Related Measure: Benefits
Generation Scotland (GSSFHS)
GS:SFHS is a family-based genetic epidemiology study with DNA and socio-demographic and clinical data from 24,000 volunteers across Scotland aged 18–98 years. The breadth and depth of phenotype information collected, participants’ mechanisms for linkage of all data to comprehensive routine health-care records, and ‘broad’ consent from participants to use their data and samples for a wide range of research were designed to maximize the power of the resource to identify, replicate or control for genetic factors associated with a wide spectrum of illnesses and risk factors, both now and in the future. It has recently added on a new module called COVIDLife in which quesitons related to COVID-19 were asked to participants over three main sweeps in 2020 and 2021. There are also three young persons' sweeps and a sweep which focuses specifically on rural areas.
Special Educational Needs Person Level Survey (SEN2)
SEN2 collects data about children for whom the local authority has responsibility for the management of the SEN processes, under the 1996 Education Act and the 2014 Children and Families Act. The information collected via the annual SEN2 data collection provides the major source of data collected on children and young people with Education, Health and Care (EHC) plans. It is the only source of data on the totality of EHC plans maintained by individual local authorities. It allowed ministers, Parliament, central and local government, external organisations and the public at large to monitor government policies and their effectiveness, and to see how many children and young people with EHC plans there are in individual local authorities.
School Census (SchC)
Completion of the school census is a statutory requirement under section 537A of the Education Act 1996. Most schools complete the school census three times per year.These collections give an excellent coverage of pupils educated in England. Local authority maintained schools and pupil referral units submit census data to their local authority who authorize the data and then submit it to the department. Academies and other schools not maintained by a local authority are responsible for submitting their own data to the department. The data aims to give a fair representation of the policy area, aiding the work of policy makers and commissioners.
Labour Force Survey (LFS)
The Labour Force Survey (LFS) is a study of the employment circumstances of the UK population. It is the largest household study in the UK and provides the official measures of employment and unemployment. This provides evidence for policy- and decision-making, and for directing resources to where they are needed most.
Growing Up in Scotland (GUSBC)
Growing Up in Scotland (GUS) is a longitudinal research study that tracks the lives of thousands of children and their families from the early years, through childhood and beyond. Launched in 2005, GUS has collected information on three nationally representative cohorts of children born in 2004-05 (Birth Cohort 1), 2002-03 (Child Cohort) and 2010-11 (Birth Cohort 2). This page provides information about Birth Cohort 1 (BC1). The main aim of the study is to provide new information to support policymaking in Scotland, but it is also intended to provide a resource for practitioners, academics, the voluntary sector and parents.
British Household Panel Survey (BHPS)
The British Household Panel Survey began in 1991 and was a multi-purpose study whose unique value resided in the fact that it followed the same representative sample of individuals over a period of years. Sampling was by household and every adult member within each sampled household was interviewed. The main objective of the BHPS was to further the understanding of social and economic change at the individual and household level in Britain. It was discontinued in 2007 though some sample members were recruited to become sample members in the UK Household Longitudinal Survey (Understanding Society).
General Household Survey (GHS)
The aim of the General Household Survey was to provide government departments and organisations with data on a range of topics relating to private households to aid monitoring and policy-making. The General Household Survey was carried out between 1971 and 2007, with two breaks (1997-1998 and 1999-2000) when the survey was redeveloped. The survey was discontinued in 2007.
Survey of Carers in Households (SCH)
The Survey of Carers in Households was commissioned by the Department of Health as part of the Government’s Carers’ Strategy programme. The NHS Information Centre for health and social care (NHS IC) undertook responsibility for this survey which was funded by the Department of Health and the Department for Work and Pensions. The survey collected details on the prevalence of caring in England, the demographic profile of carers, the impact of caring duties upon the carer, details of the services carers receive and a profile of the cared for people. Carers who were under 16 years of age were excluded from the Survey of Carers in Households 2009/10, as were people in communal establishments.
