [^your/his/her partner] pay for the help given by [^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]. Please include any payments made for this care, even if not made directly to the care provider?

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE : 1.00..999997.00

01 per hour
02 per visit
03 per day
04 per week
05 per fortnight
06 per four weeks
07 per calendar month
08 per year

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADL - walking 2018 50-120 50 120 Participant No Current Wave 9 No

Because of a health problem, [^do you /does he /does she] have difficulty doing any of the activities on this card? Exclude any difficulties that you expect to last less than three months

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognising when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Need; ADLs, IADLs 2018 50-120 50 120 Participant No Current Wave 9 No

Here are a few more everyday activities. Please tell me if [^you have / [^name] has] any difficulty with these because of a physical, mental, emotional or memory problem. Again exclude any difficulties you expect to last less than three months.
Because of a health or memory problem, [^do you /does he /does she] have difficulty doing any of the activities on this card?

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognising when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2018 50-120 50 120 Participant No Past month Wave 9 No

[^Have/Has] [^you/[^name]] received help from anyone with walking 100 yards, in the last month?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2018 50-120 50 120 Participant No Past month Wave 9 No

What about dressing, including putting on shoes and socks?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2018 50-120 50 120 Participant No Past month Wave 9 No

What about walking across a room?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2018 50-120 50 120 Participant No Past month Wave 9 No

What about bathing or showering?

2 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2018 50-120 50 120 Participant No Past month Wave 9 No

What about eating, such as cutting up food?

3 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2018 50-120 50 120 Participant No Past month Wave 9 No

What about getting in or out of bed?

4 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADL - help with 2018 50-120 50 120 Participant No Past month Wave 9 No

What about using the toilet, including getting up or down?

5 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2018 50-120 50 120 Participant No Past month Wave 9 No

What about shopping for groceries?

6 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2018 50-120 50 120 Participant No Past month Wave 9 No

What about taking medications?

7 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2018 50-120 50 120 Participant No Past month Wave 9 No

What about doing work around the house or garden?

8 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; IADL-with help 2018 50-120 50 120 Participant No Past month Wave 9 No

What about managing money, such as paying bills and keeping track of expenses?

9 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - reason for care requirement 2018 50-120 50 120 Participant No Past month Wave 9 No

[^Do/Does] [^you/[^name]] receive this help with [^shopping for groceries/doing work around the house or garden/managing money] because of a physical, mental, emotional or memory problem?:

01 Yes for some or all
02 No, none of this help is because of a physical, mental, emotional or memorY problem

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2018 50-120 50 120 Participant No Past month Wave 9 No

In the last month, who has helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/dressing/ bathing or showering/eating/ shopping for groceries/doing work around the house or garden/taking medications/managing money]?

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 Friend
09 Neighbour
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2018 50-120 50 120 Participant No Past month Wave 9 No

Now, please tell me about all of the people from this list who have helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/ dressing/ bathing or showering/eating/shopping for groceries/doing work around the house or garden/taking medications/managing money] in the last month?

01 Home care worker/ home help/ personal assistant
02 A member of the reablement / intermediate care staff team
03 Voluntary helper
04 Warden / Sheltered housing manager
05 Cleaner
06 Council’s handyman
07 Member of staff at the care/nursing home
95 Other – please specify
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2018 50-120 50 120 Participant No Past month Wave 9 No

Who was the other person that helped [^you/[^name]]?

Open response

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2018 50-120 50 120 Participant No Past two years Wave 9 No

In the last two years have you received care at home that was not provided by family or friends?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; ADLs, IADLs - who cares 2018 50-120 50 120 Participant No Past two years Wave 9 No

In the last two years have you had to pay for care received at home that was not provided by family or friends?

2 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Receipt; Adequacy of support 2018 50-120 50 120 Participant No Past two years Wave 9 No

Thinking about all the help [^you/he/she] receive(s), would you say that the help │ [^you/he/she] │receive(s)…

01 …Meets [^your/his/her] needs all the time,
02 usually meets [^your/his/her] needs,
03 sometimes meets [^your/his/her] needs,
04 or, hardly ever meets [^your/his/her] needs?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

ELSA
Provision; Effect on health from caring responsibilities 2015 16-120 16 120 Participant No Current 2015 sweep No

Have you seen your GP because your health has been affected by the support you give to the people that you care for?

1 Yes
2 No

HSE
Provision; Effect on health from caring responsibilities 2015 16-120 16 120 Participant No Current 2015 sweep No

Has your ability to take up or stay in employment been affected, in any of the ways listed on this card, by the help or support that you give to [the people you care for]?

1 Left employment altogether
2 Took new job
3 Worked fewer hours
4 Reduced responsibility at work
5 Flexible employment agreed
6 Changed to work at home
7 Other
8 Employment not affected

HSE
Provision; Whether local authority have carried out carer's assessment 2015 16-120 16 120 Participant No Current 2015 sweep No

Have the Local Authority (council) carried out a carer’s assessment as a result of the help or support that you provide to your (name of person respondent helps) you care for?

1 Yes
2 No

HSE
Provision; Whether local authority have carried out carer's assessment - for multiple dependents 2015 16-120 16 120 Participant No Current 2015 sweep No

Have the Local Authority (council) carried out a carer’s assessment as a result of the help or support that you provide to the people you care for?

1 Yes
2 No

HSE
Provision; Receipt of money for caring activities 2015 16-120 16 120 Participant No Current 2015 sweep No

Do you receive any money for helping [your answer at PrRel]/ [answer from PrName1/2/3]?

1. Yes, this person pays me from their own income, pensions or savings
2. Yes, this person pays me from a personal budget or direct payment
3. Yes, I receive a carer’s allowance
4. Yes, I receive money in another way
5. No, I receive no money for helping this person.

HSE
Receipt; Payments for care from local authority & social services 2015 16-120 16 120 Participant No Current 2015 sweep No

And does the local authority, council or social services pay your (relevant provider) directly or is it through your Direct Payment or a Personal Budget?

1 Local authority/social services or council pay directly
2 Paid through Direct Payments / Personal or Individual Budgets

HSE
Receipt; Amount paid via direct payments and personal budget 2015 16-120 16 120 Participant No Current 2015 sweep No

How much money is [person who helps] paid from the direct payment or personal budget for helping you?

Enter amount in pounds and pence on this screen Range: 0…20,000.
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

HSE
Receipt; Reason no payment made for care 2015 16-120 16 120 Participant No Current 2015 sweep No

You have told me that no payment was made for [person who helps] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me’
3. Other

HSE
Receipt; Receipt of provided meals 2015 16-120 16 120 Participant No Past month 2015 sweep No

In the last month, have you regularly had your main meals provided for you?
EXPLAIN IF NECESSARY: Provided by someone who is not living here with you?
INTERVIEWER: Don’t count meals eaten elsewhere.

1 Yes
2 No

HSE
Receipt; Who provided meals 2015 16-120 16 120 Participant No Current 2015 sweep No

Who provided your meals? PROBE: Who else?
INTERVIEWER EXPLAIN IF NECESSARY: Meals on Wheels may be provided by the council or another organization.

1 Meals on Wheels
2 Private frozen meal provider such as Wiltshire farm foods
3 Family/friend/ neighbour brought me ready prepared meals
4 Other
5 None of these

HSE
Receipt; Attendance of lunch club 2015 16-120 16 120 Participant No Past month 2015 sweep No

In the last month did you attend a lunch club run by the council or a voluntary body?

1 Used in the last month
2 Not used in the last month

HSE
Receipt; Attendance of day centre 2015 16-120 16 120 Participant No Past month 2015 sweep No

And in the last month did you attend a Day Centre? Please include groups or classes run by a day centre but not necessarily held at the day centre building.

1 Used in the last month
2 Not used in the last month

HSE
Provision; Provision of care to others 2015 16-120 16 120 Participant No Past month 2015 sweep No

Have you personally provided help or support to anyone in the last month because they have long-term physical or mental ill-health, a disability or problems relating to old age? Do not include help given in a professional capacity or as part of a job, but include help or support given to your family, friends or neighbours

Can I just check, are you only including help or support that you give this person/these people because they have long-term physical or mental ill-health, disability or problems relating to old age, or were you thinking about help more generally?

How many people do you provide this kind of help and support to?

Part 1:
1 Yes
2 No

Part 2:
1 Yes, thinking of help/support given because of health/old age
2 No, thinking about help more generally

Part 3:
Range: 0..97

HSE
Provision; Relationship of care recipient to participant 2015 16-120 16 120 Participant No Current 2015 sweep No

Thinking about (name of person respondent helps), what is their relationship to you?

1 Husband/Wife/Partner
2 Mother (including mother-in-law)
3 Father (including father-in-law)
4 Son (including step son, adopted son or son in law)
5 Daughter (including step daughter, adopted daughter or daughter in law)
6 Grandparent
7 Grandchild (including Great Grandchildren)
8 Brother / Sister (including step / adopted / in laws)
9 Other family member
10 Friend
11 Neighbour
12 Somebody I help as a professional carer
13 Somebody I help as a voluntary helper
14 Other (PLEASE SPECIFY)

HSE
Provision; Does care receipt live in same house as participant 2015 16-120 16 120 Participant No Current 2015 sweep No

Does (name of person respondent helps) live in the same household as you or in a different household?

1 Same household
2 Different household

HSE
Provision; Age of person participant provides care to 2015 16-120 16 120 Participant No Current 2015 sweep No

How old is (name of person respondent helps)?

Range: 1..130

HSE
Provision; Gender of person participant provides care to 2015 16-120 16 120 Participant No Current 2015 sweep No

Is (name of person respondent helps) male or female?

1 Male
2 Female

HSE
Provision; Number of hours participant provides care for - last week 2015 16-120 16 120 Participant No Past week 2015 sweep No

Thinking only about the types of tasks and activities I showed you on card G12 how many hours did you spend helping (name of person respondent helps) in the last week?

[Unable to find card G12]

Thinking of the same type of help you give (name of person respondent helps) can you tell me whether in the last week you helped him/her:

Part 1:
1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

Part 2:
1 Less than 10 hours
2 10-19 hours
3 20-34 hours
4 Or for 35 hours or more?

HSE
Provision; Number of hours participant provides care for - normal week 2015 16-120 16 120 Participant No Current 2015 sweep No

How many hours do you help (name of person respondent helps) in a usual week?

Repeated for each person respondent helps.

1 Less than one hour per week
2 1-4 hour per week
3 5-9 hours per week
4 10-19 hours per week
5 20-34 hours per week
6 35-49 hours per week
7 50-99 hours per week
8 100 hours or more per week

HSE
Provision; Total time providing support 2015 16-120 16 120 Participant No Current 2015 sweep No

Thinking about the total time you spend providing support or help to [insert name of person(s) cared for], about how many hours altogether did you spend last week helping them?

1 Less than one hour per week
2 1-4 hour
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Provision; Activities participant provides support for 2015 16-120 16 120 Participant No Current 2015 sweep No

Which of the activities do you help or support (name of person respondent helps)? Please think only of help or support given because of long-term physical or mental ill health, disability or problems relating to old age.

1 Getting the person in and out of bed
2 Washing their face and hands
3 Having a bath or a shower, including getting in and out of the bath or shower
4 Dressing or undressing, including putting on shoes and socks
5 Using the toilet
6 Eating, including cutting up food
7 Taking the right amount of medicine at the right times
8 Getting around indoors (please don’t include using the stairs)
9 Getting up and down stairs
10 Getting out of the house, for example to go to the doctors or to visit a friend
11 Shopping for food, including getting to the shops, choosing the items, carrying the items
home and then unpacking and putting the items away
12 Doing routine housework or laundry
13 Doing paperwork or paying bills

HSE
Provision; Receipt of money for caring responsibilities 2015 16-120 16 120 Participant No Current 2015 sweep No

Do you receive any money for helping [your answer at PrRel]/ [answer from PrName1/2/3]?

INTERVIEWER: RECORD AMOUNT GIVEN BY RESPONDENT (pounds and pence) and
reference period.

Part 1:
1. Yes, this person pays me from their own income, pensions or savings
2. Yes, this person pays me from a personal budget or direct payment
3. Yes, I receive a carer’s allowance
4. Yes, I receive money in another way
5. No, I receive no money for helping this person.

Part 2:
Enter amount in pounds and pence on this screen.
1. per hour
2. per visit
3. per day
4. per week
5. per fortnight
6. per four weeks
7. per calendar month
8. per year

HSE
Provision; Receipt of support with caring responsibilities 2015 16-120 16 120 Participant No Current 2015 sweep No

Do you receive any of these types of support in caring for (name of person respondent helps)?
Please think only about help or support given directly to you.

1 Help from GP or nurse
2 Access to respite care
3 Help from professional care staff
4 Help from carers’ organisation or charity
5 Help from other family members
6 Advice from local authority/ social services
7 Help from friends/neighbours
8 None of these

HSE
Provision; Effect on health from caring responsibilities 2015 16-120 16 120 Participant No Past three months 2015 sweep No

In the last three months, has your own health been affected, in any of the ways listed on this card, by the help or support that you give to your (name of person respondent helps)?

1 Feeling tired
2 Feeling depressed
3 Loss of appetite
4 Disturbed sleep
5 General feeling of stress
6 Physical strain
7 Short tempered
8 Developed my own health condition
9 Made an existing condition worse
10 Other
11 No, none of these

HSE
Provision; Seeing GP due to strain of caring responsibilities 2015 16-120 16 120 Participant No Current 2015 sweep No

Have you seen your GP because your health has been affected by the support you give to your {relation from PRel}?

1 Yes
2 No

HSE
Receipt; Number of hours carer used 2015 16-120 16 120 Participant No Current 2015 sweep No

Thinking about (person who helps), in the last week how many hours have they helped you in person with these kinds of tasks?

ENTER NUMBER OF HOURS. IF LESS THAN 1HOUR ENTER 0.5.

HSE
Receipt; Number of hours carer used with specific tasks 2015 16-120 16 120 Participant No Current 2015 sweep No

Thinking about (helper’s role/name), in the last week how many hours have they helped you in person with these kinds of tasks?

Tasks:
1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

Can you tell me whether in the last week your (helper’s name) helped you in person with these tasks for:….

Part 1:
IF 2 PEOPLE HELP AT THE SAME TIME, CODE DOUBLE THE HOURS
1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

Part 2:
1 Less than 20 hours
2 20-34 hours
3 Or for 35 hours or more?

HSE
Receipt; Length of time receiving care 2015 16-120 16 120 Participant No Current 2015 sweep No

How long have you been receiving any of the kinds of help we have been talking about? Would you say it is for less than a year, or one year or more?

– Home care worker/ home help/ personal assistant
– Reablement/ intermediate care staff
– Occupational therapist/ physiotherapist
– Voluntary helper
– Warden / Sheltered housing manager
– Cleaner
– Council’s handyman
– Other professional carer
– Husband/ wife/ partner [other informal helper]

1. Less than one year
2. One year or more

HSE
Receipt; Who pays for carers 2015 16-120 16 120 Participant No Current 2015 sweep No

Do you usually deal with paying for your care or does a family member or friend manage this for you?

1. Respondent deals with this all him/herself
2. Respondent knows about some of it but not all
3. Respondent does not deal with this at all

HSE
Receipt; Methods of payment for care 2015 16-120 16 120 Participant No Current 2015 sweep No

Local authorities/council/social services offer different ways of arranging payment for people’s care. This card describes some of these ways. Please look at the card and tell me whether either
of these apply for the care you receive? Only include payments for social care. Do not include other payments for example, pension or Attendance Allowance

1 Direct payments
2 Local authority/ council/ social services manages the money
3 Neither of these

HSE
Receipt; Receipt of personal budget 2015 16-120 16 120 Participant No Current 2015 sweep No

Do you have a Personal Budget, sometimes known as an Individual Budget? This is when the local authority/ council/social services decides the amount or pot of money necessary to meet your social care needs. You can choose how to spend this money which can be used for a range of services, not just social care.

1 Yes, have Personal Budget/Individual Budget
2 No, do not have Personal Budget/ Individual Budget

HSE
Receipt; Whether local authority has made assessment of care affordability 2015 16-120 16 120 Participant No Current 2015 sweep No

Has the council or local authority made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing

1 Yes, had income assessment
2 No

HSE
Receipt; How help has been arranged 2015 16-120 16 120 Participant No Current 2015 sweep No

How was the help from your (name of formal care provider) arranged? Please look at this card and tell me which option applies.

1 Arranged without involvement from the local authority, council or social services
2 Local authority, council or social services arranged this help for me
3 Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me
4 Other

HSE
Receipt; Does participant pay for care 2015 16-120 16 120 Participant No Current 2015 sweep No

Do you (your husband/partner, wife/partner if appropriate) pay or give any money for the help given by your (list of relevant formal providers)? Please include any payments made for this care, even if not made directly to the care provider.

1 Yes
2 No
3 (don’t know)

HSE
Receipt; Amount participant pays for care 2015 16-120 16 120 Participant No Current 2015 sweep No

How much money do you pay for the help given by [list of all formal providers who help]. Please include any payments made for this care, even if not made directly to the care provider?

Does this payment cover all the cost of this help or some of the cost of this help?

Part 1:
Enter amount in pounds and pence on this screen Range: 0…20,000.
1. per hour
2. per visit
3. per day
4. per week
5. per fortnight
6. per four weeks
7. per calendar month
8. per year

Part 2:
1 All
2 Some

HSE
Receipt; How participant pays for care 2015 16-120 16 120 Participant No Current 2015 sweep No

How do you usually pay or give money to your (list of relevant formal providers) for helping you?

1 My own personal income, savings, pension or benefit (such as Attendance
Allowance)
2 My Direct Payment/ Personal or Individual Budget from the Local Authority/
council/ Social Services
3 From another source

HSE
Receipt; Other organsations paying for participant's care 2015 16-120 16 120 Participant No Current 2015 sweep No

(And in addition to what you pay), as far as you are aware does anyone else or any organisation pay or give money to your (list of relevant formal providers) for the care you receive – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

1 Yes, the local authority /council / social services
2 Yes, a family member (with their own money)
3 Yes, other
4 No, nobody else pays

HSE
Receipt; How local authority pays for care 2015 16-120 16 120 Participant No Current 2015 sweep No

And does the local authority, council or social services pay your (list of relevant formal providers) directly or is it through your Direct Payment or a Personal Budget?

1 Local authority / social services or council pay directly
2 Paid through Direct Payments / Personal or Individual Budgets

HSE
Receipt; Amount paid for care 2015 16-120 16 120 Participant No Current 2015 sweep No

How much money is [list of all formal providers who help] paid from the direct payment or personal budget for helping you?

Enter amount in pounds and pence on this screen: Range: 0…20,000.
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

HSE
Receipt; Why no payment made for care 2015 16-120 16 120 Participant No Current 2015 sweep No

You have told me that no payment was made for [list of all formal providers who help] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

HSE
Receipt; Does participant pay for care 2015 16-120 16 120 Participant No Current 2015 sweep No

Do you (your husband/partner, wife/partner if appropriate) pay or give any money for the help given by your (relevant provider)? Please include any payments made for this care, even if not made directly to the care provider.

1 Yes
2 No
3 (Don’t know)

HSE
Receipt; How much money participant pays for care 2015 16-120 16 120 Participant No Current 2015 sweep No

How much money do you pay for the help given by [person who helps]? Please include any payments made for this care, even if not made directly to the care provider.

