Catalogue of Social Care Data

How often do you have to miss school {if EDUCATIONALASPIRATIONS.EDTYPE = 1} / sixth form college {if EDUCATIONALASPIRATIONS.EDTYPE = 2} / further education college {if EDUCATIONALASPIRATIONS.EDTYPE = 3} to look after
[NAME(S)] ?

Never
Once a week or more often
Once or twice a month

And aside from the types of income we’ve just asked about, are you currently receiving any of these types of payments ,either just yourself or jointly {if hhsize > 1 & (livesp = 1 or livewith = 1)} ? Please select all the answers that apply to you.

Amongst many other options the response scale lists:
Carer’s Allowance (formerly Invalid Care Allowance)

Some people your age may have to look after other people. This could be a brother or sister, a relative or someone else who is disabled or sick. Is there anyone like this who lives here with you that you have to look after on a regular basis?

Yes – in this household
No

Who do you look after? (cross all that apply)

Mother/Father
Grandfather/mother
Brother/Sister
Another adult relative
Another adult who is not a relative
Another child relative
Another child who is not a relative

About how many hours a week would you say that you usually spend looking after or doing things for them?

Please write in hours

How often do you have to miss school to do this?

Never
Once a week or more often
Once or twice a month

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

They provided their help for free/there is no charge for the service
Sometimes I give them money or gifts for the help they give me
Other

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

Yes
No

Personal Budget – Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it.

This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Yes
No

What is the value of your Personal Budget?

What period does that cover?

Amount in £

Per week
Per calendar month
Per year

Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Yes, all of Personal Budget as Direct Payment
Yes, part of Personal Budget as Direct Payment
No, none of Personal Budget as Direct Payment
SPONTANEOUS: Not being paid my Personal Budget yet.

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

In addition to your user charges, do {if (UserChg > 0) & (UserChg <> (MIS|DK|REF))} / Do {if UserChg =0 | UserChg = (MIS|DK|REF)} you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

Yes
No

How much do you pay to top up your Personal Budget?

What period does that cover?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

Do you receive any care paid for by the council or the local authority?

Yes
No

How much does the council or local authority pay for your care?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

Apart from any care paid for by the local authority, do {if LACare = 1} / Do {if LACare <> 1} you pay for any care privately at the moment?

Yes
No

How much do you pay for the care you purchase privately?

What period does that cover?

Part 1:
Amount in £

Part 2:
Per week
Per calendar month
Per year

Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative, husband, wife or friend etc)?

Yes
No

Who do you look after?

Identified care recipient

Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

Yes
No

How many people do you care for?

Number of care recipients

Who is the first person that you look after or help? (What is their relationship to you?)

Parent/parent-in-law
Grandparent
Aunt/uncle
Other relative
Friend or neighbour
Client(s) of voluntary organisation
Other

Who is the second person that you look after or help? (What is their relationship to you?)

Parent/parent-in-law
Grandparent
Aunt/uncle
Other relative
Friend or neighbour
Client(s) of voluntary organisation
Other

Now thinking about everyone who you look after or provide help for, both those living with you and not living with you – in total, how many hours do you spend each week looking after or helping them?

0 – 4 hours per week
5 – 9 hours per week
10 – 19 hours per week
20 – 34 hours per week
35 – 49 hours per week
50 – 99 hours per week
100 or more hours per week/continuous care
Varies under 20 hours
Varies 20 hours or more
Other

Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [NAME(S)] prevent you from doing a paid job or as much paid work as you might like to do? Would you say you are…

Unable to work at all
Unable to do as much paid work as you might
Or this doesn’t prevent you from working?

Can you tell me whether in the last week [HelpCode] helped you in person with these tasks for…

Less than 20 hours
20 – 34 hours
or for 35 hours or more?

Now a few questions about paying for the care you receive. Do you usually deal with paying for your care or does a family member or friend manage this for you?

Respondent deals with this all him/herself
Respondent knows about some of it but not all
Respondent does not deal with this at all

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Which of these apply to care you receive?

Direct Payments where you get the money to spend on the support you choose
You tell the council how to spend the money
You let the council decide how to spend the money
None of these

Has the local authority or council made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing.

Yes, had an income assessment
No

How was the help from [HelpCode] arranged?

