Catalogue of Social Care Data

How many hours did you spend helping the [^person/people aged 65 or over] in the last week?_x000D_

No help in the last week
Less than one hour
1-4 hours
5-9 hours
10-19 hours
20-34 hours
35-49 hours
50-99 hours
100 hours or more

If [^you/name] wanted a break for a few hours (during the time you would usually look after the [^person aged 0-15 people aged 0-15 person aged 16-64 people aged 16-64 person aged 65 or over people aged 65 or over] would someone else have to look after him/her?

Yes, someone else needed
No

Is there anyone whom you could rely on to look after him/her either at home or elsewhere?_x000D_

Yes
No

In the last year have you made use of any of the following in order to give you a break?

A sitting service to allow you to go out for a couple of hours
A befriending service – where a volunteer takes the person you care for out for the day
Day-care at a social day centre or hospital
In-home respite where a care worker comes to the home for a few hours
Overnight respite where the person you care for stays elsewhere
Overnight respite where a care worker comes and stays in the home
None of these_x000D_

How often do you use any of these services that involves daytime respite…

at least once a week,
once or twice a month,
6-11 times a year,
1-5 times a year,
5 or less than once a year?

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

Strongly agree
Agree
Disagree
Strongly disagree_x000D_

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others. (Would you say that you strongly agree, agree, disagree, or strongly disagree?)

Strongly agree
Agree
Disagree
Strongly disagree

INTERVIEWER: Enter the amount. Round to the nearest pound.[^BLANK / If don’t know amount because received with other benefits, enter total amount received here. Enter 9997 if amount already counted elsewhere.]_x000D_

Range: 0..9997

There is a lot of government interest currently in the issue of financing social care and nursing homes.
To help us understand this issue better it is important to understand whether people
are expecting to pay for any future long-term care. We would like to ask you some questions about your expectations regarding future long-term care.
What are the chances that you will ever move to a nursing home?
INTERVIEWER: NURSING HOMES ARE INSTITUTIONS PRIMARILY FOR PEOPLE WHO NEED CONSTANT NURSE SUPERVISION OR ARE UNABLE TO LIVE
INDEPENDENTLY. NURSING SUPERVISION MUST BE PROVIDED ON A CONTINUOUS BASIS FOR AN INSTITUTION TO QUALIFY AS A NURSING HOME. PROBE FOR ANSWER, ASK RESPONDENT TO IGNORE WHETHER THEY
ACTUALLY WANT TO OR ARE PLANNING TO MOVE TO A NURSING HOME.

Range: 0..100

What are the chances that you will ever need long term care at home which is not provided by family or friends?
INTERVIEWER: LONG TERM CARE AT HOME INCLUDES CARE WITH PERSONAL OR DOMESTIC TASKS PROVIDED IN SOMEONE’S OWN HOME OR CARE PROVIDED AT A DAY CENTRE WHILE THEY ARE LIVING IN THEIR OWN HOME. PROBE FOR ANSWER, ASK RESPONDENT TO IGNORE WHETHER THEY ACTUALLY WANT TO OR ARE PLANNING TO RECEIVE LONG TERM CARE AT HOME._x000D_

Range: 0..100_x000D_

And what are the chances that you will ever have to pay for long term care, either in a nursing home or care received at home?
INTERVIEWER: PROBE FOR ANSWER, ASK RESPONDENT TO IGNORE WHETHER THEY ACTUALLY WANT TO OR ARE PLANNING TO PAY FOR LONG TERM CARE

Range: 0..100

What are the chances that you will move to a nursing home in the next five years?
INTERVIEWER: NURSING HOMES ARE INSTITUTIONS PRIMARILY FOR PEOPLE WHO NEED CONSTANT NURSE SUPERVISION OR ARE UNABLE TO LIVE INDEPENDENTLY. NURSING SUPERVISION MUST BE PROVIDED ON A CONTINUOUS BASIS FOR AN INSTITUTION TO QUALIFY AS A NURSING HOME.
Probe for answer, ask respondent to ignore whether they actually want to or are planning to move to a nursing home.

Range: 0..100

What are the chances that you will need long term care at home which is not provided by family or friends in the next five years?
INTERVIEWER: LONG TERM CARE AT HOME INCLUDES CARE WITH PERSONAL OR DOMESTIC TASKS PROVIDED IN SOMEONE’S OWN HOME OR CARE PROVIDED AT A DAY CENTRE WHILE THEY ARE LIVING IN THEIR OWN HOME. PROBE FOR ANSWER, ASK RESPONDENT TO IGNORE WHETHER THEY ACTUALLY WANT TO OR ARE PLANNING TO RECEIVE LONG TERM CARE AT HOME.

Range: 0..100

What are the chances that you will have to pay for long term care, either in a nursing home or care received at home, in the next 5 years?
PROBE FOR ANSWER, ASK RESPONDENT TO IGNORE WHETHER THEY ACTUALLY WANT TO OR ARE PLANNING TO PAY FOR LONG TERM CARE.

Range: 0..100

I’d now like you to think about any social care needs you yourself may have in the future. Have you thought about how to pay for your care and support needs?
INTERVIEWER: IF ASKED: You don’t have to have done anything about it yet, we’re interested in whether you’ve thought about it or not.

I’ve thought about it in great detail
I’ve thought about it a little
I know I should have thought about it but haven’t done so yet
I haven’t thought about this at all yet

Have you done any of the things on this card to plan for your care needs?
INTERVIEWER: CODE ALL THAT APPLY

Taken out insurance, (e.g. to cover illness or inability to work)
Consulted a financial advisor
Started saving with the intention that it could be used for care
Bought property with the intention of using the money for care
Any other financial planning related to planning for care costs
None of these

If you needed care and support which could not be provided by family or friends, how would your care be paid for. This could be care in your own home or in a residential or nursing home?
CODE ALL THAT APPLY

Local authority (social services)
NHS
Charity/religious organisation (e.g. Age UK)
Insurance policy (e.g. to cover illness or inability to work)
Private health insurance/health plan
Benefits (e.g. disability living allowance, personal independence payments)
Your own income from work, pensions or interest on investments
Your own savings
Sale of your assets (e.g. your home)
Relatives or friends
Other
SPONTANEOUS: None of these

Thinking of your current and future care and support needs, how will your care be paid for. This could be care in your own home or in a residential or nursing home?INTERVIEWER: IF ASKED: Please think about care which is not provided by family and friends. CODE ALL THAT APPLY

Local authority (social services)
NHS
Charity/religious organisation (e.g. Age UK)
Insurance policy (e.g. to cover illness or inability to work)
Private health insurance/health plan
Benefits (e.g. disability living allowance, personal independence payments)
Your own income from work, pensions or interest on investments
Your own savings
Sale of your assets (e.g. your home)
Relatives or friends
Other
SPONTANEOUS: None of these

Did you look after anyone in the past week. This could be your partner or other people in your household or someone in another household?

Yes
No

What relation is this person [participant cared for] or people to you?

Spouse or partner
Child
Grandchild
Parent
Parent in law
Other relative
Friend or neighbour
Other

How many [^people[idx]] did you look after in the past week?

Computed: Total number of people looked after in the past week 0..99

[^Does the person / Do any of the people] you care for live with you?

Yes
No

May I check, is there anyone (living with you /not living with you) who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity (for example, a sick or disabled (or elderly) relative/husband/wife/child/friend/parent, etc)?