INTERVIEWER: Record amount given by respondent (pounds and pence) and reference period.
Enter amount in pounds and pence on this screen. Enter reference period on next screen.
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

HSE
Receipt; Do participant payments cover all costs 2015 16-120 16 120 Participant No Current 2015 sweep No

Does this payment [payments made by participant] cover all the cost of this help or some of the cost of this help?

1 All
2 Some

HSE
Receipt; How money is paid to provider 2015 16-120 16 120 Participant No Current 2015 sweep No

How do you usually pay or give money to your (relevant provider) for helping you?

1 my own personal income, savings, pension or benefit (such as Attendance Allowance)
2 my Direct Payment/ Personal or Individual Budget from the Local Authority/ council/Social Services
3 from another source

HSE
Receipt; Other stakeholders paying for participant's care 2015 16-120 16 120 Participant No Current 2015 sweep No

(And in addition to what you pay), as far as you are aware does anyone else or any organisation pay or give money to your (relevant provider) for the care you receive – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

1 Yes, the local authority /council / social services
2 Yes, a family member (with their own money)
3 Yes, other
4 No, nobody else pays

HSE
Receipt; Main meals provided 2016 65-120 65 120 Participant No Past month 2016 Sweep No

In the last month, have you regularly had your main meals provided for you?
EXPLAIN IF NECESSARY: Provided by someone who is not living here with you?
INTERVIEWER: Don’t count meals eaten elsewhere.

Who provided your meals? PROBE: Who else?
INTERVIEWER EXPLAIN IF NECESSARY: Meals on Wheels may be provided by the council or another organisation

Part 1:
1 Yes
2 No

Part 2:
1 Meals on Wheels
2 Private frozen meal provider such as Wiltshire farm foods
3 Family/friend/neighbour brought me ready prepared meals
4 Other
5 None of these

HSE
Receipt; Attendance of lunch club 2016 65-120 65 120 Participant No Past month 2016 Sweep No

In the last month did you attend a lunch club run by the council or a voluntary body?

1 Used in the last month
2 Not used in the last month

HSE
Receipt; Attendance of day centre 2016 65-120 65 120 Participant No Past month 2016 Sweep No

And in the last month did you attend a Day Centre? Please include groups or classes run by a day centre but not necessarily held at the day centre building.

1 Used in the last month
2 Not used in the last month

HSE
Receipt; Agreement of Personal Care Plan 2015 16-120 16 120 Participant No Past year 2015 sweep No

In the last 12 months, have you and a health professional agreed a Personal Care Plan for your overall health and social care needs?

IF YES: Is that in the last 12 months or more than 12 months ago?
1 Yes, have agreed a personal care plan in the last 12 months
2 Yes, agreed a personal care plan more than 12 months ago
3 No, do not have a personal plan

HSE
Receipt; Discussion of Personal Care Plan 2015 16-120 16 120 Participant No Past year 2015 sweep No

Have you talked about a Personal Care Plan with a health care professional, or been offered a Personal Care Plan in the last 12 months?

1 Yes
2 No

HSE
Receipt; Reason Personal Care Plan not agreed 2015 16-120 16 120 Participant No Current 2015 sweep No

Why have you not agreed a Personal Care Plan after discussing it? Is that because you didn’t want one or is there some other reason?

1 Did not want a personal care plan
2 Still discussing a plan, not yet agreed
95 Other reason – SPECIFY

HSE
Receipt; Desire to discuss Personal Care Plan 2015 16-120 16 120 Participant No Current 2015 sweep No

Would you like the opportunity to discuss a Personal Care Plan with a health professional?

1 Yes
2 No
3 Don’t know

HSE
Receipt; If Personal Care Plan has improved services received 2015 16-120 16 120 Participant No Current 2015 sweep No

Has your Care Plan improved the health or social care services you receive?
IF YES: Would you say they have improved a great deal or to some extent?

1 Yes – improved a great deal
2 Yes – improved to some extent
3 No – not improved
4 Don’t know / can’t say

HSE
Receipt; Offers of self-care support 2015 16-120 16 120 Participant No Current 2015 sweep No

There are various options for self-care support that health care professionals may offer to people with long term health conditions. This card shows some of them. Have you discussed or been offered any of the things on this card in the last 12 months (even if you decided not to take them up)?

1 Being given help to find information about your condition
2 Being given help to find information about the choices you have for care from health professionals
3 Attending a training course on your condition, such as the Expert Patients Programme, Challenging Arthritis, DAFNE for diabetes, etc.
4 Joining a support network or attending a group for people with a long-term condition
5 Having equipment fitted into your home
6 Other (PLEASE SPECIFY)
7 None of these

HSE
Receipt; Activities completed to manage condition 2015 16-120 16 120 Participant No Past year 2015 sweep No

And over the last 12 months which, if any, of the things on this card have you actually done to help manage your condition? Just read out the numbers that apply.

1 Read and used information about your condition (include using the internet)
2 Read and used information about the choices you have for care from health professionals
(include using the internet)
3 Attended a training course on your condition such as the Expert Patients Programme,
Challenging Arthritis, DAFNE for diabetes, etc.
4 Joined a support network or attended a group for people with a long-term condition
5 Had equipment fitted into your home
6 Other (PLEASE SPECIFY)
7 None of these

HSE
Need; Ability to complete ADLs & IADLs 2015 16-120 16 120 Participant No Current 2015 sweep No

Thinking about getting in and out of bed on your own, please look at this card and tell me the option which best applies to you?

Still looking at Showcard G1, what about…
(B) washing your face and hands/
(C) having a bath or a shower, including getting in and out of the bath or shower/
(D) dressing or undressing, including putting on shoes and socks/
(E) using the toilet/
(F) eating, including cutting up food/
(G) taking the right amount medicine at the right times/
(H) getting around indoors/
(I) getting up and down stairs/
(J) getting out of the house, for example to go to the doctors or visit a friend/
(K) shopping for food including getting to the shops, choosing the items, carrying the items
home and then unpacking and putting the items away/
(L) doing routine housework or laundry/
(M)doing paperwork or paying bills

1 I can do this without help from anyone
2 I have difficulty doing this but manage on my own
3 I can only do this with help from someone
4 I cannot do this

HSE
Receipt; Help with ADLs & IADLs 2015 16-120 16 120 Participant No Past month 2015 sweep No

Have you received help from anyone with getting in out of bed on your own, in the last month?

What about (insert shortened task B to M listed in bold)?

(B) washing your face and hands/
(C) having a bath or a shower, including getting in and out of the bath or shower/
(D) dressing or undressing, including putting on shoes and socks/
(E) using the toilet/
(F) eating, including cutting up food/
(G) taking the right amount medicine at the right times/
(H) getting around indoors/
(I) getting up and down stairs/
(J) getting out of the house, for example to go to the doctors or visit a friend/
(K) shopping for food including getting to the shops, choosing the items, carrying the items
home and then unpacking and putting the items away/
(L) doing routine housework or laundry/
(M)doing paperwork or paying bills

1 Yes
2 No

HSE
Receipt; Reason needing help 2015 16-120 16 120 Participant No Current 2015 sweep No

Do you receive this help with (insert tasks K/L/M) because of long standing physical or mental ill health, a disability or problems relating to old age?

(K) shopping for food including getting to the shops, choosing the items, carrying the items
home and then unpacking and putting the items away/
(L) doing routine housework or laundry/
(M)doing paperwork or paying bills

1 Yes for some or all
2 No, none of this help is because long standing physical or mental ill-health, disability or problems relating to old age

HSE
Receipt; Who has bene carer 2015 16-120 16 120 Participant No Past month 2015 sweep No

In the last month, who has helped you with (insert list of tasks in group in bold)?
First, please tell me about all of the people from this list who have helped you. Please only think about help received because of long term physical or mental ill-health, disability or problems relating to old age.

For HelpInf and HelpForm, tasks A to M regrouped into following categories:
1. Having a bath or shower
2. Getting in and out of bed ,washing your face and hands , dressing or undressing, using the
toilet, eating, including cutting up food, taking medication, getting around indoors and using stairs
3. Getting out of the house, shopping for food, doing routine housework or laundry, doing
paperwork or paying bills

CODE ALL THAT APPLY:
1 Husband/Wife/Partner
2 Son (including step son, adopted son or son in law)
3 Daughter (including step daughter, adopted daughter or daughter in law)
4 Grandchild (including Great Grandchildren)
5 Brother / Sister (including step / adopted / in laws)
6 Niece / Nephew
7 Mother /father (including mother-in-law/ father-in-law)
8 Other family member
9 Friend
10 Neighbour
11 None of the above

HSE
Receipt; Who has been carer 2015 16-120 16 120 Participant No Past month 2015 sweep No

Now, please tell me about all of the people from this list who have helped you with (insert list of tasks in group) in the last month?

Who was the other person that helped you?

You have told me that your (person who helped) helped you. Can I just check, does this person live in this household?

Sex of carer:

Part 1:
CODE ALL THAT APPLY.
1 Home care worker / Home help / Personal assistant
2 A member of the re-ablement / intermediate care staff team
3 Occupational Therapist / Physiotherapist
4 Voluntary helper
5 Warden / Sheltered housing manager
6 Cleaner
7 Council’s handyman
8 Other (please specify)
9 None of the above

Part 2:
Text: Maximum 100 characters

Part 3:
1 Yes
2 No

Part 4:
1 Male
2 Female

HSE
Receipt; How many people caring 2015 16-120 16 120 Participant No Past month 2015 sweep No

You have told me that a home care worker/home help/personal assistant helped you in the last month. Do you have just one person helping you, or do you have more than one?

Do they all help with the same kinds of things, or do you have different people helping with different things?

Part 1:
1 One
2 More than one

Part 2:
1 All help with same kind of things
2 Different people help with different things

HSE
Receipt; Carers - what do they help with 2015 16-120 16 120 Participant No Current 2015 sweep No

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. Thinking of the first home care worker/ home help/ personal assistant, what sort of thing do they help you with?

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/ personal care
4 Meals/ eating
5 Getting out of the house/ shopping
6 Cleaning/ laundry
7 Other

HSE
Receipt; Activities secondary carer helps with 2015 16-120 16 120 Participant No Current 2015 sweep No

Thinking of the second home care worker/ home help/ personal assistant, what sort of thing do they help you with?

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

HSE
Receipt; Additional carers 2015 16-120 16 120 Participant No Current 2015 sweep No

Are there any more home care workers, home helps or personal assistants who help you with different kinds of things?

1 Yes
2 No

HSE
Receipt; Activities third carer helps with 2015 16-120 16 120 Participant No Current 2015 sweep No

Thinking of the third home care worker/ home help/ personal assistant, what sort of thing do they help you with?

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/ personal care
4 Meals/ eating
5 Getting out of the house/ shopping
6 Cleaning/ laundry
7 Other

HSE
Provision; Provision of care to others 2016 16-120 16 120 Participant No Current 2016 Sweep No

Have you personally provided help or support to anyone in the last month because they have long term physical or mental ill-health, a disability or problems relating to old age? Do not include help given in a professional capacity or as part of a job, but include help or support given to your family, friends or neighbours.
INTERVIEWER: Include help for wife/husband/partner

Can I just check, are you only including help or support that you give this person/these people because they have long-term physical or mental ill-health, disability or problems relating to old age, or were you thinking about help more generally?

How many people do you provide this kind of help and support to?

Part 1:
1 Yes
2 No

Part 2:
1 Yes, thinking of help/support given because of health/old age
2 No, was thinking about help more generally

Part 3:
Range: 0..97

HSE
Provision; Relationship to person participant provides care to 2016 16-120 16 120 Participant No Current 2016 Sweep No

Thinking about (name of person respondent helps), what is their relationship to you?

Please specify the other relationship.

Part 1:
1 Husband/Wife/Partner
2 Mother (including mother-in-law)
3 Father (including father-in-law)
4 Son (including step son, adopted son or son in law)
5 Daughter (including step daughter, adopted daughter or daughter in law)
6 Grandparent
7 Grandchild (including Great Grandchildren)
8 Brother / Sister (including step / adopted / in laws)
9 Other family member
10 Friend
11 Neighbour
12 Somebody I help as a professional carer
13 Somebody I help as a voluntary helper
14 Other (PLEASE SPECIFY)

Part 2:
Text: Maximum 50 characters

HSE
Provision; Location of person participant provides care to 2016 16-120 16 120 Participant No Current 2016 Sweep No

Does (name of person respondent helps) live in the same household as you or in a different
household?

1 Same household
2 Different household

HSE
Provision; Age of person participant provides care to 2016 16-120 16 120 Participant No Current 2016 Sweep No

How old is (name of person respondent helps)?

INTERVIEWER: If necessary ask respondent to estimate.
Range: 1..130

HSE
Provision; Gender of person participant provides care to 2016 16-120 16 120 Participant No Current 2016 Sweep No

Is (name of person respondent helps) male or female?

1 Male
2 Female

HSE
Provision; Hours of care participant provides 2016 16-120 16 120 Participant No Current 2016 Sweep No

Thinking only about the types of tasks and activities I showed you on Showcard E10, how many hours did you spend helping (name of person respondent helps) in the last week?

INTERVIEWER EXPLAIN IF NECESSARY: not help over the phone or by internet, or doing occasional errands or odd jobs without the respondent

1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

If PrHours= don’t know or refusal THEN
PrHoursB

1 Less than 10 hours
2 10-19 hours
3 20-34 hours
4 Or, for 35 hours or more?

HSE
Provision; Hours of care participant provides 2016 16-120 16 120 Participant No Current 2016 Sweep No

How many hours do you help (name of person respondent helps) in a usual week?

1 Less than one hour per week
2 1-4 hour per week
3 5-9 hours per week
4 10-19 hours per week
5 20-34 hours per week
6 35-49 hours per week
7 50-99 hours per week
8 100 hours or more per week

HSE
Provision; Total time spent caring 2016 16-120 16 120 Participant No Past week 2016 Sweep No

Thinking about the total time you spend providing support or help to [text fill (if also some younger) the older people that you care for], [name of person cared for], about how many hours altogether did you spend last week helping them?

INTERVIEWER EXPLAIN IF NECESSARY: not help over the phone or by internet, or doing occasional errands/odd jobs without the respondent

Number of hours

HSE
Provision; Total hours spent caring 2016 16-120 16 120 Participant No Current 2016 Sweep No

Thinking about the total time you spend providing support or help to [text fill (if also some younger) the older people that you care for], [name of person cared for], about how many hours altogether did you spend last week helping them?

1 Less than one hour per week
2 1-4 hour
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Provision; Activities of care provided 2016 16-120 16 120 Participant No Current 2016 Sweep No

And looking at card F13, which of the activities do you help or support (name of person respondent helps)? Please think only of help or support given because of long-term physical or mental ill-health, disability or problems relating to old age.

CODE ALL THAT APPLY
1 Getting the person in and out of bed
2 Washing their face and hands
3 Having a bath or a shower, including getting in and out of the bath or shower
4 Dressing or undressing, including putting on shoes and socks
5 Using the toilet
6 Eating, including cutting up food

HSE
Provision; Receipt of money for caring activities - amount 2016 16-120 16 120 Participant No Current 2016 Sweep No

Do you receive any money for helping [your answer at PrRel]/ [answer from PrName1/2/3]?

How much do you receive per week or per month?

Is that per week or per month?

Part 1:
1 Yes, this person pays me from their own income, pensions or savings
2 Yes, this person pays me from a personal budget or direct payment
3 Yes, I receive a carer’s allowance
4 Yes, I receive money in another way
5 No, I receive no money for helping this person.

Part 2:
Amount

Part 3:
1 Per week
2 Per month

HSE
Receipt; Receipt of support with caring role 2016 16-120 16 120 Participant No Current 2016 Sweep No

Do you receive any of these types of support in caring for (name of person respondent helps)? Please think only about help or support given directly to you

1 Help from GP or nurse
2 Access to respite care
3 Help from professional care staff
4 Help from carers’ organisation or charity
5 Help from other family members

HSE
Provision; Effect of caring role on own health 2016 16-120 16 120 Participant No Current 2016 Sweep No

In the last three months, has your own health been affected, in any of the ways listed on this card, by the help or support that you give to the people you care for?

1 Feeling tired
2 Feeling depressed
3 Loss of appetite
4 Disturbed sleep
5 General feeling of stress
6 Physical strain
7 Short tempered
8 Developed my own health condition
9 Made an existing condition worse
10 Other
11 No, none of these

HSE
Provision; Seeing GP due to strain of care role 2016 16-120 16 120 Participant No Current 2016 Sweep No

Have you seen your GP because your health has been affected by the support you give to the people that you care for?

1 Yes
2 No

HSE
Provision; Effect of caring role on own employment 2016 16-120 16 120 Participant No Current 2016 Sweep No

Has your ability to take up or stay in employment been affected, in any of the ways listed on this card, by the help or support that you give to the people you care for?

1 Left employment altogether
2 Took new job
3 Worked fewer hours
4 Reduced responsibility at work
5 Flexible employment agreed

HSE
Receipt; Receipt of carer's assessment 2016 16-120 16 120 Participant No Current 2016 Sweep No

Have the Local Authority (council) carried out a carer’s assessment as a result of the help or support that you provide to the people you care
for?

1 Yes
2 No

HSE
Receipt; How many people care for participant 2016 65-120 65 120 Participant No Current 2016 Sweep No

You have told me that a home care worker/home help/personal assistant helped you in the last month. Do you have just one person helping you, or do you have more than one?

Do they all help with the same kinds of things, or do you have different people helping with different things?

Part 1:
1 One
2 More than one

Part 2:
1 All help with same kind of things
2 Different people help with different things

HSE
Receipt; Activities carer helps with 2016 65-120 65 120 Participant No Current 2016 Sweep No

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. Thinking of the first home care worker/ home help/ personal assistant, what sort of thing do they help you with?

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

HSE
Receipt; Activities second carer helps with 2016 65-120 65 120 Participant No Current 2016 Sweep No

Thinking of the second home care worker/ home help/ personal assistant, what sort of thing do they help you with?

1 Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

HSE
Receipt; Activities third carer helps with 2016 65-120 65 120 Participant No Current 2016 Sweep No

Are there any more home care workers, home helps or personal assistants who help you with different kinds of things?

Thinking of the third home care worker/ home help/ personal assistant, what sort of thing do they help you with? CODE MAIN TASK

Part 1:
1 Yes
2 No

Part 2:
Getting up in the morning
2 Going to bed
3 Washing/ bathing/personal care
4 Meals/ eating
5 Getting out of the house/shopping
6 Cleaning/ laundry
7 Other

HSE
Need; Ability to complete ADLs & IADLs 2016 16-120 16 120 Participant No Current 2016 Sweep No

Thinking about getting in and out of bed on your own, please look at this card and tell me the option which best applies to you?

[Repeat for tasks B to M]
TasksB-TasksM
Still looking at Showcard E1, what about…
(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home
and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Response scale for all data items:
1 I can do this without help from anyone
2 I have difficulty doing this but manage on my own
3 I can only do this with help from someone
4 I cannot do this

HSE
Receipt; Receiving help to complete ADLs & IADLs 2016 16-120 16 120 Participant No Current 2016 Sweep No

Have you received help from anyone with getting in out of bed on your own, in the last month? : Include help even if it was for a short time or provided by husband/ wife/ another family member

What about (insert shortened task B to M listed in bold)?
TasksB-TasksM
Still looking at Showcard E1, what about…
(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home
and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Do you receive this help with (insert tasks K/L/M) because of long standing physical or mental ill health, a disability or problems relating to old age?

