Catalogue of Social Care Data

And in addition to what [NAME] pays {if CHRESPAYS2 = 1} As far as you are aware {if CHRESPAYS2 = 2|3|DK|REF} , does anyone else or any organisations pay or give money to [CHMECODEFINAL2] {if CHMEFOUND2 = 1} [their care or nursing home] {if CHMEFOUND2 = 0} for the care that [NAME] receives – for example the council, the NHS or a family member?

Yes, the council, local authority, social services, or NHS/health services
Yes, a relative or friend with their own money
Yes, other
No, nobody else pays

Even though [NAME] doesn’t have any long-standing health problems, does {if CHHEALTH2 = 2} / Does {if CHHEALTH2 <> 2} [NAME] have any health problems or disabilities that mean they have substantial difficulties with any of the following areas of their life?

1 Mobility (moving around at home and walking)
2 Lifting, carrying or moving objects
3 Manual dexterity (using their hands to carry out everyday tasks)
4 Continence (bladder and bowel control)
5 Hearing (apart from using a standard hearing aid)
6 Sight (apart from wearing standard glasses)
7 Communication or speech problems
8 Memory or ability to concentrate, learn or understand
9 Recognising when they are in physical danger
10 Their physical co-ordination (e.g. balance)
11 Difficulties with own personal care (e.g. getting dressed, taking a bath or shower)
12 Other health problem or disability
96 None of these
Mixed Mode Alternatives

Last time we interviewed at this household, we learned that [ff_forname ff_surname (ff_CHmeMover’s name)] had moved into a care or nursing home. Can we just check, does [ff_forname (ff_CHmeMover’s name)] still live in a care or nursing home?

1 Yes
2 No

May we ask what has happened to [ff_forname (ff_CHmeMover’s name)] ?

1 Deceased
2 Living elsewhere

We are sorry to hear about [ff_forname (ff_CHmeMover’s name)] . In which month and year did that happen?

1 January
2 February
3 March
4 April
5 May
6 June
7 July
8 August
9 September
10 October
11 November
12 December

Enter year

What is [ff_forname ff_surname (ff_CHmeMover’s name)] current address?

And in which town is that?

And the postcode please if you know it.

Could you tell us either the village, town county or region they moved to?

ENTER FIRST LINE OF ADDRESS – HOUSE NUMBER OR NAME AND DETAILS OF ROAD(S). IF NOT KNOWN, CODE DON’T KNOW

ENTER POSTAL TOWN. IF POSTAL TOWN IS NOT KNOWN, CODE DON’T KNOW

ENTER POSTAL CODE. IF COMPLETE POSTAL CODE IS NOT KNOWN, CODE DON’T KNOW

PROBE FOR AREA. IF HOUSE AND ROAD NOT KNOWN, PROBE FOR VILLAGE, TOWN, COUNTY, REGION. ATTEMPT TO GAIN AS FULL
ADDRESS INFORMATION AS POSSIBLE.

Does [ff_forname ff_surname (ff_CHmeMover’s name)] still live at [ff_CHMECODEFINAL] ?

1 Yes
2 No

Even though [NAME] doesn’t have any long-standing health problems, does {if CHHEALTH = 2} / Does {if CHHEALTH 2} [NAME] have any health problems or disabilities that mean they have substantial difficulties with any of the following areas of their life?

1 Mobility (moving around at home and walking)
2 Lifting, carrying or moving objects
3 Manual dexterity (using their hands to carry out everyday tasks)
4 Continence (bladder and bowel control)
5 Hearing (apart from using a standard hearing aid)
6 Sight (apart from wearing standard glasses)
7 Communication or speech problems
8 Memory or ability to concentrate, learn or understand
9 Recognising when they are in physical danger
10 Their physical co-ordination (e.g. balance)
11 Difficulties with own personal care (e.g. getting dressed, taking a bath or shower)
12 Other health problem or disability
96 None of these
Mixed Mode Alternatives

Are you currently receiving any of these payments ,either just yourself or jointly {if hhsize > 1 & (livesp = 1 or livewith = 1)} ? Please select all that apply to you.

