Cognitive Function and Ageing Study Wales (CFAS Wales)

NO ONGOING DATA COLLECTION: Cognitive Function and Ageing Study Wales (CFAS Wales) conducted a baseline 2011–13 with a follow‑up to 2015 but is not ongoing now.

Measures describe a question asked to a participant during a survey or an item of information requested from a manager when they fill out a data return. For example, ‘Who do you live with?’ is a measure and the possible responses might be, mother, father, brother, sister etc.

Question/Data item wording	Response scale wording	Need OR provision OR receipt	Description of measure	Start Year	Age of interest	Age from	Age to	Informant	Multiple rater	Reporting term	Sweep title	Standard instrument	Dataset
I’d like to ask you whether you have received various Health or Local Authority Services or any private help in recent weeks. So in the last 4 weeks, have you seen or had a visit from, or to any of the following Services? IN THE LAST FOUR WEEKS Local authority home help or home care assistant? Social worker? Meals on wheels? Any nursing services?	0. No 1. Yes 8. No answer 9 Not asked.	Receipt;	Service	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to get on a bus? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-managing transportation	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to go up and down stairs? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL- transferring	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to do the light housework? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-home maintenance	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to do the heavy housework? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-home maintenance	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to shop and carry heavy bags? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- shopping	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to prepare and cook a hot meal? (IF YES: Do you have difficulty?	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- meal preparation	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to reach an overhead shelf? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-home maintenance	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to put on your shoes and socks or stockings? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL- dressing	2011	67-86	67	86	Participant	no	Current	Wave 2	No	CFAS Wales
Do you have any difficulty using a telephone i.e. looking up numbers, dialing etc?	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-managing communications	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Do you have any difficulty taking medicine (preparing and taking correct dose)?	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- managing medication	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Do you have any difficulty managing money (paying bills/writing cheques or using an ATM to remove or deposit money)?	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- managing finances	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Do you have difficulty with household tasks such as making yourself a cup of tea?	0. No 1. Yes 2. Impossible 8. No answer 9. Not asked	Need;	IADL- meal preparation	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Have you needed any help recently to check your change after spending small amounts of money	0. No 1. Yes 8. No answer 9. Not asked	Need;	IADL- managing finances	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to get to and use the toilet? (IF YES: Do you have difficulty?)	“0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked”	Need;	ADL-toileting	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Does anyone help you with any of the day-to-day tasks I’ve just asked about?	0. No 1. Yes 8. No answer 9. Not asked	Provision;	Day to day activities	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Who usually helps? Does anyone else help? Does anyone else help? 2NDHelper. Does anyone else help? 3rd Helper	A No-one B Spouse C Daughter D Daughter-in-law E Son F Son-in-law G Brother H Sister J Friend or neighbour K Home help L Care worker M Meals on wheels N Community worker O Community nurse P Warden Q Paid help I Other relative IF A OR S SKIP TO Q559 R Other S Not applicable	Provision;	Day to day activities	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Establish degree of mobility of subject.	1. Usually ambulant non house bound 2. Usually ambulant house bound 3. Chairfast permanently 4. Bedfast permanently 7. Unable to establish mobility	Need;	ADL-(all)	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Current accomodation	“1. House/Flat 2. Granny Flat 3. Warden Controlled Flat 4. Council Residential Home 5. Private Residential Home 6. Private/Charity Nursing Home 7. Long Stay Hospital 8. Not established”	Receipt;	Accomodation	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to wash all over or bathe? (IF YES: Do you have difficulty washing all over or bathing?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL-bathing	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Are you able to cut your own toenails? (IF YES: Do you have difficulty cutting your own toenails?	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL- grooming	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
In the past 2 yearshave you had any difficulty in starting to move (e.g. starting to walk or getting out of a chair)?	0. No 1. Yes 8. No answer 9. Not asked	Need;	ADL-walking/transferring	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Do you have a tendency to fall?	0. No or rarely 1. More than once per week 8. No answer 9. Not asked	Need;	ADL- transferring	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
IF YES moved from:	1. House/Flat 2. Granny Flat 3. Warden Controlled Flat 4. Council Residential Home 5. Private Residential Home 6. Private/Charity Nursing Home 7. Long Stay Hospital 8. Not established	Receipt;	Accomodation	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Have you moved since we last saw you?	0. No 1. Yes 7. Don’t know 8. No answer 9. Not asked	Receipt;	Accomodation	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Is the subject living in an instiution?	“0. No/uncertain 1. Yes”	Receipt;	Accomodation	2011	67-86	67	86	Participant	No	Current	Wave 2	No	CFAS Wales
Received various Health or Local Authority Services or any private help in recent weeks So in the last 4 weeks, have you seen or had a visit from, or to any of the following Services? IN THE LAST FOUR WEEKS: Local authority home help or home care assistant? Social worker? Meals on wheels? Any nursing services?	0. No 1. Yes 8. No answer 9. Not asked	Provision;	Service usage	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Are you able to reach an overhead shelf? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-home maintenance	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Are you able to put on your shoes or stockings? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL- dressing	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Do you have any difficulty using a telephone i.e. looking up numbers, dialing etc…	0. needs help 1. some difficulty 2. no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL - mananging communications	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Do you have any difficulty taking medicine (preparing and taking correct dose)?	0. needs help 1. some difficulty 2. no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-medication	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Do you have any difficulty managing money (paying bills/writing cheques or using an ATM to remove or deposit money)?	0. needs help 1. some difficulty 2. no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- managing finances	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Do you have difficulty with household tasks such as making yourself a cup of tea?	0. No 1. Yes 2. Impossible 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- meal preparation	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Have you needed any help recently to check your change after spending small amounts of money?	0. No 1. Yes 8. No answer 9. Not asked	Need;	IADL- managing finances	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Are you able to get to and use the toilet? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL-toileting	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Does anyone help with you with any of the day ot day tasks I’ve just asked about?	0. No 1. Yes 8. No answer 9. Not asked	Provision;	Day to day activities	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Who usually helps? Does anyone else help? Does anyone else help? 2NDHelper. Does anyone else help? 3rd Helper	A No-one B Spouse C Daughter D Daughter-in-law E Son F Son-in-law G Brother H Sister J Friend or neighbour K Home help L Care worker M Meals on wheels N Community worker O Community nurse P Warden Q Paid help I Other relative IF A OR S SKIP TO Q559 R Other S Not applicable	Provision;	Day to day activities	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Establish a degree of mobility	1. Usually ambulant non house bound 2. Usually ambulant house bound 3. Chairfast permanently 4. Bedfast permanently 7. Unable to establish mobility	Need;	ADL-(all)	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Type of accommodation within the Nursing Home.	1. Residential 2. Nursing 3. EMI 4. Not established	Receipt;	Accomodation	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Current accommodation	1. House/ Flat 2. Granny Flat 3. Warden Controlled Flat 4. Council Residential Home 5. Private Residential Home 6. Private/Charity Nursing Home 7. Long Stay Hospital 8. Not established	Receipt;	Accomodation	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Who funds your accommodation within the Nursing Home?	1. Self-Funded 2. Social Services Funded 3. Health Services Funded	Receipt;	Accomodation	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Is the subject living in an institution?	0. No/uncertain 1. Yes	Receipt;	Accomodation	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Do you have a tendency to fall?	0. No or rarely 1. More than once per month 8. No answer 9. Not asked	Need;	Cerebrovascular Function (ADL) * ask	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Have you had any difficulty in starting to move (e.g. starting to walk to getting out of a chair?	0. No 1. Yes 8. No answer 9. Not asked	Need;	ADL-moving	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
I would like to know if you are able, or if you have any difficulty with the following activities: Are you able to cut your own toenails? (IF YES: Do you have difficulty cutting your own toenails?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-grooming	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Are you able to wash all over or bathe? (IF YES: Do you have difficulty washing all over or bathing?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL-bathing	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Are you able to get on a bus? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-managing transportation	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Are you able to go up and down stairs? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	ADL- transferring	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Are you able to do the light housework? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer	Need;	IADL - light housework	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Are you able to do the heavy housework? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL - heavy housework	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Are you able to shop and carry hevay bags (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL- shopping	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales
Are you able to prepare and cook a hot meal? (IF YES: Do you have difficulty?)	0. (No), needs help 1. (Yes), some difficulty 2. (Yes), no difficulty 7. Don’t know 8. No answer 9. Not asked	Need;	IADL-cooking	2010	65-84	65	84	Participant	No	Current	Wave 1	No	CFAS Wales