Part 1. Response scale for all data items:
1 Yes
2 No

Part 2:
1 Yes for some or all
2 No, none of this help is because long standing physical or mental ill-health, disability or
problems relating to old age

HSE
Receipt; Help completing ADLs/IADLs - who helps? 2016 16-120 16 120 Participant No Past month 2016 Sweep No

In the last month, who has helped you with (insert list of tasks in group)?
First, please tell me about all of the people from this list who have helped you? Please only think about help received because of long-term physical or mental ill-health, disability or problems relating to old age.

1 Husband/Wife/Partner
2 Son (including step son, adopted son or son in law)
3 Daughter (including step daughter, adopted daughter or daughter in law)
4 Grandchild (including Great Grandchildren)
5 Brother / Sister (including step / adopted / in laws)
6 Niece / Nephew
7 Mother /father (including mother-in-law/ father-in-law)
8 Other family member
9 Friend
10 Neighbour
11 None of the above

HSE
Receipt; ADLs/IADLs help - who helps 2016 16-120 16 120 Participant No Current 2016 Sweep No

Now, please tell me about all of the people from this list who have helped you with (insert list of tasks in group) in the last month?

Who was the other person that helped you?

Part 1:
1 Home care worker /home help/personal assistant
2 A member of the reablement / intermediate care staff team
3 Occupational Therapist / Physiotherapist
4 Voluntary helper
5 Warden / Sheltered housing manager
6 Cleaner
7 Council’s handyman
8 Other (please specify)
9 None of the above

Part 2:
Text: Maximum 100 characters

HSE
Receipt; Carer living inside or outside household 2016 16-120 16 120 Participant No Current 2016 Sweep No

You’ve told me that your (person who helped) helped you. Can I just check, does this person live in
this household?

1 Yes
2 No

HSE
Receipt; Hours helped by carer 2016 16-120 16 120 Participant No Past week 2016 Sweep No

Thinking about [person who helps], in the last week how many hours have they helped you in person with these kinds of tasks?

INTERVIEWER INSTRUCTION: If Home care worker/ Personal Assistant or other care staff ‘live in’/’sleep in’, INCLUDE ALL hours they are on duty]
1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

F HelpHours = don’t know or refusal THEN
HelpHourB

Can you tell me whether in the last week your (helper’s name) helped you in person with these tasks for:….READ OUT….

1 Less than 20 hours
2 20-34 hours
3 Or for 35 hours or more?

HSE
Receipt; Receipt of care - how long 2016 16-120 16 120 Participant No Current 2016 Sweep No

How long have you been receiving any of the kinds of help we have been talking about? Would you
say it is for less than a year, or one year or more?

1 Less than one year
2 One year or more

HSE
Receipt; How many hours helped 2016 16-120 16 120 Participant No Current 2016 Sweep No

How many hours does (helper’s name/role) help you in a usual week?

1 Less than one hour
2 1-4 hours
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Receipt; Assessment from council 2016 16-120 16 120 Participant No Current 2016 Sweep No

Has the council or local authority made an assessment or review of your care needs in the last 12
months?

1 Yes
2 No

HSE
Receipt; Personal budget receipt 2016 16-120 16 120 Participant No Current 2016 Sweep No

This card describes a personal budget that your local authority may have allocated for you. Have you been given one of these?

CARD DESCRIPTIONS
Personal budget – When the local authority finds that you are eligible for support for your social care needs, your personal budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it.

1 Yes
2 No

HSE
Receipt; Value of personal budget 2016 16-120 16 120 Participant No Current 2016 Sweep No

What is the value of your [Personal budget] per week or per month?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:

Part 2:
1 Per week
2 Per month

HSE
Receipt; Personal budget as direct payment 2016 16-120 16 120 Participant No Current 2016 Sweep No

Are you taking any of your Personal Budget as a Direct Payment?

CARD DESCRIPTION
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. (This should not be confused with benefits paid directly into a bank account which may also be called direct payments.)

IF YES, PROBE: Is that all or your Personal Budget or part of it?
1 Yes, all of personal budget as a Direct Payment
2 Yes, part of personal budget as Direct Payment
3 No, none of personal budget as direct payment
4 SPONTANEOUS: Not being paid my personal budget yet.

HSE
Receipt; Contribution to personal budget - amount 2016 16-120 16 120 Participant No Current 2016 Sweep No

How much do you contribute in user charges for your Personal Budget?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:
OR CODE 0.00 for ‘None’

Part 2:
1 Per week
2 Per month

HSE
Receipt; Paying to top up personal budget 2016 16-120 16 120 Participant No Current 2016 Sweep No

“In addition to your user charges,”] do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

How much do you pay per week or per month to top up your Personal Budget?

Is that amount per week or per month?

Part 1:
1 Yes
2 No

Part 2:
RECORD AMOUNT £:

Part 3:
1 Per week
2 Per month

HSE
Receipt; Receipt of care paid for by local authority 2016 16-120 16 120 Participant No Current 2016 Sweep No

Do you receive any care paid for by the council or the Local Authority?

1 Yes
2 No

HSE
Receipt; Amount local authority pays for care 2016 16-120 16 120 Participant No Current 2016 Sweep No

Do you know how much the local authority pays for your care, per week or per month?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:
OR RECORD: Don’t know

Part 2:
1 Per week
2 Per month

HSE
Receipt; Paying for care privately 2016 16-120 16 120 Participant No Current 2016 Sweep No

“Apart from any care paid for by the local authority,] Do you pay for any care privately at the moment?

1 Yes
2 No

HSE
Receipt; Paying for care purchased privately 2016 16-120 16 120 Participant No Current 2016 Sweep No

How much do you pay for the care you purchase privately?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:

Part 2:
1 Per week
2 Per month

HSE
Receipt; Hours of unpaid care received from member of household 2016 16-120 16 120 Participant No Current 2016 Sweep No

First of all, I’d like you to think about anyone who lives here with you. In a typical week, how many hours of unpaid care do you receive from others living here?

RECORD NO. OF HOURS OR CODE:
1 None

HSE
Receipt; Hours of unpaid care received from non-member of household 2016 16-120 16 120 Participant No Current 2016 Sweep No

And in a typical week, how many hours of unpaid care do you receive from people who do not live in
the same household as you?

RECORD NO. OF HOURS OR CODE:
1 None

HSE
Provision; Total time spent caring 2017 16-120 16 120 Participant No Past week 2017 Sweep No

Thinking about the total time you spend providing support or help to [text fill (if also some younger) the older people that you care for], [name of person cared for], about how many hours altogether did you spend last week helping them?

INTERVIEWER EXPLAIN IF NECESSARY: not help over the phone or by internet, or doing occasional errands/odd jobs without the respondent

Number of hours

HSE
Provision; Total hours spent caring 2017 16-120 16 120 Participant No Current 2017 Sweep No

Thinking about the total time you spend providing support or help to [text fill (if also some younger) the older people that you care for], [name of person cared for], about how many hours altogether did you spend last week helping them?

1 Less than one hour per week
2 1-4 hour
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Provision; Activities of care provided 2017 16-120 16 120 Participant No Current 2017 Sweep No

And looking at card F13 [see response scale], which of the activities do you help or support (name of person respondent helps)? Please think only of help or support given because of long-term physical or mental ill-health, disability or problems relating to old age.

CODE ALL THAT APPLY
1 Getting the person in and out of bed
2 Washing their face and hands
3 Having a bath or a shower, including getting in and out of the bath or shower
4 Dressing or undressing, including putting on shoes and socks
5 Using the toilet
6 Eating, including cutting up food

HSE
Provision; Receipt of money for caring activities - amount 2017 16-120 16 120 Participant No Current 2017 Sweep No

Do you receive any money for helping [your answer at PrRel]/ [answer from PrName1/2/3]?

How much do you receive per week or per month?

Is that per week or per month?

Part 1:
1 Yes, this person pays me from their own income, pensions or savings
2 Yes, this person pays me from a personal budget or direct payment
3 Yes, I receive a carer’s allowance
4 Yes, I receive money in another way
5 No, I receive no money for helping this person.

Part 2:
Amount

Part 3:
1 Per week
2 Per month

HSE
Receipt; Receipt of support with caring role 2017 16-120 16 120 Participant No Current 2017 Sweep No

Do you receive any of these types of support in caring for (name of person respondent helps)? Please think only about help or support given directly to you

1 Help from GP or nurse
2 Access to respite care
3 Help from professional care staff
4 Help from carers’ organisation or charity
5 Help from other family members

HSE
Provision; Effect of caring role on own health 2017 16-120 16 120 Participant No Current 2017 Sweep No

In the last three months, has your own health been affected, in any of the ways listed on this card, by the help or support that you give to the people you care for?

1 Feeling tired
2 Feeling depressed
3 Loss of appetite
4 Disturbed sleep
5 General feeling of stress
6 Physical strain
7 Short tempered
8 Developed my own health condition
9 Made an existing condition worse
10 Other
11 No, none of these

HSE
Provision; Seeing GP due to strain of care role 2017 16-120 16 120 Participant No Current 2017 Sweep No

Have you seen your GP because your health has been affected by the support you give to the people that you care for?

1 Yes
2 No

HSE
Provision; Effect of caring role on own employment 2017 16-120 16 120 Participant No Current 2017 Sweep No

Has your ability to take up or stay in employment been affected, in any of the ways listed on this card, by the help or support that you give to the people you care for?

1 Left employment altogether
2 Took new job
3 Worked fewer hours
4 Reduced responsibility at work
5 Flexible employment agreed

HSE
Receipt; Receipt of carer's assessment 2017 16-120 16 120 Participant No Current 2017 Sweep No

Have the Local Authority (council) carried out a carer’s assessment as a result of the help or support that you provide to the people you care
for?

1 Yes
2 No

HSE
Provision; End of life - what activities 2017 16-120 16 120 Participant No Current 2017 Sweep No

I’d like to ask you about any care and help you may have given this person [end of life care]. First I’m going to ask about personal care like the things listed at the top of on this card. Then I’m going to ask about other general help, like the things listed at the bottom of the card.

SHOW CARD XX
Personal care examples:
Help with washing
Help with dressing
Help with going to the toilet
Help with eating
Other help with physical needs
General help examples:
Keeping company / visiting
Running errands
Doing laundry
Shopping
Giving lifts
Helping with money or legal issues Taking to appointments or out for recreation

Did you provide personal care to this person, like those listed at the top of this card?

1 Yes
2 No

HSE
Provision; End of life - how long care provided for 2017 16-120 16 120 Participant No Current 2017 Sweep No

Thinking about the time when you were providing personal care [end of life care], how long was this for?

1 A week or less
2 More than a week, up to a month
3 More than a month, up to 3 months
4 More than 3 months, up to 6 months
5 More than 6 months, up to 9 months
6 More than 9 months, up to a year
7 More than a year, up to two years
8 More than two years, up to five years
9 More than five years

HSE
Provision; End of life - how often provided 2017 16-120 16 120 Participant No Current 2017 Sweep No

Thinking about the last year of care in general, how often did you provide personal care [to end of life person]?

1 Every day
2 At least once a week
3 At least once a month
4 Less than once a month
5 SPONTANEOUS: It varied too much to say

HSE
Provision; End of life - time of day care provided 2017 16-120 16 120 Participant No Current 2017 Sweep No

Still thinking about the last year of care} in general what time of
day did you provide personal care? Please tell me all that apply.

1 Morning
2 Afternoon
3 Evening
4 Night
5 SPONTANEOUS: It varied too much to say

HSE
Provision; End of life - how long provided for - morning 2017 16-120 16 120 Participant No Current 2017 Sweep No

Roughly how long did you spend giving personal care [to end of life individual] each morning?

INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; End of life - how long provided for - afternoon 2017 16-120 16 120 Participant No Current 2017 Sweep No

Roughly how long did you spend giving personal care [to end of life individual] during the afternoon?

INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; End of life - how long provided for - evening 2017 16-120 16 120 Participant No Current 2017 Sweep No

Roughly how long hours did you spend giving personal care [to end of life individual] during the evening?

INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; End of life - how long provided for - night 2017 16-120 16 120 Participant No Current 2017 Sweep No

Roughly how long did you spend giving personal care [to end of life individual] during the night?

INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; End of life - how long spent giving personal care 2017 16-120 16 120 Participant No Current 2017 Sweep No

Roughly how long did you spend giving personal care [to end of life individual] on those occasions?

INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; End of life - caring activities & other details 2017 16-120 16 120 Participant No Current 2017 Sweep No

Did you look after or give other general help to them [person at end of life] like the things listed at the bottom of this card?

Personal care examples:
Help with washing
Help with dressing
Help with going to the toilet
Help with eating
Other help with physical needs
General help examples:
Keeping company / visiting
Running errands
Doing laundry
Shopping
Giving lifts
Helping with money or legal issues
Taking to appointments or out for recreation
Other help or support

Thinking about the time when you were providing general help like this, how long was this for?

Roughly,} how many days in total did you help like this?

Still thinking about the last year of providing help in general what time of day did you provide this kind of help?
Please tell me all that apply.

Roughly how long did you spend providing help like this during the morning?
Roughly how long did you spend providing help like this during the afternoon?
Roughly how long did you spend providing help like this during the evening?
Roughly how long did you spend providing help like this during the night?

Roughly how long did you spend providing help like this on those occasions?

Part 1:
1 Yes
2 No

Part 2:
1 A week or less
2 More than a week, up to a month
3 More than a month, up to 3 months
4 More than 3 months, up to 6 months
5 More than 6 months, up to 9 months
6 More than 9 months, up to a year
7 More than a year, up to two years
8 More than two years, up to five years
9 More than five years

Part 3:
1 Every day
2 At least once a week
3 At least once a month
4 Less than once a month
5 SPONTANEOUS: It varied too much to say

Part 4:
Numeric answer

Part 5:
1 Morning
2 Afternoon
3 Evening
4 Night
5 SPONTANEOUS: It varied too much to say

Part 6-9:
INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

Part 10:
INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; Receipt of money for care provision 2017 16-120 16 120 Participant No Current 2017 Sweep No

Do you receive any money for helping [your answer at PrRel]/ [answer from PrName1/2/3]?

1 Yes, this person pays me from their own income, pensions or savings
2 Yes, this person pays me from a personal budget or direct payment
3 Yes, I receive a carer’s allowance
4 Yes, I receive money in another way
5 No, I receive no money for helping this person.

HSE
Receipt; How many hours helped 2017 16-120 16 120 Participant No Current 2017 Sweep No

How many hours does (helper’s name/role) help you in a usual week?

1 Less than one hour
2 1-4 hours
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Receipt; Assessment from council 2017 16-120 16 120 Participant No Current 2017 Sweep No

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1 Yes
2 No

HSE
Receipt; Personal budget receipt 2017 16-120 16 120 Participant No Current 2017 Sweep No

This card describes a personal budget that your local authority may have allocated for you. Have you been given one of these?

CARD DESCRIPTIONS
Personal budget – When the local authority finds that you are eligible for support for your social care needs, your personal budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it.

1 Yes
2 No

HSE
Receipt; Value of personal budget 2017 16-120 16 120 Participant No Current 2017 Sweep No

What is the value of your [Personal budget] per week or per month?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:

Part 2:
1 Per week
2 Per month

HSE
Receipt; Personal budget as direct payment 2017 16-120 16 120 Participant No Current 2017 Sweep No

Are you taking any of your Personal Budget as a Direct Payment?

CARD DESCRIPTION
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. (This should not be confused with benefits paid directly into a bank account which may also be called direct payments.)

IF YES, PROBE: Is that all or your Personal Budget or part of it?
1 Yes, all of personal budget as a Direct Payment
2 Yes, part of personal budget as Direct Payment
3 No, none of personal budget as direct payment
4 SPONTANEOUS: Not being paid my personal budget yet.

HSE
Receipt; Contribution to personal budget - amount 2017 16-120 16 120 Participant No Current 2017 Sweep No

How much do you contribute in user charges for your Personal Budget?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:
OR CODE 0.00 for ‘None’

Part 2:
1 Per week
2 Per month

HSE
Receipt; Paying to top up personal budget 2017 16-120 16 120 Participant No Current 2017 Sweep No

“In addition to your user charges,”] do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

How much do you pay per week or per month to top up your Personal Budget?

Is that amount per week or per month?

Part 1:
1 Yes
2 No

Part 2:
RECORD AMOUNT £:

Part 3:
1 Per week
2 Per month

HSE
Receipt; Receipt of care paid for by local authority 2017 16-120 16 120 Participant No Current 2017 Sweep No

Do you receive any care paid for by the council or the Local Authority?

1 Yes
2 No

HSE
Receipt; Amount local authority oats for care 2017 16-120 16 120 Participant No Current 2017 Sweep No

Do you know how much the local authority pays for your care, per week or per month?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:
OR RECORD: Don’t know

Part 2:
1 Per week
2 Per month

HSE
Receipt; Paying for care privately 2017 16-120 16 120 Participant No Current 2017 Sweep No

“Apart from any care paid for by the local authority,] Do you pay for any care privately at the moment?

1 Yes
2 No

HSE
Receipt; Paying for care purchased privately 2017 16-120 16 120 Participant No Current 2017 Sweep No

How much do you pay for the care you purchase privately?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:

Part 2:
1 Per week
2 Per month

HSE
Receipt; Hours of unpaid care received from member of household 2017 16-120 16 120 Participant No Current 2017 Sweep No

First of all, I’d like you to think about anyone who lives here with you. In a typical week, how many hours of unpaid care do you receive from others living here?

RECORD NO. OF HOURS OR CODE:
1 None

HSE
Receipt; Hours of unpaid care received from non-member of household 2017 16-120 16 120 Participant No Current 2017 Sweep No

And in a typical week, how many hours of unpaid care do you receive from people who do not live in the same household as you?

RECORD NO. OF HOURS OR CODE:
1 None

HSE
Provision; Provision of care to others 2017 16-120 16 120 Participant No Current 2017 Sweep No

Have you personally provided help or support to anyone in the last month because they have long term physical or mental ill-health, a disability or problems relating to old age? Do not include help given in a professional capacity or as part of a job, but include help or support given to your family, friends or neighbours.
INTERVIEWER: Include help for wife/husband/partner

Can I just check, are you only including help or support that you give this person/these people because they have long-term physical or mental ill-health, disability or problems relating to old age, or were you thinking about help more generally?

How many people do you provide this kind of help and support to?

Part 1:
1 Yes
2 No

Part 2:
1 Yes, thinking of help/support given because of health/old age
2 No, was thinking about help more generally

Part 3:
Range: 0..97

HSE
Provision; Relationship to person participant provides care to 2017 16-120 16 120 Participant No Current 2017 Sweep No

Thinking about (name of person respondent helps), what is their relationship to you?

Please specify the other relationship.

