Learning Disability Statistics Scotland (LDSS)

Measures describe a question asked to a participant during a survey or an item of information requested from a manager when they fill out a data return. For example, ‘Who do you live with?’ is a measure and the possible responses might be, mother, father, brother, sister etc.

Question/Data item wording	Response scale wording	Need OR provision OR receipt	Description of measure	Start Year	Age of interest	Age to	Informant	Multiple rater	Reporting term	Sweep title	Standard instrument	Dataset
Data item collected as: Day Centre and Alternative Opportunities These items will record the day opportunities including centre and non-centre based opportunities that the person is currently engaged in.	Attends a day centre: Enter number of hours per week which person attends a day centre (in 15 minute increments) Person does not attend a day centre Person attends a day centre, amount of time not specified Not known Has alternative opportunities: Enter number of hours per week which person has alternative opportunities (in 15 minute increments) Person does not have alternative opportunities Person has alternative opportunities, amount of time not specified Not known	Receipt;	Receipt of day centre or alternative	2012	0-120	120	Participant	No	Past year	2012	No	LDSS
Data item collected as: Lives with family carer This item will record whether an individual lives with a family carer. It is intended to capture where people are living with a family member who may or may not be providing care,	Person does not live with a family carer Person lives with a family carer, relationship not known Parent Sibling Son/Daughter Other relative The family carer is not related Partner/spouse Not Known	Receipt;	Adults with learning disabilities who live/don't live with carer	2012	0-120	120	Participant	No	Past year	2012	No	LDSS
Data item collected as: Accommodation Type: This item will record the type of accommodation in which the person is normally resident.	01 Homeless 02 Mainstream housing without support 03 Mainstream housing with support 04 Mainstream housing support status unknown 05 Special Housing 06 Sheltered Housing 07 Supported accommodation 08 Specialist Rehabilitation Units 09 Registered adult care homes 10 Registered child care accommodation 11 NHS Facilities/hospitals 12 Penal institutions 13 Independent hospitals 14 Independent hospices 15 Mobile accommodation -99 Not Known	Receipt;	Accommodation type - adults with learning disabilities	2012	0-120	120	Participant	No	Past year	2012	No	LDSS
Data item collected as: Person Service Status This item will record the current service status of the person i.e. whether or not the Council is currently funding a service. This information will assist the LDSS team with time series analysis.	01 Person is receiving a Council-funded service 02 Person is not receiving a Council-funded service 03 Person deceased -99 Not Known	Receipt;	Person service status	2012	0-120	120	Participant	No	Past year	2012	No	LDSS
Data item collected as: Day Centre and Alternative Opportunities These items will record the day opportunities including centre and non-centre based opportunities that the person is currently engaged in.	Attends a day centre: Enter number of hours per week which person attends a day centre (in 15 minute increments) Person does not attend a day centre Person attends a day centre, amount of time not specified Not known Has alternative opportunities: Enter number of hours per week which person has alternative opportunities (in 15 minute increments) Person does not have alternative opportunities Person has alternative opportunities, amount of time not specified Not known	Receipt;	Receipt of day centre or alternative	2013	0-120	120	Participant	No	Past year	2013	No	LDSS
Data item collected as: Lives with family carer This item will record whether an individual lives with a family carer. It is intended to capture where people are living with a family member who may or may not be providing care,	Person does not live with a family carer Person lives with a family carer, relationship not known Parent Sibling Son/Daughter Other relative The family carer is not related Partner/spouse Not Known	Receipt;	Adults with learning disabilities who live/don't live with carer	2013	0-120	120	Participant	No	Past year	2013	No	LDSS
Data item collected as: Accommodation Type: This item will record the type of accommodation in which the person is normally resident.	01 Homeless 02 Mainstream housing without support 03 Mainstream housing with support 04 Mainstream housing support status unknown 05 Special Housing 06 Sheltered Housing 07 Supported accommodation 08 Specialist Rehabilitation Units 09 Registered adult care homes 10 Registered child care accommodation 11 NHS Facilities/hospitals 12 Penal institutions 13 Independent hospitals 14 Independent hospices 15 Mobile accommodation -99 Not Known	Receipt;	Accomodation type - adults with learning disabilities	2013	0-120	120	Participant	No	Past year	2013	No	LDSS
Data item collected as: Person Service Status This item will record the current service status of the person i.e. whether or not the Council is currently funding a service. This information will assist the LDSS team with time series analysis.	01 Person is receiving a Council-funded service 02 Person is not receiving a Council-funded service 03 Person deceased -99 Not Known	Receipt;	Person service status	2013	0-120	120	Participant	No	Past year	2013	No	LDSS