Arranged without involvement from the local authority, council or social service
Local authority, council or social services arranged this help for me
Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me.
Other

Do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay or give any money for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

Yes
No

How much money do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

Does this payment cover all the cost of this help or some of the cost of this help?

All
Some

How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you?

My own personal income, savings, pension or benefit (such as Attendance Allowance)
My Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services
From another source

And in addition to what you pay, as {if AnyPayA = 1} / As {if AnyPayA = 2|DK|REF} far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeA] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

Yes, the council, local authority, or social services
Yes, a family member with their own money
Yes, other
No, nobody else pays

And does the local authority, council or social services pay [SCPayCodeA] directly or is it through your Direct Payment or a Personal Budget?

Social services or council pay directly
Paid through Direct Payments, or Personal or Individual Budgets

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

And what period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

You have told me that no payment was made for [SCPayCodeA] helping you. Why was this?

They provided their help for free/there is no charge for the service
Sometimes I give them money or gifts for the help they give me
Other

Do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay or give any money for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

Yes
No

How much money do you or your spouse {if HHGRID.LiveSp = 1} / or your partner {if HHGRID.LiveWith = 1} pay for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

Does this payment cover all the cost of this help or some of the cost of this help?

All
Some

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

My own personal income, savings, pension or benefit (such as Attendance Allowance)
My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
From another source

And in addition to what you pay, as {if AnyPayB = 1} / As {if AnyPayB = 2|DK|REF} far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeB] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

Yes, the council, local authority, or social services
Yes, a family member with their own money
Yes, other
No, nobody else pays

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

Social services or council pay directly
Paid through Direct Payments, or Personal or Individual Budgets

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

Part 1:
Amount in £

Part 2:
Per hour
Per visit
Per day
Per week
Per fortnight
Per four weeks
Per calendar month
Per year

The next few questions are about tasks that some people may need help with and about help that you may have received in the last month. Please think only about help you need because of long-term physical or mental ill-health, disability or problems relating to old age. For each task, I’d like you to tell me which option applies to you.
Do you usually manage to get up and down stairs or steps…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you usually manage to get around the house (except for any stairs)…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you usually manage to get in and out of bed…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you usually manage to cut your toenails…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you usually manage to bath, shower or wash all over…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you usually manage to go out of doors and walk down the road…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to use the toilet, including getting up and down…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to eat, including cutting up food…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to wash your face and hands…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to dress or undress, including putting on shoes and socks…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to take the right amount of medicine at the right times…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

Do you manage to do routine housework or laundry…

Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Part 1:
On your own
Only with help from someone else
Not at all

Part 2:
Very easy
Fairly easy
Fairly difficult
Very difficult

In the last month, who has helped you with personal things around the home including getting up and down stairs or steps {if ADLA = 2|3} / getting around the house (except for any stairs) {if ADLB = 2|3} / getting in and out of bed {if ADLC = 2|3} / cutting your toenails {if ADLD = 2|3} / bathing, showering or washing all over {if ADLE = 2|3} / using the toilet, including getting up and down {if ADLG = 2|3} / eating, including cutting up food {if ADLH = 2|3} / washing your face and hands {if ADLI = 2|3} / dressing and undressing, including putting on shoes and socks {if ADLJ = 2|3} / taking the right amount of medicine at the right times {if ADLK = 2|3}?

“Please only think about help received because of long-term physical or mental ill-health, disability or problems relating to old age”

Husband / Wife / Partner
Son (including stepson, adopted son or son-in-law)
Daughter (including stepdaughter, adopted daughter or daughter- in-law)
Grandchild (including great grandchildren)
Brother / Sister (including step/adopted/in-laws)
Niece / Nephew
Mother / Father (including mother-in-law/father-in-law)
Other family member
Friend
Neighbour
None of the above

You’ve told me that your [HlpInfA] helped you. Can we just check, does he/she live here with you? If so, who is it?

Identified helper

And, which of these people helped you with personal things around the home including getting up and down stairs or steps {if ADLA = 2|3} / getting around the house (except for any stairs) {if ADLB = 2|3} / getting in and out of bed {if ADLC = 2|3} / cutting your toenails {if ADLD = 2|3} / bathing, showering or washing all over {if ADLE = 2|3} / using the toilet, including getting up and down {if ADLG = 2|3} / eating, including cutting up food {if ADLH = 2|3} / washing your face and hands {if ADLI = 2|3} / dressing and undressing, including putting on shoes and socks {if ADLJ = 2|3} / taking the right amount of medicine at the right times {if ADLK = 2|3} , in the last month?