Yes
No

How many people do you provide this kind of help and support to?

Range: 0..20

How old [^is this person/are these people] who you provide this type of help to?

Aged 0-15 years
Aged 16-64 years
Aged 65 and over

How many hours did you spend helping the [^person/people aged 0 to 15] in the last week?

No help in the last week
Less than one hour
1-4 hours
5-9 hours
10-19 hours
20-34 hours
35-49 hours
50-99 hours
100 hours or more

How many hours did you spend helping the [^person/people aged 16 to 64] in the last week?

No help in the last week
Less than one hour
1-4 hours
5-9 hours
10-19 hours
20-34 hours
35-49 hours
50-99 hours
100 hours or more

How long did you have to wait between first trying to get personal care and receiving care?

Less than 2 weeks
From 2 weeks to 6 months
Over 6 months

In the last month [^have/has] [^you/[^name]]… READ OUT …

Attended a lunch club
Attended a day care centre
Had meals on wheels
Had private frozen meals from a provider such as Wiltshire farm foods
Had family, friend or neighbour bring [^you/him/her] ready prepared meals
None of these_x000D_

How often [^do/does] [^you/[^Name]] attend a lunch club?

Every day or nearly every day
Two or three times a week
Once a week
Two or three times a month
Once a month or less_x000D_

How often [^do/does] [^you/[^Name]] attend a day care centre?

Every day or nearly every day
Two or three times a week
Once a week
Two or three times a month
Once a month or less

Each time that [^you//[^Name]] [^have/has] attended the day centre, including attending classes or groups run by the day centre in the last month about how many hours did [^you/he/she] usually spend there? Was it…READ OUT…_x000D_

1-3 hours
4-6 hours, or
more than 6 hours

How often [^do/does] [^you/[^Name]] eat a meal provided by Meals on Wheels?

Every day or nearly every day
Two or three times a week
Once a week
Two or three times a month
Once a month or less

In the last three months, [^have/has] [^you/[^Name]] used or received the Local Authority/council’s Handy man’s service This is usually a free service sometimes arranged through Age Concern or Help the Aged.

Yes
No

[^Do you / Does [^name]] use any of these?

A cane or walking stick
A zimmer frame or walker
A manual wheelchair
An electric wheelchair
A buggy or scooter
Special eating utensils
A personal alarm
Elbow crutches
None of these

You mentioned that [^you/name] [^have/has] the aids listed below: cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches >]. Can I check, did [^you/he/she] get any of these aids since [^]?

Yes
No

Can I check, did [^you/name] get [^this/these] [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches] since [^] INTERVIEWER: Please include any replacements.

Yes
No

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?

INTERVIEWER: Read out each in turn and code all that apply.
Health Service (NHS)
Social Services
[^You/Name] or [^your/his/her spouse/partner]
95 or someone else (please specify)?

Can I just check that [^the NHS/Social Services/ you/ your spouse or partner] covered all the costs of the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?

Yes covered all costs
No

Did [^you/[^Name]] do any of these activities during the last month, that is since [^date one month ago]?

Paid work
Self-employment
Voluntary work
Cared for someone
Looked after home or family
Attended a formal educational or training course
None of these_x000D_

What were [^your/[^name]’s] reasons for stopping working?

Own ill health or disability
Working was too tiring/stressful
Ill health or disability of a relative/friend
Company went out of business/site closed down
Made redundant/dismissed/had no choice
Took voluntary redundancy
Could not find another job
Could afford to stop working
To spend more time with partner/family
To enjoy life while still fit and young enough
Fed up with working and wanted a change
To stop working at same time as husband/wife/partner
To give young generation a chance
Moved to a different area
To protect my own health/health of my partner
Other reason

What were [^your/name’s] reasons for taking early retirement?

Own ill health
Ill health of a relative/friend
Made redundant/dismissed/had no choice
Offered reasonable financial terms to retire early or take voluntary redundancy
Could not find another job
To spend more time with partner/ family
To enjoy life while still young and fit enough
Fed up with job and wanted a change
To retire at the same time as husband/wife/partner
To retire at a different time to husband/wife/partner
To give the young generation a chance
To protect own health/health of partner
Other (specify)
None of these
Spontaneous: does not consider has retired early

Which of these health or disability benefits [^are you / is [^name]] receiving at the moment?
PROBE: What others?
CODE ALL THAT APPLY

IF respondent asks about Disabled Persons Tax Credit or Disability Working
Allowance, explain that this benefit was abolished in April 2003 and became part of the Working Tax Credit.
Incapacity Benefit previously Invalidity Benefit
Employment and Support Allowance
Severe Disablement Allowance SDA
Statutory Sick Pay SSP
Attendance Allowance
Personal Independence Payment (including the car allowance known as Motability)
Disability Living Allowance
Industrial Injuries Disablement Benefit
War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme
Carer’s Allowance
Some other benefit for people with disabilities (SPECIFY)
None of these

How much did [^you / [^name] / [^your / [^name’s]] [^husband / wife / partner]] [^BLANK / usually] receive from [^Incapacity benefit previously named invalidity benefit / Employment and Support Allowance / Severe Disablement Allowance SDA / Statutory sick pay SSP / Attendance Allowance / Disability Living Allowance

One week
Two weeks
Three weeks
Four weeks
Calendar month
Two Calendar months
Eight times a year
Nine times a year
Ten times a year
Three months / 13 weeks
Six months / 26 weeks
One Year / 12 months / 52 weeks
Less than one week
One off / lump sum
None of these (EXPLAIN IN A NOTE)

INTERVIEWER: Enter the amount. Round to the nearest pound.[^BLANK / If don’t know amount because received with other benefits, enter total amount received here. Enter 9997 if amount already counted elsewhere.]_x000D_

Range: 0..9997

Which of these health or disability benefits is [^your / his / her] [^husband / wife / partner] receiving at the moment?
PROBE: What others?

Incapacity Benefit previously Invalidity Benefit
Employment and Support Allowance
Severe Disablement Allowance SDA
Statutory sick pay SSP
Attendance Allowance
Personal Independence Payment (including the car allowance known as Motability)
Disability Living Allowance
Industrial Injuries Disablement Benefit
War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme
Carer’s Allowance
Some other benefit for people with disabilities (SPECIFY)

How much did [^you / [^name] / [^your / [^name’s]] [^husband / wife / partner]] [^BLANK / usually] receive from [^Incapacity benefit previously named invalidity benefit / Employment and Support Allowance / Severe Disablement Allowance SDA / Statutory sick pay SSP / Attendance Allowance / Disability Living Allowance

One week
Two weeks
Three weeks
Four weeks
Calendar month
Two Calendar months
Eight times a year
Nine times a year
Ten times a year
Three months / 13 weeks
Six months / 26 weeks
One Year / 12 months / 52 weeks
Less than one week
One off / lump sum
None of these (EXPLAIN IN A NOTE)

Local authorities/council/social services offer different ways of arranging payment for
│people’s care. This card describes some of these ways. Please look at the card and tell me whether either of these apply for the care [^you/[^name]] receive(s)?

