Newcastle 85+ (N85)

Measures describe a question asked to a participant during a survey or an item of information requested from a manager when they fill out a data return. For example, ‘Who do you live with?’ is a measure and the possible responses might be, mother, father, brother, sister etc.

Question/Data item wording	Response scale wording	Need OR provision OR receipt	Description of measure	Start Year	Age of interest	Age from	Age to	Informant	Multiple rater	Reporting term	Sweep title	Standard instrument	Physical health measures	Dataset
Does anyone help you to manage money Who usually helps you? Do they help: Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse	Receipt;	Unpaid carer/paid care -mutlitple IADL- managing money	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Would you say the help you get with managing your money	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help with managing money	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Do you have any other particular needs for which either you don’t receive any help or the help you receive is not enough. You don’t need to include things you’ve already told me about.	Code all that apply No other needs Shaving Decorating Gardening Hanging curtains DIY Transport Other (specify) Don’t know Refused to answer Not asked	Need;	IADL/ADL- any other particualr needs	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
How often do you take part in activities which are MODERATELY energetic e.g. moderate gardening (raking, hoeing, mowing lawn (electric)), cleaning the car, heavy housework (cleaning windows, scrubbing floors), walking at a moderate pace, dancing, floor or stretching exercises?	3 or more times a week Once or twice a week Once, twice, or three times a month Hardly ever or never Don’t know Not applicable Refused to answer Not asked	Receipt;	ADL/IADL- actitivites	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
How often do you take part in activities which are MILDLY energetic e.g. light gardening (weeding, pruning), bowls, light housework (vacuuming, washing clothes by hand, mopping floors, ironing, making beds), DIY?	3 or more times a week Once or twice a week Once, twice, or three times a month Hardly ever or never Don’t know Not applicable Refused to answer Not asked	Receipt;	ADL/IADL- actitivites	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Activities that cause you to use a lot of effort for a short period of time—for example walking upstairs. How often do you do the following activities Climbing the stairs/steps (each of avg height) Climbing stairs/steps (each stair very high) Lifting moving heavy loads above shoulder height	Several times a day Daily Once or several times a week Occasionally Never Don’t know Not applicable Refused to answer Not asked	Need;	ADL/IADL- actitivites	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
“1 In the last 4 weeks have you seen or had a visit from, or to, any of the following services and if so, how often? Warden Home care (social services) Home care (voluntary agency) Home care (private help) Night attendant/sitter (social services) Night attendant/sitter (voluntary agency) Night attendant/sitter (private help) Day sitter (social services) Day sitter (voluntary agency) Day sitter (private help) Meals provision (social services) Meals provision (voluntary agency) Meals provision (private help) Community nurse Private nurse Physiotherapist Occupational therapist Chiropodist (NHS) Chiropodist (Private) Speech therapist Dietician Social Worker “	Several times a day Daily Once or several times a week Occasionally Never Don’t know Not applicable Refused to answer Not asked	Receipt;	Visits from services	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
In the last 4 weeks have you seen or had a visit from, or to, any other formal services and if so, how often? I	open answer	Receipt;	Visits from services	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
In the last 4 weeks have you attended a: Luncheon club or day centre	Yes 1-2 days per week Yes 3-4 days per week Yes 5 days per week Don’t know Not applicable Refused to answer Not asked	Receipt;	Attending day centres or luncheon clubs	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
During the last year have you received “short break” or respite care in a care home or hospital? Where was this?	Part 1: Yes No Resident in care home / hospital for last 12 months Don’t know Refused to answer Not asked Part 2: Care home (Residential Home / Nursing home) Hospital Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Respite care - receipt of short break	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
14 On how many days was “short break” /respite care received?	Number of days	Receipt;	Respite care - number of days	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
Formal care section answered by	Participant alone Proxy alone Participant and proxy Item not completed	Receipt;	Administrative question - formal care	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
20 If participant and proxy was this	Mainly participant Mainly proxy Equal contribution Not applicable Item not completed	Receipt;	Administrative question - formal care	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
Are you able to wash yourself all over	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- washing body	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Does anyone help you to wash and dry your whole body Who usually helps you? Do they help: Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse	Receipt;	Unpaid carer/paid care -mutlitple ADL- washing body	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Would you say the help you get with washing your body	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help wash body	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to cut your own toenails	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- grooming	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to feed yourself	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL - feeding	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to prepare and cook a hot meal	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL- preparing meals	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Does anyone help you to prepare and cook hot meals Who usually helps you? Do they help: Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse	Receipt;	Unpaid carer/paid care -mutlitple IADL- preparing and cooking meals	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Would you say the help you get to prepare hot meals	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help preapre hot meals	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to do your shopping for groceries	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL- shopping	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Does anyone help you to shop for groceries Who usually helps you? Do they help: Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse	Receipt;	Unpaid carer/paid care -mutlitple IADL- shopping	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Would you say the help you get with shopping	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help with shopping	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to do light housework	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL - light housework	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to do heavy housework	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL - heavy housework	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Does anyone help you to do your housework Who usually helps you? Do they help: Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse	Receipt;	Unpaid carer/paid care -mutlitple IADL- housework	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Would you say the help you get with housework	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help with housework	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able take your medication	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL- taking medication	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Do you use a pill organising box	Yes No Don’t know Not applicable Refused to answer Not asked	Need;	IADL- managing medication	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Does anyone help you to do your medication Who usually helps you? Do they help: Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse	Receipt;	Unpaid carer/paid care -mutlitple IADL- managing medication	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Would you say the help you get with managing your medication	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help with managing medication	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to manage money such as paying bills and keeping track of expenses?	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL- managing money	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
