Generation Scotland (GSSFHS)

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Measures describe a question asked to a participant during a survey or an item of information requested from a manager when they fill out a data return. For example, ‘Who do you live with?’ is a measure and the possible responses might be, mother, father, brother, sister etc.

Need/provision/receipt	Description of measure	Start Year	Age range	Age from	Age to	Informant	Multiple rater	Reporting term	Sweep title	Standard instrument	Question/Data item	Response scale	Dataset
Receipt;	Receipt of care-related benefits	2020	18-100	18	100	Participant	No	Current	COVIDLife Survey 2	No	Which benefits are you or anyone in your household receiving now? Select all that apply	Attendance Allowance Bereavement Allowance Best Start Grant Best Start Foods Blue Badge Carer’s Allowance Child Benefit Child Tax Credit Cold Weather Payment Constant Attendance Allowance Council Tax Benefit Crisis Loans Disability Living Allowance Employment and Support Allowance Free School Meals Guardian’s Allowance Housing Benefit In Work Credit Incapacity Benefit Income Support Industrial Injuries Disablement Benefit Industrial Death Benefit Jobseeker’s Allowance Maternity Allowance Mobility Supplement National Entitlement Card Pension Credit Personal Independence Payment Severe Disablement Allowance State Pension Statutory Adoption Pay Statutory Maternity Pay Statutory Paternity Pay Sick Pay Sure Start Maternity Grant Tax credits Universal Credit War Disablement Pension War Widow’s/Widower’s Pension Widowed Parent’s Allowance Widow’s Pension Winter Fuel Payment Working Tax Credit Other (please specify) Don’t know Prefer not to answer	GSSFHS
Provision;	Looking after dependents post-COVID-19	2020	18-100	18	100	Participant	No	Current	Rural COVIDLife	No	What was your employment status just before the COVID-19 measures were introduced (i.e., January 2020)? If you were doing multiple jobs, please select all that apply.	“Self-employed employing others Self-employed not employing others Paid employee supervising others Paid employee not supervising others In unpaid employment Homemaker Looking after children Looking after other dependents Retired Still in school/studying full-time Unemployed as sick or disabled Unemployed Other Prefer not to answer”	GSSFHS
Provision;	Looking after dependents	2020	18-100	18	100	Participant	No	Current	Rural COVIDLife	No	What is your current employment status? If you are doing multiple jobs, please select all that apply	“Self-employed employing others Self-employed not employing others Paid employee supervising others Paid employee not supervising others In unpaid employment Homemaker Looking after children Looking after other dependents Retired Still in school/studying full-time Unemployed as sick or disabled Unemployed Other Prefer not to answer”	GSSFHS
Receipt;	Receipt of care-related benefits	2020	18-100	18	100	Participant	No	Current	Rural COVIDLife	No	Which benefits were you or anyone in your household receiving before the COVID-19 measures were introduced? Select all that apply	“Attendance Allowance Bereavement Allowance Best Start Grant Best Start Foods Blue Badge Carer’s Allowance Child Benefit Child Tax Credit Cold Weather Payment Constant Attendance Allowance Council Tax Benefit Crisis Loans Disability Living Allowance Employment and Support Allowance Free School Meals Guardian’s Allowance Housing Benefit In Work Credit Incapacity Benefit Income Support Industrial Injuries Disablement Benefit Industrial Death Benefit Jobseeker’s Allowance Maternity Allowance Mobility Supplement National Entitlement Card Pension Credit Personal Independence Payment Severe Disablement Allowance State Pension Statutory Adoption Pay Statutory Maternity Pay Statutory Paternity Pay Sick Pay Sure Start Maternity Grant Tax credits Universal Credit War Disablement Pension War Widow’s/Widower’s Pension Widowed Parent’s Allowance Widow’s Pension Winter Fuel Payment Working Tax Credit Other (please specify) Don’t know Prefer not to answer”	GSSFHS
Receipt;	Living with paid caregivers	2020	18-100	18	100	Participant	No	Current	Rural COVIDLife	No	Who lives in your household with you? Select all that apply	Spouse/partner Child/children Grandchild/grandchildren Parent(s) or parent(s) in law Grandparent(s) or grandparent(s) in law Other family member(s) Paid caregiver(s) Friend(s) or other non family member(s)	GSSFHS
