Cognitive Function and Ageing Study II (CFAS II)

NO ONGOING DATA COLLECTION: Cognitive Function and Ageing Study II (CFAS II) recruitment 2008–11 with 2‑year follow‑up.

Measures describe a question asked to a participant during a survey or an item of information requested from a manager when they fill out a data return. For example, ‘Who do you live with?’ is a measure and the possible responses might be, mother, father, brother, sister etc.

Question/Data item wording	Response scale wording	Need OR provision OR receipt	Description of measure	Start Year	Age of interest	Age from	Age to	Informant	Multiple rater	Reporting term	Sweep title	Standard instrument	Dataset
I’d like to ask you whether you have received various Health or Local Authority Services or any private help in recent weeks. So in the last 4 weeks, have you seen or had a visit from, or to any of the following Services? IN THE LAST FOUR WEEKS Local authority home help or home care assistant? Social worker? Meals on wheels? Any nursing services?	0. No 1. Yes 8. No answer 9 Not asked.	Receipt;	Service	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to put on your shoes and socks or stockings? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL- dressing	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Do you have any difficulty using a telephone i.e. looking up numbers, dialing etc?	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-managing communications	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Do you have any difficulty taking medicine (preparing and taking correct dose)?	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- managing medication	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Do you have any difficulty managing money (paying bills/writing cheques or using an ATM to remove or deposit money)?	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- managing finances	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Do you have difficulty with household tasks such as making yourself a cup of tea?	0. No 1. Yes 2. Impossible 8. No answer 9. Not asked	Need;	IADL- meal preparation	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Have you needed any help recently to check your change after spending small amounts of money	0. No 1. Yes 8. No answer 9. Not asked	Need;	IADL- managing finances	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to get to and use the toilet? (IF YES: Do you have difficulty?)	“0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked”	Need;	ADL-toileting	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Does anyone help you with any of the day-to-day tasks I’ve just asked about?	0. No 1. Yes 8. No answer 9. Not asked	Provision;	Day to day activities	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Who usually helps? Does anyone else help? Does anyone else help? 2NDHelper. Does anyone else help? 3rd Helper	A No-one B Spouse C Daughter D Daughter-in-law E Son F Son-in-law G Brother H Sister J Friend or neighbour K Home help L Care worker M Meals on wheels N Community worker O Community nurse P Warden Q Paid help I Other relative IF A OR S SKIP TO Q559 R Other S Not applicable	Provision;	Day to day activities	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Establish degree of mobility of subject.	1. Usually ambulant non house bound 2. Usually ambulant house bound 3. Chairfast permanently 4. Bedfast permanently 7. Unable to establish mobility	Need;	ADL-(all)	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Establish a degree of mobility	1. Usually ambulant non house bound 2. Usually ambulant house bound 3. Chairfast permanently 4. Bedfast permanently 7. Unable to establish mobility	Need;	ADL-(all)	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Who usually helps? Does anyone else help? Does anyone else help? 2NDHelper. Does anyone else help? 3rd Helper	A No-one B Spouse C Daughter D Daughter-in-law E Son F Son-in-law G Brother H Sister J Friend or neighbour K Home help L Care worker M Meals on wheels N Community worker O Community nurse P Warden Q Paid help I Other relative IF A OR S SKIP TO Q559 R Other S Not applicable	Provision;	Day to day activities	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Received various Health or Local Authority Services or any private help in recent weeks So in the last 4 weeks, have you seen or had a visit from, or to any of the following Services? IN THE LAST FOUR WEEKS: Local authority home help or home care assistant? Social worker? Meals on wheels? Any nursing services?	0. No 1. Yes 8. No answer 9. Not asked	Provision;	Service usage	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Current accomodation	“1. House/Flat 2. Granny Flat 3. Warden Controlled Flat 4. Council Residential Home 5. Private Residential Home 6. Private/Charity Nursing Home 7. Long Stay Hospital 8. Not established”	Receipt;	Accomodation	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Is the subject living in an instiution?	0. No/uncertain 1. Yes	Receipt;	Accomodation	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Have you moved since we last saw you?	0. No 1. Yes 7. Don’t know 8. No answer 9. Not asked	Receipt;	Accomodation	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
IF YES moved from:	1. House/Flat 2. Granny Flat 3. Warden Controlled Flat 4. Council Residential Home 5. Private Residential Home 6. Private/Charity Nursing Home 7. Long Stay Hospital 8. Not established	Receipt;	Accomodation	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Do you have a tendency to fall?	0. No or rarely 1. More than once per week 8. No answer 9. Not asked	Need;	ADL- transferring	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Do you take part in sports or activities that are mildly energetic? Specify which activity then ask how often R takes part in the activity. IF RATED NO SKIP TO Q378	0. No 1. Yes	Need;	IADL	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
In the past 2 yearshave you had any difficulty in starting to move (e.g. starting to walk or getting out of a chair)?	0. No 1. Yes 8. No answer 9. Not asked	Need;	ADL-walking/transferring	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to cut your own toenails? (IF YES: Do you have difficulty cutting your own toenails?	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL- grooming	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to wash all over or bathe? (IF YES: Do you have difficulty washing all over or bathing?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL-bathing	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to get on a bus? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-managing transportation	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to go up and down stairs? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL- transferring	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to do the light housework? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL - light housework	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to do the heavy housework? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL - heavy housework	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to shop and carry heavy bags? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- shopping	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to prepare and cook a hot meal? (IF YES: Do you have difficulty?	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-preparing/cooking meals	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Are you able to reach an overhead shelf? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-home maintenance	2009	67-87	67	87	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Does anyone help with you with any of the day ot day tasks I’ve just asked about?	0. No 1. Yes 8. No answer 9. Not asked	Provision;	Day to day activities	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Are you able to go up and down stairs? (IF YES: Do you have difficulty?)	“0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked “	Need;	ADL- transferring	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Who funds your accommodation within the Nursing Home?	1. Self funded 2. Social Services Funded 3. Health Services Funded	Receipt;	Accomodation	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
IS THE SUBJECT LIVING IN AN INSTITUTION? Residential homes, nursing homes and long stay hospitals count as institutions; a day hospital or sheltered accommodation does not.	0. No/uncertain 1. Yes	Receipt;	Accomodation	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Do you have a tendency to fall?	0. No or rarely 1. More than once per month 8. No answer 9. Not asked	Need;	ADL- transferring	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Have you had any difficulty in starting to move (e.g. starting to walk or getting out of a chair)?	0. No 1. Yes 8. No answer 9. Not asked	Need;	ADL-moving	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
I would like to know if you are able, or if you have any difficulty with the following activities: Are you able to cut your own toenails? (IF YES: Do you have difficulty cutting your own toenails?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL- grooming	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Are you able to wash all over or bathe? (IF YES: Do you have difficulty washing all over or bathing?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL-bathing	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Are you able to get on a bus? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-managing transportation	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Are you able to do the light housework? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL - light housework	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Are you able to do the heavy housework? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL - heavy housework	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Are you able to prepare and cook a hot meal? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- meal preparation	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Are you able to get to and use the toilet? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL-toileting	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Have you needed any help recently to check your change after spending small amounts of money?	0. No 1. Yes 8. No answer 9. Not asked	Need;	IADL- managing finances	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Do you have difficulty with household tasks such as making yourself a cup of tea?	0. No 1. Yes 2. Impossible 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-home maintenance	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Do you have any difficulty managing money (paying bills/writing cheques or using an ATM to remove or deposit money)?	0. needs help 1. some difficulty 2. no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- managing finances	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Do you have any difficulty taking medicine (preparing and taking correct dose)?	0. needs help 1. some difficulty 2. no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- managing medication	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Do you have any difficulty using a telephone i.e. looking up numbers, dialing etc…	0. needs help 1. some difficulty 2. no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL - mananging communications	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Are you able to put on your shoes or stockings? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL- dressing	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Are you able to reach an overhead shelf? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-home maintenance	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Are you able to shop and carry hevay bags (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- shopping	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Type of accommodation within the Nursing Home.	1. Residential 2. Nursing 3. EMI 4. Not established.	Receipt;	Accomodation	2007	65-85	65	85	Participant		Current	CFAS II Wave 1	No	CFAS_II
Current accommodation	1. House/Flat 2. Granny Flat 3. Warden Controlled Flat 4. Council Residential Home 5. Private Residential Home 6. Private/Charity Nursing Home 7. Long Stay Hospital 8. Not established	Receipt;	Current accomodation	2007	65-85	65	85	Participant	No	Current	CFAS II Wave 1	No	CFAS_II
Current accommodation	1. House/Flat 2. Granny Flat 3. Warden Controlled Flat 4. Council Residential Home 5. Private Residential Home 6. Private/Charity Nursing Home 7. Long Stay Hospital 8. Not established	Receipt;	Accomodation	2010	65-84	65	84	Participant	No	Current	CFAS II Wave 2	No	CFAS_II
Is there anyone who is frail or unwell and needs your help with day to day tasks. Is your help required due to	Part 1: 0. No 1. Yes 8. Don’t know 9. Not asked Part 2: 1. Mental frailty 2. Physical frailty 3. Both.	Provision;	Accomodation	2010	65-84	65	84	Participant	No	Current	CFAS II Wave 7	No	CFAS_II
Have you moved since we last saw you? MOVED FROM.. Specify if move suggests more or less dependency (within same housing category), e.g. moving in with children ANY OTHER INFORMATION	Part 1: 0. No 1. Yes 7. Don’t know 8. No answer 9. Not asked Part 2: 1. House/flat/granny flat 2. Warden controlled flat 3. Council residential home 4. Private residential home 5. Private/charity nursing home 6. Long stay hospital. 7. Not established (specify at Q13 Part 3: (Textual Answer)	Receipt;	Accomodation	2010	65-84	65	84	Participant	No	Current	CFAS II Wave 6	No	CFAS_II
IS THE SUBJECT LIVING IN AN INSTITUTION? Residential homes, nursing homes and long stay hospitals count as institutions; a day hospital or sheltered accommodation does not.	0. No/uncertain 1. Yes	Receipt;	Accomodation	2010	65-84	65	84	Participant	No	Current	CFAS II Wave 5	No	CFAS_II
Who funds your accommodation within the Nursing Home?	1. Self funded 2. Social Services Funded 3. Health Services Funded	Receipt;	Accomodation	2010	65-84	65	84	Participant	No	Current	CFAS II Wave 4	No	CFAS_II
Type of accommodation within the Nursing Home.	1. Residential 2. Nursing 3. EMI 4. Not established.	Receipt;	Accomodation	2010	65-84	65	84	Participant	No	Current	CFAS II Wave 3	No	CFAS_II