“1 In the last 4 weeks have you seen or had a visit from, or to, any of the following services and if so, how often? Warden Home care (social services) Home care (voluntary agency) Home care (private help) Night attendant/sitter (social services) Night attendant/sitter (voluntary agency) Night attendant/sitter (private help) Day sitter (social services) Day sitter (voluntary agency) Day sitter (private help) Meals provision (social services) Meals provision (voluntary agency) Meals provision (private help) Community nurse Private nurse Physiotherapist Occupational therapist Chiropodist (NHS) Chiropodist (Private) Speech therapist Dietician Social Worker “	Several times a day Daily Once or several times a week Occasionally Never Don’t know Not applicable Refused to answer Not asked	Receipt;	Visits from services	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
In the last 4 weeks have you seen or had a visit from, or to, any other formal services and if so, how often? I	open answer	Receipt;	Visits from services	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
In the last 4 weeks have you attended a: Luncheon club or day centre	Yes 1-2 days per week Yes 3-4 days per week Yes 5 days per week Don’t know Not applicable Refused to answer Not asked	Receipt;	Attending day centres or luncheon clubs	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
During the last year have you received “short break” or respite care in a care home or hospital? Where was this?	Part 1: Yes No Resident in care home / hospital for last 12 months Don’t know Refused to answer Not asked Part 2: Care home (Residential Home / Nursing home) Hospital Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Respite care - receipt of short break	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
14 On how many days was “short break” /respite care received?	Number of days	Receipt;	Respite care - number of days	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
Formal care section answered by	Participant alone Proxy alone Participant and proxy Item not completed	Receipt;	Administrative question - formal care	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
20 If participant and proxy was this	Mainly participant Mainly proxy Equal contribution Not applicable Item not completed	Receipt;	Administrative question - formal care	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
What best describes your home	Code granny flat as “standard” housing “Standard” housing Sheltered housing with warden Residential home: council Residential home: private Nursing home Long stay hospital Other (specify) SKIP J1 LINE1 Don’t know Refused to answer Not asked	Receipt;	Living arrangments	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to get in and out of bed	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL - getting in and out of bed	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to get in and out of a chair	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- getting in and out of a chair	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to get on and off the toilet	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- getting on and off the toilet	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Does anyone help you to use the toilet Who usually helps you? Do they help: Does any one else help you?	“Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse “	Receipt;	Unpaid carer/paid care -mutlitple ADL- using toilet	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Would you say the help you get to use the toilet	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help use toilet	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to get around in the house	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- getting around the house	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to go up and down stairs/steps	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- going up and down stairs/steps	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to walk at least 400 yards	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL - walking	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to dress and undress yourself	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- getting dresses and undressed	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Does anyone help you to get dressed and undressed Who usually helps you? Do they help: Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse	Receipt;	Unpaid carer/paid care -mutlitple ADL- getting dressed and undressed	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Would you say the help you get to dress and undress	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help get dressed and undressed	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Are you able to wash your face and hands	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL - washing face and hands	2015	85-120	85	120	Adult (85+) participants	No	Currently	Phase 5	No		N85
Does anyone help you to prepare and cook hot meals Who usually helps you? Do they help: Does any one else help you?”	“Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked”	Receipt;	Unpaid carer/paid carer IADL- meal prep	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Would you say the help you get to prepare hot meals	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received to preapre and cook hot meals	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to do your shopping for groceries	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL- shopping	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
“Does anyone help you to shop for groceries Who usually helps you? Do they help: Does any one else help you?”””	“Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked”	Receipt;	Unpaid carer/Paid carer IADL- shopping	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Would you say the help you get with shopping	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help with shopping	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to do light housework	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL - light housework	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to do heavy housework	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL - heavy housework	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Does anyone help you to do your housework? Who usually helps you? Do they help: Does anyone else help you:	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse	Receipt;	Unpaid carer/paid care IADL-housework	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Would you say the help you get from housework	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help with housework	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to take your medication	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL-managaing medication	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Do you need a pill organsing box	Yes No Don’t know Not applicable Refused to answer Not asked	Need;	IADL-managaing medication	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Does anyone help you with your medication Who usually helps you? Do they help: Does anyone else help you:	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse	Receipt;	Unpaid carer/paid care IADL-managing medication	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Would you say the help you get with managing your medication	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help manage medication	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to manage money such as paying bills and keeping track of expenses	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL- managing finances	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Does anyone help you to manage money? Who usually helps you? Do they help: Does anyone else help you:	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked”	Receipt;	Unpaid carer/paid care IADL-managing finances	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Would you say the help you get to manage money	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care to help manage money	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Do you have any other particular needs for which either you don’t receive any help or the help you receive is not enough. You don’t need to include things you’ve already told me about	Code all that apply No other needs Shaving Decorating Gardening Hanging curtains DIY Transport Other (specify) Don’t know Refused to answer Not asked	Receipt;	IADL - any other particular needs	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
How often do you take part in activities which are MODERATELY energetic e.g. moderate gardening (raking, hoeing, mowing lawn (electric)), cleaning the car, heavy housework (cleaning windows, scrubbing floors), walking at a moderate pace, dancing, floor or stretching exercises?	3 or more times a week Once or twice a week Once, twice, or three times a month Hardly ever or never Don’t know Not applicable Refused to answer Not asked	Receipt;	ADL/IADL- actitivites	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
