Survey of Carers in Households (SCH)

Measures describe a question asked to a participant during a survey or an item of information requested from a manager when they fill out a data return. For example, ‘Who do you live with?’ is a measure and the possible responses might be, mother, father, brother, sister etc.

Question/Data item wording	Response scale wording	Need OR provision OR receipt	Description of measure	Start Year	Age of interest	Age to	Informant	Multiple rater	Reporting term	Sweep title	Standard instrument	Dataset
Do you have any long-standing illness, disability or infirmity – by long-standing I mean anything that has troubled you over a period of time or that is likely to affect you over a period of time?	Yes No	Provision;	Carer's health - illness or disability	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
ASK ALL WITH A LONG-STANDING ILLNESS, DISABILITY OR INFIRMITY Does this illness or disability (Do any of these illnesses or disabilities) limit your activities in any way?	Yes No	Provision;	Carer's health - illness or disability	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Has your ability to take up, or stay in, EMPLOYMENT been affected by the assistance you give to (NAME OF PERSON(S) CARED FOR) in any of the ways on this card? (FOR ALL RESPONSES, THESE SHOULD BE AS A RESULT OF THE CARING AND NOT FOR OTHER REASONS. IF CHANGED JOB, INCLUDE ALL REASONS FOR THE CHANGE, FOR EXAMPLE, NEW JOB WITH LESS RESPONSIBILITY)	Left employment altogether (due to caring responsibilities) Took new job Reduced employment hours Reduced responsibility at work Flexible employment agreed Changed to work at home Other No, employment not affected because of caring responsibilities	Provision;	Effect of caring on carer's employment	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Has your ability to take up, or stay in, EDUCATION been affected by the assistance you give to (NAME OF PERSON(S) CARED FOR) in any of the ways on this card? (FOR ALL RESPONSES, THESE SHOULD BE AS A RESULT OF THE CARING AND NOT FOR OTHER REASONS)	Unable to study (due to caring responsibilities) Reduced study hours Flexible study time agreed . Changed to study at home Other No, none of these	Provision;	Effect of caring on carer's education	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Has your ability to spend time doing leisure or social activities been affected by the assistance you give to (NAME OF PERSON(S) CARED FOR) in any of the ways on this card? This includes seeing friends and family, spending time with a spouse or partner. (FOR ALL RESPONSES, THESE SHOULD BE AS A RESULT OF THE CARING AND NOT FOR OTHER REASONS)	Unable to socialise or take part in social or leisure activities at all (due to caring responsibilities). Reduced time with spouse or partner. Reduced time with other family members Reduced time with friends Difficulties making new friends Reduced time spent doing sport or physical activity Reduced time spent doing pastime or hobby Other None of these	Provision;	Effect of caring on carer's leisure activities	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Which of these best describes the special help you provide to …(NAME)?	There is a regular pattern Regular pattern some minor variation Irregular pattern – changes from week to week > Irregular pattern changes from day to day	Provision;	Patterns of caring	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
And do you think that over the next 5 years the amount of time that you spend looking after or helping [NAME] will … ?	Increase significantly Increase slightly Remain the same Decrease slightly Decrease significantly Don’t know	Provision;	Predicted future care burden	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
ASK IF MAIN CARED FOR PERSON LIVES IN ANOTHER HOUSEHOLD How far do you travel to look after or help [NAME]?	Short walking distance Under a mile Over 1 mile under 5 miles Over 5 miles under 10 miles Over 10 miles under 15 miles Over 15 miles under 20 miles Over 20 miles	Provision;	Distance travelled for caring role	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
ASK ALL WHO ARE NOT IN EMPLOYMENTAND ARE OF WORKING AGE ( Do you have any interest in taking up paid employment?	Yes, in the near future Yes, when my caring responsibilities are reduced No plans to return to work Don’t know	Provision;	Carer's interest in taking-up paid work	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
ASK ALL WHO ARE INTERESTED IN TAKING UP PAID EMPLOYMENT (You mentioned earlier that you are currently Going to school or college full-time / On a government scheme for employment training / Waiting to take up paid work already obtained / Looking for paid work on a government training scheme / Intending to look for paid work but prevented by temporary sickness or disability) Would you like to go into a full or part-time job?	Full-time Part-time Don’t know	Provision;	Carer's interest in full time/part time work	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