Provision;	Caring responsibilities for household members	2021	12-17	12	17	Participant	No	Current	Teen COVIDLife Survey 3	No	Do you have caring responsibilities for any of the following people who live with you? Select all that apply, or select None of the above	Parent(s) Stepparent(s) Parent’s girlfriend or boyfriend Guardian(s) – for example a foster carer Brother(s) and/or sister(s) Stepbrother(s) and/or stepsister(s) Grandparent(s) Other family member(s) Child/children Friend(s) or other non-family member(s) Prefer not to answer None of the above	GSSFHS
Provision;	Caring responsibilities for household members	2020	12-17	12	17	Participant	No	Current	Teen COVIDLife Survey 2	No	Do you have caring responsibilities for any of the following people who live with you? Select all that apply, or select None of the above	Parent(s) Stepparent(s) Parent’s girlfriend or boyfriend Guardian(s) – for example a foster carer Brother(s) and/or sister(s) Stepbrother(s) and/or stepsister(s) Grandparent(s) Other family member(s) Child/children Friend(s) or other non-family member(s) Prefer not to answer None of the above	GSSFHS
Provision;	Caring responsibilities for household members	2020	12-17	12	17	Participant	No	Current	Teen COVIDLife Survey 1	No	Do you have caring responsibilities for any of the following people who live with you? Select all that apply, or select None of the above	Parent(s) Stepparent(s) Parent’s girlfriend or boyfriend Guardian(s) – for example a foster carer Brother(s) and/or sister(s) Stepbrother(s) and/or stepsister(s) Grandparent(s) Other family member(s) Child/children Friend(s) or other non-family member(s) Prefer not to answer None of the above	GSSFHS
Provision;	Receipt of care-related benefits	2021	18-100	18	100	Participant	No	Current	COVIDLife Survey 3	No	Which benefits are you or anyone in your household receiving now? Select all that apply	Attendance Allowance Bereavement Allowance Best Start Grant Best Start Foods Blue Badge Carer’s Allowance Child Benefit Child Tax Credit Cold Weather Payment Constant Attendance Allowance Council Tax Benefit Crisis Loans Disability Living Allowance Employment and Support Allowance Free School Meals Guardian’s Allowance Housing Benefit In Work Credit Incapacity Benefit Income Support Industrial Injuries Disablement Benefit Industrial Death Benefit Jobseeker’s Allowance Maternity Allowance Mobility Supplement National Entitlement Card Pension Credit Personal Independence Payment Severe Disablement Allowance State Pension Statutory Adoption Pay Statutory Maternity Pay Statutory Paternity Pay Sick Pay Sure Start Maternity Grant Tax credits Universal Credit War Disablement Pension War Widow’s/Widower’s Pension Widowed Parent’s Allowance Widow’s Pension Winter Fuel Payment Working Tax Credit Other (please specify) Don’t know Prefer not to answer	GSSFHS
Provision;	Looking after dependents	2021	18-100	18	100	Participant	No	Current	COVIDLife Survey 3	No	What is your current employment status? If you are doing more than one activity, please choose the activity that you spend most time doing.	Self-employed employing others Self-employed not employing others Paid employee supervising others Paid employee not supervising others In unpaid employment Homemaker Looking after children Looking after other dependents Retired Still in school/studying full-time Unemployed as sick or disabled Unemployed Other Prefer not to answer	GSSFHS
Provision;	Pre-COVID-19 looking after 'dependents'	2020	18-100	18	100	Participant	No	Current	COVIDLife Survey 1	No	What was your employment status just before COVID-19 measures were introduced (i.e., January 2020)?	Self-employed employing others Self-employed not employing others Paid employee supervising others Paid employee not supervising others In unpaid employment Homemaker Looking after children Looking after other dependents Retired Still in school/studying full-time Unemployed as sick or disabled Unemployed Other Prefer not to answer	GSSFHS
Provision;	Looking after dependents	2020	18-100	18	100	Participant	No	Current	COVIDLife Survey 2	No	What is your current employment status? If you are doing more than one activity, please choose the activity that you spend most time doing.	Self-employed employing others Self-employed not employing others Paid employee supervising others Paid employee not supervising others In unpaid employment Homemaker Looking after children Looking after other dependents Retired Still in school/studying full-time Unemployed as sick or disabled Unemployed Other Prefer not to answer	GSSFHS