Home care worker / Home help / Personal Assistant
A member of the reablement / intermediate care staff team
Occupational Therapist / Physiotherapist / Nurse
Voluntary helper
Warden / Sheltered housing manager
Cleaner
Council’s handyman
Other
None of the above

In the last month, who has helped you to go outdoors and walk down the road {if ADLF = 2|3} / shop for food, including getting to the shops, choosing items, carrying items home and unpacking them {if ADLL = 2|3} / to do routine housework {if ADLM = 2|3} / to do paperwork or pay bills {if ADLN = 2|3}?

Son (including stepson, adopted son or son-in-law)
Daughter (including stepdaughter, adopted daughter or daughter- in-law)
Grandchild (including great grandchildren)
Brother / Sister (including step/adopted/in-laws)
Niece / Nephew
Mother / Father (including mother-in-law/father-in-law)
Other family member
Friend
Neighbour
None of the above

You’ve told me that your [HlpInfB] helped you. Can I just check, does he/she live here with you? If so, who is it?

Identified helper

And, which of these people helped you to go outdoors and walk down the road {if ADLF = 2|3} / shop for food, including getting to the shops,

Home care worker / Home help / Personal Assistant
A member of the reablement / intermediate care staff team
Occupational Therapist / Physiotherapist / Nurse
Voluntary helper
Warden / Sheltered housing manager
Cleaner
Council’s handyman
Other
None of the above

Thinking about [HelpCode], in the last week, how many hours have they helped you in person with these kinds of tasks? Please only think about the hours they were helping you with these kinds of tasks and not about the time they were around the house or there to help if you needed it. {if HelpCode = 1 thru 10} / If home care worker/personal assistant/other care staff ‘lives in’/’sleeps in’, INCLUDE ALL hours they are on duty. {if HelpCode = 11}

“Not help over the phone or by internet or doing occasional errands or odd jobs without the respondent.”

No help in the last week
Less than one hour
1 – 4 hours
5 – 9 hours
10 – 19 hours
20 – 34 hours
35 – 49 hours
50 – 99 hours
100 hours or more

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

Which of these services have you used over the last 12 months?
If used, on a scale of 1 to 7 where 1 means completely dissatisfied and 7 means completely satisfied, how satisfied were you with the service?

Q1.
1. Your local doctor
2. A local hospital
3. Social care services
4. A council housing department or housing association
5. Police service
6. Local leisure service
8. A public library
9. A job centre
10. Advice services 11. None of these

Q2.
Value from 1-7

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Does this payment cover all the cost of this help or some of the cost of this help?

1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

1. My own personal income, savings, pension or benefit (such as Attendance Allowance)
2. My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
3. From another source

Web Interview:
1. Use own personal income, savings, pension or benefit (such as Attendance Allowance)
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer:
This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Web Interview:
Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it. Have you been allocated a Personal Budget?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

What is the value of your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Web Interview:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care.
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these
Are you taking any of your Personal Budget as a Direct Payment?

1. Yes, all of Personal Budget as Direct Payment
2. Yes, part of Personal Budget as Direct Payment
3. No, none of Personal Budget as Direct Payment
4. SPONTANEOUS: Not being paid my Personal Budget yet.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

In addition to your user charges, do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you pay to top up your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you receive any care paid for by the council or the local authority?

1.Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much does the council or local authority pay for your care?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Apart from any care paid for by the local authority, do you pay for any care privately at the moment?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you pay for the care you purchase privately?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you usually manage to get up and down stairs or steps…
2. Do you usually manage to get around the house (except for any stairs)…
3. Do you usually manage to get in and out of bed…
4. Do you usually manage to cut your toenails..
5. Do you usually manage to bath, shower or wash all over…
6. Do you usually manage to go out of doors and walk down the road…
7. Do you manage to use the toilet, including getting up and down
8. Do you manage to eat, including cutting up food..
9. Do you manage to wash your face and hands..
10. Do you manage to dress or undress, including putting on shoes and socks…
11. Do you manage to take the right amount of medicine at the right times…
12. Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…
12. Do you manage to do routine housework or laundry…
13. Do you manage to do paperwork or paying bills…

For each 1-13 = ‘on your own’,
a. Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Q1-13
1.On your own
2. Only with help from someone else
3. or Not at all?