To what extent do you either agree or disagree with the following statements about potential barriers you might face in taking up paid employment.	Options: Agree strongly Tend to agree Neither agree nor disagree Tend to disagree Disagree strongly Don’t know Not applicable Statements: • I cannot work because of my disability or health condition • I cannot work because of my caring responsibilities. • I am not sure I would be able to work regularly • At my age it is unlikely that I would find a suitable job • I don’t feel confident about working • I haven’t got enough qualifications and experience to find the right work • There aren’t enough suitable job opportunities locally • I’m not sure I would be better off in work than on benefits • I cannot work because of my childcare responsibilities • My family/dependent/s don’t want me to work	Provision;	Carer's barriers to paid employment	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Were you aware that if you look after or give special help to sick, disabled or elderly people and you have worked for the same employer for at least 26 weeks you are now legally entitled to request flexible working (e.g. flexitime or working from home), and that all employers are required to give consideration to any such requests? And have you made a request to work flexibly?	For first part of question: Yes No Don’t know For second part of question: Yes No Don’t know	Provision;	Carer's awareness of carer working rights	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
In which of these ways do you occupy this accommodation?	Own outright Buying it with the help of a mortgage or loan Pay part rent and part mortgage (shared ownership) Rent it Live here rent-free (including rent-free in relative’s/friend’s property; excluding squatting). Squatting	Provision;	Carer's occupancy status	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
I would like to get some idea of your household’s income. This card shows various possible sources of income. Can you please tell me which kinds of income your household receives?	Earnings from employment or self-employment . State retirement pension Pension from former employer Personal Pensions Child Benefit Job-Seekers Allowance Pension Credit Income Support Working Tax Credit Child Tax Credit Housing Benefit Carers Allowance Disability Living Allowance/ Attendance Allowance. Other state benefits . Interest from savings and investments (e.g. stocks & shares) Other kinds of regular allowance from outside your household (e.g. maintenance, student’s grants, rent). No source of income Don’t know	Provision;	Carer's household income - sources of income	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
This card shows incomes in weekly, monthly and annual amounts. Which of the groups on this card represents your household’s total income from all these sources, before any deductions for income tax, National Insurance, etc? Just tell me the letter beside the row that applies to (you/your joint incomes).	Weekly H Less than £50 D £51 less than £100 J £100 less than £200 B £200 less than £300 F £300 less than £400 E £400 less than £650 I £650 less than £788 A £788 less than £885 K £885 less than £1,154 G £1,154 less than £1,538 C £1,538 or more Monthly Less than £216 £216 less than £433 £433 less than £866 £866 less than £1,300 £1,300 less than £1,733 £1,733 less than £2,816 £2,816 less than £3,417 £3,4167 less than £3,833 £3,833 less than £5,000 £5,000 less than £6,667 £6,667 or more Annual Less than £2600 £2600 less than £5200 £5,200 less than £10,400 £10,400 less than £15,600 £15,600 less than £20,800 £20,800 less than £33,800 £33,800 less than £41,000 £41,000 less than £46,000 £46,000 less than £60,000 £60,000 less than £80,000 £80,000 or more Don’t know Prefer not to say	Provision;	Carer's household income - amount of income	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Thinking generally, which of the phrases on the card best describes how your household are getting along financially nowadays?	I/we manage very well I/we manage quite well I/we get by alright I/we have some financial difficulties I/we have severe financial difficulties Don’t know Prefer not to answer	Provision;	Carer's household income - amount of income	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Do you have any of the qualifications listed on this card? Please look down the whole list before telling me. IF YES: Which of the qualifications on this card do you have? Just tell me the number written beside each one. RECORD ALL THAT APPLY. PROBE: Any others?	Degree/degree level qualification (including higher degree) Teaching qualification Nursing qualifications SRN, SCM, SEN, RGN, RM, RHV, Midwife HNC/HND, BEC/TEC Higher, BTEC Higher/SCOTECH Higher ONC/OND/BEC/TEC/BTEC not higher City and Guilds Full Technological Certificate City and Guilds Advanced/Final Level City and Guilds Craft/Ordinary Level A-levels/Higher School Certificate AS level SLC/SCE/SUPE at Higher Grade or Certificate of Sixth Year Studies. O-level passes taken in 1975 or earlier O-level passes taken after 1975 GRADES A-C O-level passes taken after 1975 GRADES D-E GCSE GRADES A-C GCSE GRADES D-G CSE GRADE 1/SCE BANDS A-C/Standard Grade LEVEL 1-3 CSE GRADES 2-5/SCE Ordinary BANDS D-E CSE Ungraded SLC Lower SUPE Lower or Ordinary School Certificate or Matric NVQ Level 5 . NVQ Level 4 NVQ Level 3/Advanced level GNVQ NVQ Level 2/Intermediate level GNVQ NVQ Level 1/Foundation level GNVQ Recognised Trade Apprenticeship completed Clerical or Commercial Qualification (e.g. typing/book-keeping/commerce) Other (SPECIFY) No qualifications	Provision;	Carer's qualifications	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
How is your health in general; would you say it is…	Very good Good Fair Bad Very bad	Provision;	Carer's health - general health	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