Direct payments
Local authority/council/social services
Neither of these

[^Do/Does] [^you/[^name]] have a Personal Budget, sometimes known as an Individual Budget? This is when the local authority/ council/social services decides the amount or pot of money necessary to meet social care needs. [^You/He/She] can choose how to spend this money which can be used for a range of services, not just social care.
The money could be paid to [^you/[^name]] as a Direct Payment or the local authority/ council/social services could manage the money for [^you/him/her].

Yes, have Personal Budget/Individual budget
No, do not have Personal Budget/ Individual Budget

Has the local authority/council made an assessment of what [^you/[^name]] can afford for any of [^your/his/her] care needs? This is sometimes called an income assessment or means testing. INTERVIEWER: EXPLAIN IF NECESSARY: This might have been when the local authority/council was organising care services or arranging a Direct Payment for [^your/his/her] care.

Yes, had income assessment
No

How was the help from [[^BLANK/your/his/her] [^home care worker/ home help/ personal assistant/ member of the reablement / intermediate care staff team/voluntary helper/ warden / sheltered housing manager/ cleaner/the council’s handyman/the member of staff from the care/nursing home/other helper] arranged?
Please look at this card and tell me which option applies.

Arranged without involvement from the local authority, council or social services,
Local authority, council or social services arranged this help,
Local authority, council or social services told [^you/him/her] about the help but [^you/he/she] arranged it or [^your/his/her] family arranged it
Other

[^Do/Does] [^you/[^name]] [^your/his/her partner] pay or give any money for the help given by [^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Please include any payments made for this care, even if not made directly to the care provider.
^Do not include gifts, treats or occasional payments of expenses such as petrol money or lunch (informal providers only).

Yes,
No,
Don’t know

How much money [^do/does] [^you/[^name]] [^your/his/her partner] pay for the help given by [^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the
care/nursing home/ the other helper]. Please include any payments made for this care, even if not made directly to the care provider?

per hour
per visit
per day
per week
per fortnight
per four weeks
per calendar month
per year

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE

You said [^you/[^Name]] pay(s) [^amount] [^per hour/per visit/per day/per week/per fortnight/ per four weeks/per calendar month/ per year] for the care provided by [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]?
Does this payment cover all the cost of this help or some of the cost of this help?

All
Some

How [^do/does] [^you/name] usually pay or give money to [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for helping [^you/him/her]?

Own personal income, savings, pension or benefit (such as Attendance
Allowance), Direct Payment/ Personal or Individual Budget from the Local Authority/ council/ Social Services,
From another source

And [^in addition to what] [^you/[name]] pay(s)), as far as you are aware does anyone else or any organisation pay or give money to [[^BLANK/your/his/her/[^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for the care [^you/he/she] receive(s) – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

Yes, the local authority /council /social services,
Yes, a family member (with their own money),
Yes, other,
No, nobody else pays

And does the local authority, council or social services pay
[[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other /other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of
staff at the care/nursing home/ the other helper] directly or is it through a Direct Payment or a Personal Budget?_x000D_

Local authority / social services or council pay directly,
Paid through Direct Payments / Personal or Individual Budgets

How much money is [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] paid from the direct payment or personal budget for helping [^you/[name]]?_x000D_

Per hour,
Per visit,
Per day,
Per week,
Per fortnight,
Per four weeks,
Per calendar month,
Per year

NTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE

You have told me that no payment was made for [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ brother/other brother / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helping [^you/[name]]. Why was this?

They provided their help for free/ there is no charge for the service,
Sometimes give them money or gifts for the help they give,
Other

[^During the last two years/since your last interview] have you lived or stayed in a nursing home or residential care home?_x000D_

Yes
No

[^Altogether/] how long did you stay in a nursing home or residential care home [^in the last two years/since last interview]? You can tell me your answer in, days/nights weeks or months.

Days/nights
Weeks
Months_x000D_

When did you start your current stay in this home?

INTERVIEWER: ENTER YEAR

In total, roughly how much did you have to pay for nursing or residential care home fees [in the last two years/since last interview]? Do not include costs that were paid by the NHS, your local authority or social services, but do include costs that were paid for on your behalf by friends or family, or by private insurance.

INTERVIEWER: ENTER COSTS IN £”: 0..9999997

[^Have/Has] [^you/name] used any of the services listed on this card in the last three months?_x000D_

Occupational therapist or physiotherapist
Chiropodist or podiatrist
Exercise classes including yoga, Pilates, gym
GP
Dentist
Community nurse
Hospital nurse
Counselling for depression or anxiety
Other mental health care services
Personal care (e.g. bathing, showering, dressing, toileting)
Other [please specify]

[^Have/Has] [^you/name] wanted to use any of the services listed on this card in the last three months but been unable to access them?

01 Occupational therapist or physiotherapist
02 Chiropodist or podiatrist
03 Exercise classes including yoga, Pilates, gym
04 GP
05 Dentist
06 Community nurse
07 Hospital nurse
08 Counselling for depression or anxiety
09 Other mental health care services
10 Personal care (e.g. bathing, showering, dressing, toileting)
95 Other [please specify]
96 None of these_x000D_

During the four weeks ending yesterday, did you receive personal care (for example, help with bathing, showering, dressing, toileting)?_x000D_

Yes
No

Thinking of the last time you received personal care, was this…

Under Social Services,
Or, paid for privately?_x000D_

In the last month, who has helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet dressing/ bathing or showering/eating/ shopping for groceries/doing work around the house or garden/taking medications/managing money]?
First, please tell me about all of the people from this list who have helped [^you/[^name]].
Please only think about help received because of a physical, mental, emotional or memory problem.

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 Friend
09 Neighbour
96 None of these

In the last two years [^have/has] [^you/[^name]] received care at home that was not provided by family or friends?_x000D_

Yes
No

In the last two years [^have/has] [^you/[^name]] had to pay for care received at home that was not provided by family or friends?

Yes
No

Thinking about all the help [^you/he/she] receive(s), would you say that the help [^you/he/she] receive(s)…

│01 …Meets [^your/his/her] needs all the time,
│02 usually meets [^your/his/her] needs,
│03 sometimes meets [^your/his/her] needs,
│04 or, hardly ever meets [^your/his/her] needs?

You have told me that [^your/his/her] [^husband /wife /partner /son /other son /daughter /other daughter /grandchild /other grandchild /sister /other sister /brother/other brother / other relative/ friend/ other friend] helped [^you/[^name]].
Can I just check, does this person live in the same household as [^you/[^name]]?_x000D_

Yes
No

Please enter person number of the person who helps [^you/[^name]]?

Household Member 01 to 16

[^You have told me that [^your /his /her] [^husband /wife /partner /son /other son /daughter /other daughter /grandchild /other grandchild /sister /other sister /brother /other brother / other relative/ friend / other friend/ neighbour /other neighbour] helped [^you/[^name]]. What is [^your /his /her] [^husband’s /wife’s /partner’s /son’s /other son’s /daughter’s /other daughter’s /grandchild’s /other grandchild’s /sister’s / other sister’s /brother’s /other brother’s / other relative’s / friend’s / other friend’s /neighbour’s /other neighbour’s] name?_x000D_

Name entered

Did another [^son/ daughter/ grandchild/ sister/ brother/ other relative/ friend/neighbour] help [^you/ [^name]]?

Yes
No

You have told me that a home care worker/home help/personal assistant helped [^you/ [^name]] in the last month.[^Do/Does] [^you/ [^name]] have just one person helping [^you /him /her], or [^do/does] [^you/ [^name]] have more than one?