How often do you take part in activities which are MILDLY energetic e.g. light gardening (weeding, pruning), bowls, light housework (vacuuming, washing clothes by hand, mopping floors, ironing, making beds), DIY?	3 or more times a week Once or twice a week Once, twice, or three times a month Hardly ever or never Don’t know Not applicable Refused to answer Not asked	Receipt;	ADL/IADL- actitivites	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Activities that cause you to use a lot of effort for a short period of time—for example walking upstairs. How often do you do the following activities Climbing the stairs/steps (each of avg height) Climbing stairs/steps (each stair very high) Lifting moving heavy loads above shoulder height	Several times a day Daily Once or several times a week Occasionally Never Don’t know Not applicable Refused to answer Not asked	Need;	ADL/IADL- actitivites	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
1. What best describes your home	Code granny flat as “standard” housing “Standard” housing Sheltered housing with warden Residential home: council Residential home: private Nursing home Long stay hospital Other (specify) SKIP J1 LINE1 Don’t know Refused to answer Not asked	Receipt;	Living arrangements	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
1. Are you able to get in and out of bed?	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL - getting in and out of bed	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
Are you able to get in and out of a chair	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- getting in and out chairs	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to get one and off the toilet	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL - getting on and off toilet	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Does anyone help you to use the toilet Who usually helps you? Do they help: Does any one else help you?”	“Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked”	Receipt;	IADL- help using the toilet	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Would you say the help you get to use the toilet	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received to use the toiet	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to get around the house	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- walking around the house	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to go up and down stairs/steps	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- up/down stairs	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to ealk at least 400 yards	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL - walking	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to dress and undress yourself	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- dressing	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Does anyone help you dress/undress Who usually helps you? Do they help: Does any one else help you?”	“Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked”	Receipt;	Unpaid carer/paid carer ADL- help dressing	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Would you say the help you get to dress/undress	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received to get dresses/undressed	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to wash your hands and face	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- washing hands and face	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to wash yourself all over	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- washing	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Does anyone help you to wash and dry your whole body Who usually helps you? Do they help: Does any one else help you?”	“Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked”	Receipt;	Unpaid carer/paid carer ADL-washing	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Would you say the help you get with washing yourself	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received to wash oneself	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to cut your own toenails	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL- grooming	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to feed yourself (including cutting up food)	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	ADL - feeding	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
Are you able to preapre and cook a hot meal	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked	Need;	IADL- meal prep	2011	85-120	85	120	Adult (85+) participants	No	Currently	Phase 4	No		N85
40. Are you able to do heavy housework	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	IADL - heavy housework	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
41 Does anyone help you to do your housework (light or heavy duties) 42 Who usually helps you? 43 Do they help: 44 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - multiple	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
45. Would you say the help you get with housework	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received with housework	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
46. Are you able to take your medication	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	IADL- managing medication	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
47. Do you use a pill organizing box	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	IADL- managing medication	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
48 Does anyone help you with your medication 49 Who usually helps you? 50 Do they help: 51 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - multiple	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
52. Would you say the help you get with managing medication	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received with managing medication	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
53. Are you able to manage money such as paying bills and keeping track of expenses	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	IADL- managing finances	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
54 Does anyone help you manage money 55 Who usually helps you? 56 Do they help: 57 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - multiple	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
58. Would you say the help you get to manage money	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received with managing money	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
59. Do you have any other particular needs for which you either don’t recieve any help or the help you recieve is not enough	Code all that apply No other needs Shaving Decorating Gardening Hanging curtains DIY Transport Other (specify) Don’t know Refused to answer Not asked	Need;	IADL- any other particualr needs	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
How often do you take part in activites which are moderatley energetic eg moderate gardening, cleaning the care, heavy housework, walking at a moderate pace	3 or more times a week Once or twice a week Once, twice, or three times a month Hardly ever or never Don’t know Not applicable Refused to answer Not asked	Need;	ADL/IADL- actitivites	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
How often do you take part in activites which are mildly energetic eg light gardening, light housework	3 or more times a week Once or twice a week Once, twice, or three times a month Hardly ever or never Don’t know Not applicable Refused to answer Not asked	Need;	ADL/IADL- actitivites	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
Activities that cause you to use a lot of effort for a short period of time—for example walking upstairs. How often do you do the following activities Climbing the stairs/steps (each of avg height) Climbing stairs/steps (each stair very high) Lifting moving heavy loads above shoulder height	Several times a day Daily Once or several times a week Occasionally Never Don’t know Not applicable Refused to answer Not asked	Need;	ADL/IADL- actitivites	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
1 In the last 4 weeks have you seen or had a visit from, or to, any of the following services and if so, how often? Warden Home care (social services) Home care (voluntary agency) Home care (private help) Night attendant/sitter (social services) Night attendant/sitter (voluntary agency) Night attendant/sitter (private help) Day sitter (social services) Day sitter (voluntary agency) Day sitter (private help) Meals provision (social services) Meals provision (voluntary agency) Meals provision (private help) Community nurse Private nurse Physiotherapist Occupational therapist Chiropodist (NHS) Chiropodist (Private) Speech therapist Dietician Social Worker	Several times a day Once a day One or more times a week Less than once a week No contact Don’t know Not applicable Refused to answer Not asked	Receipt;	Visits from services	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
3 In the last 4 weeks have you attended a: Luncheon club Day centre	No Yes, less than once a week Yes, 1-2 days per week Yes, 3-4 days per week Yes, 5 days per week Don’t know Refused to answer Not asked	Receipt;	Attending clubs and day centres	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