Provision;	Non-household caring responsibilities post COVID-19	2020	18-100	18	100	Participant	No	Current	COVIDLife Survey 1	No	Have your caring responsibilities for people you do not live with changed since COVID-19 measures have been in place?	Caring responsibilities have increased Caring responsibilities have stayed the same Caring responsibilities have decreased	GSSFHS
Provision;	Non-household caring responsibilities	2020	18-100	18	100	Participant	No	Current	COVIDLife Survey 1	No	Do you have caring responsibilities for any of the following people who do not live with you? Select all that apply, or select None of the above	Children Adults with a physical or learning disability Elderly relatives Other elderly persons Other adults Prefer not to answer None of the above	GSSFHS
Provision;	Caring responsibilities changing from COVID-19 measures	2020	18-100	18	100	Participant	No	Current	COVIDLife Survey 1	No	Have your caring responsibilities for people you live with changed since COVID-19 measures have been in place?	Caring responsibilities have increased Caring responsibilities have stayed the same Caring responsibilities have decreased	GSSFHS
Provision;	Caring responsibilities	2020	18-100	18	100	Participant	No	Current	COVIDLife Survey 1	No	Do you have caring responsibilities for any of the following people who live with you? Select all that apply, or select None of the above	Children Adults with a physical or learning disability Elderly relatives Other elderly persons Other adults Prefer not to answer None of the above	GSSFHS
Receipt;	Receipt of benefits post-COVID-19	2020	18-100	18	100	Participant	No	Current	COVIDLife Survey 1	No	Which benefits are you or anyone in your household receiving now? Select all that apply	Attendance Allowance Bereavement Allowance Best Start Grant Best Start Foods Blue Badge Carer’s Allowance Child Benefit Child Tax Credit Cold Weather Payment Constant Attendance Allowance Council Tax Benefit Crisis Loans Disability Living Allowance Employment and Support Allowance Free School Meals Guardian’s Allowance Housing Benefit In Work Credit Incapacity Benefit Income Support Industrial Injuries Disablement Benefit Industrial Death Benefit Jobseeker’s Allowance Maternity Allowance Mobility Supplement National Entitlement Card Pension Credit Personal Independence Payment Severe Disablement Allowance State Pension Statutory Adoption Pay Statutory Maternity Pay Statutory Paternity Pay Sick Pay Sure Start Maternity Grant Tax credits Universal Credit War Disablement Pension War Widow’s/Widower’s Pension Widowed Parent’s Allowance Widow’s Pension Winter Fuel Payment Working Tax Credit Other (please specify) Don’t know Prefer not to answer	GSSFHS
Receipt;	Receipt of benefits pre-COVID-19	2020	18-100	18	100	Participant	No	Current	COVIDLife Survey 1	No	Which benefits were you or anyone in your household receiving before the COVID-19 measures were introduced (i.e., in January 2020)? Select all that apply	Attendance Allowance Bereavement Allowance Best Start Grant Best Start Foods Blue Badge Carer’s Allowance Child Benefit Child Tax Credit Cold Weather Payment Constant Attendance Allowance Council Tax Benefit Crisis Loans Disability Living Allowance Employment and Support Allowance Free School Meals Guardian’s Allowance Housing Benefit In Work Credit Incapacity Benefit Income Support Industrial Injuries Disablement Benefit Industrial Death Benefit Jobseeker’s Allowance Maternity Allowance Mobility Supplement National Entitlement Card Pension Credit Personal Independence Payment Severe Disablement Allowance State Pension Statutory Adoption Pay Statutory Maternity Pay Statutory Paternity Pay Sick Pay Sure Start Maternity Grant Tax credits Universal Credit War Disablement Pension War Widow’s/Widower’s Pension Widowed Parent’s Allowance Widow’s Pension Winter Fuel Payment Working Tax Credit Other (please specify) Don’t know Prefer not to answer	GSSFHS
Provision;	Post-COVID-19 looking after 'dependents'	2020	18-100	18	100	Participant	No	Current	COVIDLife Survey 1	No	What is your employment status now?	Self-employed employing others Self-employed not employing others Paid employee supervising others Paid employee not supervising others In unpaid employment Homemaker Looking after children Looking after other dependents Retired Still in school/studying full-time Unemployed as sick or disabled Unemployed Other Prefer not to answer	GSSFHS