01 One,
02 More than one

Do they all help with the same kinds of things, or [^do/does] [^you/[^name]] have different people helping with different things?_x000D_

All help with same kind of things,
Different people help with different things

Thinking of the [^first/second/third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?

Getting up in the morning,
Going to bed,
Washing/ bathing/ personal care (e.g. dressing, toileting),),
Meals/ eating,
Getting out of the house/ shopping,
Cleaning/ laundry,
Other

Are there any more home care workers, home helps or personal assistants who help [^you/[^name]] with different kinds of things?_x000D_

Yes
No

Thinking of the [^third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?_x000D_

Getting up in the morning,
Going to bed,
Washing/ bathing/ personal care (e.g. dressing, toileting)
Meals/ eating,
Getting out of the house/ shopping,
Cleaning/ laundry,
Other

Thinking about [^the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?
Do not include help over the phone or by internet_x000D_

Enter hours

Thinking about [^your/his/her [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

No help in the last week,
Less than one hour,
1-4 hours,
5-9 hours,
10-19 hours,
20-34 hours,
35-49 hours,
50-99 hours,
100 hours or more

Can you tell me whether in the last week [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helped [^you/[^name]] in person with these tasks for:

Less than 20 hours,
20-34 hours,
Or, for 35 hours or more?

Still thinking only about help received in person, how often does [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden /sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/the other helper] usually help [^you/[^name]]?

Every day
Four to six times a week
Two or three times a week
Once a week
Once a fortnight/ every two weeks
Once a month
Less than once a month

On the days [[^BLANK/your/his/her/[^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helps [^you/[^name]], how many times a day does he/she usually help [^you/[^name]]?

once a day
twice a day
three or four times a day
all the time
whenever I need it?

Still thinking about help received in person, when does [[^BLANK/your/his/her/][^husband/wife/partner/son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] help [^you/[^name]]?

During the day time only, until [^you/[^name]] [^go/goes] to bed,
During the night time only, once [^you/[^name]] [^have/has] gone to bed,
Or both during the day time and at night after [^you/[^name]][^have/has] gone to bed?

[^Do/Does] [^you/[^name]] usually deal with paying for [^your/his/her] care or does a family member or friend manage this for [^you/[^name]]?

Deals with this all [^your/him/herself]
Deals with some of it but not all
Does not deal with this at all

May I ask what has happened to [^]?

1 Deceased
2 Living elsewhere – relationship ended
3 Living elsewhere – moved into a nursing/residential home
4 Living elsewhere – other reason
5 Member of the core household
(Note code 5 is only valid for new households)

(You told me that [^name] has moved into a nursing home/residential home). We are interested in understanding the changes that happen in people’s lives, so we’d like to invite [^name] to continue to participate in this survey. Do you think that [^he/she] will be able to answer the questions on [^his/her] own behalf if we were to approach in the future?

1 Yes
2 No
3 Don’t know_x000D_

Is there someone who could answer on [^his/her] behalf in the future? [refers to household member moved to social care].

1 Yes
2 No

[^Are/Is] [^you/[^Name]] registered with your local council as partially sighted (also known as sight impaired), or blind (also known as severely sight impaired)?

1. Partially sighted (also known as sight impaired)
2. Blind (also known as severely sight impaired)
3. Not registered as being sight impaired

Because of a health or memory problem, [^do you /does he/does she] have difficulty doing any of the activities on this card?

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognizing when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

[^Have/Has] [^you/[^name]] received help from anyone with walking 100 yards, in the last month?

Yes
No

What about climbing several flights of stairs without resting?

Yes
No

What about climbing one flight of stairs without resting?_x000D_

Yes
No

What about dressing, including putting on shoes and socks?

Yes
No

What about walking across a room?

Yes
No

What about bathing or showering?_x000D_

Yes
No

What about eating, such as cutting up food?

Yes
No

What about getting in or out of bed?

Yes
No

What about using the toilet, including getting up or down?

Yes
No

What about shopping for groceries?

Yes
No

What about taking medications?_x000D_

Yes
No

What about doing work around the house or garden?_x000D_

Yes
No

What about managing money, such as paying bills and keeping track of expenses?

Yes
No

[^Do/Does] [^you/[^name]] receive this help with [^shopping for groceries/doing work around the house or garden/managing money] because of a physical, mental, emotional or memory problem?:

Yes for some or all
No, none of this help is because of a physical, mental, emotional or memory problem_x000D_

I am now going to ask you some questions about who helps [^you/[^name]] with different things. I will show you two lists of people who may have helped:

(1) MOBILITY
IF whether has had help walking 100 yards / climbing several flights of stairs without resting / climbing one flight of stairs without resting / walking across a room / getting in or out of bed/ using a toilet = yes

(2) WASHING
IF whether has had help dressing / bathing or showering = yes

(3) EATING
IF whether has had help eating = yes

(4) SHOPPING/ WORK DONE AROUND THE HOUSE
IF whether has had help shopping for groceries/doing work around the house or garden = yes

(5) TAKING MEDICATION
IF whether has had help taking medication(s) = yes

(6) MANAGING MONEY
IF whether has had help shopping for groceries/doing work around house or garden = yes

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 Friend
09 Neighbour
96 None of these

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

How much did you/your spouse receive from Carer’s Allowance?

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

How many people do you provide help and support do?

How old is/are the person(s) you provide help or support to?

a) Aged 0-15 (child) b) Aged 16-64 (adult) c) Aged 65 and over (Older)

How many hours did you spend helping person(s) aged 0-15 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

How many hours did you spend helping person(s) aged 16-64 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

How many hours did you spend helping person(s) aged 65 or over in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

How much did you/your spouse receive from Carer’s Allowance?

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

How much did you/your spouse receive from Carer’s Allowance?

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

How many people do you provide help and support do?

How old is/are the person(s) you provide help or support to?

a) Aged 0-15 (child) b) Aged 16-64 (adult) c) Aged 65 and over (Older)

How many hours did you spend helping person(s) aged 0-15 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

How many hours did you spend helping person(s) aged 16-64 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

How many hours did you spend helping person(s) aged 65 or over in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

How much did you/your spouse receive from Carer’s Allowance?

How many hours did you spend helping person(s) aged 65 or over in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

How much did you/your spouse receive from Carer’s Allowance?

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

How many people do you provide help and support do?

How old is/are the person(s) you provide help or support to?

a) Aged 0-15 (child) b) Aged 16-64 (adult) c) Aged 65 and over (Older)

How many hours did you spend helping person(s) aged 0-15 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

How many hours did you spend helping person(s) aged 16-64 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

How many hours did you spend helping person(s) aged 65 or over in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

How many people do you provide help and support do?