Part 1:
1 Husband/Wife/Partner
2 Mother (including mother-in-law)
3 Father (including father-in-law)
4 Son (including step son, adopted son or son in law)
5 Daughter (including step daughter, adopted daughter or daughter in law)
6 Grandparent
7 Grandchild (including Great Grandchildren)
8 Brother / Sister (including step / adopted / in laws)
9 Other family member
10 Friend
11 Neighbour
12 Somebody I help as a professional carer
13 Somebody I help as a voluntary helper
14 Other (PLEASE SPECIFY)

Part 2:
Text: Maximum 50 characters

HSE
Provision; Location of person participant provides care to 2017 16-120 16 120 Participant No Current 2017 Sweep No

Does (name of person respondent helps) live in the same household as you or in a different household?

1 Same household
2 Different household

HSE
Provision; Age of person participant provides care to 2017 16-120 16 120 Participant No Current 2017 Sweep No

How old is (name of person respondent helps)?

INTERVIEWER: If necessary ask respondent to estimate.
Range: 1..130

HSE
Provision; Gender of person participant provides care to 2017 16-120 16 120 Participant No Current 2017 Sweep No

Is (name of person respondent helps) male or female?

1 Male
2 Female

HSE
Provision; Hours of care participant provides 2017 16-120 16 120 Participant No Current 2017 Sweep No

Thinking only about the types of tasks and activities I showed you on Showcard E10, how many hours did you spend helping (name of person respondent helps) in the last week?

INTERVIEWER EXPLAIN IF NECESSARY: not help over the phone or by internet, or doing occasional errands or odd jobs without the respondent

1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

If PrHours= don’t know or refusal THEN
PrHoursB

1 Less than 10 hours
2 10-19 hours
3 20-34 hours
4 Or, for 35 hours or more?

HSE
Provision; Hours of care participant provides 2017 16-120 16 120 Participant No Current 2017 Sweep No

How many hours do you help (name of person respondent helps) in a usual week?

1 Less than one hour per week
2 1-4 hour per week
3 5-9 hours per week
4 10-19 hours per week
5 20-34 hours per week
6 35-49 hours per week
7 50-99 hours per week
8 100 hours or more per week

HSE
Provision; End of life - how long care provided for 2018 16-120 16 120 Participant No Current 2018 Sweep No

Thinking about the time when you were providing personal care [end of life care], how long was this for?

1 A week or less
2 More than a week, up to a month
3 More than a month, up to 3 months
4 More than 3 months, up to 6 months
5 More than 6 months, up to 9 months
6 More than 9 months, up to a year
7 More than a year, up to two years
8 More than two years, up to five years
9 More than five years

HSE
Provision; End of life - how often provided 2018 16-120 16 120 Participant No Current 2018 Sweep No

Thinking about the last year of care in general, how often did you provide personal care [to end of life person]?

1 Every day
2 At least once a week
3 At least once a month
4 Less than once a month
5 SPONTANEOUS: It varied too much to say

HSE
Provision; End of life - time of day care provided 2018 16-120 16 120 Participant No Current 2018 Sweep No

Still thinking about the last year of care} in general what time of
day did you provide personal care? Please tell me all that apply.

“1 Morning
2 Afternoon
3 Evening
4 Night
5 SPONTANEOUS: It varied too much to say”

HSE
Provision; End of life - how long provided for - morning 2018 16-120 16 120 Participant No Current 2018 Sweep No

Roughly how long did you spend giving personal care [to end of life individual] each morning?

INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; End of life - how long provided for - afternoon 2018 16-120 16 120 Participant No Current 2018 Sweep No

Roughly how long did you spend giving personal care [to end of life individual] during the afternoon?

INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; End of life - how long provided for - evening 2018 16-120 16 120 Participant No Current 2018 Sweep No

Roughly how long hours did you spend giving personal care [to end of life individual] during the evening?

INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; End of life - how long provided for - night 2018 16-120 16 120 Participant No Current 2018 Sweep No

Roughly how long did you spend giving personal care [to end of life individual] during the night?

INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; End of life - how long spent giving personal care 2018 16-120 16 120 Participant No Current 2018 Sweep No

Roughly how long did you spend giving personal care [to end of life individual] on those occasions?

INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; End of life - caring activities & other details 2018 16-120 16 120 Participant No Current 2018 Sweep No

“Did you look after or give other general help to them [person at end of life] like the things listed at the bottom of this card?

Personal care examples:
Help with washing
Help with dressing
Help with going to the toilet
Help with eating
Other help with physical needs
General help examples:
Keeping company / visiting
Running errands
Doing laundry
Shopping
Giving lifts
Helping with money or legal issues
Taking to appointments or out for recreation
Other help or support

Thinking about the time when you were providing general help like this, how long was this for?

Roughly,} how many days in total did you help like this?

Still thinking about the last year of providing help in general what time of day did you provide this kind of help?
Please tell me all that apply.

Roughly how long did you spend providing help like this during the morning?
Roughly how long did you spend providing help like this during the afternoon?
Roughly how long did you spend providing help like this during the evening?
Roughly how long did you spend providing help like this during the night?

Roughly how long did you spend providing help like this on those occasions?”

Part 1:
1 Yes
2 No

Part 2:
1 A week or less
2 More than a week, up to a month
3 More than a month, up to 3 months
4 More than 3 months, up to 6 months
5 More than 6 months, up to 9 months
6 More than 9 months, up to a year
7 More than a year, up to two years
8 More than two years, up to five years
9 More than five years

Part 3:
1 Every day
2 At least once a week
3 At least once a month
4 Less than once a month
5 SPONTANEOUS: It varied too much to say

Part 4:
Numeric answer

Part 5:
1 Morning
2 Afternoon
3 Evening
4 Night
5 SPONTANEOUS: It varied too much to say

Part 6-9:
INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

Part 10:
INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

HSE
Provision; Receipt of money for caring activities - amount 2018 16-120 16 120 Participant No Current 2018 Sweep No

Do you receive any money for helping [your answer at PrRel]/ [answer from PrName1/2/3]?

1 Yes, this person pays me from their own income, pensions or savings
2 Yes, this person pays me from a personal budget or direct payment
3 Yes, I receive a carer’s allowance
4 Yes, I receive money in another way
5 No, I receive no money for helping this person.

HSE
Receipt; Receipt of benefits 2017 16-120 16 120 Participant No Current 2017 Sweep No

Can I just check, do you or any of your household receive any of these listed on this card? Please only
think about people aged 16+ in your household.

Please could you tell me who receives these allowances in your household?

Now looking at this card, which of these rates is {^name of HH member selected at AttDisab} currently
receiving? Just tell me the number beside the row that best apply

Part 1:
1 Attendance Allowance
2 Disability Living Allowance– care component
3 Disability Living Allowance – mobility component
4 Personal Independence Payment – daily living component
5 Personal Independence Payment – mobility component
6 None of these

Part 2:
List people from household grid aged 16+

Part 3:
Attendance Allowance
1 Higher rate for attendance during day AND night – £83.10
2 Lower rate for day OR night – £55.65
Disability Living Allowance (DLA) – Care Component
3 Highest rate – £83.10
4 Middle rate – £55.65
5 Lowest rate – £22.00
Disability Living Allowance (DLA) – Mobility Component
6 Highest rate – £58.00
7 Lower rate – £22.00
Personal Independence Payments (PIP) – Daily Living Component
8 Enhanced rate – £83.10
9 Standard rate – £55.65
Personal Independence Payments (PIP) – Mobility Component
10 Enhanced rate – £58.00
11 Standard rate – £22.00

HSE
Provision; Provision of care 2017 16-120 16 120 Participant No Current 2017 Sweep No

Are you prevented from working or looking for work by any of the things listed on this card?

1 Own disability or illness
2 Caring for a disabled or elderly person
3 Looking after child(ren)
4 No work available
5 Better off not working
6 Pregnant
7 Don’t need employment
8 Retired
9 (None of these)

HSE
Need; Ability to complete ADLs & IADLs 2017 16-120 16 120 Participant No Current 2017 Sweep No

Thinking about getting in and out of bed on your own, please look at this card and tell me the option which best applies to you?

[Repeat for tasks B to M]
TasksB-TasksM
Still looking at Showcard E1, what about…
(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home
and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Response scale for all data items:
1 I can do this without help from anyone
2 I have difficulty doing this but manage on my own
3 I can only do this with help from someone
4 I cannot do this

HSE
Receipt; Receiving help to complete ADLs & IADLs 2017 16-120 16 120 Participant No Current 2017 Sweep No

Have you received help from anyone with getting in out of bed on your own, in the last month? : Include help even if it was for a short time or provided by husband/ wife/ another family member

What about (insert shortened task B to M listed in bold)?
TasksB-TasksM
Still looking at Showcard E1, what about…
(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home
and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Do you receive this help with (insert tasks K/L/M) because of long standing physical or mental ill health, a disability or problems relating to old age?

Part 1. Response scale for all data items:
1 Yes
2 No

Part 2:
1 Yes for some or all
2 No, none of this help is because long standing physical or mental ill-health, disability or
problems relating to old age

HSE
Receipt; Help completing ADLs/IADLs - who helps? 2017 16-120 16 120 Participant No Past month 2017 Sweep No

In the last month, who has helped you with (insert list of tasks in group)?
First, please tell me about all of the people from this list who have helped you? Please only think about help received because of long-term physical or mental ill-health, disability or problems relating to old age.

1 Husband/Wife/Partner
2 Son (including step son, adopted son or son in law)
3 Daughter (including step daughter, adopted daughter or daughter in law)
4 Grandchild (including Great Grandchildren)
5 Brother / Sister (including step / adopted / in laws)
6 Niece / Nephew
7 Mother /father (including mother-in-law/ father-in-law)
8 Other family member
9 Friend
10 Neighbour
11 None of the above

HSE
Receipt; ADLs/IADLs help - who helps 2017 16-120 16 120 Participant No Current 2017 Sweep No

Now, please tell me about all of the people from this list who have helped you with (insert list of tasks in group) in the last month?

Who was the other person that helped you?

Part 1:
1 Home care worker /home help/personal assistant
2 A member of the reablement / intermediate care staff team
3 Occupational Therapist / Physiotherapist
4 Voluntary helper
5 Warden / Sheltered housing manager
6 Cleaner
7 Council’s handyman
8 Other (please specify)
9 None of the above

Part 2:
Text: Maximum 100 characters

HSE
Receipt; Carer living inside or outside household 2017 16-120 16 120 Participant No Current 2017 Sweep No

You’ve told me that your (person who helped) helped you. Can I just check, does this person live in
this household?

1 Yes
2 No

HSE
Receipt; Hours helped by carer 2017 16-120 16 120 Participant No Past week 2017 Sweep No

Thinking about [person who helps], in the last week how many hours have they helped you in person with these kinds of tasks?

INTERVIEWER INSTRUCTION: If Home care worker/ Personal Assistant or other care staff ‘live in’/’sleep in’, INCLUDE ALL hours they are on duty]
1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

F HelpHours = don’t know or refusal THEN
HelpHourB

Can you tell me whether in the last week your (helper’s name) helped you in person with these tasks for:….READ OUT….

1 Less than 20 hours
2 20-34 hours
3 Or for 35 hours or more?

HSE
Receipt; Receipt of care - how long 2017 16-120 16 120 Participant No Current 2017 Sweep No

How long have you been receiving any of the kinds of help we have been talking about? Would you say it is for less than a year, or one year or more?

1 Less than one year
2 One year or more

HSE
Receipt; Paying for care purchased privately 2018 16-120 16 120 Participant No Current 2018 Sweep No

How much do you pay for the care you purchase privately?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:

Part 2:
1 Per week
2 Per month

HSE
Receipt; Hours of unpaid care received from non-member of household 2018 16-120 16 120 Participant No Current 2018 Sweep No

First of all, I’d like you to think about anyone who lives here with you. In a typical week, how many hours of unpaid care do you receive from others living here?

RECORD NO. OF HOURS OR CODE:
1 None

HSE
Receipt; Hours of unpaid care received from non-member of household 2018 16-120 16 120 Participant No Current 2018 Sweep No

And in a typical week, how many hours of unpaid care do you receive from people who do not live in the same household as you?

RECORD NO. OF HOURS OR CODE:
1 None

HSE
Provision; Provision of care to others 2018 16-120 16 120 Participant No Current 2018 Sweep No

Have you personally provided help or support to anyone in the last month because they have long term physical or mental ill-health, a disability or problems relating to old age? Do not include help given in a professional capacity or as part of a job, but include help or support given to your family, friends or neighbours.
INTERVIEWER: Include help for wife/husband/partner

Can I just check, are you only including help or support that you give this person/these people because they have long-term physical or mental ill-health, disability or problems relating to old age, or were you thinking about help more generally?

How many people do you provide this kind of help and support to?

Part 1:
1 Yes
2 No

Part 2:
1 Yes, thinking of help/support given because of health/old age
2 No, was thinking about help more generally

Part 3:
Range: 0..97

HSE
Provision; Relationship to person participant provides care to 2018 16-120 16 120 Participant No Current 2018 Sweep No

Thinking about (name of person respondent helps), what is their relationship to you?

Please specify the other relationship.

Part 1:
1 Husband/Wife/Partner
2 Mother (including mother-in-law)
3 Father (including father-in-law)
4 Son (including step son, adopted son or son in law)
5 Daughter (including step daughter, adopted daughter or daughter in law)
6 Grandparent
7 Grandchild (including Great Grandchildren)
8 Brother / Sister (including step / adopted / in laws)
9 Other family member
10 Friend
11 Neighbour
12 Somebody I help as a professional carer
13 Somebody I help as a voluntary helper
14 Other (PLEASE SPECIFY)

Part 2:
Text: Maximum 50 characters

HSE
Provision; Location of person participant provides care to 2018 16-120 16 120 Participant No Current 2018 Sweep No

Does (name of person respondent helps) live in the same household as you or in a different household?

1 Same household
2 Different household

HSE
Provision; Age of person participant provides care to 2018 16-120 16 120 Participant No Current 2018 Sweep No

How old is (name of person respondent helps)?

INTERVIEWER: If necessary ask respondent to estimate.
Range: 1..130

HSE
Provision; Gender of person participant provides care to 2018 16-120 16 120 Participant No Current 2018 Sweep No

Is (name of person respondent helps) male or female?

1 Male
2 Female

HSE
Provision; Hours of care participant provides 2018 16-120 16 120 Participant No Current 2018 Sweep No

“Thinking only about the types of tasks and activities I showed you on Showcard E10, how many hours did you spend helping (name of person respondent helps) in the last week?

INTERVIEWER EXPLAIN IF NECESSARY: not help over the phone or by internet, or doing occasional errands or odd jobs without the respondent”

1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

If PrHours= don’t know or refusal THEN
PrHoursB

1 Less than 10 hours
2 10-19 hours
3 20-34 hours
4 Or, for 35 hours or more?

HSE
Provision; Hours of care participant provides 2018 16-120 16 120 Participant No Current 2018 Sweep No

How many hours do you help (name of person respondent helps) in a usual week?

1 Less than one hour per week
2 1-4 hour per week
3 5-9 hours per week
4 10-19 hours per week
5 20-34 hours per week
6 35-49 hours per week
7 50-99 hours per week
8 100 hours or more per week

HSE
Provision; Total time spent caring 2018 16-120 16 120 Participant No Current 2018 Sweep No

“Thinking about the total time you spend providing support or help to [text fill (if also some younger) the older people that you care for], [name of person cared for], about how many hours altogether did you spend last week helping them?

INTERVIEWER EXPLAIN IF NECESSARY: not help over the phone or by internet, or doing occasional errands/odd jobs without the respondent”

Number of hours

HSE
Provision; Total hours spent caring 2018 16-120 16 120 Participant No Past week 2018 Sweep No

Thinking about the total time you spend providing support or help to [text fill (if also some younger) the older people that you care for], [name of person cared for], about how many hours altogether did you spend last week helping them?

1 Less than one hour per week
2 1-4 hour
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Provision; Activities of care provided 2018 16-120 16 120 Participant No Current 2018 Sweep No

And looking at card F13 [see response scale], which of the activities do you help or support (name of person respondent helps)? Please think only of help or support given because of long-term physical or mental ill-health, disability or problems relating to old age.

CODE ALL THAT APPLY
1 Getting the person in and out of bed
2 Washing their face and hands
3 Having a bath or a shower, including getting in and out of the bath or shower
4 Dressing or undressing, including putting on shoes and socks
5 Using the toilet
6 Eating, including cutting up food

HSE
Provision;Receipt; Receipt of money for caring activities - amount 2018 16-120 16 120 Participant No Current 2018 Sweep No

Do you receive any money for helping [your answer at PrRel]/ [answer from PrName1/2/3]?

How much do you receive per week or per month?

Is that per week or per month?

Part 1:
1 Yes, this person pays me from their own income, pensions or savings
2 Yes, this person pays me from a personal budget or direct payment
3 Yes, I receive a carer’s allowance
4 Yes, I receive money in another way
5 No, I receive no money for helping this person.

Part 2:
Amount

Part 3:
1 Per week
2 Per month

HSE
Provision; Receipt of support with caring role 2018 16-120 16 120 Participant No Current 2018 Sweep No

Do you receive any of these types of support in caring for (name of person respondent helps)? Please think only about help or support given directly to you

“1 Help from GP or nurse
2 Access to respite care
3 Help from professional care staff
4 Help from carers’ organisation or charity
5 Help from other family members”

HSE
Provision; Effect of caring role on own health 2018 16-120 16 120 Participant No Current 2018 Sweep No

In the last three months, has your own health been affected, in any of the ways listed on this card, by the help or support that you give to the people you care for?

1 Feeling tired
2 Feeling depressed
3 Loss of appetite
4 Disturbed sleep
5 General feeling of stress
6 Physical strain
7 Short tempered
8 Developed my own health condition
9 Made an existing condition worse
10 Other
11 No, none of these

HSE
Provision; Seeing GP due to strain of care role 2018 16-120 16 120 Participant No Current 2018 Sweep No

Have you seen your GP because your health has been affected by the support you give to the people that you care for?

1 Yes
2 No

HSE
Provision; Effect of caring role on own employment 2018 16-120 16 120 Participant No Current 2018 Sweep No

Has your ability to take up or stay in employment been affected, in any of the ways listed on this card, by the help or support that you give to the people you care for?

1 Left employment altogether
2 Took new job
3 Worked fewer hours
4 Reduced responsibility at work
5 Flexible employment agreed

HSE
Provision;Receipt; Receipt of carer's assessment 2018 16-120 16 120 Participant No Current 2018 Sweep No

Have the Local Authority (council) carried out a carer’s assessment as a result of the help or support that you provide to the people you care
for?

1 Yes
2 No

HSE
Provision; End of life - what activities 2018 16-120 16 120 Participant No Current 2018 Sweep No

“I’d like to ask you about any care and help you may have given this person [end of life care]. First I’m going to ask about personal care like the things listed at the top of on this card. Then I’m going to ask about other general help, like the things listed at the bottom of the card.

SHOW CARD XX
Personal care examples:
Help with washing
Help with dressing
Help with going to the toilet
Help with eating
Other help with physical needs
General help examples:
Keeping company / visiting
Running errands
Doing laundry
Shopping
Giving lifts
Helping with money or legal issues Taking to appointments or out for recreation

Did you provide personal care to this person, like those listed at the top of this card? “

1 Yes
2 No

HSE
Receipt; Receipt of benefits 2018 16-120 16 120 Participant No Current 2018 Sweep No

Can I just check, do you or any of your household receive any of these listed on this card? Please only think about people aged 16+ in your household.