Qa
1. Very easy
2. Fairly easy
3. Fairly difficult
4. Very difficult

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. In the last month, who has helped you with personal things around the home?

2. Does the person who helps you the most live with you?

Q1
1. Husband / Wife / Partner
2. Son (including stepson, adopted son or son-in-law)
3. Daughter (including stepdaughter, adopted daughter or daughter-in-law)
4. Grandchild (including great grandchildren)
5. Brother / Sister (including step/adopted/in-laws)
6. Niece / Nephew
7. Mother / Father (including mother-in-law/father-in-law)
8. Other family member
9. Friend
10. Neighbour
11. None of the above

Q2
1. Resident here
2. Not resident here

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. And, which of these people helped you with personal things around the home in the last month?

1. Home care worker / Home help / Personal Assistant
2. A member of the reablement / intermediate care staff team
3. Occupational Therapist / Physiotherapist / Nurse
4. Voluntary helper
5. Warden / Sheltered housing manager
6. Cleaner
7. Council’s handyman
8. Other
9. None of the above

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about [carer] , in the last week, how many hours have they helped you in person with these kinds of tasks?

1. No help in the last week
2. Less than one hour
3. 1 – 4 hours
4. 5 – 9 hours
5. 10 – 19 hours
6. 20 – 34 hours
7. 35 – 49 hours
8. 50 – 99 hours
9. 100 hours or more

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Now a few questions about paying for the care you receive. Do you usually deal with paying for your care or does a family member or friend manage this for you?

Interviewer Instruction:
1. Respondent deals with this all him/herself
2. Respondent knows about some of it but not all.
3. Respondent doe not deal with this at all

Web Interview:
1. I deal with this all myself.
2. I know about some of it but not all
3. I do not deal with this at all.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Which of these apply to care you receive?

1. Direct Payments where you get the money to spend on the support you choose.
2. You tell the council how to spend the money.
3. You let the council decide how to spend the money.
96. None of these

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Has the local authority or council made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing.

1. Yes, had an income assessment
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How was the help from [HelpCode] arranged?

1. Arranged without involvement from the local authority, council or social service.
2. Local authority, council or social services arranged this help for me
3. Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me.
4. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Does this payment cover all the cost of this help or some of the cost of this help?

For questions 1:
1. Yes
2. No

For question 2:
Amount in £

For question 3:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

For question 4:
1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer Instruction:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you?

Web Interview:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you? Please select all the answers that apply to you.

1. My own personal income, savings, pension or benefit (such as Attendance Allowance).
2. My Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. From another source

1. Use own personal income, savings, pension or benefit (such as Attendance Allowance),
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And in addition to what you pay, as far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeA] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

1. Yes, the council, local authority, or social services.
2. Yes, a family member with their own money
3. Yes, other
4. No, nobody else pays

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And does the local authority, council or social services pay [SCPayCodeA] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And what period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

What period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

(If participant stated that no payment was made)

You have told me that no payment was made for [SCPayCodeA] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer:
This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Web Interview:
Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it. Have you been allocated a Personal Budget?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

What is the value of your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Web Interview:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care.
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these
Are you taking any of your Personal Budget as a Direct Payment?

1. Yes, all of Personal Budget as Direct Payment
2. Yes, part of Personal Budget as Direct Payment
3. No, none of Personal Budget as Direct Payment
4. SPONTANEOUS: Not being paid my Personal Budget yet.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

In addition to your user charges, do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you pay to top up your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you receive any care paid for by the council or the local authority?

1.Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much does the council or local authority pay for your care?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Apart from any care paid for by the local authority, do you pay for any care privately at the moment?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you pay for the care you purchase privately?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Which of these apply to care you receive?

1. Direct Payments where you get the money to spend on the support you choose.
2. You tell the council how to spend the money.
3. You let the council decide how to spend the money.
96. None of these

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Has the local authority or council made an assessment of what you can afford for any of your care needs? This is sometimes called an income assessment or means testing.

