Catalogue of Social Care Data

Please provide detail of the person you care for in the space below, for example their relationship to you, their age(s), the disability / disabilities they have in the space below.

Open text response

Why did you stop working between the start of the coronavirus outbreak and now?

I was advised to self-isolate
I need to care for others (children or adults)
My employer or business closed
I was worried about my health
I was laid off
I was planning to retire around now anyway
Other reason, please specify:

Just before the coronavirus outbreak began at the end of February 2020, did you look after anyone once a week or more? This could be your partner or other people in your household or someone in another household.

Yes
No

If yes, did the person (or people) you cared for before the coronavirus outbreak live with you or in another household?

Lived in my household
Lived in another household

If yes, has the amount of care you provide for this person/people in your household changed since the coronavirus outbreak?

It has increased
It has stopped
It has decreased
It has stayed the same

Has the amount of care you provide for people outside your household changed since the coronavirus outbreak?

It has increased
It has stopped
It has decreased
It has stayed the same

Do you provide help for someone outside of your household who you hadn’t previously due to the coronavirus outbreak?

Yes
No

How often have you looked after someone in the past week due to the coronavirus outbreak?

Every day
4 – 5 days per week
2 – 3 days per week
1 day per week
Less often (I did it only once, it was not regular)
Not applicable

Over the past month have you received care at home?

Yes, formal (paid, provided from an agency)
Yes, informal (friend or relative)
No

Since the coronavirus outbreak started is the amount of care you receive…..

Less than it was
About the same
More than it was
I no longer receive help

Since the coronavirus outbreak started have your care needs been met…

All of the time
Most of the time
Some of the time
Hardly ever

Have you made a new claim for any of the following benefits since the start of the coronavirus outbreak (whether or not you have started receiving payments yet)?

Universal Credit
Employment and Support Allowance
Housing Benefit
Personal independence payment (formerly called Disability Living Allowance)
Support for Mortgage Interest (formerly called Help for housing costs)
Widowed parents allowance
Carers allowance or attendance allowance
Job Seeker’s Allowance
Pension Credit
Rates support or reduction
Lone Pensioner Allowance
Statutory Sick Pay
Bereavement allowance (formerly called Widow’s Pension)
None

Do you care for someone with a disability?

Yes
No

How many different paid helpers in total – have been involved in taking care of you in the last two years? (If all helpers are unpaid relatives or friends code 0)

0-10

Does HELPER’s NAME receive regular payment from you , your family or from an agency or organisation to help care for you?

1 Yes
2 No

Is this person [helper’s name]:

1 From a private agency
2 From a non-profit organization (such as the Alzheimer’s Society, etc.)
3 From the government (local health board)
4 Family or Friend who is paid to help
5 Other

Thinking now about the cost of this paid help in the past month, about what percentage of this cost does the government cover?

Numerical answer

Not counting costs paid by the government, about how much did you (and your [husband/wife/partner]) pay HELPER’s NAME in the last month?

String answer

Does any other person help you (and your [husband/wife/partner]) pay for this cost?

Is that a (child or other) relative of yours (and your [husband/wife/partner]), or is that someone else?

Which child is that?

Any other child?

What is her/his name?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
1 Child/child in-law/grandchild
2 Other relative LOOP FL042
3 Someone else LOOP FL042
98 DK
99 RF

Part 3:
String answer

Part 4:
1 Yes
2 No
98 DK
99 RF

Part 5:
String answer

Does anyone ever help you with getting into or out of bed?

1 Yes
2 No
98 DK
99 RF

Does anyone ever help you with using the toilet, including getting on and off to the toilet?

1 Yes
2 No
98 DK
99 RF

Who most often helps you with (getting across a room / dressing / bathing / eating / getting in / out of bed / using the toilet)?

String answer

Is male or female?

1 Male
2 Female

What is that person’s relationship to you?

1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

Does anyone else help you with this activity/these activities?

What is her/his first name?

Is male or female?

What is that person’s relationship to you?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
Name

Part 3:
1 Male
2 Female

Part 4:
1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

Because of a health or memory problem, do you have difficulty doing any of the activities on this card? Again exclude any difficulties you expect to last less than three months.

1 Preparing a hot meal
2 Doing household chores (laundry, cleaning)
3 Shopping for groceries
4 Making telephone calls
5 Taking medications
6 Managing money, such as paying bills and keeping

Does anyone help you with preparing a hot meal?

1 Yes
2 No
98 DK
99 RF

Does anyone help you with doing household chores?

1 Yes
2 No
98 DK
99 RF

Does anyone help you with shopping for groceries?

1 Yes
2 No
98 DK
99 RF

Does anyone help you make phone calls?

1 Yes
2 No
98 DK
99 RF

Does anyone help you take your medications?

