Catalogue of Social Care Data

How old was [child name] when they were admitted to care?

Age [numerical value]

Has [child name] ever been in care or a voluntary society?

Yes
No

Part 1:
Can I now check, do you normally live at this address or somewhere else?

Part 2:
Interviewer classify normal address

Part 1:
This address
Somewhere else

Part 2:
Private residence
Hotel/boarding house
Residential hostel
Hostel for homeless/women’s refuge/night shelter
Barracks/room in nursing home
Room (only) at work place
Prison or remand centre
In patient in hospital/home

In the last four weeks, have you or someone you lived with needed help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals) because you (or they) could not manage them alone?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Yes – I needed help
2 Yes – someone I lived with needed help
3 No
-8 Don’t Know
-9 Don’t want to answer

Do you live in a carehome?

1. Yes
2. No
-8. Don’t Know
-9. Don’t want to answer

In the last four weeks, how many hours of help did the person (or people) you live with usually get each week?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Up to 4 hours
2. 5-9 hours
3. 10-19 hours
4. 20-34 hours
5. 35 hours or more
-8. Don’t Know
-9. Don’t want to answer

In the last four weeks, who has provided the person (or people) you live with the help they have needed?

From previous question, help = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Nobody – needs were not met [SINGLE CODE]
2. Me
3. My husband/ wife/ partner
4. Son or daughter or other family member (include even if not blood related)
5. Friend or neighbour
6. Voluntary helper
7. Paid/ professional help
8. Other
-8. Don’t Know
-9. Don’t want to answer

Compared to before the Coronavirus outbreak in March 2020, has the amount of help that the person (or people) you live with now needs changed?

From previous question, help = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Amount of help needed has increased
2. Amount of help needed has decreased
3. Amount of help needed has stayed the same
-8. Don’t Know
-9. Don’t want to answer

In the last four weeks, how many hours of help have you usually received each week?

From previous question, help = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Up to 4 hours
2. 5-9 hours
3. 10-19 hours
4. 20-34 hours
5. 35 hours or more
-8. Don’t Know
-9. Don’t want to answer

In the last four weeks, who has provided you with the help you have needed?

From previous question, help = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Nobody – needs were not met [SINGLE CODE]
2. Husband/ wife/ partner
3. Son or daughter or other family member (include even if not blood related)
4. Friend or neighbour
5. Voluntary helper
6. Paid/ professional help
7. Other
-8. Don’t Know
-9. Don’t want to answer

In the last four weeks, have you or someone you live with needed help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals) because you (or they) could not manage them alone?

1. Yes – I needed help
2. Yes – someone I live with needed help
3. No
-8. Don’t Know
-9. Don’t want to answer

In the last four weeks, how many hours of help did the person you live with usually get each week?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Up to 4 hours
2 5-9 hours
3 10-19 hours
4 20-34 hours
5 35 hours or more
-8 Don’t Know
-9 Don’t want to answer

In the last four week, who has provided the person you live with the help they have needed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Nobody – needs were not met
2 Me
3 My husband/ wife/ partner
4 Son or daughter or other family member (include even if not blood related)
5 Friend or neighbour
6 Voluntary helper
7 Paid/ professional help
8 Other
-8 Don’t Know
-9 Don’t want to answer

Compared to before the Coronavirus outbreak, has the amount of help that the person you live with now needs changed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Amount of help needed has increased
2 Amount of help needed has decreased
3 Amount of help needed has stayed the same
-8 Don’t Know
-9 Don’t want to answer

In the last four weeks, how many hours of help have you usually received each week?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Up to 4 hours
2 5-9 hours
3 10-19 hours
4 20-34 hours
5 35 hours or more
-8 Don’t Know
-9 Don’t want to answer

Compared to before the Coronavirus outbreak, has the amount of help that you now need changed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Amount of help needed has increased
2 Amount of help needed has decreased
3 Amount of help needed has stayed the same
-8 Don’t Know
-9 Don’t want to answer

In the last four weeks, who has provided you with the help you have needed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Nobody – needs were not met
2 Husband/ wife/ partner
3 Son or daughter or other family member (include even if not blood related)
4 Friend or neighbour
5 Voluntary helper
6 Paid/ professional help
7 Other
-8 Don’t Know
-9 Don’t want to answer

Compared to before the Coronavirus outbreak in March 2020, has the amount of help that you now need changed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1. Amount of help needed has increased
2. Amount of help needed has decreased
3. Amount of help needed has stayed the same
-8. Don’t Know
-9. Don’t want to answer

Which of these statements best describes the change in help needed or received? (Post COVID-19 pandemic)

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Needs remain the same, but regular care reduced due to the Coronavirus outbreak
2 New or more care needed but not received
3 New or more care needed and received

In the month before the Coronavirus outbreak in March, who provided the person you live with the help they needed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Nobody – needs were not met
2 Me
3 My husband/ wife/ partner
4 Son or daughter or other family member (include
even if not blood related)
5 Friend or neighbour
6 Voluntary helper
7 Paid/ professional help
8 Other
-8 Don’t Know
-9 Don’t want to answer

Since the Coronavirus outbreak, how many hours of help have you or someone you live with typically received each week?