1 NI Retirement/State Retirement (Old Age) Pension
2 A Pension from a previous employer
3 A Pension from a spouse’s previous employer
4 A Private Pension/Annuity
5 A Widow’s or War Widow’s Pension
6 A Widowed Mother’s Allowance / Widowed Parent’s Allowance / Bereavement Allowance
7 Pension Credit (includes Guarantee Credit & Saving Credit)
8 Severe Disablement Allowance
9 Industrial Injury Disablement Allowance
10 Disability Living Allowance
11 Attendance Allowance
12 Carer’s Allowance (formerly Invalid Care Allowance)
13 War Disablement Pension
14 Incapacity Benefit
15 Income Support
16 Job Seeker’s Allowance
18 Child Benefit (including Lone-Parent Child Benefit payments)
19 Child Tax Credit
20 Working Tax Credit (includes Disabled Person’s Tax Credit)
21 Maternity Allowance
22 Housing Benefit
23 Council Tax Benefit
24 Educational Grant (not Student Loan or Tuition Fee Loan)
25 Trade Union / Friendly Society Payment
26 Maintenance or Alimony
27 Payments from a family member not living here
28 Rent from Boarders or Lodgers (not family members) living here with you
29 Rent from any other property
30 Foster Allowance / Guardian Allowance
31 Rent Rebate
32 Rate Rebate
33 Employment and Support Allowance
35 Sickness and Accident Insurance
37 Other Disability Related Benefit or Payment
38 Any other regular payment
39 Any other state benefit
40 Universal Credit
41 Personal Independence Payments
42 Student Loan and/or Tuition Fee Loan
43 Child Disability Payment
44 Adult Disability Payment
45 Pension Age Disability Payment
46 Scottish Child Payment
98 DON’T KNOW
99 REFUSED

Who does [NONRESID.NRCNAME] currently live with (for most of the time)?

1 A parent
2 Grandparent
3 Other relative
4 In care
5 Other

What housing related reason was that? [for moving housing]

1 Wanted somewhere bigger
2 Wanted somewhere smaller/cheaper
3 Wanted own accommodation or to form a household
4 To buy somewhere
5 Health reasons (e.g. house too damp, house not healthy)
6 Wanted bungalow / no stairs / ground floor flat
7 Needed care in sheltered accommodation/care/nursing home
8 Disliked previous house/flat
9 Wanted better accommodation
10 Wanted more privacy/previous accommodation overcrowded
11 Wanted a change
12 Evicted from rented accommodation/repossessed/other forced moves
13 Council offered new accommodation
15 Wanted somewhere with more garden/outdoor space
16 Wanted somewhere with more home office space
14 None of the above/Other reason

Nowadays, do you regularly or frequently do any of these things for your parent(s)?

1 Giving them lifts in your car (if you have one)
2 Shopping for them
3 Providing or cooking meals
4 Helping with basic personal needs like dressing, eating or bathing
5 Washing, ironing or cleaning
6 Dealing with personal affairs e.g. paying bills, writing letters
7 Decorating, gardening or house repairs
8 Financial help
97 Anything else
96 None of these

And do you regularly or frequently receive any of these things from your children aged 16 or older not living here?

1 Getting lifts in their car (if they have one)
2 Shopping for you
3 Providing or cooking meals
4 Help with basic personal needs like dressing, eating or bathing
5 Washing, ironing or cleaning
6 Dealing with personal affairs e.g. paying bills, writing letters
7 Decorating, gardening or house repairs
8 Financial help
97 Anything else
96 None of these

Please look at this card and tell me the number that describes who you were living with when you were aged 14?

1 Biological mother and father
2 Adoptive mother and father
3 Mother and stepfather
4 Father and stepmother
5 Mother/no father figure
6 Father/no mother figure
7 In Local Authority care/foster home
97 Other

Which of these services have you used over the last 12 months?

1 Your local doctor
2 A local hospital
3 Social care services
4 A council housing department or housing association
5 Police service
6 Local leisure services, such as swimming pool, tennis courts, keep fit classes
7 Adult education classes
8 A public library
9 A job centre
10 Advice services such as those relating to benefits, employment or money advice
96 None of the above

Even though you don’t have any long-standing health problems, do {if HEALTH = 2} / Do {if HEALTH 2} you have any health problems or disabilities that mean you have substantial difficulties with any of the following areas of your life?

1 Mobility (moving around at home and walking)
2 Lifting, carrying or moving objects
3 Manual dexterity (using your hands to carry out everyday tasks)
4 Continence (bladder and bowel control)
5 Hearing (apart from using a standard hearing aid)
6 Sight (apart from wearing standard glasses)
7 Communication or speech problems
8 Memory or ability to concentrate, learn or understand
9 Recognising when you are in physical danger
10 Your physical co-ordination (e.g. balance)
11 Difficulties with own personal care (e.g. getting dressed, taking a bath or shower)
12 Other health problem or disability
96 None of these

Are you currently receiving any of these payments ,either just yourself or jointly {if hhsize > 1 & (livesp = 1 or livewith = 1)} ?