ASK ALL WHO ARE INTERESTED IN TAKING UP PAID EMPLOYMENT Which of the following things would help you to take up paid employment?	The ability to work from home Having some flexibility in the hours you want to work Access to affordable childcare Access to affordable care for the person you care for Better public transport Other (SPECIFY)	Provision;	Help in taking-up paid employment	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
And have you ever had a carer’s assessment?	Yes No	Receipt;	Carer's assessment - completion	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Have you ever been offered a carer’s assessment of your own needs by your local social services or health authority?	Yes No Don’t know	Receipt;	Carer's assessment - offer	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
The card shows various types of temporary care or holidays which may be available. Are any of these services available if you wanted a break?	Help provided in the home (eg sitting/befriending service) Help provided in a residential setting (volunteer family/adult placement, residential/nursing home or hospital) Holiday together SPONTANEOUS – None of these available/possible SPONTANEOUS – Don’t know Other	Receipt;	Breaks from caring - temporary care and holiday availability	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
In the last year, have you made use of a befriending service for …… (DEPNAME) (that’s where a volunteer takes him/her out for the day?)	Yes No Not available /DK about service	Receipt;	Breaks from caring - befriending service	2010	0-120	120	Carer	No	Past year	2010 - Carers	No	SCH
In the last year, have you made use of a sitting service for …. (NAME OF PERSON CARED FOR) in order to go out for a couple of hours?	Yes No Not available /DK about service	Receipt;	Breaks from caring inside one day - sitting service	2010	0-120	120	Carer	No	Past year	2010 - Carers	No	SCH
If you wanted to go out for a couple of hours (during the time when you usually look after ….. (NAME OF PERSON CARED FOR), would someone else have to look after him/her?	Yes, someone else needed No, could be left alone	Need;	Breaks from caring inside one day - need for replacement carer	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
What sort of arrangements did you use for ….. (NAME OF PERSON CARED FOR) when you last had a break for 2 days or more?	Nursing or residential home NHS hospital Local authority hostel Arranged holiday (cared for person only) Arranged holiday (cared for person and carer) Stay with a volunteer family. Stay with relatives or friends . Friend or relative staying with cared for person . Other (SPECIFY)	Receipt;	Breaks from caring - respite services used	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
About how many years is it since you last had a break for 2 days or longer?	Number of years	Provision;	Breaks from caring - time since last break	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
About how long is it since you last had a break for 2 days or longer? Was it less than or more than 1 year ago? IF LESS THAN I YEAR AGO About how many months is it since you last had a break for 2 days or longer?	Less than 1 year ago 1 year or more ago For second part of question: Number of months	Provision;	Breaks from caring - time since last break	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
When you had your assessment, did social services take into account your wish to pursue any leisure interests as well as care for someone?	Yes No Not applicable	Receipt;	Carer's assessment - own wish to pursue leisure interests	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Have you had a review of your own needs by your local social services or health authority in the last year?	Yes No	Receipt;	Review of carer's needs - completion	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Has your own health been affected by the care you provide in any of the ways on this card? (FOR ALL RESPONSES, THESE SHOULD BE AS A RESULT OF THE CARING AND NOT FOR OTHER REASONS)	Feeling tired Feeling depressed. Loss of appetite Disturbed sleep General feeling of stress . Physical strain (e.g. back) Short tempered/irritable Had to see own GP Developed my own health condition Made an existing condition worse Other No, none of these	Provision;	Effect of caring on carer's health	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
If we were to define “quality of life” as how you feel overall about your life, including your standard of living, your surroundings, friendships and how you feel day-to- day, how would you rate your quality of life?	Very good Fairly good Neither good nor bad Fairly bad Very bad (Don’t know)	Provision;	Carer's quality of life	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Have your personal relationships, social life or leisure been affected by the assistance you give to (NAME OF PERSON BEING CARED FOR)? In what way have you been affected?	Yes No Too tired to go out Less time for leisure activities Unable to go on holiday Providing care has affected my own health I am more aware of disabled people’s needs Other (SPECIFY)	Provision;	Effect of caring on personal life	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Why did you start looking after or giving special help to [NAME]?	No one else available I was willing / I wanted to help out I had the time because I was not working I had the time because I was working part time I have particular skills / ability to care Social Services ( local Authority ) suggested I should provide care It was expected of me (It’s what families do) He/she wouldn’t want anyone else caring for them Cared for person requested my help/care I took over caring responsibilities from someone else Other (SPECIFY)	Provision;	Reason for becoming carer	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
