Catalogue of Social Care Data

Part 1:
Since start of the pandemic (March 2020), was there any time when you needed medical
(including dental) care but it was delayed or cancelled?

Part 2:
What type(s) of care or health services were delayed or cancelled?
Tick all that apply

Part 3:
Why was your care or health service appointment delayed or cancelled?
Tick one only.

Part 1:
Yes
No

Part 2:
Respite services
Major surgery (requiring a hospital
stay of one or more nights)
Seeing your General Practitioner
Heart disease
Getting medications
Optician
Cancer
Public health or Community Nurse
Physiotherapy services
Diabetes
Minor surgery as an
outpatient or day case
Psychological/counselling services
Dementia/Alzheimer’s disease
Occupational therapy
Dental care
A stroke
Hearing services
Other
Don’t know
Prefer not to say

Part 3:
I could not afford it
I decided it could wait
I could not get an appointment
I was afraid to go due
to risk of COVID-19
The clinic/hospital/
doctor’s office cancelled
I was afraid to go in general
The clinic/hospital/
doctor’s office rescheduled
I was embarrassed to go
Other, please specify:

Does anyone help you with managing your own money?

1. Yes
2. No
98. DK
99. RF

Part 1:
Who most often helps you with (preparing meals/doing household chores/shopping for
groceries/making telephone calls/your medications)?

Part 2:
Is male or female?

Part 3:
What is that person’s relationship to you?

Part 4:
Does anyone else help you with this activity/these activities?

Part 5:
What is his/her first name?

Part 6:
Is male or female?

Part 7:
What is that person’s relationship to you?

Part 1:
Text: up to 60 characters
98. DK
99. RF

Part 2:
1.Male
2.Female

Part 3:
MALES FEMALES
1. Husband 2. Wife
3. Partner/cohabitee 3. Partner/cohabitee
5. Father 4. Mother
28. Stepfather 29. Stepmother
7. Father-in-law 6. Mother-in-law
8. Son (Including adopted and foster) 9. Daughter (Including adopted and foster)
10. Step son 11. Step daughter
12. Son-in-law 13. Daughter-in-law
14. Brother 15. Sister
16. Brother-in-law 17. Sister-in-law
19. Grand-son 18. Grand-daughter
20. Grandfather 21. Grandmother
23. Uncle 22. Aunt
24. Other relative 24. Other relative
25. Non-relative – Neighbour 25. Non-relative – Neighbour
26. Non-relative – Friend 26. Non-relative – Friend
27. Non-relative- home help/district
nurse
27. Non-relative- home help/district nurse
28. Non-relative – other 28. Non-relative – other

Part 4:
1. Yes
2. No
98. DK
99. RF

Part 5:
Text: up to 60 characters
98. DK
99. RF

Part 6:
1.Male
2.Female

Part 7:
MALES FEMALES
1. Husband 2. Wife
3. Partner/cohabitee 3. Partner/cohabitee
5. Father 4. Mother
28. Stepfather 29. Stepmother
7. Father-in-law 6. Mother-in-law
8. Son (Including adopted and foster) 9. Daughter (Including adopted and foster)
10. Step son 11. Step daughter
12. Son-in-law 13. Daughter-in-law
14. Brother 15. Sister
16. Brother-in-law 17. Sister-in-law
19. Grand-son 18. Grand-daughter
20. Grandfather 21. Grandmother
23. Uncle 22. Aunt
24. Other relative 24. Other relative
25. Non-relative – Neighbour 25. Non-relative – Neighbour
26. Non-relative – Friend 26. Non-relative – Friend
27. Non-relative- home help/district
nurse
27. Non-relative- home help/district nurse
28. Non-relative – other 28. Non-relative – other

Part 1:
Who most often helps you to manage your money?

Part 2:
Is male or female?

Part 3:
What is that person’s relationship to you?

Part 4:
Does anyone else help you with this activity/these activities?

Part 5:
What is his/her first name?

Part 6:
Is male or female?

Part 7:
What is that person’s relationship to you?