12 During the last year have you received “short break” or respite care in a care home or hospital? 13 Where was this?	Part 1: Yes No Resident in care home / hospital for last 12 months Don’t know Refused to answer Not asked Part 2: Care home (Residential Home / Nursing home) Hospital Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Respite care - receipt of short break	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
14 On how many days was “short break” /respite care received?	Number of days	Receipt;	Respite care - number of days	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
19 Formal care section answered by	Participant alone Proxy alone Participant and proxy Item not completed	Receipt;	Administrative question - formal care	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
20 If participant and proxy was this	Mainly participant Mainly proxy Equal contribution Not applicable Item not completed	Receipt;	Administrative question - formal care	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
8. Would you say the help you get to use the toilet	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received using toilet	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
9. Are you able to get around in the house	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL-transferrring	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
10. Are you able to go up and down stairs/steps	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL- transferring	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
11. Are you able to walk at lest 400 yards	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL - walking	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
12. Are you abLe to dress and undress yourself	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL- getting dresses/undressed	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
13 Does anyone help you to dress/undress? 14 Who usually helps you? 15 Do they help: 16 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer/paid carers- multiple	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
17. Would you say the help you get to dress/undress	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received to dress/undress	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
18. Are you able to wash your face and hands	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL- washing	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
19. Are you able to wash yourself all over	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL- washing	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
20 Does anyone help you wash and dry your whole body 21 Who usually helps you? 22 Do they help: 23 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer/paid carers- multiple	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
24. Would you say the help you get with washing yourself	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received to wash oneself	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
25. Are you able to cute your own toenails	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL- grooming	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
26. Are you able to feed yourself (including cutting up food)	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL - feeding	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
27. Are you able to prepare and cook a hot meal	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	IADL- cooking and meal prep	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
28 Does anyone help you prepare and cook hot meals 29 Who usually helps you? 30 Do they help: 31 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / paid carer	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
32. Would you say the help you get to prepare hot meals	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received to preapre meals	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
33. Are you able to do shopping for groceries ( including getting your shopping home	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	IADL- shopping	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
34 Does anyone help you to shop for groceries (including getting your shopping home) 35 Who usually helps you? 36 Do they help: 37 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - multiple	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
38. Would you say the help you get with shopping	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received to go shopping	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
39. Are you able to do light housework	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	IADL - light housework	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
48. Would you say the help you get with housework	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received to do housework	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
49. Are you able to take your medication	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	IADL- managing medication	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
50. Do you use a pill organising box	Yes No Don’t Know Refused to answer Not asked	Need;	IADL- managing medication	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
51 Does anyone help you with your medication? 52 Who usually helps you? 53 Do they help: 54 Does any one else help you?	Part 1: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 2: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 3: (code up to 3) No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Need;	IADL - help with medication	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
55. Would you say the help you get managing your medication	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received - help taking medication	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
56. Are you able to manage money such as paying bills and keeping track of expenses	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	IADL- managing finances	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
57 Does anyone help you to manage money 58 Who usually helps you? 59 Do they help: 60 Does any one else help you?	Yes No Don’t Know Refused to answer Not asked ” Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: (code up to 3) No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked”	Receipt;	Unpaid care/paid carers- mulitple	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
61. Would you say the help you get to manage money	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received - managing money	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
62. Do you have any other particular needs for which you don’t reciece any help or the help you recieve is not enough	Code all that apply No other needs Shaving Decorating Gardening Hanging curtains DIY Transport Other (specify) Don’t know Refused to answer Not asked	Need;	IADL-any other needs	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
1 In the last 4 weeks have you seen or had a visit from, or to, any of the following services and if so, how often? Warden Home care (social services) Home care (voluntary agency) Home care (private help) Night attendant/sitter (social services) Night attendant/sitter (voluntary agency) Night attendant/sitter (private help) Day sitter (social services) Day sitter (voluntary agency) Day sitter (private help) Meals provision (social services) Meals provision (voluntary agency) Meals provision (private help) Community nurse Private nurse Physiotherapist Occupational therapist Chiropodist (NHS) Chiropodist (Private) Speech therapist Dietician Social Worker	Several times a day Once a day One or more times a week Less than once a week No contact Don’t know Not applicable Refused to answer Not asked	Receipt;	Visits from services	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
3 In the last 4 weeks have you attended a: Luncheon club Day centre	No Yes, less than once a week Yes, 1-2 days per week Yes, 3-4 days per week Yes, 5 days per week Don’t know Refused to answer Not asked	Receipt;	Attending clubs and day centres	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
12 During the last year have you received “short break” or respite care in a care home or hospital? 13 Where was this?	Part 1: Yes No Resident in care home / hospital for last 12 months Don’t know Refused to answer Not asked Part 2: Care home (Residential Home / Nursing home) Hospital Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Respite care - receipt of short break	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
14 On how many days was “short break” /respite care received?	Number of days	Receipt;	Respite care - number of days	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
18 Formal care section answered by	Participant alone Proxy alone Participant and proxy Item not completed	Receipt;	Administrative question - formal care	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