1 Yes
2 No
98 DK
99 RF

Does anyone help you with managing your own money?

1 Yes
2 No
98 DK
99 RF

Who most often helps you with (preparing meals/doing household chores/shopping for groceries/making telephone calls/your medications)?

String answer

Is male or female?

1 Male
2 Female

What is that person’s relationship to you?

1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

Does anyone else help you with this activity/these [caring] activities?

What is her/his first name?

Is male or female?

What is that person’s relationship to you?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
Name

Part 3:
1 Male
2 Female

Part 4:
1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

Let’s think for a moment about the help you receive with the difficulties that we just talked about. During the last month, on about how many days did HELPER’s NAME help you?

String answer

On the days when HELPER’s NAME helps you, about how many hours per day do they spend helping you?

Numerical answer

Does HELPER’s NAME receive Carer’s Allowance?

1 Yes
2 No
98 DK
99 RF

Does anyone ever help you with eating?

1 Yes
2 No
98 DK
99 RF

Does anyone ever help you with bathing or showering?

1 Yes
2 No
98 DK
99 RF

Is male or female?

1 Male
2 Female

What is that person’s relationship to you?

1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

Does anyone else help you with this activity/these [caring] activities?

What is her/his first name?

Is male or female?

What is that person’s relationship to you?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
Name

Part 3:
1 Male
2 Female

Part 4:
1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

Let’s think for a moment about the help you receive with the difficulties that we just talked about. During the last month, on about how many days did HELPER’s NAME help you?

String answer

On the days when HELPER’s NAME helps you, about how many hours per day do they spend helping you?

Numerical answer

Does HELPER’s NAME receive Carer’s Allowance?

1 Yes
2 No
98 DK
99 RF

Does HELPER’s NAME receive regular payment from you , your family or from an agency or organisation to help care for you?

1 Yes
2 No

Is this person [helper’s name]:

1 From a private agency
2 From a non-profit organization (such as the Alzheimer’s Society, etc.)
3 From the government (local health board)
4 Family or Friend who is paid to help
5 Other

Thinking now about the cost of this paid help in the past month, about what percentage of this cost does the government cover?

Numerical answer

Does any other person help you (and your [husband/wife/partner]) pay for this cost?

Is that a (child or other) relative of yours (and your [husband/wife/partner]), or is that someone else?

Which child is that?

Any other child?

What is her/his name?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
1 Child/child in-law/grandchild
2 Other relative LOOP FL042
3 Someone else LOOP FL042
98 DK
99 RF

Part 3:
String answer

Part 4:
1 Yes
2 No
98 DK
99 RF

Part 5:
String answer

Not counting costs paid by the government, about how much did you (and your [husband/wife/partner]) pay HELPER’s NAME in the last month?

String answer

Does anyone ever help you with walking across a room?

1 Yes
2 No
98 DK
99 RF

Does anyone ever help you with dressing including putting on shoes and socks?

1 Yes
2 No
98 DK
99 RF

Because of a health or memory problem, do you have difficulty doing any of the activities on this card? Again exclude any difficulties you expect to last less than three months. SHOW CARD FL2

1 Dressing, including putting on shoes and socks
2 Walking across a room
3 Bathing or showering
4 Eating, such as cutting up your food
5 Getting in or out of bed
6 Using the toilet, including getting up or down
96 None of these
98 DK
99 RF

Because of a physical or mental health problem, do you have difficulty doing any of the activities on this card? SHOW CARD FL1 Exclude any difficulties that you expect to last less than three months.

1 Walking 100 meters (100 yards)
2 Running or jogging about 1.5 kilometres (1 mile)
3 Sitting for about two hours
4 Getting up from a chair after sitting for long periods
5 Climbing several flights of stairs without resting
6 Climbing one flight of stairs without resting
7 Stooping, kneeling, or crouching
8 Reaching or extending your arms above shoulder level
9 Pulling or pushing large objects like a living room chair
10 Lifting or carrying weights over 10 pounds/5 kilos, like a heavy bag of groceries
11 Picking up a small coin from a table
96 None of these
99 RF

How much did you / your [husband / wife / partner]] [usually] receive from [Incapacity benefit previously named invalidity benefit /Employment and Support Allowance /Severe Disablement Allowance SDA /Statutory sickpay SSP /Attendance Allowance /Disability Living Allowance /Industrial Injuries Disablement Benefit /War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme /Carer’s Allowance.] [last time]?

01 One week
02 Two weeks
03 Three weeks
04 Four weeks
05 Calendar month
07 Two Calendar months
08 Eight times a year
09 Nine times a year
10 Ten times a year
13 Three months / 13 weeks
26 Six months / 26 weeks
52 One Year / 12 months / 52 weeks
90 Less than one week
95 One off / lump sum
96 None of these (EXPLAIN IN A NOTE)
98 DK
99 RF

Which of these health or disability benefits are you personally receiving at the moment?