Part 1:
Text: up to 60 characters
98. DK
99. RF

Part 2:
1.Male
2.Female

Part 3:
MALES FEMALES
1. Husband 2. Wife
3. Partner/cohabitee 3. Partner/cohabitee
5. Father 4. Mother
28. Stepfather 29. Stepmother
7. Father-in-law 6. Mother-in-law
8. Son (Including adopted and foster) 9. Daughter (Including adopted and foster)
10. Step son 11. Step daughter
12. Son-in-law 13. Daughter-in-law
14. Brother 15. Sister
16. Brother-in-law 17. Sister-in-law
19. Grand-son 18. Grand-daughter
20. Grandfather 21. Grandmother
23. Uncle 22. Aunt
24. Other relative 24. Other relative
25. Non-relative – Neighbour 25. Non-relative – Neighbour
26. Non-relative – Friend 26. Non-relative – Friend
27. Non-relative- home help/district
nurse
27. Non-relative- home help/district nurse
28. Non-relative – other 28. Non-relative – other

Part 4:
1. Yes
2. No
98. DK
99. RF

Part 5:
Text: up to 60 characters
98. DK
99. RF

Part 6:
1.Male
2.Female

Part 7:
MALES FEMALES
1. Husband 2. Wife
3. Partner/cohabitee 3. Partner/cohabitee
5. Father 4. Mother
28. Stepfather 29. Stepmother
7. Father-in-law 6. Mother-in-law
8. Son (Including adopted and foster) 9. Daughter (Including adopted and foster)
10. Step son 11. Step daughter
12. Son-in-law 13. Daughter-in-law
14. Brother 15. Sister
16. Brother-in-law 17. Sister-in-law
19. Grand-son 18. Grand-daughter
20. Grandfather 21. Grandmother
23. Uncle 22. Aunt
24. Other relative 24. Other relative
25. Non-relative – Neighbour 25. Non-relative – Neighbour
26. Non-relative – Friend 26. Non-relative – Friend
27. Non-relative- home help/district
nurse
27. Non-relative- home help/district nurse
28. Non-relative – other 28. Non-relative – other

Let’s think for a moment about the help you receive with the difficulties that we just talked about.
During the last month, on about how many days did HELPER’s NAME help you?

1. Number of days _______________________________________ ________________________
98. RF
99. DK

On the days when HELPER’s NAME helps you, about how many hours per day do they spend helping
you?

1. Number of hours _______________________________________ ________________________
98. RF
99. DK

Does HELPER’s NAME receive Carer’s Allowance?

1. Yes
2. No
98. DK
99. RF

Does HELPER’s NAME receive regular payment from you, your family or from an agency or
organisation to help care for you?

1. Yes
2. No

Is this person [helper’s name]:

1. From a private agency
2. From a non-profit organization (such as the Alzheimer’s Society, etc.)
3. From the government (local health board or social services)
4. Family or Friend who is paid to help
5. Other

Thinking now about the cost of this paid help in the past month, about what percentage of this cost
does the government cover?

1. Write %
98. DK
99. RF

Not counting costs paid by the government, about how much did you (and your [husband/wife/partner]) pay HELPER’s NAME in the last month?

£0 … £100,000
98. DK
99. RF

Part 1:
Does any other person help you (and your [husband/wife/partner]) pay for this cost?

Part2:
Is that a (child or other) relative of yours (and your [husband/wife/partner]), or is that someone
else?

Part 3:
Which child is that?____________________________________________________________
Name is not to be retained or recorded where this person is not eligible or has not consented to take part in the study. Name is only to be used by interviewer for ease of reference to other household members during
the interview.

Part 4:
Any other child?

Part 5:
What is her/his name?

Part 1:
1. Yes
2. No
98. DK
99. RF

Part 2:
1. Child/child in-law/grandchild
2. Other relative
3. Someone else
98. DK
99. RF

Part 3:
Name
98. DK
99. RF

Part 4:
1. Yes
2. No
98. DK
99. RF

Part 5:
Name
98. DK
99. RF

How many different paid helpers – in total – have been involved in taking care of you in the last two years? (If all helpers are unpaid relatives or friends code 0)

1. Number
98. DK
99. RF

Would you be willing to have to your survey responses linked to your social care records?

Yes – Consent form signed and initialed
No
To discuss with respondent at latter stage of survey

Overall, in the last 30 days, how much of a problem have you had with moving?

None
Mild
Moderate
Severe
Extreme

Overall, in the last 30 days, how much difficulty have you had with concentrating or remembering things?

None
Mild
Moderate
Severe
Extreme

Part 1:
You are ill in bed and need help at home. Is there anyone you could ask for help?