How old is/are the person(s) you provide help or support to?

a) Aged 0-15 (child) b) Aged 16-64 (adult) c) Aged 65 and over (Older)

How many hours did you spend helping person(s) aged 0-15 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

How many hours did you spend helping person(s) aged 16-64 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

How many hours did you spend helping person(s) aged 65 or over in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

If cares for any of the three age groups for 19+ hours per week: If you wanted a break for a few hours, would someone else have to look after the person helped?

a) Yes, someone else needed b) No

Is there anyone whom you could rely on to look after person helped either at home or elsewhere?

a) Yes b) No

In the last year have you made use of any of the following in order to give you a break?

a) A sitting service to allow you to go out for a couple of hours b) A befriending service – where a volunteer takes the person you care for out for the day c) Day-care at a social day centre or hospital d) In-home respite where a care worker comes to the home for a few hours e) Overnight respite where the person you care for stays elsewhere f) Overnight respite where a care worker comes and stays in the home g) None or these

How often do you use any of these services that involves daytime respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

How often do you use any of these services that involves overnight respite?

a) at least once a week b) once or twice a month c) 6-11 times a year d)1-5 times a year e) or less than once a year

Considering all the efforts that I have put into caring for someone, I am fully satisfied with what I have achieved so far.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Considering all the efforts that I have put into caring for someone, I have always received adequate appreciation from others.

a) Strongly agree b) Agree c) Disagree d) Strongly disagree

Which of these health or disability benefits are you receiving at the moment?

a) Incapacity Benefit b) Employment and Support Allowance c) Severe Disablement Allowance d) Statutory Sick Pay e)Attendance Allowance f) Personal Independence Payment g)Disabilitly Living Allowance h) Industrial Injuries Disablement Benefit i) War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme j) Carer’s Allowance k) Some other benefit for people with disabilities l) None of these

How much did you/your spouse receive from Carer’s Allowance?

Is there anyone who is sick, disabled or frail whom you look after or give special help to, other than in a professional capacity?

a) Yes b) No

How many people do you provide help and support do?

How old is/are the person(s) you provide help or support to?

a) Aged 0-15 (child) b) Aged 16-64 (adult) c) Aged 65 and over (Older)

How many hours did you spend helping person(s) aged 0-15 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

How many hours did you spend helping person(s) aged 16-64 in the last week?

a) No help in the last week b) Less than one hour c)1-4 hours d) 5-9 hours e) 10-19 hours f) 20-34 hours g) 35-49 hours h) 50-99 hours i) 100 hours or more

In total, roughly how much did you have to pay for nursing or residential care home fees [in the last two years/since last interview]? Do not include costs that were paid by │the NHS, your local authority or social services, but do include costs that were paid for on your behalf by friends or family, or by private insurance.

Costs in £

[^Have/Has] [^you/name] used any of the services listed on this card in the last three months?

01 Occupational therapist or physiotherapist
02 Chiropodist or podiatrist
03 Exercise classes including yoga, Pilates, gym
04 GP
05 Dentist
06 Routine healthcare checks
07 Community nurse
08 Counselling for depression or anxiety
09 Personal care
95 Other [please specify]
96 None of these

In the last month [^have/has] [^you/name]…

01 Attended a lunch club
02 Attended a day care centre
03 Had meals on wheels
04 Had private frozen meals from a provider such as Wiltshire farm foods
05 Had family, friend or neighbour bring [^you/him/her] ready prepared meals
96 None of these

How often [^do/does] [^you/[^Name]] attend a lunch club?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

How often [^do/does] [^you/name] attend a day care centre?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

Each time that [^you/name] [^have/has] attended the day centre, including attending classes or groups run by the day centre in the last month about how many hours did [^you/he/she] usually spend there? Was it…

1-3 hours
4-6 hours, or
more than 6 hours

How often [^do/does] [^you/name] eat a meal provided by Meals on Wheels?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

In the last three months, [^have/has] [^you/name] used or received the Local Authority/council’s Handy man’s service? This is usually a free service sometimes arranged through Age Concern or Help the Aged.

01 Yes
02 No

[^Do you / Does [^name]] use any of these?
Only include personal alarms used to call for assistance after falls etc.

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

You mentioned that [^you/name] [^have/has] the aids listed below:
[^ cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches >]. Can I check, did [^you/he/she] get any of these aids since [^]?

01 Yes
02 No

Can I check, did [^you/name] get [^this/these] [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches] since [^] INTERVIEWER: Please include any replacements.

01 Yes
02 No

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?

Health Service (NHS)
Social Services
[^You/Name] or [^your/his/her spouse/partner]
or someone else (please specify)?

Can I just check that [^the NHS/Social Services/ you/ your spouse or partner] covered all the costs of the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?

1 Yes covered all costs
2 No

In the last 12 months, that is, since [^date one year ago], have you done any of these things, unpaid, for someone who was not a relative?

1 Keeping in touch with someone who has difficulty getting out and about (visiting in person,
telephoning or emailing)
2 Doing shopping, collecting pension or paying bills
3 Cooking, cleaning, laundry, gardening or other routine household jobs
4 Decorating or doing any kind of home or car repairs
5 Babysitting or caring for children
6 Sitting with or providing personal care (washing, dressing) for someone who is sick or
frail
7 Looking after a property or a pet for someone who is away
8 Writing letters or filling in forms
9 Representing someone (for example talking to a council department, or to a doctor) 10 Transporting or escorting someone (for example to a hospital or to an outing)

Can you tell me whether in the last week [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of
staff at the care/nursing home/ the other helper] helped [^you/[^name] with these tasks for:

Less than 20 hours,
in person
20-34 hours,
Or, for 35 hours or more?

Still thinking only about help received in person, how often does [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/the other helper] usually help [^you/[^name]]?

01 Every day
02 Four to six times a week
03 Two or three times a week
04 Once a week
05 Once a fortnight/ every two weeks
06 Once a month
07 Less than once a month

On the days [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helps [^you/[^name]], how many times a day does he/she usually help [^you/[^name]]?

01 once a day
02 twice a day
03 three or four times a day
04 all the time
05 whenever I need it?

Still thinking about help received in person, when does [[^BLANK/your/his/her/] [^husband/wife/partner/son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] help [^you/[^name]]?

01 During the day time only, until [^you/[^name]] [^go/goes] to bed,
02 During the night time only, once [^you/[^name]] [^have/has] gone to bed,
03 Or both during the day time and at night after [^you/[^name]][^have/has] gone to bed?

[^Do/Does] [^you/[^name]] usually deal with paying for [^your/his/her] care or does a family member or friend manage this for [^you/[^name]]?

01 Deals with this all [^your/him/herself]
02 Deals with some of it but not all
03 Does not deal with this at all

Local authorities/council/social services offer different ways of arranging payment for people’s care. This card describes some of these ways. Please look at the card and tell me whether either of these apply for the care [^you/[^name]] receive(s)?

01 Direct payments
02 Local authority/council/social services manages the money
03 Neither of these

[^Do/Does] [^you/[^name]] have a Personal Budget, sometimes known as an Individual Budget? This is when the local authority/ council/social services decides the amount or pot of money necessary to meet social care needs. [^You/He/She] can choose how to spend this money which can be used for a range of services, not just social care.

01 Yes, have Personal Budget/Individual budget
02 No, do not have Personal Budget/ Individual Budget

Has the local authority/council made an assessment of what [^you/[^name]] can afford for any of [^your/his/her] care needs? This is sometimes called an income assessment or means testing. INTERVIEWER: EXPLAIN IF NECESSARY: This might have been when the local │authority/council was organising care services or arranging a Direct Payment for [^your/his/her] care.

01 Yes, had income assessment
02 No

How was the help from [[^BLANK/your/his/her] [^home care worker/ home help/personal assistant/ member of the reablement / intermediate care staff team/ voluntary helper/ warden / sheltered housing manager/ cleaner/the council’s handyman/the member of staff from the care/nursing home/other helper] arranged? Please look at this card and tell me which option applies.