1. Yes, had an income assessment
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How was the help from [HelpCode] arranged?

1. Arranged without involvement from the local authority, council or social service.
2. Local authority, council or social services arranged this help for me
3. Local authority, council or social services told me about the help but I arranged it myself or my family arranged it for me.
4. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeA] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

Does this payment cover all the cost of this help or some of the cost of this help?

For questions 1:
1. Yes
2. No

For question 2:
Amount in £

For question 3:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

For question 4:
1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer Instruction:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you?

Web Interview:
How do you usually pay or give money for the care provided by [SCPayCodeA] for helping you? Please select all the answers that apply to you.

1. My own personal income, savings, pension or benefit (such as Attendance Allowance).
2. My Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. From another source

1. Use own personal income, savings, pension or benefit (such as Attendance Allowance),
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And in addition to what you pay, as far as you are aware does anyone else or any organisations pay or give money to [SCPayCodeA] for the care you receive – for example the council or a family member? Please do not count any benefits such as Carers Allowance or Attendance Allowance.

1. Yes, the council, local authority, or social services.
2. Yes, a family member with their own money
3. Yes, other
4. No, nobody else pays

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And does the local authority, council or social services pay [SCPayCodeA] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And what period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeA] paid from the direct payment or personal budget for helping you?

Amount in £

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

What period did that cover?

1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

(If participant stated that no payment was made)

You have told me that no payment was made for [SCPayCodeA] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you or your spouse / or your partner pay or give any money for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money do you or your spouse / or your partner pay for the help given by [SCPayCodeB] ? Please include any payments made for this care, even if not made directly to the care provider.

And, what period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Does this payment cover all the cost of this help or some of the cost of this help?

1. All
2. Some

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

1. My own personal income, savings, pension or benefit (such as Attendance Allowance)
2. My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
3. From another source

Web Interview:
1. Use own personal income, savings, pension or benefit (such as Attendance Allowance)
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

Here is a list of some health and welfare services. Which of these services have you yourself made any use of in the last 12 months?

“1. Health visitor, district nurse
2. Home-help
3. Meals on wheels
4. Social worker or welfare officer
5. Chiropodist
6. Alternative medical practitioner
7. Psychotheratist
8. Speech therapist or occupational therapist
9. Physiotherapist
10. Hospital consultant/outpatients
11. Family planning clinic
97. Any other health or welfare services? 96. None of these”

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Which of these services have you used over the last 12 months?
If used, on a scale of 1 to 7 where 1 means completely dissatisfied and 7 means completely satisfied, how satisfied were you with the service?

Q1.
1. Your local doctor
2. A local hospital
3. Social care services
4. A council housing department or housing association
5. Police service
6. Local leisure service
8. A public library
9. A job centre
10. Advice services 11. None of these

Q2.
Value from 1-7

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. According to our records, you have in the past received Carer’s Allowance. Are you currently receiving Carer’s Allowance either just yourself or jointly with your spouse or partner?

2. Last amount received?

3. What period does this cover?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you usually manage to get up and down stairs or steps…
2. Do you usually manage to get around the house (except for any stairs)…
3. Do you usually manage to get in and out of bed…
4. Do you usually manage to cut your toenails..
5. Do you usually manage to bath, shower or wash all over…
6. Do you usually manage to go out of doors and walk down the road…
7. Do you manage to use the toilet, including getting up and down
8. Do you manage to eat, including cutting up food..
9. Do you manage to wash your face and hands..
10. Do you manage to dress or undress, including putting on shoes and socks…
11. Do you manage to take the right amount of medicine at the right times…
12. Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…
12. Do you manage to do routine housework or laundry…
13. Do you manage to do paperwork or paying bills…

For each 1-13 = ‘on your own’,
a. Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Q1-13
1.On your own
2. Only with help from someone else
3. or Not at all?

Qa
1. Very easy
2. Fairly easy
3. Fairly difficult
4. Very difficult

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. In the last month, who has helped you with personal things around the home?

