Catalogue of Social Care Data

Why do you not live together [with partner]?

What kind of institution does he/she live in?

Part 1:
Separated
Husband/wife/partner living in an institution
Respondent living in an institution
Husband/wife/partner working away from home
Respondent working away from home

Part 2:
Nursing home/ other care home
Hospital/hospice
Prison
Other

Thinking overall about the help or caring you give, excluding childcare, in the last four weeks on how many days have you been involved in this type of caring?

On an average day when you did this type of caring, how long did you spend on it (including travelling)?

Part 1:
Number of days

Part 2:
Number of hours

Is there anyone who regularly depends on you for help or support? By that I mean that you do things they couldn’t manage for themselves because of illness, disability or old age or some other reason? Please don’t include any childcare you have just told me about.

What relationship do they have to you?

What do you help with?

How many hours do you spend helping them in an average week?

How much of a strain is it?

Does the person live in the same household as you?

Part 1:
Yes
No

Part 2:
Spouse
Parent
Parent-in-law
brother/sister
brother-in-law/sister-in-law
own child
child (step, adopted etc.)
Friend other

Part 3:
personal care (bathing, taking medicine etc.)
mobility round house
household chores (cleaning, cooking etc.)
transportation outside (take shopping etc.)
dealing with officials, financial affairs etc.
Companionship
‘everything’
errands (do shopping, get pension, post letters etc.)
Other

Part 4:
Number of hours

Part 5:
a great strain
quite a strain
a moderate strain
not much of a strain
no strain at all

Part 6:
resident in same household
lives in another household
lives in an institution

On an average day when you did this type of caring how
long did you spend on it (including travelling)?

Hours and mins

Thinking overall about all the help or caring you give,
excluding childcare, in the last four weeks on how many
days have you been involved in this type of caring?

Number of days

Looking at the faces scales, which face shows best how you
feel about doing the caring work that you’ve just told me
about?

Participant picks one face from a range of portrayed emotions

Is there anyone who regularly depends on you for help or support?
By that I mean that you do things they couldn’t manage for
themselves because of illness, disability, old age or some other reason? Please don’t include any childcare you have just told me about

What relationship do they have to you?

What do you help with?

How many hours do you spend helping them in
an average week?

Does this person live in the same household as
you?

What relationship do they have to you?
(**if couple add 10 to code**)
spouse ……………………………….. 1
parent ………………………………… 2
parent in law ……………………… 3
brother/sister ………………………. 4
brother in law/sister in law …. 5
own child …………………………… 6
child (step, adopted etc.) …. 7
friend ………………………………….. 8
other (specify) ……………………. 9

What do you help with?
(code in order mentioned)
personal care …………………….. 1
(bathing, taking medicine etc.)
mobility round house …………. 2
household chores ………………. 3
(cleaning cooking etc.)
transportation outside ……….. 4
(take shopping etc.)
dealing with officials,
financial affairs etc. ………….. 5
companionship ………………….. 6
‘everything’ ………………………… 7
other (specify) ……………………. 8

How many hours do you spend helping them in
an average week?
(code hours per week)
col 6 How much of a strain is it?
a great strain ……………………… 1
quite a strain ……………………… 2
a moderate strain ……………… 3
not much of strain ……………… 4
no strain at all …………………….. 5

Does this person live in the same household as
you?
Resident in same household 1
Lives in another household … 2
Lives in an institution ………….. 3

Throughout your childhood, up to the age of 15, did you ever live in a residential home or institution? (exclude public schools)

b) how old were you when you when that first happened? age

c) for how many years in all did you live in a home or institution?

Part 1:
Yes
No

Part 2:
Age years

Part 3:
No. of years

Throughout your childhood, up to the age of 15, did you ever live in a residential home or institution?

Yes
No

Does your household have any income from
any of these sources?