01 Arranged without involvement from the local authority, council or social services,
02 Local authority, council or social services arranged this help,
03 Local authority, council or social services told [^you/him/her] about the help but [^you/he/she] arranged it or [^your/his/her] family arranged it
04 Other

[^Do/Does] [^you/[^name]] [^your/his/her partner] pay or give any money for the help given by [^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Please include any payments made for this care, even if not made directly to the care provider.

^Do not include gifts, treats or occasional payments of expenses such as petrol money or lunch (informal providers only).

01 Yes,
02 No,
03 Don’t know

How much money [^do/does] [^you/[^name]] [^your/his/her partner] pay for the help given by [^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home
care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]. Please include any payments made for this care, even if not made directly to the care provider?

Amount and then…
01 per hour
02 per visit
03 per day
04 per week
05 per fortnight
06 per four weeks
07 per calendar month
08 per year

You said [^you/[^Name]] pay(s) [^amount] [^per hour/per visit/per day/per week/per fortnight/ per four weeks/per calendar month/ per year] for the care provided by [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]?
Does this payment cover all the cost of this help or some of the cost of this help? INTERVIEWER: EXPLAIN IF NECESSARY: the payment for [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper].

01 All
02 Some

How [^do/does] [^you/name] usually pay or give money to [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for helping [^you/him/her]?

01 Own personal income, savings, pension or benefit (such as Attendance Allowance),
02 Direct Payment/ Personal or Individual Budget from the Local Authority/ council/ Social Services,
03 From another source

And [^in addition to what] [^you/[name]] pay(s)), as far as you are aware does anyone else or any organisation pay or give money to [[^BLANK/your/his/her/] ^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for the care [^you/he/she] receive(s) – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

01 Yes, the local authority /council /social services,
02 Yes, a family member (with their own money),
03 Yes, other,
04 No, nobody else pays

And does the local authority, council or social services pay [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other /other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] directly or is it through a Direct Payment or a Personal Budget?

01 Local authority / social services or council pay directly,
02 Paid through Direct Payments / Personal or Individual Budgets

How much money is [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] paid from the direct payment or personal budget for helping [^you/[name]]?

01 Per hour,
02 Per visit,
03 Per day,
04 Per week,
05 Per fortnight,
06 Per four weeks,
07 Per calendar month,
08 Per year

You have told me that no payment was made for [[^BLANK/your/his/her/] [^husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ brother/other brother / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helping [^you/[name]]. Why was this?

01 They provided their help for free/ there is no charge for the service,
02 Sometimes give them money or gifts for the help they give,
03 Other

[^During the last two years/since your last interview] have you lived or stayed in a nursing home or residential care home?

01 Yes
02 No

[^Altogether/] how long did you stay in a nursing home or residential care home [^in the last two years/since last interview]? You can tell me your answer in days/nights, weeks or months.

01 Days/nights
02 Weeks
03 Months

When did you start your current stay in this home?

Enter year and month

For the next set of questions, please think about the things you did yesterday and how you spent your time. For example, if you spent one and a half hours, write 1 in the hours box and 30 in the minutes boxes. If you spent only half an hour, write 0 in the hour box and 30 in the minute boxes.
How much time did you spend yesterday doing the following things?

Looking after someone – e.g. a sick or disabled relative, a grandchild, or someone else?

Hours/minutes
I did not do this yesterday

Which of these health or disability benefits [^are you / is [^name]] receiving at the moment?

One response option of the list is:
10 Carer’s Allowance

I have just asked about difficulties [^you/[^name]] may have with some activities. I’d │now like to ask about any help [^you/[^name]] [^have/has] received in the last month, │even if [^you/[^name]] [ ^do/does] not usually need any help.
│Please only think about help [^you/[^name]] [^have/has] received because of a physical, mental, emotional or memory problem.

[^Have/Has] [^you/[^name]] received help from anyone with walking 100 yards, in the │last month?

What about climbing several flights of stairs without resting?

What about dressing, including putting on shoes and socks?

What about walking across a room?

What about bathing or showering?

What about eating, such as cutting up food?

What about getting in or out of bed?

What about using the toilet, including getting up or down?

What about shopping for groceries?

What about taking medications?

What about doing work around the house or garden?

What about managing money, such as paying bills and keeping track of expenses?

Response scale for all data items:
Yes
No

Number of activities respondent has received help within the last month excluding j l m [response options] (shopping, housework, managing money)

Numerical value

[^Do/Does] [^you/[^name]] receive this help with [^shopping for groceries/doing work around the house or garden/managing money] because of a physical, mental, emotional or memory problem?:

01 Yes for some or all
02 No, none of this help is because of a physical, mental, emotional or memory problem

In the last month, who has helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/dressing/ bathing or showering/eating/ shopping for groceries/doing work around the house or garden/taking medications/managing money]? First, please tell me about all of the people from this list who have helped [^you/[^name]].
Please only think about help received because of a physical, mental, emotional or memory problem.

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 Friend
09 Neighbour
96 None of these

Now, please tell me about all of the people from this list who have helped [^you/[^name]] with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/ dressing/ bathing or showering/eating/shopping for groceries/doing work around the house or garden/taking medications/managing money] in the last month?INTERVIEWER: PROBE – ‘Does anyone else help with these activities?’

01 Home care worker/ home help/ personal assistant
02 A member of the reablement / intermediate care staff team
03 Voluntary helper
04 Warden / Sheltered housing manager
05 Cleaner
06 Council’s handyman
07 Member of staff at the care/nursing home
95 Other – please specify
96 None of these

In the last two years [^have/has] [^you/[^name]] received care at home that was not provided by family or friends?

Yes
No

In the last two years [^have/has] [^you/[^name]] had to pay for care received at home that was not provided by family or friends?

Yes
No

Thinking about all the help [^you/he/she] receive(s), would you say that the help [^you/he/she] receive(s)…

01 …Meets [^your/his/her] needs all the time
02 usually meets [^your/his/her] needs,
03 sometimes meets [^your/his/her] needs
04 or, hardly ever meets [^your/his/her] needs?

You have told me that [^your/his/her] [^husband /wife /partner /son /other son/daughter /other daughter /grandchild /other grandchild /sister /other sister /brother/other brother /other relative/ friend/ other friend] helped [^you/[^name]]. Can I just check, does this person live in the same household as [^you/[^name]]?

Yes
No

Please enter person number of the person who helps [^you/[^name]]?

Household Member 01 to 16 [previously identified]

INTERVIEWER: CODE OR ASK SEX OF PERSON WHO HELPS

01 Male
02 Female

Did another [^son/ daughter/ grandchild/ sister/ brother/ other relative/ friend/neighbour] help [^you/ [^name]]?

Yes
No

You have told me that a home care worker/home help/personal assistant helped │[^you/ [^name]] in the last month. [^Do/Does] [^you/ [^name]] have just one person helping [^you /him /her], or [^do/does] [^you/ [^name]] have more than one?

01 One,
02 More than one

Do they [carers] all help with the same kinds of things, or [^do/does] [^you/[^name]] have different people helping with different things?

01 All help with same kind of things,
02 Different people help with different things

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. ^EVERY OTHER TIME IN THE LOOP: BLANK] Thinking of the [^first/second/third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?