1 Incapacity Benefit
2 Employment and Support Allowance
3 Severe Disablement Allowance
4 Carer’s Allowance
5 Disability Living Allowance
13 Child Disability Payment {if region = 3}
12 Personal Independence Payments
14 Adult Disability Payment {if region = 3}
7 Attendance Allowance
15 Pension Age Disability Payment {if region = 3}
8 Industrial Injury Disablement Benefit
10 Sickness and Accident Insurance
97 Any other disability related benefit or payment
96 None of these

Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative, husband, wife or friend etc.)?

Occasionally a person may not think of the care they provide as special because they either may have been looking after this person for a longtime or because they view it as a natural obligation to look after a close relative, or because they think it normal to provide special care for the elderly. In some cases you may already know of someone in the household who is infirm or disabled. If you have reason to believe that someone within the household is receiving regular care because of age, infirmity or disability but this is not reported by the respondent you should ask ‘And what about (NAME OF PERSON)? Do you look after them at all?’ If the respondent does not agree, code answer given.

Yes
No

General health

Who do you look after?
Please select all the people for whom you provide care.

List of aforementioned household members

Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

Exclude any care given in the course of employment (e.g. by social worker or home help) but include if they provide care unpaid outside working hours. Exclude work in drop-in centres, luncheon clubs or meals on wheels. Include any service provided including visiting, sitting with them, keeping company, taking out, checking whether or not they are alright, helping with bills etc, as well as help with housework, cooking and personal care (e.g. washing or dressing). Include only one-to -one caring so that if, for instance, someone helps with meals-on-wheels or driving people to hospital this, in itself, does not count since they may be seeing different people each day. If, on the other hand they are paired off with one specific elderly/disabled person, this would count. Include here cases where person cared for is in the same building as respondent but lives separately (e.g. a ‘granny flat’ or annexe). Some respondents will be caring for people as a voluntary worker rather than as a friend or relative. If caring for two parents living together, count each separately.

Yes
No

How many people do you care for?

Number of people

Who is the first person that you look after or help? (What is their relationship to you?)

Parent/parent-in-law
Grandparent
Aunt/uncle
Other relative
Friend or neighbour
Client(s) of voluntary organisation
Other

Who is the second person that you look after or help? (What is their relationship to you?)

Parent/parent-in-law
Grandparent
Aunt/uncle
Other relative
Friend or neighbour
Client(s) of voluntary organisation
Other

Now thinking about everyone who you look after or provide help for, both those living with you and not living with you – in total, how many hours do you spend each week looking after or helping them?

Help
Please note that if respondent spends time caring for people within and outside the household the total time spent on both together should be entered. Include any travelling time or time spent sleeping at dependent’s house if dependent is outside carer’s household. If continuous care is given use code 7

0 – 4 hours per week
5 – 9 hours per week
10 – 19 hours per week
20 – 34 hours per week
35 – 49 hours per week
50 – 99 hours per week
100 or more hours per week/continuous care
Varies under 20 hours
Varies 20 hours or more
Other

Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [NAME(S)] prevent you from doing a paid job or as much paid work as you might like to do? Would you say you are…

Unable to work at all
Unable to do as much paid work as you might
Or this doesn’t prevent you from working?

How often do you have to miss school {if EDUCATIONALASPIRATIONS.EDTYPE = 1} / sixth form college {if EDUCATIONALASPIRATIONS.EDTYPE = 2} / further education college {if EDUCATIONALASPIRATIONS.EDTYPE = 3} to look after [NAME(S)] ?

Never
Once a week or more often
Once or twice a month

Why [[are you] / [is NAME]] now in this household?

New baby
2 Cohabitation/marriage/civil partnership
3 Moved from college/university
4 Moved from institution
5 Was resident last wave/never left
6 Moved in with parent/relative
7 Shared accommodation
8 Care/support
97 Other

Where [[were you] / [was NAME]] living before joining this household?

Other house/flat
Working away from home
Halls of residence
Boarding school
Prison
Hospital
Care or nursing home
Outside the UK
No fixed abode
Other type of accommodation

Where is [ff_forname {leaver’s name}] living now?

0 Deceased
1 Other house/flat
2 Working away from home
3 Halls of residence
4 Boarding school
5 Prison
8 Hospital
9 Care or nursing home
10 Outside the UK
11 No fixed abode
97 Other type of accommodation

You mentioned that [ff_forname {leaver’s name}] ‘s has moved into a care or nursing home. We are interested in understanding the changes that happen in people’s lives. So that we can use the publicly available information on care and nursing homes, please could you tell me the name of [ff_forname {leaver’s name}] ‘s care or nursing home?