2. Does the person who helps you the most live with you?

Q1
1. Husband / Wife / Partner
2. Son (including stepson, adopted son or son-in-law)
3. Daughter (including stepdaughter, adopted daughter or daughter-in-law)
4. Grandchild (including great grandchildren)
5. Brother / Sister (including step/adopted/in-laws)
6. Niece / Nephew
7. Mother / Father (including mother-in-law/father-in-law)
8. Other family member
9. Friend
10. Neighbour
11. None of the above

Q2
1. Resident here
2. Not resident here

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. And, which of these people helped you with personal things around the home in the last month?

1. Home care worker / Home help / Personal Assistant
2. A member of the reablement / intermediate care staff team
3. Occupational Therapist / Physiotherapist / Nurse
4. Voluntary helper
5. Warden / Sheltered housing manager
6. Cleaner
7. Council’s handyman
8. Other
9. None of the above

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about [carer] , in the last week, how many hours have they helped you in person with these kinds of tasks?

1. No help in the last week
2. Less than one hour
3. 1 – 4 hours
4. 5 – 9 hours
5. 10 – 19 hours
6. 20 – 34 hours
7. 35 – 49 hours
8. 50 – 99 hours
9. 100 hours or more

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Now a few questions about paying for the care you receive. Do you usually deal with paying for your care or does a family member or friend manage this for you?

Interviewer Instruction:
1. Respondent deals with this all him/herself
2. Respondent knows about some of it but not all.
3. Respondent doe not deal with this at all

Web Interview:
1. I deal with this all myself.
2. I know about some of it but not all
3. I do not deal with this at all.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How do you usually pay or give money for the care provided by [SCPayCodeB] for helping you?

1. My own personal income, savings, pension or benefit (such as Attendance Allowance)
2. My Direct Payment or Personal or Individual Budget from the Local Authority, council, or social services
3. From another source

Web Interview:
1. Use own personal income, savings, pension or benefit (such as Attendance Allowance)
2. Use Direct Payment or Personal or Individual Budget from the Local Authority, Council or Social Services.
3. Use money from another source

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

And does the local authority, council or social services pay [SCPayCodeB] directly or is it through your Direct Payment or a Personal Budget?

1. Social services or council pay directly
2. Paid through Direct Payments, or Personal or Individual Budgets

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much money is [SCPayCodeB] paid from the direct payment or personal budget for helping you?

What period did that cover?

For Question 1:
Amount in £

For Question 2:
1. Per hour
2. Per visit
3. Per day
4. Per week
5. Per fortnight
6. Per four weeks
7. Per calendar month
8. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

You have told me that no payment was made for [SCPayCodeB] helping you. Why was this?

1. They provided their help for free/there is no charge for the service
2. Sometimes I give them money or gifts for the help they give me
3. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Has the council or local authority made an assessment or review of your care needs in the last 12 months?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer:
This card describes a Personal Budget that your local authority may have allocated for you. Have you been allocated a Personal Budget?

Web Interview:
Where the local authority finds that you are eligible for support for your social care needs, your Personal Budget is the amount they calculate is needed to meet these. This might cover the full cost of your social care or part of it. Have you been allocated a Personal Budget?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

What is the value of your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Interviewer:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care. Are you taking any of your Personal Budget as a Direct Payment?

Web Interview:
Here are some of the different ways Local Authorities, councils, or social services arrange payment for people’s care.
Direct Payments where the council gives you a payment to meet some or all of your social care needs. You can then choose how to spend the money. This should not be confused with benefits such as your state pension or Attendance Allowance paid directly into a bank account.
The council, or someone else, arranges the services paid from your Personal Budget to meet some or all of your social care needs, and you may be able to choose which services to use.
Neither of these
Are you taking any of your Personal Budget as a Direct Payment?

1. Yes, all of Personal Budget as Direct Payment
2. Yes, part of Personal Budget as Direct Payment
3. No, none of Personal Budget as Direct Payment
4. SPONTANEOUS: Not being paid my Personal Budget yet.

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you contribute in user charges for your Personal Budget? If you do not contribute any user charges, please enter 0.00.

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

In addition to your user charges, do you pay to top up your Personal Budget at all? This might be to pay for a more expensive option than the council has allowed for, or to pay for more care than the council suggested.

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you pay to top up your Personal Budget?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Do you receive any care paid for by the council or the local authority?

1.Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much does the council or local authority pay for your care?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

Apart from any care paid for by the local authority, do you pay for any care privately at the moment?