Who provided this help?

Part 1:
2 0 hours
3 1-4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35 hours or more

Part 2:
Husband/wife/partner/self
Son or daughter or other family member (include even if not blood related)
Friend or neighbour
Voluntary helper
Paid/professional help Other

In the three months before the Coronavirus outbreak, have you (or your partner if you have one) received any of the following?

1 Free school meals
2 Universal credit
3 Pension credit
4 Income support or Job Seeker’s Allowance
5 Working Tax Credit or Child Tax credit
6 Employment and Support Allowance
8 Statutory sick pay
14 Housing benefit
9 Council tax support or reduction
11 Pension credit
12 Carers allowance, Personal independence payments, or Disability Living Allowance
13 No – none of these

Now thinking about the time since the Coronavirus outbreak, have you (or your partner if you have one) made any new claims for the following?

1 Free school meals
2 Universal credit
4 Employment and Support Allowance
5 Statutory sick pay
6 Council tax support or reduction
9 Carers allowance or Personal independence payments
7 New government financial support for self employed people
8 No – none of these

In the month before the Coronavirus outbreak in March, did you or someone you lived with need help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals) because you (or they) could not manage them alone?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Yes – I needed help
2 Yes – someone I lived with needed help
3 No
-8 Don’t Know
-9 Don’t want to answer

In the month before the Coronavirus outbreak in March, who provided you with the help you needed?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Nobody – needs were not met
2 Husband/wife/partner
3 Son or daughter or other family member (include even if not blood related)
4 Friend or neighbour
5 Voluntary helper
6 Paid/professional help
7 Other
-8 Don’t Know
-9 Don’t want to answer

In the month before the Coronavirus outbreak in March, how many hours of help did you usually get each week?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Up to 4 hours
2 5-9 hours
3 10-19 hours
4 20-34 hours
5 35 hours or more
-8 Don’t Know
-9 Don’t want to answer

In the month before the Coronavirus outbreak in March, how many hours of help did the person you live with usually get each week?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Up to 4 hours
2 5-9 hours
3 10-19 hours
4 20-34 hours
5 35 hours or more
-8 Don’t Know
-9 Don’t want to answer

Altogether, how many hours help did you or someone you live with usually get in a week? (Before COVID-19 pandemic)

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Up to 4 hours
4 5-9 hours
5 10-19 hours
6 20-34 hours
7 35 hours or more

Since the Coronavirus outbreak, have you or someone you live with had a change in help needed and/or received?

From previous question help, = help with personal tasks (washing, dressing), or domestic tasks (shopping, providing meals)

1 Yes, there has been a change to the care needed or received
2 No change

Health limits daily activities – climbing stairs

0
No
1
Yes
Missing
-9
Refusal
-8
Don’t know
-1
N/a CM did not report health limiting daily activities

Health limits daily activities – doing housework

0
No
1
Yes
Missing
-9
Refusal
-8
Don’t know
-1
N/a CM did not report health limiting daily activities

Health limits daily activities – dressing yourself

0
No
1
Yes
Missing
-9
Refusal
-8
Don’t know
-1
N/a CM did not report health limiting daily activities

Health limits daily activities – walking for at least 10 minutes

0
No
1
Yes
Missing
-9
Refusal
-8
Don’t know
-1
N/a CM did not report health limiting daily activities

The following items are about activities you might do during a typical day. Does your health limit you in these activities? If so, how much?

Vigorous activities, such as running, lifting heavy objects, participating in strenuous sports
Moderate activities, such as moving a table, pushing a vacuum cleaner, bowling, or playing golf
Lifting or carrying groceries Climbing several flights of stairs Climbing one flight of stairs Bending, kneeling or stooping Walking more than one mile Walking half a mile
Walking 100 yards
Bathing or dressing yourself

Nowadays, do you regularly or frequently do any of the following things for [^your parents/your mother/your father]?

How many hours do you spend doing [^this/these things] for [^your parents/your mother/your father] in a typical week? If you do these things less often than weekly then please [tell me] the average hours per week.

Part 1:
1 Giving [^him/her/them] lifts in your car if you have one
2 Shopping for [^him/her/them]
3 Providing or cooking meals
4 Helping with basic personal needs like dressing, eating or bathing
5 Washing, ironing or cleaning
6 Dealing with personal affairs e.g. paying bills, writing letters
7 Decorating, gardening or house repairs
8 Financial help
9 Any other help

Part 2:
Hours per week.

Nowadays, do you regularly or frequently do any of the following things for [^partner’s name’s parents/mother/father]?

How many hours do you spend doing [^this/these things] for [^partners name’s parents/mother/father] in a typical week? If you do these things less often than weekly then please [tell me] the average hours per week.