Are the details reported below correct? [CARE/NURSING HOME NAME FROM LOOKUP FILE]

Enter name

Yes/No

Whether respondent is currently resident in a care home

Does not live in a care home
Lives in a care home

Overall, how satisfied or dissatisfied are you with the care and support [NAME] receives at [CHMECODEFINAL2] {if CHMEFOUND2 = 1} [their care or nursing home] {if CHMEFOUND2 = 0} ?

1 Very dissatisfied
2 Somewhat dissatisfied
3 Neither satisfied nor dissatisfied
4 Somewhat satisfied
5 Very satisfied

Overall, how satisfied or dissatisfied do you think [NAME] is with the care and support they receive at [CHMECODEFINAL2] {if CHMEFOUND2 = 1} [their care or nursing home] {if CHMEFOUND2 = 0} ?

1 Very dissatisfied
2 Somewhat dissatisfied
3 Neither satisfied nor dissatisfied
4 Somewhat satisfied
5 Very satisfied

Now a few questions about paying for the care [NAME] receives at [CHMECODEFINAL2] {if CHMEFOUND2 = 1} [their care or nursing home] {if CHMEFOUND2 = 0} . Does [NAME] usually deal with paying for their care or does a family member or friend manage this for them?

[NAME] deals with this all him/herself
[NAME] knows about some of it but not all
[NAME] does not deal with this at all

Who else deals with paying for [NAME’s] care?

Non-household member
Select from list of household members

Has the local authority or council made an assessment of what [NAME] can afford for any of their care needs? This is sometimes called an income assessment or means testing.

1 Yes, had an income assessment
2 No

Does [NAME] pay or give any money for the care and support provided by [CHMECODEFINAL2] {if CHMEFOUND2 = 1} [their care or nursing home] {if CHMEFOUND2 = 0} ? Please include any contributions made from income, savings, pensions or assets.

Yes, they cover all the cost
Yes, they cover some of the cost
No

How often do you have to miss school {if EDUCATIONALASPIRATIONS.EDTYPE = 1} / sixth form college {if EDUCATIONALASPIRATIONS.EDTYPE = 2} / further education college {if EDUCATIONALASPIRATIONS.EDTYPE = 3} to look after
[NAME(S)] ?

Never
Once a week or more often
Once or twice a month

And aside from the types of income we’ve just asked about, are you currently receiving any of these types of payments ,either just yourself or jointly {if hhsize > 1 & (livesp = 1 or livewith = 1)} ? Please select all the answers that apply to you.

Amongst many other options the response scale lists:
Carer’s Allowance (formerly Invalid Care Allowance)

Some people your age may have to look after other people. This could be a brother or sister, a relative or someone else who is disabled or sick. Is there anyone like this who lives here with you that you have to look after on a regular basis?

Yes – in this household
No

Who do you look after? (cross all that apply)

Mother/Father
Grandfather/mother
Brother/Sister
Another adult relative
Another adult who is not a relative
Another child relative
Another child who is not a relative

About how many hours a week would you say that you usually spend looking after or doing things for them?

Please write in hours

How often do you have to miss school to do this?

Never
Once a week or more often
Once or twice a month

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

They provided their help for free/there is no charge for the service
Sometimes I give them money or gifts for the help they give me
Other

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

Yes
No

Personal Budget – Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it.

This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Yes
No

What is the value of your Personal Budget?

What period does that cover?

Amount in £

Per week
Per calendar month
Per year

Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Yes, all of Personal Budget as Direct Payment
Yes, part of Personal Budget as Direct Payment
No, none of Personal Budget as Direct Payment
SPONTANEOUS: Not being paid my Personal Budget yet.

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

In addition to your user charges, do {if (UserChg > 0) & (UserChg (MIS|DK|REF))} / Do {if UserChg =0 | UserChg = (MIS|DK|REF)} you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

Yes
No

How much do you pay to top up your Personal Budget?

What period does that cover?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

Do you receive any care paid for by the council or the local authority?

Yes
No

How much does the council or local authority pay for your care?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

Apart from any care paid for by the local authority, do {if LACare = 1} / Do {if LACare 1} you pay for any care privately at the moment?

Yes
No

How much do you pay for the care you purchase privately?

What period does that cover?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative, husband, wife or friend etc)?

Yes
No

Who do you look after?

Identified care recipient

Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

Yes
No

How many people do you care for?

Number of care recipients

Who is the first person that you look after or help? (What is their relationship to you?)

Parent/parent-in-law
Grandparent
Aunt/uncle
Other relative
Friend or neighbour
Client(s) of voluntary organisation
Other

Who is the second person that you look after or help? (What is their relationship to you?)