1 Attendance Allowance
2 Disability Living Allowance – mobility component
3 Personal Independence Payment – daily living component
4 Personal Independence Payment – mobility component
5 None of these

HSE
Provision; Provision of care 2018 16-120 16 120 Participant No Current 2018 Sweep No

Now looking at this card, which of these rates is {^name of HH member selected at AttDisab} currently receiving? Just tell me the number beside the row that best apply.

SHOW CARD A6 {Weekly rates from April 2015-April 2017} Attendance Allowance
1 Higher rate for attendance during day AND night – £83.10
2 Lower rate for day OR night – £55.65
Disability Living Allowance (DLA) – Care Component
3 Highest rate – £83.10
4 Middle rate – £55.65
5 Lowest rate – £22.00
Disability Living Allowance (DLA) – Mobility Component
6 Highest rate – £58.00
7 Lower rate – £22.00
Personal Independence Payments (PIP) – Daily Living Component
8 Enhanced rate – £83.10
9 Standard rate – £55.65
Personal Independence Payments (PIP) – Mobility Component
10 Enhanced rate – £58.00 11 Standard rate – £22.00

SHOW CARD A7 {Weekly rates from 2nd April 2018 Attendance Allowance
1 Higher rate for attendance during day AND night – £85.60
2 Lower rate for day OR night – £57.30
Disability Living Allowance (DLA) – Care Component
3 Highest rate – £85.60
4 Middle rate – £57.30
5 Lowest rate – £22.65
Disability Living Allowance (DLA) – Mobility Component
6 Highest rate – £59.75
7 Lower rate – £22.65
Personal Independence Payments (PIP) – Daily Living Component
8 Enhanced rate – £85.60
9 Standard rate – £57.30
Personal Independence Payments (PIP) – Mobility Component
10 Enhanced rate – £59.75 11 Standard rate – £22.60

HSE
Receipt; Ability to complete ADLs & IADLs 2018 16-120 16 120 Participant No Past Month 2018 Sweep No

(A) Thinking about getting in and out of bed on your own, please look at this card and tell me the option which best applies to you?
INTERVIEWER: Do not include help from special aids or equipment such as wheelchairs or stair lifts.

Still looking at Showcard D1, what about…
(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

For all questions (A-M):
1 I can do this without help from anyone
2 I have difficulty doing this but manage on my own
3 I can only do this with help from someone
4 I cannot do this

HSE
Receipt; Receiving help to complete ADLs & IADLs 2018 16-120 16 120 Participant No Past Month 2018 Sweep No

Have you received help from anyone with getting in out of bed on your own, in the last month? EXPLAIN IF NECESSARY: Include help even if it was for a short time or provided by husband/ wife/ another family member

What about ?
EXPLAIN IF NECESSARY: Include help even if it was for a short time or provided by husband/ wife/ another family member

(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Response scale for all questions:
1 Yes
2 No

HSE
Receipt; Help completing ADLs/IADLs - who helps? 2018 16-120 16 120 Participant No Past Month 2018 Sweep No

Do you receive this help with because of long standing physical or mental ill- health, a disability or problems relating to old age?

1 Yes for some or all
2 No, none of this help is because long standing physical or mental ill-health, disability or
problems relating to old age

HSE
Receipt; ADLs/IADLs help - who helps 2018 16-120 16 120 Participant No Past Month 2018 Sweep No

I am now going to ask you some questions about who helps you with different things. I will show you two lists of people who may have helped you.

First, please tell me about all of the people from this list who have helped you? Please only think about help received because of long-term physical or mental ill-health, disability or problems relating to old age.

1 Husband/Wife/Partner
2 Son (including step son, adopted son or son in law)
3 Daughter (including step daughter, adopted daughter or daughter in law)
4 Grandchild (including Great Grandchildren)
5 Brother / Sister (including step / adopted / in laws)
6 Niece / Nephew
7 Mother /father (including mother-in-law/ father-in-law)
8 Other family member
9 Friend
10 Neighbour
11 None of the above

HSE
Receipt; Carer living inside or outside household 2018 16-120 16 120 Participant No Past Month 2018 Sweep No

Now, please tell me about all of the people from this list who have helped you with in the last month?

Who was the other person that helped you?

You’ve told me that your (person who helped) helped you. Can I just check, does this person live in this household?

Part 1:
1 Home care worker /home help/personal assistant
2 A member of the reablement / intermediate care staff team
3 Occupational Therapist / Physiotherapist
4 Voluntary helper
5 Warden / Sheltered housing manager
6 Cleaner
7 Council’s handyman
8 Other (please specify)
9 None of the above

Part 2:
Text: Maximum 100 characters

Part 3:
1 Yes
2 No

HSE
Receipt; Hours helped by carer 2018 16-120 16 120 Participant No Past Week 2018 Sweep No

Thinking about [person who helps], in the last week how many hours have they helped you in person with these kinds of tasks?

Please only think about the hours they were helping you with these kinds of tasks and not about the time they were around in the house or there to help you if you needed it]

ENTER NUMBER OF HOURS AND MINUTES.
IF RESPONDENT DOES NOT GIVE PRECISE ANSWER INTERVIEWER CODE DK
IF 2 PEOPLE HELP AT THE SAME TIME, CODE DOUBLE THE HOURS

1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

HSE
Receipt; How many hours helped 2018 16-120 16 120 Participant No Past Week 2018 Sweep No

Can you tell me whether in the last week your helped you in person with these tasks for:

1 Less than 20 hours
2 20-34 hours
3 Or for 35 hours or more?

HSE
Receipt; Receipt of care - how long 2018 16-120 16 120 Participant No Past Month 2018 Sweep No

How long have you been receiving any of the kinds of help we have been talking about? Would you say it is for less than a year, or one year or more?

1 Less than one year
2 One year or more

HSE
Receipt; How many hours helped 2018 16-120 16 120 Participant No Current 2018 Sweep No

How many hours does (helper’s name/role) help you in a usual week?

1 Less than one hour
2 1-4 hours
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Receipt; Assessment from council 2018 16-120 16 120 Participant No Current 2018 Sweep No

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1 Yes
2 No

HSE
Receipt; Personal budget receipt 2018 16-120 16 120 Participant No Current 2018 Sweep No

This card describes a personal budget that your local authority may have allocated for you. Have you been given one of these?

CARD DESCRIPTIONS
Personal budget – When the local authority finds that you are eligible for support for your social care needs, your personal budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it.

1 Yes
2 No

HSE
Receipt; Value of personal budget 2018 16-120 16 120 Participant No Current 2018 Sweep No

What is the value of your [Personal budget] per week or per month?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:

Part 2:
1 Per week
2 Per month

HSE
Receipt; Personal budget as direct payment 2018 16-120 16 120 Participant No Current 2018 Sweep No

Are you taking any of your Personal Budget as a Direct Payment?

CARD DESCRIPTION
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. (This should not be confused with benefits paid directly into a bank account which may also be called direct payments.)

HSE
Receipt; Contribution to personal budget - amount 2018 16-120 16 120 Participant No Current 2018 Sweep No

“How much do you contribute in user charges for your Personal Budget?

Is that amount per week or per month?”

Part 1:
RECORD AMOUNT £:
OR CODE 0.00 for ‘None’

Part 2:
1 Per week
2 Per month

HSE
Receipt; Paying to top up personal budget 2018 16-120 16 120 Participant No Current 2018 Sweep No

““In addition to your user charges,”] do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

How much do you pay per week or per month to top up your Personal Budget?

Is that amount per week or per month?”

Part 1:
1 Yes
2 No

Part 2:
RECORD AMOUNT £:

Part 3:
1 Per week
2 Per month

HSE
Receipt; Amount local authority oats for care 2018 16-120 16 120 Participant No Current 2018 Sweep No

Do you receive any care paid for by the council or the Local Authority?

1 Yes
2 No

HSE
Receipt; Amount local authority oats for care 2018 16-120 16 120 Participant No Current 2018 Sweep No

Do you know how much the local authority pays for your care, per week or per month?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:
OR RECORD: Don’t know

Part 2:
1 Per week
2 Per month

HSE
Receipt; Paying for care privately 2018 16-120 16 120 Participant No Current 2018 Sweep No

“Apart from any care paid for by the local authority,] Do you pay for any care privately at the moment?

1 Yes
2 No

HSE
Provision; Impact on health from caring 2019 16-120 16 120 Participant No Past 3 months 2019 sweep No

In the last three months, has your own health been affected, in any of the ways listed on this card, by the help or support that you give {IF HelpNo=1} =2} ^to the people you care for>.
Please read out the numbers that apply from this card?

Have you seen your GP because your health has been affected by the support you give to {IF HelpNo=1} =2}> the people that you care for?

Part 1:
CODE ALL THAT APPLY
1 Feeling tired
2 Feeling depressed
3 Loss of appetite
4 Disturbed sleep
5 General feeling of stress
6 Physical strain
7 Short tempered
8 Developed my own health condition
9 Made an existing condition worse
10 Other
11 No, none of these

Part 2:
1 Yes
2 No

HSE
Provision; Impact on employment from caring 2019 16-120 16 120 Participant No Past 3 months 2019 sweep No

Has your ability to take up or stay in employment been affected, in any of the ways listed on this card, by the help or support that you give to your {IF HelpNo=1} =2} ^the people you care for>.
Please read out the numbers that apply from this card?

CODE ALL THAT APPLY
1 Left employment altogether
2 Took new job
3 Worked fewer hours
4 Reduced responsibility at work
5 Flexible employment agreed
6 Changed to work at home
7 Other
8 Employment not affected

HSE
Provision; Carers' assessment 2019 16-120 16 120 Participant No Current 2019 sweep No

Have the Local Authority (council) carried out a carer’s assessment as a result of the help or support that you provide {IF HelpNo=1} =2} ^to the people you care for>?

1 Yes
2 No

HSE
Provision; Whether participant has sufficient time to care 2019 16-120 16 120 Participant No Current 2019 sweep No

Thinking about the other people you have caring responsibilities for, which of the following best describes your current situation. Please exclude the person you spend most time helping?

1 I always have enough time to care for them
2 I sometimes have enough time to care for them
3 I never have enough time to care for them
4 I don’t have caring responsibilities for anyone else

HSE
Provision; Impact on finances from caring 2019 16-120 16 120 Participant No Past year 2019 sweep No

In the last 12 months, has caring caused you any financial difficulties. Please read out the number that applies from this card?

1 No, not at all
2 Yes, to some extent
3 Yes, a lot

HSE
Provision; Impact on employment from caring and support 2019 16-120 16 120 Participant No Current 2019 sweep No

Thinking about combining your paid work and caring responsibilities, which of the following statements best describes your current situation? Please tick one box

Not in Paid Work
1 I am not in paid employment because of my caring responsibilities
2 I am not in paid employment for other reasons (e.g. Retired, Student)

In Paid Employment
3 I am in paid employment and I feel supported by my employer
4 I am in paid employment but I don’t feel supported by my employer
5 I do not need any support from my employer to combine my work and caring
responsibilities

Self Employed
6 I am self-employed and I am able to balance my work and caring responsibilities
7 I am self-employed but I am unable to balance my work and caring responsibilities

HSE
Provision; Caring responsibilities - which tasks 2019 16-120 16 120 Participant No Past month 2019 sweep No

In the last month, which of these tasks have you helped [^name of person cared for] with. Please think only of help or support given because of long-term physical or mental ill-health, disability or problems relating to old age?

A Personal Care (e.g. washing yourself, having a bath or shower)
B Physical help (e.g. to get around indoors, to get up and down stairs)
C Helping with dealing with care services and benefits
D Helping with other paperwork or financial matters
E Other practical help (e.g. shopping for food)
F Keeping him/her company
G Taking him/her out
H Giving medicines
I Keeping an eye on him/her to see he/she is all right
J None of these

HSE
Provision; Caring responsibilities - how often 2019 16-120 16 120 Participant No Current 2019 sweep No

How often do you help [^name of person cared for] with [^task selected at WhchHelp]?”

1 More than once a day
2 Once a day
3 Most days
4 2-3 times a week
5 Once a week
6 Less than once a week, but at least once a month
7 Less often

HSE
Provision; Caring responsibilities - how long 2019 16-120 16 120 Participant No Current 2019 sweep No

About how long have you been looking after or helping [^name of person cared for]…?

1 Less than 6 months
2 6-12 months
3 1-3 years
4 3-5 years
5 5-10 years
6 10-15 years
7 15-20 years
8 20 years plus

HSE
Provision; Caring responsibilities - support from professionals 2019 16-120 16 120 Participant No Current 2019 sweep No

Does <^name of person cared for> receive regular visits at least once a month from any of these people?” CODE ALL THAT APPLY

Does <^name of person cared for> have regular contact from anyone else on this list?

What are the reasons for [^name of person cared for] not receiving regular visits at least once a month from the people listed on the last card?

Part 1 & 2:
1 Doctor
2 Community/district nurse / Community Matron
3 Health visitor
4 Social worker/care manager
5 Home help/care worker
6 Meals on wheels
7 Voluntary worker
8 Occupational therapist
9 Educational Professional
10 Specialist / nursing care / palliative care
11 Community mental health services
12 Gardener / caretaker / warden
13 Other professional visitor
14 No, none (SPONTANEOUS)

Part 3:
CODE ALL THAT APPLY
1 Not available/not offered
2 Not needed
3 Tried, but not helpful
4 Not wanted by you
5 Not wanted by the person you care for
6 Not at a convenient time
7 Too expensive
8 Not eligible
9 Don’t know who to ask
10 Other

HSE
Provision; Caring - Use of community/voluntary transport 2019 16-120 16 120 Participant No Current 2019 sweep No

Does <^name of cared for person> regularly make use of a community or voluntary transport scheme?

1 Yes
2 No

HSE
Provision; Reason started caring 2019 16-120 16 120 Participant No Current 2019 sweep No

Why did you start looking after or giving special help to [^name of cared for person]? CODE ALL THAT APPLY

1 No one else available
2 I was willing / I wanted to help out
3 I had the time because I was not working
4 I had the time because I was working part time
5 I have particular skills / ability to care
6 Social Services ( local Authority ) suggested I should provide care
7 It was expected of me (it’s what families do)
8 He/she wouldn’t want anyone else caring for them
9 Cared for person requested my help/care
10 I took over caring responsibilities from someone else
11 Other (SPECIFY)

HSE
Provision; Reason started caring 2019 16-120 16 120 Participant No Current 2019 sweep No

What other reasons did you start looking after <^name of cared for person>?

Text: Maximum 250 characters

HSE
Provision; Impact on leisure from caring 2019 16-120 16 120 Participant No Current 2019 sweep No

How, if at all, has your ability to spend time doing leisure or social activities been affected by the assistance you give to [^name of person cared for]…Please read out the numbers that apply from this card?

CODE ALL THAT APPLY
1 Unable to socialise
2 Reduced time with spouse or partner
3 Reduced time with other family members
4 Reduced time with friends
5 Difficulties making new friends
6 Reduced time spent doing sport or physical activity
7 Reduced time spent doing pastime or hobby
8 Other
9 None of these (SPONTANEOUS)

HSE
Provision; Carer - Interest in taking-up paid employment 2019 16-120 16 120 Participant No Current 2019 sweep No

Do you have any interest in taking up paid employment?”

1 Yes, in the near future
2 Yes, when my caring responsibilities are reduced
3 No plans to return to work

HSE
Provision; Carer - help taking-up paid employment 2019 16-120 16 120 Participant No Current 2019 sweep No

Which of the following things would help you take up paid employment?

CODE ALL THAT APPLY
1 The ability to work from home
2 Having some flexibility in the hours you want to work
3 Access to affordable childcare
4 Access to affordable care for the person you care for
5 Better public transport
6 Other

HSE
Provision; Carer - barriers to employment 2019 16-120 16 120 Participant No Current 2019 sweep No

Do you either agree or disagree with the following statements about potential barriers you might face in taking up paid employment…. [Loop for each statement]

I cannot work because of my disability or health condition I cannot work because of my caring responsibilities.
I am not sure I would be able to work regularly
At my age it is unlikely that I would find a suitable job
I don’t feel confident about working
I haven’t got enough qualifications and experience to find the right work There aren’t enough suitable job opportunities locally
I’m not sure I would be better off in work than on benefits
I cannot work because of my childcare responsibilities
My family/dependent/s don’t want me to work

For all statements:
Agree strongly
Tend to agree
Neither agree nor disagree
Tend to disagree
Disagree strongly
Not applicable (SPONTANEOUS)

HSE
Provision; Carer - awareness of employee entitlements 2019 16-120 16 120 Participant No Current 2019 sweep No

Were you aware that if you look after or give special help to sick, disabled or elderly people and you have worked for the same employer for at least 26 weeks you are now legally entitled to request flexible working (e.g. flexitime or working from home), and that all employers are required to give consideration to any such requests?

1 Yes
2 No

HSE
Provision; Carer - flexible working requests 2019 16-120 16 120 Participant No Current 2019 sweep No

And have you made a request to work flexibly?

1 Yes
2 No

HSE
Provision; Carer - hours of paid work 2019 16-120 16 120 Participant No Current 2019 sweep No

On average how many hours of paid work do you do per week? Please include any paid or unpaid overtime but exclude meal breaks.

RANGE: 1-100

HSE
Receipt; Paying for care privately - what activities 2019 16-120 16 120 Participant No Current 2019 sweep No

Thinking about the things listed on this card, [ [{IF LACare=1} “Apart from any care paid for by the local authority,] Do you pay for any care privately at the moment?

ON SHOWCARD D8:
Include care for things such as:
• Getting in and out of bed on your own
• Washing your face and hands
• Having a bath or a shower, including getting in and out of the bath or shower
• Dressing or undressing, including putting on shoes and socks
• Using the toilet
• Eating, including cutting up food
• Taking the right amount medicine at the right times
• Getting around indoors
• Getting up and down stairs
• Getting out of the house
• Shopping for food
• Doing routine housework or laundry
• Doing paperwork or paying bills

1 Yes
2 No

HSE
Receipt; Paying for care privately - amount paid 2019 16-120 16 120 Participant No Current 2019 sweep No

How much do you pay for the care you purchase privately?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £: OR CODE 0.00 for ‘None’

Part 2:
1 Per week
2 Per month

HSE
Receipt; Unpaid care - hours received 2019 16-120 16 120 Participant No Current 2019 sweep No

Now I’d like to ask you about all the hours of unpaid care that you receive from the people on this card.

1 Husband / Wife / Partner
2 Son (incl. stepson, adopted son or son-in-law
3 Daughter (incl. stepdaughter, adopted daughter or daughter-in-law)
4 Grandchild (incl. great-grandchild)
5 Brother / Sister (incl. step / adopted / in-laws)
6 Niece / Nephew
7 Mother / Father (incl. mother-in-law or father-in-law)
8 Other family member
9 Friend
10 Neighbour
11 None of the above

First of all, I’d like you to think about anyone who lives here with you. In a typical week, how many hours of unpaid care do you receive from others living here?

RECORD NO. OF HOURS. ‘IF NONE, ENTER ‘0’

HSE
Receipt; Unpaid care - hours received from those outside of household 2019 16-120 16 120 Participant No Current 2019 sweep No

And in a typical week, how many hours of unpaid care do you receive from people who do not live in the same household as you?