Wales

Aims

CFAS Wales is a longitudinal study looking at health and cognitive function in older people living in Wales. The study builds on the design and infrastructure of the Cognitive Function and Ageing Study collaboration (CFAS) exploring biomarkers and other early indications of risk of cognitive decline, such as imaging. It also investigates factors that may delay the onset of dementia, specifically focusing on the role of bilingualism and social networks and allow a more in-depth examination of rural-urban variations, which have been markedly unexplained in previous studies.

Institution

Department of Public Health and Primary Care, University of Cambridge

Geographic coverage - Nations

Wales;

Start date

2011

Minimum age at recruitment

Sample Size

2,197

Sample

Study design

Cohort study

Sample details

A population based sample from each site, born before 1944 were drawn from general practice records, with 50% of the individuals being from each of the age groups 65-74 and 75 years and over. Individuals ascertained from GP records received a letter from the GP followed by personal approach by interviewers.

Sex

All

Sample Characteristics

Ageing
Older adults cohort

Sample size at most recent sweep

2,197 (1,498 at Wave 2)

Individual data available (e.g. upon special request)?

Yes

Data Access Level

Fully open source

Data Access

Bangor University CFAS Wales site

http://cfaswales.bangor.ac.uk/data.php.en

CFAS Wales Cohort – DPUK Data Portal

https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=CFAS%20Wales

Regional variable present?

Yes

Local Authority variable present?

No

Complementary Data

Genetic/genomic data

Genetic Data Collected

Yes

Linked Data

HDR UK Innovation Gateway

Website

http://cfaswales.bangor.ac.uk/index.php.en

Notes

Related Measures

Cognitive decline, Cognitive measures, Diet and nutrition, Education, Ethnicity and race, Household composition, Housing, Language and literacy, Loneliness and social isolation, Mental health measures, Parenting and family, Physical health assessment, Political and social attitudes, Quality of life/wellbeing, Sleep problems, Social support, Work and employment,

Study Code

CFAS Wales

Reference paper(s)

Evans, IEM, Llewellyn, DJ, Matthews, FE et al. (2019) Living alone and cognitive function in later life, Archives of Gerontology and Geriatrics, 81, 222-223.

https://pubmed.ncbi.nlm.nih.gov/30654180/

Funders

ESRC HECFW

Catalogue of Social Care Data

UNITING SOCIAL CARE DATA