How useful was the [NAME OF SERVICE]?	Very useful Fairly useful Not very useful Not at all useful Don’t know	Receipt;	Carer's assessment - rating usefulness of service	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
When you had your assessment, did social services take into account your wish to study . do a course as well as care for someone?	Yes No Not applicable	Receipt;	Carer's assessment - own wish to study	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
When you had your assessment, did social services take into account your wish to do paid work as well as care for someone?	Yes No Not applicable	Receipt;	Carer's assessment - own wish to do paid work	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Did you receive any services or help as a result of the assessment or review?	No Services . Information about the condition of the person you care for Information about other organisation providing services Information on support to remain in paid work or return to paid work Information about benefits Information about support group Break in own home. Break away from home Information about direct payments Assessment of the person you care for Services for the cared for person . Equipment (e.g. mobility aids) . Received a direct payment Other	Receipt;	Carer's assessment - resulting provision of services	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Have you ever been offered a review of your own needs by your local social services or health authority?	Yes No Don’t know	Receipt;	Review of carer's needs - offer	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Have you had a break for 2 days or more since you started to look after …….. (NAME OF PERSON CARED FOR)?	Yes No	Provision;	Breaks from caring - has carer had break	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Does the carer give financial help only?	Yes No	Provision;	Carer giving financial help	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
About how long do you spend EACH WEEK looking after or helping (NAME OF PERSON CARED FOR) – that is doing the things you’ve mentioned and including time when you just need to be there (apart from when you are asleep/ including time travelling to and from his/her home)?	0-9 hours per week 10-19 hours per week. 20-34 hours per week 35-49 hours per week 50-99 hours per week 100 or more hours per week Varies – Under 20 hours Varies – 20 hours or more Other	Provision;	Amount of hours spent caring	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
About how long have you been looking after or helping (NAME OF PERSON CARED FOR) IF PERSON CARED FOR IS IN HOUSEHOLD (that is doing things for him/her over and above what you would normally do for someone living with you/a child of that age)?	Less than 6 months 6 months, less than 1 year 1 year, less than 3 years 3 years, less than 5 years 5 years, less than 10 years 10 years, less than 15 years 15 years, less than 20 years 20 years or more	Provision;	Length of time spent caring	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Apart from any professional people, such as nurses or care workers (i.e. home help), who may regularly visit (NAME OF PERSON CARED FOR), is there anyone else who also looks after him/her – for example, another member of your household, another member of the family, a relative or friend?	Yes No Other person(s) spend equal time Don’t know	Provision;	Other/joint carers	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Can I just check, do any of these people (including anyone in your household) spend more time looking after (NAME OF PERSON CARED FOR) than you do?	Yes No Other person(s) spend equal time Don’t know	Provision;	Other/joint carers - amount of time	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
If more than one person is cared for (excluding clients of a voluntary organisation) (TotDep>1), others Q39 May I check; thinking about the total time you spend assisting (SPECIFY ALL PERSONS CARED FOR), about how long altogether do you spend each WEEK looking after or helping them?	0-9 hours per week 10-19 hours per week. 20-34 hours per week 35-49 hours per week 50-99 hours per week 100 or more hours per week Varies – Under 20 hours Varies – 20 hours or more Other	Provision;	Caring for multiple people - total time	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
You mentioned earlier that you spend a similar amount of time per week looking after or helping (NAME ALL ‘EQUAL’ PERSONS CARED FOR) Can you say which one you spend most time helping on average, or is there no difference?	IF RESPONDENT SAYS NO DIFFERENCE SELECT THE FIRST ELIGIBLE PERSON CARED FOR	Provision;	Caring for multiple people - share of time	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Does (NAME OF PERSON CARED FOR) receive regular visits at least once a month from any of these people? Does (NAME OF PERSON CARED FOR) have regular contact, at least once a month from any of these [other] people? Please think about face-to- face contact where (NAME OF PERSON CARED FOR) visits any of these people.	Doctor Community/district nurse / Community Matron Health visitor Social worker/care manager Home help/care worker Meals on wheels. Voluntary worker Occupational therapist Educational Professional Specialist / nursing care / palliative care. Community mental health services Other professional visitor. No, none Don’t know Same selection for second part of question.	Receipt;	Care given by other services	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