Parent/parent-in-law
Grandparent
Aunt/uncle
Other relative
Friend or neighbour
Client(s) of voluntary organisation
Other

Now thinking about everyone who you look after or provide help for, both those living with you and not living with you – in total, how many hours do you spend each week looking after or helping them?

0 – 4 hours per week
5 – 9 hours per week
10 – 19 hours per week
20 – 34 hours per week
35 – 49 hours per week
50 – 99 hours per week
100 or more hours per week/continuous care
Varies under 20 hours
Varies 20 hours or more
Other

Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [NAME(S)] prevent you from doing a paid job or as much paid work as you might like to do? Would you say you are…

Unable to work at all
Unable to do as much paid work as you might
Or this doesn’t prevent you from working?

Can you tell me whether in the last week [HelpCode] helped you in person with these tasks for…

Less than 20 hours
20 – 34 hours
or for 35 hours or more?

Now a few questions about paying for the care you receive. Do you usually deal with paying for your care or does a family member or friend manage this for you?

Respondent deals with this all him/herself
Respondent knows about some of it but not all
Respondent does not deal with this at all

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Which of these apply to care you receive?

Direct Payments where you get the money to spend on the support you choose
You tell the council how to spend the money
You let the council decide how to spend the money
None of these

Has the local authority or council made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing.

Yes, had an income assessment
No

How was the help from [HelpCode] arranged?

Arranged without involvement from the local authority, council or social service
Local authority, council or social services arranged this help for me
Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me.
Other

Do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay or give any money for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

Yes
No

How much money do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

Does this payment cover all the cost of this help or some of the cost of this help?

All
Some

How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you?

My own personal income, savings, pension or benefit (such as Attendance Allowance)
My Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services
From another source

And in addition to what you pay, as {if AnyPayA = 1} / As {if AnyPayA = 2|DK|REF} far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeA] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

Yes, the council, local authority, or social services
Yes, a family member with their own money
Yes, other
No, nobody else pays

And does the local authority, council or social services pay [SCPayCodeA] directly or is it through your Direct Payment or a Personal Budget?

Social services or council pay directly
Paid through Direct Payments, or Personal or Individual Budgets

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

And what period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

You have told me that no payment was made for [SCPayCodeA] helping you. Why was this?

They provided their help for free/there is no charge for the service
Sometimes I give them money or gifts for the help they give me
Other

Do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay or give any money for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

Yes
No

How much money do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

Does this payment cover all the cost of this help or some of the cost of this help?

All
Some

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

My own personal income, savings, pension or benefit (such as Attendance Allowance)
My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
From another source

And in addition to what you pay, as {if AnyPayB = 1} / As {if AnyPayB = 2|DK|REF} far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeB] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

Yes, the council, local authority, or social services
Yes, a family member with their own money
Yes, other
No, nobody else pays

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

Social services or council pay directly
Paid through Direct Payments, or Personal or Individual Budgets

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

The next few questions are about tasks that some people may need help with and about help that you may have received in the last month. Please think only about help you need because of long-term physical or mental ill-health, disability or problems relating to old age. For each task, I’d like you to tell me which option applies to you.
Do you usually manage to get up and down stairs or steps…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you usually manage to get around the house (except for any stairs)…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you usually manage to get in and out of bed…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you usually manage to cut your toenails…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you usually manage to bath, shower or wash all over…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you usually manage to go out of doors and walk down the road…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to use the toilet, including getting up and down…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to eat, including cutting up food…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to wash your face and hands…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to dress or undress, including putting on shoes and socks…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to take the right amount of medicine at the right times…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to do routine housework or laundry…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

In the last month, who has helped you with personal things around the home including getting up and down stairs or steps {if ADLA = 2|3} / getting around the house (except for any stairs) {if ADLB = 2|3} / getting in and out of bed {if ADLC = 2|3} / cutting your toenails {if ADLD = 2|3} / bathing, showering or washing all over {if ADLE = 2|3} / using the toilet, including getting up and down {if ADLG = 2|3} / eating, including cutting up food {if ADLH = 2|3} / washing your face and hands {if ADLI = 2|3} / dressing and undressing, including putting on shoes and socks {if ADLJ = 2|3} / taking the right amount of medicine at the right times {if ADLK = 2|3}?

“Please only think about help received because of long-term physical or mental ill-health, disability or problems relating to old age”

Husband / Wife / Partner
Son (including stepson, adopted son or son-in-law)
Daughter (including stepdaughter, adopted daughter or daughter- in-law)
Grandchild (including great grandchildren)
Brother / Sister (including step/adopted/in-laws)
Niece / Nephew
Mother / Father (including mother-in-law/father-in-law)
Other family member
Friend
Neighbour
None of the above

You’ve told me that your [HlpInfA] helped you. Can we just check, does he/she live here with you? If so, who is it?