RECORD NO. OF HOURS. ‘IF NONE, ENTER ‘0’

HSE
Provision; Provision of care 2019 16-120 16 120 Participant No Past month 2019 sweep No

Have you personally provided help or support to anyone in the last month because they have long-term physical or mental ill-health, a disability or problems relating to old age? Do not include help given in a professional capacity or as part of a job, but include help or support given to your family, friends or neighbours.
INTERVIEWER: Include help for wife/husband/partner

1 Yes
2 No

HSE
Provision; Provision of care - reason 2019 16-120 16 120 Participant No Past month 2019 sweep No

Can I just check, are you only including help or support that you give this person/these people because they have long-term physical or mental ill-health, disability or problems relating to old age, or were you thinking about help more generally?

1 Yes, thinking of help/support given because of health/old age
2 No, was thinking about help more generally

HSE
Provision; Provision of care - number of people 2019 16-120 16 120 Participant No Past month 2019 sweep No

How many people do you provide this kind of help and support to?

Range: 0..97

HSE
Provision; Provision of care - who 2019 16-120 16 120 Participant No Current 2019 sweep No

Now I’d like you to think about the three people you provide the most help and support to.

Thinking about (name of person respondent helps), what is their relationship to you?

They are my…
1 Husband/Wife/Partner
2 Mother (including mother-in-law)
3 Father (including father-in-law)
4 Son (including step son, adopted son or son in law)
5 Daughter (including step daughter, adopted daughter or daughter in law)
6 Grandparent
7 Grandchild (including Great Grandchildren)
8 Brother / Sister (including step / adopted / in laws)
9 Other family member
10 Friend
11 Neighbour
12 Somebody I help as a professional carer
13 Somebody I help as a voluntary carer
14 Other (PLEASE SPECIFY)

HSE
Provision; Provision of care - inside or outside of household 2019 16-120 16 120 Participant No Current 2019 sweep No

Does (name of person respondent helps) live in the same household as you or in a different household?

1 Same household
2 Different household

HSE
Provision; Age of care recipient 2019 16-120 16 120 Participant No Current 2019 sweep No

How old is (name of person respondent helps)?

Range: 1..130

HSE
Provision; Gender of care recipient 2019 16-120 16 120 Participant No Current 2019 sweep No

Is male or female?

1 Male
2 Female

HSE
Provision; Hours spent caring 2019 16-120 16 120 Participant No Past week 2019 sweep No

Thinking only about the types of tasks and activities I showed you on Showcard E3, how many hours did you spend helping (name of person respondent helps) in the last week?

INTERVIEWER EXPLAIN IF NECESSARY: Please exclude travel time

1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

HSE
Provision; Hours spent caring 2019 16-120 16 120 Participant No Past week 2019 sweep No

Thinking of the same type of help you give can you tell me whether in the last week you helped him/her:

1 Less than 10 hours
2 10-19 hours
3 20-34 hours
4 Or, for 35 hours or more?

HSE
Provision; Hours spent caring 2019 16-120 16 120 Participant No Current 2019 sweep No

How many hours do you help (name of person respondent helps) in a usual week? INTERVIEWER EXPLAIN IF NECESSARY: Please exclude travel time

1 Less than one hour per week
2 1-4 hour per week
3 5-9 hours per week
4 10-19 hours per week
5 20-34 hours per week
6 35-49 hours per week
7 50-99 hours per week
8 100 hours or more per week

HSE
Provision; Hours spent caring - total 2019 16-120 16 120 Participant No Current 2019 sweep No

Thinking about the total time you spend providing support or help to , , about how many hours altogether did you spend last week helping them?

1 Less than one hour per week
2 1-4 hour per week
3 5-9 hours per week
4 10-19 hours per week
5 20-34 hours per week
6 35-49 hours per week
7 50-99 hours per week
8 100 hours or more per week

HSE
Provision; Hours spent caring - total 2019 16-120 16 120 Participant No Current 2019 sweep No

Thinking about the total time you spend providing support or help to , , about how many hours altogether
did you spend last week helping them?

1 Less than one hour per week
2 1-4 hour per week
3 5-9 hours per week
4 10-19 hours per week
5 20-34 hours per week
6 35-49 hours per week
7 50-99 hours per week
8 100 hours or more per week

HSE
Provision; Caring activities completed 2019 16-120 16 120 Participant No Current 2019 sweep No

And looking at card E5, which of the activities do you help or support ? Please think only of help or support given because of long-term physical or mental ill- health, disability or problems relating to old age.

CODE ALL THAT APPLY
1 Getting the person in and out of bed
2 Washing their face and hands
3 Having a bath or a shower, including getting in and out of the bath or shower
4 Dressing or undressing, including putting on shoes and socks
5 Using the toilet
6 Eating, including cutting up food
7 Taking the right amount of medicine at the right times
8 Getting around indoors (please don’t include using the stairs)
9 Getting up and down stairs
10 Getting out of the house, for example to go to the doctors or to visit a friend
11 Shopping for food, including getting to the shops, choosing the items, carrying the items
home and then unpacking and putting the items away
12 Doing routine housework or laundry
13 Doing paperwork or paying bills

HSE
Provision; Payment for caring 2019 16-120 16 120 Participant No Current 2019 sweep No

Do you receive any money for helping [your answer at PrRel]/ [answer from PrName1/2/3]? INTERVIEWER DO NOT INCLUDE GIFTS, TREATS OR OCCASIONAL PAYMENTS OF EXPENSES SUCH AS PETROL MONEY OR LUNCH

1 Yes, this person pays me from their own income, pensions or savings
2 Yes, this person pays me from a personal budget or direct payment
3 Yes, I receive a carer’s allowance
4 Yes, I receive money in another way
5 No, I receive no money for helping this person.

HSE
Provision; Caring activities completed 2019 16-120 16 120 Participant No Current 2019 sweep No

How much do you receive per week or per month?

Is that per week or per month?

Part 1:
Enter amount

Part 2:
1 Per week
2 Per month

HSE
Provision; Support with caring 2019 16-120 16 120 Participant No Current 2019 sweep No

The next few questions are about the effects on you of caring and about any support you may receive with your care responsibilities

Do you receive any of these types of support in caring for (name of person respondent helps)? Please think only about help or support given directly to you.
Please read out the numbers that apply from this card

CODE ALL THAT APPLY
1 Help from GP or nurse
2 Access to respite care
3 Help from professional care staff
4 Help from carers’ organisation or charity
5 Help from other family members
6 Advice from local authority/ social services
7 Help from friends/neighbours
8 No, I don’t receive any of these

HSE
Receipt; Receipt of allowances and payments 2019 16-120 16 120 Participant No Current 2019 sweep No

Can I just check, do you or any of your household receive any of these listed on this card? Please only think about people aged 16+ in your household.

1 Attendance Allowance
2 Disability Living Allowance – mobility component
3 Personal Independence Payment – daily living component
4 Personal Independence Payment – mobility component
5 None of these

HSE
Receipt; Benefits received - amount 2019 16-120 16 120 Participant No Current 2019 sweep No

Now looking at this card, which of these rates is {^name of HH member selected at AttDisab} currently receiving? Just tell me the number beside the row that best apply.

SHOW CARD A6 {Weekly rates from April 2018-April 2019} Attendance Allowance
1 Higher rate for attendance during day AND night – £85.60
2 Lower rate for day OR night – £57.30
Disability Living Allowance (DLA) – Care Component
3 Highest rate – £85.60
4 Middle rate – £57.30
5 Lowest rate – £22.65
Disability Living Allowance (DLA) – Mobility Component
6 Highest rate – £59.75
7 Lower rate – £22.65
Personal Independence Payments (PIP) – Daily Living Component
8 Enhanced rate – £85.60
9 Standard rate – £57.30
Personal Independence Payments (PIP) – Mobility Component
10 Enhanced rate – £59.75 11 Standard rate – £22.65

SHOW CARD A7 {Weekly rates from 8th April 2019 to April 2020} Attendance Allowance
1 Higher rate for attendance during day AND night – £87.65
2 Lower rate for day OR night – £58.70
Disability Living Allowance (DLA) – Care Component
3 Highest rate – £87.65
4 Middle rate – £58.70
5 Lowest rate – £23.20
Disability Living Allowance (DLA) – Mobility Component
6 Highest rate – £61.20
7 Lower rate – £23.20
Personal Independence Payments (PIP) – Daily Living Component
8 Enhanced rate – £87.65
9 Standard rate – £58.70
Personal Independence Payments (PIP) – Mobility Component
10 Enhanced rate – £61.20 11 Standard rate – £23.20

HSE
Need; Ability to complete ADLs & IADLs 2019 16-120 16 120 Participant No Past month 2019 sweep No

(A) Thinking about getting in and out of bed on your own, please look at this card and tell me the option which best applies to you?
INTERVIEWER: Do not include help from special aids or equipment such as wheelchairs or stair lifts.

Still looking at Showcard D1, what about…
(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

For all questions (A-M):
1 I can do this without help from anyone
2 I have difficulty doing this but manage on my own
3 I can only do this with help from someone
4 I cannot do this

HSE
Receipt; Help with completing ADLs & IADLs 2019 16-120 16 120 Participant No Past month 2019 sweep No

Have you received help from anyone with getting in out of bed on your own, in the last month? EXPLAIN IF NECESSARY: Include help even if it was for a short time or provided by husband/ wife/ another family member

What about ?
EXPLAIN IF NECESSARY: Include help even if it was for a short time or provided by husband/ wife/ another family member

(B) washing your face and hands
(C) having a bath or a shower, including getting in and out of the bath or shower
(D) dressing or undressing, including putting on shoes and socks
(E) using the toilet
(F) eating, including cutting up food
(G) taking the right amount medicine at the right times
(H) getting around indoors
(I) getting up and down stairs
(J) getting out of the house, for example to go to the doctors or visit a friend
(K) shopping for food including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away
(L) doing routine housework or laundry
(M) doing paperwork or paying bills

Response scale for all questions:
1 Yes
2 No

HSE
Receipt; Reason for help with completing ADLs & IADLs 2019 16-120 16 120 Participant No Past month 2019 sweep No

Do you receive this help with because of long standing physical or mental ill- health, a disability or problems relating to old age?

1 Yes for some or all
2 No, none of this help is because long standing physical or mental ill-health, disability or
problems relating to old age

HSE
Receipt; Receipt of care - who helps 2019 16-120 16 120 Participant No Past month 2019 sweep No

I am now going to ask you some questions about who helps you with different things. I will show you two lists of people who may have helped you.

First, please tell me about all of the people from this list who have helped you? Please only think about help received because of long-term physical or mental ill-health, disability or problems relating to old age.

1 Husband/Wife/Partner
2 Son (including step son, adopted son or son in law)
3 Daughter (including step daughter, adopted daughter or daughter in law)
4 Grandchild (including Great Grandchildren)
5 Brother / Sister (including step / adopted / in laws)
6 Niece / Nephew
7 Mother /father (including mother-in-law/ father-in-law)
8 Other family member
9 Friend
10 Neighbour
11 None of the above

HSE
Receipt; Receipt of care - who helps 2019 16-120 16 120 Participant No Past month 2019 sweep No

Now, please tell me about all of the people from this list who have helped you with in the last month?

Who was the other person that helped you?

You’ve told me that your (person who helped) helped you. Can I just check, does this person live in this household?

Part 1:
1 Home care worker /home help/personal assistant
2 A member of the reablement / intermediate care staff team
3 Occupational Therapist / Physiotherapist
4 Voluntary helper
5 Warden / Sheltered housing manager
6 Cleaner
7 Council’s handyman
8 Other (please specify)
9 None of the above

Part 2:
Text: Maximum 100 characters

Part 3:
1 Yes
2 No

HSE
Receipt; Receipt of care - number of hours 2019 16-120 16 120 Participant No Past week 2019 sweep No

Thinking about [person who helps], in the last week how many hours have they helped you in person with these kinds of tasks?

Please only think about the hours they were helping you with these kinds of tasks and not about the time they were around in the house or there to help you if you needed it]

ENTER NUMBER OF HOURS AND MINUTES.
IF RESPONDENT DOES NOT GIVE PRECISE ANSWER INTERVIEWER CODE DK
IF 2 PEOPLE HELP AT THE SAME TIME, CODE DOUBLE THE HOURS

1 No help in the last week
2 Less than one hour
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35-49 hours
8 50-99 hours
9 100 hours or more

HSE
Receipt; Receipt of care - number of hours 2019 16-120 16 120 Participant No Past week 2019 sweep No

Can you tell me whether in the last week your helped you in person with these tasks for:

1 Less than 20 hours
2 20-34 hours
3 Or for 35 hours or more?

HSE
Receipt; Receipt of care - how long 2019 16-120 16 120 Participant No Past month 2019 sweep No

How long have you been receiving any of the kinds of help we have been talking about? Would you say it is for less than a year, or one year or more?

1 Less than one year
2 One year or more

HSE
Receipt; Receipt of care - number of hours 2019 16-120 16 120 Participant No Current 2019 sweep No

How many hours does (helper’s name/role) help you in a usual week?

1 Less than one hour
2 1-4 hours
3 5-9 hours
4 10-19 hours
5 20-34 hours
6 35-49 hours
7 50-99 hours
8 100 hours or more

HSE
Receipt; Review of care needs 2019 16-120 16 120 Participant No Current 2019 sweep No

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1 Yes
2 No

HSE
Receipt; Receipt of personal budget 2019 16-120 16 120 Participant No Current 2019 sweep No

This card describes a personal budget that your local authority may have allocated for you. Have you been given one of these?

CARD DESCRIPTIONS
Personal budget – When the local authority finds that you are eligible for support for your social care needs, your personal budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it.

1 Yes
2 No

HSE
Receipt; Personal budget - value 2019 16-120 16 120 Participant No Current 2019 sweep No

What is the value of your [Personal budget] per week or per month?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £:

Part 2:
1 Per week
2 Per month

HSE
Receipt; Personal budget - use of direct payments 2019 16-120 16 120 Participant No Current 2019 sweep No

Are you taking any of your Personal Budget as a Direct Payment?
IF YES, PROBE: Is that all or your Personal Budget or part of it?

CARD DESCRIPTION
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. (This should not be confused with benefits paid directly into a bank account which may also be called direct payments.)

1 Yes, all of personal budget as a Direct Payment
2 Yes, part of personal budget as Direct Payment
3 No, none of personal budget as direct payment
4 SPONTANEOUS: Not being paid my personal budget yet.

HSE
Receipt; Personal budget - personal contribution 2019 16-120 16 120 Participant No Current 2019 sweep No

How much do you contribute in user charges for your Personal Budget?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £: OR CODE 0.00 for ‘None’

Part 2:
1 Per week
2 Per month

HSE
Receipt; Personal budget - topping up 2019 16-120 16 120 Participant No Current 2019 sweep No

“In addition to your user charges,”] do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1 Yes
2 No

HSE
Receipt; Personal budget - personal contribution amount 2019 16-120 16 120 Participant No Current 2019 sweep No

How much do you pay per week or per month to top up your Personal Budget?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £: OR CODE 0.00 for ‘None’

Part 2:
1 Per week
2 Per month

HSE
Receipt; Receipt of paid care from local authority 2019 16-120 16 120 Participant No Current 2019 sweep No

Do you receive any care paid for by the council or the Local Authority?

1 Yes
2 No

HSE
Receipt; Local authority financed care - amount 2019 16-120 16 120 Participant No Current 2019 sweep No

Do you know how much the local authority pays for your care, per week or per month?

Is that amount per week or per month?

Part 1:
RECORD AMOUNT £: OR CODE 0.00 for ‘None’
OR RECORD: Don’t know

Part 2:
1 Per week
2 Per month

HSE
Receipt; Community OR care home users - ease of finding information 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

In the past year, have you generally found it easy or difficult to find information and advice about support, services or benefits?

I’ve never tried to find information or advice
Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find

ASCS
Receipt; Community OR care home users - general health 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

How is your health in general?

Very good
Good
Fair
Bad
Very bad

ASCS
Receipt; Community OR care home users - current physical and mental state 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

By placing a tick in one box in each group below, please indicate which statements best describe your own health state today.

a. Pain or discomfort

b. Anxiety or depression

Responses for a.
I have no pain or discomfort
I have moderate pain or discomfort
I have extreme pain or discomfort

Responses for b.
I am not anxious or depressed
I am moderately anxious or depressed
I am extremely anxious or depressed

ASCS
Need; Community OR care home users - ability to complete ADLs/IADLs 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Please place a tick in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to get around indoors (except steps) by yourself?

b. Do you usually manage to get in and out of a bed (or chair) by yourself?

c. Do you usually manage to feed yourself?

d. Do you usually deal with finances and paperwork – for example, paying bills, writing letters – by yourself?

I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

ASCS
Need; Community OR care home users - ability to complete ADLs 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Please place a tick in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to wash all over by yourself, using either a bath or shower?

b. Do you usually manage to get dressed and undressed by yourself?

c. Do you usually manage to use the WC/toilet by yourself?

d. Do you usually manage to wash your face and hands by yourself?

I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

ASCS
Receipt; Community OR care home users - design of home to meet needs 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

In the community care questionnaire:
How well do you think your home is designed to meet your needs?

In the residential and nursing care questionnaire:
How well do you think your care home is designed to meet your needs?

In the community care questionnaire:
My home meets my needs very well
My home meets most of my needs
My home meets some of my needs
My home is totally inappropriate for my needs

In the residential and nursing care questionnaire:
My care home meets my needs very well
My care home meets most of my needs
My care home meets some of my needs
My care home is totally inappropriate for my needs

ASCS
Receipt; Community OR care home users - getting around outside of home 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

In the community care questionnaire:
Thinking about getting around outside of your home, which of the following statements best describes your present situation?

In the residential and nursing care questionnaire:
Thinking about getting around outside of your care home, which of the following statements best describes your present situation?

I can get to all the places in my local area that I want
At times I find it difficult to get to all the places in my local area that I want
I am unable to get to all the places in my local area that I want
I do not leave my home

ASCS
Receipt; Community OR care home users - receipt of practical help from close contacts 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Do you receive any practical help on a regular basis from your husband/wife, partner, friends, neighbours or family members?

Yes, from someone living in my household
Yes, from someone living in another household
No

ASCS
Receipt; Community OR care home users - 'topping up' care budget 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Do you buy any additional care or support privately or pay more to ‘top up’ your care and support?

Yes, I buy some more care and support with my own money
Yes, my family pays for some more care and support for me
No

ASCS
Receipt; Community OR care home users - help completing questionnaire 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Did you have any help from someone else to complete this questionnaire?

What type of help did you have?

No, I did not have help
I had help from a care worker
I had help from someone living in my household
I had help from someone living outside my household

I didn’t have any help
Someone else read the questions to me
Someone else translated the questions for me
Someone else wrote down the answers for me
I talked through the questions with someone else
Someone answered for me, without asking me the questions

ASCS
Receipt; Community OR care home users - satisfaction with support 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Overall, how satisfied or dissatisfied are you with the care and support services you receive?

I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

ASCS
Receipt; Community OR care home users - quality of life 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Thinking about the good and bad things that make up your quality of life, how would you rate the quality of your life as a whole?

So good, it could not be better
Very good
Good
Alright
Bad
Very bad
So bad, it could not be worse

ASCS
Receipt; Community OR care home users - services effect on quality of life 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Do care and support services help you to have a better quality of life?

Yes
No

ASCS
Receipt; Community OR care home users - choice over care services received 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Which of the following statements best describes how much choice you have over the care and support services you receive?