What are the reasons for (NAME OF PERSON CARED FOR) not receiving regular visits at least once a month from any of the above? Please choose your answers from the card. CODE ALL THAT APPLY	Not available/not offered Not needed Tried, but not helpful. Not wanted by you. Not wanted by the person you care for Not at a convenient time Too expensive. Not eligible. Don’t know who to ask Other	Receipt;	Reasons for not receiving care from other services	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Thinking about the places that [NAME] goes to, about how many hours a week in total does he/she usually spend without you and outside the home?	IF VARIES ASK FOR AVERAGE NUMBER OF HOURS PER MONTH AND CALCULATE AVERAGE NUMBER PER WEEK IF HOURS VARY AND CANNOT GIVE AVERAGE	Receipt;	Number of hours cared-for person spends outside of home.	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Does (NAME OF PERSON CARED FOR) regularly go to any of the places or activities listed on this card?	Work Day centre School or college. Day hospital. Social club, support group or other club None of these	Receipt;	Cared-for person visiting places/joining activities	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
The card shows various types of temporary care or holidays which may be available in some parts of the country. Are any of these services available if you wanted a break for a couple of days?	Help provided in the home (eg sitting) Nursing or residential home NHS hospital Holiday for person cared for. Holiday together Stay with a volunteer family None of these	Provision;	Breaks from caring - availability of respite services	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Who could you rely on to look after him/her? CODE ALL THAT APPLY	Relative Friend or neighbour Paid helper (professional or voluntary) Other	Provision;	Breaks from caring - who is replacement carer	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Is there anyone whom you could rely on to look after him/ her either at home or elsewhere?	Yes No	Provision;	Breaks from caring - trust in replacement carer	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
You’ve told me about the things you do for …. (NAME OF PERSON CARED FOR). If you wanted a break for a couple of days (during the time when you usually look after him/her), would someone else have to look after him/ her?	Yes, need someone else. No	Need;	Breaks from caring - need of replacement carer	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
And what are the reasons that (NAME OF PERSON CARED FOR) does not make use of a community or voluntary transport scheme? Please choose your answers from the card.	Not available/not offered Not needed Tried, but not helpful. Not wanted by you. Not wanted by the person you care for Not at a convenient time Too expensive. No need for it Prefer to use own transport Prefer to use other transport Unaware of any schemes in this area Other Don’t know	Receipt;	Community/voluntary transport schemes - reasons not to use	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Does (NAME OF PERSON CARED FOR) regularly make use of a community or voluntary transport scheme?	Yes No Don’t know	Receipt;	Community/voluntary transport schemes	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
What are the reasons that (NAME OF PERSON CARED FOR) does not go to any outside activities ?	Not available/not offered Not needed Tried, but not helpful. Not wanted by you. Not wanted by the person you care for Not at a convenient time Too expensive. Not eligible. Don’t know who to ask Other	Receipt;	Reasons care-for person does not go to outside activities	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
IF PERSON CARED FOR REGULARLY GOES TO WORK About how many of these hours a week does [NAME] usually spend at work?	IF VARIES ASK FOR AVERAGE NUMBER OF HOURS PER MONTH AND CALCULATE AVERAGE NUMBER PER WEEK IF HOURS VARY AND CANNOT GIVE AVERAGE	Need;	Number of hours cared-for person spends at work	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Can I just ask one question, is there anyone, (either living with you) or not living with you who is sick, disabled or elderly whom you look after or give special help to, other than in a professional capacity?	Yes No Refused	Provision;	Whether participant is a carer	2010	0-120	120	Carer	No	Current	2010 - Screening	No	SCH
May I check, is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to, other than in a professional capacity (for example, a sick or disabled (or elderly) relative/husband/wife/child/friend/parent, etc)?	Yes No Refused	Provision;	Whether carer lives with recipient of care	2010	0-120	120	Carer	No	Current	2010 - Screening	No	SCH
And does anyone else in your household aged 16 or older look after or give special help to someone who is sick, disabled or elderly in this household?	Yes No Refused	Provision;	Whether there are multiple carers in household	2010	0-120	120	Carer	No	Current	2010 - Screening	No	SCH
Is there anyone not living with you who is sick, disabled or elderly whom you look after or give special help to, other than in a professional capacity, (for example, a sick or disabled (or elderly) relative/husband/wife/child/friend/parent, etc)?	Yes, in another hosuehold No Don’t know	Provision;	Whether carer does not live with recipient of care	2010	0-120	120	Carer	No	Current	2010 - Screening	No	SCH
And does anyone else in your household aged 16 or older look after or give special help to someone not living with you who is sick, disabled or elderly?	Yes, in another hosuehold No Don’t know	Provision;	Whether multiple people in household give care outside of household	2010	0-120	120	Carer	No	Current	2010 - Screening	No	SCH