3 In the last 4 weeks have you attended a: Luncheon club Day centre	No Yes, less than once a week Yes, 1-2 days per week Yes, 3-4 days per week Yes, 5 days per week Don’t know Refused to answer Not asked	Receipt;	Attending clubs and day centres	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
13. What best describes your home	Code granny flat as “standard” housing “Standard” housing Sheltered housing with warden Residential home: council Residential home: private Nursing home Long stay hospital Other (specify) SKIP J1 LINE1 Don’t know Refused to answer Not asked	Receipt;	Living arrangements	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
1. Are you able to get in and out of bed? (If uses aids or appliances but also needs someone to help them, code as “I am unable to do this myself, I need someone else’s help”	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL - getting in and out of bed	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
2. Are you able to get in and out of a chair	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL- ability to use chair	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
3. Are you able to get on and off the toilet	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t know Not applicable Refused to answer Not asked”	Need;	ADL- ability to use toilet	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
4 Does anyone help you to use the toilet? 5 Who usually helps you? 6 Do they help: 7 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Need;	ADL - help using toilet	2010	85-120	85	120	Adult (85+) participants	No	Currently	Phase 3	No		N85
20. Would you say the help you get to dress/undress:	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received to get dressed	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
21. Are you able to wash your face and hands	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	ADL - washing face and hands	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
22. Are you able to wash yourself all over	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	ADL - help washing and drying body	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
23. Does anyone help you to wash and dry your whole body	Yes No Don’t Know Refused to answer Not asked	Receipt;	Unpaid carer / paid carer	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
24. Who usally helps you 25. Do they help 26. Does anyone else help you	Part 1: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 2: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 3: (code up to 3) No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - who	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
27. Would you say the help you get with washing yourself	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received to wash	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
28. Are you able to cut your own toenails	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	ADL- grooming	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
29. Are you able to feed yourself (including cutting up food)	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	ADL - feeding	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
30. Are you able to prepare and cook a hot meal	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	IADL- meal prep	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
31. Does anyone help you to prepare	Yes No Don’t Know Refused to answer Not asked	Receipt;	Unpaid carer / paid carer	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
32. Who usally helps you 33. Do they help 34. Does anyone else help you	Part 1: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 2: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 3: (code up to 3) No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - multiple	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
35. Would you say the help you get to prepare hot meals	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received to prepare meals	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
36. Are you able to do your shopping for groceries (including getting your shopping from home)	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	IADL- shopping	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
37. Does anyone help you to shop for your groceries ( including getting your shopping home)	Yes No Don’t Know Refused to answer Not asked	Receipt;	Unpaid carer / paid carer	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
38. Who usally helps you 39. Do they help 40. Does anyone else help you	Part 1: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 2: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 3: (code up to 3) No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - multiple	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
41. Would you say the help you get with shopping	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received to shop	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
42. Are you able to do light housework (e.g dusting and tidying up)	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	IADL- housework	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
43. Are you able to fo heavy housework (e.g mopping, vaccuming)	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	IADL- housework	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
44. Does anyone help you to do your housework (light or heavy duties)	Yes No Don’t Know Refused to answer Not asked	Receipt;	Unpaid carer / paid carer	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
45. Who usally helps you with housework 46. Do they help 47. Does anyone else help you	Part 1: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 2: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 3: (code up to 3) No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - multiple	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
5 Do you have any of the following adaptations to your home? Ramps Automatic or easy open doors Widened doorways or hallways Handrails / grab rails/extra bannister Lift Stair lift Elevated toilet Toilet rails/toilet frame Grab rail beside bath Adapted bath Level access shower	No, I don’t have it Yes, I have it Don’t know Refused to answer Not asked	Receipt;	Home adaptations	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
6 Do you have any other adaptations to your home?	Open answer	Receipt;	Home adaptations	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
1 In the last 4 weeks have you seen or had a visit from, or to, any of the following services and if so, how often? Warden Home care (social services) Home care (voluntary agency) Home care (private help) Night attendant/sitter (social services) Night attendant/sitter (voluntary agency) Night attendant/sitter (private help) Day sitter (social services) Day sitter (voluntary agency) Day sitter (private help) Meals provision (social services) Meals provision (voluntary agency) Meals provision (private help) Community nurse Private nurse Physiotherapist Occupational therapist Chiropodist (NHS) Chiropodist (Private) Speech therapist Dietician Social Worker	Several times a day Once a day One or more times a week Less than once a week No contact Don’t know Not applicable Refused to answer Not asked	Receipt;	Visits from services	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
3 In the last 4 weeks have you attended a: Luncheon club Day centre	No Yes, less than once a week Yes, 1-2 days per week Yes, 3-4 days per week Yes, 5 days per week Don’t know Refused to answer Not asked	Receipt;	Attending clubs and day centres	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
12 During the last year have you received “short break” or respite care in a care home or hospital? 13 Where was this?	Part 1: Yes No Resident in care home / hospital for last 12 months Don’t know Refused to answer Not asked Part 2: Care home (Residential Home / Nursing home) Hospital Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Respite care - receipt of short break	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
14 On how many days was “short break” /respite care received?	Number of days	Receipt;	Respite care - number of days	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
19 Formal care section answered by	Participant alone Proxy alone Participant and proxy Item not completed	Receipt;	Administrative question - formal care	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
20 If participant and proxy was this	Mainly participant Mainly proxy Equal contribution Not applicable Item not completed	Receipt;	Administrative question - formal care	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
1. What best describes your home	Code granny flat as “standard” housing “Standard” housing Sheltered housing with warden Residential home: council Residential home: private Nursing home Long stay hospital Other (specify) SKIP J1 LINE1 Don’t know Refused to answer Not asked	Receipt;	Living arrangements	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
1. Are you able to get in and out of bed (If uses aids or appliances but also needs someone to help them, code as “I am unable to do this myself, I need someone else’s help” )	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	ADL - getting in and out of bed	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