Part 2:
If you answered yes, who could you ask for help? Tick all that apply

Part 1:
Yes
No
Don’t know
Prefer not to say

Part 2:
Husband/wife/partner
Other household member
Relative (outside household)
Friend
Neighbour
Work colleague
Voluntary or other organisation
Other
Would prefer not to ask for help
Prefer not to say

Does anyone help you with preparing a hot meal?

1. Yes
2. No
98. DK
99. RF

Does anyone help you take your medications?

1. Yes
2. No
98. DK
99. RF

Does anyone help you make phone calls?

1. Yes
2. No
98. DK
99. RF

Does anyone help you with shopping for groceries?

1. Yes
2. No
98. DK
99. RF

Does anyone help you with doing household chores?

1. Yes
2. No
98. DK
99. RF

Because of a health or memory problem, do you have difficulty doing any of the activities on this card? Again exclude any difficulties you expect to last less than three months.

1. Preparing a hot meal
2. Doing household chores (laundry, cleaning)
3. Shopping for groceries
4. Making telephone calls
5. Taking medications
6. Managing money, such as paying bills and keeping track of expenses
96. None of these
98. DK
99 RF

Which of these health or disability benefits are you personally receiving at the moment?
PROBE: What others?
INTERVIEWER NOTE: IF respondent asks about Disabled Persons Tax Credit or Disability Working Allowance,
explain that this benefit was abolished in April 2003 and became part of the Working Tax Credit.

1. Incapacity Benefit previously Invalidity Benefit
2. Employment and Support Allowance
3. Severe Disablement Allowance SDA
4. Statutory sick pay SSP
5. Attendance Allowance
6. Disability Living Allowance
7. Industrial Injuries Disablement Benefit
8. War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme
9. Carer’s Allowance
95. Some other benefit for people with disabilities (SPECIFY)
96. None of these
98. DK
99. RF

Which of these health or disability benefits did you stop receiving following an unfavourable review in
the last 12 months?

1. Incapacity Benefit previously Invalidity Benefit
2. Employment and Support Allowance
3. Severe Disablement Allowance SDA
4. Statutory sick pay SSP
5. Attendance Allowance
6. Disability Living Allowance
7. Industrial Injuries Disablement Benefit
8. War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme
9. Carer’s Allowance
95. Some other benefit for people with disabilities (SPECIFY)
96. None of these
98. DK
99. RF

Which of these health or disability benefits is your [^husband / wife / partner] receiving at the moment/in the last year?
PROBE: What others?

1. Incapacity Benefit previously Invalidity Benefit
2. Employment and Support Allowance
3. Severe Disablement Allowance SDA
4. Statutory sick pay SSP
5. Attendance Allowance
6. Disability Living Allowance
7. Industrial Injuries Disablement Benefit
8. War Disablement Pension or War Widow’s Pension or Armed Forces Compensation Scheme
9. Carer’s Allowance
95. Some other benefit for people with disabilities (SPECIFY)
96. None of these
98. DK
99. RF

Because of a health or memory problem, do you have difficulty doing any of the activities on this card?
Again exclude any difficulties you expect to last less than three months.

1. Dressing, including putting on shoes and socks
2. Walking across a room
3. Bathing or showering
4. Eating, such as cutting up your food
5. Getting in or out of bed
6. Using the toilet, including getting up or down
96. None of these
98. DK
99. RF

Does anyone ever help you with dressing including putting on shoes and socks?

1. Yes
2. No
98. DK
99. RF

Does anyone ever help you with walking across a room?

1. Yes
2. No
98. DK
99. RF

Does anyone ever help you with bathing or showering?

1. Yes
2. No
98. DK
99. RF

Does anyone ever help you with eating?

1. Yes
2. No
98. DK
99. RF

Does anyone ever help you with getting into or out of bed?

1. Yes
2. No
98. DK
99. RF

Does anyone ever help you with using the toilet, including getting on and off the toilet?

1. Yes
2. No
98. DK
99. RF

Who most often helps you with (getting across a room / dressing / bathing / eating / getting in / out
of bed / using the toilet)?

Text: up to 60
characters______________________________________________________________________
98. DK
99. RF

Is [NAME OF PERSON WHO HELPS] male or female?