01 Getting up in the morning,
02 Going to bed,
03 Washing/ bathing/ personal care,
04 Meals/ eating,
05 Getting out of the house/ shopping,
06 Cleaning/ laundry,
07 Other

Are there any more home care workers, home helps or personal assistants who help [^you/[^name]] with different kinds of things?

01 Yes
02 No

Thinking about [^the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

Do not include occasional errands/odd jobs without the respondent such as picking up glasses or returning library books

Number of hours

Thinking about [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the ││council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?
[^BLANK/Please only think about the hours they were helping [^you/[^name]] with these kinds of tasks and not about the time they were around in the house or there to help [^you/[^name]] if [^you/he/she] needed it.

Do not include occasional errands/odd jobs without the respondent such as picking up glasses or returning library books

No help in the last week,
Less than one hour,
1-4 hours,
5-9 hours,
10-19 hours,
20-34 hours,
35-49 hours,
50-99 hours,
100 hours or more

Frequency attended lunch club

1.0 Every day or nearly every day
2.0 Two or three times a week
3.0 Once a week
4.0 Two or three times a month
5.0 Once a month or less
6.0 SPONTANEOUS – do not currently use
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Frequency attended day centre

1.0 Every day or nearly every day
2.0 Two or three times a week
3.0 Once a week
4.0 Two or three times a month
5.0 Once a month or less
6.0 SPONTANEOUS – do not currently use
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Frequency eat meal provided by Meals on Wheels

1.0 Every day or nearly every day
2.0 Two or three times a week
3.0 Once a week
4.0 Two or three times a month
5.0 Once a month or less
6.0 SPONTANEOUS – do not currently use
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Physical functioning: usefulness of help

1.0 Meets his/her/[PNum] needs all of the time
2.0 usually meets his/her/[Pnum] needs
3.0 sometimes meets his/her/[PNum] needs
4.0 hardly ever meets his/her/[PNum] needs
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Aids used:

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Aids acquired since last interview:

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?
Covered all costs?

1 NHS paid
2 Social Services paid
3 Spouse of partner
4 Other family member/friend paid
5 Landlord/Care home/Housing Assn paid
6 Charity/voluntary assoc
7 Not paid for, passed on on by other
8 Other person/organisation paid

1.0 Yes covered all costs
2.0 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

How much money is [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] paid from the direct payment or personal budget for helping [^you/[name]]?

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE │││││1.00..9999997.00

01 Per hour,
02 Per visit,
03 Per day,
04 Per week,
05 Per fortnight,
06 Per four weeks,
07 Per calendar month,
08 Per year

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

You have told me that no payment was made for [[^BLANK/your/his/her/] ││││husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ brother/other brother / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helping [^you/[name]]. Why was this?

01 They provided their help for free/ there is no charge for the service,
02 Sometimes give them money or gifts for the help they give,
03 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

[During the last two years/since your last interview] have you lived or stayed in a nursing home or residential care home?

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

[Altogether/] how long did you stay in a nursing home or residential care home [in the │last two │years/since last interview]? You can tell me your answer in days/nights, │weeks or months.

INTERVIEWER: ENTER NUMBER OF DAYS/NIGHTS, WEEKS OR MONTHS.
Range: 0…40

01 Days/nights
02 Weeks
03 Months

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

When did you start your current stay in this home?

INTERVIEWER: ENTER YEAR
Range 2001..9997

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

“(When did you start your current stay in this home?)

01 January
02 February
03 March
04 April
05 May
06 June
07 July
08 August
09 September
10 October
11 November
12 December

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

In total, roughly how much did you have to pay for nursing or residential care home │fees [in the last
│two years/since last interview]? Do not include costs that were paid by │the NHS, your local authority or
│social services, but do include costs that were paid │for on your behalf by friends or family, or by
│private insurance

INTERVIEWER: ENTER COSTS IN £”: 0..9999997

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

In the last month [^have/has] [^you/name]… READ OUT ..

01 Attended a lunch club
02 Attended a day care centre
03 Had meals on wheels
04 Had private frozen meals from a provider such as Wiltshire farm foods
05 Had family, friend or neighbour bring [^you/him/her] ready prepared meals
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

How often [^do/does] [^you/] attend a lunch club?

How often [^do/does] [^you/name] attend a day care centre?

How often [^do/does] [^you/name] eat a meal provided by Meals on Wheels?

01 Every day or nearly every day
02 Two or three times a week
03 Once a week
04 Two or three times a month
05 Once a month or less

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Each time that [^you/name] [^have/has] attended the day centre, including attending classes or groups run by the day centre in the last month about how many hours did [^you/he/she] usually spend there?

01 1-3 hours
02 4-6 hours, or
03 more than 6 hours

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

In the last three months, [^have/has] [^you/name] used or received the Local Authority/council’s Handy man’s service? This is usually a free service sometimes arranged through Age Concern or Help the Aged

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

^Do you / Does [^name]] use any of these?
Only include personal alarms used to call for assistance after falls etc.

01 A cane or walking stick
02 A zimmer frame or walker
03 A manual wheelchair
04 An electric wheelchair
05 A buggy or scooter
06 Special eating utensils
07 A personal alarm
08 Elbow crutches
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Who paid for the [^cane or walking stick/ zimmer frame or walker/ manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/ elbow crutches]?
INTERVIEWER: Read out each in turn and code all that apply.

1 Health Service (NHS)
2 Social Services
3 ^[You / Name] or [ your / his / her spouse/partner]
95 or someone else (please specify)?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Can I just check that ^[the NHS/Social Services/ you/ your spouse or partner] covered all the costs of the [^cane or walking stick/ zimmer frame or walker/manual wheelchair/ electric wheelchair/ buggy or scooter/ personal alarm/elbow crutches]?

1 Yes covered all costs
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

[^do you /does he /does she] have difficulty doing any of the activities on this card?

01 Dressing, including putting on shoes and socks
02 Walking across a room
03 Bathing or showering
04 Eating, such as cutting up ^[your / his / her] food
05 Getting in or out of bed
06 Using the toilet, including getting up or down
07 Using a map to figure out how to get around in a strange place
08 Recognising when you are in physical danger
09 Preparing a hot meal
10 Shopping for groceries
11 Making telephone calls
12 Communication (speech, hearing or eyesight)
13 Taking medications
14 Doing work around the house or garden
15 Managing money, such as paying bills and keeping track of expenses
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Whether receives help with [^BLANK/ walking 100 yards/climbing stairs/walking across a room/getting in or out of bed/ using the toilet/dressing/ bathing or showering/eating/ shopping for groceries/doing work around the house or garden/taking medications/managing money]?

01 Husband/Wife/Partner
02 Son (including step son, adopted son or son in law)
03 Daughter (including step daughter, adopted daughter or daughter in law)
04 Grandchild (including Great Grandchildren)
05 Sister (including step sister, adopted sister or sister in law)
06 Brother (including step brother, adopted brother or brother in law)
07 Other relative
08 privately paid help
09 local authority/social services
10 nurse
11 care staff/nursing home
12 Friend or neighbour
96 None of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Whether ever used lunch club

0.0 Not mentioned
1.0 Mentioned
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Whether ever used day centre

0.0 Not mentioned
1.0 Mentioned
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Whether ever used meals on wheels

0.0 Not mentioned
1.0 Mentioned
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Said not used any of the listed services

0.0 Not mentioned
1.0 Mentioned
-1.0 Item not applicable
-9.0 Refusal
-8.0 Don’t know
-2.0 Schedule not applicable

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Do they all help with the same kinds of things, or [^do/does] [^you/[^name]] have different people helping with different things?