1. Yes
2. No

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How much do you pay for the care you purchase privately?

What period does that cover?

Question 1:
Amount in £

Question 2:
1. Per week
2. Per calander month
3. Per year

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Is there anyone living with you who is sick, disabled or elderly whom you look after or give special help to (for example, a sick, disabled or elderly relative/husband/wife/friend etc)?

If 1 = yes,

2. Who do you look after?
(can be linked to other named respondent in survey)

Q1
Yes/No
Q2
Free response

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you provide some regular service or help for any sick, disabled or elderly person not living with you?

If 1 = yes,

2. How many people do you care for?

If 2 = > 5

3. Who is the first person that you look after or help? (What is their relationship to you?)
4. Who is the second person that you look after or help? (What is their relationship to you?)

Q1
Yes/No
Q2
Free response
Q3, 4
1. Parent/parent-in-law
2. Grandparent
3. Aunt/uncle
4. Other relative
5. Friend or neighbour
6. Client(s) of voluntary organisation
7. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Now thinking about everyone who you look after or provide help for both those living with you and not living with you – in total, how many hours do you spend
each week looking after or helping (him/her/them)?

1. 0 – 4 hours per week
2. 5 – 9 hours per week
3. 10 – 19 hours per week
4. 20 – 34 hours per week
5. 35 – 49 hours per week
6. 50 – 99 hours per week
7. 100 or more hours per week/continuous care
8. Varies under 20 hours
9. Varies 20 hours or more
10. Other

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Thinking about everyone who lives with you that you look after or provide help for – does this extra work looking after [name] prevent you from doing a paid
job or as much paid work as you might like to do? Would you say you are…

1. Unable to work at all
2. Unable to do as much paid work as you might
3. Or this doesn’t prevent you from working?

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

How often do you have to miss school / sixth form college / further education college to look after
[NAME(S)] ?

1. Never
2. Once a week or more often
3. Once or twice a month

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. Do you usually manage to get up and down stairs or steps…
2. Do you usually manage to get around the house (except for any stairs)…
3. Do you usually manage to get in and out of bed…
4. Do you usually manage to cut your toenails..
5. Do you usually manage to bath, shower or wash all over…
6. Do you usually manage to go out of doors and walk down the road…
7. Do you manage to use the toilet, including getting up and down
8. Do you manage to eat, including cutting up food..
9. Do you manage to wash your face and hands..
10. Do you manage to dress or undress, including putting on shoes and socks…
11. Do you manage to take the right amount of medicine at the right times…
12. Do you manage to shop for food, including getting to the shops, choosing the items, carrying the items home and then unpacking and putting the items away…
12. Do you manage to do routine housework or laundry…
13. Do you manage to do paperwork or paying bills…

For each 1-13 = ‘on your own’,
a. Do you find it very easy, fairly easy, fairly difficult or very difficult to do this on your own?

Q1-13
1.On your own
2. Only with help from someone else
3. or Not at all?

Qa
1. Very easy
2. Fairly easy
3. Fairly difficult
4. Very difficult

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these

1. In the last month, who has helped you with personal things around the home?

2. Does the person who helps you the most live with you?

Q1
1. Husband / Wife / Partner
2. Son (including stepson, adopted son or son-in-law)
3. Daughter (including stepdaughter, adopted daughter or daughter-in-law)
4. Grandchild (including great grandchildren)
5. Brother / Sister (including step/adopted/in-laws)
6. Niece / Nephew
7. Mother / Father (including mother-in-law/father-in-law)
8. Other family member
9. Friend
10. Neighbour
11. None of the above

Q2
1. Resident here
2. Not resident here

1. Asthma
2. Arthritis
3. Congestive heart failure
4. Coronary heart disease
5. Angina
6. Heart attack or myocardial infarction
7. Stroke
8. Emphysema
11. Chronic bronchitis
21. COPD (Chronic Obstructive Pulmonary Disease)
10. Hypothyroidism or an under-active thyroid
12. Any kind of liver condition
13. Cancer or malignancy
14. Diabetes
15. Epilepsy
16. High blood pressure/hypertension
22. An emotional, nervous or psychiatric problem.
19. Multiple Sclerosis
20. H.I.V.
18. Other long standing/chronic condition
96. None of these