1. Male
2. Female
98. DK
99. RF

What is that person’s [WHO PROVIDES CARE] relationship to you?

MALES FEMALES
1. Husband 2. Wife
3. Partner/cohabitee 3. Partner/cohabitee
5. Father 4. Mother
28. Stepfather 29. Stepmother
7. Father-in-law 6. Mother-in-law
8. Son (Including adopted and foster) 9. Daughter (Including adopted and foster)
10. Step son 11. Step daughter
12. Son-in-law 13. Daughter-in-law
14. Brother 15. Sister
16. Brother-in-law 17. Sister-in-law
19. Grand-son 18. Grand-daughter
20. Grandfather 21. Grandmother
23. Uncle 22. Aunt
24. Other relative 24. Other relative
25. Non-relative – Neighbour 25. Non-relative – Neighbour
26. Non-relative – Friend 26. Non-relative – Friend
27. Non-relative- home help/district
nurse 27. Non-relative- home help/district nurse
28. Non-relative – other 28. Non-relative – other
98. DK
99. RF

Part 1:
Does anyone else help you with this activity/these activities?

Part2:
What is her/his first name?
1. Name is not to be retained or recorded where this person is not eligible or has not consented to take part in the study. Name is only to be used by interviewer for ease of reference to other household members
during the interview

Part 3:
Is male or female?

Part 4:
What is that person’s relationship to you?

Part1:
1. Yes
2. No
98. DK
99. RF

Part 2:
____________________________________________________
98. DK, 99. RF

Part 3:
Is male or female?
1.Male
2.Female
98. DK
99. RF

Part 4:
MALES FEMALES
1. Husband 2. Wife
3. Partner/cohabitee 3. Partner/cohabitee
5. Father 4. Mother
28. Stepfather 29. Stepmother
7. Father-in-law 6. Mother-in-law
8. Son (Including adopted and foster) 9. Daughter (Including adopted and foster)
10. Step son 11. Step daughter
12. Son-in-law 13. Daughter-in-law
14. Brother 15. Sister
16. Brother-in-law 17. Sister-in-law
19. Grand-son 18. Grand-daughter
20. Grandfather 21. Grandmother
23. Uncle 22. Aunt
24. Other relative 24. Other relative
25. Non-relative – Neighbour 25. Non-relative – Neighbour
26. Non-relative – Friend 26. Non-relative – Friend
27. Non-relative- home help/district
nurse
27. Non-relative- home help/district nurse
28. Non-relative – other 28. Non-relative – other

In the last 2 years, did your relatives give you (and your spouse/partner) any help with things like:
SHOW CARD HELP_1

a) Practical household help, e.g. with home repairs, gardening, transportation, shopping, household
chores
b) Help with paperwork, such as filling out forms, settling financial or legal matters

1. Yes
2. No
98. DK
99. RF

Do you look after, or give any help or support to family members, friends, neighbours or others
because of either: long-term physical or mental ill-health/disability? Or problems related to old-age?
Please include any time you spend travelling so that you can do these activities. (Do not count anything you
do as part of paid employment).

1. No
2. Yes, 1-4 hours per week
3. Yes, 5-9 hours per week
4. Yes, 10-19 hours per week
5. Yes, 20-34 hours per week
6. Yes, 35-49 hours per week
7. Yes, 50 hours or more a week
98. DK
99. RF

What would you say was the main reason why you retired?

1. Became eligible for a state pension
2. Became eligible for an occupational pension
3. Became eligible for a private pension or annuity
4. Made redundant
5. Own ill health
6. Ill health of relative or friend
7. To retire at same time as spouse or partner
8. To spend more time with family
9. To enjoy life
10. Other reason (please specify)
98. DK
99. RF

About how many hours per week on average did you give such help in the last two years?

1. Number of hours_____________
98. DK
99. RF

In the last 2 years, did you (or your spouse/partner) give any kind of help to your relatives with things
like:
a) Practical household help, e.g. with home repairs, gardening, transportation, shopping, household
chores
b) Help with personal care, such as dressing, eating/preparing or delivering meals getting into and out
of bed, using the toilet
c) Help with paperwork, such as filling out forms, settling financial or legal matters

1. Yes
2. No
98. DK
99. RF

About how many hours per week of such help did you receive from other relatives over the last two years?

1. Number of hours_________
98. DK
99. RF