Identified helper

And, which of these people helped you with personal things around the home including getting up and down stairs or steps {if ADLA = 2|3} / getting around the house (except for any stairs) {if ADLB = 2|3} / getting in and out of bed {if ADLC = 2|3} / cutting your toenails {if ADLD = 2|3} / bathing, showering or washing all over {if ADLE = 2|3} / using the toilet, including getting up and down {if ADLG = 2|3} / eating, including cutting up food {if ADLH = 2|3} / washing your face and hands {if ADLI = 2|3} / dressing and undressing, including putting on shoes and socks {if ADLJ = 2|3} / taking the right amount of medicine at the right times {if ADLK = 2|3} , in the last month?

Home care worker / Home help / Personal Assistant
A member of the reablement / intermediate care staff team
Occupational Therapist / Physiotherapist / Nurse
Voluntary helper
Warden / Sheltered housing manager
Cleaner
Council’s handyman
Other
None of the above

In the last month, who has helped you to go outdoors and walk down the road {if ADLF = 2|3} / shop for food, including getting to the shops, choosing items, carrying items home and unpacking them {if ADLL = 2|3} / to do routine housework {if ADLM = 2|3} / to do paperwork or pay bills {if ADLN = 2|3}?

Son (including stepson, adopted son or son-in-law)
Daughter (including stepdaughter, adopted daughter or daughter- in-law)
Grandchild (including great grandchildren)
Brother / Sister (including step/adopted/in-laws)
Niece / Nephew
Mother / Father (including mother-in-law/father-in-law)
Other family member
Friend
Neighbour
None of the above

You’ve told me that your [HlpInfB] helped you. Can I just check, does he/she live here with you? If so, who is it?

Identified helper

And, which of these people helped you to go outdoors and walk down the road {if ADLF = 2|3} / shop for food, including getting to the shops,

Home care worker / Home help / Personal Assistant
A member of the reablement / intermediate care staff team
Occupational Therapist / Physiotherapist / Nurse
Voluntary helper
Warden / Sheltered housing manager
Cleaner
Council’s handyman
Other
None of the above

Thinking about [HelpCode], in the last week, how many hours have they helped you in person with these kinds of tasks? Please only think about the hours they were helping you with these kinds of tasks and not about the time they were around the house or there to help if you needed it. {if HelpCode = 1 thru 10} / If home care worker/personal assistant/other care staff ‘lives in’/’sleeps in’, INCLUDE ALL hours they are on duty. {if HelpCode = 11}

“Not help over the phone or by internet or doing occasional errands or odd jobs without the respondent.”

No help in the last week
Less than one hour
1 – 4 hours
5 – 9 hours
10 – 19 hours
20 – 34 hours
35 – 49 hours
50 – 99 hours
100 hours or more

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

Which of these services have you used over the last 12 months?
If used, on a scale of 1 to 7 where 1 means completely dissatisfied and 7 means completely satisfied, how satisfied were you with the service?

Q1.
1. Your local doctor
2. A local hospital
3. Social care services
4. A council housing department or housing association
5. Police service
6. Local leisure service
8. A public library
9. A job centre
10. Advice services 11. None of these

Q2.
Value from 1-7

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Does this payment cover all the cost of this help or some of the cost of this help?

1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

1. My own personal income, savings, pension or benefit (such as Attendance Allowance)
2. My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
3. From another source

Web Interview:
1. Use own personal income, savings, pension or benefit (such as Attendance Allowance)
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer:
This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Web Interview:
Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it. Have you been allocated a Personal Budget?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

What is the value of your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Web Interview:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care.
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these
Are you taking any of your Personal Budget as a Direct Payment?

1. Yes, all of Personal Budget as Direct Payment
2. Yes, part of Personal Budget as Direct Payment
3. No, none of Personal Budget as Direct Payment
4. SPONTANEOUS: Not being paid my Personal Budget yet.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

In addition to your user charges, do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you pay to top up your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you receive any care paid for by the council or the local authority?

1.Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much does the council or local authority pay for your care?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Apart from any care paid for by the local authority, do you pay for any care privately at the moment?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you pay for the care you purchase privately?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you usually manage to get up and down stairs or steps…
2. Do you usually manage to get around the house (except for any stairs)…
3. Do you usually manage to get in and out of bed…
4. Do you usually manage to cut your toenails..
5. Do you usually manage to bath, shower or wash all over…
6. Do you usually manage to go out of doors and walk down the road…
7. Do you manage to use the toilet, including getting up and down
8. Do you manage to eat, including cutting up food..
9. Do you manage to wash your face and hands..
10. Do you manage to dress or undress, including putting on shoes and socks…
11. Do you manage to take the right amount of medicine at the right times…
12. Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…
12. Do you manage to do routine housework or laundry…
13. Do you manage to do paperwork or paying bills…

For each 1-13 = ‘on your own’,
a. Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Q1-13
1.On your own
2. Only with help from someone else
3. or Not at all?