May I check, is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to, other than in a professional capacity (for example, a sick or disabled (or elderly) relative/husband/ wife/child/friend/parent, etc)?	Yes No Not sure	Provision;	Unpaid care inside household	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Is there anyone, not living with you who is sick, disabled or elderly whom you look after or give special help to, other than in a professional capacity, (for example, a sick or disabled (or elderly) relative/husband/wife/child/friend/parent, etc)?	Yes, in another hosuehold No Not sure	Provision;	Unpaid care outside of household	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Do you look after or help one sick, disabled or elderly person living with you, or is it more than one?	IF MORE THAN 6 CODE AS 6	Provision;	Number of people inside carers household receiving care	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Do you look after or help one sick, disabled or elderly person living elsewhere, or is it more than one?	IF MORE THAN 6 CODE AS 6	Provision;	Number of people outside of carers household receiving care	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Who is it (in your household/ not living with you) that you look after or help?	Spouse/partner Own/adopted/step child Foster child Parent Parent-in-law Grand-parent Other relative Friend or neighbour Client of voluntary organisation Other	Provision;	Person who carer helps inside household	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Age of (NAME OF PERSON CARED FOR)	Age	Provision;	Age of care recipient	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Sex of person cared for	Male Female	Provision;	Sex of care recipient	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
May I check, does (NAME OF PERSON CARED FOR) usually live in a hospital, residential or nursing home?	Yes No	Receipt;	Residence of care recipient	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
May I just check, does (NAME OF PERSON CARED FOR) usually live here all the time or does he/she sometimes go to live somewhere else?	Lives here all the time Sometimes lives somewhere else	Receipt;	Residence of care recipient - multiple locations	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Where does (NAME OF PERSON CARED FOR) live when he/she is not living with you? Is it in another household or somewhere else?	In another private household Boarding school/residential college Residential home Nursing or care home Hospital Other institution Other	Receipt;	Residence of care recipient - second location	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
May I check, why does (NAME OF PERSON CARED FOR) need care? Just call out the letters that apply.	B Dementia G A physical disability D Sight or hearing loss A A mental health problem F A learning disability or difficulty C Long-standing illness E Terminal illness H Alcohol or drug dependency I Other Problems connected to ageing (SPONTANEOUS ONLY)	Need;	Reason care is needed	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Could I just check, how is [NAME OF PERSON CARED FOR] affected?	1 Physically >Q30 2 Mentally >Q30 3 Both physically and mentally >Q30 4 SPONTANEOUS ONLY – Old age >Q30 5 Other >Q30	Need;	Reason care is needed	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
Is the condition/illness/disability permanent or temporary?	Permanent Temporary	Need;	Reason care is needed	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
What kinds of things do you usually do for (NAME OF PERSON CARED FOR)? IF IS IN HOUSEHOLD (over and above what you would normally do for someone living with you/a child of his/her age?)	Personal care ? (e.g. dressing, bathing, washing, shaving, cutting nails, feeding, using the toilet) Physical help? (e.g. with walking, getting up and down stairs, getting into and out of bed) Helping with dealing with care services and benefits? (e.g. making appointments and phone calls, filling in forms) Helping with other paperwork or financial matters? (e.g. writing letters, sending cards, filling in forms, dealing with bills, banking) Other practical help? (e.g. preparing meals, doing his/her shopping, laundry, housework, gardening, decorating, household repairs, taking to doctor’s or hospital) Keeping him/her company? (e.g. visiting, sitting with, reading to, talking to, playing cards or games) Taking him/her out? (e.g. taking out for a walk or drive, taking to see friends or relatives) Giving medicines? (e.g. making sure he/she takes pills giving injections, changing dressings) Keeping an eye on him/her to see he/she is all right? Other help?	Provision;	Provision of assistance with ADLs/IADLs	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH
And how often do you help [NAME OF PERSON CARED FOR] with … ?	Personal care? Physical help? Helping with dealing with care services and benefits? Helping with other paperwork or financial matters? Other practical help? Keeping him/her company? Taking him/her out? Giving medicines? Keeping an eye on him/her to see he/she is all right For all of the above subjects participants rate with the following: More than once a day Once a day Most days 2-3 times a week Once a week Less than once a week, but at least once a month Less often	Provision;	Frequency of provision of assistance with ADLs/IADLs	2010	0-120	120	Carer	No	Current	2010 - Carers	No	SCH