Data item collected as: Day Centre and Alternative Opportunities These items will record the day opportunities including centre and non-centre based opportunities that the person is currently engaged in.	Attends a day centre: Enter number of hours per week which person attends a day centre (in 15 minute increments) Person does not attend a day centre Person attends a day centre, amount of time not specified Not known Has alternative opportunities: Enter number of hours per week which person has alternative opportunities (in 15 minute increments) Person does not have alternative opportunities Person has alternative opportunities, amount of time not specified Not known	Receipt;	Receipt of day centre or alternative	2014	0-120	120	Participant	No	Past year	2014	No	LDSS
Data item collected as: Lives with family carer This item will record whether an individual lives with a family carer. It is intended to capture where people are living with a family member who may or may not be providing care,	Person does not live with a family carer Person lives with a family carer, relationship not known Parent Sibling Son/Daughter Other relative The family carer is not related Partner/spouse Not Known	Receipt;	Adults with learning disabilities who live/don't live with carer	2014	0-120	120	Participant	No	Past year	2014	No	LDSS
Data item collected as: Accommodation Type: This item will record the type of accommodation in which the person is normally resident.	01 Homeless 02 Mainstream housing without support 03 Mainstream housing with support 04 Mainstream housing support status unknown 05 Special Housing 06 Sheltered Housing 07 Supported accommodation 08 Specialist Rehabilitation Units 09 Registered adult care homes 10 Registered child care accommodation 11 NHS Facilities/hospitals 12 Penal institutions 13 Independent hospitals 14 Independent hospices 15 Mobile accommodation -99 Not Known	Receipt;	Accommodation type - adults with learning disabilities	2015	0-120	120	Participant	No	Past year	2015	No	LDSS
Data item collected as: Accommodation Type: This item will record the type of accommodation in which the person is normally resident.	01 Homeless 02 Mainstream housing without support 03 Mainstream housing with support 04 Mainstream housing support status unknown 05 Special Housing 06 Sheltered Housing 07 Supported accommodation 08 Specialist Rehabilitation Units 09 Registered adult care homes 10 Registered child care accommodation 11 NHS Facilities/hospitals 12 Penal institutions 13 Independent hospitals 14 Independent hospices 15 Mobile accommodation -99 Not Known	Receipt;	Accommodation type - adults with learning disabilities	2014	0-120	120	Participant	No	Past year	2014	No	LDSS
Data item collected as: Person Service Status This item will record the current service status of the person i.e. whether or not the Council is currently funding a service. This information will assist the LDSS team with time series analysis.	01 Person is receiving a Council-funded service 02 Person is not receiving a Council-funded service 03 Person deceased -99 Not Known	Receipt;	Person service status	2014	0-120	120	Participant	No	Past year	2014	No	LDSS
Data item collected as: Day Centre and Alternative Opportunities These items will record the day opportunities including centre and non-centre based opportunities that the person is currently engaged in.	Attends a day centre: Enter number of hours per week which person attends a day centre (in 15 minute increments) Person does not attend a day centre Person attends a day centre, amount of time not specified Not known Has alternative opportunities: Enter number of hours per week which person has alternative opportunities (in 15 minute increments) Person does not have alternative opportunities Person has alternative opportunities, amount of time not specified Not known	Receipt;	Receipt of day centre or alternative	2015	0-120	120	Participant	No	Past year	2015	No	LDSS
Data item collected as: Lives with family carer This item will record whether an individual lives with a family carer. It is intended to capture where people are living with a family member who may or may not be providing care,	Person does not live with a family carer Person lives with a family carer, relationship not known Parent Sibling Son/Daughter Other relative The family carer is not related Partner/spouse Not Known	Receipt;	Adults with learning disabilities who live/don't live with carer	2015	0-120	120	Participant	No	Past year	2015	No	LDSS
Data item collected as: Number of adults with learning disabilities known to local authorities who do/do not live with a family carer	Lives with a family carer Does not live with a family carer Not known	Receipt;	Adults with learning disabilities who live/don't live with carer	2019	0-120	120	Participant	No	Past year	2019	No	LDSS
Data item collected as: Person Service Status This item will record the current service status of the person i.e. whether or not the Council is currently funding a service. This information will assist the LDSS team with time series analysis.	01 Person is receiving a Council-funded service 02 Person is not receiving a Council-funded service 03 Person deceased -99 Not Known	Receipt;	Person service status	2015	0-120	120	Participant	No	Past year	2015	No	LDSS
Data item collected as: Day Centre and Alternative Opportunities These items will record the day opportunities including centre and non-centre based opportunities that the person is currently engaged in.	Attends a day centre: Enter number of hours per week which person attends a day centre (in 15 minute increments) Person does not attend a day centre Person attends a day centre, amount of time not specified Not known Has alternative opportunities: Enter number of hours per week which person has alternative opportunities (in 15 minute increments) Person does not have alternative opportunities Person has alternative opportunities, amount of time not specified Not known	Receipt;	Receipt of day centre or alternative	2017	0-120	120	Participant	No	Past year	2017	No	LDSS