01 Incapacity Benefit previously Invalidity Benefit
02 Employment and Support Allowance
03 Severe Disablement Allowance SDA
04 Statutory sick pay SSP
05 Attendance Allowance
06 Disability Living Allowance
07 Industrial Injuries Disablement Benefit
08 War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme
09 Carer’s Allowance
95 Some other benefit for people with disabilities (SPECIFY)
96 None of these
98 DK
99 RF

How many different paid helpers in total – have been involved in taking care of you in the last two years? (If all helpers are unpaid relatives or friends code 0)

0-10

Because of a health or memory problem, do you have difficulty doing any of the activities on this card? Again exclude any difficulties you expect to last less than three months. SHOW CARD FL2

1 Dressing, including putting on shoes and socks
2 Walking across a room
3 Bathing or showering
4 Eating, such as cutting up your food
5 Getting in or out of bed
6 Using the toilet, including getting up or down
96 None of these
98 DK
99 RF

Does anyone ever help you with dressing including putting on shoes and socks?

1 Yes
2 No
98 DK
99 RF

Does anyone ever help you with walking across a room?

1 Yes
2 No
98 DK
99 RF

Does anyone ever help you with bathing or showering?

1 Yes
2 No
98 DK
99 RF

Does anyone ever help you with eating?

1 Yes
2 No
98 DK
99 RF

Does anyone ever help you with getting into or out of bed?

1 Yes
2 No
98 DK
99 RF

Does anyone ever help you with using the toilet, including getting on and off to the toilet?

1 Yes
2 No
98 DK
99 RF

Who most often helps you with (getting across a room / dressing / bathing / eating / getting in / out of bed / using the toilet)?

String answer

Is male or female?

1 Male
2 Female

What is that person’s relationship to you?

1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

Does anyone else help you with this activity/these activities?

What is her/his first name?

Is male or female?

What is that person’s relationship to you?

Part 1:
1 Yes
2 No
98 DK
99 RF

Part 2:
Name

Part 3:
1 Male
2 Female

Part 4:
1 Husband
2 Wife
3 Partner/cohabitee
3 Partner/cohabitee
5 Father
4 Mother
28 Stepfather
29 Stepmother
7 Father-in-law
6 Mother-in-law
8 Son (Including adopted and foster)
9 Daughter (Including adopted and foster)
10 Step son
11 Step daughter
12 Son-in-law
13 Daughter-in-law
14 Brother
15 Sister
16 Brother-in-law
17 Sister-in-law
19 Grand-son
18 Grand-daughter
20 Grandfather
21 Grandmother
23 Uncle
22 Aunt
24 Other relative
24 Other relative
25 Non-relative – Neighbour
25 Non-relative – Neighbour
26 Non-relative – Friend
26 Non-relative – Friend
27 Non-relative – other
27 Non-relative – other

Because of a health or memory problem, do you have difficulty doing any of the activities on this card? Again exclude any difficulties you expect to last less than three months.

1 Preparing a hot meal
2 Doing household chores (laundry, cleaning)
3 Shopping for groceries
4 Making telephone calls
5 Taking medications
6 Managing money, such as paying bills and keeping

Does anyone help you with preparing a hot meal?

1 Yes
2 No
98 DK
99 RF

Does anyone help you with doing household chores?

1 Yes
2 No
98 DK
99 RF

Does anyone help you with shopping for groceries?

1 Yes
2 No
98 DK
99 RF

Does anyone help you make phone calls?

1 Yes
2 No
98 DK
99 RF

Does anyone help you take your medications?

1 Yes
2 No
98 DK
99 RF

Does anyone help you with managing your own money?

1 Yes
2 No
98 DK
99 RF

Who most often helps you with (preparing meals/doing household chores/shopping for groceries/making telephone calls/your medications)?

String answer

Because of a physical or mental health problem, do you have difficulty doing any of the activities on this card? SHOW CARD FL1 Exclude any difficulties that you expect to last less than three months.

1 Walking 100 meters (100 yards)
2 Running or jogging about 1.5 kilometres (1 mile)
3 Sitting for about two hours
4 Getting up from a chair after sitting for long periods
5 Climbing several flights of stairs without resting
6 Climbing one flight of stairs without resting
7 Stooping, kneeling, or crouching
8 Reaching or extending your arms above shoulder level
9 Pulling or pushing large objects like a living room chair
10 Lifting or carrying weights over 10 pounds/5 kilos, like a heavy bag of groceries
11 Picking up a small coin from a table
96 None of these
99 RF