3. Are you able to get in and out of a chair (If uses aids or appliances but also needs someone to help them, code as “I am unable to do this myself, I need someone else’s help” )	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	ADL - getting in and out of chair	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
4. Are you able to get on and off the toilet (If uses aids or appliances but also needs someone to help them, code as “I am unable to do this myself, I need someone else’s help” )	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	ADL - getting on and off toilet	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
5 Does anyone help you to use the toilet? 8 Who usually helps you? 9 Do they help: 10 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - who	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
11. Would you say the help you use to get the toilet	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received using toilet	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
12. Are you able to get around the house	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	ADL - getting around house	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
13. Are you able to go up and down stairs/steps	Yes No Don’t Know Not applicable I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Refused to answer Not asked	Need;	ADL - getting up and down stairs	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
14. Are you able to walk at least 400 yards	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	ADL - walking	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
15. Are you able to dress and undress yourself	I have no difficulty doing this by myself I have some difficulty doing this by myself I can only do this by myself if I use an aid or appliance I am unable to do this by myself, I need someone else’s help Don’t Know Refused to answer Not asked	Need;	ADL - dressing and undressing	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
16. Does anyone help you dress/undress	Open answer	Need;	ADL - dressing and undressing	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
17. Who usally helps you 18. Do they help 19. Does anyone else help you	Part 1: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 2: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 3: (code up to 3) No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - multiple	2007	85-120	85	120	Adult (85+) participants	No	Currently	Phase 2	No		N85
44 Would you say the help you get to prepare hot meals:	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received preparing hot meals	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
45 Are you able to do your shopping for groceries? (including getting your shopping home) 46 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (up to 4 reasons may be specified)	Need;	IADL - shopping for groceries	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
47 Does anyone help you to shop for groceries (including getting your shopping home)?	Yes No Don’t know Not applicable Refused to answer Not asked	Receipt;	IADL - help shopping for groceries	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
48 Who usually helps you?	Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Other (specify) Shop delivery service (including internet shopping) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - who	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
49 Do they help:	Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked	Receipt;	Frequency of care received	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
50 Does any one else help you?	No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Other (specify) Shop delivery service (including internet shopping) Don’t know Not applicable Refused to answer Not asked	Receipt;	Unpaid carer / Paid Carer - multiple carers	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
51 Would you say the help you get with shopping:	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received - shopping	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
52 Are you able to do light housework? (E.g. dusting and tidying up) 53 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may	Need;	IADL - light housework	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
54 Are you able to do heavy housework (e.g. mopping, vacuuming)? 55 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (up to 4 reasons may be specified)	Need;	IADL - heavy housework	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
56 Does anyone help you to do your housework (light or heavy duties)? 57 Who usually helps you? 58 Do they help: 59 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	IADL - help with housework	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
60 Would you say the help you get with housework:	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received - help with housework	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
61 Are you able to take your medication? 62 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may be specified)	Need;	IADL - ability to take medication	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
64 Does anyone help you with your medication? 65 Who usually helps you? 66 Do they help: 67 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	IADL - help with medication	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
68 Would you say the help you get with managing your medication:	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received - help taking medication	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
69 Are you able to manage money such as paying bills and keeping track of expenses? 70 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may be specified)	Need;	IADL - ability to manage money	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
71 Does anyone help you to manage money? 72 Who usually helps you? 73 Do they help: 74 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	IADL - help managing money	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
75 Would you say the help you get to manage money:	“Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked”	Receipt;	Adequacy of care received - managing money	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
76 Do you have any other particular needs for which you don’t receive any help or the help you receive is not enough? You don’t need to include things you’ve already told me about.	Code all that apply No other needs Shaving Decorating Gardening Hanging curtains DIY Transport Other (specify) Don’t know Refused to answer Not asked	Need;	IADL - any other particular needs	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
3 Now I am going to ask you about some other aids/appliances, for each I will ask you whether you have one and, if so, whether you use it. Walking stick White stick Walking frame Wheeled walker Manual wheelchair Electric wheelchair Mobility scooter Equipment to help you get in and out of bed Specialised bed (in and out) Chair with special features (in and out) Chair raising equipment Commode Dressing equipment (eg shoe horn, stocking aid) Kitchen equipment (eg jar opener, kettle tipper) Feeding / drinking equipment (eg special cutlery, 2 handled mugs) Hoists Bath equipment (eg seats, bath lifts) Pressure relieving mattress or cushion	No, I don’t have it Yes, I have it and I use it Yes, I have it but I don’t use it` Don’t know Refused to answer Not asked	Receipt;	Mobility - aids and appliances	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
4 Do you have any other aids/appliances and do you use them?	Open answer	Receipt;	Mobility - aids and appliances	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
1. What best describes your home	Code granny flat as “standard” housing “Standard” housing Sheltered housing with warden Residential home: council Residential home: private Nursing home Long stay hospital Other (specify) SKIP J1 LINE1 Don’t know Refused to answer Not asked	Receipt;	Living arrangements	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