Data item collected as: Person Service Status This item will record the current service status of the person i.e. whether or not the Council is currently funding a service. This information will assist the LDSS team with time series analysis.	01 Person is receiving a Council-funded service 02 Person is not receiving a Council-funded service 03 Person deceased -99 Not Known	Receipt;	Person service status	2017	0-120	120	Participant	No	Past year	2017	No	LDSS
Data item collected as: Accommodation Type The data provided should only include individuals you have had contact with within the last year (since April 2016). The data provided should be the latest available information you have for this person.	01 Homeless 02 Mainstream housing without support 03 Mainstream housing with support 04 Mainstream housing support status unknown 05 Special Housing 06 Sheltered Housing 07 Supported accommodation 08 Specialist Rehabilitation Units 09 Registered adult care homes 10 Registered child care accommodation 11 NHS Facilities/hospitals 12 Penal institutions 13 Independent hospitals 14 Independent hospices 15 Mobile accommodation -99 Not Known	Receipt;	Accommodation type - adults with learning disabilities	2017	0-120	120	Participant	No	Past year	2017	No	LDSS
Data item collected as: Lives with family carer The data provided should only include individuals you have had contact with within the last year (since April 2016). The data provided should be the latest available information you have for this person.	Person does not live with a family carer Person lives with a family carer, relationship not known Parent Sibling Son/Daughter Other relative The family carer is not related Partner/spouse Not Known	Receipt;	Adults with learning disabilities who live/don't live with carer	2017	0-120	120	Participant	No	Past year	2017	No	LDSS
Day centre attendance hours and alternative opportunity use by adults with learning disabilities known to local authorities	Attends a day centre fewer than 30 hours Attends a day centre 30 hours or more Attends a day centre 30 hours or more Does not attend day centre Not recorded Fewer than 10 hours 10-19.75 hours 20-29.75 hours 30+ hours Time not specified Does not attend a day centre Not recorded Uses alternative opportunities	Receipt;	Day centre attendance - hours	2018	0-120	120	Participant	No	Past year	2018	No	LDSS
Data item collected as: Accommodation type for adults with learning disabilities known to local authorities	Mainstream accommodation – no support Mainstream accommodation – with support Mainstream – support unknown Supported accommodation Registered adult care home Other	Receipt;	Accommodation type - adults with learning disabilities	2018	0-120	120	Participant	No	Past year	2018	No	LDSS
Number of adults living in the same accommodation by family carer status	Adults who live with a family carer – number of Adults who do not live with a family carer – number of Not recorded – number of All adults – number of	Receipt;	No. of adults living in accommodation by carer status	2018	0-120	120	Participant	No	Past year	2018	No	LDSS
Data item collected as: Types of family carer with whom adults with learning disabilities known to local authorities live	Parent Sibling Son/daughter Partner/spouse Other relative Not related	Need;	No. of adults with learning disability known to local authority	2018	0-120	120	Participant	No	Past year	2018	No	LDSS
Data item collected as: Adults with learning disabilities known to local authorities who do/do not live with a family carer by age Do live with Don’t live with	Responses for all data items: Lives with a parent carer Lives with other family carer Lives with a family carer not specified Does not live with family carer Not recorded Age range as recorded	Receipt;	Adults with learning disabilities who live/don't live with carer - age	2018	0-120	120	Participant	No	Past year	2018	No	LDSS
Data item collected as: Number of adults with learning disabilities known to local authorities who do/do not live with a family carer	Lives with a family carer Does not live with a family carer Not known	Need;	No. of adults with learning disabilities known to local authority	2018	0-120	120	Participant	No	Past year	2018	No	LDSS
Data item collected as: Accommodation type for adults with learning disabilities known to local authorities	Mainstream accommodation – no support Mainstream accommodation – with support Mainstream – support unknown Supported accommodation Registered adult care home Other	Receipt;	Accommodation type - adults with learning disabilities	2019	0-120	120	Participant	No	Past year	2019	No	LDSS
Data item collected as: Adults with learning disabilities known to local authorities who do/do not live with a family carer by age (does not include Glasgow City) Do live with Don’t live with	Responses for all data items: Lives with a parent carer Lives with other family carer Lives with a family carer not specified Does not live with family carer Not recorded Age range as recorded	Receipt;	Adults with learning disabilities who live/don't live with carer - age	2019	0-120	120	Participant	No	Past year	2019	No	LDSS
Data item collected as: Types of family carer with whom adults with learning disabilities known to local authorities live	Parent Sibling Son/daughter Partner/spouse Other relative Not related	Provision;	Types of family carer	2019	0-120	120	Participant	No	Past year	2019	No	LDSS