Qa
1. Very easy
2. Fairly easy
3. Fairly difficult
4. Very difficult

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. In the last month, who has helped you with personal things around the home?

2. Does the person who helps you the most live with you?

Q1
1. Husband / Wife / Partner
2. Son (including stepson, adopted son or son-in-law)
3. Daughter (including stepdaughter, adopted daughter or daughter-in-law)
4. Grandchild (including great grandchildren)
5. Brother / Sister (including step/adopted/in-laws)
6. Niece / Nephew
7. Mother / Father (including mother-in-law/father-in-law)
8. Other family member
9. Friend
10. Neighbour
11. None of the above

Q2
1. Resident here
2. Not resident here

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. And, which of these people helped you with personal things around the home in the last month?

1. Home care worker / Home help / Personal Assistant
2. A member of the reablement / intermediate care staff team
3. Occupational Therapist / Physiotherapist / Nurse
4. Voluntary helper
5. Warden / Sheltered housing manager
6. Cleaner
7. Council’s handyman
8. Other
9. None of the above

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about [carer] , in the last week, how many hours have they helped you in person with these kinds of tasks?

1. No help in the last week
2. Less than one hour
3. 1 – 4 hours
4. 5 – 9 hours
5. 10 – 19 hours
6. 20 – 34 hours
7. 35 – 49 hours
8. 50 – 99 hours
9. 100 hours or more

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Now a few questions about paying for the care you receive. Do you usually deal with paying for your care or does a family member or friend manage this for you?

Interviewer Instruction:
1. Respondent deals with this all him/herself
2. Respondent knows about some of it but not all.
3. Respondent doe not deal with this at all

Web Interview:
1. I deal with this all myself.
2. I know about some of it but not all
3. I do not deal with this at all.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Which of these apply to care you receive?

1. Direct Payments where you get the money to spend on the support you choose.
2. You tell the council how to spend the money.
3. You let the council decide how to spend the money.
96. None of these

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Has the local authority or council made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing.

1. Yes, had an income assessment
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How was the help from [HelpCode] arranged?

1. Arranged without involvement from the local authority, council or social service.
2. Local authority, council or social services arranged this help for me
3. Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me.
4. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Does this payment cover all the cost of this help or some of the cost of this help?

For questions 1:
1. Yes
2. No

For question 2:
Amount in £

For question 3:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

For question 4:
1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer Instruction:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you?

Web Interview:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you? Please select all the answers that apply to you.

1. My own personal income, savings, pension or benefit (such as Attendance Allowance).
2. My Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. From another source

1. Use own personal income, savings, pension or benefit (such as Attendance Allowance),
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And in addition to what you pay, as far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeA] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

1. Yes, the council, local authority, or social services.
2. Yes, a family member with their own money
3. Yes, other
4. No, nobody else pays

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And does the local authority, council or social services pay [SCPayCodeA] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And what period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

What period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

(If participant stated that no payment was made)

You have told me that no payment was made for [SCPayCodeA] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer:
This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Web Interview:
Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it. Have you been allocated a Personal Budget?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

What is the value of your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Web Interview:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care.
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these
Are you taking any of your Personal Budget as a Direct Payment?

1. Yes, all of Personal Budget as Direct Payment
2. Yes, part of Personal Budget as Direct Payment
3. No, none of Personal Budget as Direct Payment
4. SPONTANEOUS: Not being paid my Personal Budget yet.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

In addition to your user charges, do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you pay to top up your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you receive any care paid for by the council or the local authority?

1.Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much does the council or local authority pay for your care?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Apart from any care paid for by the local authority, do you pay for any care privately at the moment?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you pay for the care you purchase privately?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Which of these apply to care you receive?

1. Direct Payments where you get the money to spend on the support you choose.
2. You tell the council how to spend the money.
3. You let the council decide how to spend the money.
96. None of these

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Has the local authority or council made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing.

1. Yes, had an income assessment
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How was the help from [HelpCode] arranged?

1. Arranged without involvement from the local authority, council or social service.
2. Local authority, council or social services arranged this help for me
3. Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me.
4. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Does this payment cover all the cost of this help or some of the cost of this help?