England

Aims

Since the baseline of MRC CFAS there has been an increase in life expectancy, changes in major chronic disease and potentially advances in symptomatic treatments for Alzheimer’s disease and other dementias. CFAS II builds upon the design and infrastructure of MRC to investigate the implications of changes in morbidity and frailty on health itself, as well as the use of services and expenditure in health and social care on future. It also provides important baseline information on older people aged 65-84 in 2008-2011 who will reach the age of greatest frailty during the 2020’s, when the peak in the number of people aged 85 or over is expected and at a time when major therapeutic interventions for dementia could be expected to have an effect.

Institution

Department of Public Health and Primary Care, University of Cambridge

Geographic coverage - Nations

East Cambridgeshire; Fenland; Newcastle upon Tyne; Nottingham;

Start date

2008

Minimum age at recruitment

Sample Size

5,288

Sample

Study design

Cohort study

Sample details

Building on the design and infrastructure of the initial (MRC CFAS) study, new cohorts were recruited. A population based sample of 2,500 individuals born before 1942 from each centre were drawn from general practice records, sampling 1,250 individuals from each of the age groups 65-74 and 75 years and over.

Sex

All

Sample Characteristics

Older adults cohort

Sample size at most recent sweep

5,288 (Wave 2)

Individual data available (e.g. upon special request)?

Yes

Data Access Level

Fully open source

Data Access

Data request

http://www.cfas.ac.uk/cfas-ii/cfasii-data/

Regional variable present?

Yes

Local Authority variable present?

No

Complementary Data

Genetic/genomic data

Genetic Data Collected

Yes

Linked Data

HDR UK Innovation Gateway

Website

cfas.ac.uk

Notes

Related Measures

Benefits, Biomarkers, Cognitive decline, Cognitive measures, Covid-19 data collection, Diet and nutrition, Education, Ethnicity and race, Faith/religion, Household composition, Housing, Income/household income, Language and literacy, Loneliness and social isolation, Mental health measures, Migration and immigration, Neighbourhood and community, Parenting and family, Pensions, Physical health assessment, Political and social attitudes, Pollution, Quality of life/wellbeing, Sexuality and gender identity, Sleep problems, Social security, Social support, Socioeconomic status and deprivation, Technology - Assistive/Digital, Transport services, Wealth (non-housing), Work and employment,

Study Code

CFAS_II

Reference paper(s)

Matthews, FE, Stephan, M, Robinson, L et al. (2016) A two decade dementia incidence comparison from
the Cognitive Function and Ageing Studies I and II, Nature Communications, 7.

doi.org/10.1038/ncomms11398

Funders

MRC AlzhSoc

Catalogue of Social Care Data

UNITING SOCIAL CARE DATA