I do have enough choice over care and support services
I don’t have enough choice over care and support services
I don’t want or need choice about care and support services

ASCS
Receipt; Community OR care home users - control over daily life 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Which of the following statements best describes how much control you have over your daily life?

I have as much control over my daily life as I want
I have adequate control over my daily life
I have some control over my daily life but not enough
I have no control over my daily life

ASCS
Receipt; Community OR care home users - services effect on control over daily life 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Do care and support services help you in having control over your daily life?

I do not need care and support services to help me have control over my daily life
Yes
No

ASCS
Receipt; Community OR care home users - Keeping clean and presentable 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Thinking about keeping clean and presentable in appearance, which of the following statements best describes your situation?

I feel clean and am able to present myself the way I like
I feel adequately clean and presentable
I feel less than adequately clean or presentable
I don’t feel at all clean or presentable

ASCS
Receipt; Community OR care home users - support keeping clean 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Do care and support services help you in keeping clean and presentable in appearance?

I do not need care and support services to help me keep clean and presentable
Yes
No

ASCS
Receipt; Community OR care home users - food & drink 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Thinking about the food and drink you get, which of the following statements best describes your situation?

I get all the food and drink I like when I want
I get adequate food and drink at OK times
I don’t always get adequate or timely food and drink
I don’t always get adequate or timely food and drink, and I think there is a risk to my health

ASCS
Receipt; Community OR care home users - help obtaining food & drink 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Do care and support services help you to get food and drink?

I do not need care and support services to help me get food and drink
Yes
No

ASCS
Receipt; Community OR care home users - Cleanliness and comfort of home 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Which of the following statements best describes how clean and comfortable your home is?

My home is as clean and comfortable as I want
My home is adequately clean and comfortable
My home is not quite clean or comfortable enough
My home is not at all clean or comfortable

ASCS
Receipt; Community OR care home users - support keeping home clean 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Do care and support services help you in keeping your home clean and comfortable?

I do not need care and support services to help me keep my home clean and comfortable
Yes
No

ASCS
Receipt; Community OR care home users - feeling safe 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Which of the following statements best describes how safe you feel?

I feel as safe as I want
Generally I feel adequately safe, but not as safe as I
would like
I feel less than adequately safe
I don’t feel at all safe

ASCS
Receipt; Community OR care home users - service help with feeling safe 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Do care and support services help you in feeling safe?

Yes
No

ASCS
Receipt; Community OR care home users - contact with friends 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Thinking about how much contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have adequate social contact with people
I have some social contact with people, but not enough
I have little social contact with people and feel socially isolated

ASCS
Receipt; Community OR care home users - support with social contact 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Do care and support services help you in having social contact with people?

I do not need care and support services to help me have social contact with people
Yes
No

ASCS
Receipt; Community OR care home users - how spend time 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Which of the following statements best describes how you spend your time?

I’m able to spend my time as I want, doing things I value or enjoy
I’m able to do enough of the things I value or enjoy with my time
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

ASCS
Receipt; Community OR care home users - support with activities 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Do care and support services help you in the way you spend your time?

I do not need care and support services to help me in the way I spend my time
Yes
No

ASCS
Receipt; Community OR care home users - self esteem when using help 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Which of these statements best describes how having help to do things makes you think and feel about yourself?

Having help makes me think and feel better about myself
Having help does not affect the way I think or feel about myself
Having help sometimes undermines the way I think and feel about myself
Having help completely undermines the way I think and feel about myself

ASCS
Receipt; Community OR care home users - how the way helped effects self esteem 2021 18-120 18 120 Participant No Currently 2021-22 sweep No

Which of these statements best describes how the way you are helped and treated makes you think and feel about yourself?

The way I’m helped and treated makes me think and feel better about myself
The way I’m helped and treated does not affect the way I think or feel about myself
The way I’m helped and treated sometimes undermines the way I think and feel about myself
The way I’m helped and treated completely undermines the way I think and feel about myself

ASCS
Receipt; Community OR care home users - Sufficient food and drink 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS Digital.

Do care and support services help you to get food and drink?

Yes
No

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Cleanliness and comfort of home 2020 18-120 18 120 Participant No Currently 2020-21 sweep Yes

In the community care questionnaire:
Which of the following statements best describes how clean and comfortable your home is?

In the residential and nursing care questionnaire:
Which of the following statements best describes how clean and comfortable your care home is?

In the community care questionnaire:
My home is as clean and comfortable as I want
My home is adequately clean and comfortable
My home is not quite clean or comfortable enough
My home is not at all clean or comfortable

In the residential and nursing care questionnaire:
My care home is as clean and comfortable as I want
My care home is adequately clean and comfortable
My care home is not quite clean or comfortable enough
My care home is not at all clean or comfortable

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Cleanliness and comfort of home 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS Digital.

In the community care questionnaire:
Do care and support services help you in keeping your home clean and comfortable?

In the residential and nursing care questionnaire:
Do care and support services help you in keeping your care home clean and comfortable?

Yes
No

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Safety 2020 18-120 18 120 Participant No Currently 2020-21 sweep Yes

Which of the following statements best describes how safe you feel?

By feeling safe we mean how safe you feel both inside and outside the home. This includes fear of abuse, falling or other physical harm

I feel as safe as I want
Generally I feel adequately safe, but not as safe as I
would like
I feel less than adequately safe
I don’t feel at all safe

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Safety 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Do care and support services help you in feeling safe?

Yes
No

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - social situation 2020 18-120 18 120 Participant No Currently 2020-21 sweep Yes

Thinking about how much contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have adequate social contact with people
I have some social contact with people, but not enough
I have little social contact with people and feel socially isolated

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - social situation 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS Digital.

Do care and support services help you in having social contact with people?

Yes
No

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - How user spends time 2020 18-120 18 120 Participant No Currently 2020-21 sweep Yes

Which of the following statements best describes how you spend your time?

When you are thinking about how you spend your time, please include anything you value or enjoy including leisure activities, formal employment, voluntary or unpaid work and caring for others.

I’m able to spend my time as I want, doing things I value or enjoy
I’m able to do enough of the things I value or enjoy with my time
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - How user spends time 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS Digital.
Do care and support services help you in the way you spend your time?

Yes
No

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Self esteem 2020 18-120 18 120 Participant No Currently 2020-21 sweep Yes

Which of these statements best describes how having help to do things makes you think and feel about yourself?

Having help makes me think and feel better about myself
Having help does not affect the way I think or feel about myself
Having help sometimes undermines the way I think and feel about myself
Having help completely undermines the way I think and feel about myself

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Ease of finding information about support 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

In the past year, have you generally found it easy or difficult to find information and advice about support, services or benefits?

Please include information from different sources, such as voluntary organisations, and private agencies as well as [Social Services].

I’ve never tried to find information or advice
Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find

General health
Anxiety
Depression

ASCS
Need; Community OR care home users - general health 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

How is your health in general?

Very good
Good
Fair
Bad
Very bad

General health
Anxiety
Depression

ASCS
Need; Community OR care home users - General health state today 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

By placing a tick in one box in each group below, please indicate which statements best describe your own health state today.

a. Pain or discomfort

b. Anxiety or depression

Responses for a.
I have no pain or discomfort
I have moderate pain or discomfort
I have extreme pain or discomfort

Responses for b.
I am not anxious or depressed
I am moderately anxious or depressed
I am extremely anxious or depressed

General health
Anxiety
Depression

ASCS
Need; Community OR care home users - ADLs and IADLs 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Please place a tick in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to get around indoors (except steps) by yourself?

b. Do you usually manage to get in and out of a bed (or chair) by yourself?

c. Do you usually manage to feed yourself?

d. Do you usually deal with finances and paperwork – for example, paying bills, writing letters – by yourself?

I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

General health
Anxiety
Depression

ASCS
Need; Community OR care home users - ADLs 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Please place a tick in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to wash all over by yourself, using either a bath or shower?

b. Do you usually manage to get dressed and undressed by yourself?

c. Do you usually manage to use the WC/toilet by yourself?

d. Do you usually manage to wash your face and hands by yourself?

I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

General health
Anxiety
Depression

ASCS
Need; Community OR care home users - design of home to meet needs 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

In the community care questionnaire:
How well do you think your home is designed to meet your needs?

In the residential and nursing care questionnaire:
How well do you think your care home is designed to meet your needs?

In the community care questionnaire:
My home meets my needs very well
My home meets most of my needs
My home meets some of my needs
My home is totally inappropriate for my needs

In the residential and nursing care questionnaire:
My care home meets my needs very well
My care home meets most of my needs
My care home meets some of my needs
My care home is totally inappropriate for my needs

General health
Anxiety
Depression

ASCS
Need; Community OR care home users - Mobility around local area 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

In the community care questionnaire:
Thinking about getting around outside of your home, which of the following statements best describes your present situation?

In the residential and nursing care questionnaire:
Thinking about getting around outside of your care home, which of the following statements best describes your present situation?

I can get to all the places in my local area that I want
At times I find it difficult to get to all the places in my local area that I want
I am unable to get to all the places in my local area that I want
I do not leave my home

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Help from family/friends/neighbours 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Do you receive any practical help on a regular basis from your husband/wife, partner, friends, neighbours or family members?

Yes, from someone living in my household
Yes, from someone living in another household
No

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Paying for additional care 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Do you buy any additional care or support privately or pay more to ‘top up’ your care and support?

Yes, I buy some more care and support with my own money
Yes, my family pays for some more care and support for me
No

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Help to complete questionnaire 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Did you have any help from someone else to complete this questionnaire?

What type of help did you have?

No, I did not have help
I had help from a care worker
I had help from someone living in my household
I had help from someone living outside my household

I didn’t have any help
Someone else read the questions to me
Someone else translated the questions for me
Someone else wrote down the answers for me
I talked through the questions with someone else
Someone answered for me, without asking me the questions

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - self esteem after receiving help 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Which of these statements best describes how the way you are helped and treated makes you think and feel about yourself?

The way I’m helped and treated makes me think and feel better about myself
The way I’m helped and treated does not affect the way I think or feel about myself
The way I’m helped and treated sometimes undermines the way I think and feel about myself
The way I’m helped and treated completely undermines the way I think and feel about myself

ASCS
Receipt; Community OR care home users - Ease of finding information on support 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

In the past year, have you generally found it easy or difficult to find information and advice about support, services or benefits?

I’ve never tried to find information or advice
Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find

ASCS
Receipt; Community OR care home users - general health 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

How is your health in general?

Very good
Good
Fair
Bad
Very bad

ASCS
Receipt; Community OR care home users - current physical and mental health 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

By placing a tick in one box in each group below, please indicate which statements best describe your own health state today.

a. Pain or discomfort

b. Anxiety or depression

Responses for a.
I have no pain or discomfort
I have moderate pain or discomfort
I have extreme pain or discomfort

Responses for b.
I am not anxious or depressed
I am moderately anxious or depressed
I am extremely anxious or depressed

ASCS
Receipt; Community OR care home users - ability to complete IADLs/ADLs 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Please place a tick in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to get around indoors (except steps) by yourself?

b. Do you usually manage to get in and out of a bed (or chair) by yourself?

c. Do you usually manage to feed yourself?

d. Do you usually deal with finances and paperwork – for example, paying bills, writing letters – by yourself?

I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

ASCS
Receipt; Community OR care home users - ability to complete ADLs 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Please place a tick in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to wash all over by yourself, using either a bath or shower?

b. Do you usually manage to get dressed and undressed by yourself?

c. Do you usually manage to use the WC/toilet by yourself?

d. Do you usually manage to wash your face and hands by yourself?

I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

ASCS
Receipt; Community OR care home users - design of home to meet needs 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

In the community care questionnaire:
How well do you think your home is designed to meet your needs?

In the residential and nursing care questionnaire:
How well do you think your care home is designed to meet your needs?

In the community care questionnaire:
My home meets my needs very well
My home meets most of my needs
My home meets some of my needs
My home is totally inappropriate for my needs

In the residential and nursing care questionnaire:
My care home meets my needs very well
My care home meets most of my needs
My care home meets some of my needs
My care home is totally inappropriate for my needs

ASCS
Receipt; Community OR care home users - ease of getting around inside house 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

In the community care questionnaire:
Thinking about getting around outside of your home, which of the following statements best describes your present situation?

In the residential and nursing care questionnaire:
Thinking about getting around outside of your care home, which of the following statements best describes your present situation?

I can get to all the places in my local area that I want
At times I find it difficult to get to all the places in my local area that I want
I am unable to get to all the places in my local area that I want
I do not leave my home

ASCS
Receipt; Community OR care home users - practical help 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Do you receive any practical help on a regular basis from your husband/wife, partner, friends, neighbours or family members?

Yes, from someone living in my household
Yes, from someone living in another household
No

ASCS
Receipt; Community OR care home users - 'topping up' care budget 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Do you buy any additional care or support privately or pay more to ‘top up’ your care and support?

Yes, I buy some more care and support with my own money
Yes, my family pays for some more care and support for me
No

ASCS
Receipt; Community OR care home users - help completing questionnaire 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Did you have any help from someone else to complete this questionnaire?

What type of help did you have?

Part 1:
No, I did not have help
I had help from a care worker
I had help from someone living in my household
I had help from someone living outside my household

Part 2:
I didn’t have any help
Someone else read the questions to me
Someone else translated the questions for me
Someone else wrote down the answers for me
I talked through the questions with someone else
Someone answered for me, without asking me the questions

ASCS
Receipt; Community OR care home users - Satisfaction with care services 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Overall, how satisfied or dissatisfied are you with the care and support services you receive?

I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Care services' contribution to quality of life 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Do care and support services help you to have a better quality of life?

Yes
No

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Level of choice of care 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Which of the following statements best describes how much choice you have over the care and support services you receive?

I do have enough choice over care and support services
I don’t have enough choice over care and support services
I don’t want or need choice about care and support services

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - quality of life 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Thinking about the good and bad things that make up your quality of life, how would you rate the quality of your life as a whole?

So good, it could not be better
Very good
Good
Alright
Bad
Very bad
So bad, it could not be worse

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - control over daily life 2020 18-120 18 120 Participant No Currently 2020-21 sweep Yes

Which of the following statements best describes how much control you have over your daily life?

I have as much control over my daily life as I want
I have adequate control over my daily life
I have some control over my daily life but not enough
I have no control over my daily life

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - control over daily life 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

Do care and support services help you in having control over your daily life?

Yes
No

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Keeping clean and presentable 2020 18-120 18 120 Participant No Currently 2020-21 sweep Yes

Thinking about keeping clean and presentable in appearance, which of the following statements best describes your situation?

I feel clean and am able to present myself the way I like
I feel adequately clean and presentable
I feel less than adequately clean or presentable
I don’t feel at all clean or presentable

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Keeping clean and presentable 2020 18-120 18 120 Participant No Currently 2020-21 sweep No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS Digital.

Do care and support services help you in keeping clean and presentable in appearance?

Yes
No

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - Sufficient food and drink 2020 18-120 18 120 Participant No Currently 2020-21 sweep Yes

Thinking about the food and drink you get, which of the following statements best describes your situation?

I get all the food and drink I like when I want
I get adequate food and drink at OK times
I don’t always get adequate or timely food and drink
I don’t always get adequate or timely food and drink, and I think there is a risk to my health

General health
Anxiety
Depression

ASCS
Receipt; Community OR care home users - open response of experiences 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Please use the space provided below to describe any other experiences you would like to tell us about, or to write any other comments you would like to make?

Open response

ASCS
Receipt; Community OR care home users - satisfaction 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Overall, how satisfied or dissatisfied are you with the care and support services you receive?

I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

ASCS
Receipt; Community OR care home users - quality of life 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Thinking about the good and bad things that make up your quality of life, how would you rate the quality of your life as a whole?

So good, it could not be better
Very good
Good
Alright
Bad
Very bad
So bad, it could not be worse

ASCS
Receipt; Community OR care home users - help with quality of life 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Do care and support services help you to have a better quality of life?

Yes
No

ASCS
Receipt; Community OR care home users - level of choice of services 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Which of the following statements best describes how much choice you have over the care and support services you receive?

I do have enough choice over care and support services
I don’t have enough choice over care and support services
I don’t want or need choice about care and support services

ASCS
Receipt; Community OR care home users - control over daily life 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Which of the following statements best describes how much control you have over your daily life?

I have as much control over my daily life as I want
I have adequate control over my daily life
I have some control over my daily life but not enough
I have no control over my daily life

ASCS
Receipt; Community OR care home users - help controlling daily life 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Do care and support services help you in having control over your daily life?

Yes
No

ASCS
Receipt; Community OR care home users - keeping clean & presentable 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Thinking about keeping clean and presentable in appearance, which of the following statements best describes your situation?

I feel clean and am able to present myself the way I like
I feel adequately clean and presentable
I feel less than adequately clean or presentable
I don’t feel at all clean or presentable

ASCS
Receipt; Community OR care home users - help keeping clean & presentable 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

OPTIONAL QUESTION – Councils should remove this question if they do not want to include it in the questionnaire. Any data collected from this question does not need to be returned to NHS Digital.

Do care and support services help you in keeping clean and presentable in appearance?

Yes
No

ASCS
Receipt; Community OR care home users - getting food or drink 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Thinking about the food and drink you get, which of the following statements best describes your situation?

I get all the food and drink I like when I want
I get adequate food and drink at OK times
I don’t always get adequate or timely food and drink
I don’t always get adequate or timely food and drink, and I think there is a risk to my health

ASCS
Receipt; Community OR care home users - help getting food or drink 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Do care and support services help you to get food and drink?

Yes
No

ASCS
Receipt; Community OR care home users - clean and comfortable home 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Which of the following statements best describes how clean and comfortable your home is?

My home is as clean and comfortable as I want
My home is adequately clean and comfortable
My home is not quite clean or comfortable enough
My home is not at all clean or comfortable

ASCS
Receipt; Community OR care home users - help keeping home clean 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Do care and support services help you in keeping your home (or care home in care home questionnaire) clean and comfortable?

Yes
No

ASCS
Receipt; Community OR care home users - feeling of safety 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Which of the following statements best describes how safe you feel?

I feel as safe as I want
Generally I feel adequately safe, but not as safe as I
would like
I feel less than adequately safe
I don’t feel at all safe

ASCS
Receipt; Community OR care home users - support feeling safe 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Do care and support services help you in feeling safe?

Yes
No

ASCS
Receipt; Community OR care home users - social situation 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Thinking about how much contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have adequate social contact with people
I have some social contact with people, but not enough
I have little social contact with people and feel socially isolated

ASCS
Receipt; Community OR care home users - support socialising 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Do care and support services help you in having social contact with people?

Yes
No

ASCS
Receipt; Community OR care home users - how spend time 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Which of the following statements best describes how you spend your time?

I’m able to spend my time as I want, doing things I value or enjoy
I’m able to do enough of the things I value or enjoy with my time
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

ASCS
Receipt; Community OR care home users - support with how spend time 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Do care and support services help you in the way you spend your time?

Yes
No

ASCS
Receipt; Community OR care home users - self esteem after receiving help 2019 18-120 18 120 Participant No Currently 2019-20 sweep No

Which of these statements best describes how having help to do things makes you think and feel about yourself?

Having help makes me think and feel better about myself
Having help does not affect the way I think or feel about myself
Having help sometimes undermines the way I think and feel about myself
Having help completely undermines the way I think and feel about myself

ASCS
Provision; Carer - carer's views on personal safety 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Thinking about your personal safety, which of the statements best describes your present situation?