01 All help with same kind of things,
02 Different people help with different things

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

I’d like you to think about the home care workers, home helps or personal assistants who help with different things, so that I can ask you about each of them later. Thinking of the [^first/second/third] home care worker / home help / personal assistant, what sort of things do they help [^you/[^name]] with?

01 Getting up in the morning,
02 Going to bed,
03 Washing/ bathing/ personal care,
04 Meals/ eating,
05 Getting out of the house/ shopping,
06 Cleaning/ laundry,
07 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Are there any more home care workers, home helps or personal assistants who help [^you/[^name]] with different kinds of things?

01 Yes
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Thinking about [^the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

Open response

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Thinking about [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff ││team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the ││council’s handyman/the member of staff at the care/nursing home/ the other helper] in the last week how many hours have they helped [^you/[^name]] in person with these kinds of tasks?

01 No help in the last week,
02 Less than one hour,
03 1-4 hours,
04 5-9 hours,
05 10-19 hours,
06 20-34 hours,
07 35-49 hours,
08 50-99 hours,
09 100 hours or more

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Can you tell me whether in the last week [^your/his/her] [^husband/wife/partner/son/other son/daughter/other daughter/grandchild/other grandchild/sister/other/sister/brother/other brother/ other relative/ friend/ other friend/ neighbour/other neighbour/the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helped [^you/[^name]] in person with these tasks for:

01 Less than 20 hours,
02 20-34 hours,
03 Or, for 35 hours or more?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Still thinking only about help received in person, how often does your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing ││manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/the other helper] usually help [^you/[^name]]?

01 Every day
02 Four to six times a week
03 Two or three times a week
04 Once a week
05 Once a fortnight/ every two weeks
06 Once a month
07 Less than once a month

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

On the days [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] helps [^you/[^name]], how many times a day does he/she usually help [^you/[^name]]?

01 once a day
02 twice a day
03 three or four times a day
04 all the time
05 whenever I need it?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Still thinking about help received in person, when does [[^BLANK/your/his/her/] husband/wife/partner/son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] help [^you/[^name]]?

01 During the day time only, until [^you/[^name]] [^go/goes] to bed,
02 During the night time only, once [^you/[^name]] [^have/has] gone to bed,
03 Or both during the day time and at night after [^you/[^name]][^have/has] gone to bed?

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

[^Do/Does] [^you/[^name]] usually deal with paying for [^your/his/her] care or does a family member or │friend manage this for [^you/[^name]]?

01 Deals with this all [^your/him/hers]
02 Deals with some of it but not all
03 Does not deal with this at all

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Local authorities/council/social services offer different ways of arranging payment for people’s care. This card describes some of these ways. Please look at the card and tell me whether either of these apply for the care [^you/[^name]] receive(s)?

01 Direct payments
02 Local authority/council/social services manages the money
03 Neither of these

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

[^Do/Does] [^you/[^name]] have a Personal Budget, sometimes known as an Individual Budget? This is when the local authority/ council/social services decides │the amount or pot of money necessary to meet social care needs. [^you/he/she] can │choose how to spend this money which can be used for a range of services, not just social care.

01 Yes, have Personal Budget/Individual budget
02 No, do not have Personal Budget/ Individual Budget

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

Has the local authority/council made an assessment of what [^you/[^name]] can afford for any of [^your/his/her] care needs?

01 Yes, had income assessment
02 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

How was the help from [[^BLANK/your/his/her] ^home care worker/ home help/ personal assistant/ member of the reablement / intermediate care staff team/voluntary helper/ warden / sheltered housing manager/ cleaner/the council’s handyman/the member of staff from thecare/nursing home/other helper] arranged? Please look at this card and tell me which option applies.

01 Arranged without involvement from the local authority, council or social services,
02 Local authority, council or social services arranged this help,
03 Local authority, council or social services told [^you/him/her] about the help but ││ [^you/he/she] arranged it or [^your/his/her] family arranged it
04 Other

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

[^Do/Does] [^you/[^name]] [^your/his/her partner] pay or give any money for the help given by [^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other
friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Please include any payments made for this care, even if not made directly to the care provider. ^Do not include gifts, treats or occasional payments of expenses such as petrol money or lunch (informal providers only).

01 Yes,
02 No,
03 Don’t know

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

How much money [^do/does] [^you/[^name]] [^your/his/her partner] pay for the help given by [^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]. Please include any payments made for this care, even if not made directly to the care provider?

INTERVIEWER: ENTER AMOUNT IN POUNDS AND PENCE : 1.00..999997.00

01 per hour
02 per visit
03 per day
04 per week
05 per fortnight
06 per four weeks
07 per calendar month
08 per year

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

You said [^you/[^Name]] pay(s) [^amount] [^per hour/per visit/per day/per week/per fortnight/ per four weeks/per calendar month/ per year] for the care provided by [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper]? Does this payment cover all the cost of this help or some of the cost of this help?

01 All
02 Some

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

How [^do/does] [^you/name] usually pay or give money to [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/other / other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/ personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for helping [^you/him/her]?

01 Own personal income, savings, pension or benefit (such as Attendance Allowance),
02 Direct Payment/ Personal or Individual Budget from the Local Authority/council/ Social Services,
03 From another source

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

And [^in addition to what] [^you/[name]] pay(s)), as far as you are aware does anyone else or any organisation pay or give money to [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister//other / other /friend/ other friend/neighbour/other neighbour/ the home care
worker/ home help/ personal assistant/ the member of the reablement /intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] for the care [^you/he/she] receive(s) – for example the council or a family member? Do not count any benefits such as Carers Allowance or Attendance Allowance.

01 Yes, the local authority /council /social services,
02 Yes, a family member (with their own money),
03 Yes, other,
04 No, nobody else pays

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

And does the local authority, council or social services pay [[^BLANK/your/his/her/] husband/wife/partner/ son/other son/daughter/other grandchild /sister/other sister/ /other /other /friend/ other friend/neighbour/other neighbour/ the home care worker/ home help/personal assistant/ the member of the reablement / intermediate care staff team/the voluntary helper/the warden / sheltered housing manager/the cleaner/the council’s handyman/the member of staff at the care/nursing home/ the other helper] directly or is it through a Direct Payment or a Personal Budget?

01 Local authority / social services or council pay directly,
02 Paid through Direct Payments / Personal or Individual Budgets

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

What about walking across a room?

1 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

What about bathing or showering?

2 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

What about eating, such as cutting up food?

3 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression

What about getting in or out of bed?

4 Yes
2 No

Chronic lung disease
Asthma
Arthritis
Osteoporosis
Cancer or a malignant tumour feed forward Parkinson’s disease
An emotional, nervous or psychiatric problem
Alzheimer’s disease
Dementia, senility or another serious memory
Malignant blood disorder
Multiple Sclerosis or Motor Neuron Disease
Hallucinations
Anxiety
Depression
Emotional problems
Schizophrenia
Psychosis
Mood swings
Manic depression