HSE-960 SWEEEPS

HSE-960

Timeline Group label Sweep Group Sweep Title Participant age Starts Ends Scale Provision, Receipt, Need? Topic(s) Focus Informant: Multiple rater? Reporting Term Question(s) Response scale Standard instrument? Notes Physical Health Measures
2018 Sweep HSE-960 January 2018 January 2019 End of life - caring activities & other details Provision; Participant No Current

“Did you look after or give other general help to them [person at end of life] like the things listed at the bottom of this card?

Personal care examples:
Help with washing
Help with dressing
Help with going to the toilet
Help with eating
Other help with physical needs
General help examples:
Keeping company / visiting
Running errands
Doing laundry
Shopping
Giving lifts
Helping with money or legal issues
Taking to appointments or out for recreation
Other help or support

Thinking about the time when you were providing general help like this, how long was this for?

Roughly,} how many days in total did you help like this?

Still thinking about the last year of providing help in general what time of day did you provide this kind of help?
Please tell me all that apply.

Roughly how long did you spend providing help like this during the morning?
Roughly how long did you spend providing help like this during the afternoon?
Roughly how long did you spend providing help like this during the evening?
Roughly how long did you spend providing help like this during the night?

Roughly how long did you spend providing help like this on those occasions?”

Part 1:
1 Yes
2 No

Part 2:
1 A week or less
2 More than a week, up to a month
3 More than a month, up to 3 months
4 More than 3 months, up to 6 months
5 More than 6 months, up to 9 months
6 More than 9 months, up to a year
7 More than a year, up to two years
8 More than two years, up to five years
9 More than five years

Part 3:
1 Every day
2 At least once a week
3 At least once a month
4 Less than once a month
5 SPONTANEOUS: It varied too much to say

Part 4:
Numeric answer

Part 5:
1 Morning
2 Afternoon
3 Evening
4 Night
5 SPONTANEOUS: It varied too much to say

Part 6-9:
INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

Part 10:
INTERVIEWER: ROUND TO NEAREST NUMBER OF HOURS.

No

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