Stats Wales (StatWales)
Stats Wales is the Welsh Government’s free-to-use online repository for detailed statistical data for Wales. Stats Wales allows users to view and manipulate datasets on-screen, including the ability to produce charts. Data can be downloaded in a variety of formats and can be saved and shared. The system covers nearly 1,000 datasets, including key information on Wales’ population, economy, government spending and performance as well as the environment, education, transport and health.
Cognitive Function and Ageing Study II (CFAS II)
Since the baseline of MRC CFAS there has been an increase in life expectancy, changes in major chronic disease and potentially advances in symptomatic treatments for Alzheimer’s disease and other dementias. CFAS II builds upon the design and infrastructure of MRC to investigate the implications of changes in morbidity and frailty on health itself, as well as the use of services and expenditure in health and social care on future. It also provides important baseline information on older people aged 65-84 in 2008-2011 who will reach the age of greatest frailty during the 2020’s, when the peak in the number of people aged 85 or over is expected and at a time when major therapeutic interventions for dementia could be expected to have an effect.
Avon Longitudinal Study of Parents & Children (ALSPAC)
The Avon Longitudinal Study of Parents & Children (ALSPAC) is a multi-generational, population-based prospective birth cohort study. Established in the early 90s, ALSPAC follows the lives of over 14,500 people born between April 1991 and December 1992 and their family members. Children and their families have been followed intensively, primarily with annual questionnaires, as well as clinical assessments for a sub-sample of cohort members. ALSPAC was specifically designed to understand the ways in which genetic and environmental factors interact to influence health, behaviour, and development across the lifespan. The ALSPAC study has collected data using a range of methods. Mental health measures collected in postal questionnaires and from clinic assessments are detailed on the Catalogue.
1970 British Cohort Study (BCS70)
The 1970 British Cohort Study (BCS70) is a multidisciplinary national longitudinal birth cohort study. Original aims were to examine the social and biological characteristics of the mother in relation to neonatal morbidity, and to compare the results with the 1958 National Child Development Study. With each successive sweep, the scope of the enquiry has broadened from a strictly medical focus at birth, to encompass physical, educational, social and economic development.
1958 National Child Development Study (NCDS)
The 1958 National Child Development Study is a multidisciplinary national longitudinal birth cohort study following the lives of over 17,000 people born in 1958. The study aims to improve understanding of the factors affecting human development over the whole lifespan. Follows histories of health, wealth, education, family and employment from early life with linked biomedical and examination performance data integrated into the study.
Health Survey for England (HSE)
The Health Survey for England monitors trends in the nation’s health and care, providing information about adults aged 16 and over, and children aged 0 to 15, living in private households in England. Each survey includes core questions (e.g. about smoking, alcohol, general health); measurements such as height, weight, and blood pressure; and analysis of blood and saliva samples. In addition, there are question modules on specific topics that vary from year to year.
English Longitudinal Study of Ageing (ELSA)
The English Longitudinal Study of Ageing (ELSA) is a longitudinal study that collects multidisciplinary data from a representative sample of the English population aged 50 and older. The survey data are designed to be used for the investigation of a broad set of topics relevant to understanding the ageing process including economic position, physical and mental health, labour market activity, retirement and social networks.
Millennium Cohort Study (MCS)
The Millennium Cohort Study (MCS) is a national longitudinal birth cohort study following the lives of around 19,000 young people born in the United Kingdom in 2000-01. This multidisciplinary survey aims to capture the influence of early family context on child development and outcomes. Children from minority ethnic backgrounds and children in Scotland, Wales & Northern Ireland are oversampled to help capture the diversity of backgrounds into which children are born in the beginning of the 21st century.
Understanding Society – UK Household Longitudinal Survey (UKHLS)
Understanding Society is a largescale longitudinal survey of approximately 40,000 households across the United Kingdom. As a multi-topic household survey, the purpose of Understanding Society is to understand social and economic change in Britain at the household and individual levels by capturing important information about the social and economic circumstances, attitudes and behaviours and health of people living in thousands of households. The Understanding Society study is a successor to the British Household Panel Survey (BHPS), with the BHPS sample forming part of Understanding Society from Wave 2 onwards.