1. What year is this? 2. What season is this? 3. What month of the year is this? 4. What is today’s date? 5. What day of the week is this? 6. What country are we in? 7. What county are we in? 8. What city/town are we in? 9. In the home: What is the street address of this house? In the clinic: What is the name of this hospital/building? 10. In the home: What room are we in? In the clinic: What floor of the building are we on? 11. Registration I am going to name three objects. After I have said all 3 objects, I would like you to repeat them. Try to remember what they are because I am going to ask you to name them again in a few minutes. So the 3 objects are: ball – car – man Say them slowly at approximately 1 second intervals Please repeat the 3 items for me. Allow 20 seconds for response First attempt ball car man 12. Attention and calculation Could you spell the word WORLD You may help the participant to spell the word correctly Now spell it backwards please Allow 30 seconds to spell it backwards DLROW 13 Recall Now what were the 3 objects that I asked you to remember? Allow 10 seconds for response. 14. Show wristwatch and ask What is this called? allow 10 seconds 15. Show pencil and ask What is this called? 16. Repetition of phrase I would like you to repeat this phrase after me: “No ifs, ands or buts”. Allow 10 seconds for response Note participant’s answer 17. ‘Close your eyes’ Read the words on this page and then do what it says Hand the participant the laminated sheet ‘close your eyes’ Allow 10 seconds If the participant just reads and does not then close eyes, you may repeat ‘Read the words on this page and then do what it says’ to a maximum of three times. Participant does not have to read out loud. 23 Score 18. Following instructions Could I just check, are you right or left handed? (Circle which ) Take a piece of paper hold it up in front of the participant and say Take this paper in your ………..hand, (insert left if right handed or right if left handed) fold the paper in half once with both hands and put the paper down on your lap. Only give the participant the paper after completing all the instructions Allow 30 seconds Takes paper in correct hand Folds it in half Puts it on lap 19. Sentence Hand participant a pencil and paper Please could you write any complete sentence on that piece of paper. allow 30 seconds Interviewer to copy sentence here: 20. Copy diagram Place design, pencil, eraser and paper in front of the participant Please could you copy this design for me. Allow multiple tries until the participant has finished and hands it back. Maximum time 1 minute. 26. Were any items ‘not asked’? 27. Reasons why items not asked Code all that apply 28. Were any items ‘refused’? 29. Reasons why items refused Code all that apply 30 Was the participant’s performance on attempted questions limited by any problems unrelated to cognitive function? 31. If Yes, what problem(s) Code all that apply	1-10: Correct Incorrect Not Asked 11: If the participant could not repeat all 3 words in the first attempt, then reiterate ball – car – man, until the participant can repeat all three, up to 5 attempts. Note the number of attempts 12-16: Correct Incorrect Not Asked 17: Did the participant close their eyes? Yes No Item omitted. 18. Takes paper in correct hand Folds it in half Puts it on lap 19-20: Correct Incorrect Not Asked 26: Yes No Not applicable Item not completed 27: Visual impairment Hearing impairment Speech impairment Language barrier Unable to comprehend task Literacy problem (unable to read/write) Reduced manual dexterity Distress Fatigue Interviewer error Other reason (specify) Not applicable Reason not entered 28. Yes No Not applicable Item not completed 29. Participant refused – no reason Participant refused – other reason (specify) Relative/carer refused – no reason Relative/carer refused – other reason (specify) Not applicable Reason not entered The linked image cannot be displayed. The file may have been moved, renamed, or deleted. Verify that the link points to the correct file and location. The linked image cannot be displayed. The file may have been moved, renamed, or deleted. Verify that the link points to the correct file and location. The linked image cannot be displayed. The file may have been moved, renamed, or deleted. Verify that the link points to the correct file and location. 30. Yes No Not applicable Item not completed 31. Visual impairment Hearing impairment Speech impairment Language barrier Literacy problem (unable to read/write) Reduced manual dexterity Distress Fatigue Other reason (specify) Not applicable Reason not entered	Need;	Standardised mini-mental state examination (SMMSE)	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	Yes	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
1. Are you able to get in and out of bed? (If uses aids or appliances but also needs someone to help them, code as “I am unable to do this myself, I need someone else’s help” 2. What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may be specified)	Need;	ADL - getting in and out of bed	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
3. Are you able to get in and out of a chair? 4 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may be specified)	Need;	ADL - getting in and out of chair	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
5 Are you able to get on and off the toilet? 6 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may	Need;	ADL - getting on and off toilet	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
7 Does anyone help you to use the toilet? 8 Who usually helps you? 9 Do they help: 10 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Whenever you need the toilet Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	ADL - help using toilet	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
11 Would you say the help you get to use the toilet:	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of help received using toilet	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
12 Are you able to get around in the house? 13 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may	Need;	ADL - getting around house	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
14 Are you able to go up and down stairs/steps? (At least 12) 15 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may	Need;	ADL - getting up and down stairs	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
18 Are you able to dress and undress yourself? 19 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may	Need;	ADL - dressing and undressing	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
20 Does anyone help you to dress/undress? 21 Who usually helps you? 22 Do they help: 23 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: (code up to 3) No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	ADL - help dressing and undressing	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
24 Would you say the help you get to dress/undress:	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received to dress/undress	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
25 Are you able to wash your face and hands? 26 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may	Need;	ADL - washing face and hands	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
27 Are you able to wash yourself all over? 28 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (up to 4 reasons may be specified)	Need;	ADL - wash yourself all over	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
29 Does anyone help you to wash and dry your whole body? 30 Who usually helps you? 31 Do they help: 32 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: (code up to 3) No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked	Receipt;	ADL - help washing and drying body	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
33 Would you say the help you get with washing yourself:	Meets your needs all the time Usually meets your needs Sometimes meets your needs Hardly ever meets your needs? Don’t know Not applicable Refused to answer Not asked	Receipt;	Adequacy of care received with washing	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
34 Are you able to cut your own toenails? 35 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may	Need;	ADL - cutting own toenails	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
36 Are you able to feed yourself (including cutting up food)? 37 What is the cause of your difficulty?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may	Need;	ADL - feeding self	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
38 Are you able to prepare and cook a hot meal?	Part 1: 1. I have no difficulty doing this by myself 2. I have some difficulty doing this by myself 3. I can only do this by myself if I use an aid or appliance 4. I am unable to do this by myself, I need someone else’s help Part 2: (Up to 4 reasons may	Need;	IADL - preparing hot meal	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85
40 Does anyone help you to prepare and cook hot meals? 41 Who usually helps you? 42 Do they help: 43 Does any one else help you?	Part 1: Yes No Don’t know Not applicable Refused to answer Not asked Part 2: Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Community nurse Private Nurse Other (specify) Don’t know Not applicable Refused to answer Not asked Part 3: Several times a day Once a day Most days Less often? Don’t know Not applicable Refused to answer Not asked Part 4: No, no-one else helps Spouse/Partner Children Other relatives Friend or neighbour Home help/Home care provided by Social Services Home help/Home care provided by a voluntary agency Home help/ Home care (private) Care worker (in residential/nursing home) Other (specify) Meals provision service (e.g. Meals on wheels) Don’t know Not applicable Refused to answer Not asked	Receipt;	IADL - help preparing hot meal	2006	85-120	85	120	Adult (85+) participants	No	Currently	Phase 1 (Baseline)	No	General health Hearing Eyesight Blood pressure – sitting Smoking Hand grip strength	N85