By ‘personal safety’ we mean feeling safe from fear of abuse, being attacked or other physical harm.

I have no worries about my personal safety
I have some worries about my personal safety
I am extremely worried about my personal safety

ASCS
Provision; Carer - social contact with friends 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Thinking about how much social contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have some social contact with people but not enough
I have little social contact with people and feel socially isolated

ASCS
Provision; Carer - support in caring role 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Thinking about encouragement and support in your caring role, which of the following statements best describes your present situation?

I feel I have encouragement and support
I feel I have some encouragement and support but not enough
I feel I have no encouragement and support

ASCS
Provision; Carer - other people caring for 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Thinking about the other people you have caring responsibilities for, which of the following best describes your current situation? Please exclude the person you spend most time helping.

I don’t have caring responsibilities for anyone else
I always have enough time to care for them
I sometimes have enough time to care for them
I never have enough time to care for them

ASCS
Provision; Carer - affect on health of caring role 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

In the last 12 months, has your health been affected by your caring role in any of the ways listed below?

Feeling tired
Feeling depressed
Loss of appetite
Disturbed sleep
General feeling of stress
Physical strain (e.g. back)
Short tempered/ irritable
Had to see own GP
Developed my own health conditions
Made an existing condition worse
Other
No, none of these

ASCS
Provision; Carer - financial difficulties 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

In the last 12 months, has caring caused you any financial difficulties?

No, not at all
Yes, to some extent
Yes, a lot

ASCS
Provision; Carer - ease of finding advice. 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

In the last 12 months, have you found it easy or difficult to find information and advice about support, services or benefits? Please include information and advice from different sources, such as voluntary organisations and private agencies as well as Social Services.

I have not tried to find information or advice in the last 12 months
Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find

ASCS
Provision; Carer - how helpful advice has been 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

In the last 12 months, how helpful has the information and advice you have received been? Please include information and advice from different organisations, such as voluntary organisations and private agencies as well as Social Services.

I have not received any information or advice in the last 12 months
Very helpful
Quite helpful
Quite unhelpful
Very unhelpful

ASCS
Provision; Carer - consulted as much as desired 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

In the last 12 months, do you feel you have been involved or consulted as much as you wanted to be, in discussions about the support or services provided to the person you care for?

There have been no discussions that I am aware of, in the last 12 months
I always felt involved or consulted
I usually felt involved or consulted
I sometimes felt involved or consulted
I never felt involved or consulted

ASCS
Provision; Carer - employment in addition to caring role 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

In addition to your caring role, please tell us which of the following also applies to you?

Retired
Employed full-time
Employed part-time (working 30 hours or less)
Self-employed full-time
Self-employed part-time
Not in paid work
Doing voluntary work
Other

ASCS
Provision; Carer - employment situation 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Thinking about combining your paid work and caring responsibilities, which of the following statements best describes your current situation?

Not in paid work:
I am not in paid employment because of my caring responsibilities
I am not in paid employment for other reasons (e.g. Retired)

In paid employment:
I am in paid employment and I feel supported by my employer
I am in paid employment but I don’t feel supported by my employer
I do not need any support from my employer to combine my work and caring responsibilities

Self-employed:
I am self-employed and I am able to balance my work and caring Responsibilities
I am self-employed but I am unable to balance my work and caring Responsibilities

ASCS
Provision; Carer - length of time caring 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

About how long have you been looking after or helping the person you care for?

Less than 6 months
Over 6 months but less than a year
Over 1 year but less than 3 years
Over 3 years but less than 5 years
Over 5 years but less than 10 years
Over 10 years but less than 15 years
Over 15 years but less than 20 years
20 years or more

ASCS
Provision; Carer - time each week caring 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

About how long do you spend each week looking after or helping the person you care for?

0-9 hours per week
10-19 hours per week
20-34 hours per week
35-49 hours per week
50-74 hours per week
75-99 hours per week
100 or more hours per week
Varies – Under 20 hours per week
Varies – 20 hours or more per week
Other – if other please specify

ASCS
Provision; Carer - caring activities 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Over the last 12 months, what kinds of things did you usually do for the person you care for?

Personal care?
(Things like dressing, bathing, washing, shaving, cutting nails, feeding, using the toilet)
Physical help?
(Such as helping with walking, getting up and down stairs, getting into and out of bed)
Helping with dealing with care services and benefits?
(Things like making appointments and phone calls, filling in forms)
Helping with paperwork or financial matters?
(Such as writing letters, sending cards, filling in forms, dealing with bills, banking)
Other practical help?
(Things like preparing meals, doing his/her shopping, laundry, housework, gardening, decorating, household repairs, taking to doctor’s or hospital)
Keeping him/her company?
(Things like visiting, sitting with, reading to, talking to, playing cards or games)
Taking him/her out?
(Such as taking out for a walk or drive, taking to see friends or relatives)
Giving medicines?
(Things like making sure he/she takes pills, giving injections, changing dressings)
Keeping an eye on him/her to see he/she is all right?
Giving emotional support?
Other help?

ASCS
Provision; Carer - carer health conditions 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Do you have any of the following?

A physical impairment or disability
Sight or hearing loss
A mental health problem or illness
A learning disability or difficulty
A long-standing illness
Other
None of the above

ASCS
Provision; Carer - age 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

How old are you?

________________ years

ASCS
Provision; Carer - gender 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Are you male or female?

Male
Female

ASCS
Provision; Carer - parenting responsibilities. 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

How many children aged 18 or under do you have parental responsibility for?

0
1
2
3
4+

ASCS
Provision; Carer - groups belong to 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

To which of these groups do you consider you belong?

English / Welsh / Scottish / Northern Irish / British
Irish
Gypsy or Irish Traveller
Any other White background
White and Black Caribbean
White and Black African
White and Asian
Any other Mixed / Multiple background
Indian
Pakistani
Bangladeshi
Chinese
Any other Asian background
African
Caribbean
Any other Black / African / Caribbean background
Arab
Any other background
Prefer not to say

ASCS
Receipt; Community OR care home users - help completing questionnaire 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Did someone help you to complete this questionnaire?

Yes
No

ASCS
Receipt; Community OR care home users - ease of finding info on support 2017 18-120 18 120 Participant No Currently 2017-39 No

In the past year, have you generally found it easy or difficult to find information and advice about support, services or benefits?

Very easy to find
Fairly easy to find
Fairly difficult to find
Very difficult to find
I’ve never tried to find information or advice

ASCS
Receipt; Community OR care home users - general health 2017 18-120 18 120 Participant No Currently 2017-40 No

How is your health in general?

Very good
Good
Fair
Bad
Very bad

ASCS
Receipt; Community OR care home users - mental and physical state of health 2017 18-120 18 120 Participant No Currently 2017-41 No

By placing a tick in one box in each group below, please indicate which statements best describe your own health state today.

a. Pain or discomfort

b. Anxiety or depression

Responses for a.
I have no pain or discomfort
I have moderate pain or discomfort
I have extreme pain or discomfort

Responses for b.
I am not anxious or depressed
I am moderately anxious or depressed
I am extremely anxious or depressed

ASCS
Need; Community OR care home users - ADL/IADL ability 2017 18-120 18 120 Participant No Currently 2017-42 No

Please place a tick in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to get around indoors (except steps) by yourself?

b. Do you usually manage to get in and out of a bed (or chair) by yourself?

c. Do you usually manage to feed yourself?

d. Do you usually deal with finances and paperwork – for example, paying bills, writing letters – by yourself?

I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

ASCS
Need; Community OR care home users - ADL ability 2017 18-120 18 120 Participant No Currently 2017-43 No

Please place a tick in the box that best describes your abilities for each of the following questions.

a. Do you usually manage to wash all over by yourself, using either a bath or shower?

b. Do you usually manage to get dressed and undressed by yourself?

c. Do you usually manage to use the WC/toilet by yourself?

d. Do you usually manage to wash your face and hands by yourself?

I can do this easily by myself
I have difficulty doing this myself
I can’t do this by myself

ASCS
Receipt; Community OR care home users - home design to meet needs 2017 18-120 18 120 Participant No Currently 2017-44 No

In the community care questionnaire:
How well do you think your home is designed to meet your needs?

In the residential and nursing care questionnaire:
How well do you think your care home is designed to meet your needs?

In the community care questionnaire:
My home meets my needs very well
My home meets most of my needs
My home meets some of my needs
My home is totally inappropriate for my needs

In the residential and nursing care questionnaire:
My care home meets my needs very well
My care home meets most of my needs
My care home meets some of my needs
My care home is totally inappropriate for my needs

ASCS
Receipt; Community OR care home users - mobility inside home 2017 18-120 18 120 Participant No Currently 2017-45 No

In the community care questionnaire:
Thinking about getting around outside of your home, which of the following statements best describes your present situation?

In the residential and nursing care questionnaire:
Thinking about getting around outside of your care home, which of the following statements best describes your present situation?

I can get to all the places in my local area that I want
At times I find it difficult to get to all the places in my local area that I want
I am unable to get to all the places in my local area that I want
I do not leave my home

ASCS
Receipt; Community OR care home users - practical help from close contacts 2017 18-120 18 120 Participant No Currently 2017-46 No

Do you receive any practical help on a regular basis from your husband/wife, partner, friends, neighbours or family members?

Yes, from someone living in my household
Yes, from someone living in another household
No

ASCS
Receipt; Community OR care home users - pay to top up care 2017 18-120 18 120 Participant No Currently 2017-47 No

Do you buy any additional care or support privately or pay more to ‘top up’ your care and support?

Yes, I buy some more care and support with my own money
Yes, my family pays for some more care and support for me
No

ASCS
Receipt; Community OR care home users - help completing questionnaire 2017 18-120 18 120 Participant No Currently 2017-48 No

Did you have any help from someone else to complete this questionnaire?

No, I did not have help
I had help from a care worker
I had help from someone living in my household
I had help from someone living outside my household

ASCS
Receipt; Community OR care home users - type of help completing questionnaire 2017 18-120 18 120 Participant No Currently 2017-49 No

What type of help did you have?

I didn’t have any help
Someone else read the questions to me
Someone else translated the questions for me
Someone else wrote down the answers for me
I talked through the questions with someone else
Someone answered for me, without asking me the questions

ASCS
Provision; Carer - age of person cared for 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

How old is the person you care for?

Number of years
(If you don’t know the exact age, please give an approximate one – the person cared for should be aged 18 or over)

ASCS
Provision; Carer - reason care given 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Does the person you care for have….?

Dementia
A physical disability
Sight or hearing loss
A mental health problem
Problems connected to ageing
A learning disability or difficulty
Long-standing illness
Terminal illness
Alcohol or drug dependency

ASCS
Provision; Carer - location of person cared for 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Where does the person you care for usually live?

With me
Somewhere else

ASCS
Provision; Carer - dissatisfaction with service provision 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Overall, how satisfied or dissatisfied are you with the support or services you and the person you care for have received from Social Services in the last 12 months?

We haven’t received any support or services from Social Services in the last 12 months
I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

ASCS
Provision; Carer - use of support services - which ones 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Has the person you care for used any of the support or services listed below in the last 12 months?
They may be provided by different organisations, such as a voluntary organisation, a private agency or Social Services.

a. Support or services allowing you to take a break from caring at short notice or in an emergency
b. Support or services allowing you to take a break from caring for more than 24 hours
c. Support or services to allow you to have a rest from caring for between 1 and 24 hours (eg. a sitting service)
d. Personal assistant
e. Home care/home help
f. Day centre or day activities
g. Lunch club
h. Meals Services
i. Equipment or adaptation to their home (such as a wheelchair or handrails)
j. Lifeline Alarm
k. They are permanently resident in a care home

ASCS
Receipt; Carer - support services used by carer 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Have you used any of the support or services listed below, to help you as a carer over the last 12 months?

They may be provided by different organisations, such as a voluntary organisation, a private agency or Social Services. Please do not include any unpaid help from family and friends.

a. Information and advice
b. Support from carers groups or someone to talk to in confidence
c. Training for carers
d. Support to keep you in employment

ASCS
Provision; Carer - time spent by carer 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Which of the following statements best describes how you spend your time?

When you are thinking about what you do with your time, please include anything you value or enjoy, including formal employment, voluntary or unpaid work, caring for others and leisure activities.

I’m able to spend my time as I want, doing things I value or enjoy
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

ASCS
Provision; Carer - carer's control over own life 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Which of the following statements best describes how much control you have over your daily life?

I have as much control over my daily life as I want
I have some control over my daily life but not enough
I have no control over my daily life

ASCS
Provision; Carer - time available to look after self. 2018 18-120 18 120 Participant No Currently 2018-19 sweep No

Thinking about how much time you have to look after yourself – in terms of getting enough sleep or eating well – which statement best describes your present situation?

I look after myself
Sometimes I can’t look after myself well enough
I feel I am neglecting myself

ASCS
Receipt; Community OR care home users - satisfaction with services 2017 18-120 18 120 Participant No Currently 2017-19 No

Overall, how satisfied or dissatisfied are you with the care and support services you receive?

By ‘care and support services’ we mean any equipment or care provided by staff who are paid to help you. The staff could be from [Social Services], an agency, a care home or bought by you using money from [Social Services] through a Direct Payment.

I am extremely satisfied
I am very satisfied
I am quite satisfied
I am neither satisfied nor dissatisfied
I am quite dissatisfied
I am very dissatisfied
I am extremely dissatisfied

ASCS
Receipt; Community OR care home users - quality of life 2017 18-120 18 120 Participant No Currently 2017-20 No

Thinking about the good and bad things that make up your quality of life, how would you rate the quality of your life as a whole?

So good, it could not be better
Very good
Good
Alright
Bad
Very bad
So bad, it could not be worse

ASCS
Receipt; Community OR care home users - effect of services on quality of life 2017 18-120 18 120 Participant No Currently 2017-21 No

Do care and support services help you to have a better quality of life?

Yes
No

ASCS
Receipt; Community OR care home users - level of choice 2017 18-120 18 120 Participant No Currently 2017-22 No

Which of the following statements best describes how much choice you have over the care and support services you receive?

By ‘choice’ we mean being able to choose from a range of care providers and services and make changes as and when required

I do have enough choice over care and support services
I don’t have enough choice over care and support services
I don’t want or need choice about care and support services

ASCS
Receipt; Community OR care home users - control over daily life 2017 18-120 18 120 Participant No Currently 2017-23 No

Which of the following statements best describes how much control you have over your daily life?

By ‘control over daily life’ we mean having the choice to do things or have things done for you as you like and when you want.

I have as much control over my daily life as I want
I have adequate control over my daily life
I have some control over my daily life but not enough
I have no control over my daily life

ASCS
Receipt; Community OR care home users - contribution of care services to control 2017 18-120 18 120 Participant No Currently 2017-24 No

Do care and support services help you in having control over your daily life?

By ‘care and support services’ we mean any equipment or care provided by staff who are paid to help you. The staff could be from [Social Services], an agency or bought by you using money you receive from [Social Services], using a Direct Payment.

Yes
No

ASCS
Receipt; Community OR care home users - clean & presentable 2017 18-120 18 120 Participant No Currently 2017-25 No

Thinking about keeping clean and presentable in appearance, which of the following statements best describes your situation?

I feel clean and am able to present myself the way I like
I feel adequately clean and presentable
I feel less than adequately clean or presentable
I don’t feel at all clean or presentable

ASCS
Receipt; Community OR care home users - services help clean & presentable 2017 18-120 18 120 Participant No Currently 2017-26 No

Do care and support services help you in keeping clean and presentable in appearance?

Yes
No

ASCS
Receipt; Community OR care home users - food & drink adequacy 2017 18-120 18 120 Participant No Currently 2017-27 No

Thinking about the food and drink you get, which of the following statements best describes your situation?

I get all the food and drink I like when I want
I get adequate food and drink at OK times
I don’t always get adequate or timely food and drink
I don’t always get adequate or timely food and drink, and I think there is a risk to my health

ASCS
Receipt; Community OR care home users - food & drink help 2017 18-120 18 120 Participant No Currently 2017-28 No

Do care and support services help you to get food and drink?

Yes
No

ASCS
Receipt; Community OR care home users - clean & comfortable home 2017 18-120 18 120 Participant No Currently 2017-29 No

Which of the following statements best describes how clean and comfortable your home is?

My home is as clean and comfortable as I want
My home is adequately clean and comfortable
My home is not quite clean or comfortable enough
My home is not at all clean or comfortable

ASCS
Receipt; Community OR care home users - help keeping home clean 2017 18-120 18 120 Participant No Currently 2017-30 No

Do care and support services help you in keeping your home clean and comfortable?

Yes
No

ASCS
Receipt; Community OR care home users - feeling of safety 2017 18-120 18 120 Participant No Currently 2017-31 No

Which of the following statements best describes how safe you feel?

By feeling safe we mean how safe you feel both inside and outside the home. This includes fear of abuse, falling or other physical harm.

I feel as safe as I want
Generally I feel adequately safe, but not as safe as I
would like
I feel less than adequately safe
I don’t feel at all safe

ASCS
Receipt; Community OR care home users - help of services with feeling safe 2017 18-120 18 120 Participant No Currently 2017-32 No

Do care and support services help you in feeling safe?

Yes
No

ASCS
Receipt; Community OR care home users - social situation 2017 18-120 18 120 Participant No Currently 2017-33 No

Thinking about how much contact you’ve had with people you like, which of the following statements best describes your social situation?

I have as much social contact as I want with people I like
I have adequate social contact with people
I have some social contact with people, but not enough
I have little social contact with people and feel socially isolated

ASCS
Receipt; Community OR care home users - services help with socialising 2017 18-120 18 120 Participant No Currently 2017-34 No

Do care and support services help you in having social contact with people?

Yes
No

ASCS
Receipt; Community OR care home users - how spend time 2017 18-120 18 120 Participant No Currently 2017-35 No

Which of the following statements best describes how you spend your time?

When you are thinking about how you spend your time, please include anything you value or enjoy including leisure activities, formal employment, voluntary or unpaid work and caring for others.

I’m able to spend my time as I want, doing things I value or enjoy
I’m able to do enough of the things I value or enjoy with my time
I do some of the things I value or enjoy with my time but not enough
I don’t do anything I value or enjoy with my time

ASCS
Receipt; Community OR care home users - help with hobbies 2017 18-120 18 120 Participant No Currently 2017-36 No

Do care and support services help you in the way you spend your time?

Yes
No

ASCS
Receipt; Community OR care home users - how help makes user feel 2017 18-120 18 120 Participant No Currently 2017-37 No

Which of these statements best describes how having help to do things makes you think and feel about yourself?

Having help makes me think and feel better about myself
Having help does not affect the way I think or feel about myself
Having help sometimes undermines the way I think and feel about myself
Having help completely undermines the way I think and feel about myself

ASCS
Receipt; Community OR care home users - helped with self esteem. 2017 18-120 18 120 Participant No Currently 2017-38 No

Which of these statements best describes how the way you are helped and treated makes you think and feel about yourself?

The way I’m helped and treated makes me think and feel better about myself
The way I’m helped and treated does not affect the way I think or feel about myself
The way I’m helped and treated sometimes undermines the way I think and feel about myself
The way I’m helped and treated completely undermines the way I think and feel about myself

ASCS

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