Sickness benefits
16 …… statutory sick pay (SSP)
17 …… incapacity benefit (previously invalidity benefit))
18 …… severe disablement allowance
19 …… industrial injuries disablement benefit
20 …… attendance allowance
21 …… invalid care allowance
22 …… disability living allowance
23 …… disability working allowance
24 …… reduced earnings allowance
25 …… retirement allowance
26 …… other mobility/disability allowances

For all data items:
yes
no
refused don’t know

I’d like you think in general about all the time you spend on caring for other people, not including children. I am going to show you a card which has on it a set of statements which might describe how you feel about all these activities. I would like you to tell me whether each statement is true for you…

1 makes me feel isolated
7 leaves me plenty of time
for myself
2 is full of stress
8 is too frantic and hurried
3 is interesting and challenging
9 lets me feel important and worth while
4 can be quite lonely 10 allows me to set my own pace of life
5 leaves me mentally tired out at the end of the day
11 causes me a lot of worry
6 lets me make full use of my abilities
12 is too routine

For all data items:
very frequently
quite frequently
only occasionally
never

On an average day when you did this type of caring how
long did you spend on it (including travelling)?

Hours and mins

Thinking overall about all the help or caring you give,
excluding childcare, in the last four weeks on how many
days have you been involved in this type of caring?

Number of days

Is there anyone who regularly depends on you for help or support?
By that I mean that you do things they couldn’t manage for
themselves because of illness, disability, old age or some other reason? Please don’t include any childcare you have just told me about

What relationship do they have to you?

What do you help with?

How many hours do you spend helping them in
an average week?

Does this person live in the same household as
you?

What relationship do they have to you?
(**if couple add 10 to code**)
spouse ……………………………….. 1
parent ………………………………… 2
parent in law ……………………… 3
brother/sister ………………………. 4
brother in law/sister in law …. 5
own child …………………………… 6
child (step, adopted etc.) …. 7
friend ………………………………….. 8
other (specify) ……………………. 9

What do you help with?
(code in order mentioned)
personal care …………………….. 1
(bathing, taking medicine etc.)
mobility round house …………. 2
household chores ………………. 3
(cleaning cooking etc.)
transportation outside ……….. 4
(take shopping etc.)
dealing with officials,
financial affairs etc. ………….. 5
companionship ………………….. 6
‘everything’ ………………………… 7
other (specify) ……………………. 8

How many hours do you spend helping them in
an average week?
(code hours per week)
col 6 How much of a strain is it?
a great strain ……………………… 1
quite a strain ……………………… 2
a moderate strain ……………… 3
not much of strain ……………… 4
no strain at all …………………….. 5

Does this person live in the same household as
you?
Resident in same household 1
Lives in another household … 2
Lives in an institution ………….. 3

a) What is the main reason that you are not looking for work? Are there any other reasons?

illness/disability
looking after relative
too old to get job
lack of skills
out of work too long
too much competition
never worked
looking after home
in education
financially not worth while
other (specify)

Does your household have any income from
any of these sources?

Sickness benefits
16 …… statutory sick pay (SSP)
17 …… incapacity benefit (previously invalidity benefit))
18 …… severe disablement allowance
19 …… industrial injuries disablement benefit
20 …… attendance allowance
21 …… invalid care allowance
22 …… disability living allowance
23 …… disability working allowance
24 …… reduced earnings allowance
25 …… retirement allowance
26 …… other mobility/disability allowances

For all data items:
yes
no
refused don’t know

I’d like you think in general about all the time you spend on caring for other people, not including children. I am going to show you a card which has on it a set of statements which might describe how you feel about all these activities. I would like you to tell me whether each statement is true for you…

1 makes me feel isolated
7 leaves me plenty of time
for myself
2 is full of stress
8 is too frantic and hurried
3 is interesting and challenging
9 lets me feel important and worth while
4 can be quite lonely 10 allows me to set my own pace of life
5 leaves me mentally tired out at the end of the day
11 causes me a lot of worry
6 lets me make full use of my abilities
12 is too routine

For all data items:
very frequently
quite frequently
only occasionally
never

On an average day when you did this type of caring how
long did you spend on it (including travelling)?

Hours and mins

Thinking overall about all the help or caring you give,
excluding childcare, in the last four weeks on how many
days have you been involved in this type of caring?

Number of days

Looking at the faces scales, which face shows best how you
feel about doing the caring work that you’ve just told me
about?

Range of happy to sad faces

Is there anyone who regularly depends on you for help or support?
By that I mean that you do things they couldn’t manage for
themselves because of illness, disability, old age or some other reason? Please don’t include any childcare you have just told me about

What relationship do they have to you?