England

Aims

The Newcastle 85+ Study is the world’s largest population-based longitudinal study of health and ageing in the over-85s. The study aims to assess the spectrum of health in the oldest old, identify factors which contribute to the maintenance of health and independence and advance understanding of the biological nature of human ageing.

Institution

Newcastle University Institute of Health & Society

Geographic coverage - Nations

Newcastle upon Tyne; North Tyneside; Northumberland; Sunderland;

Start date

2006

Minimum age at recruitment

Sample Size

1,042

Sample

Study design

Cohort study

Sample details

1,042 people born in 1921 registered with a general practitioner in Newcastle upon Tyne or North Tyneside. The sampling frame comprised all people born in 1921 who were permanently registered with a participating general practice in Newcastle upon Tyne or North Tyneside primary care trusts. General practitioners were asked to review patient lists before mail-out and to exclude only those with end stage terminal illness and those who might pose a safety risk a nurse visiting alone. All those remaining were sent a letter of invitation whether living at home or in an institution and regardless of their health status.

Comparison of sociodemographic factors among the sample with equivalent figures from the 2001 national census shows that the sample is broadly representative of the local population with a slight under-representation of women. The sample is also generally comparable to general population of England and Wales (Collerton et al 2009).

Sex

All

Sample Characteristics

Older adults cohort

Sample size at most recent sweep

1,042 individuals

Individual data available (e.g. upon special request)?

Data Access Level

Restricted access only (application required)

Data Access

Contact study team

https://research.ncl.ac.uk/85plus/datarequests/

Regional variable present?

Yes

Local Authority variable present?

No

Complementary Data

Genetic/genomic data

Genetic Data Collected

Yes

Linked Data

Health data

HDR UK Innovation Gateway

Website

research.ncl.ac.uk/85plus/aboutourproject

Notes

Related Measures

Biomarkers, Cognitive decline, Cognitive measures, Diet and nutrition, Education, Ethnicity and race, Household composition, Housing, Loneliness and social isolation, Mental health measures, Pensions, Physical health assessment, Sleep problems, Social support, Socioeconomic status and deprivation, Work and employment,

Study Code

N85

Reference paper(s)

Collerton, J et al. (2007) The Newcastle 85+ study: biological, clinical and psychosocial factors associated with healthy ageing: study protocol, BMC Geriatrics, 7(14).

doi.org/10.1186/1471-2318-7-14

Funders

Biotechnology and Biological Sciences Research Council

Dunhill

Medical Research Centre

National Institute for Health and Care Research

Catalogue of Social Care Data

UNITING SOCIAL CARE DATA