For questions 1:
1. Yes
2. No

For question 2:
Amount in £

For question 3:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

For question 4:
1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer Instruction:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you?

Web Interview:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you? Please select all the answers that apply to you.

1. My own personal income, savings, pension or benefit (such as Attendance Allowance).
2. My Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. From another source

1. Use own personal income, savings, pension or benefit (such as Attendance Allowance),
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And in addition to what you pay, as far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeA] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

1. Yes, the council, local authority, or social services.
2. Yes, a family member with their own money
3. Yes, other
4. No, nobody else pays

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And does the local authority, council or social services pay [SCPayCodeA] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And what period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

What period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

(If participant stated that no payment was made)

You have told me that no payment was made for [SCPayCodeA] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Does this payment cover all the cost of this help or some of the cost of this help?

1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

1. My own personal income, savings, pension or benefit (such as Attendance Allowance)
2. My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
3. From another source

Web Interview:
1. Use own personal income, savings, pension or benefit (such as Attendance Allowance)
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

Here is a list of some health and welfare services. Which of these services have you yourself made any use of in the last 12 months?

“1. Health visitor, district nurse
2. Home-help
3. Meals on wheels
4. Social worker or welfare officer
5. Chiropodist
6. Alternative medical practitioner
7. Psychotheratist
8. Speech therapist or occupational therapist
9. Physiotherapist
10. Hospital consultant/outpatients
11. Family planning clinic
97. Any other health or welfare services? 96. None of these”

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Which of these services have you used over the last 12 months?
If used, on a scale of 1 to 7 where 1 means completely dissatisfied and 7 means completely satisfied, how satisfied were you with the service?

Q1.
1. Your local doctor
2. A local hospital
3. Social care services
4. A council housing department or housing association
5. Police service
6. Local leisure service
8. A public library
9. A job centre
10. Advice services 11. None of these

Q2.
Value from 1-7

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you usually manage to get up and down stairs or steps…
2. Do you usually manage to get around the house (except for any stairs)…
3. Do you usually manage to get in and out of bed…
4. Do you usually manage to cut your toenails..
5. Do you usually manage to bath, shower or wash all over…
6. Do you usually manage to go out of doors and walk down the road…
7. Do you manage to use the toilet, including getting up and down
8. Do you manage to eat, including cutting up food..
9. Do you manage to wash your face and hands..
10. Do you manage to dress or undress, including putting on shoes and socks…
11. Do you manage to take the right amount of medicine at the right times…
12. Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…
12. Do you manage to do routine housework or laundry…
13. Do you manage to do paperwork or paying bills…

For each 1-13 = ‘on your own’,
a. Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Q1-13
1.On your own
2. Only with help from someone else
3. or Not at all?

Qa
1. Very easy
2. Fairly easy
3. Fairly difficult
4. Very difficult

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. In the last month, who has helped you with personal things around the home?

2. Does the person who helps you the most live with you?

Q1
1. Husband / Wife / Partner
2. Son (including stepson, adopted son or son-in-law)
3. Daughter (including stepdaughter, adopted daughter or daughter-in-law)
4. Grandchild (including great grandchildren)
5. Brother / Sister (including step/adopted/in-laws)
6. Niece / Nephew
7. Mother / Father (including mother-in-law/father-in-law)
8. Other family member
9. Friend
10. Neighbour
11. None of the above

Q2
1. Resident here
2. Not resident here

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. And, which of these people helped you with personal things around the home in the last month?

1. Home care worker / Home help / Personal Assistant
2. A member of the reablement / intermediate care staff team
3. Occupational Therapist / Physiotherapist / Nurse
4. Voluntary helper
5. Warden / Sheltered housing manager
6. Cleaner
7. Council’s handyman
8. Other
9. None of the above

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about [carer] , in the last week, how many hours have they helped you in person with these kinds of tasks?

1. No help in the last week
2. Less than one hour
3. 1 – 4 hours
4. 5 – 9 hours
5. 10 – 19 hours
6. 20 – 34 hours
7. 35 – 49 hours
8. 50 – 99 hours
9. 100 hours or more

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Now a few questions about paying for the care you receive. Do you usually deal with paying for your care or does a family member or friend manage this for you?

Interviewer Instruction:
1. Respondent deals with this all him/herself
2. Respondent knows about some of it but not all.
3. Respondent doe not deal with this at all

Web Interview:
1. I deal with this all myself.
2. I know about some of it but not all
3. I do not deal with this at all.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

1. My own personal income, savings, pension or benefit (such as Attendance Allowance)
2. My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
3. From another source

Web Interview:
1. Use own personal income, savings, pension or benefit (such as Attendance Allowance)
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these