Aims

GS:SFHS is a family-based genetic epidemiology study with DNA and socio-demographic and clinical data from 24,000 volunteers across Scotland aged 18–98 years. The breadth and depth of phenotype information collected, participants’ mechanisms for linkage of all data to comprehensive routine health-care records, and ‘broad’ consent from participants to use their data and samples for a wide range of research were designed to maximize the power of the resource to identify, replicate or control for genetic factors associated with a wide spectrum of illnesses and risk factors, both now and in the future. It has recently added on a new module called COVIDLife in which quesitons related to COVID-19 were asked to participants over three main sweeps in 2020 and 2021. There are also three young persons' sweeps and a sweep which focuses specifically on rural areas.

Institution

University of Edinburgh

Geographic coverage - Nations

National; Scotland;

Start date

2006

Minimum age at recruitment

Sample Size

23,960

Sample

Study design

Cohort study

Sample details

"Potential participants were identified at random from those aged 18–65 years from the registered patient lists of collaborating general medical practices in the Glasgow and Tayside areas of Scotland, as well as in Ayrshire, Arran and Northeast Scotland. Individuals were invited to participate and also to identify at least one first-degree relative aged at least 18 years who would also participate. Besides recruitment by invitation, volunteers were welcomed if they met the criteria (>18 years, with at least one first-degree relative who could participate). In total, 6,665 of invited participants completed appointments, along with an additional 1,288 individuals who volunteered without invitation, and 16,007 family members, giving a total of 23,960. Although not truly representative, the sample includes a wide range of socio-demographic and clinical features. Compared with the Scottish population, where recent data were available in comparable format, the sample is generally healthier and wealthier, with a different age–sex profile. The cohort size results in large amounts of data on participants from all socio-economic classes, with many or multiple disease traits and identification of intensively matched control subjects."

Sex

All

Sample Characteristics

Household panel survey

Sample size at most recent sweep

9,618

Data Access

https://www.ed.ac.uk/generation-scotland/for-researchers/access

Complementary Data

Genetic/genomic data
Linked administrative data

Genetic Data Collected

Yes

Linked Data

Health data

HDR UK Innovation Gateway

Website

https://www.ed.ac.uk/generation-scotland

Notes

Related Measures

Benefits, Covid-19 data collection, Diet and nutrition, Education, Ethnicity and race, Household composition, Housing, Income/household income, Loneliness and social isolation, Mental health measures, Neighbourhood and community, Parenting and family, Physical health assessment, Sleep problems, Social support, Socioeconomic status and deprivation, Technology - Assistive/Digital, Transport services, Work and employment,

Study Code

GSSFHS

Reference paper(s)

“Smith, BH, Campbell, A, Linksted, P, et al. (2013). Cohort Profile: Generation Scotland: Scottish Family Health Study (GS:SFHS). The study, its participants and their potential for genetic research on health and illness. International Journal of Epidemiology

https://doi.org/10.1093/ije/dys084

Navrady LB, Wolters MK, MacIntyre DJ, et al. (2018). Cohort Profile: Stratifying Resilience and Depression Longitudinally (STRADL): a questionnaire follow-up of Generation Scotland: Scottish Family Health Study International Journal of Epidemiology 47:1.

https://doi.org/10.1093/ije/dyx115

"Smith, BH, Campbell, A, Linksted, P, et al. (2013). Cohort Profile: Generation Scotland: Scottish Family Health Study (GS:SFHS). The study, its participants and their potential for genetic research on health and illness. International Journal of Epidemiology https://doi.org/10.1093/ije/dys084Navrady LB, Wolters MK, MacIntyre DJ, et al. (2018). Cohort Profile: Stratifying Resilience and Depression Longitudinally (STRADL): a questionnaire follow-up of Generation Scotland: Scottish Family Health Study International Journal of Epidemiology 47:1.https://doi.org/10.1093/ije/dyx115

Funders

Scot SFC

Catalogue of Social Care Data

UNITING SOCIAL CARE DATA

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