England

Aims

The Survey of Carers in Households was commissioned by the Department of Health as part of the Government’s Carers’ Strategy programme. The NHS Information Centre for health and social care (NHS IC) undertook responsibility for this survey which was funded by the Department of Health and the Department for Work and Pensions. The survey collected details on the prevalence of caring in England, the demographic profile of carers, the impact of caring duties upon the carer, details of the services carers receive and a profile of the cared for people. Carers who were under 16 years of age were excluded from the Survey of Carers in Households 2009/10, as were people in communal establishments.

Institution

NHS Digital

Geographic coverage - Nations

England;

Start date

2009

Minimum age at recruitment

Sample Size

2,200

Sample

Study design

Cross sectional study

Sample details

Carers were identified via a short screening questionnaire at addresses which were randomly selected from the Postcode Address File (PAF). Carers were defined as those people who identified themselves as having extra responsibilities of looking after someone who has a long-term physical or mental ill health or disability, or problem related to old age. People providing care in a professional capacity were excluded, as were carers who were under 16 years and people in communal establishments.

Sex

All

Sample Characteristics

Carers

Sample size at most recent sweep

2200

Individual data available (e.g. upon special request)?

Yes

Data Access Level

Mixed - open source and restricted access (on application)

Data Access

http://doc.ukdataservice.ac.uk/doc/6768/mrdoc/pdf/6768_survey_of_carers_in_households_2009_10_england.pdf

Regional variable present?

Yes

Local Authority variable present?

Yes

Complementary Data

Genetic Data Collected

Linked Data

HDR UK Innovation Gateway

Website

digital.nhs.uk/data-and-information/publications/statistical/personal-social-services-survey-of-adult-carers/survey-of-carers-in-households-england-2009-10

Notes

Related Measures

Benefits, Education, Ethnicity and race, Household composition, Housing, Income/household income, Mental health measures, Parenting and family, Pensions, Quality of life/wellbeing, Social support, Work and employment,

Study Code

SCH

Reference paper(s)

http://doc.ukdataservice.ac.uk/doc/6768/mrdoc/pdf/6768_survey_of_carers_in_households_2009_10_england.pdf

Funders

NHSdigital DoHSC

Catalogue of Social Care Data

UNITING SOCIAL CARE DATA