Scotland

Aims

All local authorities in Scotland collect information on the numbers of people with learning disabilities and/or autism in their area. Information is collected about everyone who is known to the local authority – not just the people who are using services. A report about the number of people with learning disabilities and/or autism in Scotland is published every year.

Institution

Scottish Commission for People with Learning Disabilities

Geographic coverage - Nations

Scotland;

Start date

2008

Minimum age at recruitment

Sample Size

23,584

Sample

Study design

Annual return

Sample details

Learning Disability Statistics Scotland (LDSS) uses the term ‘adults with learning disabilities’ to include those adults with learning disabilities and/or on the autism spectrum who are known to local authorities in Scotland. LDSS does not include information on adults with learning disabilities who are not known to local authorities. There is a possibility individuals could be known to local authorities but not reported to the LDSS team.

Sex

All

Sample Characteristics

People with a learning disability

Sample size at most recent sweep

23,584

Individual data available (e.g. upon special request)?

No

Data Access Level

Fully open source

Data Access

Data is available from 2008 onwards. For copies of these reports, please contact Lorne Berkley by email at Lorne.B@scld.co.uk or via phone on 0141 248 3733.

https://www.scld.org.uk/population-statistics/?cn-reloaded=1

Regional variable present?

Yes

Local Authority variable present?

Yes

Complementary Data

N/A

Genetic Data Collected

Linked Data

Income Employment

HDR UK Innovation Gateway

Website

https://www.scld.org.uk/population-statistics/

Notes

Related Measures

Education, Ethnicity and race, Household composition, Housing, Work and employment,

Study Code

LDSS

Reference paper(s)

https://www.scld.org.uk/wp-content/uploads/2019/12/Learning-Disability-Statistics-Scotland-2019.pdf

Funders

The Scottish Government

Catalogue of Social Care Data

UNITING SOCIAL CARE DATA