Part 1:
1 Giving [^him/her/them] lifts in your car if you have one
2 Shopping for [^him/her/them]
3 Providing or cooking meals
4 Helping with basic personal needs like dressing, eating or bathing
5 Washing, ironing or cleaning
6 Dealing with personal affairs e.g. paying bills, writing letters
7 Decorating, gardening or house repairs
8 Financial help
9 Any other help

Part 2:
Hours per week.

What was the main reason you stopped that period of [full-time/part-time] [employment/ self-employment]?

Fixed term or temporary job ended Made redundant
Voluntary redundancy
Dismissed from a job
Retired
Left job for health reasons
Career break
More money
Better job
Firm closed down / business failed
Left to care for family member
Moved to a different area
Just decided to leave
For some other reason (SPECIFY AT NEXT QUESTION)

Before the Coronavirus outbreak did you or a person you live with usually get help with regular personal tasks (washing, dressing), or domestic tasks (shopping, providing meals) that cannot be managed alone?

Who provided this help?

Part 1:
1 No help received
2 Help received for myself
3 Help received for someone I live with

Part 2:
1 Husband/wife/partner/self
2 Son or daughter or other family member (include even if not blood related)
3 Friend or neighbour
4 Voluntary helper
5 Paid/professional help
6 Other

Number of hours per week spent looking after person(s)

1
0-9 hours per week
2
10-19 hours per week
3
20-34 hours per week
4
35-49 hours per week
5
50-99 hours per week
6
100 or more hours per week
7
It varies
97
Other
Missing
-9
Refused

-8
Don’t know

-7
Other missing

-1
N/a Does not care for anyone who is sick/disabled/elderly

Looks after� other unrelated person

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

Looks after� other relative of spouse / partner

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

Looks after� other relative

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

Looks after� brother / sister

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

Whether Cohort Member looks after sick / disabled person

1
Yes, in household only
2
Yes, outside household only
3
Yes, both in and outside household
4
No
-9
Refusal
-8
Don’t Know

Looks after� client(s) of voluntary organisation

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

Looks after� friend or neighbour

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

Looks after� aunt / uncle

Looks after� grandparent

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

Looks after� parent / parent-in-law

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

Looks after� daughter / son

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

Looks after� spouse / partner

1
Yes
2
No but cares for someone else
3
No but cares for someone else (not specified)
Missing
-9
Refused
-8
Don’t know
-7
other missing
-1
N/a Does not care for anyone who is sick/disabled/elderly

Other state benefit – who received it

Part 1:
CM only
Husband/wife/partner only
Both

Part 2:
1 Attendance Allowance
2 Guardians Allowance
3 Invalid Care Allowance
4 Severe Disablement Allowance
5 Disability Working Allowance
6 DWA – care component
7 DWA – mobility component
8 Incapacity Benefit
9 Industrial Injury Disablement Benefit
10 Widows Pen/ Widowed Mothers Allow
11 Social Fund grant -funeral expenses
12 Social Fund grant – maternity expenses
13 Social Fund grant – community care
14 NI Credits
15 Back to work bonus
16 Christmas bonus
17 Constant attendance allowance
18 Council Tax Benefit Extended Payment
19 Criminal Injuries Compensation
20 Disabled Persons Tax Credit
21 Earnings Top-Up
22 Education Welfare Benefits
23 Employment Rehabilitation Allowance
24 Home Responsibilities Protection
25 Housing Benefit Extended Payment
26 Independent Living (1993) Fund
27 Industrial Death Benefit
28 Reduced Earnings Allowance
29 Retirement Allowance
30 Retirement Pension
31 Vaccine Damage
32 War Disablement Pension
33 War Pensioners Mobility Supplement
34 War Widows Pension
35 Widows Payment
36 Working Families Tax Credit
37 Some other benefit (other)
38 Irrelevant/unspecific response

MC:CMs reasons for not working at moment

1
Can t get day care
2
Waiting to take up a job
3
Can t get job
4
Get more on benefits than in work
5
Childcare cost more than could earn
6
Children too young to leave
7
Can t find suitable/qualified child care
8
Lack of skills, qualifications
9
Partner disapproves
10
Pregnancy/maternity leave
11
Caring for family members
12
Other reason
13
Irrelevant/unspecific response

How much does your condition limit your activities? From this card, please tell me how much difficulty, if any, you have in … READ OUT IN TURN …

1 … washing or dressing yourself?
2 … getting about the house?
3 … doing housework?
4 … getting out of the house on your own?
5 … leading your social life?

Are you not working at present because you have to look after children or other people who need day time care, or is it for some other reason?

1 Yes, reasons include day time care
2 No, other reasons only
8 Don’t know

How old were you when you finally stopped being in care?

AGE IN YEARS

How old were you when you first went into care?

AGE IN YEARS

Were you ever, to your knowledge, “in care” as a child?

NOTE: “in care” of a local authority social services/children’s department or voluntary children’s society. Children can be “in care” but live at home or with relatives.

1 Yes
2 No
8 Not sure

Do you live in a carehome?

1. Yes
2. No
-8. Don’t Know
-9. Don’t want to answer