What do you help with?

How many hours do you spend helping them in
an average week?

Does this person live in the same household as
you?

What relationship do they have to you?
(**if couple add 10 to code**)
spouse ……………………………….. 1
parent ………………………………… 2
parent in law ……………………… 3
brother/sister ………………………. 4
brother in law/sister in law …. 5
own child …………………………… 6
child (step, adopted etc.) …. 7
friend ………………………………….. 8
other (specify) ……………………. 9

What do you help with?
(code in order mentioned)
personal care …………………….. 1
(bathing, taking medicine etc.)
mobility round house …………. 2
household chores ………………. 3
(cleaning cooking etc.)
transportation outside ……….. 4
(take shopping etc.)
dealing with officials,
financial affairs etc. ………….. 5
companionship ………………….. 6
‘everything’ ………………………… 7
other (specify) ……………………. 8

How many hours do you spend helping them in
an average week?
(code hours per week)
col 6 How much of a strain is it?
a great strain ……………………… 1
quite a strain ……………………… 2
a moderate strain ……………… 3
not much of strain ……………… 4
no strain at all …………………….. 5

Does this person live in the same household as
you?
Resident in same household 1
Lives in another household … 2
Lives in an institution ………….. 3

Can I ask you how much income you personally receive from..(source)?

14..sickness benefit/statutory sick pay
15..invalidity benefit
16..community charge benefit
17..severe disablement allowance
18..industrial injury or disablement allowance
19..attendance allowance
20..invalid care allowance
21..mobility allowance
22..other mobility/disability allowances

Does it [previously specified condition] affect your ability to?

walk in the street
climb steps or stairs
bend to pick things up
reach behind, stretch or turn
grip and lift objects

Thinking back to the time of your childhood now, who did you live with for most of the time between ages 5 and 15?

Both parents
Adoptive parent(s)
Live with Mother and other male (name of male
Father and other female (name of female)
Mother alone
Father alone
Mother then father or vice versa
Foster parent(s)
Other relative(s) (name of male head)
Combination of people
Residential care
Don’t know

Everyone has certain things they have to do around the house. How often do you have to do the following?

1 make your bed…
2 the washing up
3 wash/iron clothes
4 food shopping for household
5 help prepare meals
6 look after younger child/dep relative
7 vacuum/hoover house

Part 1:
Does anyone in your household suffer from any longstanding
illness, disability or infirmity?

Part 2:
Which member(s) of your household is this?

Part 3:
Does [household member name] have trouble with:
a) getting out on his / her own?
b) getting around inside the house?
c) washing or dressing him/herself?
d) going to the toilet?
e) bathing him/herself?
f) feeding him/herself?

Part 4:
Who is most involved in looking after [household member name]?

Part 1:
Yes
No
Don’t know

Part 2: Open response.

Part3:
Yes
No
DK

Part 4: Open response.

Part 1:
There are a lot of different ways in which people get income. Looking at the list can you tell me which of these your husband/wife/partner and yourself gets income from?

Part 2:
Which of these provides the largest part of your income?

Part 1:
disability pension
industrial injury benefit
attendance allowance
mobility allowance
invalid care allowance

Part 2:
Select benefit which applies.

Part 1:
Is there anyone who regularly depends on you for help
or support? By that I mean that you do things they
couldn’t manage for themselves?

Part 2:
what relationship do they have to you?

Part 3:
how many hours do you spend helping them in an average week?

Part 4:
how much of a strain is it?

Part 5:
what do you help with?….

Part 1:
yes
no

Part 2:
(**if couple add 10 to code**) them in an average week?….
spouse
parent
parent in law
brother/sister
child
friend
neighbour
other (specify)…

Part 3:
code hours per week

Part 4:
a great strain
quite a strain
a moderate strain
not much of a strain
no strain at all

Part 5:
(code in order mentioned)
personal care (bathing, taking medicine etc.)….1
mobility round house…………………………. 2
household chores (cleaning, cooking etc.)……. 3
transportation outside (take shopping etc.)……. 4
dealing with officials, financial affairs etc.……. 5
companionship…………………………………6
child minding…………………………………. 7
other (specify)………………………………… 8